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"Can it be that god does not remember me": a qualitative study on the psychological distress, suffering, and coping of Dominican women with chronic filarial lymphedema and elephantiasis of the leg.

Identifieur interne : 002C54 ( Ncbi/Curation ); précédent : 002C53; suivant : 002C55

"Can it be that god does not remember me": a qualitative study on the psychological distress, suffering, and coping of Dominican women with chronic filarial lymphedema and elephantiasis of the leg.

Auteurs : Bobbie Person [États-Unis] ; David Addiss ; L Kay Bartholomew ; Cecilia Meijer ; Victor Pou ; Guillermo Gonzálvez ; Bart Van Den Borne

Source :

RBID : pubmed:18389432

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English descriptors

Abstract

The psychological states of Dominican women with chronic lymphedema and elephantiasis of the leg and the coping strategies they used to ameliorate the negative psychological effects of this condition were explored using modified precepts of grounded theory method. Qualitative data were gathered through in-depth interviewing and focus group discussions held in the Dominican Republic. Thematic results found that compounding their physical disfigurement, functional limitations, and social losses were feelings of depression, embarrassment, social isolation, and despair. Adaptive problem solving and emotion-focused coping strategies that emerged during analysis also are discussed. It is recommended that management of psychological distress should be a significant component of lymphedema management programs in developing countries.

DOI: 10.1080/07399330701876406
PubMed: 18389432

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Le document en format XML

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<term>Adaptation, Psychological</term>
<term>Adult</term>
<term>Aged</term>
<term>Comorbidity</term>
<term>Depression (epidemiology)</term>
<term>Dominican Republic (epidemiology)</term>
<term>Elephantiasis, Filarial (epidemiology)</term>
<term>Elephantiasis, Filarial (psychology)</term>
<term>Female</term>
<term>Humans</term>
<term>Lymphedema (parasitology)</term>
<term>Lymphedema (psychology)</term>
<term>Middle Aged</term>
<term>Quality of Life</term>
<term>Social Environment</term>
<term>Social Support</term>
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<term>Stress, Psychological (epidemiology)</term>
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<term>Adaptation psychologique</term>
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<term>Adulte d'âge moyen</term>
<term>Comorbidité</term>
<term>Dépression (épidémiologie)</term>
<term>Enquêtes et questionnaires</term>
<term>Environnement social</term>
<term>Facteurs socioéconomiques</term>
<term>Femelle</term>
<term>Filariose lymphatique (psychologie)</term>
<term>Filariose lymphatique (épidémiologie)</term>
<term>Humains</term>
<term>Lymphoedème (parasitologie)</term>
<term>Lymphoedème (psychologie)</term>
<term>Qualité de vie</term>
<term>République dominicaine (épidémiologie)</term>
<term>Soutien social</term>
<term>Stress psychologique (épidémiologie)</term>
<term>Sujet âgé</term>
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<term>Elephantiasis, Filarial</term>
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<term>Lymphoedème</term>
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<term>Lymphedema</term>
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<keywords scheme="MESH" qualifier="psychologie" xml:lang="fr">
<term>Filariose lymphatique</term>
<term>Lymphoedème</term>
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<keywords scheme="MESH" qualifier="psychology" xml:lang="en">
<term>Elephantiasis, Filarial</term>
<term>Lymphedema</term>
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<term>Dépression</term>
<term>Filariose lymphatique</term>
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<term>Humans</term>
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<term>Enquêtes et questionnaires</term>
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<term>Facteurs socioéconomiques</term>
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<div type="abstract" xml:lang="en">The psychological states of Dominican women with chronic lymphedema and elephantiasis of the leg and the coping strategies they used to ameliorate the negative psychological effects of this condition were explored using modified precepts of grounded theory method. Qualitative data were gathered through in-depth interviewing and focus group discussions held in the Dominican Republic. Thematic results found that compounding their physical disfigurement, functional limitations, and social losses were feelings of depression, embarrassment, social isolation, and despair. Adaptive problem solving and emotion-focused coping strategies that emerged during analysis also are discussed. It is recommended that management of psychological distress should be a significant component of lymphedema management programs in developing countries.</div>
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