Capturing patients’ experiences to change Parkinson’s disease care delivery: a multicenter study
Identifieur interne : 000032 ( Pmc/Corpus ); précédent : 000031; suivant : 000033Capturing patients’ experiences to change Parkinson’s disease care delivery: a multicenter study
Auteurs : Martijn Van ; Marjan Faber ; Bart Post ; Michael Okun ; Peter Schmidt ; Marten Munneke ; Bastiaan BloemSource :
- Journal of Neurology [ 0340-5354 ] ; 2015.
Abstract
Capturing patients’ perspectives has become an essential part of a quality of care assessment. The patient centeredness questionnaire for PD (PCQ-PD) has been validated in The Netherlands as an instrument to measure patients’ experiences. This study aims to assess the level of patient centeredness in North American Parkinson centers and to demonstrate the PCQ-PD’s potential as a quality improvement instrument. 20 Parkinson Centers of Excellence participated in a multicenter study. Each center asked 50 consecutive patients to complete the questionnaire. Data analyses included calculating case mix-adjusted scores for overall patient centeredness (scoring range 0–3), six subscales (0–3), and quality improvement (0–9). Each center received a feedback report on their performance. The PCQ-PD was completed by 972 PD patients (median 50 per center, range 37–58). Significant differences between centers were found for all subscales, except for emotional support (
The online version of this article (doi:10.1007/s00415-015-7877-2) contains supplementary material, which is available to authorized users.
Url:
DOI: 10.1007/s00415-015-7877-2
PubMed: 26292793
PubMed Central: 4639577
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