Enhanced patient reported outcome measurement suitable for head and neck cancer follow-up clinics
Identifieur interne : 001E84 ( Pmc/Checkpoint ); précédent : 001E83; suivant : 001E85Enhanced patient reported outcome measurement suitable for head and neck cancer follow-up clinics
Auteurs : Naseem Ghazali [Royaume-Uni] ; Derek Lowe [Royaume-Uni] ; Simon N. Rogers [Royaume-Uni]Source :
- Head & Neck Oncology [ 1758-3284 ] ; 2012.
Abstract
The ‘Worse-Stable-Better’ (W-S-B) question was introduced to capture patient-perceived change in University of Washington Quality of Life (UW-QOL) domains.
202 head and neck cancer patients in remission prospectively completed UW-QOL and Patients Concerns Inventory (PCI). For each UW-QOL domain, patients indicated whether over the last month things had worsened (W), remained stable (S) or were better (B).
202 patients at 448 attendances selected 1752 PCI items they wanted to discuss in consultation, and 58% (1024/1752) of these were not covered by the UW-QOL. UW-QOL algorithms highlighted another 440 significant problems that the patient did not want to discuss (i.e. the corresponding items on the PCI were not selected).
After making allowance for UW-QOL algorithms to identify 'significant problems' and PCI selection of corresponding issues for discussion there remained clear residual and notable variation in W-S-B responses, in particular to identify patients with significant problems that were getting worse, and patients without significant problems that wanted to discuss issues that were getting worse. Changes in mean UW-QOL scores were notably lower for those getting worse on the W-S-B question, typically by 10 or more units a magnitude that suggests clinically important changes in score.
The W-S-B question adds little questionnaire burden and could help to better identify patients who might benefit from intervention. The results of this study suggest that the UW-QOL with the W-S-B modification should be used together with the PCI to allow optimal identification of issues for patient-clinician discussion during routine outpatient clinics.
Url:
DOI: 10.1186/1758-3284-4-32
PubMed: 22695251
PubMed Central: 3448513
Affiliations:
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PMC:3448513Le document en format XML
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<series><title level="j">Head & Neck Oncology</title>
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<front><div type="abstract" xml:lang="en"><sec><title>Background</title>
<p>The ‘Worse-Stable-Better’ (W-S-B) question was introduced to capture patient-perceived change in University of Washington Quality of Life (UW-QOL) domains.</p>
</sec>
<sec><title>Methods</title>
<p>202 head and neck cancer patients in remission prospectively completed UW-QOL and Patients Concerns Inventory (PCI). For each UW-QOL domain, patients indicated whether over the last month things had worsened (W), remained stable (S) or were better (B).</p>
</sec>
<sec><title>Results</title>
<p>202 patients at 448 attendances selected 1752 PCI items they wanted to discuss in consultation, and 58% (1024/1752) of these were not covered by the UW-QOL. UW-QOL algorithms highlighted another 440 significant problems that the patient did not want to discuss (i.e. the corresponding items on the PCI were not selected).</p>
<p>After making allowance for UW-QOL algorithms to identify 'significant problems' and PCI selection of corresponding issues for discussion there remained clear residual and notable variation in W-S-B responses, in particular to identify patients with significant problems that were getting worse, and patients without significant problems that wanted to discuss issues that were getting worse. Changes in mean UW-QOL scores were notably lower for those getting worse on the W-S-B question, typically by 10 or more units a magnitude that suggests clinically important changes in score.</p>
</sec>
<sec><title>Conclusions</title>
<p>The W-S-B question adds little questionnaire burden and could help to better identify patients who might benefit from intervention. The results of this study suggest that the UW-QOL with the W-S-B modification should be used together with the PCI to allow optimal identification of issues for patient-clinician discussion during routine outpatient clinics.</p>
</sec>
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</front>
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<front><journal-meta><journal-id journal-id-type="nlm-ta">Head Neck Oncol</journal-id>
<journal-id journal-id-type="iso-abbrev">Head Neck Oncol</journal-id>
<journal-title-group><journal-title>Head & Neck Oncology</journal-title>
</journal-title-group>
<issn pub-type="epub">1758-3284</issn>
<publisher><publisher-name>BioMed Central</publisher-name>
</publisher>
</journal-meta>
<article-meta><article-id pub-id-type="pmid">22695251</article-id>
<article-id pub-id-type="pmc">3448513</article-id>
<article-id pub-id-type="publisher-id">1758-3284-4-32</article-id>
<article-id pub-id-type="doi">10.1186/1758-3284-4-32</article-id>
<article-categories><subj-group subj-group-type="heading"><subject>Research</subject>
</subj-group>
</article-categories>
<title-group><article-title>Enhanced patient reported outcome measurement suitable for head and neck cancer follow-up clinics</article-title>
</title-group>
<contrib-group><contrib contrib-type="author" id="A1"><name><surname>Ghazali</surname>
<given-names>Naseem</given-names>
</name>
<xref ref-type="aff" rid="I1">1</xref>
<email>naseemghazali@doctors.org.uk</email>
</contrib>
<contrib contrib-type="author" id="A2"><name><surname>Lowe</surname>
<given-names>Derek</given-names>
</name>
<xref ref-type="aff" rid="I2">2</xref>
<email>astraglobeltd@btconnect.com</email>
</contrib>
<contrib contrib-type="author" corresp="yes" id="A3"><name><surname>Rogers</surname>
<given-names>Simon N</given-names>
</name>
<xref ref-type="aff" rid="I1">1</xref>
<xref ref-type="aff" rid="I2">2</xref>
<email>snrogers@doctors.org.uk</email>
</contrib>
</contrib-group>
<aff id="I1"><label>1</label>
Regional Maxillofacial Unit, University Hospital Aintree, Liverpool, L9 1AE, UK</aff>
<aff id="I2"><label>2</label>
Evidence-Based Practice Research Centre (EPRC), Faculty of Health, Edge Hill University, St Helens Road, Ormskirk, L39 4QP, UK</aff>
<pub-date pub-type="collection"><year>2012</year>
</pub-date>
<pub-date pub-type="epub"><day>13</day>
<month>6</month>
<year>2012</year>
</pub-date>
<volume>4</volume>
<fpage>32</fpage>
<lpage>32</lpage>
<history><date date-type="received"><day>23</day>
<month>5</month>
<year>2012</year>
</date>
<date date-type="accepted"><day>23</day>
<month>5</month>
<year>2012</year>
</date>
</history>
<permissions><copyright-statement>Copyright © 2012 Ghazali et al.; licensee BioMed Central Ltd.</copyright-statement>
<copyright-year>2012</copyright-year>
<copyright-holder>Ghazali et al.; licensee BioMed Central Ltd.</copyright-holder>
<license license-type="open-access" xlink:href="http://creativecommons.org/licenses/by/2.0"><license-p>This is an Open Access article distributed under the terms of the Creative Commons Attribution License (<ext-link ext-link-type="uri" xlink:href="http://creativecommons.org/licenses/by/2.0">http://creativecommons.org/licenses/by/2.0</ext-link>
), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.</license-p>
</license>
</permissions>
<self-uri xlink:href="http://www.headandneckoncology.org/content/4/1/32"></self-uri>
<abstract><sec><title>Background</title>
<p>The ‘Worse-Stable-Better’ (W-S-B) question was introduced to capture patient-perceived change in University of Washington Quality of Life (UW-QOL) domains.</p>
</sec>
<sec><title>Methods</title>
<p>202 head and neck cancer patients in remission prospectively completed UW-QOL and Patients Concerns Inventory (PCI). For each UW-QOL domain, patients indicated whether over the last month things had worsened (W), remained stable (S) or were better (B).</p>
</sec>
<sec><title>Results</title>
<p>202 patients at 448 attendances selected 1752 PCI items they wanted to discuss in consultation, and 58% (1024/1752) of these were not covered by the UW-QOL. UW-QOL algorithms highlighted another 440 significant problems that the patient did not want to discuss (i.e. the corresponding items on the PCI were not selected).</p>
<p>After making allowance for UW-QOL algorithms to identify 'significant problems' and PCI selection of corresponding issues for discussion there remained clear residual and notable variation in W-S-B responses, in particular to identify patients with significant problems that were getting worse, and patients without significant problems that wanted to discuss issues that were getting worse. Changes in mean UW-QOL scores were notably lower for those getting worse on the W-S-B question, typically by 10 or more units a magnitude that suggests clinically important changes in score.</p>
</sec>
<sec><title>Conclusions</title>
<p>The W-S-B question adds little questionnaire burden and could help to better identify patients who might benefit from intervention. The results of this study suggest that the UW-QOL with the W-S-B modification should be used together with the PCI to allow optimal identification of issues for patient-clinician discussion during routine outpatient clinics.</p>
</sec>
</abstract>
<kwd-group><kwd>Health-related quality of life</kwd>
<kwd>Head and neck cancer</kwd>
<kwd>UW-QOL</kwd>
<kwd>Patients Concerns Inventory</kwd>
<kwd>Unmet needs</kwd>
</kwd-group>
</article-meta>
<notes><p>PUBLISHER'S NOTE: Based on the information available to BioMed Central, this article was apparently invited, handled and peer reviewed by Waseem Jerjes, an Editor-in-Chief of the journal at that time. There were no other peer reviewers and the manuscript was accepted without revision.</p>
</notes>
</front>
</pmc>
<affiliations><list><country><li>Royaume-Uni</li>
</country>
</list>
<tree><country name="Royaume-Uni"><noRegion><name sortKey="Ghazali, Naseem" sort="Ghazali, Naseem" uniqKey="Ghazali N" first="Naseem" last="Ghazali">Naseem Ghazali</name>
</noRegion>
<name sortKey="Lowe, Derek" sort="Lowe, Derek" uniqKey="Lowe D" first="Derek" last="Lowe">Derek Lowe</name>
<name sortKey="Rogers, Simon N" sort="Rogers, Simon N" uniqKey="Rogers S" first="Simon N" last="Rogers">Simon N. Rogers</name>
<name sortKey="Rogers, Simon N" sort="Rogers, Simon N" uniqKey="Rogers S" first="Simon N" last="Rogers">Simon N. Rogers</name>
</country>
</tree>
</affiliations>
</record>
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