Evaluating Survivorship Experiences and Needs Among Rural African American Breast Cancer Survivors.
Identifieur interne : 000B64 ( PubMed/Corpus ); précédent : 000B63; suivant : 000B65Evaluating Survivorship Experiences and Needs Among Rural African American Breast Cancer Survivors.
Auteurs : Natasia Adams ; Silvia Gisiger-Camata ; Claudia M. Hardy ; Tammi F. Thomas ; Angela Jukkala ; Karen MenesesSource :
- Journal of cancer education : the official journal of the American Association for Cancer Education [ 1543-0154 ] ; 2017.
Abstract
Disparities in cancer survivorship exist among specific populations of breast cancer survivors, specifically rural African American breast cancer survivors (AA-BCS). While effective survivorship interventions are available to address and improve quality of life, interventions must be culturally tailored for relevance to survivors. Here, we report the results of our formative research using focus groups and in-depth interview to better understand unique rural AA-BCS survivorship experiences and needs in the Alabama Black Belt. Surveys were used to gather sociodemographic and cancer treatment data. Fifteen rural AA-BCS shared their experiences and concerns about keeping their cancer a secret, lack of knowledge about survivorship, lingering symptoms, religion and spirituality, cancer surveillance, and general lack of survivorship education and support. Rural AA-BCS were unwilling to share their cancer diagnosis, preferring to keep it a secret to protect family and friends. Quality-of-life issues like lymphedema body image and sexuality were not well understood. They viewed spirituality and religion as essential in coping and accepting cancer. Participants also discussed the importance of and barriers to maintaining health through regular check-ups. They needed social support from family and friends and health care providers. Overall, rural AA-BCS expressed their need for knowledge about survivorship self-management by providing a vivid picture of the realities of cancer survival based on shared concerns for survivorship support and education within the context of culture.
DOI: 10.1007/s13187-015-0937-6
PubMed: 26498472
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Hardy</name><affiliation><nlm:affiliation>Deep South Network for Cancer Control, UAB Comprehensive Cancer Center, University of Alabama, Birmingham, USA.</nlm:affiliation></affiliation></author><author><name sortKey="Thomas, Tammi F" sort="Thomas, Tammi F" uniqKey="Thomas T" first="Tammi F" last="Thomas">Tammi F. Thomas</name><affiliation><nlm:affiliation>Division of Clinical Immunology & Rheumatology, University of Alabama, Birmingham, USA.</nlm:affiliation></affiliation></author><author><name sortKey="Jukkala, Angela" sort="Jukkala, Angela" uniqKey="Jukkala A" first="Angela" last="Jukkala">Angela Jukkala</name><affiliation><nlm:affiliation>School of Nursing, University of Alabama, Birmingham, USA.</nlm:affiliation></affiliation></author><author><name sortKey="Meneses, Karen" sort="Meneses, Karen" uniqKey="Meneses K" first="Karen" last="Meneses">Karen Meneses</name><affiliation><nlm:affiliation>School of Nursing, UAB Comprehensive Cancer Center, University of Alabama, Birmingham, USA.</nlm:affiliation></affiliation></author></titleStmt><publicationStmt><idno type="wicri:source">PubMed</idno><date when="2017">2017</date><idno type="RBID">pubmed:26498472</idno><idno type="pmid">26498472</idno><idno type="doi">10.1007/s13187-015-0937-6</idno><idno type="wicri:Area/PubMed/Corpus">000B64</idno><idno type="wicri:explorRef" wicri:stream="PubMed" wicri:step="Corpus" wicri:corpus="PubMed">000B64</idno></publicationStmt><sourceDesc><biblStruct><analytic><title xml:lang="en">Evaluating Survivorship Experiences and Needs Among Rural African American Breast Cancer Survivors.</title><author><name sortKey="Adams, Natasia" sort="Adams, Natasia" uniqKey="Adams N" first="Natasia" last="Adams">Natasia Adams</name><affiliation><nlm:affiliation>Department of Psychology, College of Liberal Arts & Sciences, University of Kansas, Lawrence, KS, 66046, USA. njadams@ku.edu.</nlm:affiliation></affiliation></author><author><name sortKey="Gisiger Camata, Silvia" sort="Gisiger Camata, Silvia" uniqKey="Gisiger Camata S" first="Silvia" last="Gisiger-Camata">Silvia Gisiger-Camata</name><affiliation><nlm:affiliation>Office of Research & Scholarship, School of Nursing, University of Alabama, Birmingham, USA.</nlm:affiliation></affiliation></author><author><name sortKey="Hardy, Claudia M" sort="Hardy, Claudia M" uniqKey="Hardy C" first="Claudia M" last="Hardy">Claudia M. Hardy</name><affiliation><nlm:affiliation>Deep South Network for Cancer Control, UAB Comprehensive Cancer Center, University of Alabama, Birmingham, USA.</nlm:affiliation></affiliation></author><author><name sortKey="Thomas, Tammi F" sort="Thomas, Tammi F" uniqKey="Thomas T" first="Tammi F" last="Thomas">Tammi F. Thomas</name><affiliation><nlm:affiliation>Division of Clinical Immunology & Rheumatology, University of Alabama, Birmingham, USA.</nlm:affiliation></affiliation></author><author><name sortKey="Jukkala, Angela" sort="Jukkala, Angela" uniqKey="Jukkala A" first="Angela" last="Jukkala">Angela Jukkala</name><affiliation><nlm:affiliation>School of Nursing, University of Alabama, Birmingham, USA.</nlm:affiliation></affiliation></author><author><name sortKey="Meneses, Karen" sort="Meneses, Karen" uniqKey="Meneses K" first="Karen" last="Meneses">Karen Meneses</name><affiliation><nlm:affiliation>School of Nursing, UAB Comprehensive Cancer Center, University of Alabama, Birmingham, USA.</nlm:affiliation></affiliation></author></analytic><series><title level="j">Journal of cancer education : the official journal of the American Association for Cancer Education</title><idno type="eISSN">1543-0154</idno><imprint><date when="2017" type="published">2017</date></imprint></series></biblStruct></sourceDesc></fileDesc><profileDesc><textClass></textClass></profileDesc></teiHeader><front><div type="abstract" xml:lang="en">Disparities in cancer survivorship exist among specific populations of breast cancer survivors, specifically rural African American breast cancer survivors (AA-BCS). While effective survivorship interventions are available to address and improve quality of life, interventions must be culturally tailored for relevance to survivors. Here, we report the results of our formative research using focus groups and in-depth interview to better understand unique rural AA-BCS survivorship experiences and needs in the Alabama Black Belt. Surveys were used to gather sociodemographic and cancer treatment data. Fifteen rural AA-BCS shared their experiences and concerns about keeping their cancer a secret, lack of knowledge about survivorship, lingering symptoms, religion and spirituality, cancer surveillance, and general lack of survivorship education and support. Rural AA-BCS were unwilling to share their cancer diagnosis, preferring to keep it a secret to protect family and friends. Quality-of-life issues like lymphedema body image and sexuality were not well understood. They viewed spirituality and religion as essential in coping and accepting cancer. Participants also discussed the importance of and barriers to maintaining health through regular check-ups. They needed social support from family and friends and health care providers. Overall, rural AA-BCS expressed their need for knowledge about survivorship self-management by providing a vivid picture of the realities of cancer survival based on shared concerns for survivorship support and education within the context of culture.</div></front></TEI><pubmed><MedlineCitation Status="In-Process" Owner="NLM"><PMID Version="1">26498472</PMID><DateCreated><Year>2016</Year><Month>02</Month><Day>20</Day></DateCreated><DateRevised><Year>2017</Year><Month>04</Month><Day>27</Day></DateRevised><Article PubModel="Print"><Journal><ISSN IssnType="Electronic">1543-0154</ISSN><JournalIssue CitedMedium="Internet"><Volume>32</Volume><Issue>2</Issue><PubDate><Year>2017</Year><Month>Jun</Month></PubDate></JournalIssue><Title>Journal of cancer education : the official journal of the American Association for Cancer Education</Title><ISOAbbreviation>J Cancer Educ</ISOAbbreviation></Journal><ArticleTitle>Evaluating Survivorship Experiences and Needs Among Rural African American Breast Cancer Survivors.</ArticleTitle><Pagination><MedlinePgn>264-271</MedlinePgn></Pagination><ELocationID EIdType="doi" ValidYN="Y">10.1007/s13187-015-0937-6</ELocationID><Abstract><AbstractText>Disparities in cancer survivorship exist among specific populations of breast cancer survivors, specifically rural African American breast cancer survivors (AA-BCS). While effective survivorship interventions are available to address and improve quality of life, interventions must be culturally tailored for relevance to survivors. Here, we report the results of our formative research using focus groups and in-depth interview to better understand unique rural AA-BCS survivorship experiences and needs in the Alabama Black Belt. Surveys were used to gather sociodemographic and cancer treatment data. Fifteen rural AA-BCS shared their experiences and concerns about keeping their cancer a secret, lack of knowledge about survivorship, lingering symptoms, religion and spirituality, cancer surveillance, and general lack of survivorship education and support. Rural AA-BCS were unwilling to share their cancer diagnosis, preferring to keep it a secret to protect family and friends. Quality-of-life issues like lymphedema body image and sexuality were not well understood. They viewed spirituality and religion as essential in coping and accepting cancer. Participants also discussed the importance of and barriers to maintaining health through regular check-ups. They needed social support from family and friends and health care providers. Overall, rural AA-BCS expressed their need for knowledge about survivorship self-management by providing a vivid picture of the realities of cancer survival based on shared concerns for survivorship support and education within the context of culture.</AbstractText></Abstract><AuthorList CompleteYN="Y"><Author ValidYN="Y"><LastName>Adams</LastName><ForeName>Natasia</ForeName><Initials>N</Initials><Identifier Source="ORCID">http://orcid.org/0000-0002-9556-7661</Identifier><AffiliationInfo><Affiliation>Department of Psychology, College of Liberal Arts & Sciences, University of Kansas, Lawrence, KS, 66046, USA. njadams@ku.edu.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Gisiger-Camata</LastName><ForeName>Silvia</ForeName><Initials>S</Initials><AffiliationInfo><Affiliation>Office of Research & Scholarship, School of Nursing, University of Alabama, Birmingham, USA.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Hardy</LastName><ForeName>Claudia M</ForeName><Initials>CM</Initials><AffiliationInfo><Affiliation>Deep South Network for Cancer Control, UAB Comprehensive Cancer Center, University of Alabama, Birmingham, USA.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Thomas</LastName><ForeName>Tammi F</ForeName><Initials>TF</Initials><AffiliationInfo><Affiliation>Division of Clinical Immunology & Rheumatology, University of Alabama, Birmingham, USA.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Jukkala</LastName><ForeName>Angela</ForeName><Initials>A</Initials><AffiliationInfo><Affiliation>School of Nursing, University of Alabama, Birmingham, USA.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Meneses</LastName><ForeName>Karen</ForeName><Initials>K</Initials><AffiliationInfo><Affiliation>School of Nursing, UAB Comprehensive Cancer Center, University of Alabama, Birmingham, USA.</Affiliation></AffiliationInfo></Author></AuthorList><Language>eng</Language><PublicationTypeList><PublicationType UI="D016428">Journal Article</PublicationType></PublicationTypeList></Article><MedlineJournalInfo><Country>England</Country><MedlineTA>J Cancer Educ</MedlineTA><NlmUniqueID>8610343</NlmUniqueID><ISSNLinking>0885-8195</ISSNLinking></MedlineJournalInfo><KeywordList Owner="NOTNLM"><Keyword MajorTopicYN="N">African American females</Keyword><Keyword MajorTopicYN="N">Breast cancer survivorship</Keyword><Keyword MajorTopicYN="N">Cancer education</Keyword><Keyword MajorTopicYN="N">Quality of life</Keyword><Keyword MajorTopicYN="N">Rural</Keyword></KeywordList></MedlineCitation><PubmedData><History><PubMedPubDate PubStatus="pubmed"><Year>2015</Year><Month>10</Month><Day>27</Day><Hour>6</Hour><Minute>0</Minute></PubMedPubDate><PubMedPubDate PubStatus="medline"><Year>2015</Year><Month>10</Month><Day>27</Day><Hour>6</Hour><Minute>0</Minute></PubMedPubDate><PubMedPubDate PubStatus="entrez"><Year>2015</Year><Month>10</Month><Day>27</Day><Hour>6</Hour><Minute>0</Minute></PubMedPubDate></History><PublicationStatus>ppublish</PublicationStatus><ArticleIdList><ArticleId IdType="pubmed">26498472</ArticleId><ArticleId IdType="doi">10.1007/s13187-015-0937-6</ArticleId><ArticleId IdType="pii">10.1007/s13187-015-0937-6</ArticleId></ArticleIdList></PubmedData></pubmed></record>Pour manipuler ce document sous Unix (Dilib)
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