Lymphedema in Canada: a qualitative study to help develop a clinical, research, and education strategy
Identifieur interne : 002E77 ( Pmc/Checkpoint ); précédent : 002E76; suivant : 002E78Lymphedema in Canada: a qualitative study to help develop a clinical, research, and education strategy
Auteurs : P. Hodgson ; A. Towers [Canada] ; D. H. Keast ; A. Kennedy ; R. Pritzker ; J. AllenSource :
- Current Oncology [ 1198-0052 ] ; 2011.
Abstract
The aim of this study was to gather data from Canadian stakeholders to help construct a national strategy and agenda for lymphedema management.
The Canadian Lymphedema Framework, a collaboration of medical academics, lymphedema therapists, patient advocates, and others, used participatory action research and Open Space Technology to identify issues and build consensus at a national meeting of lymphedema stakeholders. Proceedings were videotaped and underwent content analysis. Existing Canadian documentation on lymphedema services was analyzed. Using those data sources, the Canadian Lymphedema Framework drafted a development strategy.
Of 320 invited stakeholders (patients, therapists, physicians, industry representatives, and health policymakers), 108 participated in a day-long videotaped meeting discussing strategies to improve the management of lymphedema and related disorders in Canada. Participants identified barriers, challenges, and issues related to the need to raise awareness about lymphedema with patients, physicians, and the public. Five priority areas for development were articulated: education, standards, research, reimbursement and access to treatment, and advocacy. The main barrier to development was identified as the lack of clear responsibility within the health care system for lymphedema care.
Data from stakeholders was obtained to solidly define priority areas for lymphedema development at a national level. The Canadian Lymphedema Framework has created a working plan, an advisory board, and working groups to implement the strategy.
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PubMed: 22184493
PubMed Central: 3224034
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Towers</name><affiliation wicri:level="4"><nlm:aff id="af2-conc-18-e260">Department of Oncology, McGill University, Montreal, QC</nlm:aff><orgName type="university">Université McGill</orgName><country>Canada</country><placeName><settlement type="city">Montréal</settlement><region type="state">Québec</region></placeName></affiliation></author><author><name sortKey="Keast, D H" sort="Keast, D H" uniqKey="Keast D" first="D. H." last="Keast">D. H. Keast</name><affiliation><nlm:aff id="af3-conc-18-e260">Aging Rehabilitation and Geriatric Care Research Centre, Lawson Health Research Institute, London, ON</nlm:aff><wicri:noCountry code="subfield">ON</wicri:noCountry></affiliation></author><author><name sortKey="Kennedy, A" sort="Kennedy, A" uniqKey="Kennedy A" first="A." last="Kennedy">A. Kennedy</name><affiliation><nlm:aff id="af4-conc-18-e260">The Lymphedema Association of Ontario, Toronto, ON</nlm:aff><wicri:noCountry code="subfield">ON</wicri:noCountry></affiliation></author><author><name sortKey="Pritzker, R" sort="Pritzker, R" uniqKey="Pritzker R" first="R." last="Pritzker">R. Pritzker</name><affiliation><nlm:aff id="af5-conc-18-e260">Lymphedema Association of Quebec, Montreal, QC</nlm:aff><wicri:noCountry code="subfield">QC</wicri:noCountry></affiliation></author><author><name sortKey="Allen, J" sort="Allen, J" uniqKey="Allen J" first="J." last="Allen">J. Allen</name><affiliation><nlm:aff id="af6-conc-18-e260">3M Canada, Medical Division, London, ON</nlm:aff><wicri:noCountry code="subfield">ON</wicri:noCountry></affiliation></author></titleStmt><publicationStmt><idno type="wicri:source">PMC</idno><idno type="pmid">22184493</idno><idno type="pmc">3224034</idno><idno type="url">http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3224034</idno><idno type="RBID">PMC:3224034</idno><date when="2011">2011</date><idno type="wicri:Area/Pmc/Corpus">002D80</idno><idno type="wicri:explorRef" wicri:stream="Pmc" wicri:step="Corpus" wicri:corpus="PMC">002D80</idno><idno type="wicri:Area/Pmc/Curation">002D79</idno><idno type="wicri:explorRef" wicri:stream="Pmc" wicri:step="Curation">002D79</idno><idno type="wicri:Area/Pmc/Checkpoint">002E77</idno><idno type="wicri:explorRef" wicri:stream="Pmc" wicri:step="Checkpoint">002E77</idno></publicationStmt><sourceDesc><biblStruct><analytic><title xml:lang="en" level="a" type="main">Lymphedema in Canada: a qualitative study to help develop a clinical, research, and education strategy</title><author><name sortKey="Hodgson, P" sort="Hodgson, P" uniqKey="Hodgson P" first="P." last="Hodgson">P. Hodgson</name><affiliation><nlm:aff id="af1-conc-18-e260">Lymphedema Program, McGill University Health Centre, Montreal, QC</nlm:aff><wicri:noCountry code="subfield">QC</wicri:noCountry></affiliation></author><author><name sortKey="Towers, A" sort="Towers, A" uniqKey="Towers A" first="A." last="Towers">A. Towers</name><affiliation wicri:level="4"><nlm:aff id="af2-conc-18-e260">Department of Oncology, McGill University, Montreal, QC</nlm:aff><orgName type="university">Université McGill</orgName><country>Canada</country><placeName><settlement type="city">Montréal</settlement><region type="state">Québec</region></placeName></affiliation></author><author><name sortKey="Keast, D H" sort="Keast, D H" uniqKey="Keast D" first="D. H." last="Keast">D. H. Keast</name><affiliation><nlm:aff id="af3-conc-18-e260">Aging Rehabilitation and Geriatric Care Research Centre, Lawson Health Research Institute, London, ON</nlm:aff><wicri:noCountry code="subfield">ON</wicri:noCountry></affiliation></author><author><name sortKey="Kennedy, A" sort="Kennedy, A" uniqKey="Kennedy A" first="A." last="Kennedy">A. Kennedy</name><affiliation><nlm:aff id="af4-conc-18-e260">The Lymphedema Association of Ontario, Toronto, ON</nlm:aff><wicri:noCountry code="subfield">ON</wicri:noCountry></affiliation></author><author><name sortKey="Pritzker, R" sort="Pritzker, R" uniqKey="Pritzker R" first="R." last="Pritzker">R. Pritzker</name><affiliation><nlm:aff id="af5-conc-18-e260">Lymphedema Association of Quebec, Montreal, QC</nlm:aff><wicri:noCountry code="subfield">QC</wicri:noCountry></affiliation></author><author><name sortKey="Allen, J" sort="Allen, J" uniqKey="Allen J" first="J." last="Allen">J. Allen</name><affiliation><nlm:aff id="af6-conc-18-e260">3M Canada, Medical Division, London, ON</nlm:aff><wicri:noCountry code="subfield">ON</wicri:noCountry></affiliation></author></analytic><series><title level="j">Current Oncology</title><idno type="ISSN">1198-0052</idno><idno type="eISSN">1718-7729</idno><imprint><date when="2011">2011</date></imprint></series></biblStruct></sourceDesc></fileDesc><profileDesc><textClass></textClass></profileDesc></teiHeader><front><div type="abstract" xml:lang="en"><sec><title>Objective</title><p>The aim of this study was to gather data from Canadian stakeholders to help construct a national strategy and agenda for lymphedema management.</p></sec><sec><title>Methods</title><p>The Canadian Lymphedema Framework, a collaboration of medical academics, lymphedema therapists, patient advocates, and others, used participatory action research and Open Space Technology to identify issues and build consensus at a national meeting of lymphedema stakeholders. Proceedings were videotaped and underwent content analysis. Existing Canadian documentation on lymphedema services was analyzed. Using those data sources, the Canadian Lymphedema Framework drafted a development strategy.</p></sec><sec><title>Results</title><p>Of 320 invited stakeholders (patients, therapists, physicians, industry representatives, and health policymakers), 108 participated in a day-long videotaped meeting discussing strategies to improve the management of lymphedema and related disorders in Canada. Participants identified barriers, challenges, and issues related to the need to raise awareness about lymphedema with patients, physicians, and the public. Five priority areas for development were articulated: education, standards, research, reimbursement and access to treatment, and advocacy. The main barrier to development was identified as the lack of clear responsibility within the health care system for lymphedema care.</p></sec><sec><title>Conclusions</title><p>Data from stakeholders was obtained to solidly define priority areas for lymphedema development at a national level. The Canadian Lymphedema Framework has created a working plan, an advisory board, and working groups to implement the strategy.</p></sec></div></front></TEI><pmc article-type="research-article"><pmc-comment>The publisher of this article does not allow downloading of the full text in XML form.</pmc-comment>
<front><journal-meta><journal-id journal-id-type="nlm-ta">Curr Oncol</journal-id><journal-id journal-id-type="publisher-id">CO</journal-id><journal-title-group><journal-title>Current Oncology</journal-title></journal-title-group><issn pub-type="ppub">1198-0052</issn><issn pub-type="epub">1718-7729</issn><publisher><publisher-name>Multimed Inc.</publisher-name><publisher-loc>66 Martin St. Milton, ON, Canada L9T 2R2</publisher-loc></publisher></journal-meta><article-meta><article-id pub-id-type="pmid">22184493</article-id><article-id pub-id-type="pmc">3224034</article-id><article-id pub-id-type="publisher-id">conc-18-e260</article-id><article-categories><subj-group subj-group-type="heading"><subject>Cancer Rehabilitation and Survivorship</subject></subj-group></article-categories><title-group><article-title>Lymphedema in Canada: a qualitative study to help develop a clinical, research, and education strategy</article-title></title-group><contrib-group><contrib contrib-type="author"><name><surname>Hodgson</surname><given-names>P.</given-names></name><degrees>MSc</degrees><xref ref-type="aff" rid="af1-conc-18-e260">*</xref><xref ref-type="corresp" rid="c1-conc-18-e260"></xref></contrib><contrib contrib-type="author"><name><surname>Towers</surname><given-names>A.</given-names></name><degrees>MD</degrees><xref ref-type="aff" rid="af2-conc-18-e260">†</xref></contrib><contrib contrib-type="author"><name><surname>Keast</surname><given-names>D.H.</given-names></name><degrees>MSc MD</degrees><xref ref-type="aff" rid="af3-conc-18-e260">‡</xref></contrib><contrib contrib-type="author"><name><surname>Kennedy</surname><given-names>A.</given-names></name><xref ref-type="aff" rid="af4-conc-18-e260">§</xref></contrib><contrib contrib-type="author"><name><surname>Pritzker</surname><given-names>R.</given-names></name><xref ref-type="aff" rid="af5-conc-18-e260">||</xref></contrib><contrib contrib-type="author"><name><surname>Allen</surname><given-names>J.</given-names></name><degrees>MClSc RN</degrees><xref ref-type="aff" rid="af6-conc-18-e260">#</xref></contrib></contrib-group><aff id="af1-conc-18-e260"><label>*</label>Lymphedema Program, McGill University Health Centre, Montreal, QC</aff><aff id="af2-conc-18-e260"><label>†</label>Department of Oncology, McGill University, Montreal, QC</aff><aff id="af3-conc-18-e260"><label>‡</label>Aging Rehabilitation and Geriatric Care Research Centre, Lawson Health Research Institute, London, ON</aff><aff id="af4-conc-18-e260"><label>§</label>The Lymphedema Association of Ontario, Toronto, ON</aff><aff id="af5-conc-18-e260"><label>||</label>Lymphedema Association of Quebec, Montreal, QC</aff><aff id="af6-conc-18-e260"><label>#</label>3M Canada, Medical Division, London, ON</aff><author-notes><corresp id="c1-conc-18-e260">Correspondence to: Pamela Hodgson, Montreal General Hospital, L10 221.3, 1650 Cedar Avenue, Montreal, Quebec H3G 1A4. E-mail: <email>pamela.hodgson@mcgill.ca</email></corresp></author-notes><pub-date pub-type="ppub"><month>12</month><year>2011</year></pub-date><volume>18</volume><issue>6</issue><fpage>e260</fpage><lpage>e264</lpage><permissions><copyright-statement>2011 Multimed Inc.</copyright-statement><copyright-year>2011</copyright-year></permissions><abstract><sec><title>Objective</title><p>The aim of this study was to gather data from Canadian stakeholders to help construct a national strategy and agenda for lymphedema management.</p></sec><sec><title>Methods</title><p>The Canadian Lymphedema Framework, a collaboration of medical academics, lymphedema therapists, patient advocates, and others, used participatory action research and Open Space Technology to identify issues and build consensus at a national meeting of lymphedema stakeholders. Proceedings were videotaped and underwent content analysis. Existing Canadian documentation on lymphedema services was analyzed. Using those data sources, the Canadian Lymphedema Framework drafted a development strategy.</p></sec><sec><title>Results</title><p>Of 320 invited stakeholders (patients, therapists, physicians, industry representatives, and health policymakers), 108 participated in a day-long videotaped meeting discussing strategies to improve the management of lymphedema and related disorders in Canada. Participants identified barriers, challenges, and issues related to the need to raise awareness about lymphedema with patients, physicians, and the public. Five priority areas for development were articulated: education, standards, research, reimbursement and access to treatment, and advocacy. The main barrier to development was identified as the lack of clear responsibility within the health care system for lymphedema care.</p></sec><sec><title>Conclusions</title><p>Data from stakeholders was obtained to solidly define priority areas for lymphedema development at a national level. The Canadian Lymphedema Framework has created a working plan, an advisory board, and working groups to implement the strategy.</p></sec></abstract><kwd-group><kwd>Lymphedema</kwd><kwd>cancer rehabilitation</kwd><kwd>qualitative study</kwd><kwd>health policy</kwd><kwd>health education</kwd></kwd-group></article-meta></front></pmc><affiliations><list><country><li>Canada</li></country><region><li>Québec</li></region><settlement><li>Montréal</li></settlement><orgName><li>Université McGill</li></orgName></list><tree><noCountry><name sortKey="Allen, J" sort="Allen, J" uniqKey="Allen J" first="J." last="Allen">J. Allen</name><name sortKey="Hodgson, P" sort="Hodgson, P" uniqKey="Hodgson P" first="P." last="Hodgson">P. Hodgson</name><name sortKey="Keast, D H" sort="Keast, D H" uniqKey="Keast D" first="D. H." last="Keast">D. H. Keast</name><name sortKey="Kennedy, A" sort="Kennedy, A" uniqKey="Kennedy A" first="A." last="Kennedy">A. Kennedy</name><name sortKey="Pritzker, R" sort="Pritzker, R" uniqKey="Pritzker R" first="R." last="Pritzker">R. Pritzker</name></noCountry><country name="Canada"><region name="Québec"><name sortKey="Towers, A" sort="Towers, A" uniqKey="Towers A" first="A." last="Towers">A. Towers</name></region></country></tree></affiliations></record>Pour manipuler ce document sous Unix (Dilib)
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