A comparison of the quality of life in patients with primary and secondary lower-limb lymphedema: A mixed-methods study
Identifieur interne : 003720 ( Pmc/Corpus ); précédent : 003719; suivant : 003721A comparison of the quality of life in patients with primary and secondary lower-limb lymphedema: A mixed-methods study
Auteurs : Deonni P. Stolldorf ; Mary S. Dietrich ; Sheila H. RidnerSource :
- Western journal of nursing research [ 0193-9459 ] ; 2016.
Abstract
Patients with lower-limb lymphedema experience symptoms that may differ in intensity and distress. This mixed-methods study compares symptom intensity and distress and the impact of lymphedema on patients’ quality of life by primary and secondary (cancer and non-cancer) lymphedema groups. Individuals completed an online questionnaire (i.e., demographic form, Lymphedema Symptom Intensity and Distress Survey-Leg, and an open-ended question). Analyses included descriptive and inferential statistics (quantitative data) and content analysis (qualitative data). Participants differed statistically significantly by gender, employment status, and lymphedema location. Groups differed significantly in lack of self-confidence (χ2(df=2) =9.19; p=.010). Cancer patients reported higher intensity and distress scores for some symptoms, but these differences were not statistically significant. Patients reported lacking psychosocial well-being and resources and experiencing physical and functional impairments and treatment and care challenges. Patients with lower-limb lymphedema experience psychosocial impairments and problems with quality of and access to care.
Url:
DOI: 10.1177/0193945916647961
PubMed: 27151079
PubMed Central: 5033662
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PMC:5033662Le document en format XML
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<author><name sortKey="Stolldorf, Deonni P" sort="Stolldorf, Deonni P" uniqKey="Stolldorf D" first="Deonni P" last="Stolldorf">Deonni P. Stolldorf</name>
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<author><name sortKey="Dietrich, Mary S" sort="Dietrich, Mary S" uniqKey="Dietrich M" first="Mary S." last="Dietrich">Mary S. Dietrich</name>
<affiliation><nlm:aff id="A1"> School of Nursing, Vanderbilt University, Nashville, TN, USA</nlm:aff>
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<author><name sortKey="Ridner, Sheila H" sort="Ridner, Sheila H" uniqKey="Ridner S" first="Sheila H." last="Ridner">Sheila H. Ridner</name>
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<series><title level="j">Western journal of nursing research</title>
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<front><div type="abstract" xml:lang="en"><p id="P1">Patients with lower-limb lymphedema experience symptoms that may differ in intensity and distress. This mixed-methods study compares symptom intensity and distress and the impact of lymphedema on patients’ quality of life by primary and secondary (cancer and non-cancer) lymphedema groups. Individuals completed an online questionnaire (i.e., demographic form, Lymphedema Symptom Intensity and Distress Survey-Leg, and an open-ended question). Analyses included descriptive and inferential statistics (quantitative data) and content analysis (qualitative data). Participants differed statistically significantly by gender, employment status, and lymphedema location. Groups differed significantly in lack of self-confidence (χ<sup>2</sup>
<sub>(df=2)</sub>
=9.19; p=.010). Cancer patients reported higher intensity and distress scores for some symptoms, but these differences were not statistically significant. Patients reported lacking psychosocial well-being and resources and experiencing physical and functional impairments and treatment and care challenges. Patients with lower-limb lymphedema experience psychosocial impairments and problems with quality of and access to care.</p>
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<journal-id journal-id-type="nlm-ta">West J Nurs Res</journal-id>
<journal-id journal-id-type="iso-abbrev">West J Nurs Res</journal-id>
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<article-categories><subj-group subj-group-type="heading"><subject>Article</subject>
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<title-group><article-title>A comparison of the quality of life in patients with primary and secondary lower-limb lymphedema: A mixed-methods study</article-title>
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<contrib-group><contrib contrib-type="author"><name><surname>Stolldorf</surname>
<given-names>Deonni P</given-names>
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<degrees>PhD, RN</degrees>
<xref ref-type="aff" rid="A1">1</xref>
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<contrib contrib-type="author"><name><surname>Dietrich</surname>
<given-names>Mary S.</given-names>
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<degrees>PhD</degrees>
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<contrib contrib-type="author"><name><surname>Ridner</surname>
<given-names>Sheila H.</given-names>
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<degrees>PhD, RN, FAAN</degrees>
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<aff id="A1"><label>1</label>
School of Nursing, Vanderbilt University, Nashville, TN, USA</aff>
<author-notes><corresp id="CR1"><bold>Corresponding author:</bold>
Deonni P Stolldorf, PhD, RN, 461 21<sup>st</sup>
Ave S., 600-C Godchaux Hall, Nashville, TN 37240, Fax: 615-343-5898, Phone: 919-641-9450</corresp>
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<pub-date pub-type="nihms-submitted"><day>23</day>
<month>4</month>
<year>2016</year>
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<pub-date pub-type="epub"><day>05</day>
<month>5</month>
<year>2016</year>
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<pub-date pub-type="ppub"><month>10</month>
<year>2016</year>
</pub-date>
<pub-date pub-type="pmc-release"><day>01</day>
<month>4</month>
<year>2017</year>
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<volume>38</volume>
<issue>10</issue>
<fpage>1313</fpage>
<lpage>1334</lpage>
<pmc-comment>elocation-id from pubmed: 10.1177/0193945916647961</pmc-comment>
<abstract><p id="P1">Patients with lower-limb lymphedema experience symptoms that may differ in intensity and distress. This mixed-methods study compares symptom intensity and distress and the impact of lymphedema on patients’ quality of life by primary and secondary (cancer and non-cancer) lymphedema groups. Individuals completed an online questionnaire (i.e., demographic form, Lymphedema Symptom Intensity and Distress Survey-Leg, and an open-ended question). Analyses included descriptive and inferential statistics (quantitative data) and content analysis (qualitative data). Participants differed statistically significantly by gender, employment status, and lymphedema location. Groups differed significantly in lack of self-confidence (χ<sup>2</sup>
<sub>(df=2)</sub>
=9.19; p=.010). Cancer patients reported higher intensity and distress scores for some symptoms, but these differences were not statistically significant. Patients reported lacking psychosocial well-being and resources and experiencing physical and functional impairments and treatment and care challenges. Patients with lower-limb lymphedema experience psychosocial impairments and problems with quality of and access to care.</p>
</abstract>
<kwd-group><kwd>Lymphedema</kwd>
<kwd>lymphatic disease</kwd>
<kwd>primary congenital lymphedemas</kwd>
<kwd>quality of healthcare</kwd>
<kwd>cancer</kwd>
</kwd-group>
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