014 Challenging the perception of death and dying through documentary film making in a hospice
Identifieur interne : 004921 ( Istex/Corpus ); précédent : 004920; suivant : 004922014 Challenging the perception of death and dying through documentary film making in a hospice
Auteurs : Haraldsdottir Erna ; Amy Hardie ; Marilyn KendallSource :
- BMJ Supportive & Palliative Care [ 2045-435X ] ; 2013-10.
Abstract
Background Health promoting palliative care is a relatively new concept in palliative care that aims to increase public awareness and open discussion in relation to death and dying. A year long collaboration between a documentary film artist and patients and staff in a Scottish hospice addressed these aims. They produced 20 short films and a character led documentary feature film showing different strategies that led to increased vitality at the end of life. Method The film-maker worked with over 40 patients, family members and staff in the hospice to identify and expand on participants’ experiences and develop them as narrative for the wider community. Following the patients’ lead, further research into music and performance arts required collaboration with a music director and choreographer in the day-care ward. An extended period of filming and editing followed, where the material was scrutinised and distilled into portraits and songs. Results The resulting documentary film follows patients in the hospice and in their homes, reflecting their strength and individuality, their hopes and dreams as well as their struggle with disease as they use music and creativity to mirror their personal identity and the day- to -day life in the hospice. Responses to the film qualify it as an art based research as watching it enables learning, enhances and challenge audiences’ understanding and perception of death and dying. Key themes that patients raised were their need to be seen as individuals rather than patients and their desire to challenge preconceptions that dying patients are weak, vulnerable and passive. Conclusion: Making a film within a hospice has enabled patients to have a voice as individuals and challenge current perceptions of the dying patient. Wide distribution of the film through television and cinema will encourage public debate across all medias, challenging assumptions about death, dying and the day-to-day life in a hospice.
Url:
DOI: 10.1136/bmjspcare-2013-000591.14
Links to Exploration step
ISTEX:9B586419AD5B3993F4C8243965A6976A68BA0D8DLe document en format XML
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A year long collaboration between a documentary film artist and patients and staff in a Scottish hospice addressed these aims. They produced 20 short films and a character led documentary feature film showing different strategies that led to increased vitality at the end of life. Method The film-maker worked with over 40 patients, family members and staff in the hospice to identify and expand on participants’ experiences and develop them as narrative for the wider community. Following the patients’ lead, further research into music and performance arts required collaboration with a music director and choreographer in the day-care ward. An extended period of filming and editing followed, where the material was scrutinised and distilled into portraits and songs. Results The resulting documentary film follows patients in the hospice and in their homes, reflecting their strength and individuality, their hopes and dreams as well as their struggle with disease as they use music and creativity to mirror their personal identity and the day- to -day life in the hospice. Responses to the film qualify it as an art based research as watching it enables learning, enhances and challenge audiences’ understanding and perception of death and dying. Key themes that patients raised were their need to be seen as individuals rather than patients and their desire to challenge preconceptions that dying patients are weak, vulnerable and passive. Conclusion: Making a film within a hospice has enabled patients to have a voice as individuals and challenge current perceptions of the dying patient. Wide distribution of the film through television and cinema will encourage public debate across all medias, challenging assumptions about death, dying and the day-to-day life in a hospice.</div></front></TEI><istex><corpusName>bmj</corpusName><keywords><teeft><json:string>hospice</json:string><json:string>social care</json:string><json:string>young people</json:string><json:string>eolc</json:string><json:string>commissioning</json:string><json:string>carers</json:string><json:string>barnsley</json:string><json:string>transition process</json:string><json:string>life care</json:string><json:string>barnsley hospice</json:string><json:string>focus groups</json:string><json:string>palliative</json:string><json:string>east london</json:string><json:string>single point</json:string><json:string>hospice practice</json:string><json:string>documentary film</json:string><json:string>palliative care</json:string><json:string>guide handover</json:string><json:string>last year</json:string><json:string>conference papers</json:string><json:string>collaborative leadership</json:string><json:string>community engagement</json:string><json:string>centre</json:string></teeft></keywords><author><json:item><name>Haraldsdottir Erna</name><affiliations><json:string>Strathcarron Hospice, Denny, Stirlingshire</json:string></affiliations></json:item><json:item><name>Amy Hardie</name><affiliations><json:string>Strathcarron Hospice, Denny, Stirlingshire</json:string></affiliations></json:item><json:item><name>Marilyn Kendall</name><affiliations><json:string>Primary Palliative Care Research Group, The University of Edinburgh</json:string></affiliations></json:item></author><articleId><json:string>bmjspcare-2013-000591.14</json:string></articleId><language><json:string>eng</json:string></language><originalGenre><json:string>abstract</json:string></originalGenre><abstract>Background Health promoting palliative care is a relatively new concept in palliative care that aims to increase public awareness and open discussion in relation to death and dying. A year long collaboration between a documentary film artist and patients and staff in a Scottish hospice addressed these aims. They produced 20 short films and a character led documentary feature film showing different strategies that led to increased vitality at the end of life. Method The film-maker worked with over 40 patients, family members and staff in the hospice to identify and expand on participants’ experiences and develop them as narrative for the wider community. Following the patients’ lead, further research into music and performance arts required collaboration with a music director and choreographer in the day-care ward. An extended period of filming and editing followed, where the material was scrutinised and distilled into portraits and songs. Results The resulting documentary film follows patients in the hospice and in their homes, reflecting their strength and individuality, their hopes and dreams as well as their struggle with disease as they use music and creativity to mirror their personal identity and the day- to -day life in the hospice. Responses to the film qualify it as an art based research as watching it enables learning, enhances and challenge audiences’ understanding and perception of death and dying. Key themes that patients raised were their need to be seen as individuals rather than patients and their desire to challenge preconceptions that dying patients are weak, vulnerable and passive. Conclusion: Making a film within a hospice has enabled patients to have a voice as individuals and challenge current perceptions of the dying patient. 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A year long collaboration between a documentary film artist and patients and staff in a Scottish hospice addressed these aims. They produced 20 short films and a character led documentary feature film showing different strategies that led to increased vitality at the end of life. Method The film-maker worked with over 40 patients, family members and staff in the hospice to identify and expand on participants’ experiences and develop them as narrative for the wider community. Following the patients’ lead, further research into music and performance arts required collaboration with a music director and choreographer in the day-care ward. An extended period of filming and editing followed, where the material was scrutinised and distilled into portraits and songs. Results The resulting documentary film follows patients in the hospice and in their homes, reflecting their strength and individuality, their hopes and dreams as well as their struggle with disease as they use music and creativity to mirror their personal identity and the day- to -day life in the hospice. Responses to the film qualify it as an art based research as watching it enables learning, enhances and challenge audiences’ understanding and perception of death and dying. Key themes that patients raised were their need to be seen as individuals rather than patients and their desire to challenge preconceptions that dying patients are weak, vulnerable and passive. Conclusion: Making a film within a hospice has enabled patients to have a voice as individuals and challenge current perceptions of the dying patient. Wide distribution of the film through television and cinema will encourage public debate across all medias, challenging assumptions about death, dying and the day-to-day life in a hospice.</p></abstract></profileDesc><revisionDesc><change when="2013-10">Published</change><change xml:id="refBibs-istex" who="#ISTEX-API" when="2017-01-19">References added</change></revisionDesc></teiHeader></istex:fulltextTEI><json:item><extension>txt</extension><original>false</original><mimetype>text/plain</mimetype><uri>https://api.istex.fr/document/9B586419AD5B3993F4C8243965A6976A68BA0D8D/fulltext/txt</uri></json:item></fulltext><metadata><istex:metadataXml wicri:clean="corpus bmj" wicri:toSee="no header"><istex:xmlDeclaration>version="1.0" encoding="UTF-8" standalone="no"</istex:xmlDeclaration><istex:docType PUBLIC="-//NLM//DTD Journal Archiving and Interchange DTD v2.3 20070202//EN" URI="archivearticle.dtd" name="istex:docType"></istex:docType><istex:document><article article-type="abstract" xml:lang="EN"><front><journal-meta><journal-id journal-id-type="hwp">bmjspcare</journal-id><journal-id journal-id-type="nlm-ta">BMJ Support Palliat Care</journal-id><journal-id journal-id-type="publisher-id">bmjspcare</journal-id><journal-title>BMJ Supportive & Palliative Care</journal-title><abbrev-journal-title abbrev-type="publisher">BMJ Support Palliat Care</abbrev-journal-title><issn pub-type="ppub">2045-435X</issn><issn pub-type="epub">2045-4368</issn><publisher><publisher-name>British Medical Journal Publishing Group</publisher-name></publisher></journal-meta><article-meta><article-id pub-id-type="publisher-id">bmjspcare-2013-000591.14</article-id><article-id pub-id-type="doi">10.1136/bmjspcare-2013-000591.14</article-id><article-id pub-id-type="other">bmjspcare;3/Suppl_1/A5-c</article-id><article-id pub-id-type="other">bmjspcare;bmjspcare-2013-000591.14</article-id><article-id pub-id-type="other">A5.3</article-id><article-id pub-id-type="other">bmjspcare-2013-000591.14</article-id><article-categories><subj-group subj-group-type="heading"><subject>Help the Hospices 2013 – Oral Presentations</subject><subj-group subj-group-type="heading"><subject>Conference Papers 3b</subject></subj-group></subj-group></article-categories><title-group><article-title>014 Challenging the perception of death and dying through documentary film making in a hospice</article-title></title-group><contrib-group><contrib contrib-type="author" xlink:type="simple"><name name-style="western"><surname>Erna</surname><given-names>Haraldsdottir</given-names></name><xref ref-type="aff" rid="AF0001"><sup>1</sup></xref></contrib><contrib contrib-type="author" xlink:type="simple"><name name-style="western"><surname>Hardie</surname><given-names>Amy</given-names></name><xref ref-type="aff" rid="AF0001"><sup>1</sup></xref></contrib><contrib contrib-type="author" xlink:type="simple"><name name-style="western"><surname>Kendall</surname><given-names>Marilyn</given-names></name><xref ref-type="aff" rid="AF0002"><sup>2</sup></xref></contrib></contrib-group><aff id="AF0001"><sup>1</sup>Strathcarron Hospice, Denny, Stirlingshire</aff><aff id="AF0002"><sup>2</sup>Primary Palliative Care Research Group, The University of Edinburgh</aff><pub-date pub-type="ppub"><month>10</month><year>2013</year></pub-date><volume>3</volume><volume-id pub-id-type="other">3</volume-id><volume-id pub-id-type="other">3</volume-id><issue>Suppl 1</issue><issue-id pub-id-type="other">bmjspcare;3/Suppl_1</issue-id><issue-id pub-id-type="other" content-type="supplement">Suppl_1</issue-id><issue-id pub-id-type="other">3/Suppl_1</issue-id><issue-title>Hospice Care: Fit for the Future 21st–23rd October 2013 Bournemouth International Centre Bournemouth, UK</issue-title><fpage seq="3">A5</fpage><permissions><copyright-statement>© 2013, Published by the BMJ Publishing Group Limited. For permission to use (where not already granted under a licence) please go to http://group.bmj.com/group/rights-licensing/permissions</copyright-statement><copyright-year>2013</copyright-year></permissions><self-uri content-type="pdf" xlink:role="full-text" xlink:href="bmjspcare-3-A5-3.pdf"></self-uri><abstract><sec><title>Background</title><p>Health promoting palliative care is a relatively new concept in palliative care that aims to increase public awareness and open discussion in relation to death and dying. A year long collaboration between a documentary film artist and patients and staff in a Scottish hospice addressed these aims. They produced 20 short films and a character led documentary feature film showing different strategies that led to increased vitality at the end of life.</p></sec><sec><title>Method</title><p>The film-maker worked with over 40 patients, family members and staff in the hospice to identify and expand on participants’ experiences and develop them as narrative for the wider community.</p><p>Following the patients’ lead, further research into music and performance arts required collaboration with a music director and choreographer in the day-care ward. An extended period of filming and editing followed, where the material was scrutinised and distilled into portraits and songs.</p></sec><sec><title>Results</title><p>The resulting documentary film follows patients in the hospice and in their homes, reflecting their strength and individuality, their hopes and dreams as well as their struggle with disease as they use music and creativity to mirror their personal identity and the day- to -day life in the hospice. Responses to the film qualify it as an art based research as watching it enables learning, enhances and challenge audiences’ understanding and perception of death and dying.</p><p>Key themes that patients raised were their need to be seen as individuals rather than patients and their desire to challenge preconceptions that dying patients are weak, vulnerable and passive.</p></sec><sec><title>Conclusion:</title><p>Making a film within a hospice has enabled patients to have a voice as individuals and challenge current perceptions of the dying patient.</p><p>Wide distribution of the film through television and cinema will encourage public debate across all medias, challenging assumptions about death, dying and the day-to-day life in a hospice.</p></sec></abstract></article-meta></front></article></istex:document></istex:metadataXml><mods version="3.6"><titleInfo lang="en"><title>014 Challenging the perception of death and dying through documentary film making in a hospice</title></titleInfo><titleInfo type="alternative" lang="en" contentType="CDATA"><title>014 Challenging the perception of death and dying through documentary film making in a hospice</title></titleInfo><name type="personal"><namePart type="given">Haraldsdottir</namePart><namePart type="family">Erna</namePart><affiliation>Strathcarron Hospice, Denny, Stirlingshire</affiliation><role><roleTerm type="text">author</roleTerm></role></name><name type="personal"><namePart type="given">Amy</namePart><namePart type="family">Hardie</namePart><affiliation>Strathcarron Hospice, Denny, Stirlingshire</affiliation><role><roleTerm type="text">author</roleTerm></role></name><name type="personal"><namePart type="given">Marilyn</namePart><namePart type="family">Kendall</namePart><affiliation>Primary Palliative Care Research Group, The University of Edinburgh</affiliation><role><roleTerm type="text">author</roleTerm></role></name><typeOfResource>text</typeOfResource><genre type="abstract" displayLabel="abstract"></genre><originInfo><publisher>British Medical Journal Publishing Group</publisher><dateIssued encoding="w3cdtf">2013-10</dateIssued><copyrightDate encoding="w3cdtf">2013</copyrightDate></originInfo><language><languageTerm type="code" authority="iso639-2b">eng</languageTerm><languageTerm type="code" authority="rfc3066">en</languageTerm></language><physicalDescription><internetMediaType>text/html</internetMediaType></physicalDescription><abstract>Background Health promoting palliative care is a relatively new concept in palliative care that aims to increase public awareness and open discussion in relation to death and dying. A year long collaboration between a documentary film artist and patients and staff in a Scottish hospice addressed these aims. They produced 20 short films and a character led documentary feature film showing different strategies that led to increased vitality at the end of life. Method The film-maker worked with over 40 patients, family members and staff in the hospice to identify and expand on participants’ experiences and develop them as narrative for the wider community. Following the patients’ lead, further research into music and performance arts required collaboration with a music director and choreographer in the day-care ward. An extended period of filming and editing followed, where the material was scrutinised and distilled into portraits and songs. Results The resulting documentary film follows patients in the hospice and in their homes, reflecting their strength and individuality, their hopes and dreams as well as their struggle with disease as they use music and creativity to mirror their personal identity and the day- to -day life in the hospice. Responses to the film qualify it as an art based research as watching it enables learning, enhances and challenge audiences’ understanding and perception of death and dying. Key themes that patients raised were their need to be seen as individuals rather than patients and their desire to challenge preconceptions that dying patients are weak, vulnerable and passive. Conclusion: Making a film within a hospice has enabled patients to have a voice as individuals and challenge current perceptions of the dying patient. 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