Breast cancer survivors' perspectives of critical lymphedema self-care support needs.
Identifieur interne : 000A36 ( PubMed/Corpus ); précédent : 000A35; suivant : 000A37Breast cancer survivors' perspectives of critical lymphedema self-care support needs.
Auteurs : Sheila H. Ridner ; Bethany A. Rhoten ; M Elise Radina ; Melissa Adair ; Sydney Bush-Foster ; Vaughn SinclairSource :
- Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer [ 1433-7339 ] ; 2016.
English descriptors
- KwdEn :
- MESH :
- psychology : Breast Neoplasms, Self Care, Survivors.
- rehabilitation : Lymphedema.
- standards : Self Care.
- Adult, Aged, Female, Humans, Middle Aged, Qualitative Research, Social Support.
Abstract
To solicit breast cancer survivors' perspectives on the variety of issues they face related to lymphedema self-care and identify support needs perceived as critical for managing their chronic medical condition.
DOI: 10.1007/s00520-016-3089-2
PubMed: 26810422
Links to Exploration step
pubmed:26810422Le document en format XML
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<author><name sortKey="Ridner, Sheila H" sort="Ridner, Sheila H" uniqKey="Ridner S" first="Sheila H" last="Ridner">Sheila H. Ridner</name>
<affiliation><nlm:affiliation>Vanderbilt University School of Nursing, 525 Godchaux Hall, 461 21st Avenue South, Nashville, TN, 37240, USA. Sheila.Ridner@vanderbilt.edu.</nlm:affiliation>
</affiliation>
</author>
<author><name sortKey="Rhoten, Bethany A" sort="Rhoten, Bethany A" uniqKey="Rhoten B" first="Bethany A" last="Rhoten">Bethany A. Rhoten</name>
<affiliation><nlm:affiliation>Vanderbilt University School of Nursing, 525 Godchaux Hall, 461 21st Avenue South, Nashville, TN, 37240, USA.</nlm:affiliation>
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<author><name sortKey="Radina, M Elise" sort="Radina, M Elise" uniqKey="Radina M" first="M Elise" last="Radina">M Elise Radina</name>
<affiliation><nlm:affiliation>Miami University, Oxford, USA.</nlm:affiliation>
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<author><name sortKey="Adair, Melissa" sort="Adair, Melissa" uniqKey="Adair M" first="Melissa" last="Adair">Melissa Adair</name>
<affiliation><nlm:affiliation>Vanderbilt University School of Nursing, 525 Godchaux Hall, 461 21st Avenue South, Nashville, TN, 37240, USA.</nlm:affiliation>
</affiliation>
</author>
<author><name sortKey="Bush Foster, Sydney" sort="Bush Foster, Sydney" uniqKey="Bush Foster S" first="Sydney" last="Bush-Foster">Sydney Bush-Foster</name>
<affiliation><nlm:affiliation>Vanderbilt University School of Nursing, 525 Godchaux Hall, 461 21st Avenue South, Nashville, TN, 37240, USA.</nlm:affiliation>
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<author><name sortKey="Sinclair, Vaughn" sort="Sinclair, Vaughn" uniqKey="Sinclair V" first="Vaughn" last="Sinclair">Vaughn Sinclair</name>
<affiliation><nlm:affiliation>Vanderbilt University School of Nursing, 525 Godchaux Hall, 461 21st Avenue South, Nashville, TN, 37240, USA.</nlm:affiliation>
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<sourceDesc><biblStruct><analytic><title xml:lang="en">Breast cancer survivors' perspectives of critical lymphedema self-care support needs.</title>
<author><name sortKey="Ridner, Sheila H" sort="Ridner, Sheila H" uniqKey="Ridner S" first="Sheila H" last="Ridner">Sheila H. Ridner</name>
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<author><name sortKey="Rhoten, Bethany A" sort="Rhoten, Bethany A" uniqKey="Rhoten B" first="Bethany A" last="Rhoten">Bethany A. Rhoten</name>
<affiliation><nlm:affiliation>Vanderbilt University School of Nursing, 525 Godchaux Hall, 461 21st Avenue South, Nashville, TN, 37240, USA.</nlm:affiliation>
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<author><name sortKey="Radina, M Elise" sort="Radina, M Elise" uniqKey="Radina M" first="M Elise" last="Radina">M Elise Radina</name>
<affiliation><nlm:affiliation>Miami University, Oxford, USA.</nlm:affiliation>
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<author><name sortKey="Adair, Melissa" sort="Adair, Melissa" uniqKey="Adair M" first="Melissa" last="Adair">Melissa Adair</name>
<affiliation><nlm:affiliation>Vanderbilt University School of Nursing, 525 Godchaux Hall, 461 21st Avenue South, Nashville, TN, 37240, USA.</nlm:affiliation>
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<author><name sortKey="Bush Foster, Sydney" sort="Bush Foster, Sydney" uniqKey="Bush Foster S" first="Sydney" last="Bush-Foster">Sydney Bush-Foster</name>
<affiliation><nlm:affiliation>Vanderbilt University School of Nursing, 525 Godchaux Hall, 461 21st Avenue South, Nashville, TN, 37240, USA.</nlm:affiliation>
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<author><name sortKey="Sinclair, Vaughn" sort="Sinclair, Vaughn" uniqKey="Sinclair V" first="Vaughn" last="Sinclair">Vaughn Sinclair</name>
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<series><title level="j">Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer</title>
<idno type="eISSN">1433-7339</idno>
<imprint><date when="2016" type="published">2016</date>
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<profileDesc><textClass><keywords scheme="KwdEn" xml:lang="en"><term>Adult</term>
<term>Aged</term>
<term>Breast Neoplasms (psychology)</term>
<term>Female</term>
<term>Humans</term>
<term>Lymphedema (rehabilitation)</term>
<term>Middle Aged</term>
<term>Qualitative Research</term>
<term>Self Care (psychology)</term>
<term>Self Care (standards)</term>
<term>Social Support</term>
<term>Survivors (psychology)</term>
</keywords>
<keywords scheme="MESH" qualifier="psychology" xml:lang="en"><term>Breast Neoplasms</term>
<term>Self Care</term>
<term>Survivors</term>
</keywords>
<keywords scheme="MESH" qualifier="rehabilitation" xml:lang="en"><term>Lymphedema</term>
</keywords>
<keywords scheme="MESH" qualifier="standards" xml:lang="en"><term>Self Care</term>
</keywords>
<keywords scheme="MESH" xml:lang="en"><term>Adult</term>
<term>Aged</term>
<term>Female</term>
<term>Humans</term>
<term>Middle Aged</term>
<term>Qualitative Research</term>
<term>Social Support</term>
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<front><div type="abstract" xml:lang="en">To solicit breast cancer survivors' perspectives on the variety of issues they face related to lymphedema self-care and identify support needs perceived as critical for managing their chronic medical condition.</div>
</front>
</TEI>
<pubmed><MedlineCitation Status="MEDLINE" Owner="NLM"><PMID Version="1">26810422</PMID>
<DateCreated><Year>2016</Year>
<Month>04</Month>
<Day>27</Day>
</DateCreated>
<DateCompleted><Year>2017</Year>
<Month>05</Month>
<Day>29</Day>
</DateCompleted>
<DateRevised><Year>2017</Year>
<Month>05</Month>
<Day>29</Day>
</DateRevised>
<Article PubModel="Print-Electronic"><Journal><ISSN IssnType="Electronic">1433-7339</ISSN>
<JournalIssue CitedMedium="Internet"><Volume>24</Volume>
<Issue>6</Issue>
<PubDate><Year>2016</Year>
<Month>06</Month>
</PubDate>
</JournalIssue>
<Title>Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer</Title>
<ISOAbbreviation>Support Care Cancer</ISOAbbreviation>
</Journal>
<ArticleTitle>Breast cancer survivors' perspectives of critical lymphedema self-care support needs.</ArticleTitle>
<Pagination><MedlinePgn>2743-50</MedlinePgn>
</Pagination>
<ELocationID EIdType="doi" ValidYN="Y">10.1007/s00520-016-3089-2</ELocationID>
<Abstract><AbstractText Label="PURPOSE">To solicit breast cancer survivors' perspectives on the variety of issues they face related to lymphedema self-care and identify support needs perceived as critical for managing their chronic medical condition.</AbstractText>
<AbstractText Label="METHODS">Twenty-one breast cancer survivors with lymphedema participated in audio-recorded focus groups about barriers and facilitators of self-care. Transcripts were analyzed using ATLAS.ti software by two coders. Triangulation of findings provided for refinement and category confirmation.</AbstractText>
<AbstractText Label="RESULTS">Themes identified included lack of social support, lack of resources for self-care activities, and self-advocacy by default. Lack of social support subthemes were feeling misunderstood, minimization of needs, and feeling criticized. Lack of resources for self-care activities subthemes were lack of both tangible self-care support and self-care supplies. Self-advocacy by default subthemes were the need to proactively manage lymphedema complications, the need to educate health-care workers, and feeling marginalized by the health-care system.</AbstractText>
<AbstractText Label="CONCLUSIONS">Lack of support and the failure of others to recognize lymphedema as a chronic condition set this patient population apart from other patients with chronic diseases and decreases the amount of help needed to manage the condition.</AbstractText>
</Abstract>
<AuthorList CompleteYN="Y"><Author ValidYN="Y"><LastName>Ridner</LastName>
<ForeName>Sheila H</ForeName>
<Initials>SH</Initials>
<AffiliationInfo><Affiliation>Vanderbilt University School of Nursing, 525 Godchaux Hall, 461 21st Avenue South, Nashville, TN, 37240, USA. Sheila.Ridner@vanderbilt.edu.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y"><LastName>Rhoten</LastName>
<ForeName>Bethany A</ForeName>
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<AffiliationInfo><Affiliation>Vanderbilt University School of Nursing, 525 Godchaux Hall, 461 21st Avenue South, Nashville, TN, 37240, USA.</Affiliation>
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<Author ValidYN="Y"><LastName>Radina</LastName>
<ForeName>M Elise</ForeName>
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<AffiliationInfo><Affiliation>Miami University, Oxford, USA.</Affiliation>
</AffiliationInfo>
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<Author ValidYN="Y"><LastName>Adair</LastName>
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<Author ValidYN="Y"><LastName>Bush-Foster</LastName>
<ForeName>Sydney</ForeName>
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<AffiliationInfo><Affiliation>Vanderbilt University School of Nursing, 525 Godchaux Hall, 461 21st Avenue South, Nashville, TN, 37240, USA.</Affiliation>
</AffiliationInfo>
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<Author ValidYN="Y"><LastName>Sinclair</LastName>
<ForeName>Vaughn</ForeName>
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<Language>eng</Language>
<GrantList CompleteYN="Y"><Grant><GrantID>K12 HS022990</GrantID>
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<MeshHeading><DescriptorName UI="D001943" MajorTopicYN="N">Breast Neoplasms</DescriptorName>
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<KeywordList Owner="NOTNLM"><Keyword MajorTopicYN="Y">Barriers</Keyword>
<Keyword MajorTopicYN="Y">Breast cancer</Keyword>
<Keyword MajorTopicYN="Y">Lymphedema</Keyword>
<Keyword MajorTopicYN="Y">Oncology</Keyword>
<Keyword MajorTopicYN="Y">Self-care</Keyword>
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