Finding a new normal: a grounded theory study of rehabilitation after treatment for upper gastrointestinal or gynaecological cancers – the patient's perspective
Identifieur interne : 000F47 ( Istex/Corpus ); précédent : 000F46; suivant : 000F48Finding a new normal: a grounded theory study of rehabilitation after treatment for upper gastrointestinal or gynaecological cancers – the patient's perspective
Auteurs : C. Sandsund ; N. Pattison ; N. Doyle ; C. ShawSource :
- European Journal of Cancer Care [ 0961-5423 ] ; 2013-03.
Abstract
This paper reports on a study of perspectives of rehabilitation needs by 33 people treated for upper gastrointestinal and gynaecological cancers. This study used focus groups informed by grounded theory and involved adult participants who had completed radical treatment at a UK cancer centre. Patients were involved in the design. Findings indicate that these patients are likely to have ongoing rehabilitation needs and that there was poor awareness of possible treatment of symptoms and of rehabilitation services. Novel findings include distinct perspectives of adults who have completed treatment for upper gastrointestinal and gynaecological cancers regarding their rehabilitation needs. Patients on surgical pathways, or who had longer hospital stays, had a better understanding of the rehabilitation services available to them and they accessed them more easily to ameliorate their post‐treatment symptoms. Furthermore rehabilitation services are not equally accessed by patients on different treatment pathways. A grounded theory of cancer rehabilitation was developed with core categories of: impacts on the person, adjustment after treatment, individualised tailored support and information sources. The overarching theme is ‘seeking a new normal’. Individualised tailored support is integral to seeking and establishing a new normal. Routine assessment and referral for rehabilitation treatment warrants further evaluation in these groups.
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DOI: 10.1111/ecc.12016
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Pattison</name><affiliation><mods:affiliation>Nursing, Risk and Rehabilitation, The Royal Marsden NHS Foundation Trust, Surrey, Sutton, UK</mods:affiliation></affiliation></author><author><name sortKey="Doyle, N" sort="Doyle, N" uniqKey="Doyle N" first="N." last="Doyle">N. Doyle</name><affiliation><mods:affiliation>Clinical Services Department, The Royal Marsden NHS Foundation Trust, London, UK</mods:affiliation></affiliation></author><author><name sortKey="Shaw, C" sort="Shaw, C" uniqKey="Shaw C" first="C." last="Shaw">C. 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This study used focus groups informed by grounded theory and involved adult participants who had completed radical treatment at a UK cancer centre. Patients were involved in the design. Findings indicate that these patients are likely to have ongoing rehabilitation needs and that there was poor awareness of possible treatment of symptoms and of rehabilitation services. Novel findings include distinct perspectives of adults who have completed treatment for upper gastrointestinal and gynaecological cancers regarding their rehabilitation needs. Patients on surgical pathways, or who had longer hospital stays, had a better understanding of the rehabilitation services available to them and they accessed them more easily to ameliorate their post‐treatment symptoms. Furthermore rehabilitation services are not equally accessed by patients on different treatment pathways. A grounded theory of cancer rehabilitation was developed with core categories of: impacts on the person, adjustment after treatment, individualised tailored support and information sources. The overarching theme is ‘seeking a new normal’. Individualised tailored support is integral to seeking and establishing a new normal. Routine assessment and referral for rehabilitation treatment warrants further evaluation in these groups.</div></front></TEI><istex><corpusName>wiley</corpusName><keywords><teeft><json:string>female participant</json:string><json:string>gynaecological</json:string><json:string>rehabilitation services</json:string><json:string>survivorship</json:string><json:string>sandsund</json:string><json:string>ndings</json:string><json:string>focus groups</json:string><json:string>participant</json:string><json:string>individualised</json:string><json:string>blackwell publishing</json:string><json:string>november</json:string><json:string>psychosocial</json:string><json:string>cancer rehabilitation</json:string><json:string>male participant</json:string><json:string>pathway</json:string><json:string>cancer care</json:string><json:string>supportive care</json:string><json:string>gynaecological cancers</json:string><json:string>macmillan cancer support</json:string><json:string>ongoing</json:string><json:string>tumour</json:string><json:string>pattison</json:string><json:string>foundation trust</json:string><json:string>core categories</json:string><json:string>royal marsden</json:string><json:string>health professionals</json:string><json:string>european journal</json:string><json:string>gynaecological cancer</json:string><json:string>strauss corbin</json:string><json:string>focus group</json:string><json:string>professional support</json:string><json:string>clinical oncology</json:string><json:string>ncsi research workstream consultation</json:string><json:string>cancer survivors</json:string><json:string>national cancer action team</json:string><json:string>cancer patients</json:string><json:string>clinic visits</json:string><json:string>macmillan</json:string><json:string>survivor</json:string><json:string>cancer treatment</json:string><json:string>information sources</json:string><json:string>hospital sites</json:string><json:string>cancer survivorship</json:string><json:string>peer support</json:string><json:string>treatment phase</json:string><json:string>therapies department</json:string><json:string>national cancer survivorship initiative</json:string><json:string>contact point</json:string><json:string>qualitative research</json:string><json:string>cancer</json:string><json:string>centre</json:string><json:string>psychosocial impact</json:string><json:string>palliative care</json:string><json:string>main codes</json:string><json:string>many participants</json:string><json:string>better understanding</json:string><json:string>societal roles</json:string><json:string>theory approach</json:string><json:string>younger participants</json:string><json:string>good communication</json:string><json:string>other people</json:string><json:string>disease recurrence</json:string><json:string>cancer centre</json:string><json:string>vital time</json:string><json:string>more support</json:string><json:string>rehabilitation research steering group</json:string><json:string>early stages</json:string><json:string>individualised information</json:string><json:string>theory study</json:string><json:string>professional guidance</json:string><json:string>spinal cord injury</json:string><json:string>rehabilitation professionals</json:string><json:string>other studies</json:string><json:string>ongoing rehabilitation</json:string><json:string>physical function</json:string><json:string>rehabilitation</json:string><json:string>blackwell</json:string></teeft></keywords><author><json:item><name>C. 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A grounded theory of cancer rehabilitation was developed with core categories of: impacts on the person, adjustment after treatment, individualised tailored support and information sources. The overarching theme is ‘seeking a new normal’. Individualised tailored support is integral to seeking and establishing a new normal. 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This study used focus groups informed by grounded theory and involved adult participants who had completed radical treatment at a <hi rend="fc">UK</hi> cancer centre. Patients were involved in the design. Findings indicate that these patients are likely to have ongoing rehabilitation needs and that there was poor awareness of possible treatment of symptoms and of rehabilitation services. Novel findings include distinct perspectives of adults who have completed treatment for upper gastrointestinal and gynaecological cancers regarding their rehabilitation needs. Patients on surgical pathways, or who had longer hospital stays, had a better understanding of the rehabilitation services available to them and they accessed them more easily to ameliorate their post‐treatment symptoms. Furthermore rehabilitation services are not equally accessed by patients on different treatment pathways. A grounded theory of cancer rehabilitation was developed with core categories of: impacts on the person, adjustment after treatment, individualised tailored support and information sources. The overarching theme is ‘seeking a new normal’. Individualised tailored support is integral to seeking and establishing a new normal. 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xml:id="ecc12016-kwd-0006">qualitative</keyword></keywordGroup><fundingInfo><fundingAgency>Royal Marsden NHS Foundation Trust Charitable Panel</fundingAgency><fundingNumber>CP08201</fundingNumber></fundingInfo><fundingInfo><fundingAgency>Rehabilitation Research Charitable Fund</fundingAgency></fundingInfo><abstractGroup><abstract type="main"><p>This paper reports on a study of perspectives of rehabilitation needs by 33 people treated for upper gastrointestinal and gynaecological cancers. This study used focus groups informed by grounded theory and involved adult participants who had completed radical treatment at a <fc>UK</fc> cancer centre. Patients were involved in the design. Findings indicate that these patients are likely to have ongoing rehabilitation needs and that there was poor awareness of possible treatment of symptoms and of rehabilitation services. Novel findings include distinct perspectives of adults who have completed treatment for upper gastrointestinal and gynaecological cancers regarding their rehabilitation needs. Patients on surgical pathways, or who had longer hospital stays, had a better understanding of the rehabilitation services available to them and they accessed them more easily to ameliorate their post‐treatment symptoms. Furthermore rehabilitation services are not equally accessed by patients on different treatment pathways. A grounded theory of cancer rehabilitation was developed with core categories of: impacts on the person, adjustment after treatment, individualised tailored support and information sources. The overarching theme is ‘seeking a new normal’. Individualised tailored support is integral to seeking and establishing a new normal. Routine assessment and referral for rehabilitation treatment warrants further evaluation in these groups.</p></abstract></abstractGroup></contentMeta></header> </component></istex:document></istex:metadataXml><mods version="3.6"><titleInfo lang="en"><title>Finding a new normal: a grounded theory study of rehabilitation after treatment for upper gastrointestinal or gynaecological cancers – the patient's perspective</title></titleInfo><titleInfo type="abbreviated" lang="en"><title>Finding a new normal – the patient's perspective</title></titleInfo><titleInfo type="alternative" contentType="CDATA" lang="en"><title>Finding a new normal: a grounded theory study of rehabilitation after treatment for upper gastrointestinal or gynaecological cancers – the patient's perspective</title></titleInfo><name type="personal"><namePart type="given">C.</namePart><namePart type="family">Sandsund</namePart><namePart type="termsOfAddress">MSc, MCSP</namePart><affiliation>Therapies Department, The Royal Marsden NHS Foundation Trust, London, UK</affiliation><affiliation>E-mail: catherine.sandsund@rmh.nhs.uk</affiliation><role><roleTerm type="text">author</roleTerm></role><description>Allied Health Professional Researcher</description></name><name type="personal"><namePart type="given">N.</namePart><namePart type="family">Pattison</namePart><namePart type="termsOfAddress">DNSc, RN</namePart><affiliation>Nursing, Risk and Rehabilitation, The Royal Marsden NHS Foundation Trust, Surrey, Sutton, UK</affiliation><role><roleTerm type="text">author</roleTerm></role><description>Senior Clinical Nursing Research Fellow</description></name><name type="personal"><namePart type="given">N.</namePart><namePart type="family">Doyle</namePart><namePart type="termsOfAddress">MSc, RGN</namePart><affiliation>Clinical Services Department, The Royal Marsden NHS Foundation Trust, London, UK</affiliation><role><roleTerm type="text">author</roleTerm></role><description>Nurse Consultant, Living with and Beyond Cancer</description></name><name type="personal"><namePart type="given">C.</namePart><namePart type="family">Shaw</namePart><namePart type="termsOfAddress">PhD, RD</namePart><affiliation>Therapies Department, The Royal Marsden NHS Foundation Trust, London, UK</affiliation><role><roleTerm type="text">author</roleTerm></role><description>Consultant Dietitian & Rehabilitation Research Lead</description></name><typeOfResource>text</typeOfResource><genre type="article" displayLabel="article"></genre><originInfo><publisher>Blackwell Publishing Ltd</publisher><dateIssued encoding="w3cdtf">2013-03</dateIssued><dateCreated encoding="w3cdtf">2012-11-01</dateCreated><dateValid encoding="w3cdtf">2012-08-28</dateValid><edition>Sandsund C., Pattison N., Doyle N. & Shaw C. (2013) European Journal of Cancer Care 22, 232–244 Finding a new normal: a grounded theory study of rehabilitation after treatment for upper gastrointestinal or gynaecological cancers – the patient's perspective</edition><copyrightDate encoding="w3cdtf">2013</copyrightDate></originInfo><language><languageTerm type="code" authority="rfc3066">en</languageTerm><languageTerm type="code" authority="iso639-2b">eng</languageTerm></language><physicalDescription><internetMediaType>text/html</internetMediaType></physicalDescription><abstract>This paper reports on a study of perspectives of rehabilitation needs by 33 people treated for upper gastrointestinal and gynaecological cancers. This study used focus groups informed by grounded theory and involved adult participants who had completed radical treatment at a UK cancer centre. Patients were involved in the design. Findings indicate that these patients are likely to have ongoing rehabilitation needs and that there was poor awareness of possible treatment of symptoms and of rehabilitation services. Novel findings include distinct perspectives of adults who have completed treatment for upper gastrointestinal and gynaecological cancers regarding their rehabilitation needs. Patients on surgical pathways, or who had longer hospital stays, had a better understanding of the rehabilitation services available to them and they accessed them more easily to ameliorate their post‐treatment symptoms. Furthermore rehabilitation services are not equally accessed by patients on different treatment pathways. A grounded theory of cancer rehabilitation was developed with core categories of: impacts on the person, adjustment after treatment, individualised tailored support and information sources. The overarching theme is ‘seeking a new normal’. Individualised tailored support is integral to seeking and establishing a new normal. Routine assessment and referral for rehabilitation treatment warrants further evaluation in these groups.</abstract><note type="funding">Royal Marsden NHS Foundation Trust Charitable Panel - No. CP08201; </note><note type="funding">Rehabilitation Research Charitable Fund</note><subject><genre>keywords</genre><topic>gynaecological cancer</topic><topic>upper gastrointestinal cancer</topic><topic>unmet needs</topic><topic>rehabilitation</topic><topic>focus groups</topic><topic>qualitative</topic></subject><relatedItem type="host"><titleInfo><title>European Journal of Cancer Care</title></titleInfo><titleInfo type="abbreviated"><title>Eur J Cancer Care (Engl)</title></titleInfo><genre type="journal">journal</genre><subject><genre>article-category</genre><topic>Original Article</topic></subject><identifier type="ISSN">0961-5423</identifier><identifier type="eISSN">1365-2354</identifier><identifier type="DOI">10.1111/(ISSN)1365-2354</identifier><identifier type="PublisherID">ECC</identifier><part><date>2013</date><detail type="volume"><caption>vol.</caption><number>22</number></detail><detail type="issue"><caption>no.</caption><number>2</number></detail><extent unit="pages"><start>232</start><end>244</end><total>13</total></extent></part></relatedItem><identifier type="istex">2155E1971F8778BEEBE8AAF6E13E3F01F5155CB7</identifier><identifier type="DOI">10.1111/ecc.12016</identifier><identifier type="ArticleID">ECC12016</identifier><accessCondition type="use and reproduction" contentType="copyright">Copyright © 2013 Blackwell Publishing Ltd© 2012 Blackwell Publishing Ltd</accessCondition><recordInfo><recordContentSource>WILEY</recordContentSource></recordInfo></mods></metadata><serie></serie></istex></record>Pour manipuler ce document sous Unix (Dilib)
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