Standard versus prosocial online support groups for distressed breast cancer survivors: a randomized controlled trial
Identifieur interne : 002D29 ( Pmc/Checkpoint ); précédent : 002D28; suivant : 002D30Standard versus prosocial online support groups for distressed breast cancer survivors: a randomized controlled trial
Auteurs : Stephen J. Lepore [États-Unis] ; Joanne S. Buzaglo [États-Unis] ; Morton A. Lieberman [États-Unis] ; Mitch Golant [États-Unis] ; Adam Davey [États-Unis]Source :
- BMC Cancer [ 1471-2407 ] ; 2011.
Abstract
The Internet can increase access to psychosocial care for breast cancer survivors through online support groups. This study will test a novel prosocial online group that emphasizes both opportunities for getting and giving help. Based on the helper therapy principle, it is hypothesized that the addition of structured helping opportunities and coaching on how to help others online will increase the psychological benefits of a standard online group.
A two-armed randomized controlled trial with pretest and posttest. Non-metastatic breast cancer survivors with elevated psychological distress will be randomized to either a standard facilitated online group or to a prosocial facilitated online group, which combines online exchanges of support with structured helping opportunities (blogging, breast cancer outreach) and coaching on how best to give support to others. Validated and reliable measures will be administered to women approximately one month before and after the interventions. Self-esteem, positive affect, and sense of belonging will be tested as potential mediators of the primary outcomes of depressive/anxious symptoms and sense of purpose in life.
This study will test an innovative approach to maximizing the psychological benefits of cancer online support groups. The theory-based prosocial online support group intervention model is sustainable, because it can be implemented by private non-profit or other organizations, such as cancer centers, which mostly offer face-to-face support groups with limited patient reach.
ClinicalTrials.gov:
Url:
DOI: 10.1186/1471-2407-11-379
PubMed: 21867502
PubMed Central: 3201039
Affiliations:
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PMC:3201039Le document en format XML
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Buzaglo</name><affiliation wicri:level="1"><nlm:aff id="I2">Cancer Support Community, Research & Training Institute, 4100 Chamounix Drive, Philadelphia, PA, 19131, USA</nlm:aff><country xml:lang="fr">États-Unis</country><wicri:regionArea>Cancer Support Community, Research & Training Institute, 4100 Chamounix Drive, Philadelphia, PA, 19131</wicri:regionArea><wicri:noRegion>19131</wicri:noRegion></affiliation></author><author><name sortKey="Lieberman, Morton A" sort="Lieberman, Morton A" uniqKey="Lieberman M" first="Morton A" last="Lieberman">Morton A. Lieberman</name><affiliation wicri:level="1"><nlm:aff id="I3">University of California San Francisco, 1104 Western Ave, Mill Valley, Ca. 94941, USA</nlm:aff><country xml:lang="fr">États-Unis</country><wicri:regionArea>University of California San Francisco, 1104 Western Ave, Mill Valley, Ca. 94941</wicri:regionArea><wicri:noRegion>Ca. 94941</wicri:noRegion></affiliation></author><author><name sortKey="Golant, Mitch" sort="Golant, Mitch" uniqKey="Golant M" first="Mitch" last="Golant">Mitch Golant</name><affiliation wicri:level="1"><nlm:aff id="I2">Cancer Support Community, Research & Training Institute, 4100 Chamounix Drive, Philadelphia, PA, 19131, USA</nlm:aff><country xml:lang="fr">États-Unis</country><wicri:regionArea>Cancer Support Community, Research & Training Institute, 4100 Chamounix Drive, Philadelphia, PA, 19131</wicri:regionArea><wicri:noRegion>19131</wicri:noRegion></affiliation></author><author><name sortKey="Davey, Adam" sort="Davey, Adam" uniqKey="Davey A" first="Adam" last="Davey">Adam Davey</name><affiliation wicri:level="1"><nlm:aff id="I1">Temple University, Department of Public Health, 1301 Cecil B. Moore Ave., 9th Floor Ritter Annex, Philadelphia, PA, 19122, USA</nlm:aff><country xml:lang="fr">États-Unis</country><wicri:regionArea>Temple University, Department of Public Health, 1301 Cecil B. Moore Ave., 9th Floor Ritter Annex, Philadelphia, PA, 19122</wicri:regionArea><wicri:noRegion>19122</wicri:noRegion></affiliation></author></titleStmt><publicationStmt><idno type="wicri:source">PMC</idno><idno type="pmid">21867502</idno><idno type="pmc">3201039</idno><idno type="url">http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3201039</idno><idno type="RBID">PMC:3201039</idno><idno type="doi">10.1186/1471-2407-11-379</idno><date when="2011">2011</date><idno type="wicri:Area/Pmc/Corpus">003B60</idno><idno type="wicri:explorRef" wicri:stream="Pmc" wicri:step="Corpus" wicri:corpus="PMC">003B60</idno><idno type="wicri:Area/Pmc/Curation">003B59</idno><idno type="wicri:explorRef" wicri:stream="Pmc" wicri:step="Curation">003B59</idno><idno type="wicri:Area/Pmc/Checkpoint">002D29</idno><idno type="wicri:explorRef" wicri:stream="Pmc" wicri:step="Checkpoint">002D29</idno></publicationStmt><sourceDesc><biblStruct><analytic><title xml:lang="en" level="a" type="main">Standard versus prosocial online support groups for distressed breast cancer survivors: a randomized controlled trial</title><author><name sortKey="Lepore, Stephen J" sort="Lepore, Stephen J" uniqKey="Lepore S" first="Stephen J" last="Lepore">Stephen J. Lepore</name><affiliation wicri:level="1"><nlm:aff id="I1">Temple University, Department of Public Health, 1301 Cecil B. Moore Ave., 9th Floor Ritter Annex, Philadelphia, PA, 19122, USA</nlm:aff><country xml:lang="fr">États-Unis</country><wicri:regionArea>Temple University, Department of Public Health, 1301 Cecil B. Moore Ave., 9th Floor Ritter Annex, Philadelphia, PA, 19122</wicri:regionArea><wicri:noRegion>19122</wicri:noRegion></affiliation></author><author><name sortKey="Buzaglo, Joanne S" sort="Buzaglo, Joanne S" uniqKey="Buzaglo J" first="Joanne S" last="Buzaglo">Joanne S. Buzaglo</name><affiliation wicri:level="1"><nlm:aff id="I2">Cancer Support Community, Research & Training Institute, 4100 Chamounix Drive, Philadelphia, PA, 19131, USA</nlm:aff><country xml:lang="fr">États-Unis</country><wicri:regionArea>Cancer Support Community, Research & Training Institute, 4100 Chamounix Drive, Philadelphia, PA, 19131</wicri:regionArea><wicri:noRegion>19131</wicri:noRegion></affiliation></author><author><name sortKey="Lieberman, Morton A" sort="Lieberman, Morton A" uniqKey="Lieberman M" first="Morton A" last="Lieberman">Morton A. Lieberman</name><affiliation wicri:level="1"><nlm:aff id="I3">University of California San Francisco, 1104 Western Ave, Mill Valley, Ca. 94941, USA</nlm:aff><country xml:lang="fr">États-Unis</country><wicri:regionArea>University of California San Francisco, 1104 Western Ave, Mill Valley, Ca. 94941</wicri:regionArea><wicri:noRegion>Ca. 94941</wicri:noRegion></affiliation></author><author><name sortKey="Golant, Mitch" sort="Golant, Mitch" uniqKey="Golant M" first="Mitch" last="Golant">Mitch Golant</name><affiliation wicri:level="1"><nlm:aff id="I2">Cancer Support Community, Research & Training Institute, 4100 Chamounix Drive, Philadelphia, PA, 19131, USA</nlm:aff><country xml:lang="fr">États-Unis</country><wicri:regionArea>Cancer Support Community, Research & Training Institute, 4100 Chamounix Drive, Philadelphia, PA, 19131</wicri:regionArea><wicri:noRegion>19131</wicri:noRegion></affiliation></author><author><name sortKey="Davey, Adam" sort="Davey, Adam" uniqKey="Davey A" first="Adam" last="Davey">Adam Davey</name><affiliation wicri:level="1"><nlm:aff id="I1">Temple University, Department of Public Health, 1301 Cecil B. Moore Ave., 9th Floor Ritter Annex, Philadelphia, PA, 19122, USA</nlm:aff><country xml:lang="fr">États-Unis</country><wicri:regionArea>Temple University, Department of Public Health, 1301 Cecil B. Moore Ave., 9th Floor Ritter Annex, Philadelphia, PA, 19122</wicri:regionArea><wicri:noRegion>19122</wicri:noRegion></affiliation></author></analytic><series><title level="j">BMC Cancer</title><idno type="eISSN">1471-2407</idno><imprint><date when="2011">2011</date></imprint></series></biblStruct></sourceDesc></fileDesc><profileDesc><textClass></textClass></profileDesc></teiHeader><front><div type="abstract" xml:lang="en"><sec><title>Background</title><p>The Internet can increase access to psychosocial care for breast cancer survivors through online support groups. This study will test a novel prosocial online group that emphasizes both opportunities for getting and giving help. Based on the helper therapy principle, it is hypothesized that the addition of structured helping opportunities and coaching on how to help others online will increase the psychological benefits of a standard online group.</p></sec><sec><title>Methods/Design</title><p>A two-armed randomized controlled trial with pretest and posttest. Non-metastatic breast cancer survivors with elevated psychological distress will be randomized to either a standard facilitated online group or to a prosocial facilitated online group, which combines online exchanges of support with structured helping opportunities (blogging, breast cancer outreach) and coaching on how best to give support to others. Validated and reliable measures will be administered to women approximately one month before and after the interventions. Self-esteem, positive affect, and sense of belonging will be tested as potential mediators of the primary outcomes of depressive/anxious symptoms and sense of purpose in life.</p></sec><sec><title>Discussion</title><p>This study will test an innovative approach to maximizing the psychological benefits of cancer online support groups. The theory-based prosocial online support group intervention model is sustainable, because it can be implemented by private non-profit or other organizations, such as cancer centers, which mostly offer face-to-face support groups with limited patient reach.</p></sec><sec><title>Trial Registration</title><p>ClinicalTrials.gov: <ext-link ext-link-type="uri" xlink:href="http://www.clinicaltrials.gov/ct2/show/NCT01396174">NCT01396174</ext-link></p></sec></div></front><back><div1 type="bibliography"><listBibl><biblStruct><analytic><author><name sortKey="Helgeson, Vs" uniqKey="Helgeson V">VS Helgeson</name></author><author><name sortKey="Cohen, S" uniqKey="Cohen S">S Cohen</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Peters Golden, H" uniqKey="Peters Golden H">H Peters-Golden</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Winzelberg, Aj" uniqKey="Winzelberg A">AJ Winzelberg</name></author><author><name 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<front><journal-meta><journal-id journal-id-type="nlm-ta">BMC Cancer</journal-id><journal-title-group><journal-title>BMC Cancer</journal-title></journal-title-group><issn pub-type="epub">1471-2407</issn><publisher><publisher-name>BioMed Central</publisher-name></publisher></journal-meta><article-meta><article-id pub-id-type="pmid">21867502</article-id><article-id pub-id-type="pmc">3201039</article-id><article-id pub-id-type="publisher-id">1471-2407-11-379</article-id><article-id pub-id-type="doi">10.1186/1471-2407-11-379</article-id><article-categories><subj-group subj-group-type="heading"><subject>Study Protocol</subject></subj-group></article-categories><title-group><article-title>Standard versus prosocial online support groups for distressed breast cancer survivors: a randomized controlled trial</article-title></title-group><contrib-group><contrib contrib-type="author" corresp="yes" id="A1"><name><surname>Lepore</surname><given-names>Stephen J</given-names></name><xref ref-type="aff" rid="I1">1</xref><email>slepore@temple.edu</email></contrib><contrib contrib-type="author" id="A2"><name><surname>Buzaglo</surname><given-names>Joanne S</given-names></name><xref ref-type="aff" rid="I2">2</xref><email>joanne@cancersupportcommunity.org</email></contrib><contrib contrib-type="author" id="A3"><name><surname>Lieberman</surname><given-names>Morton A</given-names></name><xref ref-type="aff" rid="I3">3</xref><email>Morton.Lieberman@ucsf.edu</email></contrib><contrib contrib-type="author" id="A4"><name><surname>Golant</surname><given-names>Mitch</given-names></name><xref ref-type="aff" rid="I2">2</xref><email>mitch@cancersupportcommunity.org</email></contrib><contrib contrib-type="author" id="A5"><name><surname>Davey</surname><given-names>Adam</given-names></name><xref ref-type="aff" rid="I1">1</xref><email>adavey@temple.edu</email></contrib></contrib-group><aff id="I1"><label>1</label>Temple University, Department of Public Health, 1301 Cecil B. Moore Ave., 9th Floor Ritter Annex, Philadelphia, PA, 19122, USA</aff><aff id="I2"><label>2</label>Cancer Support Community, Research & Training Institute, 4100 Chamounix Drive, Philadelphia, PA, 19131, USA</aff><aff id="I3"><label>3</label>University of California San Francisco, 1104 Western Ave, Mill Valley, Ca. 94941, USA</aff><pub-date pub-type="collection"><year>2011</year></pub-date><pub-date pub-type="epub"><day>25</day><month>8</month><year>2011</year></pub-date><volume>11</volume><fpage>379</fpage><lpage>379</lpage><history><date date-type="received"><day>16</day><month>8</month><year>2011</year></date><date date-type="accepted"><day>25</day><month>8</month><year>2011</year></date></history><permissions><copyright-statement>Copyright ©2011 Lepore et al; licensee BioMed Central Ltd.</copyright-statement><copyright-year>2011</copyright-year><copyright-holder>Lepore et al; licensee BioMed Central Ltd.</copyright-holder><license license-type="open-access" xlink:href="http://creativecommons.org/licenses/by/2.0"><license-p>This is an Open Access article distributed under the terms of the Creative Commons Attribution License (<ext-link ext-link-type="uri" xlink:href="http://creativecommons.org/licenses/by/2.0">http://creativecommons.org/licenses/by/2.0</ext-link>), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.</license-p></license></permissions><self-uri xlink:href="http://www.biomedcentral.com/1471-2407/11/379"></self-uri><abstract><sec><title>Background</title><p>The Internet can increase access to psychosocial care for breast cancer survivors through online support groups. This study will test a novel prosocial online group that emphasizes both opportunities for getting and giving help. Based on the helper therapy principle, it is hypothesized that the addition of structured helping opportunities and coaching on how to help others online will increase the psychological benefits of a standard online group.</p></sec><sec><title>Methods/Design</title><p>A two-armed randomized controlled trial with pretest and posttest. Non-metastatic breast cancer survivors with elevated psychological distress will be randomized to either a standard facilitated online group or to a prosocial facilitated online group, which combines online exchanges of support with structured helping opportunities (blogging, breast cancer outreach) and coaching on how best to give support to others. Validated and reliable measures will be administered to women approximately one month before and after the interventions. Self-esteem, positive affect, and sense of belonging will be tested as potential mediators of the primary outcomes of depressive/anxious symptoms and sense of purpose in life.</p></sec><sec><title>Discussion</title><p>This study will test an innovative approach to maximizing the psychological benefits of cancer online support groups. The theory-based prosocial online support group intervention model is sustainable, because it can be implemented by private non-profit or other organizations, such as cancer centers, which mostly offer face-to-face support groups with limited patient reach.</p></sec><sec><title>Trial Registration</title><p>ClinicalTrials.gov: <ext-link ext-link-type="uri" xlink:href="http://www.clinicaltrials.gov/ct2/show/NCT01396174">NCT01396174</ext-link></p></sec></abstract></article-meta></front></pmc><affiliations><list><country><li>États-Unis</li></country></list><tree><country name="États-Unis"><noRegion><name sortKey="Lepore, Stephen J" sort="Lepore, Stephen J" uniqKey="Lepore S" first="Stephen J" last="Lepore">Stephen J. Lepore</name></noRegion><name sortKey="Buzaglo, Joanne S" sort="Buzaglo, Joanne S" uniqKey="Buzaglo J" first="Joanne S" last="Buzaglo">Joanne S. Buzaglo</name><name sortKey="Davey, Adam" sort="Davey, Adam" uniqKey="Davey A" first="Adam" last="Davey">Adam Davey</name><name sortKey="Golant, Mitch" sort="Golant, Mitch" uniqKey="Golant M" first="Mitch" last="Golant">Mitch Golant</name><name sortKey="Lieberman, Morton A" sort="Lieberman, Morton A" uniqKey="Lieberman M" first="Morton A" last="Lieberman">Morton A. Lieberman</name></country></tree></affiliations></record>Pour manipuler ce document sous Unix (Dilib)
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