P158 A hospice motor neurone disease clinic: challenges and benefits of a new service
Identifieur interne : 000B39 ( Istex/Corpus ); précédent : 000B38; suivant : 000B40P158 A hospice motor neurone disease clinic: challenges and benefits of a new service
Auteurs : Jane Bywater ; Jo Butt ; Caroline Mathias ; Jean Smith ; Rachel GaffneySource :
- BMJ Supportive & Palliative Care [ 2045-435X ] ; 2013-10.
Abstract
Background/context The Hospice in North Hampshire had offered support and care to MND patients but in an unstructured way. Close working between the Palliative Medicine and Neurology Consultants led to a recognition that both early and advanced care could be improved if services were to work more closely together. Aim The aim was to set up and run a montly multi-disciplinary clinic for people with MND in the Hospice, allowing access to all members of the multi-disciplinary team (neurologist, consultant in palliative medicine, care centre co-ordinator, hospice at home team, social worker, physiotherapist, OT, speech and language therapist, Association Visitors) via one clinic. The clinic link with the MNDA would improve access to information about services. The outpatient hospice setting allows informal support for pts and carers from Assoc Visitors. Outcomes To improve the patient and carer experience. To ensure access to hospice services early in diagnosis. To improve both peer and carer support through joint working with the MNDA. To develop a specialist skill base with opportunities for support and training of other professionals. To develop patient professional relationships which allow easy transition in the end stages of illness. Application to hospice practice Many centres across the country run a multidisciplinary MND clinic but traditionally in the hospital settling. Evidence is good for improvement in patient care from a hospital model of service delivery model. Hospices have many advantages with their experience in coordinating care and community focus. The early links with the Hospice allow continuity of care throughout the patient journey.
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DOI: 10.1136/bmjspcare-2013-000591.180
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Close working between the Palliative Medicine and Neurology Consultants led to a recognition that both early and advanced care could be improved if services were to work more closely together. Aim The aim was to set up and run a montly multi-disciplinary clinic for people with MND in the Hospice, allowing access to all members of the multi-disciplinary team (neurologist, consultant in palliative medicine, care centre co-ordinator, hospice at home team, social worker, physiotherapist, OT, speech and language therapist, Association Visitors) via one clinic. The clinic link with the MNDA would improve access to information about services. The outpatient hospice setting allows informal support for pts and carers from Assoc Visitors. Outcomes To improve the patient and carer experience. To ensure access to hospice services early in diagnosis. To improve both peer and carer support through joint working with the MNDA. To develop a specialist skill base with opportunities for support and training of other professionals. To develop patient professional relationships which allow easy transition in the end stages of illness. Application to hospice practice Many centres across the country run a multidisciplinary MND clinic but traditionally in the hospital settling. Evidence is good for improvement in patient care from a hospital model of service delivery model. Hospices have many advantages with their experience in coordinating care and community focus. 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Kingdom</json:string></affiliations></json:item><json:item><name>Rachel Gaffney</name><affiliations><json:string>Hampshire Hospitals Foundation Trust</json:string></affiliations></json:item></author><articleId><json:string>bmjspcare-2013-000591.180</json:string></articleId><language><json:string>eng</json:string></language><originalGenre><json:string>abstract</json:string></originalGenre><abstract>Background/context The Hospice in North Hampshire had offered support and care to MND patients but in an unstructured way. Close working between the Palliative Medicine and Neurology Consultants led to a recognition that both early and advanced care could be improved if services were to work more closely together. Aim The aim was to set up and run a montly multi-disciplinary clinic for people with MND in the Hospice, allowing access to all members of the multi-disciplinary team (neurologist, consultant in palliative medicine, care centre co-ordinator, hospice at home team, social worker, physiotherapist, OT, speech and language therapist, Association Visitors) via one clinic. The clinic link with the MNDA would improve access to information about services. The outpatient hospice setting allows informal support for pts and carers from Assoc Visitors. Outcomes To improve the patient and carer experience. To ensure access to hospice services early in diagnosis. To improve both peer and carer support through joint working with the MNDA. To develop a specialist skill base with opportunities for support and training of other professionals. To develop patient professional relationships which allow easy transition in the end stages of illness. Application to hospice practice Many centres across the country run a multidisciplinary MND clinic but traditionally in the hospital settling. Evidence is good for improvement in patient care from a hospital model of service delivery model. Hospices have many advantages with their experience in coordinating care and community focus. 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For permission to use (where not already granted under a licence) please go to http://group.bmj.com/group/rights-licensing/permissions</p></availability><date>2013</date></publicationStmt><sourceDesc><biblStruct type="inbook"><analytic><title level="a" type="main" xml:lang="en">P158 A hospice motor neurone disease clinic: challenges and benefits of a new service</title><author xml:id="author-1"><persName><forename type="first">Jane</forename><surname>Bywater</surname></persName><affiliation>St Michaels Hospice, Basingstoke, United Kingdom</affiliation><affiliation>Hampshire Hospitals Foundation Trust</affiliation></author><author xml:id="author-2"><persName><forename type="first">Jo</forename><surname>Butt</surname></persName><affiliation>St Michaels Hospice, Basingstoke, United Kingdom</affiliation></author><author xml:id="author-3"><persName><forename type="first">Caroline</forename><surname>Mathias</surname></persName><affiliation>St Michaels Hospice, Basingstoke, United Kingdom</affiliation></author><author xml:id="author-4"><persName><forename type="first">Jean</forename><surname>Smith</surname></persName><affiliation>St Michaels Hospice, Basingstoke, United Kingdom</affiliation></author><author xml:id="author-5"><persName><forename type="first">Rachel</forename><surname>Gaffney</surname></persName><affiliation>Hampshire Hospitals Foundation Trust</affiliation></author></analytic><monogr><title level="j">BMJ Supportive & Palliative Care</title><title level="j" type="abbrev">BMJ Support Palliat Care</title><idno type="pISSN">2045-435X</idno><idno type="eISSN">2045-4368</idno><imprint><publisher>British Medical Journal Publishing Group</publisher><date type="published" when="2013-10"></date><biblScope unit="volume">3</biblScope><biblScope unit="issue">Suppl 1</biblScope><biblScope unit="page" from="A66">A66</biblScope></imprint></monogr><idno type="istex">18948EBF60CA5F31C884754278DBCB7AFA1BC3B8</idno><idno type="DOI">10.1136/bmjspcare-2013-000591.180</idno><idno type="href">bmjspcare-3-A66-1.pdf</idno><idno type="ArticleID">bmjspcare-2013-000591.180</idno><idno type="local">bmjspcare;3/Suppl_1/A66-a</idno></biblStruct></sourceDesc></fileDesc><profileDesc><creation><date>2013</date></creation><langUsage><language ident="en">en</language></langUsage><abstract><p>Background/context The Hospice in North Hampshire had offered support and care to MND patients but in an unstructured way. Close working between the Palliative Medicine and Neurology Consultants led to a recognition that both early and advanced care could be improved if services were to work more closely together. Aim The aim was to set up and run a montly multi-disciplinary clinic for people with MND in the Hospice, allowing access to all members of the multi-disciplinary team (neurologist, consultant in palliative medicine, care centre co-ordinator, hospice at home team, social worker, physiotherapist, OT, speech and language therapist, Association Visitors) via one clinic. The clinic link with the MNDA would improve access to information about services. The outpatient hospice setting allows informal support for pts and carers from Assoc Visitors. Outcomes To improve the patient and carer experience. To ensure access to hospice services early in diagnosis. To improve both peer and carer support through joint working with the MNDA. To develop a specialist skill base with opportunities for support and training of other professionals. To develop patient professional relationships which allow easy transition in the end stages of illness. Application to hospice practice Many centres across the country run a multidisciplinary MND clinic but traditionally in the hospital settling. Evidence is good for improvement in patient care from a hospital model of service delivery model. Hospices have many advantages with their experience in coordinating care and community focus. The early links with the Hospice allow continuity of care throughout the patient journey.</p></abstract></profileDesc><revisionDesc><change when="2013-10">Published</change><change xml:id="refBibs-istex" who="#ISTEX-API" when="2017-01-19">References added</change></revisionDesc></teiHeader></istex:fulltextTEI><json:item><extension>txt</extension><original>false</original><mimetype>text/plain</mimetype><uri>https://api.istex.fr/document/18948EBF60CA5F31C884754278DBCB7AFA1BC3B8/fulltext/txt</uri></json:item></fulltext><metadata><istex:metadataXml wicri:clean="corpus bmj" wicri:toSee="no header"><istex:xmlDeclaration>version="1.0" encoding="UTF-8" standalone="no"</istex:xmlDeclaration><istex:docType PUBLIC="-//NLM//DTD Journal Archiving and Interchange DTD v2.3 20070202//EN" URI="archivearticle.dtd" name="istex:docType"></istex:docType><istex:document><article article-type="abstract" xml:lang="EN"><front><journal-meta><journal-id journal-id-type="hwp">bmjspcare</journal-id><journal-id journal-id-type="nlm-ta">BMJ Support Palliat Care</journal-id><journal-id journal-id-type="publisher-id">bmjspcare</journal-id><journal-title>BMJ Supportive & Palliative Care</journal-title><abbrev-journal-title abbrev-type="publisher">BMJ Support Palliat Care</abbrev-journal-title><issn pub-type="ppub">2045-435X</issn><issn pub-type="epub">2045-4368</issn><publisher><publisher-name>British Medical Journal Publishing Group</publisher-name></publisher></journal-meta><article-meta><article-id pub-id-type="publisher-id">bmjspcare-2013-000591.180</article-id><article-id pub-id-type="doi">10.1136/bmjspcare-2013-000591.180</article-id><article-id pub-id-type="other">bmjspcare;3/Suppl_1/A66-a</article-id><article-id pub-id-type="other">bmjspcare;bmjspcare-2013-000591.180</article-id><article-id pub-id-type="other">A66.1</article-id><article-id pub-id-type="other">bmjspcare-2013-000591.180</article-id><article-categories><subj-group subj-group-type="heading"><subject>Help the Hospices, Poster Presentations</subject><subj-group subj-group-type="heading"><subject>Treatment, care and patient perspectives</subject></subj-group></subj-group></article-categories><title-group><article-title>P158 A hospice motor neurone disease clinic: challenges and benefits of a new service</article-title></title-group><contrib-group><contrib contrib-type="author" xlink:type="simple"><name name-style="western"><surname>Bywater</surname><given-names>Jane</given-names></name><xref ref-type="aff" rid="AF0001"><sup>1</sup></xref><xref ref-type="aff" rid="AF0002"><sup>2</sup></xref></contrib><contrib contrib-type="author" xlink:type="simple"><name name-style="western"><surname>Butt</surname><given-names>Jo</given-names></name><xref ref-type="aff" rid="AF0001"><sup>1</sup></xref></contrib><contrib contrib-type="author" xlink:type="simple"><name name-style="western"><surname>Mathias</surname><given-names>Caroline</given-names></name><xref ref-type="aff" rid="AF0001"><sup>1</sup></xref></contrib><contrib contrib-type="author" xlink:type="simple"><name name-style="western"><surname>Smith</surname><given-names>Jean</given-names></name><xref ref-type="aff" rid="AF0001"><sup>1</sup></xref></contrib><contrib contrib-type="author" xlink:type="simple"><name name-style="western"><surname>Gaffney</surname><given-names>Rachel</given-names></name><xref ref-type="aff" rid="AF0002"><sup>2</sup></xref></contrib></contrib-group><aff id="AF0001"><sup>1</sup>St Michaels Hospice, Basingstoke, United Kingdom</aff><aff id="AF0002"><sup>2</sup>Hampshire Hospitals Foundation Trust</aff><pub-date pub-type="ppub"><month>10</month><year>2013</year></pub-date><volume>3</volume><volume-id pub-id-type="other">3</volume-id><volume-id pub-id-type="other">3</volume-id><issue>Suppl 1</issue><issue-id pub-id-type="other">bmjspcare;3/Suppl_1</issue-id><issue-id pub-id-type="other" content-type="supplement">Suppl_1</issue-id><issue-id pub-id-type="other">3/Suppl_1</issue-id><issue-title>Hospice Care: Fit for the Future 21st–23rd October 2013 Bournemouth International Centre Bournemouth, UK</issue-title><fpage seq="1">A66</fpage><permissions><copyright-statement>© 2013, Published by the BMJ Publishing Group Limited. For permission to use (where not already granted under a licence) please go to http://group.bmj.com/group/rights-licensing/permissions</copyright-statement><copyright-year>2013</copyright-year></permissions><self-uri content-type="pdf" xlink:role="full-text" xlink:href="bmjspcare-3-A66-1.pdf"></self-uri><abstract><sec><title>Background/context</title><p>The Hospice in North Hampshire had offered support and care to MND patients but in an unstructured way. Close working between the Palliative Medicine and Neurology Consultants led to a recognition that both early and advanced care could be improved if services were to work more closely together.</p></sec><sec><title>Aim</title><p>The aim was to set up and run a montly multi-disciplinary clinic for people with MND in the Hospice, allowing access to all members of the multi-disciplinary team (neurologist, consultant in palliative medicine, care centre co-ordinator, hospice at home team, social worker, physiotherapist, OT, speech and language therapist, Association Visitors) via one clinic. The clinic link with the MNDA would improve access to information about services. The outpatient hospice setting allows informal support for pts and carers from Assoc Visitors.</p></sec><sec><title>Outcomes</title><p>To improve the patient and carer experience.</p><p>To ensure access to hospice services early in diagnosis.</p><p>To improve both peer and carer support through joint working with the MNDA.</p><p>To develop a specialist skill base with opportunities for support and training of other professionals.</p><p>To develop patient professional relationships which allow easy transition in the end stages of illness.</p></sec><sec><title>Application to hospice practice</title><p>Many centres across the country run a multidisciplinary MND clinic but traditionally in the hospital settling. Evidence is good for improvement in patient care from a hospital model of service delivery model. Hospices have many advantages with their experience in coordinating care and community focus. The early links with the Hospice allow continuity of care throughout the patient journey.</p></sec></abstract></article-meta></front></article></istex:document></istex:metadataXml><mods version="3.6"><titleInfo lang="en"><title>P158 A hospice motor neurone disease clinic: challenges and benefits of a new service</title></titleInfo><titleInfo type="alternative" lang="en" contentType="CDATA"><title>P158 A hospice motor neurone disease clinic: challenges and benefits of a new service</title></titleInfo><name type="personal"><namePart type="given">Jane</namePart><namePart type="family">Bywater</namePart><affiliation>St Michaels Hospice, Basingstoke, United Kingdom</affiliation><affiliation>Hampshire Hospitals Foundation Trust</affiliation><role><roleTerm type="text">author</roleTerm></role></name><name type="personal"><namePart type="given">Jo</namePart><namePart type="family">Butt</namePart><affiliation>St Michaels Hospice, Basingstoke, United Kingdom</affiliation><role><roleTerm type="text">author</roleTerm></role></name><name type="personal"><namePart type="given">Caroline</namePart><namePart type="family">Mathias</namePart><affiliation>St Michaels Hospice, Basingstoke, United Kingdom</affiliation><role><roleTerm type="text">author</roleTerm></role></name><name type="personal"><namePart type="given">Jean</namePart><namePart type="family">Smith</namePart><affiliation>St Michaels Hospice, Basingstoke, United Kingdom</affiliation><role><roleTerm type="text">author</roleTerm></role></name><name type="personal"><namePart type="given">Rachel</namePart><namePart type="family">Gaffney</namePart><affiliation>Hampshire Hospitals Foundation Trust</affiliation><role><roleTerm type="text">author</roleTerm></role></name><typeOfResource>text</typeOfResource><genre type="abstract" displayLabel="abstract"></genre><originInfo><publisher>British Medical Journal Publishing Group</publisher><dateIssued encoding="w3cdtf">2013-10</dateIssued><copyrightDate encoding="w3cdtf">2013</copyrightDate></originInfo><language><languageTerm type="code" authority="iso639-2b">eng</languageTerm><languageTerm type="code" authority="rfc3066">en</languageTerm></language><physicalDescription><internetMediaType>text/html</internetMediaType></physicalDescription><abstract>Background/context The Hospice in North Hampshire had offered support and care to MND patients but in an unstructured way. Close working between the Palliative Medicine and Neurology Consultants led to a recognition that both early and advanced care could be improved if services were to work more closely together. Aim The aim was to set up and run a montly multi-disciplinary clinic for people with MND in the Hospice, allowing access to all members of the multi-disciplinary team (neurologist, consultant in palliative medicine, care centre co-ordinator, hospice at home team, social worker, physiotherapist, OT, speech and language therapist, Association Visitors) via one clinic. The clinic link with the MNDA would improve access to information about services. The outpatient hospice setting allows informal support for pts and carers from Assoc Visitors. Outcomes To improve the patient and carer experience. To ensure access to hospice services early in diagnosis. To improve both peer and carer support through joint working with the MNDA. To develop a specialist skill base with opportunities for support and training of other professionals. To develop patient professional relationships which allow easy transition in the end stages of illness. Application to hospice practice Many centres across the country run a multidisciplinary MND clinic but traditionally in the hospital settling. Evidence is good for improvement in patient care from a hospital model of service delivery model. Hospices have many advantages with their experience in coordinating care and community focus. The early links with the Hospice allow continuity of care throughout the patient journey.</abstract><relatedItem type="host"><titleInfo><title>BMJ Supportive & Palliative Care</title></titleInfo><titleInfo type="abbreviated"><title>BMJ Support Palliat Care</title></titleInfo><genre type="journal">journal</genre><identifier type="ISSN">2045-435X</identifier><identifier type="eISSN">2045-4368</identifier><identifier type="PublisherID">bmjspcare</identifier><identifier type="PublisherID-hwp">bmjspcare</identifier><identifier type="PublisherID-nlm-ta">BMJ Support Palliat Care</identifier><part><date>2013</date><detail type="title"><title>Hospice Care: Fit for the Future 21st–23rd October 2013 Bournemouth International Centre Bournemouth, UK</title></detail><detail type="volume"><caption>vol.</caption><number>3</number></detail><detail type="issue"><caption>no.</caption><number>Suppl 1</number></detail><extent unit="pages"><start>A66</start></extent></part></relatedItem><identifier type="istex">18948EBF60CA5F31C884754278DBCB7AFA1BC3B8</identifier><identifier type="DOI">10.1136/bmjspcare-2013-000591.180</identifier><identifier type="href">bmjspcare-3-A66-1.pdf</identifier><identifier type="ArticleID">bmjspcare-2013-000591.180</identifier><identifier type="local">bmjspcare;3/Suppl_1/A66-a</identifier><accessCondition type="use and reproduction" contentType="copyright">© 2013, Published by the BMJ Publishing Group Limited. For permission to use (where not already granted under a licence) please go to http://group.bmj.com/group/rights-licensing/permissions</accessCondition><recordInfo><recordContentSource>BMJ</recordContentSource></recordInfo></mods></metadata><serie></serie></istex></record>Pour manipuler ce document sous Unix (Dilib)
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