Developing a Self-Administered Questionnaire as a Guide to Consultations with Women Treated for Breast Cancer
Identifieur interne : 003F57 ( Pmc/Corpus ); précédent : 003F56; suivant : 003F58Developing a Self-Administered Questionnaire as a Guide to Consultations with Women Treated for Breast Cancer
Auteurs : Moyez Jiwa ; Wendy Chan She Ping-Delfos ; Kathy Briffa ; Jill Sherriff ; Gareth Merriman ; Janice Nockolds ; Liz Jardine ; Toni Musiello ; Glenys LongmanSource :
- International Journal of Family Medicine [ 2090-2042 ] ; 2011.
Abstract
Url:
DOI: 10.1155/2011/390692
PubMed: 22295185
PubMed Central: 3263838
Links to Exploration step
PMC:3263838Le document en format XML
<record><TEI><teiHeader><fileDesc><titleStmt><title xml:lang="en">Developing a Self-Administered Questionnaire as a Guide to
Consultations with Women Treated for Breast Cancer</title><author><name sortKey="Jiwa, Moyez" sort="Jiwa, Moyez" uniqKey="Jiwa M" first="Moyez" last="Jiwa">Moyez Jiwa</name><affiliation><nlm:aff id="I1">Curtin Health Innovation Research Institute, Faculty of Health Sciences, Curtin University, GPO Box U1987, Perth,WA 6845, Australia</nlm:aff></affiliation></author><author><name sortKey="Ping Delfos, Wendy Chan She" sort="Ping Delfos, Wendy Chan She" uniqKey="Ping Delfos W" first="Wendy Chan She" last="Ping-Delfos">Wendy Chan She Ping-Delfos</name><affiliation><nlm:aff id="I1">Curtin Health Innovation Research Institute, Faculty of Health Sciences, Curtin University, GPO Box U1987, Perth,WA 6845, Australia</nlm:aff></affiliation></author><author><name sortKey="Briffa, Kathy" sort="Briffa, Kathy" uniqKey="Briffa K" first="Kathy" last="Briffa">Kathy Briffa</name><affiliation><nlm:aff id="I2">School of Physiotherapy, Curtin University, GPO Box U1987, Perth, WA 6845, Australia</nlm:aff></affiliation></author><author><name sortKey="Sherriff, Jill" sort="Sherriff, Jill" uniqKey="Sherriff J" first="Jill" last="Sherriff">Jill Sherriff</name><affiliation><nlm:aff id="I3">School of Public Health, Curtin University, GPO Box U1987, Perth, WA 6845, Australia</nlm:aff></affiliation></author><author><name sortKey="Merriman, Gareth" sort="Merriman, Gareth" uniqKey="Merriman G" first="Gareth" last="Merriman">Gareth Merriman</name><affiliation><nlm:aff id="I3">School of Public Health, Curtin University, GPO Box U1987, Perth, WA 6845, Australia</nlm:aff></affiliation></author><author><name sortKey="Nockolds, Janice" sort="Nockolds, Janice" uniqKey="Nockolds J" first="Janice" last="Nockolds">Janice Nockolds</name><affiliation><nlm:aff id="I4">Ability Plus Therapy, 233, Berrigan Drive, Jandakot, WA 6164, Australia</nlm:aff></affiliation></author><author><name sortKey="Jardine, Liz" sort="Jardine, Liz" uniqKey="Jardine L" first="Liz" last="Jardine">Liz Jardine</name><affiliation><nlm:aff id="I4">Ability Plus Therapy, 233, Berrigan Drive, Jandakot, WA 6164, Australia</nlm:aff></affiliation></author><author><name sortKey="Musiello, Toni" sort="Musiello, Toni" uniqKey="Musiello T" first="Toni" last="Musiello">Toni Musiello</name><affiliation><nlm:aff id="I5">School of Surgery M507 QEII Medical Centre, The University of Western Australia, 35, Stirling Highway, Crawley, WA 6009, Australia</nlm:aff></affiliation></author><author><name sortKey="Longman, Glenys" sort="Longman, Glenys" uniqKey="Longman G" first="Glenys" last="Longman">Glenys Longman</name><affiliation><nlm:aff id="I6">(Royal Perth Hospital), Level 2, MRF Building, GPO Box X 2213, Perth, WA 6847, Australia</nlm:aff></affiliation></author></titleStmt><publicationStmt><idno type="wicri:source">PMC</idno><idno type="pmid">22295185</idno><idno type="pmc">3263838</idno><idno type="url">http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3263838</idno><idno type="RBID">PMC:3263838</idno><idno type="doi">10.1155/2011/390692</idno><date when="2011">2011</date><idno type="wicri:Area/Pmc/Corpus">003F57</idno><idno type="wicri:explorRef" wicri:stream="Pmc" wicri:step="Corpus" wicri:corpus="PMC">003F57</idno></publicationStmt><sourceDesc><biblStruct><analytic><title xml:lang="en" level="a" type="main">Developing a Self-Administered Questionnaire as a Guide to
Consultations with Women Treated for Breast Cancer</title><author><name sortKey="Jiwa, Moyez" sort="Jiwa, Moyez" uniqKey="Jiwa M" first="Moyez" last="Jiwa">Moyez Jiwa</name><affiliation><nlm:aff id="I1">Curtin Health Innovation Research Institute, Faculty of Health Sciences, Curtin University, GPO Box U1987, Perth,WA 6845, Australia</nlm:aff></affiliation></author><author><name sortKey="Ping Delfos, Wendy Chan She" sort="Ping Delfos, Wendy Chan She" uniqKey="Ping Delfos W" first="Wendy Chan She" last="Ping-Delfos">Wendy Chan She Ping-Delfos</name><affiliation><nlm:aff id="I1">Curtin Health Innovation Research Institute, Faculty of Health Sciences, Curtin University, GPO Box U1987, Perth,WA 6845, Australia</nlm:aff></affiliation></author><author><name sortKey="Briffa, Kathy" sort="Briffa, Kathy" uniqKey="Briffa K" first="Kathy" last="Briffa">Kathy Briffa</name><affiliation><nlm:aff id="I2">School of Physiotherapy, Curtin University, GPO Box U1987, Perth, WA 6845, Australia</nlm:aff></affiliation></author><author><name sortKey="Sherriff, Jill" sort="Sherriff, Jill" uniqKey="Sherriff J" first="Jill" last="Sherriff">Jill Sherriff</name><affiliation><nlm:aff id="I3">School of Public Health, Curtin University, GPO Box U1987, Perth, WA 6845, Australia</nlm:aff></affiliation></author><author><name sortKey="Merriman, Gareth" sort="Merriman, Gareth" uniqKey="Merriman G" first="Gareth" last="Merriman">Gareth Merriman</name><affiliation><nlm:aff id="I3">School of Public Health, Curtin University, GPO Box U1987, Perth, WA 6845, Australia</nlm:aff></affiliation></author><author><name sortKey="Nockolds, Janice" sort="Nockolds, Janice" uniqKey="Nockolds J" first="Janice" last="Nockolds">Janice Nockolds</name><affiliation><nlm:aff id="I4">Ability Plus Therapy, 233, Berrigan Drive, Jandakot, WA 6164, Australia</nlm:aff></affiliation></author><author><name sortKey="Jardine, Liz" sort="Jardine, Liz" uniqKey="Jardine L" first="Liz" last="Jardine">Liz Jardine</name><affiliation><nlm:aff id="I4">Ability Plus Therapy, 233, Berrigan Drive, Jandakot, WA 6164, Australia</nlm:aff></affiliation></author><author><name sortKey="Musiello, Toni" sort="Musiello, Toni" uniqKey="Musiello T" first="Toni" last="Musiello">Toni Musiello</name><affiliation><nlm:aff id="I5">School of Surgery M507 QEII Medical Centre, The University of Western Australia, 35, Stirling Highway, Crawley, WA 6009, Australia</nlm:aff></affiliation></author><author><name sortKey="Longman, Glenys" sort="Longman, Glenys" uniqKey="Longman G" first="Glenys" last="Longman">Glenys Longman</name><affiliation><nlm:aff id="I6">(Royal Perth Hospital), Level 2, MRF Building, GPO Box X 2213, Perth, WA 6847, Australia</nlm:aff></affiliation></author></analytic><series><title level="j">International Journal of Family Medicine</title><idno type="ISSN">2090-2042</idno><idno type="eISSN">2090-2050</idno><imprint><date when="2011">2011</date></imprint></series></biblStruct></sourceDesc></fileDesc><profileDesc><textClass></textClass></profileDesc></teiHeader><front><div type="abstract" xml:lang="en"><p><italic>Background</italic>. Health professionals, including general practitioners involved in followup of breast cancer patients, need to systematically assess opportunities to offer patients support with ongoing or new problems. <italic>Methods</italic>. A self-administered needs assessment questionnaire was developed with reference to a multidisciplinary team. Short, evidence-based, readable questions were emphasized, and questions were tested for face validity. The questions flowed across three domains: physical, social, and psychological. Content validity and user friendliness were assessed. <italic>Results</italic>. A final set of 30 questions was rated as easy to read and comprehend (Flesch Reading Ease score 65.8 and Flesch-Kincaid Grade Level 6.9). When piloted with twenty-one patients the self-administered questionnaire detected 121 items of unmet need encompassing all three domains. <italic>Conclusions</italic>. This self-administered questionnaire has the potential to assist in the holistic assessment of breast cancer patient after treatment. The clinical value of the self-administered questionnaire will need to be further tested before it can be widely adopted.</p></div></front><back><div1 type="bibliography"><listBibl><biblStruct></biblStruct><biblStruct><analytic><author><name sortKey="Jiwa, M" uniqKey="Jiwa M">M Jiwa</name></author><author><name sortKey="Halkett, G" uniqKey="Halkett G">G Halkett</name></author><author><name sortKey="Deas, K" uniqKey="Deas K">K Deas</name></author><author><name sortKey="Meng, X" uniqKey="Meng X">X Meng</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Thewes, B" uniqKey="Thewes B">B Thewes</name></author><author><name sortKey="Butow, P" uniqKey="Butow P">P Butow</name></author><author><name sortKey="Girgis, A" uniqKey="Girgis A">A Girgis</name></author><author><name sortKey="Pendlebury, S" uniqKey="Pendlebury S">S Pendlebury</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Cornwell, J" uniqKey="Cornwell J">J Cornwell</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Turner, B" uniqKey="Turner B">B Turner</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Bury, M" uniqKey="Bury M">M Bury</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Bury, M" uniqKey="Bury M">M Bury</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Bury, M" uniqKey="Bury M">M Bury</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Carricaburu, D" uniqKey="Carricaburu D">D Carricaburu</name></author><author><name sortKey="Pierret, J" uniqKey="Pierret J">J Pierret</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Gabe, J" uniqKey="Gabe J">J Gabe</name></author><author><name sortKey="Bury, M" uniqKey="Bury M">M Bury</name></author><author><name sortKey="Elston, Ma" uniqKey="Elston M">MA Elston</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Gifford, S" uniqKey="Gifford S">S Gifford</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Carlfjord, S" uniqKey="Carlfjord S">S Carlfjord</name></author><author><name sortKey="Lindberg, M" uniqKey="Lindberg M">M Lindberg</name></author><author><name sortKey="Bendtsen, P" uniqKey="Bendtsen P">P Bendtsen</name></author><author><name sortKey="Nilsen, P" uniqKey="Nilsen P">P Nilsen</name></author><author><name sortKey="Andersson, A" uniqKey="Andersson A">A Andersson</name></author></analytic></biblStruct><biblStruct></biblStruct><biblStruct><analytic><author><name sortKey="Burgess, C" uniqKey="Burgess C">C Burgess</name></author><author><name sortKey="Cornelius, V" uniqKey="Cornelius V">V Cornelius</name></author><author><name sortKey="Love, S" uniqKey="Love S">S Love</name></author><author><name sortKey="Graham, J" uniqKey="Graham J">J Graham</name></author><author><name sortKey="Richards, M" uniqKey="Richards M">M Richards</name></author><author><name sortKey="Ramirez, A" uniqKey="Ramirez A">A Ramirez</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Goodwin, Pj" uniqKey="Goodwin P">PJ Goodwin</name></author><author><name sortKey="Ennis, M" uniqKey="Ennis M">M Ennis</name></author><author><name sortKey="Pritchard, Ki" uniqKey="Pritchard K">KI Pritchard</name></author><author><name sortKey="Trudeau, M" uniqKey="Trudeau M">M Trudeau</name></author><author><name sortKey="Hood, N" uniqKey="Hood N">N Hood</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Carpenter, J" uniqKey="Carpenter J">J Carpenter</name></author><author><name sortKey="Andrykowski, M" uniqKey="Andrykowski M">M Andrykowski</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Crew, Kd" uniqKey="Crew K">KD Crew</name></author><author><name sortKey="Greenlee, H" uniqKey="Greenlee H">H Greenlee</name></author><author><name sortKey="Capodice, J" uniqKey="Capodice J">J Capodice</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Smoot, B" uniqKey="Smoot B">B Smoot</name></author><author><name sortKey="Wong, J" uniqKey="Wong J">J Wong</name></author><author><name sortKey="Cooper, B" uniqKey="Cooper B">B Cooper</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Maunsell, E" uniqKey="Maunsell E">E Maunsell</name></author><author><name sortKey="Brisson, C" uniqKey="Brisson C">C Brisson</name></author><author><name sortKey="Dubois, L" uniqKey="Dubois L">L Dubois</name></author><author><name sortKey="Lauzier, S" uniqKey="Lauzier S">S Lauzier</name></author><author><name sortKey="Fraser, A" uniqKey="Fraser A">A Fraser</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Maguire, P" uniqKey="Maguire P">P Maguire</name></author><author><name sortKey="Pitceathly, C" uniqKey="Pitceathly C">C Pitceathly</name></author></analytic></biblStruct><biblStruct></biblStruct><biblStruct><analytic><author><name sortKey="Hunskaar, S" uniqKey="Hunskaar S">S Hunskaar</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Dumoulin, C" uniqKey="Dumoulin C">C Dumoulin</name></author><author><name sortKey="Hay Smith, J" uniqKey="Hay Smith J">J Hay-Smith</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Harris, Ss" uniqKey="Harris S">SS Harris</name></author><author><name sortKey="Link, Cl" uniqKey="Link C">CL Link</name></author><author><name sortKey="Tennstedt, Sl" uniqKey="Tennstedt S">SL Tennstedt</name></author><author><name sortKey="Kusek, Jw" uniqKey="Kusek J">JW Kusek</name></author><author><name sortKey="Mckinlay, Jb" uniqKey="Mckinlay J">JB McKinlay</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Goldstein, M" uniqKey="Goldstein M">M Goldstein</name></author><author><name sortKey="Hawthorne, Me" uniqKey="Hawthorne M">ME Hawthorne</name></author><author><name sortKey="Engeberg, S" uniqKey="Engeberg S">S Engeberg</name></author><author><name sortKey="Mcdowell, Bj" uniqKey="Mcdowell B">BJ McDowell</name></author><author><name sortKey="Burgio, Kl" uniqKey="Burgio K">KL Burgio</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Ryan, H" uniqKey="Ryan H">H Ryan</name></author><author><name sortKey="Schofield, P" uniqKey="Schofield P">P Schofield</name></author><author><name sortKey="Cockburn, J" uniqKey="Cockburn J">J Cockburn</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Ganz, P" uniqKey="Ganz P">P Ganz</name></author><author><name sortKey="Rowland, J" uniqKey="Rowland J">J Rowland</name></author><author><name sortKey="Desmond, K" uniqKey="Desmond K">K Desmond</name></author><author><name sortKey="Meyerowitz, B" uniqKey="Meyerowitz B">B Meyerowitz</name></author><author><name sortKey="Wyatt, G" uniqKey="Wyatt G">G Wyatt</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Stilos, K" uniqKey="Stilos K">K Stilos</name></author><author><name sortKey="Doyle, C" uniqKey="Doyle C">C Doyle</name></author><author><name sortKey="Daines, P" uniqKey="Daines P">P Daines</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Li, C" uniqKey="Li C">C Li</name></author><author><name sortKey="Daling, J" uniqKey="Daling J">J Daling</name></author><author><name sortKey="Porter, P" uniqKey="Porter P">P Porter</name></author><author><name sortKey="Tang, M" uniqKey="Tang M">M Tang</name></author><author><name sortKey="Malone, K" uniqKey="Malone K">K Malone</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Vallance, J" uniqKey="Vallance J">J Vallance</name></author><author><name sortKey="Plotnikoff, R" uniqKey="Plotnikoff R">R Plotnikoff</name></author><author><name sortKey="Karvinen, K" uniqKey="Karvinen K">K Karvinen</name></author><author><name sortKey="Mackey, J" uniqKey="Mackey J">J Mackey</name></author><author><name sortKey="Courneya, K" uniqKey="Courneya K">K Courneya</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Flesch, R" uniqKey="Flesch R">R Flesch</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Kincaid, J" uniqKey="Kincaid J">J Kincaid</name></author><author><name sortKey="Fishburne, R" uniqKey="Fishburne R">R Fishburne</name></author><author><name sortKey="Rogers, R" uniqKey="Rogers R">R Rogers</name></author><author><name sortKey="Chissom, B" uniqKey="Chissom B">B Chissom</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Visvanathan, K" uniqKey="Visvanathan K">K Visvanathan</name></author><author><name sortKey="Chlebowski, R" uniqKey="Chlebowski R">R Chlebowski</name></author><author><name sortKey="Hurley, P" uniqKey="Hurley P">P Hurley</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Bultz, Bd" uniqKey="Bultz B">BD Bultz</name></author><author><name sortKey="Carlson, Le" uniqKey="Carlson L">LE Carlson</name></author></analytic></biblStruct></listBibl></div1></back></TEI><pmc article-type="research-article"><pmc-dir>properties open_access</pmc-dir>
<front><journal-meta><journal-id journal-id-type="nlm-ta">Int J Family Med</journal-id><journal-id journal-id-type="iso-abbrev">Int J Family Med</journal-id><journal-id journal-id-type="publisher-id">IJFM</journal-id><journal-title-group><journal-title>International Journal of Family Medicine</journal-title></journal-title-group><issn pub-type="ppub">2090-2042</issn><issn pub-type="epub">2090-2050</issn><publisher><publisher-name>Hindawi Publishing Corporation</publisher-name></publisher></journal-meta><article-meta><article-id pub-id-type="pmid">22295185</article-id><article-id pub-id-type="pmc">3263838</article-id><article-id pub-id-type="doi">10.1155/2011/390692</article-id><article-categories><subj-group subj-group-type="heading"><subject>Research Article</subject></subj-group></article-categories><title-group><article-title>Developing a Self-Administered Questionnaire as a Guide to
Consultations with Women Treated for Breast Cancer</article-title></title-group><contrib-group><contrib contrib-type="author"><name><surname>Jiwa</surname><given-names>Moyez</given-names></name><xref ref-type="aff" rid="I1"><sup>1</sup></xref><xref ref-type="corresp" rid="cor1">*</xref></contrib><contrib contrib-type="author"><name><surname>Ping-Delfos</surname><given-names>Wendy Chan She</given-names></name><xref ref-type="aff" rid="I1"><sup>1</sup></xref></contrib><contrib contrib-type="author"><name><surname>Briffa</surname><given-names>Kathy</given-names></name><xref ref-type="aff" rid="I2"><sup>2</sup></xref></contrib><contrib contrib-type="author"><name><surname>Sherriff</surname><given-names>Jill</given-names></name><xref ref-type="aff" rid="I3"><sup>3</sup></xref></contrib><contrib contrib-type="author"><name><surname>Merriman</surname><given-names>Gareth</given-names></name><xref ref-type="aff" rid="I3"><sup>3</sup></xref></contrib><contrib contrib-type="author"><name><surname>Nockolds</surname><given-names>Janice</given-names></name><xref ref-type="aff" rid="I4"><sup>4</sup></xref></contrib><contrib contrib-type="author"><name><surname>Jardine</surname><given-names>Liz</given-names></name><xref ref-type="aff" rid="I4"><sup>4</sup></xref></contrib><contrib contrib-type="author"><name><surname>Musiello</surname><given-names>Toni</given-names></name><xref ref-type="aff" rid="I5"><sup>5</sup></xref></contrib><contrib contrib-type="author"><name><surname>Longman</surname><given-names>Glenys</given-names></name><xref ref-type="aff" rid="I6"><sup>6</sup></xref></contrib></contrib-group><aff id="I1"><sup>1</sup>Curtin Health Innovation Research Institute, Faculty of Health Sciences, Curtin University, GPO Box U1987, Perth,WA 6845, Australia</aff><aff id="I2"><sup>2</sup>School of Physiotherapy, Curtin University, GPO Box U1987, Perth, WA 6845, Australia</aff><aff id="I3"><sup>3</sup>School of Public Health, Curtin University, GPO Box U1987, Perth, WA 6845, Australia</aff><aff id="I4"><sup>4</sup>Ability Plus Therapy, 233, Berrigan Drive, Jandakot, WA 6164, Australia</aff><aff id="I5"><sup>5</sup>School of Surgery M507 QEII Medical Centre, The University of Western Australia, 35, Stirling Highway, Crawley, WA 6009, Australia</aff><aff id="I6"><sup>6</sup>(Royal Perth Hospital), Level 2, MRF Building, GPO Box X 2213, Perth, WA 6847, Australia</aff><author-notes><corresp id="cor1">*Moyez Jiwa: <email>m.jiwa@curtin.edu.au</email></corresp><fn fn-type="other"><p>Academic Editor: Michael A. Weingarten</p></fn></author-notes><pub-date pub-type="ppub"><year>2011</year></pub-date><pub-date pub-type="epub"><day>23</day><month>5</month><year>2011</year></pub-date><volume>2011</volume><elocation-id>390692</elocation-id><history><date date-type="received"><day>15</day><month>10</month><year>2010</year></date><date date-type="rev-recd"><day>4</day><month>2</month><year>2011</year></date><date date-type="accepted"><day>22</day><month>2</month><year>2011</year></date></history><permissions><copyright-statement>Copyright © 2011 Moyez Jiwa et al.</copyright-statement><copyright-year>2011</copyright-year><license xlink:href="https://creativecommons.org/licenses/by/3.0/"><license-p>This is an open access article distributed under the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.</license-p></license></permissions><abstract><p><italic>Background</italic>. Health professionals, including general practitioners involved in followup of breast cancer patients, need to systematically assess opportunities to offer patients support with ongoing or new problems. <italic>Methods</italic>. A self-administered needs assessment questionnaire was developed with reference to a multidisciplinary team. Short, evidence-based, readable questions were emphasized, and questions were tested for face validity. The questions flowed across three domains: physical, social, and psychological. Content validity and user friendliness were assessed. <italic>Results</italic>. A final set of 30 questions was rated as easy to read and comprehend (Flesch Reading Ease score 65.8 and Flesch-Kincaid Grade Level 6.9). When piloted with twenty-one patients the self-administered questionnaire detected 121 items of unmet need encompassing all three domains. <italic>Conclusions</italic>. This self-administered questionnaire has the potential to assist in the holistic assessment of breast cancer patient after treatment. The clinical value of the self-administered questionnaire will need to be further tested before it can be widely adopted.</p></abstract></article-meta></front><body><sec id="sec1"><title>1. Introduction</title><p>Most women who are diagnosed with breast cancer will survive five or more years after diagnosis, and in many countries breast cancer patients attend follow-up clinics for several years following treatment [<xref rid="B1" ref-type="bibr">1</xref>]. The value of follow-up care is based on proactive screening for conditions that are amenable to intervention in order to maximize the prospects for survival and high quality of life. Most investigations carried out or treatment offered to patients is guided by the symptoms or problems reported to practitioners. A recent study reported that most patients did not volunteer their symptoms or problems following breast cancer to their general practitioner, despite consulting that practitioner, but did report significant problems to their breast care nurse when systematically questioned [<xref rid="B2" ref-type="bibr">2</xref>]. This paper is a first step in developing a tool which may be of value in clinical practice. Health professionals may benefit from a self-administered questionnaire to assist with consulting patients about whether further treatment is indicated [<xref rid="B3" ref-type="bibr">3</xref>]. To our knowledge such a self-administered questionnaire has not been published. </p><p>As an overall focus for the self-administered questionnaire the team adopted theories which purport that a breast cancer diagnosis is an “extraordinary” life event which brings about a shift in identity for women [<xref rid="B4" ref-type="bibr">4</xref>]. Therefore, we incorporated theories on embodiment from medical sociology by including questions on changes in physical appearance and functioning, relationships, interests, and overall well-being [<xref rid="B5" ref-type="bibr">5</xref>]. This incorporates the concept of biographical disruption [<xref rid="B6" ref-type="bibr">6</xref>–<xref rid="B8" ref-type="bibr">8</xref>], biographical reinforcement [<xref rid="B9" ref-type="bibr">9</xref>], and biographical reinvention [<xref rid="B10" ref-type="bibr">10</xref>]. These theories predict that the woman is likely to experience a shift in perspective following the diagnosis and treatment, and therefore, one might anticipate that some people with breast cancer struggle to adjust after what may have been a traumatic life event [<xref rid="B11" ref-type="bibr">11</xref>]. Patients often do not volunteer problems unless prompted, perhaps because they are unaware that effective treatment or support is available or they consider that long-term dysfunction is an inevitable outcome of breast cancer treatment. We aim to devise a self-administered questionnaire to help proactively screen patients for physical, psychological, and social dysfunction following treatment for breast cancer.</p></sec><sec id="sec2"><title>2. Methodology</title><p>A team of relevant health care professionals was assembled including members of the following specialties, numbers in brackets refer to number of representatives:</p><list list-type="roman-lower"><list-item><p>general practice (1),</p></list-item><list-item><p>dietetics (2),</p></list-item><list-item><p>nursing (1),</p></list-item><list-item><p>occupational therapy (2),</p></list-item><list-item><p>physiotherapy (1),</p></list-item><list-item><p>psychology (1),</p></list-item><list-item><p>sexology (2).</p></list-item></list><p>The self-administered questionnaire builds on a pre-existing interview self-administered questionnaire developed locally. Each member of the team proposed a series of questions that might detect ongoing or new problems for the patient. The team was asked to identify the evidence as the basis for the questions. There was an emphasis on short, readable questions. The team was assembled at a workshop to review the proposed questionnaire. The questions were examined for face validity and tested for readability. The survey and rationale for the questions were shared in the team in round robin fashion until there was consensus on the final version of the self-administered questionnaire. Implementation theory suggests that factors to be taken into account in the planning of a new tool should include its potential compatibility with existing routines [<xref rid="B12" ref-type="bibr">12</xref>]. In other words the tool should be practical and readily assimilated into the routines of clinical practice. The tool was therefore piloted with 21 breast cancer patients attending a hospital clinic 1–4 years after treatment to test for content validity. The pilot testing was also aimed at testing the user friendliness and to assess if the self-administered questionnaire helped to screen for possible problems for each patient in any of the domains. Responses to the self-administered questionnaire were reviewed by the team and recommendations made for interventions based on individual responses. The predictive validity of the self-administered questionnaire will be further tested in a follow-up study in which patients will be offered interventions with reference to the self-administered questionnaire. </p></sec><sec id="sec3"><title>3. Results</title><p>For each dimension the following specific clinical evidence was incorporated into the questions by each member of the multidisciplinary team. The sequence of questions was reassigned to ensure a logical flow across the domains of interest (see <xref ref-type="fig" rid="fig1">Figure 1</xref>). The Flesch Reading Ease score [<xref rid="B13" ref-type="bibr">31</xref>] was 65.8, and the Flesh-Kincaid Grade Level was 6.9 [<xref rid="B14" ref-type="bibr">32</xref>]. The specific justification for the questions per specialty is recorded in <xref ref-type="table" rid="tab1">Table 1</xref>. A key function in followup is to rule out recurrence of cancer and to assess for side effects of adjuvant therapy including tiredness, musculoskeletal complaints, weight gain, sexual dysfunction, gynaecologic symptoms, vasomotor symptoms, and urinary incontinence [<xref rid="B15" ref-type="bibr">33</xref>]. Urinary incontinence is a condition that can be treated effectively [<xref rid="B16" ref-type="bibr">22</xref>, <xref rid="B17" ref-type="bibr">23</xref>], and yet care-seeking is low [<xref rid="B18" ref-type="bibr">24</xref>]. Barriers to care-seeking include embarrassment, the perception that symptoms are a normal part of aging, lack of awareness that effective treatments are available, and believing the symptoms do not warrant medical attention [<xref rid="B19" ref-type="bibr">25</xref>]. Therefore, the self-administered questionnaire includes direct questions that may initiate a conversation about symptoms that can be followed by appropriate treatment. The self-administered questionnaire was applied to 21 patients, and a series of issues (see <xref ref-type="table" rid="tab2">Table 2</xref>) were identified.</p></sec><sec id="sec4"><title>4. Discussion</title><p>The self-administered questionnaire encompassed the physical, psychological, and social domains and is divided into categories.</p><sec sec-type="subsection" id="sec4.1"><title>4.1. Physical</title><list list-type="order"><list-item><p>Symptoms of breast cancer recurrence.</p></list-item><list-item><p>Physical sequelae of treatment.</p></list-item><list-item><p>Nutritional effects of treatment.</p></list-item><list-item><p>Prevention of recurrence.</p></list-item></list></sec><sec sec-type="subsection" id="sec4.2"><title>4.2. Psychological</title><list list-type="order"><list-item><p>Psychological sequelae of diagnosis and treatment.</p></list-item><list-item><p>Symptoms of major depressive illness.</p></list-item></list></sec><sec sec-type="subsection" id="sec4.3"><title>4.3. Social</title><list list-type="order"><list-item><p>Relationship problems consequent to diagnosis and treatment.</p></list-item><list-item><p>Sexual dysfunction.</p></list-item></list><p>Questions were designed to encourage proactive exploration of issues that may impact on the health and well-being of the patient. The Flesch reading ease test rates text on a 100-point scale [<xref rid="B13" ref-type="bibr">31</xref>]. The higher the score is, the easier it is to understand the document. For most standard files, the designers recommend a score between 60 and 70. Similarly, Flesh-Kincaid Grade test rates text on a US school grade level [<xref rid="B14" ref-type="bibr">32</xref>]. For example, a score of 8.0 means that an eighth grader, an early high school student, can understand the document [<xref rid="B14" ref-type="bibr">32</xref>]. It can also mean the number of years of education generally required to understand this text. For most documents, the aim is for a score of approximately 7.0 to 8.0. Therefore, the self-administered questionnaire was rated as easy to read and comprehend.</p><p>A key task in followup is to take the opportunity to assess for recurrent cancer. Alongside the plethora of physical symptoms and side effects, cancer can also result in a wide range of psychological and emotional problems which may contribute to greater patient distress [<xref rid="B29" ref-type="bibr">26</xref>]. The prevalence rates of distress in breast cancer patients are well documented and range from 35 to 49% in the USA and Europe [<xref rid="B34" ref-type="bibr">34</xref>]. There are few if any published self-administered questionnaires that can be used to help assess patients' needs following specialist treatment for chronic and complex conditions. Such self-completed self-administered questionnaires should be followed up with an interview and if necessary physical examination by a health practitioner with the necessary skill set.</p><p>The self-administered questionnaire detected symptoms or problems related to each domain and 121 individual items of unmet need despite the fact that the patients were already attending a hospital clinic and had access to their general practitioner. This emphasised the value of a proactive approach to the assessment of patients in the period following the treatment of breast cancer.</p></sec></sec><sec id="sec5"><title>5. Conclusion</title><p>This self-administered screening tool may assist in identifying physical psychological and social dysfunction distress in women after breast cancer treatment. It contains screening questions focusing on psychological issues which may contribute to distress, including depression, anxiety, and general coping. The information collected from this screening tool, and elaborated on in the clinical interview with health professionals, should assist in identifying patients who are experiencing psychological distress and assist practitioners in recommending appropriate follow-up care plans. However the self-administered questionnaire needs to be further tested to confirm that it has predictive and concurrent validity. </p></sec></body><back><ref-list><ref id="B1"><label>1</label><element-citation publication-type="other"><comment>Australian Institute of Health and Welfare, Australian Cancer Incidence and Mortality (ACIM) books, 2007, <ext-link ext-link-type="uri" xlink:href="http://www.aihw.gov.au/cancer/data/acim_books/index.cfm">http://www.aihw.gov.au/cancer/data/acim_books/index.cfm</ext-link></comment></element-citation></ref><ref id="B2"><label>2</label><element-citation publication-type="journal"><person-group person-group-type="author"><name><surname>Jiwa</surname><given-names>M</given-names></name><name><surname>Halkett</surname><given-names>G</given-names></name><name><surname>Deas</surname><given-names>K</given-names></name><name><surname>Meng</surname><given-names>X</given-names></name></person-group><article-title>Women with breast cancers' preferences for surveillance follow-up</article-title><source><italic>Collegian</italic></source><year>2011</year><volume>18</volume><issue>2</issue><fpage>81</fpage><lpage>86</lpage><pub-id pub-id-type="pmid">21706995</pub-id></element-citation></ref><ref id="B3"><label>3</label><element-citation publication-type="journal"><person-group person-group-type="author"><name><surname>Thewes</surname><given-names>B</given-names></name><name><surname>Butow</surname><given-names>P</given-names></name><name><surname>Girgis</surname><given-names>A</given-names></name><name><surname>Pendlebury</surname><given-names>S</given-names></name></person-group><article-title>The psychosocial needs of breast cancer survivors; a qualitative study of the shared and unique needs of younger versus older survivors</article-title><source><italic>Psycho-Oncology</italic></source><year>2004</year><volume>13</volume><issue>3</issue><fpage>177</fpage><lpage>189</lpage><pub-id pub-id-type="pmid">15022153</pub-id></element-citation></ref><ref id="B4"><label>4</label><element-citation publication-type="book"><person-group person-group-type="author"><name><surname>Cornwell</surname><given-names>J</given-names></name></person-group><source><italic>Hard-Earned Lives: Accounts of Health and Illness from East London</italic></source><year>1984</year><publisher-loc>London, UK</publisher-loc><publisher-name>Tavistock</publisher-name></element-citation></ref><ref id="B5"><label>5</label><element-citation publication-type="book"><person-group person-group-type="author"><name><surname>Turner</surname><given-names>B</given-names></name></person-group><source><italic>The Body and Society</italic></source><year>1984</year><publisher-loc>Oxford, UK</publisher-loc><publisher-name>Blackwell</publisher-name></element-citation></ref><ref id="B6"><label>6</label><element-citation publication-type="book"><person-group person-group-type="author"><name><surname>Bury</surname><given-names>M</given-names></name></person-group><source><italic>Health and Illness in a Changing Society</italic></source><year>2000</year><publisher-loc>London, UK</publisher-loc><publisher-name>Routledge</publisher-name></element-citation></ref><ref id="B7"><label>7</label><element-citation publication-type="journal"><person-group person-group-type="author"><name><surname>Bury</surname><given-names>M</given-names></name></person-group><article-title>The sociology of chronic illness: a review of research and prospects</article-title><source><italic>Sociology of Health and Illness</italic></source><year>1991</year><volume>13</volume><fpage>451</fpage><lpage>468</lpage></element-citation></ref><ref id="B8"><label>8</label><element-citation publication-type="journal"><person-group person-group-type="author"><name><surname>Bury</surname><given-names>M</given-names></name></person-group><article-title>Chronic illness as biographical disruption</article-title><source><italic>Sociology of Health and Illness</italic></source><year>1982</year><volume>4</volume><issue>2</issue><fpage>167</fpage><lpage>182</lpage><pub-id pub-id-type="pmid">10260456</pub-id></element-citation></ref><ref id="B9"><label>9</label><element-citation publication-type="book"><person-group person-group-type="author"><name><surname>Carricaburu</surname><given-names>D</given-names></name><name><surname>Pierret</surname><given-names>J</given-names></name></person-group><person-group person-group-type="editor"><name><surname>Bury</surname><given-names>M</given-names></name><name><surname>Gabe</surname><given-names>J</given-names></name></person-group><article-title>From biographical disruption to biographical reinforcement: the case of HIV-positive men</article-title><source><italic>The Sociol of Health and Illness: A Reader</italic></source><year>2004</year><publisher-loc>London, UK</publisher-loc><publisher-name>Routledge</publisher-name></element-citation></ref><ref id="B10"><label>10</label><element-citation publication-type="book"><person-group person-group-type="author"><name><surname>Gabe</surname><given-names>J</given-names></name><name><surname>Bury</surname><given-names>M</given-names></name><name><surname>Elston</surname><given-names>MA</given-names></name></person-group><source><italic>Key Concepts in Medical Sociology</italic></source><year>2004</year><publisher-loc>London, UK</publisher-loc><publisher-name>Sage</publisher-name></element-citation></ref><ref id="B11"><label>11</label><element-citation publication-type="book"><person-group person-group-type="author"><name><surname>Gifford</surname><given-names>S</given-names></name></person-group><person-group person-group-type="editor"><name><surname>Nettleton</surname><given-names>S</given-names></name><name><surname>Gustafsson</surname><given-names>U</given-names></name></person-group><article-title>The meaning of lumps: a case study of the ambiguities of risk</article-title><source><italic>The Sociology of Health and Illness Reader</italic></source><year>2002</year><publisher-loc>Cambridge, UK</publisher-loc><publisher-name>Polity</publisher-name></element-citation></ref><ref id="B12"><label>12</label><element-citation publication-type="journal"><person-group person-group-type="author"><name><surname>Carlfjord</surname><given-names>S</given-names></name><name><surname>Lindberg</surname><given-names>M</given-names></name><name><surname>Bendtsen</surname><given-names>P</given-names></name><name><surname>Nilsen</surname><given-names>P</given-names></name><name><surname>Andersson</surname><given-names>A</given-names></name></person-group><article-title>Key factors influencing adoption of an innovation in primary health care: a qualitative study based on implementation theory</article-title><source><italic>BMC Family Practice</italic></source><year>2010</year><volume>11</volume><issue>60</issue></element-citation></ref><ref id="B20"><label>13</label><element-citation publication-type="other"><collab>National Breast and Ovarian Cancer Centre</collab><article-title>The investigation of a new breast symptom: a guide for General Practitioners</article-title><year>2006</year><comment><ext-link ext-link-type="uri" xlink:href="http://www.nbocc.org.au/view-document-details/ibs-the-investigation-of-a-new-breast-symptom-guide-for-gps">http://www.nbocc.org.au/view-document-details/ibs-the-investigation-of-a-new-breast-symptom-guide-for-gps</ext-link></comment></element-citation></ref><ref id="B21"><label>14</label><element-citation publication-type="journal"><person-group person-group-type="author"><name><surname>Burgess</surname><given-names>C</given-names></name><name><surname>Cornelius</surname><given-names>V</given-names></name><name><surname>Love</surname><given-names>S</given-names></name><name><surname>Graham</surname><given-names>J</given-names></name><name><surname>Richards</surname><given-names>M</given-names></name><name><surname>Ramirez</surname><given-names>A</given-names></name></person-group><article-title>Depression and anxiety in women with early breast cancer: five year observational cohort study</article-title><source><italic>British Medical Journal</italic></source><year>2005</year><volume>330</volume><issue>7493</issue><fpage>702</fpage><lpage>705</lpage><pub-id pub-id-type="pmid">15695497</pub-id></element-citation></ref><ref id="B22"><label>15</label><element-citation publication-type="journal"><person-group person-group-type="author"><name><surname>Goodwin</surname><given-names>PJ</given-names></name><name><surname>Ennis</surname><given-names>M</given-names></name><name><surname>Pritchard</surname><given-names>KI</given-names></name><name><surname>Trudeau</surname><given-names>M</given-names></name><name><surname>Hood</surname><given-names>N</given-names></name></person-group><article-title>Risk of menopause during the first year after breast cancer diagnosis</article-title><source><italic>Journal of Clinical Oncology</italic></source><year>1999</year><volume>17</volume><issue>8</issue><fpage>2365</fpage><lpage>2370</lpage><pub-id pub-id-type="pmid">10561298</pub-id></element-citation></ref><ref id="B23"><label>16</label><element-citation publication-type="journal"><person-group person-group-type="author"><name><surname>Carpenter</surname><given-names>J</given-names></name><name><surname>Andrykowski</surname><given-names>M</given-names></name></person-group><article-title>Menopausal symptoms in breast cancer survivors</article-title><source><italic>Oncology Nursing Forum</italic></source><year>1999</year><volume>26</volume><issue>8</issue><fpage>1311</fpage><lpage>1317</lpage><pub-id pub-id-type="pmid">10497770</pub-id></element-citation></ref><ref id="B24"><label>17</label><element-citation publication-type="journal"><person-group person-group-type="author"><name><surname>Crew</surname><given-names>KD</given-names></name><name><surname>Greenlee</surname><given-names>H</given-names></name><name><surname>Capodice</surname><given-names>J</given-names></name><etal></etal></person-group><article-title>Prevalence of joint symptoms in postmenopausal women taking aromatase inhibitors for early-stage breast cancer</article-title><source><italic>Journal of Clinical Oncology</italic></source><year>2007</year><volume>25</volume><issue>25</issue><fpage>3877</fpage><lpage>3883</lpage><pub-id pub-id-type="pmid">17761973</pub-id></element-citation></ref><ref id="B25"><label>18</label><element-citation publication-type="journal"><person-group person-group-type="author"><name><surname>Smoot</surname><given-names>B</given-names></name><name><surname>Wong</surname><given-names>J</given-names></name><name><surname>Cooper</surname><given-names>B</given-names></name><etal></etal></person-group><article-title>Upper extremity impairments in women with or without lymphedema following breast cancer treatment</article-title><source><italic>Journal of Cancer Survivorship</italic></source><year>2010</year><volume>4</volume><issue>2</issue><fpage>167</fpage><lpage>178</lpage><pub-id pub-id-type="pmid">20373044</pub-id></element-citation></ref><ref id="B26"><label>19</label><element-citation publication-type="journal"><person-group person-group-type="author"><name><surname>Maunsell</surname><given-names>E</given-names></name><name><surname>Brisson</surname><given-names>C</given-names></name><name><surname>Dubois</surname><given-names>L</given-names></name><name><surname>Lauzier</surname><given-names>S</given-names></name><name><surname>Fraser</surname><given-names>A</given-names></name></person-group><article-title>Work problems after breast cancer: an exploratory qualitative study</article-title><source><italic>Psycho-Oncology</italic></source><year>1999</year><volume>8</volume><issue>6</issue><fpage>467</fpage><lpage>473</lpage><pub-id pub-id-type="pmid">10607979</pub-id></element-citation></ref><ref id="B27"><label>20</label><element-citation publication-type="journal"><person-group person-group-type="author"><name><surname>Maguire</surname><given-names>P</given-names></name><name><surname>Pitceathly</surname><given-names>C</given-names></name></person-group><article-title>Key communication skills and how to acquire them</article-title><source><italic>British Medical Journal</italic></source><year>2002</year><volume>325</volume><issue>7366</issue><fpage>697</fpage><lpage>700</lpage><pub-id pub-id-type="pmid">12351365</pub-id></element-citation></ref><ref id="B28"><label>21</label><element-citation publication-type="book"><collab>National Breast Cancer Centre</collab><source><italic>Clinical Practice Guidelines for the Psychosocial Care of Adults with Cancer</italic></source><year>2003</year><publisher-loc>New South Wales, Australia</publisher-loc><publisher-name>National Breast Cancer Centre</publisher-name></element-citation></ref><ref id="B16"><label>22</label><element-citation publication-type="journal"><person-group person-group-type="author"><name><surname>Hunskaar</surname><given-names>S</given-names></name></person-group><article-title>A systematic review of overweight and obesity as risk factors and targets for clinical intervention for urinary incontinence in women</article-title><source><italic>Neurourology and Urodynamics</italic></source><year>2008</year><volume>27</volume><issue>8</issue><fpage>749</fpage><lpage>757</lpage><pub-id pub-id-type="pmid">18951445</pub-id></element-citation></ref><ref id="B17"><label>23</label><element-citation publication-type="journal"><person-group person-group-type="author"><name><surname>Dumoulin</surname><given-names>C</given-names></name><name><surname>Hay-Smith</surname><given-names>J</given-names></name></person-group><article-title>Pelvic floor muscle training versus no treatment, or inactive control treatments, for urinary incontinence in women</article-title><source><italic>Cochrane Database of Systematic Reviews</italic></source><year>2010</year><issue>1</issue><comment>Article ID CD005654.</comment></element-citation></ref><ref id="B18"><label>24</label><element-citation publication-type="journal"><person-group person-group-type="author"><name><surname>Harris</surname><given-names>SS</given-names></name><name><surname>Link</surname><given-names>CL</given-names></name><name><surname>Tennstedt</surname><given-names>SL</given-names></name><name><surname>Kusek</surname><given-names>JW</given-names></name><name><surname>McKinlay</surname><given-names>JB</given-names></name></person-group><article-title>Care seeking and treatment for urinary incontinence in a diverse population</article-title><source><italic>Journal of Urology</italic></source><year>2007</year><volume>177</volume><issue>2</issue><fpage>680</fpage><lpage>684</lpage><pub-id pub-id-type="pmid">17222656</pub-id></element-citation></ref><ref id="B19"><label>25</label><element-citation publication-type="journal"><person-group person-group-type="author"><name><surname>Goldstein</surname><given-names>M</given-names></name><name><surname>Hawthorne</surname><given-names>ME</given-names></name><name><surname>Engeberg</surname><given-names>S</given-names></name><name><surname>McDowell</surname><given-names>BJ</given-names></name><name><surname>Burgio</surname><given-names>KL</given-names></name></person-group><article-title>Urinary incontinence. Why people do not seek help</article-title><source><italic>Journal of Gerontological Nursing</italic></source><year>1992</year><volume>18</volume><issue>4</issue><fpage>15</fpage><lpage>20</lpage></element-citation></ref><ref id="B29"><label>26</label><element-citation publication-type="journal"><person-group person-group-type="author"><name><surname>Ryan</surname><given-names>H</given-names></name><name><surname>Schofield</surname><given-names>P</given-names></name><name><surname>Cockburn</surname><given-names>J</given-names></name><etal></etal></person-group><article-title>How to recognize and manage psychological distress in cancer patients</article-title><source><italic>European Journal of Cancer Care</italic></source><year>2005</year><volume>14</volume><issue>1</issue><fpage>7</fpage><lpage>15</lpage><pub-id pub-id-type="pmid">15698382</pub-id></element-citation></ref><ref id="B30"><label>27</label><element-citation publication-type="journal"><person-group person-group-type="author"><name><surname>Ganz</surname><given-names>P</given-names></name><name><surname>Rowland</surname><given-names>J</given-names></name><name><surname>Desmond</surname><given-names>K</given-names></name><name><surname>Meyerowitz</surname><given-names>B</given-names></name><name><surname>Wyatt</surname><given-names>G</given-names></name></person-group><article-title>Life after breast cancer: understanding women's health-related quality of life and sexual functioning</article-title><source><italic>Journal of Clinical Oncology</italic></source><year>1998</year><volume>16</volume><issue>2</issue><fpage>501</fpage><lpage>514</lpage><pub-id pub-id-type="pmid">9469334</pub-id></element-citation></ref><ref id="B31"><label>28</label><element-citation publication-type="journal"><person-group person-group-type="author"><name><surname>Stilos</surname><given-names>K</given-names></name><name><surname>Doyle</surname><given-names>C</given-names></name><name><surname>Daines</surname><given-names>P</given-names></name></person-group><article-title>Addressing the sexual health needs of patients with gynecologic cancers</article-title><source><italic>Clinical Journal of Oncology Nursing</italic></source><year>2008</year><volume>12</volume><issue>3</issue><fpage>457</fpage><lpage>463</lpage><pub-id pub-id-type="pmid">18515244</pub-id></element-citation></ref><ref id="B32"><label>29</label><element-citation publication-type="journal"><person-group person-group-type="author"><name><surname>Li</surname><given-names>C</given-names></name><name><surname>Daling</surname><given-names>J</given-names></name><name><surname>Porter</surname><given-names>P</given-names></name><name><surname>Tang</surname><given-names>M</given-names></name><name><surname>Malone</surname><given-names>K</given-names></name></person-group><article-title>Relationship between potentially modifiable lifestyle factors and risk of second primary contralateral breast cancer among women diagnosed with estrogen receptor-positive invasive breast cancer</article-title><source><italic>Journal of Clinical Oncology</italic></source><year>2009</year><volume>27</volume><issue>32</issue><fpage>5312</fpage><lpage>5318</lpage><pub-id pub-id-type="pmid">19738113</pub-id></element-citation></ref><ref id="B33"><label>30</label><element-citation publication-type="journal"><person-group person-group-type="author"><name><surname>Vallance</surname><given-names>J</given-names></name><name><surname>Plotnikoff</surname><given-names>R</given-names></name><name><surname>Karvinen</surname><given-names>K</given-names></name><name><surname>Mackey</surname><given-names>J</given-names></name><name><surname>Courneya</surname><given-names>K</given-names></name></person-group><article-title>Understanding physical activity maintenance in breast cancer survivors</article-title><source><italic>American Journal of Health Behavior</italic></source><year>2010</year><volume>34</volume><issue>2</issue><fpage>225</fpage><lpage>236</lpage><pub-id pub-id-type="pmid">19814602</pub-id></element-citation></ref><ref id="B13"><label>31</label><element-citation publication-type="journal"><person-group person-group-type="author"><name><surname>Flesch</surname><given-names>R</given-names></name></person-group><article-title>A new readability yardstick</article-title><source><italic>Journal of Applied Psychology</italic></source><year>1948</year><volume>32</volume><issue>3</issue><fpage>221</fpage><lpage>233</lpage><pub-id pub-id-type="pmid">18867058</pub-id></element-citation></ref><ref id="B14"><label>32</label><element-citation publication-type="book"><person-group person-group-type="author"><name><surname>Kincaid</surname><given-names>J</given-names></name><name><surname>Fishburne</surname><given-names>R</given-names></name><name><surname>Rogers</surname><given-names>R</given-names></name><name><surname>Chissom</surname><given-names>B</given-names></name></person-group><article-title>Derivation of new readability formulas (automated readability index, fog count and flesch reading ease formula) for navy enlisted personnel</article-title><year>1975</year><issue>Tech. Rep. 8–75</issue><publisher-loc>Memphis, Tenn, USA</publisher-loc><publisher-name>Naval Technical Training, Millington, Tenn, USA; U.S. Naval Air Station</publisher-name></element-citation></ref><ref id="B15"><label>33</label><element-citation publication-type="journal"><person-group person-group-type="author"><name><surname>Visvanathan</surname><given-names>K</given-names></name><name><surname>Chlebowski</surname><given-names>R</given-names></name><name><surname>Hurley</surname><given-names>P</given-names></name><etal></etal></person-group><article-title>American society of clinical oncology clinical practice guideline update on the use of pharmacologic interventions including tamoxifen, raloxifene, and aromatase inhibition for breast cancer risk reduction</article-title><source><italic>Journal of Clinical Oncology</italic></source><year>2009</year><volume>27</volume><issue>19</issue><fpage>3235</fpage><lpage>3258</lpage><pub-id pub-id-type="pmid">19470930</pub-id></element-citation></ref><ref id="B34"><label>34</label><element-citation publication-type="journal"><person-group person-group-type="author"><name><surname>Bultz</surname><given-names>BD</given-names></name><name><surname>Carlson</surname><given-names>LE</given-names></name></person-group><article-title>Emotional distress: the sixth vital sign—future directions in cancer care</article-title><source><italic>Psycho-Oncology</italic></source><year>2006</year><volume>15</volume><issue>2</issue><fpage>93</fpage><lpage>95</lpage><pub-id pub-id-type="pmid">16444764</pub-id></element-citation></ref></ref-list></back><floats-group><fig id="fig1" position="float"><label>Figure 1</label><caption><p>CCC (Cancer Care Coordinator) project—follow-up assessment.</p></caption><graphic xlink:href="IJFM2011-390692.001"></graphic></fig><table-wrap id="tab1" position="float"><label>Table 1</label><caption><p>Justification for questions chosen per specialty.</p></caption><table frame="hsides" rules="groups"><thead><tr><th align="left" rowspan="1" colspan="1">Speciality</th><th align="center" rowspan="1" colspan="1">Questions</th><th align="left" rowspan="1" colspan="1">Rationale</th></tr></thead><tbody><tr><td align="left" rowspan="1" colspan="1">Medicine</td><td align="center" rowspan="1" colspan="1">1–8, 23, 27, 28</td><td align="left" rowspan="1" colspan="1">Symptoms of recurrent breast cancer [<xref rid="B20" ref-type="bibr">13</xref>], depression [<xref rid="B21" ref-type="bibr">14</xref>], menopausal symptoms [<xref rid="B22" ref-type="bibr">15</xref>, <xref rid="B23" ref-type="bibr">16</xref>], joint pain related to treatment [<xref rid="B24" ref-type="bibr">17</xref>]</td></tr><tr><td align="left" rowspan="1" colspan="1">Physiotherapy</td><td align="center" rowspan="1" colspan="1">9, 14–17, 24, 29</td><td align="left" rowspan="1" colspan="1">Shoulder pain [<xref rid="B25" ref-type="bibr">18</xref>], lymphoedema [<xref rid="B25" ref-type="bibr">18</xref>]</td></tr><tr><td align="left" rowspan="1" colspan="1">OT</td><td align="center" rowspan="1" colspan="1">18, 20</td><td align="left" rowspan="1" colspan="1">Adjustment and occupational issues [<xref rid="B26" ref-type="bibr">19</xref>]</td></tr><tr><td align="left" rowspan="1" colspan="1">Psychology</td><td align="center" rowspan="1" colspan="1">5, 19, 22, 25, 26, 27, 28</td><td align="left" rowspan="1" colspan="1">Depression, anxiety and general psychological well-being [<xref rid="B27" ref-type="bibr">20</xref>, <xref rid="B28" ref-type="bibr">21</xref>], urinary incontinence [<xref rid="B16" ref-type="bibr">22</xref>–<xref rid="B19" ref-type="bibr">25</xref>], alcohol abuse as a risk factor for recurrence [<xref rid="B28" ref-type="bibr">21</xref>], undetected psychological distress [<xref rid="B29" ref-type="bibr">26</xref>]</td></tr><tr><td align="left" rowspan="1" colspan="1">Sexology</td><td align="center" rowspan="1" colspan="1">25, 29</td><td align="left" rowspan="1" colspan="1">Common sexual difficulties experienced following cancer treatment [<xref rid="B30" ref-type="bibr">27</xref>, <xref rid="B31" ref-type="bibr">28</xref>]</td></tr><tr><td align="left" rowspan="1" colspan="1">Dietetics</td><td align="center" rowspan="1" colspan="1">5, 10, 11, 13, 20</td><td align="left" rowspan="1" colspan="1">Obesity as a risk of recurrence [<xref rid="B32" ref-type="bibr">29</xref>], motivation to maintain a healthy weight, physical activity as protection against recurrence [<xref rid="B33" ref-type="bibr">30</xref>]</td></tr></tbody></table></table-wrap><table-wrap id="tab2" position="float"><label>Table 2</label><caption><p>Problems identified on application of the self-administered questionnaire.</p></caption><table frame="hsides" rules="groups"><thead><tr><th align="left" rowspan="1" colspan="1">Domain</th><th align="left" rowspan="1" colspan="1">Type of problem</th><th align="center" rowspan="1" colspan="1">Number of patients/21</th></tr></thead><tbody><tr><td align="left" rowspan="7" colspan="1">Physical</td><td align="left" rowspan="1" colspan="1">Upper body/arm dysfunction</td><td align="center" rowspan="1" colspan="1">14</td></tr><tr><td align="left" rowspan="1" colspan="1">Weight management</td><td align="center" rowspan="1" colspan="1">9</td></tr><tr><td align="left" rowspan="1" colspan="1">Urinary symptoms/incontinence</td><td align="center" rowspan="1" colspan="1">12</td></tr><tr><td align="left" rowspan="1" colspan="1">Lower bowel symptoms</td><td align="center" rowspan="1" colspan="1">1</td></tr><tr><td align="left" rowspan="1" colspan="1">Menopause symptoms</td><td align="center" rowspan="1" colspan="1">16</td></tr><tr><td align="left" rowspan="1" colspan="1">Other physical symptoms</td><td align="center" rowspan="1" colspan="1">6</td></tr><tr><td align="left" rowspan="1" colspan="1">Sleep disturbance</td><td align="center" rowspan="1" colspan="1">13</td></tr><tr><td align="center" colspan="3" rowspan="1"><hr></hr></td></tr><tr><td align="left" rowspan="4" colspan="1">Psychological</td><td align="left" rowspan="1" colspan="1">Body image concerns</td><td align="center" rowspan="1" colspan="1">8</td></tr><tr><td align="left" rowspan="1" colspan="1">Depression</td><td align="center" rowspan="1" colspan="1">6</td></tr><tr><td align="left" rowspan="1" colspan="1">Other psychological distress</td><td align="center" rowspan="1" colspan="1">8</td></tr><tr><td align="left" rowspan="1" colspan="1">Psychosexual problems</td><td align="center" rowspan="1" colspan="1">16</td></tr><tr><td align="center" colspan="3" rowspan="1"><hr></hr></td></tr><tr><td align="left" rowspan="2" colspan="1">Social</td><td align="left" rowspan="1" colspan="1">Employment issues</td><td align="center" rowspan="1" colspan="1">5</td></tr><tr><td align="left" rowspan="1" colspan="1">Financial concerns</td><td align="center" rowspan="1" colspan="1">7</td></tr></tbody></table></table-wrap></floats-group></pmc></record>Pour manipuler ce document sous Unix (Dilib)
EXPLOR_STEP=$WICRI_ROOT/Wicri/Sante/explor/LymphedemaV1/Data/Pmc/Corpus
HfdSelect -h $EXPLOR_STEP/biblio.hfd -nk 003F57 | SxmlIndent | more
Ou
HfdSelect -h $EXPLOR_AREA/Data/Pmc/Corpus/biblio.hfd -nk 003F57 | SxmlIndent | more
Pour mettre un lien sur cette page dans le réseau Wicri
{{Explor lien
|wiki= Wicri/Sante
|area= LymphedemaV1
|flux= Pmc
|étape= Corpus
|type= RBID
|clé= PMC:3263838
|texte= Developing a Self-Administered Questionnaire as a Guide to
Consultations with Women Treated for Breast Cancer
}}
Pour générer des pages wiki
HfdIndexSelect -h $EXPLOR_AREA/Data/Pmc/Corpus/RBID.i -Sk "pubmed:22295185" \
| HfdSelect -Kh $EXPLOR_AREA/Data/Pmc/Corpus/biblio.hfd \
| NlmPubMed2Wicri -a LymphedemaV1
| This area was generated with Dilib version V0.6.31. |  |