Strategies for Enrollment of African Americans into Cancer Genetic Studies
Identifieur interne : 006706 ( Ncbi/Curation ); précédent : 006705; suivant : 006707Strategies for Enrollment of African Americans into Cancer Genetic Studies
Auteurs : Altovise Ewing ; Nicole Thompson ; Luisel Ricks-SantiSource :
- Journal of cancer education : the official journal of the American Association for Cancer Education [ 0885-8195 ] ; 2015.
Abstract
The enrollment of ethnically diverse populations in genetic and genomic research is vital to the parity of benefits resulting from research with biological specimens. Herein, we discuss strategies that may effectively improve the recruitment of African Americans into genetics studies. Specifically, we show that engaging physicians, genetic counselors, and community members is essential to enrolling participants into genetic studies. We demonstrate the impact of utilizing African American genetic counselors on study enrollment rates and implementing a two-page consent form that improved on a lengthy and inefficient consenting process. Lastly, we provided participants with the option of donating saliva instead of blood for study purposes. Descriptive statistics were used. Using the aforementioned strategies, recruitment goals for the Genetic Basis of Breast Cancer Subtype Study at Howard University (HU) were met. Our overall results yielded 182 participants in 18 months. Recruitment strategies that involve the engagement of physicians, genetic counselors, and community members may help researchers increase the enrollment of ethnically diverse and hard-to-reach participants into genetic studies.
Url:
DOI: 10.1007/s13187-014-0669-z
PubMed: 24882437
PubMed Central: 4254900
Links toward previous steps (curation, corpus...)
- to stream Pmc, to step Corpus: Pour aller vers cette notice dans l'étape Curation :003825
- to stream Pmc, to step Curation: Pour aller vers cette notice dans l'étape Curation :003824
- to stream Pmc, to step Checkpoint: Pour aller vers cette notice dans l'étape Curation :000E54
- to stream Ncbi, to step Merge: Pour aller vers cette notice dans l'étape Curation :006706
Links to Exploration step
PMC:4254900Le document en format XML
<record><TEI><teiHeader><fileDesc><titleStmt><title xml:lang="en">Strategies for Enrollment of African Americans into Cancer Genetic Studies</title><author><name sortKey="Ewing, Altovise" sort="Ewing, Altovise" uniqKey="Ewing A" first="Altovise" last="Ewing">Altovise Ewing</name></author><author><name sortKey="Thompson, Nicole" sort="Thompson, Nicole" uniqKey="Thompson N" first="Nicole" last="Thompson">Nicole Thompson</name></author><author><name sortKey="Ricks Santi, Luisel" sort="Ricks Santi, Luisel" uniqKey="Ricks Santi L" first="Luisel" last="Ricks-Santi">Luisel Ricks-Santi</name></author></titleStmt><publicationStmt><idno type="wicri:source">PMC</idno><idno type="pmid">24882437</idno><idno type="pmc">4254900</idno><idno type="url">http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4254900</idno><idno type="RBID">PMC:4254900</idno><idno type="doi">10.1007/s13187-014-0669-z</idno><date when="2015">2015</date><idno type="wicri:Area/Pmc/Corpus">003825</idno><idno type="wicri:explorRef" wicri:stream="Pmc" wicri:step="Corpus" wicri:corpus="PMC">003825</idno><idno type="wicri:Area/Pmc/Curation">003824</idno><idno type="wicri:explorRef" wicri:stream="Pmc" wicri:step="Curation">003824</idno><idno type="wicri:Area/Pmc/Checkpoint">000E54</idno><idno type="wicri:explorRef" wicri:stream="Pmc" wicri:step="Checkpoint">000E54</idno><idno type="wicri:Area/Ncbi/Merge">006706</idno><idno type="wicri:Area/Ncbi/Curation">006706</idno></publicationStmt><sourceDesc><biblStruct><analytic><title xml:lang="en" level="a" type="main">Strategies for Enrollment of African Americans into Cancer Genetic Studies</title><author><name sortKey="Ewing, Altovise" sort="Ewing, Altovise" uniqKey="Ewing A" first="Altovise" last="Ewing">Altovise Ewing</name></author><author><name sortKey="Thompson, Nicole" sort="Thompson, Nicole" uniqKey="Thompson N" first="Nicole" last="Thompson">Nicole Thompson</name></author><author><name sortKey="Ricks Santi, Luisel" sort="Ricks Santi, Luisel" uniqKey="Ricks Santi L" first="Luisel" last="Ricks-Santi">Luisel Ricks-Santi</name></author></analytic><series><title level="j">Journal of cancer education : the official journal of the American Association for Cancer Education</title><idno type="ISSN">0885-8195</idno><idno type="eISSN">1543-0154</idno><imprint><date when="2015">2015</date></imprint></series></biblStruct></sourceDesc></fileDesc><profileDesc><textClass></textClass></profileDesc></teiHeader><front><div type="abstract" xml:lang="en"><p id="P1">The enrollment of ethnically diverse populations in genetic and genomic research is vital to the parity of benefits resulting from research with biological specimens. Herein, we discuss strategies that may effectively improve the recruitment of African Americans into genetics studies. Specifically, we show that engaging physicians, genetic counselors, and community members is essential to enrolling participants into genetic studies. We demonstrate the impact of utilizing African American genetic counselors on study enrollment rates and implementing a two-page consent form that improved on a lengthy and inefficient consenting process. Lastly, we provided participants with the option of donating saliva instead of blood for study purposes. Descriptive statistics were used. Using the aforementioned strategies, recruitment goals for the Genetic Basis of Breast Cancer Subtype Study at Howard University (HU) were met. Our overall results yielded 182 participants in 18 months. Recruitment strategies that involve the engagement of physicians, genetic counselors, and community members may help researchers increase the enrollment of ethnically diverse and hard-to-reach participants into genetic studies.</p></div></front></TEI></record>Pour manipuler ce document sous Unix (Dilib)
EXPLOR_STEP=$WICRI_ROOT/Wicri/Sante/explor/LymphedemaV1/Data/Ncbi/Curation
HfdSelect -h $EXPLOR_STEP/biblio.hfd -nk 006706 | SxmlIndent | more
Ou
HfdSelect -h $EXPLOR_AREA/Data/Ncbi/Curation/biblio.hfd -nk 006706 | SxmlIndent | more
Pour mettre un lien sur cette page dans le réseau Wicri
{{Explor lien
|wiki= Wicri/Sante
|area= LymphedemaV1
|flux= Ncbi
|étape= Curation
|type= RBID
|clé= PMC:4254900
|texte= Strategies for Enrollment of African Americans into Cancer Genetic Studies
}}
Pour générer des pages wiki
HfdIndexSelect -h $EXPLOR_AREA/Data/Ncbi/Curation/RBID.i -Sk "pubmed:24882437" \
| HfdSelect -Kh $EXPLOR_AREA/Data/Ncbi/Curation/biblio.hfd \
| NlmPubMed2Wicri -a LymphedemaV1
| This area was generated with Dilib version V0.6.31. |  |