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Development, validation and clinical use of the FLQA-I, a disease-specific quality of life questionnaire for patients with lymphedema.

Identifieur interne : 003908 ( PubMed/Checkpoint ); précédent : 003907; suivant : 003909

Development, validation and clinical use of the FLQA-I, a disease-specific quality of life questionnaire for patients with lymphedema.

Auteurs : M. Augustin [Allemagne] ; F. Bross ; E. Földi ; W. Vanscheidt ; I. Zschocke

Source :

RBID : pubmed:15786935

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English descriptors

Abstract

It is known from clinical practice that lymphatic diseases can be associated with reductions of quality of life (QoL). Due to the lack of validated methods, only few studies however have systematically investigated the QoL in lymphedema. The aim of the study was 1) to develop a standardized QoL questionnaire specific for lymphedema and 2) to assess the QoL in these patients.

DOI: 10.1024/0301-1526.34.1.31
PubMed: 15786935


Affiliations:


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pubmed:15786935

Le document en format XML

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<term>Lymphoedème (psychologie)</term>
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<term>Activités de la vie quotidienne</term>
<term>Lymphoedème</term>
<term>Qualité de vie</term>
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<front>
<div type="abstract" xml:lang="en">It is known from clinical practice that lymphatic diseases can be associated with reductions of quality of life (QoL). Due to the lack of validated methods, only few studies however have systematically investigated the QoL in lymphedema. The aim of the study was 1) to develop a standardized QoL questionnaire specific for lymphedema and 2) to assess the QoL in these patients.</div>
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<AbstractText Label="BACKGROUND" NlmCategory="BACKGROUND">It is known from clinical practice that lymphatic diseases can be associated with reductions of quality of life (QoL). Due to the lack of validated methods, only few studies however have systematically investigated the QoL in lymphedema. The aim of the study was 1) to develop a standardized QoL questionnaire specific for lymphedema and 2) to assess the QoL in these patients.</AbstractText>
<AbstractText Label="PATIENTS AND METHODS" NlmCategory="METHODS">We developed and tested the FLQA-l, a novel QoL questionnaire developed specific for use in lymphedema on the basis of the previously validated FLQA vein questionnaire. The questionnaire consists of 92 items that refer to the following scales: Physical status, everyday life, social life, emotional well-being, treatment, satisfaction and profession/household. 392 patients with primary (n = 246) and secondary (n = 146) lymphedema were included in the validation study.</AbstractText>
<AbstractText Label="RESULTS" NlmCategory="RESULTS">The FLQA-l showed good internal consistency; Cronbach's alpha was higher than 0.75 in all scales. There were no floor and ceiling effects and satisfactory item selectivity. The test-retest reliability, sensitivity to change and convergent validity with other psychometric instruments were satisfactory. Clinically, patients with lymphedema showed markedly impaired QoL in all fields, compared to persons with early stage venous insufficiency, and comparable reductions of QoL, compared to patients with venous leg ulcer.</AbstractText>
<AbstractText Label="CONCLUSION" NlmCategory="CONCLUSIONS">These data indicate that the FLQA-l is a reliable and valid questionnaire for the assessment of QoL in lymphedema. Since the QoL is impaired in many patients with lymphedema, QoL evaluation may be helpful for clinical diagnostics as well as for outcome measurement of specific edema therapy.</AbstractText>
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