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<record><TEI><teiHeader><fileDesc><titleStmt><title xml:lang="en">The patient’s view of recovery: An emerging tool for empowerment through self-knowledge</title><author><name sortKey="Stineman, Margaret G" sort="Stineman, Margaret G" uniqKey="Stineman M" first="Margaret G." last="Stineman">Margaret G. Stineman</name><affiliation><nlm:aff id="A1">Department of Physical Medicine and Rehabilitation, University of Pennsylvania</nlm:aff></affiliation><affiliation><nlm:aff id="A2">Leonard Davis Institute of Health Economics</nlm:aff></affiliation><affiliation><nlm:aff id="A3">Clinical Epidemiology Unit of the Center for Epidemiology and Biostatistics</nlm:aff></affiliation><affiliation><nlm:aff id="A4">Institute on Aging, University of Pennsylvania, USA</nlm:aff></affiliation></author><author><name sortKey="Kurz, Ashley E" sort="Kurz, Ashley E" uniqKey="Kurz A" first="Ashley E." last="Kurz">Ashley E. Kurz</name><affiliation><nlm:aff id="A1">Department of Physical Medicine and Rehabilitation, University of Pennsylvania</nlm:aff></affiliation></author><author><name sortKey="Kelleher, Deirdre" sort="Kelleher, Deirdre" uniqKey="Kelleher D" first="Deirdre" last="Kelleher">Deirdre Kelleher</name><affiliation><nlm:aff id="A1">Department of Physical Medicine and Rehabilitation, University of Pennsylvania</nlm:aff></affiliation></author><author><name sortKey="Kennedy, Bonnie L" sort="Kennedy, Bonnie L" uniqKey="Kennedy B" first="Bonnie L." last="Kennedy">Bonnie L. Kennedy</name><affiliation><nlm:aff id="A1">Department of Physical Medicine and Rehabilitation, University of Pennsylvania</nlm:aff></affiliation></author></titleStmt><publicationStmt><idno type="wicri:source">PMC</idno><idno type="pmid">17852255</idno><idno type="pmc">2896255</idno><idno type="url">http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2896255</idno><idno type="RBID">PMC:2896255</idno><idno type="doi">10.1080/09638280701456112</idno><date when="2008">2008</date><idno type="wicri:Area/Pmc/Corpus">002135</idno><idno type="wicri:explorRef" wicri:stream="Pmc" wicri:step="Corpus" wicri:corpus="PMC">002135</idno></publicationStmt><sourceDesc><biblStruct><analytic><title xml:lang="en" level="a" type="main">The patient’s view of recovery: An emerging tool for empowerment through self-knowledge</title><author><name sortKey="Stineman, Margaret G" sort="Stineman, Margaret G" uniqKey="Stineman M" first="Margaret G." last="Stineman">Margaret G. Stineman</name><affiliation><nlm:aff id="A1">Department of Physical Medicine and Rehabilitation, University of Pennsylvania</nlm:aff></affiliation><affiliation><nlm:aff id="A2">Leonard Davis Institute of Health Economics</nlm:aff></affiliation><affiliation><nlm:aff id="A3">Clinical Epidemiology Unit of the Center for Epidemiology and Biostatistics</nlm:aff></affiliation><affiliation><nlm:aff id="A4">Institute on Aging, University of Pennsylvania, USA</nlm:aff></affiliation></author><author><name sortKey="Kurz, Ashley E" sort="Kurz, Ashley E" uniqKey="Kurz A" first="Ashley E." last="Kurz">Ashley E. Kurz</name><affiliation><nlm:aff id="A1">Department of Physical Medicine and Rehabilitation, University of Pennsylvania</nlm:aff></affiliation></author><author><name sortKey="Kelleher, Deirdre" sort="Kelleher, Deirdre" uniqKey="Kelleher D" first="Deirdre" last="Kelleher">Deirdre Kelleher</name><affiliation><nlm:aff id="A1">Department of Physical Medicine and Rehabilitation, University of Pennsylvania</nlm:aff></affiliation></author><author><name sortKey="Kennedy, Bonnie L" sort="Kennedy, Bonnie L" uniqKey="Kennedy B" first="Bonnie L." last="Kennedy">Bonnie L. Kennedy</name><affiliation><nlm:aff id="A1">Department of Physical Medicine and Rehabilitation, University of Pennsylvania</nlm:aff></affiliation></author></analytic><series><title level="j">Disability and rehabilitation</title><idno type="ISSN">0963-8288</idno><idno type="eISSN">1464-5165</idno><imprint><date when="2008">2008</date></imprint></series></biblStruct></sourceDesc></fileDesc><profileDesc><textClass></textClass></profileDesc></teiHeader><front><div type="abstract" xml:lang="en"><sec id="S1"><title>Purpose</title><p id="P1">To introduce Recovery Preference Exploration (RPE) as a new technique for studying the personal significance of being able to perform one type of functional activity over others. To determine if patients’ concepts of function reflect the ADL, sphincter management, mobility and cognition (ASMC) domains established through the factor analyses of observed patient performance.</p></sec><sec sec-type="methods" id="S2"><title>Methods</title><p id="P2">RPE involves an adapted card sort procedure. Patients sorted 18 cards each listing a single functional skill such as eating, walking, and memory into subjectively meaningful groups of activities based on how they see those skills relating to one another in their daily lives. They then ordered the groups from most to least important. Recovery preferences were explored for 32 patients with disabilities resulting from neurological or other conditions undergoing inpatient rehabilitation in the USA.</p></sec><sec id="S3"><title>Results</title><p id="P3">The abilities to eat, bathe and toilet were the activities most frequently placed in the most valued pile. At times, the patient’s card sorts mirrored the ASMC domains. At other times, patients grouped activities that tended to occur in a particular place or that were linked through cause and effect. Patients’ narrative explanations reflected the uniqueness of their personal circumstances.</p></sec><sec id="S4"><title>Conclusions</title><p id="P4">RPE uncovers the life contexts that underlie patients’ subjective beliefs about the meaning of being able to perform various types of activities. RPE might be applied in clinical practice and research to explore the idiosyncratic aspects of disability.</p></sec></div></front></TEI><pmc article-type="research-article" xml:lang="EN"><pmc-comment>The publisher of this article does not allow downloading of the full text in XML form.</pmc-comment>
<pmc-dir>properties manuscript</pmc-dir>
<front><journal-meta><journal-id journal-id-type="nlm-journal-id">9207179</journal-id><journal-id journal-id-type="pubmed-jr-id">1245</journal-id><journal-id journal-id-type="nlm-ta">Disabil Rehabil</journal-id><journal-title>Disability and rehabilitation</journal-title><issn pub-type="ppub">0963-8288</issn><issn pub-type="epub">1464-5165</issn></journal-meta><article-meta><article-id pub-id-type="pmid">17852255</article-id><article-id pub-id-type="pmc">2896255</article-id><article-id pub-id-type="doi">10.1080/09638280701456112</article-id><article-id pub-id-type="manuscript">NIHMS162273</article-id><article-categories><subj-group subj-group-type="heading"><subject>Article</subject></subj-group></article-categories><title-group><article-title>The patient’s view of recovery: An emerging tool for empowerment through self-knowledge</article-title></title-group><contrib-group><contrib contrib-type="author"><name><surname>STINEMAN</surname><given-names>MARGARET G.</given-names></name><xref rid="A1" ref-type="aff">1</xref><xref rid="A2" ref-type="aff">2</xref><xref rid="A3" ref-type="aff">3</xref><xref rid="A4" ref-type="aff">4</xref></contrib><contrib contrib-type="author"><name><surname>KURZ</surname><given-names>ASHLEY E.</given-names></name><xref rid="A1" ref-type="aff">1</xref></contrib><contrib contrib-type="author"><name><surname>KELLEHER</surname><given-names>DEIRDRE</given-names></name><xref rid="A1" ref-type="aff">1</xref></contrib><contrib contrib-type="author"><name><surname>KENNEDY</surname><given-names>BONNIE L.</given-names></name><xref rid="A1" ref-type="aff">1</xref></contrib></contrib-group><aff id="A1"><label>1</label>Department of Physical Medicine and Rehabilitation, University of Pennsylvania</aff><aff id="A2"><label>2</label>Leonard Davis Institute of Health Economics</aff><aff id="A3"><label>3</label>Clinical Epidemiology Unit of the Center for Epidemiology and Biostatistics</aff><aff id="A4"><label>4</label>Institute on Aging, University of Pennsylvania, USA</aff><author-notes><corresp id="FN1">Correspondence: Margaret G. Stineman, M.D., 101 Ralston-Penn Center, 3615 Chestnut Street Philadelphia, PA 19104-2676, USA. Tel: +1(215)898 6272. Fax: +1(215)573 2017. <email>mstinema@mail.med.upenn.edu</email></corresp></author-notes><pub-date pub-type="nihms-submitted"><day>19</day><month>4</month><year>2010</year></pub-date><pub-date pub-type="ppub"><year>2008</year></pub-date><pub-date pub-type="pmc-release"><day>2</day><month>7</month><year>2010</year></pub-date><volume>30</volume><issue>9</issue><fpage>679</fpage><lpage>688</lpage><permissions><copyright-statement>© 2008 Informa UK Ltd.</copyright-statement><copyright-year>2008</copyright-year></permissions><abstract><sec id="S1"><title>Purpose</title><p id="P1">To introduce Recovery Preference Exploration (RPE) as a new technique for studying the personal significance of being able to perform one type of functional activity over others. To determine if patients’ concepts of function reflect the ADL, sphincter management, mobility and cognition (ASMC) domains established through the factor analyses of observed patient performance.</p></sec><sec sec-type="methods" id="S2"><title>Methods</title><p id="P2">RPE involves an adapted card sort procedure. Patients sorted 18 cards each listing a single functional skill such as eating, walking, and memory into subjectively meaningful groups of activities based on how they see those skills relating to one another in their daily lives. They then ordered the groups from most to least important. Recovery preferences were explored for 32 patients with disabilities resulting from neurological or other conditions undergoing inpatient rehabilitation in the USA.</p></sec><sec id="S3"><title>Results</title><p id="P3">The abilities to eat, bathe and toilet were the activities most frequently placed in the most valued pile. At times, the patient’s card sorts mirrored the ASMC domains. At other times, patients grouped activities that tended to occur in a particular place or that were linked through cause and effect. Patients’ narrative explanations reflected the uniqueness of their personal circumstances.</p></sec><sec id="S4"><title>Conclusions</title><p id="P4">RPE uncovers the life contexts that underlie patients’ subjective beliefs about the meaning of being able to perform various types of activities. RPE might be applied in clinical practice and research to explore the idiosyncratic aspects of disability.</p></sec></abstract><kwd-group><kwd>Rehabilitation</kwd><kwd>patient-centered care</kwd><kwd>attitude to health</kwd><kwd>problem solving</kwd><kwd>activities of daily living</kwd><kwd>urinary incontinence</kwd><kwd>fecal incontinence</kwd><kwd>mobility limitation</kwd><kwd>communication</kwd><kwd>cognition</kwd></kwd-group><contract-num rid="HD1">R21 HD045881-03
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