Primary lower limb lymphedema: a focus on its functional, social and emotional impact
Identifieur interne : 003F10 ( Ncbi/Merge ); précédent : 003F09; suivant : 003F11Primary lower limb lymphedema: a focus on its functional, social and emotional impact
Auteurs : Emmanouil K. Symvoulakis ; Dimitrios I. Anyfantakis ; Christos LionisSource :
- International Journal of Medical Sciences [ 1449-1907 ] ; 2010.
Descripteurs français
- KwdFr :
- MESH :
- diagnostic : Lymphoedème.
- physiopathologie : Lymphoedème.
- psychologie : Lymphoedème.
- Adulte, Adulte d'âge moyen, Femelle, Humains, Mâle, Qualité de vie.
English descriptors
- KwdEn :
- MESH :
- diagnosis : Lymphedema.
- physiopathology : Lymphedema.
- psychology : Lymphedema.
- Adult, Female, Humans, Male, Middle Aged, Quality of Life.
Abstract
Primary lymphedema is a rare, chronic and distressing condition with negative effects on physical, social and emotional level. The purpose of these reports was to present and discuss two different cases of primary lower limb lymphedema with a focus on its physical and mental impact and on some qualitative aspects of patients' self-reported experiences. The patients were recruited as they used occasional services within the University Hospital of Heraklion (Crete, Greece). The functional and mental impact of primary lymphedema was measured using the generic Medical Outcome Study short form-36 questionnaire and open-ended questions led to give more emphasis to patients' experiences. The analysis of short form-36 results in the first patient disclosed a significant functional impairment with a minor impact of the condition on emotional and social domains. For the second patient quality of life scores in the emotional and social domains were affected. Our findings support further the statement that physicians should pay full attention to appraise the patient's physical and emotional condition. General practitioners have the opportunity to monitor the long-term impact of chronic disorders. Posing simple open-ended questions and assessing the level of physical and mental deficits in terms of well-being through the use of specific metric tools can effectively follow-up rare conditions in the community.
Url:
PubMed: 20975845
PubMed Central: 2962263
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The purpose of these reports was to present and discuss two different cases of primary lower limb lymphedema with a focus on its physical and mental impact and on some qualitative aspects of patients' self-reported experiences. The patients were recruited as they used occasional services within the University Hospital of Heraklion (Crete, Greece). The functional and mental impact of primary lymphedema was measured using the generic Medical Outcome Study short form-36 questionnaire and open-ended questions led to give more emphasis to patients' experiences. The analysis of short form-36 results in the first patient disclosed a significant functional impairment with a minor impact of the condition on emotional and social domains. For the second patient quality of life scores in the emotional and social domains were affected. Our findings support further the statement that physicians should pay full attention to appraise the patient's physical and emotional condition. General practitioners have the opportunity to monitor the long-term impact of chronic disorders. Posing simple open-ended questions and assessing the level of physical and mental deficits in terms of well-being through the use of specific metric tools can effectively follow-up rare conditions in the community.</p></div></front><back><div1 type="bibliography"><listBibl><biblStruct><analytic><author><name sortKey="Rockson, Sg" uniqKey="Rockson S">SG Rockson</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Tiwari, A" uniqKey="Tiwari A">A Tiwari</name></author><author><name sortKey="Cheng, Ks" uniqKey="Cheng K">KS Cheng</name></author><author><name sortKey="Button, M" uniqKey="Button M">M Button</name></author><author><name sortKey="Myint, F" uniqKey="Myint F">F Myint</name></author><author><name sortKey="Hamilton, G" uniqKey="Hamilton G">G Hamilton</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Smeltzer, Dm" uniqKey="Smeltzer D">DM Smeltzer</name></author><author><name sortKey="Stickler, Gb" uniqKey="Stickler 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Symvoulakis</name></author><author><name sortKey="Anyfantakis, Dimitrios I" sort="Anyfantakis, Dimitrios I" uniqKey="Anyfantakis D" first="Dimitrios I" last="Anyfantakis">Dimitrios I. Anyfantakis</name></author><author><name sortKey="Lionis, Christos" sort="Lionis, Christos" uniqKey="Lionis C" first="Christos" last="Lionis">Christos Lionis</name></author></titleStmt><publicationStmt><idno type="wicri:source">PMC</idno><idno type="pmid">20975845</idno><idno type="pmc">2962263</idno><idno type="url">http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2962263</idno><idno type="RBID">PMC:2962263</idno><date when="2010">2010</date><idno type="wicri:Area/Pmc/Corpus">003F66</idno><idno type="wicri:explorRef" wicri:stream="Pmc" wicri:step="Corpus" wicri:corpus="PMC">003F66</idno><idno type="wicri:Area/Pmc/Curation">003F65</idno><idno type="wicri:explorRef" wicri:stream="Pmc" wicri:step="Curation">003F65</idno><idno type="wicri:Area/Pmc/Checkpoint">003269</idno><idno type="wicri:explorRef" wicri:stream="Pmc" wicri:step="Checkpoint">003269</idno></publicationStmt><sourceDesc><biblStruct><analytic><title xml:lang="en" level="a" type="main">Primary lower limb lymphedema: a focus on its functional, social and emotional impact</title><author><name sortKey="Symvoulakis, Emmanouil K" sort="Symvoulakis, Emmanouil K" uniqKey="Symvoulakis E" first="Emmanouil K" last="Symvoulakis">Emmanouil K. Symvoulakis</name></author><author><name sortKey="Anyfantakis, Dimitrios I" sort="Anyfantakis, Dimitrios I" uniqKey="Anyfantakis D" first="Dimitrios I" last="Anyfantakis">Dimitrios I. Anyfantakis</name></author><author><name sortKey="Lionis, Christos" sort="Lionis, Christos" uniqKey="Lionis C" first="Christos" last="Lionis">Christos Lionis</name></author></analytic><series><title level="j">International Journal of Medical Sciences</title><idno type="eISSN">1449-1907</idno><imprint><date when="2010">2010</date></imprint></series></biblStruct></sourceDesc></fileDesc><profileDesc><textClass></textClass></profileDesc></teiHeader><front><div type="abstract" xml:lang="en"><p>Primary lymphedema is a rare, chronic and distressing condition with negative effects on physical, social and emotional level. The purpose of these reports was to present and discuss two different cases of primary lower limb lymphedema with a focus on its physical and mental impact and on some qualitative aspects of patients' self-reported experiences. The patients were recruited as they used occasional services within the University Hospital of Heraklion (Crete, Greece). The functional and mental impact of primary lymphedema was measured using the generic Medical Outcome Study short form-36 questionnaire and open-ended questions led to give more emphasis to patients' experiences. The analysis of short form-36 results in the first patient disclosed a significant functional impairment with a minor impact of the condition on emotional and social domains. For the second patient quality of life scores in the emotional and social domains were affected. Our findings support further the statement that physicians should pay full attention to appraise the patient's physical and emotional condition. General practitioners have the opportunity to monitor the long-term impact of chronic disorders. Posing simple open-ended questions and assessing the level of physical and mental deficits in terms of well-being through the use of specific metric tools can effectively follow-up rare conditions in the community.</p></div></front><back><div1 type="bibliography"><listBibl><biblStruct><analytic><author><name sortKey="Rockson, Sg" uniqKey="Rockson S">SG Rockson</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Tiwari, A" uniqKey="Tiwari A">A Tiwari</name></author><author><name sortKey="Cheng, Ks" uniqKey="Cheng K">KS Cheng</name></author><author><name sortKey="Button, M" uniqKey="Button M">M Button</name></author><author><name sortKey="Myint, F" uniqKey="Myint F">F Myint</name></author><author><name sortKey="Hamilton, G" uniqKey="Hamilton G">G Hamilton</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Smeltzer, Dm" uniqKey="Smeltzer D">DM Smeltzer</name></author><author><name sortKey="Stickler, Gb" uniqKey="Stickler G">GB Stickler</name></author><author><name sortKey="Schirger, A" uniqKey="Schirger A">A Schirger</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Rizzo, C" uniqKey="Rizzo C">C Rizzo</name></author><author><name sortKey="Gruson, Lm" uniqKey="Gruson L">LM Gruson</name></author><author><name sortKey="Wainwright, Bd" uniqKey="Wainwright B">BD Wainwright</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Moffatt, Cj" uniqKey="Moffatt C">CJ Moffatt</name></author><author><name sortKey="Franks, Pj" uniqKey="Franks P">PJ Franks</name></author><author><name sortKey="Doherty, Dc" uniqKey="Doherty D">DC Doherty</name></author><author><name sortKey="Williams, Af" uniqKey="Williams A">AF Williams</name></author><author><name sortKey="Badger, C" uniqKey="Badger C">C Badger</name></author><author><name sortKey="Jeffs, E" uniqKey="Jeffs E">E Jeffs</name></author><author><name sortKey="Bosanquet, N" uniqKey="Bosanquet N">N Bosanquet</name></author><author><name sortKey="Mortimer, Ps" uniqKey="Mortimer P">PS Mortimer</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="De Godoy, Jm" uniqKey="De Godoy J">JM de Godoy</name></author><author><name sortKey="De Godoy Mde, F" uniqKey="De Godoy Mde F">F de Godoy Mde</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Ware, Je Jr" uniqKey="Ware J">JE Jr Ware</name></author><author><name sortKey="Sherbourne, Cd" uniqKey="Sherbourne C">CD Sherbourne</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Pappa, E" uniqKey="Pappa E">E Pappa</name></author><author><name sortKey="Kontodimopoulos, N" uniqKey="Kontodimopoulos N">N Kontodimopoulos</name></author><author><name sortKey="Niakas, D" uniqKey="Niakas D">D Niakas</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Sitzia, J" uniqKey="Sitzia J">J Sitzia</name></author><author><name sortKey="Woods, M" uniqKey="Woods M">M Woods</name></author><author><name sortKey="Hine, P" uniqKey="Hine P">P Hine</name></author><author><name sortKey="Williams, A" uniqKey="Williams A">A Williams</name></author><author><name sortKey="Eaton, K" uniqKey="Eaton K">K Eaton</name></author><author><name sortKey="Green, G" uniqKey="Green G">G Green</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Passik, Sd" uniqKey="Passik S">SD Passik</name></author><author><name sortKey="Mcdonald, Mv" uniqKey="Mcdonald M">MV McDonald</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Logan, V" uniqKey="Logan V">V Logan</name></author><author><name sortKey="Barclay, S" uniqKey="Barclay S">S Barclay</name></author><author><name sortKey="Caan, W" uniqKey="Caan W">W Caan</name></author><author><name sortKey="Mccabe, J" uniqKey="Mccabe J">J McCabe</name></author><author><name sortKey="Reid, M" uniqKey="Reid M">M Reid</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Franks, Pj" uniqKey="Franks P">PJ Franks</name></author><author><name sortKey="Moffatt, Cj" uniqKey="Moffatt C">CJ Moffatt</name></author><author><name sortKey="Doherty, Dc" uniqKey="Doherty D">DC Doherty</name></author><author><name sortKey="Williams, Af" uniqKey="Williams A">AF Williams</name></author><author><name sortKey="Jeffs, E" uniqKey="Jeffs E">E Jeffs</name></author><author><name sortKey="Mortimer, Ps" uniqKey="Mortimer P">PS Mortimer</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Pereira De Godoy, Jm" uniqKey="Pereira De Godoy J">JM Pereira de Godoy</name></author><author><name sortKey="Braile, Dm" uniqKey="Braile D">DM Braile</name></author><author><name sortKey="De Fatima Godoy, M" uniqKey="De Fatima Godoy M">M de Fátima Godoy</name></author><author><name sortKey="Longo, Ojr" uniqKey="Longo O">OJr Longo</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Kitsiou Tzeli, S" uniqKey="Kitsiou Tzeli S">S Kitsiou-Tzeli</name></author><author><name sortKey="Vrettou, C" uniqKey="Vrettou C">C Vrettou</name></author><author><name sortKey="Leze, E" uniqKey="Leze E">E Leze</name></author><author><name sortKey="Makrythanasis, P" uniqKey="Makrythanasis P">P Makrythanasis</name></author><author><name sortKey="Kanavakis, E" uniqKey="Kanavakis E">E Kanavakis</name></author><author><name sortKey="Willems, P" uniqKey="Willems P">P Willems</name></author></analytic></biblStruct></listBibl></div1></back></TEI></pmc><pubmed><TEI><teiHeader><fileDesc><titleStmt><title xml:lang="en">Primary lower limb lymphedema: a focus on its functional, social and emotional impact.</title><author><name sortKey="Symvoulakis, Emmanouil K" sort="Symvoulakis, Emmanouil K" uniqKey="Symvoulakis E" first="Emmanouil K" last="Symvoulakis">Emmanouil K. Symvoulakis</name><affiliation wicri:level="1"><nlm:affiliation>Clinic of Social and Family Medicine, Department of Social Medicine, Faculty of Medicine, University of Crete, Heraklion, Crete, Greece.</nlm:affiliation><country xml:lang="fr">Grèce</country><wicri:regionArea>Clinic of Social and Family Medicine, Department of Social Medicine, Faculty of Medicine, University of Crete, Heraklion, Crete</wicri:regionArea><wicri:noRegion>Crete</wicri:noRegion></affiliation></author><author><name sortKey="Anyfantakis, Dimitrios I" sort="Anyfantakis, Dimitrios I" uniqKey="Anyfantakis D" first="Dimitrios I" last="Anyfantakis">Dimitrios I. Anyfantakis</name></author><author><name sortKey="Lionis, Christos" sort="Lionis, Christos" uniqKey="Lionis C" first="Christos" last="Lionis">Christos Lionis</name></author></titleStmt><publicationStmt><idno type="wicri:source">PubMed</idno><date when="2010">2010</date><idno type="RBID">pubmed:20975845</idno><idno type="pmid">20975845</idno><idno type="wicri:Area/PubMed/Corpus">002861</idno><idno type="wicri:explorRef" wicri:stream="PubMed" wicri:step="Corpus" wicri:corpus="PubMed">002861</idno><idno type="wicri:Area/PubMed/Curation">002861</idno><idno type="wicri:explorRef" wicri:stream="PubMed" wicri:step="Curation">002861</idno><idno type="wicri:Area/PubMed/Checkpoint">002861</idno><idno type="wicri:explorRef" wicri:stream="Checkpoint" wicri:step="PubMed">002861</idno></publicationStmt><sourceDesc><biblStruct><analytic><title xml:lang="en">Primary lower limb lymphedema: a focus on its functional, social and emotional impact.</title><author><name sortKey="Symvoulakis, Emmanouil K" sort="Symvoulakis, Emmanouil K" uniqKey="Symvoulakis E" first="Emmanouil K" last="Symvoulakis">Emmanouil K. Symvoulakis</name><affiliation wicri:level="1"><nlm:affiliation>Clinic of Social and Family Medicine, Department of Social Medicine, Faculty of Medicine, University of Crete, Heraklion, Crete, Greece.</nlm:affiliation><country xml:lang="fr">Grèce</country><wicri:regionArea>Clinic of Social and Family Medicine, Department of Social Medicine, Faculty of Medicine, University of Crete, Heraklion, Crete</wicri:regionArea><wicri:noRegion>Crete</wicri:noRegion></affiliation></author><author><name sortKey="Anyfantakis, Dimitrios I" sort="Anyfantakis, Dimitrios I" uniqKey="Anyfantakis D" first="Dimitrios I" last="Anyfantakis">Dimitrios I. Anyfantakis</name></author><author><name sortKey="Lionis, Christos" sort="Lionis, Christos" uniqKey="Lionis C" first="Christos" last="Lionis">Christos Lionis</name></author></analytic><series><title level="j">International journal of medical sciences</title><idno type="eISSN">1449-1907</idno><imprint><date when="2010" type="published">2010</date></imprint></series></biblStruct></sourceDesc></fileDesc><profileDesc><textClass><keywords scheme="KwdEn" xml:lang="en"><term>Adult</term><term>Female</term><term>Humans</term><term>Lymphedema (diagnosis)</term><term>Lymphedema (physiopathology)</term><term>Lymphedema (psychology)</term><term>Male</term><term>Middle Aged</term><term>Quality of Life</term></keywords><keywords scheme="KwdFr" xml:lang="fr"><term>Adulte</term><term>Adulte d'âge moyen</term><term>Femelle</term><term>Humains</term><term>Lymphoedème (diagnostic)</term><term>Lymphoedème (physiopathologie)</term><term>Lymphoedème (psychologie)</term><term>Mâle</term><term>Qualité de vie</term></keywords><keywords scheme="MESH" qualifier="diagnosis" xml:lang="en"><term>Lymphedema</term></keywords><keywords scheme="MESH" qualifier="diagnostic" xml:lang="fr"><term>Lymphoedème</term></keywords><keywords scheme="MESH" qualifier="physiopathologie" xml:lang="fr"><term>Lymphoedème</term></keywords><keywords scheme="MESH" qualifier="physiopathology" xml:lang="en"><term>Lymphedema</term></keywords><keywords scheme="MESH" qualifier="psychologie" xml:lang="fr"><term>Lymphoedème</term></keywords><keywords scheme="MESH" qualifier="psychology" xml:lang="en"><term>Lymphedema</term></keywords><keywords scheme="MESH" xml:lang="en"><term>Adult</term><term>Female</term><term>Humans</term><term>Male</term><term>Middle Aged</term><term>Quality of Life</term></keywords><keywords scheme="MESH" xml:lang="fr"><term>Adulte</term><term>Adulte d'âge moyen</term><term>Femelle</term><term>Humains</term><term>Mâle</term><term>Qualité de vie</term></keywords></textClass></profileDesc></teiHeader><front><div type="abstract" xml:lang="en">Primary lymphedema is a rare, chronic and distressing condition with negative effects on physical, social and emotional level. The purpose of these reports was to present and discuss two different cases of primary lower limb lymphedema with a focus on its physical and mental impact and on some qualitative aspects of patients' self-reported experiences. The patients were recruited as they used occasional services within the University Hospital of Heraklion (Crete, Greece). The functional and mental impact of primary lymphedema was measured using the generic Medical Outcome Study short form-36 questionnaire and open-ended questions led to give more emphasis to patients' experiences. The analysis of short form-36 results in the first patient disclosed a significant functional impairment with a minor impact of the condition on emotional and social domains. For the second patient quality of life scores in the emotional and social domains were affected. Our findings support further the statement that physicians should pay full attention to appraise the patient's physical and emotional condition. General practitioners have the opportunity to monitor the long-term impact of chronic disorders. Posing simple open-ended questions and assessing the level of physical and mental deficits in terms of well-being through the use of specific metric tools can effectively follow-up rare conditions in the community.</div></front></TEI></pubmed></double></record>Pour manipuler ce document sous Unix (Dilib)
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