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<record><TEI><teiHeader><fileDesc><titleStmt><title xml:lang="en">Information and support for women following the primary treatment of breast cancer</title><author><name sortKey="Raupach, Jane C A" sort="Raupach, Jane C A" uniqKey="Raupach J" first="Jane C. A." last="Raupach">Jane C. A. Raupach</name><affiliation><nlm:aff id="a1"></nlm:aff></affiliation></author><author><name sortKey="Hiller, Janet E" sort="Hiller, Janet E" uniqKey="Hiller J" first="Janet E." last="Hiller">Janet E. Hiller</name><affiliation><nlm:aff id="a2"></nlm:aff></affiliation></author></titleStmt><publicationStmt><idno type="wicri:source">PMC</idno><idno type="pmid">12460218</idno><idno type="pmc">5142734</idno><idno type="url">http://www.ncbi.nlm.nih.gov/pmc/articles/PMC5142734</idno><idno type="RBID">PMC:5142734</idno><idno type="doi">10.1046/j.1369-6513.2002.00191.x</idno><date when="2002">2002</date><idno type="wicri:Area/Pmc/Corpus">002E35</idno><idno type="wicri:explorRef" wicri:stream="Pmc" wicri:step="Corpus" wicri:corpus="PMC">002E35</idno></publicationStmt><sourceDesc><biblStruct><analytic><title xml:lang="en" level="a" type="main">Information and support for women following the primary treatment of breast cancer</title><author><name sortKey="Raupach, Jane C A" sort="Raupach, Jane C A" uniqKey="Raupach J" first="Jane C. A." last="Raupach">Jane C. A. Raupach</name><affiliation><nlm:aff id="a1"></nlm:aff></affiliation></author><author><name sortKey="Hiller, Janet E" sort="Hiller, Janet E" uniqKey="Hiller J" first="Janet E." last="Hiller">Janet E. Hiller</name><affiliation><nlm:aff id="a2"></nlm:aff></affiliation></author></analytic><series><title level="j">Health Expectations : An International Journal of Public Participation in Health Care and Health Policy</title><idno type="ISSN">1369-6513</idno><idno type="eISSN">1369-7625</idno><imprint><date when="2002">2002</date></imprint></series></biblStruct></sourceDesc></fileDesc><profileDesc><textClass></textClass></profileDesc></teiHeader><front><div type="abstract" xml:lang="en"><title>Abstract</title><p><bold>Objective </bold> To examine the need for, use of and satisfaction with information and support following primary treatment of breast cancer.</p><p><bold>Design </bold> Cross‐sectional survey.</p><p><bold>Participants </bold> Cohort of 266 surviving women diagnosed with breast cancer over a 25‐month period at a tertiary hospital, Adelaide, Australia. Time since diagnosis ranged from 6 to 30 months.</p><p><bold>Main outcome measures </bold> Need for, use of and satisfaction with information and support.</p><p><bold>Results </bold> Women reported high levels of need for information about a variety of issues following breast cancer treatment. Ninety‐four percentage reported a high level of need for information about one or more issues, particularly recognizing a recurrence, chances of cure and risk to family members of breast cancer. However, few women (2–32%) reported receiving such information. The most frequently used source of information was the surgeon followed by television, newspapers and books. The most frequently used source of support was family followed by friends and the surgeon. Few women (<7%) used formal support services or the Internet. Women were very satisfied with the information and support that they received from the surgeon and other health professionals but reported receiving decreasing amounts of information and support from them over time.</p><p><bold>Conclusions </bold> Women experience a high need for information about breast cancer related issues following primary treatment of breast cancer. These needs remain largely unmet as few women receive information about issues that concern them. The role of the surgeon and other health professionals is critical in narrowing the gap between needing and receiving information.</p></div></front></TEI><pmc article-type="research-article"><pmc-comment>The publisher of this article does not allow downloading of the full text in XML form.</pmc-comment>
<front><journal-meta><journal-id journal-id-type="nlm-ta">Health Expect</journal-id><journal-id journal-id-type="iso-abbrev">Health Expect</journal-id><journal-id journal-id-type="doi">10.1111/(ISSN)1369-7625</journal-id><journal-id journal-id-type="publisher-id">HEX</journal-id><journal-title-group><journal-title>Health Expectations : An International Journal of Public Participation in Health Care and Health Policy</journal-title></journal-title-group><issn pub-type="ppub">1369-6513</issn><issn pub-type="epub">1369-7625</issn><publisher><publisher-name>Blackwell Science Ltd</publisher-name><publisher-loc>Oxford, UK</publisher-loc></publisher></journal-meta><article-meta><article-id pub-id-type="pmid">12460218</article-id><article-id pub-id-type="pmc">5142734</article-id><article-id pub-id-type="doi">10.1046/j.1369-6513.2002.00191.x</article-id><article-id pub-id-type="publisher-id">HEX191</article-id><article-categories><subj-group subj-group-type="heading"><subject>Clinical Communication</subject></subj-group></article-categories><title-group><article-title>Information and support for women following the primary treatment of breast cancer</article-title><alt-title alt-title-type="left-running-head">J. C. A. Raupach and J. E. Hiller</alt-title><alt-title alt-title-type="right-running-head">Information and support following breast cancer treatment</alt-title></title-group><contrib-group><contrib id="cr1" contrib-type="author"><name><surname>Raupach</surname><given-names>Jane C. A.</given-names></name><degrees>MPH FAFPHM FRACGP MBBS</degrees><xref ref-type="aff" rid="a1"><sup>1</sup></xref></contrib><contrib id="cr2" contrib-type="author"><name><surname>Hiller</surname><given-names>Janet E.</given-names></name><degrees>PhD MPH</degrees><xref ref-type="aff" rid="a2"><sup>2</sup></xref></contrib></contrib-group><aff id="a1"><label><sup>1</sup></label>Research Fellow, Department of General Practice, Flinders University, Adelaide and Postgraduate Scholar, Department of Public Health, Adelaide University, Adelaide and</aff><aff id="a2"><label><sup>2</sup></label>Professor, Department of Public Health, Adelaide University, Adelaide, Australia</aff><author-notes><corresp id="correspondenceTo">
Jane Raupach
Department of Human Services
PO Box 6
Rundle Mall
SA 5000
Australia
E‐mail: <email>jane.raupach@dhs.sa.gov.au</email></corresp></author-notes><pub-date pub-type="epub"><day>09</day><month>12</month><year>2002</year></pub-date><pub-date pub-type="ppub"><month>12</month><year>2002</year></pub-date><volume>5</volume><issue>4</issue><issue-id pub-id-type="doi">10.1111/hex.2002.5.issue-4</issue-id><fpage>289</fpage><lpage>301</lpage><history><bold>Accepted for publication</bold> 17 May 2002</history><self-uri content-type="pdf" xlink:type="simple" xlink:href="file:HEX-5-289.pdf"></self-uri><abstract><title>Abstract</title><p><bold>Objective </bold> To examine the need for, use of and satisfaction with information and support following primary treatment of breast cancer.</p><p><bold>Design </bold> Cross‐sectional survey.</p><p><bold>Participants </bold> Cohort of 266 surviving women diagnosed with breast cancer over a 25‐month period at a tertiary hospital, Adelaide, Australia. Time since diagnosis ranged from 6 to 30 months.</p><p><bold>Main outcome measures </bold> Need for, use of and satisfaction with information and support.</p><p><bold>Results </bold> Women reported high levels of need for information about a variety of issues following breast cancer treatment. Ninety‐four percentage reported a high level of need for information about one or more issues, particularly recognizing a recurrence, chances of cure and risk to family members of breast cancer. However, few women (2–32%) reported receiving such information. The most frequently used source of information was the surgeon followed by television, newspapers and books. The most frequently used source of support was family followed by friends and the surgeon. Few women (<7%) used formal support services or the Internet. Women were very satisfied with the information and support that they received from the surgeon and other health professionals but reported receiving decreasing amounts of information and support from them over time.</p><p><bold>Conclusions </bold> Women experience a high need for information about breast cancer related issues following primary treatment of breast cancer. These needs remain largely unmet as few women receive information about issues that concern them. The role of the surgeon and other health professionals is critical in narrowing the gap between needing and receiving information.</p></abstract><kwd-group><kwd id="k1">breast cancer</kwd><kwd id="k2">consumers</kwd><kwd id="k3">health care</kwd><kwd id="k4">information</kwd><kwd id="k5">support</kwd></kwd-group><counts><fig-count count="2"></fig-count><table-count count="6"></table-count><equation-count count="0"></equation-count><ref-count count="40"></ref-count><page-count count="13"></page-count><word-count count="7854"></word-count></counts><custom-meta-group><custom-meta><meta-name>source-schema-version-number</meta-name><meta-value>2.0</meta-value></custom-meta><custom-meta><meta-name>cover-date</meta-name><meta-value>December 2002</meta-value></custom-meta><custom-meta><meta-name>details-of-publishers-convertor</meta-name><meta-value>Converter:WILEY_ML3GV2_TO_NLMPMC version:5.0.0 mode:remove_FC converted:07.12.2016</meta-value></custom-meta></custom-meta-group></article-meta></front></pmc></record>Pour manipuler ce document sous Unix (Dilib)
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