Living with orofacial conditions: psychological distress and quality of life in adults affected with Treacher Collins syndrome, cherubism, or oligodontia/ectodermal dysplasia—a comparative study
Identifieur interne : 001372 ( Pmc/Checkpoint ); précédent : 001371; suivant : 001373Living with orofacial conditions: psychological distress and quality of life in adults affected with Treacher Collins syndrome, cherubism, or oligodontia/ectodermal dysplasia—a comparative study
Auteurs : Amy Stertun Geirdal [Norvège] ; Solfrid S Rgjerd Saltnes [Norvège] ; Kari Storhaug [Norvège] ; Pamela Sten [Norvège] ; Hilde Nordgarden [Norvège] ; Janicke Liaaen Jensen [Norvège]Source :
- Quality of Life Research [ 0962-9343 ] ; 2014.
Abstract
The relationship between quality of life, psychological distress, and orofacial syndromes in children and adolescents has been reported in several studies. However, little is known about differences in psychological distress and quality of life among adults with different orofacial conditions. Therefore, the aims of this study were to examine and compare these factors among three groups of adults affected by Treacher Collins syndrome (TCS), cherubism, and oligodontia/ectodermal dysplasia (ED).
We included 11 individuals with TCS (mean age 46.9, SD 12.9 years), 15 with cherubism (mean age 50.3, SD 16.8 years), and 49 with oligodontia/ED (mean age 30.7, SD 15.6 years). The respondents completed questionnaires related to psychological distress and quality of life.
The oligodontia/ED group had a significantly higher level of anxiety and worse mental health-related quality of life than both the TCS and cherubism groups. Adults with TCS reported the highest level of depression, and the lowest levels of overall quality of life, well-being, and physical health-related quality of life. The cherubism group displayed the best overall quality of life, well-being, and mental health.
Psychological distress and quality of life differed in various orofacial conditions. This study provided insight into these aspects that may contribute to improved care.
Url:
DOI: 10.1007/s11136-014-0826-1
PubMed: 25344415
PubMed Central: 4366539
Affiliations:
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<sourceDesc><biblStruct><analytic><title xml:lang="en" level="a" type="main">Living with orofacial conditions: psychological distress and quality of life in adults affected with Treacher Collins syndrome, cherubism, or oligodontia/ectodermal dysplasia—a comparative study</title>
<author><name sortKey="Geirdal, Amy Stertun" sort="Geirdal, Amy Stertun" uniqKey="Geirdal A" first="Amy Stertun" last="Geirdal">Amy Stertun Geirdal</name>
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<placeName><settlement type="city">Oslo</settlement>
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<author><name sortKey="Saltnes, Solfrid S Rgjerd" sort="Saltnes, Solfrid S Rgjerd" uniqKey="Saltnes S" first="Solfrid S Rgjerd" last="Saltnes">Solfrid S Rgjerd Saltnes</name>
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<author><name sortKey="Storhaug, Kari" sort="Storhaug, Kari" uniqKey="Storhaug K" first="Kari" last="Storhaug">Kari Storhaug</name>
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<author><name sortKey=" Sten, Pamela" sort=" Sten, Pamela" uniqKey=" Sten P" first="Pamela" last=" Sten">Pamela Sten</name>
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<author><name sortKey="Nordgarden, Hilde" sort="Nordgarden, Hilde" uniqKey="Nordgarden H" first="Hilde" last="Nordgarden">Hilde Nordgarden</name>
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<author><name sortKey="Jensen, Janicke Liaaen" sort="Jensen, Janicke Liaaen" uniqKey="Jensen J" first="Janicke Liaaen" last="Jensen">Janicke Liaaen Jensen</name>
<affiliation wicri:level="3"><nlm:aff id="Aff3">Department of Oral Surgery and Oral Medicine, Faculty of Dentistry, University of Oslo, Oslo, Norway</nlm:aff>
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<series><title level="j">Quality of Life Research</title>
<idno type="ISSN">0962-9343</idno>
<idno type="eISSN">1573-2649</idno>
<imprint><date when="2014">2014</date>
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<front><div type="abstract" xml:lang="en"><sec><title>Purpose</title>
<p>The relationship between quality of life, psychological distress, and orofacial syndromes in children and adolescents has been reported in several studies. However, little is known about differences in psychological distress and quality of life among adults with different orofacial conditions. Therefore, the aims of this study were to examine and compare these factors among three groups of adults affected by Treacher Collins syndrome (TCS), cherubism, and oligodontia/ectodermal dysplasia (ED).</p>
</sec>
<sec><title>Methods</title>
<p>We included 11 individuals with TCS (mean age 46.9, SD 12.9 years), 15 with cherubism (mean age 50.3, SD 16.8 years), and 49 with oligodontia/ED (mean age 30.7, SD 15.6 years). The respondents completed questionnaires related to psychological distress and quality of life.</p>
</sec>
<sec><title>Results</title>
<p>The oligodontia/ED group had a significantly higher level of anxiety and worse mental health-related quality of life than both the TCS and cherubism groups. Adults with TCS reported the highest level of depression, and the lowest levels of overall quality of life, well-being, and physical health-related quality of life. The cherubism group displayed the best overall quality of life, well-being, and mental health.</p>
</sec>
<sec><title>Conclusions</title>
<p>Psychological distress and quality of life differed in various orofacial conditions. This study provided insight into these aspects that may contribute to improved care.</p>
</sec>
</div>
</front>
<back><div1 type="bibliography"><listBibl><biblStruct><analytic><author><name sortKey="Teber, Oa" uniqKey="Teber O">OA Teber</name>
</author>
<author><name sortKey="Gillessen Kaesbach, G" uniqKey="Gillessen Kaesbach G">G Gillessen-Kaesbach</name>
</author>
<author><name sortKey="Fischer, S" uniqKey="Fischer S">S Fischer</name>
</author>
<author><name sortKey="Bohringer, S" uniqKey="Bohringer S">S Bohringer</name>
</author>
<author><name sortKey="Albrecht, B" uniqKey="Albrecht B">B Albrecht</name>
</author>
<author><name sortKey="Albert, A" uniqKey="Albert A">A Albert</name>
</author>
<author><name sortKey="Arslan Kirchner, M" uniqKey="Arslan Kirchner M">M Arslan-Kirchner</name>
</author>
<author><name sortKey="Haan, E" uniqKey="Haan E">E Haan</name>
</author>
<author><name sortKey="Hagedorn Greiwe, M" uniqKey="Hagedorn Greiwe M">M Hagedorn-Greiwe</name>
</author>
<author><name sortKey="Hammans, C" uniqKey="Hammans C">C Hammans</name>
</author>
<author><name sortKey="Henn, W" uniqKey="Henn W">W Henn</name>
</author>
<author><name sortKey="Hinkel, Gk" uniqKey="Hinkel G">GK Hinkel</name>
</author>
<author><name sortKey="Konig, R" uniqKey="Konig R">R Konig</name>
</author>
<author><name sortKey="Kunstmann, E" uniqKey="Kunstmann E">E Kunstmann</name>
</author>
<author><name sortKey="Kunze, J" uniqKey="Kunze J">J Kunze</name>
</author>
<author><name sortKey="Neumann, Lm" uniqKey="Neumann L">LM Neumann</name>
</author>
<author><name sortKey="Prott, Ec" uniqKey="Prott E">EC Prott</name>
</author>
<author><name sortKey="Rauch, A" uniqKey="Rauch A">A Rauch</name>
</author>
<author><name sortKey="Rott, Hd" uniqKey="Rott H">HD Rott</name>
</author>
<author><name sortKey="Seidel, H" uniqKey="Seidel H">H Seidel</name>
</author>
<author><name sortKey="Spranger, S" uniqKey="Spranger S">S Spranger</name>
</author>
<author><name sortKey="Sprengel, M" uniqKey="Sprengel M">M Sprengel</name>
</author>
<author><name sortKey="Zoll, B" uniqKey="Zoll B">B Zoll</name>
</author>
<author><name sortKey="Lohmann, Dr" uniqKey="Lohmann D">DR Lohmann</name>
</author>
<author><name sortKey="Wieczorek, D" uniqKey="Wieczorek D">D Wieczorek</name>
</author>
</analytic>
</biblStruct>
<biblStruct><analytic><author><name sortKey="Edwards, Sj" uniqKey="Edwards S">SJ Edwards</name>
</author>
<author><name sortKey="Gladwin, Aj" uniqKey="Gladwin A">AJ Gladwin</name>
</author>
<author><name sortKey="Dixon, Mj" uniqKey="Dixon M">MJ Dixon</name>
</author>
</analytic>
</biblStruct>
<biblStruct><analytic><author><name sortKey="Marszalek, B" uniqKey="Marszalek B">B Marszalek</name>
</author>
<author><name sortKey="Wisniewski, Sa" uniqKey="Wisniewski S">SA Wisniewski</name>
</author>
<author><name sortKey="Wojcicki, P" uniqKey="Wojcicki P">P Wojcicki</name>
</author>
<author><name sortKey="Kobus, K" uniqKey="Kobus K">K Kobus</name>
</author>
<author><name sortKey="Trzeciak, Wh" uniqKey="Trzeciak W">WH Trzeciak</name>
</author>
</analytic>
</biblStruct>
<biblStruct><analytic><author><name sortKey="Thompson, Jt" uniqKey="Thompson J">JT Thompson</name>
</author>
<author><name sortKey="Anderson, Pj" uniqKey="Anderson P">PJ Anderson</name>
</author>
<author><name sortKey="David, Dj" uniqKey="David D">DJ David</name>
</author>
</analytic>
</biblStruct>
<biblStruct><analytic><author><name sortKey=" Sterhus, In" uniqKey=" Sterhus I">IN Østerhus</name>
</author>
<author><name sortKey="Skogedal, N" uniqKey="Skogedal N">N Skogedal</name>
</author>
<author><name sortKey="Akre, H" uniqKey="Akre H">H Akre</name>
</author>
<author><name sortKey="Johnsen, U" uniqKey="Johnsen U">U Johnsen</name>
</author>
<author><name sortKey="Nordgarden, H" uniqKey="Nordgarden H">H Nordgarden</name>
</author>
<author><name sortKey=" Sten, P" uniqKey=" Sten P">P Åsten</name>
</author>
</analytic>
</biblStruct>
<biblStruct><analytic><author><name sortKey=" Sten, P" uniqKey=" Sten P">P Åsten</name>
</author>
<author><name sortKey="Skogedal, N" uniqKey="Skogedal N">N Skogedal</name>
</author>
<author><name sortKey="Nordgarden, H" uniqKey="Nordgarden H">H Nordgarden</name>
</author>
<author><name sortKey="Axelsson, S" uniqKey="Axelsson S">S Axelsson</name>
</author>
<author><name sortKey="Akre, H" uniqKey="Akre H">H Akre</name>
</author>
<author><name sortKey="Sjogreen, L" uniqKey="Sjogreen L">L Sjögreen</name>
</author>
</analytic>
</biblStruct>
<biblStruct><analytic><author><name sortKey="Akre, H" uniqKey="Akre H">H Akre</name>
</author>
<author><name sortKey=" Verland, B" uniqKey=" Verland B">B Øverland</name>
</author>
<author><name sortKey=" Sten, P" uniqKey=" Sten P">P Åsten</name>
</author>
<author><name sortKey="Skogedal, N" uniqKey="Skogedal N">N Skogedal</name>
</author>
<author><name sortKey="Heimdal, K" uniqKey="Heimdal K">K Heimdal</name>
</author>
</analytic>
</biblStruct>
<biblStruct><analytic><author><name sortKey=" Sten, P" uniqKey=" Sten P">P Åsten</name>
</author>
<author><name sortKey="Akre, H" uniqKey="Akre H">H Akre</name>
</author>
<author><name sortKey="Persson, C" uniqKey="Persson C">C Persson</name>
</author>
</analytic>
</biblStruct>
<biblStruct><analytic><author><name sortKey="Geirdal, A" uniqKey="Geirdal A">AØ Geirdal</name>
</author>
<author><name sortKey=" Verland, B" uniqKey=" Verland B">B Øverland</name>
</author>
<author><name sortKey="Heimdal, K" uniqKey="Heimdal K">K Heimdal</name>
</author>
<author><name sortKey="Storhaug, K" uniqKey="Storhaug K">K Storhaug</name>
</author>
<author><name sortKey="Asten, P" uniqKey="Asten P">P Asten</name>
</author>
<author><name sortKey="Akre, H" uniqKey="Akre H">H Akre</name>
</author>
</analytic>
</biblStruct>
<biblStruct><analytic><author><name sortKey="Ueki, Y" uniqKey="Ueki Y">Y Ueki</name>
</author>
<author><name sortKey="Tiziani, V" uniqKey="Tiziani V">V Tiziani</name>
</author>
<author><name sortKey="Santanna, C" uniqKey="Santanna C">C Santanna</name>
</author>
<author><name sortKey="Fukai, N" uniqKey="Fukai N">N Fukai</name>
</author>
<author><name sortKey="Maulik, C" uniqKey="Maulik C">C Maulik</name>
</author>
<author><name sortKey="Garfinkle, J" uniqKey="Garfinkle J">J Garfinkle</name>
</author>
<author><name sortKey="Ninomiya, C" uniqKey="Ninomiya C">C Ninomiya</name>
</author>
<author><name sortKey="Do Amaral, C" uniqKey="Do Amaral C">C do Amaral</name>
</author>
<author><name sortKey="Peters, H" uniqKey="Peters H">H Peters</name>
</author>
<author><name sortKey="Habal, M" uniqKey="Habal M">M Habal</name>
</author>
<author><name sortKey="Rhee Morris, L" uniqKey="Rhee Morris L">L Rhee-Morris</name>
</author>
<author><name sortKey="Doss, Jb" uniqKey="Doss J">JB Doss</name>
</author>
<author><name sortKey="Kreiborg, S" uniqKey="Kreiborg S">S Kreiborg</name>
</author>
<author><name sortKey="Olsen, Br" uniqKey="Olsen B">BR Olsen</name>
</author>
<author><name sortKey="Reichenberger, E" uniqKey="Reichenberger E">E Reichenberger</name>
</author>
</analytic>
</biblStruct>
<biblStruct><analytic><author><name sortKey="Von Wowern, N" uniqKey="Von Wowern N">N von Wowern</name>
</author>
<author><name sortKey="Odont, D" uniqKey="Odont D">D Odont</name>
</author>
</analytic>
</biblStruct>
<biblStruct><analytic><author><name sortKey="Roginsky, Vv" uniqKey="Roginsky V">VV Roginsky</name>
</author>
<author><name sortKey="Ivanov, Al" uniqKey="Ivanov A">AL Ivanov</name>
</author>
<author><name sortKey="Ovtchinnikov, Ia" uniqKey="Ovtchinnikov I">IA Ovtchinnikov</name>
</author>
<author><name sortKey="Khonsari, Rh" uniqKey="Khonsari R">RH Khonsari</name>
</author>
</analytic>
</biblStruct>
<biblStruct><analytic><author><name sortKey="Prescott, T" uniqKey="Prescott T">T Prescott</name>
</author>
<author><name sortKey="Redfors, M" uniqKey="Redfors M">M Redfors</name>
</author>
<author><name sortKey="Rustad, Cf" uniqKey="Rustad C">CF Rustad</name>
</author>
<author><name sortKey="Eiklid, Kl" uniqKey="Eiklid K">KL Eiklid</name>
</author>
<author><name sortKey="Geirdal, A" uniqKey="Geirdal A">AØ Geirdal</name>
</author>
<author><name sortKey="Storhaug, K" uniqKey="Storhaug K">K Storhaug</name>
</author>
<author><name sortKey="Jensen, Jl" uniqKey="Jensen J">JL Jensen</name>
</author>
</analytic>
</biblStruct>
<biblStruct><analytic><author><name sortKey="Kozakiewicz, M" uniqKey="Kozakiewicz M">M Kozakiewicz</name>
</author>
<author><name sortKey="Perczynska Partyka, W" uniqKey="Perczynska Partyka W">W Perczynska-Partyka</name>
</author>
<author><name sortKey="Kobos, J" uniqKey="Kobos J">J Kobos</name>
</author>
</analytic>
</biblStruct>
<biblStruct><analytic><author><name sortKey="Meng, Xm" uniqKey="Meng X">XM Meng</name>
</author>
<author><name sortKey="Yu, Sf" uniqKey="Yu S">SF Yu</name>
</author>
<author><name sortKey="Yu, Gy" uniqKey="Yu G">GY Yu</name>
</author>
</analytic>
</biblStruct>
<biblStruct></biblStruct>
<biblStruct><analytic><author><name sortKey="Schalk Van Der Weide, Y" uniqKey="Schalk Van Der Weide Y">Y Schalk van der Weide</name>
</author>
</analytic>
</biblStruct>
<biblStruct></biblStruct>
<biblStruct></biblStruct>
<biblStruct><analytic><author><name sortKey="Freire Maya, N" uniqKey="Freire Maya N">N Freire-Maya</name>
</author>
</analytic>
</biblStruct>
<biblStruct><analytic><author><name sortKey="Bergendal, B" uniqKey="Bergendal B">B Bergendal</name>
</author>
<author><name sortKey="Mcallister, A" uniqKey="Mcallister A">A McAllister</name>
</author>
<author><name sortKey="Stecksen Blicks, C" uniqKey="Stecksen Blicks C">C Stecksén-Blicks</name>
</author>
</analytic>
</biblStruct>
<biblStruct><analytic><author><name sortKey="Nordgarden, H" uniqKey="Nordgarden H">H Nordgarden</name>
</author>
<author><name sortKey="Jensen, Jl" uniqKey="Jensen J">JL Jensen</name>
</author>
<author><name sortKey="Storhaug, K" uniqKey="Storhaug K">K Storhaug</name>
</author>
</analytic>
</biblStruct>
<biblStruct><analytic><author><name sortKey="Bergendal, B" uniqKey="Bergendal B">B Bergendal</name>
</author>
<author><name sortKey="Norderyd, J" uniqKey="Norderyd J">J Norderyd</name>
</author>
<author><name sortKey="B Gesund, M" uniqKey="B Gesund M">M Bågesund</name>
</author>
<author><name sortKey="Holst, A" uniqKey="Holst A">A Holst</name>
</author>
</analytic>
</biblStruct>
<biblStruct><analytic><author><name sortKey="Hobson, Rs" uniqKey="Hobson R">RS Hobson</name>
</author>
<author><name sortKey="Carter, Ne" uniqKey="Carter N">NE Carter</name>
</author>
<author><name sortKey="Gillgrass, Tj" uniqKey="Gillgrass T">TJ Gillgrass</name>
</author>
<author><name sortKey="Jepson, Nja" uniqKey="Jepson N">NJA Jepson</name>
</author>
<author><name sortKey="Meechan, Jg" uniqKey="Meechan J">JG Meechan</name>
</author>
<author><name sortKey="Nohl, F" uniqKey="Nohl F">F Nohl</name>
</author>
<author><name sortKey="Nunn, Jh" uniqKey="Nunn J">JH Nunn</name>
</author>
</analytic>
</biblStruct>
<biblStruct><analytic><author><name sortKey="Arndt, Em" uniqKey="Arndt E">EM Arndt</name>
</author>
<author><name sortKey="Travis, F" uniqKey="Travis F">F Travis</name>
</author>
<author><name sortKey="Lefebvre, A" uniqKey="Lefebvre A">A Lefebvre</name>
</author>
<author><name sortKey="Munro, Ir" uniqKey="Munro I">IR Munro</name>
</author>
</analytic>
</biblStruct>
<biblStruct><analytic><author><name sortKey="Pope, A" uniqKey="Pope A">A Pope</name>
</author>
<author><name sortKey="Ward, J" uniqKey="Ward J">J Ward</name>
</author>
</analytic>
</biblStruct>
<biblStruct><analytic><author><name sortKey="Kohli, R" uniqKey="Kohli R">R Kohli</name>
</author>
<author><name sortKey="Levy, S" uniqKey="Levy S">S Levy</name>
</author>
<author><name sortKey="Kummet, Cm" uniqKey="Kummet C">CM Kummet</name>
</author>
<author><name sortKey="Dawson, Dv" uniqKey="Dawson D">DV Dawson</name>
</author>
<author><name sortKey="Stanford, Cm" uniqKey="Stanford C">CM Stanford</name>
</author>
</analytic>
</biblStruct>
<biblStruct><analytic><author><name sortKey="Pavlis, Mb" uniqKey="Pavlis M">MB Pavlis</name>
</author>
<author><name sortKey="Rice, Zp" uniqKey="Rice Z">ZP Rice</name>
</author>
<author><name sortKey="Veledar, E" uniqKey="Veledar E">E Veledar</name>
</author>
<author><name sortKey="Bradley, Br" uniqKey="Bradley B">BR Bradley</name>
</author>
<author><name sortKey="Spraker, Mk" uniqKey="Spraker M">MK Spraker</name>
</author>
<author><name sortKey="Chen, Sc" uniqKey="Chen S">SC Chen</name>
</author>
</analytic>
</biblStruct>
<biblStruct><analytic><author><name sortKey="Kotecha, S" uniqKey="Kotecha S">S Kotecha</name>
</author>
<author><name sortKey="Turner, Pj" uniqKey="Turner P">PJ Turner</name>
</author>
<author><name sortKey="Dietrich, T" uniqKey="Dietrich T">T Dietrich</name>
</author>
<author><name sortKey="Dhopatkar, A" uniqKey="Dhopatkar A">A Dhopatkar</name>
</author>
</analytic>
</biblStruct>
<biblStruct><analytic><author><name sortKey="Arnold, P" uniqKey="Arnold P">P Arnold</name>
</author>
<author><name sortKey="Chapman, M" uniqKey="Chapman M">M Chapman</name>
</author>
</analytic>
</biblStruct>
<biblStruct><analytic><author><name sortKey="Diener, E" uniqKey="Diener E">E Diener</name>
</author>
<author><name sortKey="Wolsic, B" uniqKey="Wolsic B">B Wolsic</name>
</author>
<author><name sortKey="Fujita, F" uniqKey="Fujita F">F Fujita</name>
</author>
</analytic>
</biblStruct>
<biblStruct><analytic><author><name sortKey="Atkin, K" uniqKey="Atkin K">K Atkin</name>
</author>
<author><name sortKey="Ahmad, W" uniqKey="Ahmad W">W Ahmad</name>
</author>
</analytic>
</biblStruct>
<biblStruct><analytic><author><name sortKey="Broder, H" uniqKey="Broder H">H Broder</name>
</author>
</analytic>
</biblStruct>
<biblStruct><analytic><author><name sortKey="Hobkirk, Ja" uniqKey="Hobkirk J">JA Hobkirk</name>
</author>
<author><name sortKey="Brook, Ah" uniqKey="Brook A">AH Brook</name>
</author>
</analytic>
</biblStruct>
<biblStruct><analytic><author><name sortKey="Bjelland, I" uniqKey="Bjelland I">I Bjelland</name>
</author>
<author><name sortKey="Dahl, Aa" uniqKey="Dahl A">AA Dahl</name>
</author>
<author><name sortKey="Haug, Tt" uniqKey="Haug T">TT Haug</name>
</author>
<author><name sortKey="Neckelmann, D" uniqKey="Neckelmann D">D Neckelmann</name>
</author>
</analytic>
</biblStruct>
<biblStruct><analytic><author><name sortKey="Zigmond, As" uniqKey="Zigmond A">AS Zigmond</name>
</author>
<author><name sortKey="Snaith, Rp" uniqKey="Snaith R">RP Snaith</name>
</author>
</analytic>
</biblStruct>
<biblStruct><analytic><author><name sortKey="Olsson, I" uniqKey="Olsson I">I Olsson</name>
</author>
<author><name sortKey="Mykletun, A" uniqKey="Mykletun A">A Mykletun</name>
</author>
<author><name sortKey="Dahl, Aa" uniqKey="Dahl A">AA Dahl</name>
</author>
</analytic>
</biblStruct>
<biblStruct><analytic><author><name sortKey="Mykletun, A" uniqKey="Mykletun A">A Mykletun</name>
</author>
<author><name sortKey="Stordal, E" uniqKey="Stordal E">E Stordal</name>
</author>
<author><name sortKey="Dahl, Aa" uniqKey="Dahl A">AA Dahl</name>
</author>
</analytic>
</biblStruct>
<biblStruct><analytic><author><name sortKey="Cantril, H" uniqKey="Cantril H">H Cantril</name>
</author>
</analytic>
</biblStruct>
<biblStruct><analytic><author><name sortKey="Kaasa, S" uniqKey="Kaasa S">S Kaasa</name>
</author>
<author><name sortKey="Mastekaasa, A" uniqKey="Mastekaasa A">A Mastekaasa</name>
</author>
<author><name sortKey="Naess, S" uniqKey="Naess S">S Naess</name>
</author>
</analytic>
</biblStruct>
<biblStruct><analytic><author><name sortKey="Ware, Je" uniqKey="Ware J">JE Ware</name>
</author>
<author><name sortKey="Gandek, B" uniqKey="Gandek B">B Gandek</name>
</author>
<author><name sortKey="Kosinski, M" uniqKey="Kosinski M">M Kosinski</name>
</author>
<author><name sortKey="Aaronson, Nk" uniqKey="Aaronson N">NK Aaronson</name>
</author>
<author><name sortKey="Apolone, G" uniqKey="Apolone G">G Apolone</name>
</author>
<author><name sortKey="Brazier, J" uniqKey="Brazier J">J Brazier</name>
</author>
<author><name sortKey="Bullinger, M" uniqKey="Bullinger M">M Bullinger</name>
</author>
<author><name sortKey="Kaasa, S" uniqKey="Kaasa S">S Kaasa</name>
</author>
<author><name sortKey="Leplege, A" uniqKey="Leplege A">A Leplege</name>
</author>
<author><name sortKey="Prieto, L" uniqKey="Prieto L">L Prieto</name>
</author>
<author><name sortKey="Sullivan, M" uniqKey="Sullivan M">M Sullivan</name>
</author>
<author><name sortKey="Thunedborg, K" uniqKey="Thunedborg K">K Thunedborg</name>
</author>
</analytic>
</biblStruct>
<biblStruct><analytic><author><name sortKey="Ware, J" uniqKey="Ware J">J Ware</name>
</author>
<author><name sortKey="Kosinski, M" uniqKey="Kosinski M">M Kosinski</name>
</author>
<author><name sortKey="Keller, Sd" uniqKey="Keller S">SD Keller</name>
</author>
</analytic>
</biblStruct>
<biblStruct><analytic><author><name sortKey="Loge, Jh" uniqKey="Loge J">JH Loge</name>
</author>
<author><name sortKey="Kaasa, S" uniqKey="Kaasa S">S Kaasa</name>
</author>
<author><name sortKey="Hjermstad, Mj" uniqKey="Hjermstad M">MJ Hjermstad</name>
</author>
<author><name sortKey="Kvien, Tk" uniqKey="Kvien T">TK Kvien</name>
</author>
</analytic>
</biblStruct>
<biblStruct><analytic><author><name sortKey="Hatfield, E" uniqKey="Hatfield E">E Hatfield</name>
</author>
<author><name sortKey="Sprecher, S" uniqKey="Sprecher S">S Sprecher</name>
</author>
</analytic>
</biblStruct>
<biblStruct><analytic><author><name sortKey="Haas, Bk" uniqKey="Haas B">BK Haas</name>
</author>
</analytic>
</biblStruct>
<biblStruct><analytic><author><name sortKey="Akram, Aj" uniqKey="Akram A">AJ Akram</name>
</author>
<author><name sortKey="Jerreat, As" uniqKey="Jerreat A">AS Jerreat</name>
</author>
<author><name sortKey="Woodford, J" uniqKey="Woodford J">J Woodford</name>
</author>
<author><name sortKey="Sandy, Jr" uniqKey="Sandy J">JR Sandy</name>
</author>
<author><name sortKey="Ireland, Aj" uniqKey="Ireland A">AJ Ireland</name>
</author>
</analytic>
</biblStruct>
<biblStruct></biblStruct>
<biblStruct><analytic><author><name sortKey="Mehta, U" uniqKey="Mehta U">U Mehta</name>
</author>
<author><name sortKey="Brunworth, J" uniqKey="Brunworth J">J Brunworth</name>
</author>
<author><name sortKey="Fete, Tj" uniqKey="Fete T">TJ Fete</name>
</author>
<author><name sortKey="Sindwani, R" uniqKey="Sindwani R">R Sindwani</name>
</author>
</analytic>
</biblStruct>
<biblStruct><analytic><author><name sortKey="Anweigi, L" uniqKey="Anweigi L">L Anweigi</name>
</author>
<author><name sortKey="Allen, Pf" uniqKey="Allen P">PF Allen</name>
</author>
<author><name sortKey="Ziada, H" uniqKey="Ziada H">H Ziada</name>
</author>
</analytic>
</biblStruct>
</listBibl>
</div1>
</back>
</TEI>
<pmc article-type="research-article"><pmc-dir>properties open_access</pmc-dir>
<front><journal-meta><journal-id journal-id-type="nlm-ta">Qual Life Res</journal-id>
<journal-id journal-id-type="iso-abbrev">Qual Life Res</journal-id>
<journal-title-group><journal-title>Quality of Life Research</journal-title>
</journal-title-group>
<issn pub-type="ppub">0962-9343</issn>
<issn pub-type="epub">1573-2649</issn>
<publisher><publisher-name>Springer International Publishing</publisher-name>
<publisher-loc>Cham</publisher-loc>
</publisher>
</journal-meta>
<article-meta><article-id pub-id-type="pmid">25344415</article-id>
<article-id pub-id-type="pmc">4366539</article-id>
<article-id pub-id-type="publisher-id">826</article-id>
<article-id pub-id-type="doi">10.1007/s11136-014-0826-1</article-id>
<article-categories><subj-group subj-group-type="heading"><subject>Article</subject>
</subj-group>
</article-categories>
<title-group><article-title>Living with orofacial conditions: psychological distress and quality of life in adults affected with Treacher Collins syndrome, cherubism, or oligodontia/ectodermal dysplasia—a comparative study</article-title>
</title-group>
<contrib-group><contrib contrib-type="author" corresp="yes"><name><surname>Geirdal</surname>
<given-names>Amy Østertun</given-names>
</name>
<address><phone>+47 48196620</phone>
<email>amy-ostertun.geirdal@hioa.no</email>
</address>
<xref ref-type="aff" rid="Aff1"></xref>
</contrib>
<contrib contrib-type="author"><name><surname>Saltnes</surname>
<given-names>Solfrid Sørgjerd</given-names>
</name>
<xref ref-type="aff" rid="Aff2"></xref>
</contrib>
<contrib contrib-type="author"><name><surname>Storhaug</surname>
<given-names>Kari</given-names>
</name>
<xref ref-type="aff" rid="Aff2"></xref>
</contrib>
<contrib contrib-type="author"><name><surname>Åsten</surname>
<given-names>Pamela</given-names>
</name>
<xref ref-type="aff" rid="Aff2"></xref>
</contrib>
<contrib contrib-type="author"><name><surname>Nordgarden</surname>
<given-names>Hilde</given-names>
</name>
<xref ref-type="aff" rid="Aff2"></xref>
</contrib>
<contrib contrib-type="author"><name><surname>Jensen</surname>
<given-names>Janicke Liaaen</given-names>
</name>
<xref ref-type="aff" rid="Aff3"></xref>
</contrib>
<aff id="Aff1"><label></label>
Faculty of Social Sciences, Oslo and Akershus University College of Applied Sciences, Oslo, Norway</aff>
<aff id="Aff2"><label></label>
TAKO-Centre, Lovisenberg Diakonale Hospital, Oslo, Norway</aff>
<aff id="Aff3"><label></label>
Department of Oral Surgery and Oral Medicine, Faculty of Dentistry, University of Oslo, Oslo, Norway</aff>
</contrib-group>
<pub-date pub-type="epub"><day>25</day>
<month>10</month>
<year>2014</year>
</pub-date>
<pub-date pub-type="pmc-release"><day>25</day>
<month>10</month>
<year>2014</year>
</pub-date>
<pub-date pub-type="ppub"><year>2015</year>
</pub-date>
<volume>24</volume>
<issue>4</issue>
<fpage>927</fpage>
<lpage>935</lpage>
<history><date date-type="accepted"><day>10</day>
<month>10</month>
<year>2014</year>
</date>
</history>
<permissions><copyright-statement>© The Author(s) 2014</copyright-statement>
<license license-type="OpenAccess"><license-p><bold>Open Access</bold>
This article is distributed under the terms of the Creative Commons Attribution License which permits any use, distribution, and reproduction in any medium, provided the original author(s) and the source are credited.</license-p>
</license>
</permissions>
<abstract id="Abs1"><sec><title>Purpose</title>
<p>The relationship between quality of life, psychological distress, and orofacial syndromes in children and adolescents has been reported in several studies. However, little is known about differences in psychological distress and quality of life among adults with different orofacial conditions. Therefore, the aims of this study were to examine and compare these factors among three groups of adults affected by Treacher Collins syndrome (TCS), cherubism, and oligodontia/ectodermal dysplasia (ED).</p>
</sec>
<sec><title>Methods</title>
<p>We included 11 individuals with TCS (mean age 46.9, SD 12.9 years), 15 with cherubism (mean age 50.3, SD 16.8 years), and 49 with oligodontia/ED (mean age 30.7, SD 15.6 years). The respondents completed questionnaires related to psychological distress and quality of life.</p>
</sec>
<sec><title>Results</title>
<p>The oligodontia/ED group had a significantly higher level of anxiety and worse mental health-related quality of life than both the TCS and cherubism groups. Adults with TCS reported the highest level of depression, and the lowest levels of overall quality of life, well-being, and physical health-related quality of life. The cherubism group displayed the best overall quality of life, well-being, and mental health.</p>
</sec>
<sec><title>Conclusions</title>
<p>Psychological distress and quality of life differed in various orofacial conditions. This study provided insight into these aspects that may contribute to improved care.</p>
</sec>
</abstract>
<kwd-group xml:lang="en"><title>Keywords</title>
<kwd>Psychological distress</kwd>
<kwd>Quality of life</kwd>
<kwd>Treacher Collins syndrome</kwd>
<kwd>Cherubism</kwd>
<kwd>Oligodontia/ectodermal dysplasia</kwd>
</kwd-group>
<custom-meta-group><custom-meta><meta-name>issue-copyright-statement</meta-name>
<meta-value>© Springer International Publishing Switzerland 2015</meta-value>
</custom-meta>
</custom-meta-group>
</article-meta>
</front>
</pmc>
<affiliations><list><country><li>Norvège</li>
</country>
<region><li>Østlandet</li>
</region>
<settlement><li>Oslo</li>
</settlement>
</list>
<tree><country name="Norvège"><region name="Østlandet"><name sortKey="Geirdal, Amy Stertun" sort="Geirdal, Amy Stertun" uniqKey="Geirdal A" first="Amy Stertun" last="Geirdal">Amy Stertun Geirdal</name>
</region>
<name sortKey=" Sten, Pamela" sort=" Sten, Pamela" uniqKey=" Sten P" first="Pamela" last=" Sten">Pamela Sten</name>
<name sortKey="Jensen, Janicke Liaaen" sort="Jensen, Janicke Liaaen" uniqKey="Jensen J" first="Janicke Liaaen" last="Jensen">Janicke Liaaen Jensen</name>
<name sortKey="Nordgarden, Hilde" sort="Nordgarden, Hilde" uniqKey="Nordgarden H" first="Hilde" last="Nordgarden">Hilde Nordgarden</name>
<name sortKey="Saltnes, Solfrid S Rgjerd" sort="Saltnes, Solfrid S Rgjerd" uniqKey="Saltnes S" first="Solfrid S Rgjerd" last="Saltnes">Solfrid S Rgjerd Saltnes</name>
<name sortKey="Storhaug, Kari" sort="Storhaug, Kari" uniqKey="Storhaug K" first="Kari" last="Storhaug">Kari Storhaug</name>
</country>
</tree>
</affiliations>
</record>
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