Physician privacy concerns when disclosing patient data for public health purposes during a pandemic influenza outbreak.
Identifieur interne : 000527 ( Main/Exploration ); précédent : 000526; suivant : 000528Physician privacy concerns when disclosing patient data for public health purposes during a pandemic influenza outbreak.
Auteurs : Khaled El Emam [Canada] ; Jay Mercer ; Katherine Moreau ; Inese Grava-Gubins ; David Buckeridge ; Elizabeth JonkerSource :
- BMC public health [ 1471-2458 ] ; 2011.
Descripteurs français
- KwdFr :
- Attitude du personnel soignant (MeSH), Canada (épidémiologie), Confidentialité (éthique), Enquêtes et questionnaires (MeSH), Femelle (MeSH), Grippe humaine (épidémiologie), Groupes de discussion (MeSH), Humains (MeSH), Mâle (MeSH), Médecins (MeSH), Santé publique (MeSH), Sous-type H1N1 du virus de la grippe A (MeSH), Épidémies de maladies (MeSH).
- MESH :
- Wicri :
- geographic : Canada.
English descriptors
- KwdEn :
- Attitude of Health Personnel (MeSH), Canada (epidemiology), Confidentiality (ethics), Disease Outbreaks (MeSH), Female (MeSH), Focus Groups (MeSH), Humans (MeSH), Influenza A Virus, H1N1 Subtype (MeSH), Influenza, Human (epidemiology), Male (MeSH), Physicians (MeSH), Public Health (MeSH), Surveys and Questionnaires (MeSH).
- MESH :
- geographic , epidemiology : Canada.
- epidemiology : Influenza, Human.
- ethics : Confidentiality.
- Attitude of Health Personnel, Disease Outbreaks, Female, Focus Groups, Humans, Influenza A Virus, H1N1 Subtype, Male, Physicians, Public Health, Surveys and Questionnaires.
Abstract
BACKGROUND
Privacy concerns by providers have been a barrier to disclosing patient information for public health purposes. This is the case even for mandated notifiable disease reporting. In the context of a pandemic it has been argued that the public good should supersede an individual's right to privacy. The precise nature of these provider privacy concerns, and whether they are diluted in the context of a pandemic are not known. Our objective was to understand the privacy barriers which could potentially influence family physicians' reporting of patient-level surveillance data to public health agencies during the Fall 2009 pandemic H1N1 influenza outbreak.
METHODS
Thirty seven family doctors participated in a series of five focus groups between October 29-31 2009. They also completed a survey about the data they were willing to disclose to public health units. Descriptive statistics were used to summarize the amount of patient detail the participants were willing to disclose, factors that would facilitate data disclosure, and the consensus on those factors. The analysis of the qualitative data was based on grounded theory.
RESULTS
The family doctors were reluctant to disclose patient data to public health units. This was due to concerns about the extent to which public health agencies are dependable to protect health information (trusting beliefs), and the possibility of loss due to disclosing health information (risk beliefs). We identified six specific actions that public health units can take which would affect these beliefs, and potentially increase the willingness to disclose patient information for public health purposes.
CONCLUSIONS
The uncertainty surrounding a pandemic of a new strain of influenza has not changed the privacy concerns of physicians about disclosing patient data. It is important to address these concerns to ensure reliable reporting during future outbreaks.
DOI: 10.1186/1471-2458-11-454
PubMed: 21658256
PubMed Central: PMC3130674
Affiliations:
Links toward previous steps (curation, corpus...)
Le document en format XML
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(MeSH)</term><term>Influenza A Virus, H1N1 Subtype (MeSH)</term><term>Influenza, Human (epidemiology)</term><term>Male (MeSH)</term><term>Physicians (MeSH)</term><term>Public Health (MeSH)</term><term>Surveys and Questionnaires (MeSH)</term></keywords><keywords scheme="KwdFr" xml:lang="fr"><term>Attitude du personnel soignant (MeSH)</term><term>Canada (épidémiologie)</term><term>Confidentialité (éthique)</term><term>Enquêtes et questionnaires (MeSH)</term><term>Femelle (MeSH)</term><term>Grippe humaine (épidémiologie)</term><term>Groupes de discussion (MeSH)</term><term>Humains (MeSH)</term><term>Mâle (MeSH)</term><term>Médecins (MeSH)</term><term>Santé publique (MeSH)</term><term>Sous-type H1N1 du virus de la grippe A (MeSH)</term><term>Épidémies de maladies (MeSH)</term></keywords><keywords scheme="MESH" type="geographic" qualifier="epidemiology" xml:lang="en"><term>Canada</term></keywords><keywords scheme="MESH" qualifier="epidemiology" xml:lang="en"><term>Influenza, 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maladies</term></keywords><keywords scheme="Wicri" type="geographic" xml:lang="fr"><term>Canada</term></keywords></textClass></profileDesc></teiHeader><front><div type="abstract" xml:lang="en"><p><b>BACKGROUND</b></p><p>Privacy concerns by providers have been a barrier to disclosing patient information for public health purposes. This is the case even for mandated notifiable disease reporting. In the context of a pandemic it has been argued that the public good should supersede an individual's right to privacy. The precise nature of these provider privacy concerns, and whether they are diluted in the context of a pandemic are not known. Our objective was to understand the privacy barriers which could potentially influence family physicians' reporting of patient-level surveillance data to public health agencies during the Fall 2009 pandemic H1N1 influenza outbreak.</p></div><div type="abstract" xml:lang="en"><p><b>METHODS</b></p><p>Thirty seven family doctors participated in a series of five focus groups between October 29-31 2009. They also completed a survey about the data they were willing to disclose to public health units. Descriptive statistics were used to summarize the amount of patient detail the participants were willing to disclose, factors that would facilitate data disclosure, and the consensus on those factors. The analysis of the qualitative data was based on grounded theory.</p></div><div type="abstract" xml:lang="en"><p><b>RESULTS</b></p><p>The family doctors were reluctant to disclose patient data to public health units. This was due to concerns about the extent to which public health agencies are dependable to protect health information (trusting beliefs), and the possibility of loss due to disclosing health information (risk beliefs). We identified six specific actions that public health units can take which would affect these beliefs, and potentially increase the willingness to disclose patient information for public health purposes.</p></div><div type="abstract" xml:lang="en"><p><b>CONCLUSIONS</b></p><p>The uncertainty surrounding a pandemic of a new strain of influenza has not changed the privacy concerns of physicians about disclosing patient data. It is important to address these concerns to ensure reliable reporting during future outbreaks.</p></div></front></TEI><pubmed><MedlineCitation Status="MEDLINE" Owner="NLM"><PMID Version="1">21658256</PMID><DateCompleted><Year>2011</Year><Month>10</Month><Day>26</Day></DateCompleted><DateRevised><Year>2019</Year><Month>01</Month><Day>08</Day></DateRevised><Article PubModel="Electronic"><Journal><ISSN IssnType="Electronic">1471-2458</ISSN><JournalIssue CitedMedium="Internet"><Volume>11</Volume><PubDate><Year>2011</Year><Month>Jun</Month><Day>09</Day></PubDate></JournalIssue><Title>BMC public health</Title><ISOAbbreviation>BMC Public Health</ISOAbbreviation></Journal><ArticleTitle>Physician privacy concerns when disclosing patient data for public health purposes during a pandemic influenza outbreak.</ArticleTitle><Pagination><MedlinePgn>454</MedlinePgn></Pagination><ELocationID EIdType="doi" ValidYN="Y">10.1186/1471-2458-11-454</ELocationID><Abstract><AbstractText Label="BACKGROUND" NlmCategory="BACKGROUND">Privacy concerns by providers have been a barrier to disclosing patient information for public health purposes. This is the case even for mandated notifiable disease reporting. In the context of a pandemic it has been argued that the public good should supersede an individual's right to privacy. The precise nature of these provider privacy concerns, and whether they are diluted in the context of a pandemic are not known. Our objective was to understand the privacy barriers which could potentially influence family physicians' reporting of patient-level surveillance data to public health agencies during the Fall 2009 pandemic H1N1 influenza outbreak.</AbstractText><AbstractText Label="METHODS" NlmCategory="METHODS">Thirty seven family doctors participated in a series of five focus groups between October 29-31 2009. They also completed a survey about the data they were willing to disclose to public health units. Descriptive statistics were used to summarize the amount of patient detail the participants were willing to disclose, factors that would facilitate data disclosure, and the consensus on those factors. The analysis of the qualitative data was based on grounded theory.</AbstractText><AbstractText Label="RESULTS" NlmCategory="RESULTS">The family doctors were reluctant to disclose patient data to public health units. This was due to concerns about the extent to which public health agencies are dependable to protect health information (trusting beliefs), and the possibility of loss due to disclosing health information (risk beliefs). We identified six specific actions that public health units can take which would affect these beliefs, and potentially increase the willingness to disclose patient information for public health purposes.</AbstractText><AbstractText Label="CONCLUSIONS" NlmCategory="CONCLUSIONS">The uncertainty surrounding a pandemic of a new strain of influenza has not changed the privacy concerns of physicians about disclosing patient data. 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sort="Grava Gubins, Inese" uniqKey="Grava Gubins I" first="Inese" last="Grava-Gubins">Inese Grava-Gubins</name><name sortKey="Jonker, Elizabeth" sort="Jonker, Elizabeth" uniqKey="Jonker E" first="Elizabeth" last="Jonker">Elizabeth Jonker</name><name sortKey="Mercer, Jay" sort="Mercer, Jay" uniqKey="Mercer J" first="Jay" last="Mercer">Jay Mercer</name><name sortKey="Moreau, Katherine" sort="Moreau, Katherine" uniqKey="Moreau K" first="Katherine" last="Moreau">Katherine Moreau</name></noCountry><country name="Canada"><noRegion><name sortKey="El Emam, Khaled" sort="El Emam, Khaled" uniqKey="El Emam K" first="Khaled" last="El Emam">Khaled El Emam</name></noRegion></country></tree></affiliations></record>Pour manipuler ce document sous Unix (Dilib)
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