The road less travelled: Australian women's experiences with vulval cancer.
Identifieur interne : 000994 ( PubMed/Corpus ); précédent : 000993; suivant : 000995The road less travelled: Australian women's experiences with vulval cancer.
Auteurs : S. Philp ; A. Mellon ; C. Barnett ; N. D'Abrew ; K. WhiteSource :
- European journal of cancer care [ 1365-2354 ] ; 2017.
English descriptors
- KwdEn :
- Adenocarcinoma (diagnosis), Adenocarcinoma (psychology), Adenocarcinoma (surgery), Body Image, Carcinoma, Squamous Cell (diagnosis), Carcinoma, Squamous Cell (psychology), Carcinoma, Squamous Cell (surgery), Emotions, Fear, Female, Health Knowledge, Attitudes, Practice, Humans, Interpersonal Relations, Middle Aged, Quality of Life, Sexual Behavior, Sexual Dysfunction, Physiological (psychology), Sexual Partners, Social Support, Urination Disorders (psychology), Vulvar Neoplasms (diagnosis), Vulvar Neoplasms (psychology), Vulvar Neoplasms (surgery).
- MESH :
- diagnosis : Adenocarcinoma, Carcinoma, Squamous Cell, Vulvar Neoplasms.
- psychology : Adenocarcinoma, Carcinoma, Squamous Cell, Sexual Dysfunction, Physiological, Urination Disorders, Vulvar Neoplasms.
- surgery : Adenocarcinoma, Carcinoma, Squamous Cell, Vulvar Neoplasms.
- Body Image, Emotions, Fear, Female, Health Knowledge, Attitudes, Practice, Humans, Interpersonal Relations, Middle Aged, Quality of Life, Sexual Behavior, Sexual Partners, Social Support.
Abstract
Despite advances in surgical treatments and the availability of more conservative treatment options, women treated for vulval cancer still experience significant complications such as urinary incontinence, lymphoedema, pruritus, sexual and intimacy issues. These issues can profoundly impact a woman's quality of life. The subjective experience of women diagnosed and treated for vulval cancer in the literature is limited, possibly due to its comparable rarity to other gynaecological and female cancers and because it was traditionally seen mainly in the elderly female population. Nonetheless, younger women are also being diagnosed with vulval cancer. This paper reports the findings from a qualitative study about twelve women's experiences with vulval cancer from diagnosis, through treatment and recovery. Women's feelings of isolation, their unmet information and support needs, physical concerns arising from vulval cancer, particularly after surgery, and the consequences for their body image and intimate relationships with partners, were highlighted within the data. The central findings from this study emphasise the need for further research to develop appropriate interventions for women with vulval cancer. It also highlights opportunities to improve clinical practice into the supportive care of women with this isolating disease.
DOI: 10.1111/ecc.12465
PubMed: 26892880
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Barnett</name><affiliation><nlm:affiliation>Cancer Nursing Research Unit (MO2), Sydney Nursing School, Chris O'Brien Lifehouse, University of Sydney, Sydney, NSW, Australia.</nlm:affiliation></affiliation></author><author><name sortKey="D Abrew, N" sort="D Abrew, N" uniqKey="D Abrew N" first="N" last="D'Abrew">N. D'Abrew</name><affiliation><nlm:affiliation>Cancer Nursing Research Unit (MO2), Sydney Nursing School, Chris O'Brien Lifehouse, University of Sydney, Sydney, NSW, Australia.</nlm:affiliation></affiliation></author><author><name sortKey="White, K" sort="White, K" uniqKey="White K" first="K" last="White">K. White</name><affiliation><nlm:affiliation>Cancer Nursing Research Unit (MO2), Sydney Nursing School, Chris O'Brien Lifehouse, University of Sydney, Sydney, NSW, Australia.</nlm:affiliation></affiliation></author></titleStmt><publicationStmt><idno type="wicri:source">PubMed</idno><date when="2017">2017</date><idno type="RBID">pubmed:26892880</idno><idno type="pmid">26892880</idno><idno type="doi">10.1111/ecc.12465</idno><idno type="wicri:Area/PubMed/Corpus">000994</idno><idno type="wicri:explorRef" wicri:stream="PubMed" wicri:step="Corpus" wicri:corpus="PubMed">000994</idno></publicationStmt><sourceDesc><biblStruct><analytic><title xml:lang="en">The road less travelled: Australian women's experiences with vulval cancer.</title><author><name sortKey="Philp, S" sort="Philp, S" uniqKey="Philp S" first="S" last="Philp">S. Philp</name><affiliation><nlm:affiliation>Lifehouse Gynaecologic Oncology Group, Chris O'Brien Lifehouse, Camperdown, NSW, Australia.</nlm:affiliation></affiliation></author><author><name sortKey="Mellon, A" sort="Mellon, A" uniqKey="Mellon A" first="A" last="Mellon">A. Mellon</name><affiliation><nlm:affiliation>Hunter New England Centre for Gynaecological Cancer, John Hunter Hospital, New Castle, NSW, Australia.</nlm:affiliation></affiliation></author><author><name sortKey="Barnett, C" sort="Barnett, C" uniqKey="Barnett C" first="C" last="Barnett">C. Barnett</name><affiliation><nlm:affiliation>Cancer Nursing Research Unit (MO2), Sydney Nursing School, Chris O'Brien Lifehouse, University of Sydney, Sydney, NSW, Australia.</nlm:affiliation></affiliation></author><author><name sortKey="D Abrew, N" sort="D Abrew, N" uniqKey="D Abrew N" first="N" last="D'Abrew">N. D'Abrew</name><affiliation><nlm:affiliation>Cancer Nursing Research Unit (MO2), Sydney Nursing School, Chris O'Brien Lifehouse, University of Sydney, Sydney, NSW, Australia.</nlm:affiliation></affiliation></author><author><name sortKey="White, K" sort="White, K" uniqKey="White K" first="K" last="White">K. White</name><affiliation><nlm:affiliation>Cancer Nursing Research Unit (MO2), Sydney Nursing School, Chris O'Brien Lifehouse, University of Sydney, Sydney, NSW, Australia.</nlm:affiliation></affiliation></author></analytic><series><title level="j">European journal of cancer care</title><idno type="eISSN">1365-2354</idno><imprint><date when="2017" type="published">2017</date></imprint></series></biblStruct></sourceDesc></fileDesc><profileDesc><textClass><keywords scheme="KwdEn" xml:lang="en"><term>Adenocarcinoma (diagnosis)</term><term>Adenocarcinoma (psychology)</term><term>Adenocarcinoma (surgery)</term><term>Body Image</term><term>Carcinoma, Squamous Cell (diagnosis)</term><term>Carcinoma, Squamous Cell (psychology)</term><term>Carcinoma, Squamous Cell (surgery)</term><term>Emotions</term><term>Fear</term><term>Female</term><term>Health Knowledge, Attitudes, Practice</term><term>Humans</term><term>Interpersonal Relations</term><term>Middle Aged</term><term>Quality of Life</term><term>Sexual Behavior</term><term>Sexual Dysfunction, Physiological (psychology)</term><term>Sexual Partners</term><term>Social Support</term><term>Urination Disorders (psychology)</term><term>Vulvar Neoplasms (diagnosis)</term><term>Vulvar Neoplasms (psychology)</term><term>Vulvar Neoplasms (surgery)</term></keywords><keywords scheme="MESH" qualifier="diagnosis" xml:lang="en"><term>Adenocarcinoma</term><term>Carcinoma, Squamous Cell</term><term>Vulvar Neoplasms</term></keywords><keywords scheme="MESH" qualifier="psychology" xml:lang="en"><term>Adenocarcinoma</term><term>Carcinoma, Squamous Cell</term><term>Sexual Dysfunction, Physiological</term><term>Urination Disorders</term><term>Vulvar Neoplasms</term></keywords><keywords scheme="MESH" qualifier="surgery" xml:lang="en"><term>Adenocarcinoma</term><term>Carcinoma, Squamous Cell</term><term>Vulvar Neoplasms</term></keywords><keywords scheme="MESH" xml:lang="en"><term>Body Image</term><term>Emotions</term><term>Fear</term><term>Female</term><term>Health Knowledge, Attitudes, Practice</term><term>Humans</term><term>Interpersonal Relations</term><term>Middle Aged</term><term>Quality of Life</term><term>Sexual Behavior</term><term>Sexual Partners</term><term>Social Support</term></keywords></textClass></profileDesc></teiHeader><front><div type="abstract" xml:lang="en">Despite advances in surgical treatments and the availability of more conservative treatment options, women treated for vulval cancer still experience significant complications such as urinary incontinence, lymphoedema, pruritus, sexual and intimacy issues. These issues can profoundly impact a woman's quality of life. The subjective experience of women diagnosed and treated for vulval cancer in the literature is limited, possibly due to its comparable rarity to other gynaecological and female cancers and because it was traditionally seen mainly in the elderly female population. Nonetheless, younger women are also being diagnosed with vulval cancer. This paper reports the findings from a qualitative study about twelve women's experiences with vulval cancer from diagnosis, through treatment and recovery. Women's feelings of isolation, their unmet information and support needs, physical concerns arising from vulval cancer, particularly after surgery, and the consequences for their body image and intimate relationships with partners, were highlighted within the data. The central findings from this study emphasise the need for further research to develop appropriate interventions for women with vulval cancer. It also highlights opportunities to improve clinical practice into the supportive care of women with this isolating disease.</div></front></TEI><pubmed><MedlineCitation Status="MEDLINE" Owner="NLM"><PMID Version="1">26892880</PMID><DateCreated><Year>2016</Year><Month>02</Month><Day>19</Day></DateCreated><DateCompleted><Year>2017</Year><Month>06</Month><Day>23</Day></DateCompleted><DateRevised><Year>2017</Year><Month>06</Month><Day>23</Day></DateRevised><Article PubModel="Print-Electronic"><Journal><ISSN IssnType="Electronic">1365-2354</ISSN><JournalIssue CitedMedium="Internet"><Volume>26</Volume><Issue>1</Issue><PubDate><Year>2017</Year><Month>Jan</Month></PubDate></JournalIssue><Title>European journal of cancer care</Title><ISOAbbreviation>Eur J Cancer Care (Engl)</ISOAbbreviation></Journal><ArticleTitle>The road less travelled: Australian women's experiences with vulval cancer.</ArticleTitle><ELocationID EIdType="doi" ValidYN="Y">10.1111/ecc.12465</ELocationID><Abstract><AbstractText>Despite advances in surgical treatments and the availability of more conservative treatment options, women treated for vulval cancer still experience significant complications such as urinary incontinence, lymphoedema, pruritus, sexual and intimacy issues. These issues can profoundly impact a woman's quality of life. The subjective experience of women diagnosed and treated for vulval cancer in the literature is limited, possibly due to its comparable rarity to other gynaecological and female cancers and because it was traditionally seen mainly in the elderly female population. Nonetheless, younger women are also being diagnosed with vulval cancer. This paper reports the findings from a qualitative study about twelve women's experiences with vulval cancer from diagnosis, through treatment and recovery. Women's feelings of isolation, their unmet information and support needs, physical concerns arising from vulval cancer, particularly after surgery, and the consequences for their body image and intimate relationships with partners, were highlighted within the data. The central findings from this study emphasise the need for further research to develop appropriate interventions for women with vulval cancer. It also highlights opportunities to improve clinical practice into the supportive care of women with this isolating disease.</AbstractText><CopyrightInformation>© 2016 John Wiley & Sons Ltd.</CopyrightInformation></Abstract><AuthorList CompleteYN="Y"><Author ValidYN="Y"><LastName>Philp</LastName><ForeName>S</ForeName><Initials>S</Initials><AffiliationInfo><Affiliation>Lifehouse Gynaecologic Oncology Group, Chris O'Brien Lifehouse, Camperdown, NSW, Australia.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>Cancer Nursing Research Unit (MO2), Sydney Nursing School, Chris O'Brien Lifehouse, University of Sydney, Sydney, NSW, Australia.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Mellon</LastName><ForeName>A</ForeName><Initials>A</Initials><AffiliationInfo><Affiliation>Hunter New England Centre for Gynaecological Cancer, John Hunter Hospital, New Castle, NSW, Australia.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Barnett</LastName><ForeName>C</ForeName><Initials>C</Initials><AffiliationInfo><Affiliation>Cancer Nursing Research Unit (MO2), Sydney Nursing School, Chris O'Brien Lifehouse, University of Sydney, Sydney, NSW, Australia.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>D'Abrew</LastName><ForeName>N</ForeName><Initials>N</Initials><AffiliationInfo><Affiliation>Cancer Nursing Research Unit (MO2), Sydney Nursing School, Chris O'Brien Lifehouse, University of Sydney, Sydney, NSW, Australia.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>White</LastName><ForeName>K</ForeName><Initials>K</Initials><AffiliationInfo><Affiliation>Cancer Nursing Research Unit (MO2), Sydney Nursing School, Chris O'Brien Lifehouse, University of Sydney, Sydney, NSW, Australia.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>School of Nursing, Midwifery and Postgraduate Medicine, Edith Cowan University, Joondalup, WA, Australia.</Affiliation></AffiliationInfo></Author></AuthorList><Language>eng</Language><PublicationTypeList><PublicationType UI="D016428">Journal Article</PublicationType><PublicationType UI="D016448">Multicenter Study</PublicationType></PublicationTypeList><ArticleDate DateType="Electronic"><Year>2016</Year><Month>02</Month><Day>18</Day></ArticleDate></Article><MedlineJournalInfo><Country>England</Country><MedlineTA>Eur J Cancer Care (Engl)</MedlineTA><NlmUniqueID>9301979</NlmUniqueID><ISSNLinking>0961-5423</ISSNLinking></MedlineJournalInfo><CitationSubset>N</CitationSubset><MeshHeadingList><MeshHeading><DescriptorName UI="D000230" MajorTopicYN="N">Adenocarcinoma</DescriptorName><QualifierName UI="Q000175" MajorTopicYN="N">diagnosis</QualifierName><QualifierName UI="Q000523" MajorTopicYN="Y">psychology</QualifierName><QualifierName UI="Q000601" MajorTopicYN="N">surgery</QualifierName></MeshHeading><MeshHeading><DescriptorName UI="D001828" MajorTopicYN="N">Body 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