Interviewing to develop Patient-Reported Outcome (PRO) measures for clinical research: eliciting patients' experience.
Identifieur interne : 001297 ( Main/Exploration ); précédent : 001296; suivant : 001298Interviewing to develop Patient-Reported Outcome (PRO) measures for clinical research: eliciting patients' experience.
Auteurs : Anne Brédart ; Alexia Marrel ; Linda Abetz-Webb ; Kathy Lasch ; Catherine Acquadro [France]Source :
- Health and quality of life outcomes [ 1477-7525 ] ; 2014.
Descripteurs français
- KwdFr :
- Autorapport (MeSH), Communication (MeSH), Enquêtes et questionnaires (MeSH), Entretiens comme sujet (méthodes), Facteurs sexuels (MeSH), Facteurs âges (MeSH), Groupes de discussion (MeSH), Humains (MeSH), Patients (psychologie), Préférence des patients (MeSH), Recherche qualitative (MeSH), Recherche sur les services de santé (MeSH), Recommandations comme sujet (MeSH), Relations entre professionnels de santé et patients (MeSH).
- MESH :
- méthodes : Entretiens comme sujet.
- psychologie : Patients.
- Autorapport, Communication, Enquêtes et questionnaires, Facteurs sexuels, Facteurs âges, Groupes de discussion, Humains, Préférence des patients, Recherche qualitative, Recherche sur les services de santé, Recommandations comme sujet, Relations entre professionnels de santé et patients.
English descriptors
- KwdEn :
- Age Factors (MeSH), Communication (MeSH), Focus Groups (MeSH), Guidelines as Topic (MeSH), Health Services Research (MeSH), Humans (MeSH), Interviews as Topic (methods), Outcome Assessment, Health Care (methods), Patient Preference (MeSH), Patients (psychology), Professional-Patient Relations (MeSH), Qualitative Research (MeSH), Self Report (MeSH), Sex Factors (MeSH), Surveys and Questionnaires (MeSH).
- MESH :
- methods : Interviews as Topic, Outcome Assessment, Health Care.
- psychology : Patients.
- Age Factors, Communication, Focus Groups, Guidelines as Topic, Health Services Research, Humans, Patient Preference, Professional-Patient Relations, Qualitative Research, Self Report, Sex Factors, Surveys and Questionnaires.
Abstract
Patient-reported outcome (PRO) measures must provide evidence that their development followed a rigorous process for ensuring their content validity. To this end, the collection of data is performed through qualitative interviews that allow for the elicitation of in-depth spontaneous reports of the patients' experiences with their condition and/or its treatment. This paper provides a review of qualitative research applied to PRO measure development. A clear definition of what is a qualitative research interview is given as well as information about the form and content of qualitative interviews required for developing PRO measures. Particular attention is paid to the description of interviewing approaches (e.g., semi-structured and in-depth interviews, individual vs. focus group interviews). Information about how to get prepared for a qualitative interview is provided with the description of how to develop discussion guides for exploratory or cognitive interviews. Interviewing patients to obtain knowledge regarding their illness experience requires interpersonal and communication skills to facilitate patients' expression. Those skills are described in details, as well as the skills needed to facilitate focus groups and to interview children, adolescents and the elderly. Special attention is also given to quality assurance and interview training. The paper ends on ethical considerations since interviewing for the development of PROs is performed in a context of illness and vulnerability. Therefore, it is all the more important that, in addition to soliciting informed consent, respectful interactions be ensured throughout the interview process.
DOI: 10.1186/1477-7525-12-15
PubMed: 24499454
PubMed Central: PMC3933509
Affiliations:
Links toward previous steps (curation, corpus...)
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wicri:level="3"><nlm:affiliation>Mapi Research Trust, 27 rue de la Villette, 69003 Lyon, France. cacquadro@mapigroup.com.</nlm:affiliation><country xml:lang="fr">France</country><wicri:regionArea>Mapi Research Trust, 27 rue de la Villette, 69003 Lyon</wicri:regionArea><placeName><region type="region" nuts="2">Auvergne-Rhône-Alpes</region><region type="old region" nuts="2">Rhône-Alpes</region><settlement type="city">Lyon</settlement></placeName></affiliation></author></analytic><series><title level="j">Health and quality of life outcomes</title><idno type="eISSN">1477-7525</idno><imprint><date when="2014" type="published">2014</date></imprint></series></biblStruct></sourceDesc></fileDesc><profileDesc><textClass><keywords scheme="KwdEn" xml:lang="en"><term>Age Factors (MeSH)</term><term>Communication (MeSH)</term><term>Focus Groups (MeSH)</term><term>Guidelines as Topic (MeSH)</term><term>Health Services Research (MeSH)</term><term>Humans (MeSH)</term><term>Interviews as Topic (methods)</term><term>Outcome Assessment, Health Care (methods)</term><term>Patient Preference (MeSH)</term><term>Patients (psychology)</term><term>Professional-Patient Relations (MeSH)</term><term>Qualitative Research (MeSH)</term><term>Self Report (MeSH)</term><term>Sex Factors (MeSH)</term><term>Surveys and Questionnaires (MeSH)</term></keywords><keywords scheme="KwdFr" xml:lang="fr"><term>Autorapport (MeSH)</term><term>Communication (MeSH)</term><term>Enquêtes et questionnaires (MeSH)</term><term>Entretiens comme sujet (méthodes)</term><term>Facteurs sexuels (MeSH)</term><term>Facteurs âges (MeSH)</term><term>Groupes de discussion (MeSH)</term><term>Humains (MeSH)</term><term>Patients (psychologie)</term><term>Préférence des patients (MeSH)</term><term>Recherche qualitative (MeSH)</term><term>Recherche sur les services de santé (MeSH)</term><term>Recommandations comme sujet (MeSH)</term><term>Relations entre professionnels de santé et patients (MeSH)</term></keywords><keywords scheme="MESH" qualifier="methods" xml:lang="en"><term>Interviews as Topic</term><term>Outcome Assessment, Health Care</term></keywords><keywords scheme="MESH" qualifier="méthodes" xml:lang="fr"><term>Entretiens comme sujet</term></keywords><keywords scheme="MESH" qualifier="psychologie" xml:lang="fr"><term>Patients</term></keywords><keywords scheme="MESH" qualifier="psychology" xml:lang="en"><term>Patients</term></keywords><keywords scheme="MESH" xml:lang="en"><term>Age Factors</term><term>Communication</term><term>Focus Groups</term><term>Guidelines as Topic</term><term>Health Services Research</term><term>Humans</term><term>Patient Preference</term><term>Professional-Patient Relations</term><term>Qualitative Research</term><term>Self Report</term><term>Sex Factors</term><term>Surveys and Questionnaires</term></keywords><keywords scheme="MESH" xml:lang="fr"><term>Autorapport</term><term>Communication</term><term>Enquêtes et questionnaires</term><term>Facteurs sexuels</term><term>Facteurs âges</term><term>Groupes de discussion</term><term>Humains</term><term>Préférence des patients</term><term>Recherche qualitative</term><term>Recherche sur les services de santé</term><term>Recommandations comme sujet</term><term>Relations entre professionnels de santé et patients</term></keywords></textClass></profileDesc></teiHeader><front><div type="abstract" xml:lang="en">Patient-reported outcome (PRO) measures must provide evidence that their development followed a rigorous process for ensuring their content validity. To this end, the collection of data is performed through qualitative interviews that allow for the elicitation of in-depth spontaneous reports of the patients' experiences with their condition and/or its treatment. This paper provides a review of qualitative research applied to PRO measure development. A clear definition of what is a qualitative research interview is given as well as information about the form and content of qualitative interviews required for developing PRO measures. Particular attention is paid to the description of interviewing approaches (e.g., semi-structured and in-depth interviews, individual vs. focus group interviews). Information about how to get prepared for a qualitative interview is provided with the description of how to develop discussion guides for exploratory or cognitive interviews. Interviewing patients to obtain knowledge regarding their illness experience requires interpersonal and communication skills to facilitate patients' expression. Those skills are described in details, as well as the skills needed to facilitate focus groups and to interview children, adolescents and the elderly. Special attention is also given to quality assurance and interview training. The paper ends on ethical considerations since interviewing for the development of PROs is performed in a context of illness and vulnerability. Therefore, it is all the more important that, in addition to soliciting informed consent, respectful interactions be ensured throughout the interview process. </div></front></TEI><pubmed><MedlineCitation Status="MEDLINE" Owner="NLM"><PMID Version="1">24499454</PMID><DateCompleted><Year>2014</Year><Month>10</Month><Day>27</Day></DateCompleted><DateRevised><Year>2019</Year><Month>12</Month><Day>10</Day></DateRevised><Article PubModel="Electronic"><Journal><ISSN IssnType="Electronic">1477-7525</ISSN><JournalIssue CitedMedium="Internet"><Volume>12</Volume><PubDate><Year>2014</Year><Month>Feb</Month><Day>05</Day></PubDate></JournalIssue><Title>Health and quality of life outcomes</Title><ISOAbbreviation>Health Qual Life Outcomes</ISOAbbreviation></Journal><ArticleTitle>Interviewing to develop Patient-Reported Outcome (PRO) measures for clinical research: eliciting patients' experience.</ArticleTitle><Pagination><MedlinePgn>15</MedlinePgn></Pagination><ELocationID EIdType="doi" ValidYN="Y">10.1186/1477-7525-12-15</ELocationID><Abstract><AbstractText>Patient-reported outcome (PRO) measures must provide evidence that their development followed a rigorous process for ensuring their content validity. To this end, the collection of data is performed through qualitative interviews that allow for the elicitation of in-depth spontaneous reports of the patients' experiences with their condition and/or its treatment. This paper provides a review of qualitative research applied to PRO measure development. A clear definition of what is a qualitative research interview is given as well as information about the form and content of qualitative interviews required for developing PRO measures. Particular attention is paid to the description of interviewing approaches (e.g., semi-structured and in-depth interviews, individual vs. focus group interviews). Information about how to get prepared for a qualitative interview is provided with the description of how to develop discussion guides for exploratory or cognitive interviews. Interviewing patients to obtain knowledge regarding their illness experience requires interpersonal and communication skills to facilitate patients' expression. Those skills are described in details, as well as the skills needed to facilitate focus groups and to interview children, adolescents and the elderly. Special attention is also given to quality assurance and interview training. The paper ends on ethical considerations since interviewing for the development of PROs is performed in a context of illness and vulnerability. 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sort="Marrel, Alexia" uniqKey="Marrel A" first="Alexia" last="Marrel">Alexia Marrel</name></noCountry><country name="France"><region name="Auvergne-Rhône-Alpes"><name sortKey="Acquadro, Catherine" sort="Acquadro, Catherine" uniqKey="Acquadro C" first="Catherine" last="Acquadro">Catherine Acquadro</name></region></country></tree></affiliations></record>Pour manipuler ce document sous Unix (Dilib)
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