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A Study to Explore the Professional Conceptualization and Challenges of Self-Management in Children and Adolescents with Lymphedema.

Identifieur interne : 000689 ( Main/Exploration ); précédent : 000688; suivant : 000690

A Study to Explore the Professional Conceptualization and Challenges of Self-Management in Children and Adolescents with Lymphedema.

Auteurs : Christine Moffatt [Royaume-Uni, France] ; Aimee Aubeeluck [Royaume-Uni] ; Elodie Stasi [Italie] ; Meadbh Macsweeney [Irlande (pays)] ; Fabienne Mourgues [France] ; Hélène Pourquier [France] ; Chantal Lapointe [Canada] ; Sandrine Mestre [Irlande (pays)] ; Isabelle Quere [Irlande (pays)]

Source :

RBID : pubmed:30995182

Descripteurs français

English descriptors

Abstract

Background: The aim of this study was to explore the professional experience of caring for children and adolescents with lymphedema and to explore the way in which they understand and implement self-management strategies and the influence of their own self-efficacy beliefs on this process. Methods and Results: Participants were recruited during an educational camp for children with lymphedema. Three individual semistructured focus groups were undertaken in English, French, and Italian with simultaneous translation. Data were analyzed using interpretative phenomenological analysis (IPA). Analysis of the data produced three superordinate themes: professional concepts of self-management, professional practice, and redefining the cornerstone of lymphedema care. An additional seven subthemes were as follows: readiness to self-management, professional perspectives on self-management, defining success and treatment failure, emotional burden, traditional views on complex decongestive therapy, new ways to practice, and sole practitioner versus multidisciplinary teams. Conclusions: The purpose of the study was to explore the challenges professionals face when introducing self-management to children and adolescents with lymphedema and their parents and to explore their own sense of self-efficacy in approaching this. The research allowed in-depth discussion about the ways they conceptualize self-management and faced professional challenges. The research highlighted the need to define what is considered an acceptable outcome within a complex and uncertain condition and the self-management strategies that are needed to support this.

DOI: 10.1089/lrb.2018.0076
PubMed: 30995182
PubMed Central: PMC6636669


Affiliations:


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Le document en format XML

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<term>Adolescent (MeSH)</term>
<term>Child (MeSH)</term>
<term>Chronic Disease (MeSH)</term>
<term>Compression Bandages (MeSH)</term>
<term>Disease Management (MeSH)</term>
<term>Emotional Adjustment (MeSH)</term>
<term>Female (MeSH)</term>
<term>France (MeSH)</term>
<term>Humans (MeSH)</term>
<term>Italy (MeSH)</term>
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<term>Lower Extremity (physiopathology)</term>
<term>Lymphatic System (pathology)</term>
<term>Lymphatic System (physiopathology)</term>
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<term>Lymphedema (physiopathology)</term>
<term>Lymphedema (psychology)</term>
<term>Lymphedema (therapy)</term>
<term>Male (MeSH)</term>
<term>Massage (methods)</term>
<term>Massage (psychology)</term>
<term>Quality of Life (psychology)</term>
<term>Self Care (psychology)</term>
<term>Self Efficacy (MeSH)</term>
<term>Self-Management (education)</term>
<term>Self-Management (psychology)</term>
<term>Skin Care (methods)</term>
<term>Skin Care (psychology)</term>
<term>Surveys and Questionnaires (MeSH)</term>
<term>Treatment Outcome (MeSH)</term>
<term>United Kingdom (MeSH)</term>
<term>Upper Extremity (pathology)</term>
<term>Upper Extremity (physiopathology)</term>
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<term>Adolescent (MeSH)</term>
<term>Ajustement émotionnel (MeSH)</term>
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<term>Autosoins (psychologie)</term>
<term>Bandages de compression (MeSH)</term>
<term>Enfant (MeSH)</term>
<term>Enquêtes et questionnaires (MeSH)</term>
<term>Femelle (MeSH)</term>
<term>France (MeSH)</term>
<term>Gestion de soi (enseignement et éducation)</term>
<term>Gestion de soi (psychologie)</term>
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<term>Hygiène de la peau (méthodes)</term>
<term>Hygiène de la peau (psychologie)</term>
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<term>Lymphoedème (anatomopathologie)</term>
<term>Lymphoedème (physiopathologie)</term>
<term>Lymphoedème (psychologie)</term>
<term>Lymphoedème (thérapie)</term>
<term>Maladie chronique (MeSH)</term>
<term>Massage (méthodes)</term>
<term>Massage (psychologie)</term>
<term>Membre inférieur (anatomopathologie)</term>
<term>Membre inférieur (physiopathologie)</term>
<term>Membre supérieur (anatomopathologie)</term>
<term>Membre supérieur (physiopathologie)</term>
<term>Mâle (MeSH)</term>
<term>Prise en charge de la maladie (MeSH)</term>
<term>Qualité de vie (psychologie)</term>
<term>Royaume-Uni (MeSH)</term>
<term>Résultat thérapeutique (MeSH)</term>
<term>Système lymphatique (anatomopathologie)</term>
<term>Système lymphatique (physiopathologie)</term>
</keywords>
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<term>France</term>
<term>Italy</term>
<term>United Kingdom</term>
</keywords>
<keywords scheme="MESH" qualifier="anatomopathologie" xml:lang="fr">
<term>Lymphoedème</term>
<term>Membre inférieur</term>
<term>Membre supérieur</term>
<term>Système lymphatique</term>
</keywords>
<keywords scheme="MESH" qualifier="education" xml:lang="en">
<term>Self-Management</term>
</keywords>
<keywords scheme="MESH" qualifier="enseignement et éducation" xml:lang="fr">
<term>Gestion de soi</term>
</keywords>
<keywords scheme="MESH" qualifier="methods" xml:lang="en">
<term>Massage</term>
<term>Skin Care</term>
</keywords>
<keywords scheme="MESH" qualifier="méthodes" xml:lang="fr">
<term>Hygiène de la peau</term>
<term>Massage</term>
</keywords>
<keywords scheme="MESH" qualifier="pathology" xml:lang="en">
<term>Lower Extremity</term>
<term>Lymphatic System</term>
<term>Lymphedema</term>
<term>Upper Extremity</term>
</keywords>
<keywords scheme="MESH" qualifier="physiopathologie" xml:lang="fr">
<term>Lymphoedème</term>
<term>Membre inférieur</term>
<term>Membre supérieur</term>
<term>Système lymphatique</term>
</keywords>
<keywords scheme="MESH" qualifier="physiopathology" xml:lang="en">
<term>Lower Extremity</term>
<term>Lymphatic System</term>
<term>Lymphedema</term>
<term>Upper Extremity</term>
</keywords>
<keywords scheme="MESH" qualifier="psychologie" xml:lang="fr">
<term>Autosoins</term>
<term>Gestion de soi</term>
<term>Hygiène de la peau</term>
<term>Lymphoedème</term>
<term>Massage</term>
<term>Qualité de vie</term>
</keywords>
<keywords scheme="MESH" qualifier="psychology" xml:lang="en">
<term>Lymphedema</term>
<term>Massage</term>
<term>Quality of Life</term>
<term>Self Care</term>
<term>Self-Management</term>
<term>Skin Care</term>
</keywords>
<keywords scheme="MESH" qualifier="therapy" xml:lang="en">
<term>Lymphedema</term>
</keywords>
<keywords scheme="MESH" qualifier="thérapie" xml:lang="fr">
<term>Lymphoedème</term>
</keywords>
<keywords scheme="MESH" xml:lang="en">
<term>Adolescent</term>
<term>Child</term>
<term>Chronic Disease</term>
<term>Compression Bandages</term>
<term>Disease Management</term>
<term>Emotional Adjustment</term>
<term>Female</term>
<term>Humans</term>
<term>Male</term>
<term>Self Efficacy</term>
<term>Surveys and Questionnaires</term>
<term>Treatment Outcome</term>
</keywords>
<keywords scheme="MESH" xml:lang="fr">
<term>Adolescent</term>
<term>Ajustement émotionnel</term>
<term>Auto-efficacité</term>
<term>Bandages de compression</term>
<term>Enfant</term>
<term>Enquêtes et questionnaires</term>
<term>Femelle</term>
<term>France</term>
<term>Humains</term>
<term>Italie</term>
<term>Maladie chronique</term>
<term>Mâle</term>
<term>Prise en charge de la maladie</term>
<term>Royaume-Uni</term>
<term>Résultat thérapeutique</term>
</keywords>
<keywords scheme="Wicri" type="geographic" xml:lang="fr">
<term>France</term>
<term>Italie</term>
<term>Royaume-Uni</term>
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<front>
<div type="abstract" xml:lang="en">
<b>
<i>Background:</i>
</b>
The aim of this study was to explore the professional experience of caring for children and adolescents with lymphedema and to explore the way in which they understand and implement self-management strategies and the influence of their own self-efficacy beliefs on this process.
<b>
<i>Methods and Results:</i>
</b>
Participants were recruited during an educational camp for children with lymphedema. Three individual semistructured focus groups were undertaken in English, French, and Italian with simultaneous translation. Data were analyzed using interpretative phenomenological analysis (IPA). Analysis of the data produced three superordinate themes: professional concepts of self-management, professional practice, and redefining the cornerstone of lymphedema care. An additional seven subthemes were as follows: readiness to self-management, professional perspectives on self-management, defining success and treatment failure, emotional burden, traditional views on complex decongestive therapy, new ways to practice, and sole practitioner versus multidisciplinary teams.
<b>
<i>Conclusions:</i>
</b>
The purpose of the study was to explore the challenges professionals face when introducing self-management to children and adolescents with lymphedema and their parents and to explore their own sense of self-efficacy in approaching this. The research allowed in-depth discussion about the ways they conceptualize self-management and faced professional challenges. The research highlighted the need to define what is considered an acceptable outcome within a complex and uncertain condition and the self-management strategies that are needed to support this.</div>
</front>
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<Month>01</Month>
<Day>15</Day>
</DateCompleted>
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<Year>2020</Year>
<Month>03</Month>
<Day>09</Day>
</DateRevised>
<Article PubModel="Print">
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<ISSN IssnType="Electronic">1557-8585</ISSN>
<JournalIssue CitedMedium="Internet">
<Volume>17</Volume>
<Issue>2</Issue>
<PubDate>
<Year>2019</Year>
<Month>04</Month>
</PubDate>
</JournalIssue>
<Title>Lymphatic research and biology</Title>
<ISOAbbreviation>Lymphat Res Biol</ISOAbbreviation>
</Journal>
<ArticleTitle>A Study to Explore the Professional Conceptualization and Challenges of Self-Management in Children and Adolescents with Lymphedema.</ArticleTitle>
<Pagination>
<MedlinePgn>221-230</MedlinePgn>
</Pagination>
<ELocationID EIdType="doi" ValidYN="Y">10.1089/lrb.2018.0076</ELocationID>
<Abstract>
<AbstractText>
<b>
<i>Background:</i>
</b>
The aim of this study was to explore the professional experience of caring for children and adolescents with lymphedema and to explore the way in which they understand and implement self-management strategies and the influence of their own self-efficacy beliefs on this process.
<b>
<i>Methods and Results:</i>
</b>
Participants were recruited during an educational camp for children with lymphedema. Three individual semistructured focus groups were undertaken in English, French, and Italian with simultaneous translation. Data were analyzed using interpretative phenomenological analysis (IPA). Analysis of the data produced three superordinate themes: professional concepts of self-management, professional practice, and redefining the cornerstone of lymphedema care. An additional seven subthemes were as follows: readiness to self-management, professional perspectives on self-management, defining success and treatment failure, emotional burden, traditional views on complex decongestive therapy, new ways to practice, and sole practitioner versus multidisciplinary teams.
<b>
<i>Conclusions:</i>
</b>
The purpose of the study was to explore the challenges professionals face when introducing self-management to children and adolescents with lymphedema and their parents and to explore their own sense of self-efficacy in approaching this. The research allowed in-depth discussion about the ways they conceptualize self-management and faced professional challenges. The research highlighted the need to define what is considered an acceptable outcome within a complex and uncertain condition and the self-management strategies that are needed to support this.</AbstractText>
</Abstract>
<AuthorList CompleteYN="Y">
<Author ValidYN="Y">
<LastName>Moffatt</LastName>
<ForeName>Christine</ForeName>
<Initials>C</Initials>
<AffiliationInfo>
<Affiliation>1 School of Social Sciences, University of Nottingham Trent, Nottingham, United Kingdom.</Affiliation>
</AffiliationInfo>
<AffiliationInfo>
<Affiliation>2 Department of Vascular Medicine, CHU Saint Eloi, University of Montpellier, Montpellier, France.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y">
<LastName>Aubeeluck</LastName>
<ForeName>Aimee</ForeName>
<Initials>A</Initials>
<AffiliationInfo>
<Affiliation>3 School of Health Science and Medicine, University of Nottingham, Nottingham, United Kingdom.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y">
<LastName>Stasi</LastName>
<ForeName>Elodie</ForeName>
<Initials>E</Initials>
<AffiliationInfo>
<Affiliation>4 Center of Research of Immunopathology and Rare Diseases-Coordinating Center of the Network for Rare Diseases of Piedmont and Aosta Valley, Turin, Italy.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y">
<LastName>Macsweeney</LastName>
<ForeName>Meadbh</ForeName>
<Initials>M</Initials>
<AffiliationInfo>
<Affiliation>5 Lymph Clinic, Cork, Ireland.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y">
<LastName>Mourgues</LastName>
<ForeName>Fabienne</ForeName>
<Initials>F</Initials>
<AffiliationInfo>
<Affiliation>2 Department of Vascular Medicine, CHU Saint Eloi, University of Montpellier, Montpellier, France.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y">
<LastName>Pourquier</LastName>
<ForeName>Hélène</ForeName>
<Initials>H</Initials>
<AffiliationInfo>
<Affiliation>2 Department of Vascular Medicine, CHU Saint Eloi, University of Montpellier, Montpellier, France.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y">
<LastName>Lapointe</LastName>
<ForeName>Chantal</ForeName>
<Initials>C</Initials>
<AffiliationInfo>
<Affiliation>6 CHU Sainte Justine, Université de Montréal, Montréal, Canada.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y">
<LastName>Mestre</LastName>
<ForeName>Sandrine</ForeName>
<Initials>S</Initials>
<AffiliationInfo>
<Affiliation>5 Lymph Clinic, Cork, Ireland.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y">
<LastName>Quere</LastName>
<ForeName>Isabelle</ForeName>
<Initials>I</Initials>
<AffiliationInfo>
<Affiliation>5 Lymph Clinic, Cork, Ireland.</Affiliation>
</AffiliationInfo>
</Author>
</AuthorList>
<Language>eng</Language>
<PublicationTypeList>
<PublicationType UI="D016428">Journal Article</PublicationType>
<PublicationType UI="D016448">Multicenter Study</PublicationType>
<PublicationType UI="D013485">Research Support, Non-U.S. Gov't</PublicationType>
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</Article>
<MedlineJournalInfo>
<Country>United States</Country>
<MedlineTA>Lymphat Res Biol</MedlineTA>
<NlmUniqueID>101163587</NlmUniqueID>
<ISSNLinking>1539-6851</ISSNLinking>
</MedlineJournalInfo>
<CitationSubset>IM</CitationSubset>
<MeshHeadingList>
<MeshHeading>
<DescriptorName UI="D000293" MajorTopicYN="N">Adolescent</DescriptorName>
</MeshHeading>
<MeshHeading>
<DescriptorName UI="D002648" MajorTopicYN="N">Child</DescriptorName>
</MeshHeading>
<MeshHeading>
<DescriptorName UI="D002908" MajorTopicYN="N">Chronic Disease</DescriptorName>
</MeshHeading>
<MeshHeading>
<DescriptorName UI="D058128" MajorTopicYN="N">Compression Bandages</DescriptorName>
</MeshHeading>
<MeshHeading>
<DescriptorName UI="D019468" MajorTopicYN="N">Disease Management</DescriptorName>
</MeshHeading>
<MeshHeading>
<DescriptorName UI="D000066498" MajorTopicYN="Y">Emotional Adjustment</DescriptorName>
</MeshHeading>
<MeshHeading>
<DescriptorName UI="D005260" MajorTopicYN="N">Female</DescriptorName>
</MeshHeading>
<MeshHeading>
<DescriptorName UI="D005602" MajorTopicYN="N" Type="Geographic">France</DescriptorName>
</MeshHeading>
<MeshHeading>
<DescriptorName UI="D006801" MajorTopicYN="N">Humans</DescriptorName>
</MeshHeading>
<MeshHeading>
<DescriptorName UI="D007558" MajorTopicYN="N" Type="Geographic">Italy</DescriptorName>
</MeshHeading>
<MeshHeading>
<DescriptorName UI="D035002" MajorTopicYN="N">Lower Extremity</DescriptorName>
<QualifierName UI="Q000473" MajorTopicYN="N">pathology</QualifierName>
<QualifierName UI="Q000503" MajorTopicYN="N">physiopathology</QualifierName>
</MeshHeading>
<MeshHeading>
<DescriptorName UI="D008208" MajorTopicYN="N">Lymphatic System</DescriptorName>
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<QualifierName UI="Q000503" MajorTopicYN="N">physiopathology</QualifierName>
</MeshHeading>
<MeshHeading>
<DescriptorName UI="D008209" MajorTopicYN="N">Lymphedema</DescriptorName>
<QualifierName UI="Q000473" MajorTopicYN="N">pathology</QualifierName>
<QualifierName UI="Q000503" MajorTopicYN="N">physiopathology</QualifierName>
<QualifierName UI="Q000523" MajorTopicYN="Y">psychology</QualifierName>
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<MeshHeading>
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</MeshHeading>
<MeshHeading>
<DescriptorName UI="D011788" MajorTopicYN="N">Quality of Life</DescriptorName>
<QualifierName UI="Q000523" MajorTopicYN="Y">psychology</QualifierName>
</MeshHeading>
<MeshHeading>
<DescriptorName UI="D012648" MajorTopicYN="N">Self Care</DescriptorName>
<QualifierName UI="Q000523" MajorTopicYN="Y">psychology</QualifierName>
</MeshHeading>
<MeshHeading>
<DescriptorName UI="D020377" MajorTopicYN="N">Self Efficacy</DescriptorName>
</MeshHeading>
<MeshHeading>
<DescriptorName UI="D000073278" MajorTopicYN="N">Self-Management</DescriptorName>
<QualifierName UI="Q000193" MajorTopicYN="N">education</QualifierName>
<QualifierName UI="Q000523" MajorTopicYN="Y">psychology</QualifierName>
</MeshHeading>
<MeshHeading>
<DescriptorName UI="D017592" MajorTopicYN="N">Skin Care</DescriptorName>
<QualifierName UI="Q000379" MajorTopicYN="N">methods</QualifierName>
<QualifierName UI="Q000523" MajorTopicYN="N">psychology</QualifierName>
</MeshHeading>
<MeshHeading>
<DescriptorName UI="D011795" MajorTopicYN="N">Surveys and Questionnaires</DescriptorName>
</MeshHeading>
<MeshHeading>
<DescriptorName UI="D016896" MajorTopicYN="N">Treatment Outcome</DescriptorName>
</MeshHeading>
<MeshHeading>
<DescriptorName UI="D006113" MajorTopicYN="N" Type="Geographic">United Kingdom</DescriptorName>
</MeshHeading>
<MeshHeading>
<DescriptorName UI="D034941" MajorTopicYN="N">Upper Extremity</DescriptorName>
<QualifierName UI="Q000473" MajorTopicYN="N">pathology</QualifierName>
<QualifierName UI="Q000503" MajorTopicYN="N">physiopathology</QualifierName>
</MeshHeading>
</MeshHeadingList>
<KeywordList Owner="NOTNLM">
<Keyword MajorTopicYN="Y">complex decongestive therapy (CDT)</Keyword>
<Keyword MajorTopicYN="Y">emotional burden</Keyword>
<Keyword MajorTopicYN="Y">lymphedema</Keyword>
<Keyword MajorTopicYN="Y">lymphoedema</Keyword>
<Keyword MajorTopicYN="Y">self-efficacy</Keyword>
<Keyword MajorTopicYN="Y">self-management</Keyword>
</KeywordList>
</MedlineCitation>
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<Month>4</Month>
<Day>18</Day>
<Hour>6</Hour>
<Minute>0</Minute>
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<Day>18</Day>
<Hour>6</Hour>
<Minute>0</Minute>
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<PubMedPubDate PubStatus="medline">
<Year>2020</Year>
<Month>1</Month>
<Day>16</Day>
<Hour>6</Hour>
<Minute>0</Minute>
</PubMedPubDate>
</History>
<PublicationStatus>ppublish</PublicationStatus>
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<ReferenceList>
<Reference>
<Citation>Int Wound J. 2010 Feb;7(1):14-26</Citation>
<ArticleIdList>
<ArticleId IdType="pubmed">20409247</ArticleId>
</ArticleIdList>
</Reference>
<Reference>
<Citation>Support Care Cancer. 2005 Nov;13(11):904-11</Citation>
<ArticleIdList>
<ArticleId IdType="pubmed">15812652</ArticleId>
</ArticleIdList>
</Reference>
<Reference>
<Citation>JAMA. 2013 Nov 27;310(20):2191-4</Citation>
<ArticleIdList>
<ArticleId IdType="pubmed">24141714</ArticleId>
</ArticleIdList>
</Reference>
<Reference>
<Citation>J Pain Symptom Manage. 2009 Dec;38(6):849-59</Citation>
<ArticleIdList>
<ArticleId IdType="pubmed">19819668</ArticleId>
</ArticleIdList>
</Reference>
<Reference>
<Citation>Psychooncology. 2013 Jul;22(7):1466-84</Citation>
<ArticleIdList>
<ArticleId IdType="pubmed">23044512</ArticleId>
</ArticleIdList>
</Reference>
<Reference>
<Citation>Lymphat Res Biol. 2009;7(2):109-12</Citation>
<ArticleIdList>
<ArticleId IdType="pubmed">19534633</ArticleId>
</ArticleIdList>
</Reference>
<Reference>
<Citation>J Pain Symptom Manage. 1996 Dec;12(6):376-9</Citation>
<ArticleIdList>
<ArticleId IdType="pubmed">8973048</ArticleId>
</ArticleIdList>
</Reference>
<Reference>
<Citation>Nurs Res. 2012 Jul-Aug;61(4):291-9</Citation>
<ArticleIdList>
<ArticleId IdType="pubmed">22565103</ArticleId>
</ArticleIdList>
</Reference>
<Reference>
<Citation>J Nurs Scholarsh. 2011 Sep;43(3):255-64</Citation>
<ArticleIdList>
<ArticleId IdType="pubmed">21884371</ArticleId>
</ArticleIdList>
</Reference>
<Reference>
<Citation>Breast J. 2000 Nov;6(6):373-378</Citation>
<ArticleIdList>
<ArticleId IdType="pubmed">11348395</ArticleId>
</ArticleIdList>
</Reference>
<Reference>
<Citation>Res Nurs Health. 1984 Sep;7(3):163-71</Citation>
<ArticleIdList>
<ArticleId IdType="pubmed">6567948</ArticleId>
</ArticleIdList>
</Reference>
<Reference>
<Citation>Int Wound J. 2012 Feb;9(1):54-69</Citation>
<ArticleIdList>
<ArticleId IdType="pubmed">21848727</ArticleId>
</ArticleIdList>
</Reference>
<Reference>
<Citation>Lymphat Res Biol. 2017 Sep;15(3):252-261</Citation>
<ArticleIdList>
<ArticleId IdType="pubmed">28937923</ArticleId>
</ArticleIdList>
</Reference>
</ReferenceList>
</PubmedData>
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