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<title xml:lang="en">Impact of cancer on everyday life: a systematic appraisal of the research evidence</title>
<author>
<name sortKey="Okamoto, Ikumi" sort="Okamoto, Ikumi" uniqKey="Okamoto I" first="Ikumi" last="Okamoto">Ikumi Okamoto</name>
<affiliation>
<nlm:aff id="a1"></nlm:aff>
</affiliation>
</author>
<author>
<name sortKey="Wright, David" sort="Wright, David" uniqKey="Wright D" first="David" last="Wright">David Wright</name>
<affiliation>
<nlm:aff id="a2"></nlm:aff>
</affiliation>
</author>
<author>
<name sortKey="Foster, Claire" sort="Foster, Claire" uniqKey="Foster C" first="Claire" last="Foster">Claire Foster</name>
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<idno type="pmid">21332618</idno>
<idno type="pmc">5060604</idno>
<idno type="url">http://www.ncbi.nlm.nih.gov/pmc/articles/PMC5060604</idno>
<idno type="RBID">PMC:5060604</idno>
<idno type="doi">10.1111/j.1369-7625.2011.00662.x</idno>
<date when="2011">2011</date>
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<title xml:lang="en" level="a" type="main">Impact of cancer on everyday life: a systematic appraisal of the research evidence</title>
<author>
<name sortKey="Okamoto, Ikumi" sort="Okamoto, Ikumi" uniqKey="Okamoto I" first="Ikumi" last="Okamoto">Ikumi Okamoto</name>
<affiliation>
<nlm:aff id="a1"></nlm:aff>
</affiliation>
</author>
<author>
<name sortKey="Wright, David" sort="Wright, David" uniqKey="Wright D" first="David" last="Wright">David Wright</name>
<affiliation>
<nlm:aff id="a2"></nlm:aff>
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<author>
<name sortKey="Foster, Claire" sort="Foster, Claire" uniqKey="Foster C" first="Claire" last="Foster">Claire Foster</name>
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<nlm:aff id="a3"></nlm:aff>
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<title level="j">Health Expectations : An International Journal of Public Participation in Health Care and Health Policy</title>
<idno type="ISSN">1369-6513</idno>
<idno type="eISSN">1369-7625</idno>
<imprint>
<date when="2011">2011</date>
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<div type="abstract" xml:lang="en">
<title>Abstract</title>
<p>
<bold>Objective </bold>
To conduct a systematic appraisal of the published literature reviews related to the impact of cancer on everyday life. This theme was identified as the top priority area for research by participants in the Macmillan Listening Study, which was the first UK‐wide public consultation exercise to identify patients’ priorities for cancer research.</p>
<p>
<bold>Search strategy </bold>
The top priority area was divided into ten sub‐themes, and a modified systematic review was undertaken for each sub‐theme using electronic searches.</p>
<p>
<bold>Inclusion criteria </bold>
Literature review papers were included if they were written in English, involved patients diagnosed ≥18 years, any cancer types and published between 2000 and 2006.</p>
<p>
<bold>Data extraction and synthesis </bold>
Two thousand and two hundred and fifty‐two potentially eligible papers were identified. Abstracts were read by the first author and selected for inclusion in the review. Twenty percentages of the papers were also read independently by other authors. Sixty‐two review papers were finally selected.</p>
<p>
<bold>Main results </bold>
The systematic appraisal revealed that some sub‐themes of the patient‐identified priority area (e.g., how to support family members of cancer patients) were under‐researched, while other sub‐themes (e.g., anxiety and depression experienced by cancer patients) had been explored to some extent. Certain areas of research interest to patients were found to have been explored; however, their significance was limited by the quality of the research.</p>
<p>
<bold>Conclusion </bold>
The systematic appraisal highlights important areas for future research and the need for more effective dissemination of study findings to wider audiences, including service users. This study also indicates the need for further research to enhance the generalizability and/or significance of findings.</p>
</div>
</front>
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<pmc-comment>The publisher of this article does not allow downloading of the full text in XML form.</pmc-comment>
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<journal-id journal-id-type="nlm-ta">Health Expect</journal-id>
<journal-id journal-id-type="iso-abbrev">Health Expect</journal-id>
<journal-id journal-id-type="doi">10.1111/(ISSN)1369-7625</journal-id>
<journal-id journal-id-type="publisher-id">HEX</journal-id>
<journal-title-group>
<journal-title>Health Expectations : An International Journal of Public Participation in Health Care and Health Policy</journal-title>
</journal-title-group>
<issn pub-type="ppub">1369-6513</issn>
<issn pub-type="epub">1369-7625</issn>
<publisher>
<publisher-name>Blackwell Publishing Ltd</publisher-name>
<publisher-loc>Oxford, UK</publisher-loc>
</publisher>
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<article-id pub-id-type="pmid">21332618</article-id>
<article-id pub-id-type="pmc">5060604</article-id>
<article-id pub-id-type="doi">10.1111/j.1369-7625.2011.00662.x</article-id>
<article-id pub-id-type="publisher-id">HEX662</article-id>
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<subject>Review Article</subject>
</subj-group>
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<title-group>
<article-title>Impact of cancer on everyday life: a systematic appraisal of the research evidence</article-title>
<alt-title alt-title-type="left-running-head">I Okamoto, D Wright and C Foster</alt-title>
<alt-title alt-title-type="right-running-head">Impact of cancer on everyday life</alt-title>
</title-group>
<contrib-group>
<contrib id="cr1" contrib-type="author">
<name>
<surname>Okamoto</surname>
<given-names>Ikumi</given-names>
</name>
<degrees>PhD</degrees>
<xref ref-type="aff" rid="a1">
<sup>1</sup>
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<contrib id="cr2" contrib-type="author">
<name>
<surname>Wright</surname>
<given-names>David</given-names>
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<degrees>PhD</degrees>
<xref ref-type="aff" rid="a2">
<sup>2</sup>
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<contrib id="cr3" contrib-type="author">
<name>
<surname>Foster</surname>
<given-names>Claire</given-names>
</name>
<degrees>PhD CPsychol</degrees>
<xref ref-type="aff" rid="a3">
<sup>3</sup>
</xref>
</contrib>
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<aff id="a1">
<label>
<sup>1</sup>
</label>
Research Fellow, Macmillan Survivorship Research Group, Faculty of Health Sciences, University of Southampton, Highfield, Southampton</aff>
<aff id="a2">
<label>
<sup>2</sup>
</label>
Senior Research Fellow, International Health, NETSCC, External Relations, Alpha House, University of Southampton Science Park, Southampton</aff>
<aff id="a3">
<label>
<sup>3</sup>
</label>
Reader in Health Psychology and Head of Macmillan Survivorship Research Group, Macmillan Survivorship Research Group, Faculty of Health Sciences, University of Southampton, Highfield, Southampton, UK</aff>
<author-notes>
<corresp id="correspondenceTo">Ikumi Okamoto, PhD 
Research Fellow 
Macmillan Survivorship Research Group 
Faculty of Health Sciences 
University of Southampton 
Southampton SO17 1BJ 
UK 
E‐mail:
<email>io@soton.ac.uk</email>
</corresp>
</author-notes>
<pub-date pub-type="epub">
<day>18</day>
<month>2</month>
<year>2011</year>
</pub-date>
<pub-date pub-type="ppub">
<month>3</month>
<year>2012</year>
</pub-date>
<volume>15</volume>
<issue>1</issue>
<issue-id pub-id-type="doi">10.1111/hex.2012.15.issue-1</issue-id>
<fpage>97</fpage>
<lpage>111</lpage>
<history>
<bold>Accepted for publication</bold>
30 December 2010</history>
<permissions>
<copyright-statement content-type="article-copyright">© 2011 Blackwell Publishing Ltd</copyright-statement>
</permissions>
<self-uri content-type="pdf" xlink:type="simple" xlink:href="file:HEX-15-97.pdf"></self-uri>
<abstract>
<title>Abstract</title>
<p>
<bold>Objective </bold>
To conduct a systematic appraisal of the published literature reviews related to the impact of cancer on everyday life. This theme was identified as the top priority area for research by participants in the Macmillan Listening Study, which was the first UK‐wide public consultation exercise to identify patients’ priorities for cancer research.</p>
<p>
<bold>Search strategy </bold>
The top priority area was divided into ten sub‐themes, and a modified systematic review was undertaken for each sub‐theme using electronic searches.</p>
<p>
<bold>Inclusion criteria </bold>
Literature review papers were included if they were written in English, involved patients diagnosed ≥18 years, any cancer types and published between 2000 and 2006.</p>
<p>
<bold>Data extraction and synthesis </bold>
Two thousand and two hundred and fifty‐two potentially eligible papers were identified. Abstracts were read by the first author and selected for inclusion in the review. Twenty percentages of the papers were also read independently by other authors. Sixty‐two review papers were finally selected.</p>
<p>
<bold>Main results </bold>
The systematic appraisal revealed that some sub‐themes of the patient‐identified priority area (e.g., how to support family members of cancer patients) were under‐researched, while other sub‐themes (e.g., anxiety and depression experienced by cancer patients) had been explored to some extent. Certain areas of research interest to patients were found to have been explored; however, their significance was limited by the quality of the research.</p>
<p>
<bold>Conclusion </bold>
The systematic appraisal highlights important areas for future research and the need for more effective dissemination of study findings to wider audiences, including service users. This study also indicates the need for further research to enhance the generalizability and/or significance of findings.</p>
</abstract>
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