Impact of the COVID-19 pandemic on patients with systemic lupus erythematosus: Observations from an Indian inception cohort.
Identifieur interne : 000350 ( Main/Exploration ); précédent : 000349; suivant : 000351Impact of the COVID-19 pandemic on patients with systemic lupus erythematosus: Observations from an Indian inception cohort.
Auteurs : Manish Rathi [Inde] ; Parmeshar Singh [Inde] ; Hayath Peta Bi [Inde] ; Archana Shivanna [Inde] ; Chengappa Kavadichanda [Inde] ; Saumya Ranjan Tripathy ; Janani Parthasarathy [Inde] ; Sneha Tota [Inde] ; Supriya Maurya [Inde] ; Vishnupriya Vijayalekshmi [Inde] ; D. Bhavani [Inde] ; Avinash Jain [Inde] ; Ranjan Gupta [Inde] ; Debashish Danda [Inde] ; Liza Rajasekhar [Inde] ; Vir Singh Negi [Inde] ; Vineeta Shobha [Inde] ; Bidyut Das ; Amita Aggarwal [Inde]Source :
- Lupus [ 1477-0962 ] ; 2021.
Descripteurs français
- KwdFr :
- MESH :
- psychologie : Lupus érythémateux disséminé.
- Adolescent, Adulte, Adulte d'âge moyen, Enregistrements, Femelle, Humains, Inde, Jeune adulte, Mâle, Pandémies.
- Wicri :
- geographic : Inde.
English descriptors
- KwdEn :
- MESH :
- geographic : India.
- psychology : Lupus Erythematosus, Systemic.
- Adolescent, Adult, COVID-19, Female, Humans, Male, Middle Aged, Pandemics, Registries, Young Adult.
Abstract
INTRODUCTION
The ongoing pandemic of COVID-19 has led to severe disruption of healthcare services worldwide. We conducted this study to assess the impact of COVID-19 pandemic on the management of Systemic Lupus Erythematosus (SLE) patients who were enrolled in the nation-wide inception cohort.
METHODS
A questionnaire was administered to the SLE patients enrolled in the inception cohort. Questions related to the effect on disease activity, preventive measures adopted against COVID-19, the incidence of COVID-19, hardships faced in getting access to health care professionals and availability of medicines, adherence, fear of COVID-19 and the potential benefits of being part of the registry.
RESULTS
A total of 1040 (90% females) patients completed the questionnaire. The mean age was 27.5 ± 19.1 years and the mean disease duration was 1.25 years. Twenty-Four (2.3%) patients had developed fever (>1 day) during this period, including one patient with additional symptoms of diarrhoea and anosmia, however, none of the patients developed COVID-19 infection. 262 patients (25.2%) reported financial difficulty during this period and patients reported an average excess expenditure of at least 2255.45 INR ($30) per month. 378 patients (36%) reported problems in getting their prescribed medicines due to lockdown. Of these, 167 (40%) patients needed to change their medication schedule due to this non-availability. Almost 54% of patients missed their scheduled follow up visits during the lockdown period and 37% of patients were unable to get their investigations done due to closure of laboratories and hospitals. 266 patients (25.5%) reported worsening of various symptoms of SLE during this period. Almost 61% patients felt confident that being associated with the inception cohort had helped them in managing their disease better during this period of lockdown as they received help in the form of timely and frequent telephonic consults, assistance in making the medicines available, and regular counselling resulting in abetment of their fears and anxieties.
CONCLUSION
The current COVID-19 pandemic has made a huge impact on our SLE patients. Patients faced difficulty in the availability of medicines, missed the doses of medicines, had financial constraints, and spent more money on health during the pandemic.
DOI: 10.1177/0961203320962855
PubMed: 33019877
Affiliations:
Links toward previous steps (curation, corpus...)
Le document en format XML
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Rheumatology, SCB Medical College, Cuttack, Inida.</nlm:affiliation><wicri:noCountry code="subField">Inida</wicri:noCountry></affiliation></author><author><name sortKey="Parthasarathy, Janani" sort="Parthasarathy, Janani" uniqKey="Parthasarathy J" first="Janani" last="Parthasarathy">Janani Parthasarathy</name><affiliation wicri:level="1"><nlm:affiliation>Department of Clinical Immunology and Rheumatology, Christian Medical College, Vellore, India.</nlm:affiliation><country xml:lang="fr">Inde</country><wicri:regionArea>Department of Clinical Immunology and Rheumatology, Christian Medical College, Vellore</wicri:regionArea><wicri:noRegion>Vellore</wicri:noRegion></affiliation></author><author><name sortKey="Tota, Sneha" sort="Tota, Sneha" uniqKey="Tota S" first="Sneha" last="Tota">Sneha Tota</name><affiliation wicri:level="1"><nlm:affiliation>Department of Clinical Immunology and Rheumatology, Sanjay Gandhi Postgraduate Institute of Medical Sciences, Lucknow, India.</nlm:affiliation><country xml:lang="fr">Inde</country><wicri:regionArea>Department of Clinical Immunology and Rheumatology, Sanjay Gandhi Postgraduate Institute of Medical Sciences, Lucknow</wicri:regionArea><wicri:noRegion>Lucknow</wicri:noRegion></affiliation></author><author><name sortKey="Maurya, Supriya" sort="Maurya, Supriya" uniqKey="Maurya S" first="Supriya" last="Maurya">Supriya Maurya</name><affiliation wicri:level="1"><nlm:affiliation>Department of Clinical Immunology and Rheumatology, Sanjay Gandhi Postgraduate Institute of Medical Sciences, Lucknow, India.</nlm:affiliation><country xml:lang="fr">Inde</country><wicri:regionArea>Department of Clinical Immunology and Rheumatology, Sanjay Gandhi Postgraduate Institute of Medical Sciences, Lucknow</wicri:regionArea><wicri:noRegion>Lucknow</wicri:noRegion></affiliation></author><author><name sortKey="Vijayalekshmi, Vishnupriya" sort="Vijayalekshmi, Vishnupriya" uniqKey="Vijayalekshmi V" first="Vishnupriya" last="Vijayalekshmi">Vishnupriya Vijayalekshmi</name><affiliation wicri:level="1"><nlm:affiliation>Department of Rheumatology, All India Institute of Medical Sciences, New Delhi, India.</nlm:affiliation><country xml:lang="fr">Inde</country><wicri:regionArea>Department of Rheumatology, All India Institute of Medical Sciences, New Delhi</wicri:regionArea><wicri:noRegion>New Delhi</wicri:noRegion></affiliation></author><author><name sortKey="Bhavani, D" sort="Bhavani, D" uniqKey="Bhavani D" first="D" last="Bhavani">D. Bhavani</name><affiliation wicri:level="1"><nlm:affiliation>Department of Rheumatology, Nizam Institute of Medical Sciences, Hyderabad, India.</nlm:affiliation><country xml:lang="fr">Inde</country><wicri:regionArea>Department of Rheumatology, Nizam Institute of Medical Sciences, Hyderabad</wicri:regionArea><wicri:noRegion>Hyderabad</wicri:noRegion></affiliation></author><author><name sortKey="Jain, Avinash" sort="Jain, Avinash" uniqKey="Jain A" first="Avinash" last="Jain">Avinash Jain</name><affiliation wicri:level="1"><nlm:affiliation>Department of Medicine, Division of Clinical Immunology and Rheumatology, SMS Medical College, Jaipur, India.</nlm:affiliation><country xml:lang="fr">Inde</country><wicri:regionArea>Department of Medicine, Division of Clinical Immunology and Rheumatology, SMS Medical College, Jaipur</wicri:regionArea><wicri:noRegion>Jaipur</wicri:noRegion></affiliation></author><author><name sortKey="Gupta, Ranjan" sort="Gupta, Ranjan" uniqKey="Gupta R" first="Ranjan" last="Gupta">Ranjan Gupta</name><affiliation wicri:level="1"><nlm:affiliation>Department of Rheumatology, All India Institute of Medical Sciences, New Delhi, India.</nlm:affiliation><country xml:lang="fr">Inde</country><wicri:regionArea>Department of Rheumatology, All India Institute of Medical Sciences, New Delhi</wicri:regionArea><wicri:noRegion>New Delhi</wicri:noRegion></affiliation></author><author><name sortKey="Danda, Debashish" sort="Danda, Debashish" uniqKey="Danda D" first="Debashish" last="Danda">Debashish Danda</name><affiliation wicri:level="1"><nlm:affiliation>Department of Clinical Immunology and Rheumatology, Christian Medical College, Vellore, India.</nlm:affiliation><country xml:lang="fr">Inde</country><wicri:regionArea>Department of Clinical Immunology and Rheumatology, Christian Medical College, Vellore</wicri:regionArea><wicri:noRegion>Vellore</wicri:noRegion></affiliation></author><author><name sortKey="Rajasekhar, Liza" sort="Rajasekhar, Liza" uniqKey="Rajasekhar L" first="Liza" last="Rajasekhar">Liza Rajasekhar</name><affiliation wicri:level="1"><nlm:affiliation>Department of Rheumatology, Nizam Institute of Medical Sciences, Hyderabad, India.</nlm:affiliation><country xml:lang="fr">Inde</country><wicri:regionArea>Department of Rheumatology, Nizam Institute of Medical Sciences, Hyderabad</wicri:regionArea><wicri:noRegion>Hyderabad</wicri:noRegion></affiliation></author><author><name sortKey="Negi, Vir Singh" sort="Negi, Vir Singh" uniqKey="Negi V" first="Vir Singh" last="Negi">Vir Singh Negi</name><affiliation wicri:level="1"><nlm:affiliation>Department of Clinical Immunology, JIPMER, Puducherry, India.</nlm:affiliation><country xml:lang="fr">Inde</country><wicri:regionArea>Department of Clinical Immunology, JIPMER, Puducherry</wicri:regionArea><wicri:noRegion>Puducherry</wicri:noRegion></affiliation></author><author><name sortKey="Shobha, Vineeta" sort="Shobha, Vineeta" uniqKey="Shobha V" first="Vineeta" last="Shobha">Vineeta Shobha</name><affiliation wicri:level="1"><nlm:affiliation>Department of Clinical Immunology and Rheumatology, St John's Medical College Hospital, Bengaluru, India.</nlm:affiliation><country xml:lang="fr">Inde</country><wicri:regionArea>Department of Clinical Immunology and Rheumatology, St John's Medical College Hospital, Bengaluru</wicri:regionArea><wicri:noRegion>Bengaluru</wicri:noRegion></affiliation></author><author><name sortKey="Das, Bidyut" sort="Das, Bidyut" uniqKey="Das B" first="Bidyut" last="Das">Bidyut Das</name><affiliation><nlm:affiliation>Department of Rheumatology, SCB Medical College, Cuttack, Inida.</nlm:affiliation><wicri:noCountry code="subField">Inida</wicri:noCountry></affiliation></author><author><name sortKey="Aggarwal, Amita" sort="Aggarwal, Amita" uniqKey="Aggarwal A" first="Amita" last="Aggarwal">Amita Aggarwal</name><affiliation wicri:level="1"><nlm:affiliation>Department of Clinical Immunology and Rheumatology, Sanjay Gandhi Postgraduate Institute of Medical Sciences, Lucknow, India.</nlm:affiliation><country xml:lang="fr">Inde</country><wicri:regionArea>Department of Clinical Immunology and Rheumatology, Sanjay Gandhi Postgraduate Institute of Medical Sciences, Lucknow</wicri:regionArea><wicri:noRegion>Lucknow</wicri:noRegion></affiliation></author></titleStmt><publicationStmt><idno type="wicri:source">PubMed</idno><date when="2021">2021</date><idno type="RBID">pubmed:33019877</idno><idno type="pmid">33019877</idno><idno type="doi">10.1177/0961203320962855</idno><idno type="wicri:Area/Main/Corpus">001399</idno><idno type="wicri:explorRef" wicri:stream="Main" wicri:step="Corpus" wicri:corpus="PubMed">001399</idno><idno type="wicri:Area/Main/Curation">001399</idno><idno type="wicri:explorRef" wicri:stream="Main" wicri:step="Curation">001399</idno><idno type="wicri:Area/Main/Exploration">001399</idno></publicationStmt><sourceDesc><biblStruct><analytic><title xml:lang="en">Impact of the COVID-19 pandemic on patients with systemic lupus erythematosus: Observations from an Indian inception cohort.</title><author><name sortKey="Rathi, Manish" sort="Rathi, Manish" uniqKey="Rathi M" first="Manish" last="Rathi">Manish Rathi</name><affiliation wicri:level="1"><nlm:affiliation>Department of Nephrology, Postgraduate Institute of Medical Education and Research, Chandigarh, India.</nlm:affiliation><country xml:lang="fr">Inde</country><wicri:regionArea>Department of Nephrology, Postgraduate Institute of Medical Education and Research, Chandigarh</wicri:regionArea><wicri:noRegion>Chandigarh</wicri:noRegion></affiliation></author><author><name sortKey="Singh, Parmeshar" sort="Singh, Parmeshar" uniqKey="Singh P" first="Parmeshar" last="Singh">Parmeshar Singh</name><affiliation wicri:level="1"><nlm:affiliation>Department of Nephrology, Postgraduate Institute of Medical Education and Research, Chandigarh, India.</nlm:affiliation><country xml:lang="fr">Inde</country><wicri:regionArea>Department of Nephrology, Postgraduate Institute of Medical Education and Research, Chandigarh</wicri:regionArea><wicri:noRegion>Chandigarh</wicri:noRegion></affiliation></author><author><name sortKey="Bi, Hayath Peta" sort="Bi, Hayath Peta" uniqKey="Bi H" first="Hayath Peta" last="Bi">Hayath Peta Bi</name><affiliation wicri:level="1"><nlm:affiliation>Department of Rheumatology, Nizam Institute of Medical Sciences, Hyderabad, India.</nlm:affiliation><country xml:lang="fr">Inde</country><wicri:regionArea>Department of Rheumatology, Nizam Institute of Medical Sciences, Hyderabad</wicri:regionArea><wicri:noRegion>Hyderabad</wicri:noRegion></affiliation></author><author><name sortKey="Shivanna, Archana" sort="Shivanna, Archana" uniqKey="Shivanna A" first="Archana" last="Shivanna">Archana Shivanna</name><affiliation wicri:level="1"><nlm:affiliation>Department of Clinical Immunology and Rheumatology, St John's Medical College Hospital, Bengaluru, India.</nlm:affiliation><country xml:lang="fr">Inde</country><wicri:regionArea>Department of Clinical Immunology and Rheumatology, St John's Medical College Hospital, Bengaluru</wicri:regionArea><wicri:noRegion>Bengaluru</wicri:noRegion></affiliation></author><author><name sortKey="Kavadichanda, Chengappa" sort="Kavadichanda, Chengappa" uniqKey="Kavadichanda C" first="Chengappa" last="Kavadichanda">Chengappa Kavadichanda</name><affiliation wicri:level="1"><nlm:affiliation>Department of Clinical Immunology, JIPMER, Puducherry, India.</nlm:affiliation><country xml:lang="fr">Inde</country><wicri:regionArea>Department of Clinical Immunology, JIPMER, Puducherry</wicri:regionArea><wicri:noRegion>Puducherry</wicri:noRegion></affiliation></author><author><name sortKey="Tripathy, Saumya Ranjan" sort="Tripathy, Saumya Ranjan" uniqKey="Tripathy S" first="Saumya Ranjan" last="Tripathy">Saumya Ranjan Tripathy</name><affiliation><nlm:affiliation>Department of Rheumatology, SCB Medical College, Cuttack, Inida.</nlm:affiliation><wicri:noCountry code="subField">Inida</wicri:noCountry></affiliation></author><author><name sortKey="Parthasarathy, Janani" sort="Parthasarathy, Janani" uniqKey="Parthasarathy J" first="Janani" last="Parthasarathy">Janani Parthasarathy</name><affiliation wicri:level="1"><nlm:affiliation>Department of Clinical Immunology and Rheumatology, Christian Medical College, Vellore, India.</nlm:affiliation><country xml:lang="fr">Inde</country><wicri:regionArea>Department of Clinical Immunology and Rheumatology, Christian Medical College, Vellore</wicri:regionArea><wicri:noRegion>Vellore</wicri:noRegion></affiliation></author><author><name sortKey="Tota, Sneha" sort="Tota, Sneha" uniqKey="Tota S" first="Sneha" last="Tota">Sneha Tota</name><affiliation wicri:level="1"><nlm:affiliation>Department of Clinical Immunology and Rheumatology, Sanjay Gandhi Postgraduate Institute of Medical Sciences, Lucknow, India.</nlm:affiliation><country xml:lang="fr">Inde</country><wicri:regionArea>Department of Clinical Immunology and Rheumatology, Sanjay Gandhi Postgraduate Institute of Medical Sciences, Lucknow</wicri:regionArea><wicri:noRegion>Lucknow</wicri:noRegion></affiliation></author><author><name sortKey="Maurya, Supriya" sort="Maurya, Supriya" uniqKey="Maurya S" first="Supriya" last="Maurya">Supriya Maurya</name><affiliation wicri:level="1"><nlm:affiliation>Department of Clinical Immunology and Rheumatology, Sanjay Gandhi Postgraduate Institute of Medical Sciences, Lucknow, India.</nlm:affiliation><country xml:lang="fr">Inde</country><wicri:regionArea>Department of Clinical Immunology and Rheumatology, Sanjay Gandhi Postgraduate Institute of Medical Sciences, Lucknow</wicri:regionArea><wicri:noRegion>Lucknow</wicri:noRegion></affiliation></author><author><name sortKey="Vijayalekshmi, Vishnupriya" sort="Vijayalekshmi, Vishnupriya" uniqKey="Vijayalekshmi V" first="Vishnupriya" last="Vijayalekshmi">Vishnupriya Vijayalekshmi</name><affiliation wicri:level="1"><nlm:affiliation>Department of Rheumatology, All India Institute of Medical Sciences, New Delhi, India.</nlm:affiliation><country xml:lang="fr">Inde</country><wicri:regionArea>Department of Rheumatology, All India Institute of Medical Sciences, New Delhi</wicri:regionArea><wicri:noRegion>New Delhi</wicri:noRegion></affiliation></author><author><name sortKey="Bhavani, D" sort="Bhavani, D" uniqKey="Bhavani D" first="D" last="Bhavani">D. Bhavani</name><affiliation wicri:level="1"><nlm:affiliation>Department of Rheumatology, Nizam Institute of Medical Sciences, Hyderabad, India.</nlm:affiliation><country xml:lang="fr">Inde</country><wicri:regionArea>Department of Rheumatology, Nizam Institute of Medical Sciences, Hyderabad</wicri:regionArea><wicri:noRegion>Hyderabad</wicri:noRegion></affiliation></author><author><name sortKey="Jain, Avinash" sort="Jain, Avinash" uniqKey="Jain A" first="Avinash" last="Jain">Avinash Jain</name><affiliation wicri:level="1"><nlm:affiliation>Department of Medicine, Division of Clinical Immunology and Rheumatology, SMS Medical College, Jaipur, India.</nlm:affiliation><country xml:lang="fr">Inde</country><wicri:regionArea>Department of Medicine, Division of Clinical Immunology and Rheumatology, SMS Medical College, Jaipur</wicri:regionArea><wicri:noRegion>Jaipur</wicri:noRegion></affiliation></author><author><name sortKey="Gupta, Ranjan" sort="Gupta, Ranjan" uniqKey="Gupta R" first="Ranjan" last="Gupta">Ranjan Gupta</name><affiliation wicri:level="1"><nlm:affiliation>Department of Rheumatology, All India Institute of Medical Sciences, New Delhi, India.</nlm:affiliation><country xml:lang="fr">Inde</country><wicri:regionArea>Department of Rheumatology, All India Institute of Medical Sciences, New Delhi</wicri:regionArea><wicri:noRegion>New Delhi</wicri:noRegion></affiliation></author><author><name sortKey="Danda, Debashish" sort="Danda, Debashish" uniqKey="Danda D" first="Debashish" last="Danda">Debashish Danda</name><affiliation wicri:level="1"><nlm:affiliation>Department of Clinical Immunology and Rheumatology, Christian Medical College, Vellore, India.</nlm:affiliation><country xml:lang="fr">Inde</country><wicri:regionArea>Department of Clinical Immunology and Rheumatology, Christian Medical College, Vellore</wicri:regionArea><wicri:noRegion>Vellore</wicri:noRegion></affiliation></author><author><name sortKey="Rajasekhar, Liza" sort="Rajasekhar, Liza" uniqKey="Rajasekhar L" first="Liza" last="Rajasekhar">Liza Rajasekhar</name><affiliation wicri:level="1"><nlm:affiliation>Department of Rheumatology, Nizam Institute of Medical Sciences, Hyderabad, India.</nlm:affiliation><country xml:lang="fr">Inde</country><wicri:regionArea>Department of Rheumatology, Nizam Institute of Medical Sciences, Hyderabad</wicri:regionArea><wicri:noRegion>Hyderabad</wicri:noRegion></affiliation></author><author><name sortKey="Negi, Vir Singh" sort="Negi, Vir Singh" uniqKey="Negi V" first="Vir Singh" last="Negi">Vir Singh Negi</name><affiliation wicri:level="1"><nlm:affiliation>Department of Clinical Immunology, JIPMER, Puducherry, India.</nlm:affiliation><country xml:lang="fr">Inde</country><wicri:regionArea>Department of Clinical Immunology, JIPMER, Puducherry</wicri:regionArea><wicri:noRegion>Puducherry</wicri:noRegion></affiliation></author><author><name sortKey="Shobha, Vineeta" sort="Shobha, Vineeta" uniqKey="Shobha V" first="Vineeta" last="Shobha">Vineeta Shobha</name><affiliation wicri:level="1"><nlm:affiliation>Department of Clinical Immunology and Rheumatology, St John's Medical College Hospital, Bengaluru, India.</nlm:affiliation><country xml:lang="fr">Inde</country><wicri:regionArea>Department of Clinical Immunology and Rheumatology, St John's Medical College Hospital, Bengaluru</wicri:regionArea><wicri:noRegion>Bengaluru</wicri:noRegion></affiliation></author><author><name sortKey="Das, Bidyut" sort="Das, Bidyut" uniqKey="Das B" first="Bidyut" last="Das">Bidyut Das</name><affiliation><nlm:affiliation>Department of Rheumatology, SCB Medical College, Cuttack, Inida.</nlm:affiliation><wicri:noCountry code="subField">Inida</wicri:noCountry></affiliation></author><author><name sortKey="Aggarwal, Amita" sort="Aggarwal, Amita" uniqKey="Aggarwal A" first="Amita" last="Aggarwal">Amita Aggarwal</name><affiliation wicri:level="1"><nlm:affiliation>Department of Clinical Immunology and Rheumatology, Sanjay Gandhi Postgraduate Institute of Medical Sciences, Lucknow, India.</nlm:affiliation><country xml:lang="fr">Inde</country><wicri:regionArea>Department of Clinical Immunology and Rheumatology, Sanjay Gandhi Postgraduate Institute of Medical Sciences, Lucknow</wicri:regionArea><wicri:noRegion>Lucknow</wicri:noRegion></affiliation></author></analytic><series><title level="j">Lupus</title><idno type="eISSN">1477-0962</idno><imprint><date when="2021" type="published">2021</date></imprint></series></biblStruct></sourceDesc></fileDesc><profileDesc><textClass><keywords scheme="KwdEn" xml:lang="en"><term>Adolescent (MeSH)</term><term>Adult (MeSH)</term><term>COVID-19 (MeSH)</term><term>Female (MeSH)</term><term>Humans (MeSH)</term><term>India (MeSH)</term><term>Lupus Erythematosus, Systemic (psychology)</term><term>Male (MeSH)</term><term>Middle Aged (MeSH)</term><term>Pandemics (MeSH)</term><term>Registries (MeSH)</term><term>Young Adult (MeSH)</term></keywords><keywords scheme="KwdFr" xml:lang="fr"><term>Adolescent (MeSH)</term><term>Adulte (MeSH)</term><term>Adulte d'âge moyen (MeSH)</term><term>Enregistrements (MeSH)</term><term>Femelle (MeSH)</term><term>Humains (MeSH)</term><term>Inde (MeSH)</term><term>Jeune adulte (MeSH)</term><term>Lupus érythémateux disséminé (psychologie)</term><term>Mâle (MeSH)</term><term>Pandémies (MeSH)</term></keywords><keywords scheme="MESH" type="geographic" xml:lang="en"><term>India</term></keywords><keywords scheme="MESH" qualifier="psychologie" xml:lang="fr"><term>Lupus érythémateux disséminé</term></keywords><keywords scheme="MESH" qualifier="psychology" xml:lang="en"><term>Lupus Erythematosus, Systemic</term></keywords><keywords scheme="MESH" xml:lang="en"><term>Adolescent</term><term>Adult</term><term>COVID-19</term><term>Female</term><term>Humans</term><term>Male</term><term>Middle Aged</term><term>Pandemics</term><term>Registries</term><term>Young Adult</term></keywords><keywords scheme="MESH" xml:lang="fr"><term>Adolescent</term><term>Adulte</term><term>Adulte d'âge moyen</term><term>Enregistrements</term><term>Femelle</term><term>Humains</term><term>Inde</term><term>Jeune adulte</term><term>Mâle</term><term>Pandémies</term></keywords><keywords scheme="Wicri" type="geographic" xml:lang="fr"><term>Inde</term></keywords></textClass></profileDesc></teiHeader><front><div type="abstract" xml:lang="en"><p><b>INTRODUCTION</b></p><p>The ongoing pandemic of COVID-19 has led to severe disruption of healthcare services worldwide. We conducted this study to assess the impact of COVID-19 pandemic on the management of Systemic Lupus Erythematosus (SLE) patients who were enrolled in the nation-wide inception cohort.</p></div><div type="abstract" xml:lang="en"><p><b>METHODS</b></p><p>A questionnaire was administered to the SLE patients enrolled in the inception cohort. Questions related to the effect on disease activity, preventive measures adopted against COVID-19, the incidence of COVID-19, hardships faced in getting access to health care professionals and availability of medicines, adherence, fear of COVID-19 and the potential benefits of being part of the registry.</p></div><div type="abstract" xml:lang="en"><p><b>RESULTS</b></p><p>A total of 1040 (90% females) patients completed the questionnaire. The mean age was 27.5 ± 19.1 years and the mean disease duration was 1.25 years. Twenty-Four (2.3%) patients had developed fever (>1 day) during this period, including one patient with additional symptoms of diarrhoea and anosmia, however, none of the patients developed COVID-19 infection. 262 patients (25.2%) reported financial difficulty during this period and patients reported an average excess expenditure of at least 2255.45 INR ($30) per month. 378 patients (36%) reported problems in getting their prescribed medicines due to lockdown. Of these, 167 (40%) patients needed to change their medication schedule due to this non-availability. Almost 54% of patients missed their scheduled follow up visits during the lockdown period and 37% of patients were unable to get their investigations done due to closure of laboratories and hospitals. 266 patients (25.5%) reported worsening of various symptoms of SLE during this period. Almost 61% patients felt confident that being associated with the inception cohort had helped them in managing their disease better during this period of lockdown as they received help in the form of timely and frequent telephonic consults, assistance in making the medicines available, and regular counselling resulting in abetment of their fears and anxieties.</p></div><div type="abstract" xml:lang="en"><p><b>CONCLUSION</b></p><p>The current COVID-19 pandemic has made a huge impact on our SLE patients. Patients faced difficulty in the availability of medicines, missed the doses of medicines, had financial constraints, and spent more money on health during the pandemic.</p></div></front></TEI><pubmed><MedlineCitation Status="MEDLINE" Owner="NLM"><PMID Version="1">33019877</PMID><DateCompleted><Year>2020</Year><Month>12</Month><Day>30</Day></DateCompleted><DateRevised><Year>2020</Year><Month>12</Month><Day>30</Day></DateRevised><Article PubModel="Print-Electronic"><Journal><ISSN IssnType="Electronic">1477-0962</ISSN><JournalIssue CitedMedium="Internet"><Volume>30</Volume><Issue>1</Issue><PubDate><Year>2021</Year><Month>Jan</Month></PubDate></JournalIssue><Title>Lupus</Title><ISOAbbreviation>Lupus</ISOAbbreviation></Journal><ArticleTitle>Impact of the COVID-19 pandemic on patients with systemic lupus erythematosus: Observations from an Indian inception cohort.</ArticleTitle><Pagination><MedlinePgn>158-164</MedlinePgn></Pagination><ELocationID EIdType="doi" ValidYN="Y">10.1177/0961203320962855</ELocationID><Abstract><AbstractText Label="INTRODUCTION" NlmCategory="BACKGROUND">The ongoing pandemic of COVID-19 has led to severe disruption of healthcare services worldwide. We conducted this study to assess the impact of COVID-19 pandemic on the management of Systemic Lupus Erythematosus (SLE) patients who were enrolled in the nation-wide inception cohort.</AbstractText><AbstractText Label="METHODS" NlmCategory="METHODS">A questionnaire was administered to the SLE patients enrolled in the inception cohort. Questions related to the effect on disease activity, preventive measures adopted against COVID-19, the incidence of COVID-19, hardships faced in getting access to health care professionals and availability of medicines, adherence, fear of COVID-19 and the potential benefits of being part of the registry.</AbstractText><AbstractText Label="RESULTS" NlmCategory="RESULTS">A total of 1040 (90% females) patients completed the questionnaire. The mean age was 27.5 ± 19.1 years and the mean disease duration was 1.25 years. Twenty-Four (2.3%) patients had developed fever (>1 day) during this period, including one patient with additional symptoms of diarrhoea and anosmia, however, none of the patients developed COVID-19 infection. 262 patients (25.2%) reported financial difficulty during this period and patients reported an average excess expenditure of at least 2255.45 INR ($30) per month. 378 patients (36%) reported problems in getting their prescribed medicines due to lockdown. Of these, 167 (40%) patients needed to change their medication schedule due to this non-availability. Almost 54% of patients missed their scheduled follow up visits during the lockdown period and 37% of patients were unable to get their investigations done due to closure of laboratories and hospitals. 266 patients (25.5%) reported worsening of various symptoms of SLE during this period. Almost 61% patients felt confident that being associated with the inception cohort had helped them in managing their disease better during this period of lockdown as they received help in the form of timely and frequent telephonic consults, assistance in making the medicines available, and regular counselling resulting in abetment of their fears and anxieties.</AbstractText><AbstractText Label="CONCLUSION" NlmCategory="CONCLUSIONS">The current COVID-19 pandemic has made a huge impact on our SLE patients. Patients faced difficulty in the availability of medicines, missed the doses of medicines, had financial constraints, and spent more money on health during the pandemic.</AbstractText></Abstract><AuthorList CompleteYN="Y"><Author ValidYN="Y"><LastName>Rathi</LastName><ForeName>Manish</ForeName><Initials>M</Initials><Identifier Source="ORCID">https://orcid.org/0000-0002-2642-8895</Identifier><AffiliationInfo><Affiliation>Department of Nephrology, Postgraduate Institute of Medical Education and Research, Chandigarh, India.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Singh</LastName><ForeName>Parmeshar</ForeName><Initials>P</Initials><AffiliationInfo><Affiliation>Department of Nephrology, Postgraduate Institute of Medical Education and Research, Chandigarh, India.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Bi</LastName><ForeName>Hayath Peta</ForeName><Initials>HP</Initials><AffiliationInfo><Affiliation>Department of Rheumatology, Nizam Institute of Medical Sciences, Hyderabad, India.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Shivanna</LastName><ForeName>Archana</ForeName><Initials>A</Initials><AffiliationInfo><Affiliation>Department of Clinical Immunology and Rheumatology, St John's Medical College Hospital, Bengaluru, India.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Kavadichanda</LastName><ForeName>Chengappa</ForeName><Initials>C</Initials><AffiliationInfo><Affiliation>Department of Clinical Immunology, JIPMER, Puducherry, India.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Tripathy</LastName><ForeName>Saumya Ranjan</ForeName><Initials>SR</Initials><AffiliationInfo><Affiliation>Department of Rheumatology, SCB Medical College, Cuttack, Inida.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Parthasarathy</LastName><ForeName>Janani</ForeName><Initials>J</Initials><AffiliationInfo><Affiliation>Department of Clinical Immunology and Rheumatology, Christian Medical College, Vellore, India.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Tota</LastName><ForeName>Sneha</ForeName><Initials>S</Initials><AffiliationInfo><Affiliation>Department of Clinical Immunology and Rheumatology, Sanjay Gandhi Postgraduate Institute of Medical Sciences, Lucknow, India.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Maurya</LastName><ForeName>Supriya</ForeName><Initials>S</Initials><AffiliationInfo><Affiliation>Department of Clinical Immunology and Rheumatology, Sanjay Gandhi Postgraduate Institute of Medical Sciences, Lucknow, India.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Vijayalekshmi</LastName><ForeName>Vishnupriya</ForeName><Initials>V</Initials><AffiliationInfo><Affiliation>Department of Rheumatology, All India Institute of Medical Sciences, New Delhi, India.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Bhavani</LastName><ForeName>D</ForeName><Initials>D</Initials><AffiliationInfo><Affiliation>Department of Rheumatology, Nizam Institute of Medical Sciences, Hyderabad, India.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Jain</LastName><ForeName>Avinash</ForeName><Initials>A</Initials><AffiliationInfo><Affiliation>Department of Medicine, Division of Clinical Immunology and Rheumatology, SMS Medical College, Jaipur, India.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Gupta</LastName><ForeName>Ranjan</ForeName><Initials>R</Initials><Identifier Source="ORCID">https://orcid.org/0000-0003-3965-5410</Identifier><AffiliationInfo><Affiliation>Department of Rheumatology, All India Institute of Medical Sciences, New Delhi, India.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Danda</LastName><ForeName>Debashish</ForeName><Initials>D</Initials><Identifier Source="ORCID">https://orcid.org/0000-0002-8751-2724</Identifier><AffiliationInfo><Affiliation>Department of Clinical Immunology and Rheumatology, Christian Medical College, Vellore, India.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Rajasekhar</LastName><ForeName>Liza</ForeName><Initials>L</Initials><AffiliationInfo><Affiliation>Department of Rheumatology, Nizam Institute of Medical Sciences, Hyderabad, India.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Negi</LastName><ForeName>Vir Singh</ForeName><Initials>VS</Initials><Identifier Source="ORCID">https://orcid.org/0000-0002-9548-7725</Identifier><AffiliationInfo><Affiliation>Department of Clinical Immunology, JIPMER, Puducherry, India.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Shobha</LastName><ForeName>Vineeta</ForeName><Initials>V</Initials><AffiliationInfo><Affiliation>Department of Clinical Immunology and Rheumatology, St John's Medical College Hospital, Bengaluru, India.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Das</LastName><ForeName>Bidyut</ForeName><Initials>B</Initials><AffiliationInfo><Affiliation>Department of Rheumatology, SCB Medical College, Cuttack, Inida.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Aggarwal</LastName><ForeName>Amita</ForeName><Initials>A</Initials><Identifier Source="ORCID">https://orcid.org/0000-0002-2187-5186</Identifier><AffiliationInfo><Affiliation>Department of Clinical Immunology and Rheumatology, Sanjay Gandhi Postgraduate Institute of Medical Sciences, Lucknow, India.</Affiliation></AffiliationInfo></Author></AuthorList><Language>eng</Language><PublicationTypeList><PublicationType UI="D016428">Journal Article</PublicationType><PublicationType UI="D016448">Multicenter Study</PublicationType></PublicationTypeList><ArticleDate DateType="Electronic"><Year>2020</Year><Month>10</Month><Day>06</Day></ArticleDate></Article><MedlineJournalInfo><Country>England</Country><MedlineTA>Lupus</MedlineTA><NlmUniqueID>9204265</NlmUniqueID><ISSNLinking>0961-2033</ISSNLinking></MedlineJournalInfo><CitationSubset>IM</CitationSubset><MeshHeadingList><MeshHeading><DescriptorName UI="D000293" MajorTopicYN="N">Adolescent</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D000328" MajorTopicYN="N">Adult</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D000086382" MajorTopicYN="Y">COVID-19</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D005260" MajorTopicYN="N">Female</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D006801" MajorTopicYN="N">Humans</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D007194" MajorTopicYN="N" Type="Geographic">India</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D008180" MajorTopicYN="N">Lupus Erythematosus, Systemic</DescriptorName><QualifierName UI="Q000523" MajorTopicYN="Y">psychology</QualifierName></MeshHeading><MeshHeading><DescriptorName UI="D008297" MajorTopicYN="N">Male</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D008875" MajorTopicYN="N">Middle Aged</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D058873" MajorTopicYN="Y">Pandemics</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D012042" MajorTopicYN="Y">Registries</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D055815" MajorTopicYN="N">Young Adult</DescriptorName></MeshHeading></MeshHeadingList><KeywordList Owner="NOTNLM"><Keyword MajorTopicYN="N">Cohort</Keyword><Keyword MajorTopicYN="N">Corona virus</Keyword><Keyword MajorTopicYN="N">Hydroxychloroquine</Keyword><Keyword MajorTopicYN="N">pandemic</Keyword></KeywordList></MedlineCitation><PubmedData><History><PubMedPubDate PubStatus="pubmed"><Year>2020</Year><Month>10</Month><Day>7</Day><Hour>6</Hour><Minute>0</Minute></PubMedPubDate><PubMedPubDate PubStatus="medline"><Year>2020</Year><Month>12</Month><Day>31</Day><Hour>6</Hour><Minute>0</Minute></PubMedPubDate><PubMedPubDate PubStatus="entrez"><Year>2020</Year><Month>10</Month><Day>6</Day><Hour>5</Hour><Minute>23</Minute></PubMedPubDate></History><PublicationStatus>ppublish</PublicationStatus><ArticleIdList><ArticleId IdType="pubmed">33019877</ArticleId><ArticleId IdType="doi">10.1177/0961203320962855</ArticleId></ArticleIdList></PubmedData></pubmed><affiliations><list><country><li>Inde</li></country></list><tree><noCountry><name sortKey="Das, Bidyut" sort="Das, Bidyut" uniqKey="Das B" first="Bidyut" last="Das">Bidyut Das</name><name sortKey="Tripathy, Saumya Ranjan" sort="Tripathy, Saumya Ranjan" uniqKey="Tripathy S" first="Saumya Ranjan" last="Tripathy">Saumya Ranjan Tripathy</name></noCountry><country name="Inde"><noRegion><name sortKey="Rathi, Manish" sort="Rathi, Manish" uniqKey="Rathi M" first="Manish" last="Rathi">Manish Rathi</name></noRegion><name sortKey="Aggarwal, Amita" sort="Aggarwal, Amita" uniqKey="Aggarwal A" first="Amita" last="Aggarwal">Amita Aggarwal</name><name sortKey="Bhavani, D" sort="Bhavani, D" uniqKey="Bhavani D" first="D" last="Bhavani">D. Bhavani</name><name sortKey="Bi, Hayath Peta" sort="Bi, Hayath Peta" uniqKey="Bi H" first="Hayath Peta" last="Bi">Hayath Peta Bi</name><name sortKey="Danda, Debashish" sort="Danda, Debashish" uniqKey="Danda D" first="Debashish" last="Danda">Debashish Danda</name><name sortKey="Gupta, Ranjan" sort="Gupta, Ranjan" uniqKey="Gupta R" first="Ranjan" last="Gupta">Ranjan Gupta</name><name sortKey="Jain, Avinash" sort="Jain, Avinash" uniqKey="Jain A" first="Avinash" last="Jain">Avinash Jain</name><name sortKey="Kavadichanda, Chengappa" sort="Kavadichanda, Chengappa" uniqKey="Kavadichanda C" first="Chengappa" last="Kavadichanda">Chengappa Kavadichanda</name><name sortKey="Maurya, Supriya" sort="Maurya, Supriya" uniqKey="Maurya S" first="Supriya" last="Maurya">Supriya Maurya</name><name sortKey="Negi, Vir Singh" sort="Negi, Vir Singh" uniqKey="Negi V" first="Vir Singh" last="Negi">Vir Singh Negi</name><name sortKey="Parthasarathy, Janani" sort="Parthasarathy, Janani" uniqKey="Parthasarathy J" first="Janani" last="Parthasarathy">Janani Parthasarathy</name><name sortKey="Rajasekhar, Liza" sort="Rajasekhar, Liza" uniqKey="Rajasekhar L" first="Liza" last="Rajasekhar">Liza Rajasekhar</name><name sortKey="Shivanna, Archana" sort="Shivanna, Archana" uniqKey="Shivanna A" first="Archana" last="Shivanna">Archana Shivanna</name><name sortKey="Shobha, Vineeta" sort="Shobha, Vineeta" uniqKey="Shobha V" first="Vineeta" last="Shobha">Vineeta Shobha</name><name sortKey="Singh, Parmeshar" sort="Singh, Parmeshar" uniqKey="Singh P" first="Parmeshar" last="Singh">Parmeshar Singh</name><name sortKey="Tota, Sneha" sort="Tota, Sneha" uniqKey="Tota S" first="Sneha" last="Tota">Sneha Tota</name><name sortKey="Vijayalekshmi, Vishnupriya" sort="Vijayalekshmi, Vishnupriya" uniqKey="Vijayalekshmi V" first="Vishnupriya" last="Vijayalekshmi">Vishnupriya Vijayalekshmi</name></country></tree></affiliations></record>Pour manipuler ce document sous Unix (Dilib)
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