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The patient’s view of recovery: An emerging tool for empowerment through self-knowledge

Identifieur interne : 001E13 ( Ncbi/Merge ); précédent : 001E12; suivant : 001E14

The patient’s view of recovery: An emerging tool for empowerment through self-knowledge

Auteurs : Margaret G. Stineman [États-Unis] ; Ashley E. Kurz ; Deirdre Kelleher ; Bonnie L. Kennedy

Source :

Disability and rehabilitation [ 0963-8288 ] ; 2008.

RBID : PMC:2896255

Abstract

Purpose

To introduce Recovery Preference Exploration (RPE) as a new technique for studying the personal significance of being able to perform one type of functional activity over others. To determine if patients’ concepts of function reflect the ADL, sphincter management, mobility and cognition (ASMC) domains established through the factor analyses of observed patient performance.

Methods

RPE involves an adapted card sort procedure. Patients sorted 18 cards each listing a single functional skill such as eating, walking, and memory into subjectively meaningful groups of activities based on how they see those skills relating to one another in their daily lives. They then ordered the groups from most to least important. Recovery preferences were explored for 32 patients with disabilities resulting from neurological or other conditions undergoing inpatient rehabilitation in the USA.

Results

The abilities to eat, bathe and toilet were the activities most frequently placed in the most valued pile. At times, the patient’s card sorts mirrored the ASMC domains. At other times, patients grouped activities that tended to occur in a particular place or that were linked through cause and effect. Patients’ narrative explanations reflected the uniqueness of their personal circumstances.

Conclusions

RPE uncovers the life contexts that underlie patients’ subjective beliefs about the meaning of being able to perform various types of activities. RPE might be applied in clinical practice and research to explore the idiosyncratic aspects of disability.

Url:

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2896255

DOI: 10.1080/09638280701456112
PubMed: 17852255
PubMed Central: 2896255

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Le document en format XML

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<author><name sortKey="Stineman, Margaret G" sort="Stineman, Margaret G" uniqKey="Stineman M" first="Margaret G." last="Stineman">Margaret G. Stineman</name>
<affiliation><nlm:aff id="A1">Department of Physical Medicine and Rehabilitation, University of Pennsylvania</nlm:aff>
<wicri:noCountry code="subfield">University of Pennsylvania</wicri:noCountry>
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<affiliation><nlm:aff id="A2">Leonard Davis Institute of Health Economics</nlm:aff>
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<affiliation><nlm:aff id="A3">Clinical Epidemiology Unit of the Center for Epidemiology and Biostatistics</nlm:aff>
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<affiliation wicri:level="1"><nlm:aff id="A4">Institute on Aging, University of Pennsylvania, USA</nlm:aff>
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<author><name sortKey="Kennedy, Bonnie L" sort="Kennedy, Bonnie L" uniqKey="Kennedy B" first="Bonnie L." last="Kennedy">Bonnie L. Kennedy</name>
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<front><div type="abstract" xml:lang="en"><sec id="S1"><title>Purpose</title>
<p id="P1">To introduce Recovery Preference Exploration (RPE) as a new technique for studying the personal significance of being able to perform one type of functional activity over others. To determine if patients’ concepts of function reflect the ADL, sphincter management, mobility and cognition (ASMC) domains established through the factor analyses of observed patient performance.</p>
</sec>
<sec sec-type="methods" id="S2"><title>Methods</title>
<p id="P2">RPE involves an adapted card sort procedure. Patients sorted 18 cards each listing a single functional skill such as eating, walking, and memory into subjectively meaningful groups of activities based on how they see those skills relating to one another in their daily lives. They then ordered the groups from most to least important. Recovery preferences were explored for 32 patients with disabilities resulting from neurological or other conditions undergoing inpatient rehabilitation in the USA.</p>
</sec>
<sec id="S3"><title>Results</title>
<p id="P3">The abilities to eat, bathe and toilet were the activities most frequently placed in the most valued pile. At times, the patient’s card sorts mirrored the ASMC domains. At other times, patients grouped activities that tended to occur in a particular place or that were linked through cause and effect. Patients’ narrative explanations reflected the uniqueness of their personal circumstances.</p>
</sec>
<sec id="S4"><title>Conclusions</title>
<p id="P4">RPE uncovers the life contexts that underlie patients’ subjective beliefs about the meaning of being able to perform various types of activities. RPE might be applied in clinical practice and research to explore the idiosyncratic aspects of disability.</p>
</sec>
</div>
</front>
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  <pmc-dir>properties manuscript</pmc-dir>
  <front><journal-meta><journal-id journal-id-type="nlm-journal-id">9207179</journal-id>
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<title-group><article-title>The patient’s view of recovery: An emerging tool for empowerment through self-knowledge</article-title>
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<contrib-group><contrib contrib-type="author"><name><surname>STINEMAN</surname>
<given-names>MARGARET G.</given-names>
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<xref rid="A1" ref-type="aff">1</xref>
<xref rid="A2" ref-type="aff">2</xref>
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<given-names>ASHLEY E.</given-names>
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<contrib contrib-type="author"><name><surname>KELLEHER</surname>
<given-names>DEIRDRE</given-names>
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<contrib contrib-type="author"><name><surname>KENNEDY</surname>
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Department of Physical Medicine and Rehabilitation, University of Pennsylvania</aff>
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Leonard Davis Institute of Health Economics</aff>
<aff id="A3"><label>3</label>
Clinical Epidemiology Unit of the Center for Epidemiology and Biostatistics</aff>
<aff id="A4"><label>4</label>
Institute on Aging, University of Pennsylvania, USA</aff>
<author-notes><corresp id="FN1">Correspondence: Margaret G. Stineman, M.D., 101 Ralston-Penn Center, 3615 Chestnut Street Philadelphia, PA 19104-2676, USA. Tel: +1(215)898 6272. Fax: +1(215)573 2017. <email>mstinema@mail.med.upenn.edu</email>
</corresp>
</author-notes>
<pub-date pub-type="nihms-submitted"><day>19</day>
<month>4</month>
<year>2010</year>
</pub-date>
<pub-date pub-type="ppub"><year>2008</year>
</pub-date>
<pub-date pub-type="pmc-release"><day>2</day>
<month>7</month>
<year>2010</year>
</pub-date>
<volume>30</volume>
<issue>9</issue>
<fpage>679</fpage>
<lpage>688</lpage>
<permissions><copyright-statement>© 2008 Informa UK Ltd.</copyright-statement>
<copyright-year>2008</copyright-year>
</permissions>
<abstract><sec id="S1"><title>Purpose</title>
<p id="P1">To introduce Recovery Preference Exploration (RPE) as a new technique for studying the personal significance of being able to perform one type of functional activity over others. To determine if patients’ concepts of function reflect the ADL, sphincter management, mobility and cognition (ASMC) domains established through the factor analyses of observed patient performance.</p>
</sec>
<sec sec-type="methods" id="S2"><title>Methods</title>
<p id="P2">RPE involves an adapted card sort procedure. Patients sorted 18 cards each listing a single functional skill such as eating, walking, and memory into subjectively meaningful groups of activities based on how they see those skills relating to one another in their daily lives. They then ordered the groups from most to least important. Recovery preferences were explored for 32 patients with disabilities resulting from neurological or other conditions undergoing inpatient rehabilitation in the USA.</p>
</sec>
<sec id="S3"><title>Results</title>
<p id="P3">The abilities to eat, bathe and toilet were the activities most frequently placed in the most valued pile. At times, the patient’s card sorts mirrored the ASMC domains. At other times, patients grouped activities that tended to occur in a particular place or that were linked through cause and effect. Patients’ narrative explanations reflected the uniqueness of their personal circumstances.</p>
</sec>
<sec id="S4"><title>Conclusions</title>
<p id="P4">RPE uncovers the life contexts that underlie patients’ subjective beliefs about the meaning of being able to perform various types of activities. RPE might be applied in clinical practice and research to explore the idiosyncratic aspects of disability.</p>
</sec>
</abstract>
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<kwd>urinary incontinence</kwd>
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<kwd>mobility limitation</kwd>
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<affiliations><list><country><li>États-Unis</li>
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Serveur d'exploration sur le patient édenté

The patient’s view of recovery: An emerging tool for empowerment through self-knowledge

The patient’s view of recovery: An emerging tool for empowerment through self-knowledge

Source :

Abstract

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