The use of focus groups to develop a culturally relevant quality of life tool for lymphatic filariasis in Bangladesh.
Identifieur interne : 001A60 ( PubMed/Corpus ); précédent : 001A59; suivant : 001A61The use of focus groups to develop a culturally relevant quality of life tool for lymphatic filariasis in Bangladesh.
Auteurs : Lynne Zeldenryk ; Marion Gray ; Susan Gordon ; Rick Speare ; Moazzem HossainSource :
- Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation [ 1573-2649 ] ; 2014.
English descriptors
- KwdEn :
- Adult, Aged, Bangladesh, Capacity Building (methods), Community Health Workers, Cultural Competency, Documentation (methods), Documentation (standards), Elephantiasis, Filarial (psychology), Elephantiasis, Filarial (therapy), Female, Focus Groups (utilization), Health Literacy, Health Services Needs and Demand, Humans, Male, Medical Staff, Middle Aged, Professional-Patient Relations, Qualitative Research, Quality of Life, Reproducibility of Results, Research Personnel, Surveys and Questionnaires (standards), Young Adult.
- MESH :
- geographic : Bangladesh.
- methods : Capacity Building, Documentation.
- psychology : Elephantiasis, Filarial.
- standards : Documentation, Surveys and Questionnaires.
- therapy : Elephantiasis, Filarial.
- utilization : Focus Groups.
- Adult, Aged, Community Health Workers, Cultural Competency, Female, Health Literacy, Health Services Needs and Demand, Humans, Male, Medical Staff, Middle Aged, Professional-Patient Relations, Qualitative Research, Quality of Life, Reproducibility of Results, Research Personnel, Young Adult.
Abstract
The purpose of this study was to conduct focus groups to operationalise the construct of quality of life (QOL) for people living with lymphatic filariasis (LF) in Bangladesh to develop culturally valid items for a Bangladeshi LF QOL tool.
DOI: 10.1007/s11136-013-0455-0
PubMed: 23793443
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pubmed:23793443Le document en format XML
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Moazzem" sort="Hossain, Moazzem" uniqKey="Hossain M" first="Moazzem" last="Hossain">Moazzem Hossain</name></author></titleStmt><publicationStmt><idno type="wicri:source">PubMed</idno><date when="2014">2014</date><idno type="RBID">pubmed:23793443</idno><idno type="pmid">23793443</idno><idno type="doi">10.1007/s11136-013-0455-0</idno><idno type="wicri:Area/PubMed/Corpus">001A60</idno><idno type="wicri:explorRef" wicri:stream="PubMed" wicri:step="Corpus" wicri:corpus="PubMed">001A60</idno></publicationStmt><sourceDesc><biblStruct><analytic><title xml:lang="en">The use of focus groups to develop a culturally relevant quality of life tool for lymphatic filariasis in Bangladesh.</title><author><name sortKey="Zeldenryk, Lynne" sort="Zeldenryk, Lynne" uniqKey="Zeldenryk L" first="Lynne" last="Zeldenryk">Lynne Zeldenryk</name><affiliation><nlm:affiliation>Occupational Therapy, School of Public Health, Tropical Medicine and Rehabilitation Sciences, James Cook University, Douglas, QLD, 4811, Australia, lynne.zeldenryk@jcu.edu.au.</nlm:affiliation></affiliation></author><author><name sortKey="Gray, Marion" sort="Gray, Marion" uniqKey="Gray M" first="Marion" last="Gray">Marion Gray</name></author><author><name sortKey="Gordon, Susan" sort="Gordon, Susan" uniqKey="Gordon S" first="Susan" last="Gordon">Susan Gordon</name></author><author><name sortKey="Speare, Rick" sort="Speare, Rick" uniqKey="Speare R" first="Rick" last="Speare">Rick Speare</name></author><author><name sortKey="Hossain, Moazzem" sort="Hossain, Moazzem" uniqKey="Hossain M" first="Moazzem" last="Hossain">Moazzem Hossain</name></author></analytic><series><title level="j">Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation</title><idno type="eISSN">1573-2649</idno><imprint><date when="2014" type="published">2014</date></imprint></series></biblStruct></sourceDesc></fileDesc><profileDesc><textClass><keywords scheme="KwdEn" xml:lang="en"><term>Adult</term><term>Aged</term><term>Bangladesh</term><term>Capacity Building (methods)</term><term>Community Health Workers</term><term>Cultural Competency</term><term>Documentation (methods)</term><term>Documentation (standards)</term><term>Elephantiasis, Filarial (psychology)</term><term>Elephantiasis, Filarial (therapy)</term><term>Female</term><term>Focus Groups (utilization)</term><term>Health Literacy</term><term>Health Services Needs and Demand</term><term>Humans</term><term>Male</term><term>Medical Staff</term><term>Middle Aged</term><term>Professional-Patient Relations</term><term>Qualitative Research</term><term>Quality of Life</term><term>Reproducibility of Results</term><term>Research Personnel</term><term>Surveys and Questionnaires (standards)</term><term>Young Adult</term></keywords><keywords scheme="MESH" type="geographic" xml:lang="en"><term>Bangladesh</term></keywords><keywords scheme="MESH" qualifier="methods" xml:lang="en"><term>Capacity Building</term><term>Documentation</term></keywords><keywords scheme="MESH" qualifier="psychology" xml:lang="en"><term>Elephantiasis, Filarial</term></keywords><keywords scheme="MESH" qualifier="standards" xml:lang="en"><term>Documentation</term><term>Surveys and Questionnaires</term></keywords><keywords scheme="MESH" qualifier="therapy" xml:lang="en"><term>Elephantiasis, Filarial</term></keywords><keywords scheme="MESH" qualifier="utilization" xml:lang="en"><term>Focus Groups</term></keywords><keywords scheme="MESH" xml:lang="en"><term>Adult</term><term>Aged</term><term>Community Health Workers</term><term>Cultural Competency</term><term>Female</term><term>Health Literacy</term><term>Health Services Needs and Demand</term><term>Humans</term><term>Male</term><term>Medical Staff</term><term>Middle Aged</term><term>Professional-Patient Relations</term><term>Qualitative Research</term><term>Quality of Life</term><term>Reproducibility of Results</term><term>Research Personnel</term><term>Young Adult</term></keywords></textClass></profileDesc></teiHeader><front><div type="abstract" xml:lang="en">The purpose of this study was to conduct focus groups to operationalise the construct of quality of life (QOL) for people living with lymphatic filariasis (LF) in Bangladesh to develop culturally valid items for a Bangladeshi LF QOL tool.</div></front></TEI><pubmed><MedlineCitation Status="MEDLINE" Owner="NLM"><PMID Version="1">23793443</PMID><DateCreated><Year>2014</Year><Month>01</Month><Day>24</Day></DateCreated><DateCompleted><Year>2014</Year><Month>09</Month><Day>12</Day></DateCompleted><DateRevised><Year>2017</Year><Month>02</Month><Day>20</Day></DateRevised><Article PubModel="Print-Electronic"><Journal><ISSN IssnType="Electronic">1573-2649</ISSN><JournalIssue CitedMedium="Internet"><Volume>23</Volume><Issue>1</Issue><PubDate><Year>2014</Year><Month>Feb</Month></PubDate></JournalIssue><Title>Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation</Title><ISOAbbreviation>Qual Life Res</ISOAbbreviation></Journal><ArticleTitle>The use of focus groups to develop a culturally relevant quality of life tool for lymphatic filariasis in Bangladesh.</ArticleTitle><Pagination><MedlinePgn>299-309</MedlinePgn></Pagination><ELocationID EIdType="doi" ValidYN="Y">10.1007/s11136-013-0455-0</ELocationID><Abstract><AbstractText Label="PURPOSE" NlmCategory="OBJECTIVE">The purpose of this study was to conduct focus groups to operationalise the construct of quality of life (QOL) for people living with lymphatic filariasis (LF) in Bangladesh to develop culturally valid items for a Bangladeshi LF QOL tool.</AbstractText><AbstractText Label="METHODS" NlmCategory="METHODS">Ten focus groups were conducted with a stratified purposeful sample (n = 60) of LF patients (3 focus groups, n = 17), doctors (1 focus group, n = 5), nurses (1 focus group, n = 6) and other hospital staff (1 focus group, n = 5), community leaders (2 focus groups, n = 14), community volunteer health workers (1 focus group, n = 5) and Bangladeshi LF researchers and planners (1 focus group, n = 8). Focus group methodology was informed by local culture in consultation with cultural mentors and local advisors, often going against standard focus group procedures. Data were collected through note taking, audio taping, transcripts, observational notes and a reflection diary. Open coding of transcript data was completed until data saturation was achieved.</AbstractText><AbstractText Label="RESULTS" NlmCategory="RESULTS">Forty-three constructs were identified through the focus groups that had not previously been identified in the literature, including constructs relating to environmental supports and barriers, activities, participation and psychological impacts. There were marked differences between the impacts reported by different groups, highlighting the need for a comprehensive purposive sample. In particular, contributions from participants who would not traditionally be viewed as "experts" were vital.</AbstractText><AbstractText Label="CONCLUSIONS" NlmCategory="CONCLUSIONS">The use of focus groups strongly contributed to the operationalisation of the concept of QOL in Bangladesh for people living with LF. Use of literature review or expert opinion alone would have missed vital constructs.</AbstractText></Abstract><AuthorList CompleteYN="Y"><Author ValidYN="Y"><LastName>Zeldenryk</LastName><ForeName>Lynne</ForeName><Initials>L</Initials><AffiliationInfo><Affiliation>Occupational Therapy, School of Public Health, Tropical Medicine and Rehabilitation Sciences, James Cook University, Douglas, QLD, 4811, Australia, lynne.zeldenryk@jcu.edu.au.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Gray</LastName><ForeName>Marion</ForeName><Initials>M</Initials></Author><Author ValidYN="Y"><LastName>Gordon</LastName><ForeName>Susan</ForeName><Initials>S</Initials></Author><Author ValidYN="Y"><LastName>Speare</LastName><ForeName>Rick</ForeName><Initials>R</Initials></Author><Author ValidYN="Y"><LastName>Hossain</LastName><ForeName>Moazzem</ForeName><Initials>M</Initials></Author></AuthorList><Language>eng</Language><PublicationTypeList><PublicationType UI="D016428">Journal Article</PublicationType><PublicationType UI="D013485">Research Support, Non-U.S. Gov't</PublicationType><PublicationType UI="D023361">Validation Studies</PublicationType></PublicationTypeList><ArticleDate DateType="Electronic"><Year>2013</Year><Month>06</Month><Day>22</Day></ArticleDate></Article><MedlineJournalInfo><Country>Netherlands</Country><MedlineTA>Qual Life Res</MedlineTA><NlmUniqueID>9210257</NlmUniqueID><ISSNLinking>0962-9343</ISSNLinking></MedlineJournalInfo><CitationSubset>IM</CitationSubset><CommentsCorrectionsList><CommentsCorrections RefType="Cites"><RefSource>Am J Health Behav. 2003 Nov-Dec;27 Suppl 3:S264-72</RefSource><PMID Version="1">14672387</PMID></CommentsCorrections><CommentsCorrections RefType="Cites"><RefSource>PLoS Negl Trop Dis. 2012;6(9):e1768</RefSource><PMID Version="1">23029569</PMID></CommentsCorrections><CommentsCorrections RefType="Cites"><RefSource>Int Wound J. 2005 Mar;2(1):47-62</RefSource><PMID 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Literacy</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D006301" MajorTopicYN="N">Health Services Needs and Demand</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D006801" MajorTopicYN="N">Humans</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D008297" MajorTopicYN="N">Male</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D008503" MajorTopicYN="N">Medical Staff</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D008875" MajorTopicYN="N">Middle Aged</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D011369" MajorTopicYN="N">Professional-Patient Relations</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D036301" MajorTopicYN="N">Qualitative Research</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D011788" MajorTopicYN="Y">Quality of Life</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D015203" MajorTopicYN="N">Reproducibility of 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