The Social Context and Illness Identity in Youth with Type 1 Diabetes: A Three-Wave Longitudinal Study.
Identifieur interne : 000275 ( Main/Corpus ); précédent : 000274; suivant : 000276The Social Context and Illness Identity in Youth with Type 1 Diabetes: A Three-Wave Longitudinal Study.
Auteurs : Koen Raymaekers ; Sofie Prikken ; Janne Vanhalst ; Philip Moons ; Eva Goossens ; Leen Oris ; Ilse Weets ; Koen LuyckxSource :
- Journal of youth and adolescence [ 1573-6601 ] ; 2020.
English descriptors
- KwdEn :
- Adolescent (MeSH), Anxiety (psychology), Diabetes Mellitus, Type 1 (psychology), Female (MeSH), Humans (MeSH), Interpersonal Relations (MeSH), Longitudinal Studies (MeSH), Male (MeSH), Parent-Child Relations (MeSH), Peer Group (MeSH), Self Concept (MeSH), Social Environment (MeSH), Surveys and Questionnaires (MeSH), Young Adult (MeSH).
- MESH :
Abstract
Youth with type 1 diabetes are confronted with the challenging task of integrating diabetes into their identity. This integration process, referred to as illness identity, may play an important role in how youth with type 1 diabetes cope with normative and illness-specific challenges. In line with socio-ecological theorizing, the present study investigated the longitudinal interplay between illness identity and two important social contexts for youth, the parent and peer contexts. A total of 559 (54.5% female; mean age = 18.8 years) adolescents (14-17 years) and emerging adults (18-25 years) with type 1 diabetes completed questionnaires at three time-points with intervals of one year. A total of 98% of these participants had the Belgian nationality, and all of them spoke Dutch. At each time point, illness identity (i.e., acceptance, enrichment, rejection, and engulfment), peer support, extreme peer orientation, parental responsiveness, parental psychological control, and parental overprotection were self-assessed. The present findings show that overprotective parenting may lead to youth feeling engulfed by their diabetes. Further, when type 1 diabetes becomes adaptively integrated into youth's identity, the data suggest that youth may be better prepared to engage in healthy peer relationships. Thus, the present findings show that illness identity may be affected by the social context, and in turn may have an impact on parent and peer relationships as well. In general, the present findings underscore the importance of adaptive illness integration for youth with type 1 diabetes, and further emphasize the importance of achieving a coherent identity.
DOI: 10.1007/s10964-019-01180-2
PubMed: 31853683
Links to Exploration step
pubmed:31853683Le document en format XML
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Belgium.</nlm:affiliation></affiliation></author><author><name sortKey="Vanhalst, Janne" sort="Vanhalst, Janne" uniqKey="Vanhalst J" first="Janne" last="Vanhalst">Janne Vanhalst</name><affiliation><nlm:affiliation>Department of Developmental, Personality, and Social Psychology, Ghent University, Ghent, Belgium.</nlm:affiliation></affiliation></author><author><name sortKey="Moons, Philip" sort="Moons, Philip" uniqKey="Moons P" first="Philip" last="Moons">Philip Moons</name><affiliation><nlm:affiliation>Department of Public Health and Primary Care, KU Leuven, Leuven, Belgium.</nlm:affiliation></affiliation><affiliation><nlm:affiliation>Institute of Health and Care Sciences, University of Gothenburg, Gothenburg, Sweden.</nlm:affiliation></affiliation><affiliation><nlm:affiliation>Department of Pediatrics and Child Health, University of Cape Town, Cape Town, South Africa.</nlm:affiliation></affiliation></author><author><name sortKey="Goossens, Eva" sort="Goossens, Eva" uniqKey="Goossens E" 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last="Raymaekers">Koen Raymaekers</name><affiliation><nlm:affiliation>School Psychology and Development in Context, KU Leuven, Leuven, Belgium. koen.raymaekers@kuleuven.be.</nlm:affiliation></affiliation><affiliation><nlm:affiliation>Research Foundation Flanders, Brussels, Belgium. koen.raymaekers@kuleuven.be.</nlm:affiliation></affiliation></author><author><name sortKey="Prikken, Sofie" sort="Prikken, Sofie" uniqKey="Prikken S" first="Sofie" last="Prikken">Sofie Prikken</name><affiliation><nlm:affiliation>School Psychology and Development in Context, KU Leuven, Leuven, Belgium.</nlm:affiliation></affiliation><affiliation><nlm:affiliation>Research Foundation Flanders, Brussels, Belgium.</nlm:affiliation></affiliation></author><author><name sortKey="Vanhalst, Janne" sort="Vanhalst, Janne" uniqKey="Vanhalst J" first="Janne" last="Vanhalst">Janne Vanhalst</name><affiliation><nlm:affiliation>Department of Developmental, Personality, and Social Psychology, Ghent University, Ghent, Belgium.</nlm:affiliation></affiliation></author><author><name sortKey="Moons, Philip" sort="Moons, Philip" uniqKey="Moons P" first="Philip" last="Moons">Philip Moons</name><affiliation><nlm:affiliation>Department of Public Health and Primary Care, KU Leuven, Leuven, Belgium.</nlm:affiliation></affiliation><affiliation><nlm:affiliation>Institute of Health and Care Sciences, University of Gothenburg, Gothenburg, Sweden.</nlm:affiliation></affiliation><affiliation><nlm:affiliation>Department of Pediatrics and Child Health, University of Cape Town, Cape Town, South Africa.</nlm:affiliation></affiliation></author><author><name sortKey="Goossens, Eva" sort="Goossens, Eva" uniqKey="Goossens E" first="Eva" last="Goossens">Eva Goossens</name><affiliation><nlm:affiliation>Research Foundation Flanders, Brussels, Belgium.</nlm:affiliation></affiliation><affiliation><nlm:affiliation>Department of Public Health and Primary Care, KU Leuven, Leuven, Belgium.</nlm:affiliation></affiliation></author><author><name sortKey="Oris, Leen" sort="Oris, Leen" uniqKey="Oris L" first="Leen" last="Oris">Leen Oris</name><affiliation><nlm:affiliation>School Psychology and Development in Context, KU Leuven, Leuven, Belgium.</nlm:affiliation></affiliation><affiliation><nlm:affiliation>Research Foundation Flanders, Brussels, Belgium.</nlm:affiliation></affiliation></author><author><name sortKey="Weets, Ilse" sort="Weets, Ilse" uniqKey="Weets I" first="Ilse" last="Weets">Ilse Weets</name><affiliation><nlm:affiliation>Diabetes Research Center/Clinical Biology, Free University Brussels, Brussels, Belgium.</nlm:affiliation></affiliation></author><author><name sortKey="Luyckx, Koen" sort="Luyckx, Koen" uniqKey="Luyckx K" first="Koen" last="Luyckx">Koen Luyckx</name><affiliation><nlm:affiliation>School Psychology and Development in Context, KU Leuven, Leuven, Belgium.</nlm:affiliation></affiliation><affiliation><nlm:affiliation>UNIBS, University of the Free State, Bloemfontein, South Africa.</nlm:affiliation></affiliation></author></analytic><series><title level="j">Journal of youth and adolescence</title><idno type="eISSN">1573-6601</idno><imprint><date when="2020" type="published">2020</date></imprint></series></biblStruct></sourceDesc></fileDesc><profileDesc><textClass><keywords scheme="KwdEn" xml:lang="en"><term>Adolescent (MeSH)</term><term>Anxiety (psychology)</term><term>Diabetes Mellitus, Type 1 (psychology)</term><term>Female (MeSH)</term><term>Humans (MeSH)</term><term>Interpersonal Relations (MeSH)</term><term>Longitudinal Studies (MeSH)</term><term>Male (MeSH)</term><term>Parent-Child Relations (MeSH)</term><term>Peer Group (MeSH)</term><term>Self Concept (MeSH)</term><term>Social Environment (MeSH)</term><term>Surveys and Questionnaires (MeSH)</term><term>Young Adult (MeSH)</term></keywords><keywords scheme="MESH" qualifier="psychology" xml:lang="en"><term>Anxiety</term><term>Diabetes Mellitus, Type 1</term></keywords><keywords scheme="MESH" xml:lang="en"><term>Adolescent</term><term>Female</term><term>Humans</term><term>Interpersonal Relations</term><term>Longitudinal Studies</term><term>Male</term><term>Parent-Child Relations</term><term>Peer Group</term><term>Self Concept</term><term>Social Environment</term><term>Surveys and Questionnaires</term><term>Young Adult</term></keywords></textClass></profileDesc></teiHeader><front><div type="abstract" xml:lang="en">Youth with type 1 diabetes are confronted with the challenging task of integrating diabetes into their identity. This integration process, referred to as illness identity, may play an important role in how youth with type 1 diabetes cope with normative and illness-specific challenges. In line with socio-ecological theorizing, the present study investigated the longitudinal interplay between illness identity and two important social contexts for youth, the parent and peer contexts. A total of 559 (54.5% female; mean age = 18.8 years) adolescents (14-17 years) and emerging adults (18-25 years) with type 1 diabetes completed questionnaires at three time-points with intervals of one year. A total of 98% of these participants had the Belgian nationality, and all of them spoke Dutch. At each time point, illness identity (i.e., acceptance, enrichment, rejection, and engulfment), peer support, extreme peer orientation, parental responsiveness, parental psychological control, and parental overprotection were self-assessed. The present findings show that overprotective parenting may lead to youth feeling engulfed by their diabetes. Further, when type 1 diabetes becomes adaptively integrated into youth's identity, the data suggest that youth may be better prepared to engage in healthy peer relationships. Thus, the present findings show that illness identity may be affected by the social context, and in turn may have an impact on parent and peer relationships as well. In general, the present findings underscore the importance of adaptive illness integration for youth with type 1 diabetes, and further emphasize the importance of achieving a coherent identity.</div></front></TEI><pubmed><MedlineCitation Status="MEDLINE" IndexingMethod="Curated" Owner="NLM"><PMID Version="1">31853683</PMID><DateCompleted><Year>2020</Year><Month>09</Month><Day>23</Day></DateCompleted><DateRevised><Year>2021</Year><Month>01</Month><Day>10</Day></DateRevised><Article PubModel="Print-Electronic"><Journal><ISSN IssnType="Electronic">1573-6601</ISSN><JournalIssue CitedMedium="Internet"><Volume>49</Volume><Issue>2</Issue><PubDate><Year>2020</Year><Month>Feb</Month></PubDate></JournalIssue><Title>Journal of youth and adolescence</Title><ISOAbbreviation>J Youth Adolesc</ISOAbbreviation></Journal><ArticleTitle>The Social Context and Illness Identity in Youth with Type 1 Diabetes: A Three-Wave Longitudinal Study.</ArticleTitle><Pagination><MedlinePgn>449-466</MedlinePgn></Pagination><ELocationID EIdType="doi" ValidYN="Y">10.1007/s10964-019-01180-2</ELocationID><Abstract><AbstractText>Youth with type 1 diabetes are confronted with the challenging task of integrating diabetes into their identity. This integration process, referred to as illness identity, may play an important role in how youth with type 1 diabetes cope with normative and illness-specific challenges. In line with socio-ecological theorizing, the present study investigated the longitudinal interplay between illness identity and two important social contexts for youth, the parent and peer contexts. A total of 559 (54.5% female; mean age = 18.8 years) adolescents (14-17 years) and emerging adults (18-25 years) with type 1 diabetes completed questionnaires at three time-points with intervals of one year. A total of 98% of these participants had the Belgian nationality, and all of them spoke Dutch. At each time point, illness identity (i.e., acceptance, enrichment, rejection, and engulfment), peer support, extreme peer orientation, parental responsiveness, parental psychological control, and parental overprotection were self-assessed. The present findings show that overprotective parenting may lead to youth feeling engulfed by their diabetes. Further, when type 1 diabetes becomes adaptively integrated into youth's identity, the data suggest that youth may be better prepared to engage in healthy peer relationships. Thus, the present findings show that illness identity may be affected by the social context, and in turn may have an impact on parent and peer relationships as well. In general, the present findings underscore the importance of adaptive illness integration for youth with type 1 diabetes, and further emphasize the importance of achieving a coherent identity.</AbstractText></Abstract><AuthorList CompleteYN="Y"><Author ValidYN="Y"><LastName>Raymaekers</LastName><ForeName>Koen</ForeName><Initials>K</Initials><Identifier Source="ORCID">http://orcid.org/0000-0002-5571-4081</Identifier><AffiliationInfo><Affiliation>School Psychology and Development in Context, KU Leuven, Leuven, Belgium. koen.raymaekers@kuleuven.be.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>Research Foundation Flanders, Brussels, Belgium. koen.raymaekers@kuleuven.be.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Prikken</LastName><ForeName>Sofie</ForeName><Initials>S</Initials><AffiliationInfo><Affiliation>School Psychology and Development in Context, KU Leuven, Leuven, Belgium.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>Research Foundation Flanders, Brussels, Belgium.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Vanhalst</LastName><ForeName>Janne</ForeName><Initials>J</Initials><AffiliationInfo><Affiliation>Department of Developmental, Personality, and Social Psychology, Ghent University, Ghent, Belgium.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Moons</LastName><ForeName>Philip</ForeName><Initials>P</Initials><AffiliationInfo><Affiliation>Department of Public Health and Primary Care, KU Leuven, Leuven, Belgium.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>Institute of Health and Care Sciences, University of Gothenburg, Gothenburg, Sweden.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>Department of Pediatrics and Child Health, University of Cape Town, Cape Town, South Africa.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Goossens</LastName><ForeName>Eva</ForeName><Initials>E</Initials><AffiliationInfo><Affiliation>Research Foundation Flanders, Brussels, Belgium.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>Department of Public Health and Primary Care, KU Leuven, Leuven, Belgium.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Oris</LastName><ForeName>Leen</ForeName><Initials>L</Initials><AffiliationInfo><Affiliation>School Psychology and Development in Context, KU Leuven, Leuven, Belgium.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>Research Foundation Flanders, Brussels, Belgium.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Weets</LastName><ForeName>Ilse</ForeName><Initials>I</Initials><AffiliationInfo><Affiliation>Diabetes Research Center/Clinical Biology, Free University Brussels, Brussels, Belgium.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Luyckx</LastName><ForeName>Koen</ForeName><Initials>K</Initials><AffiliationInfo><Affiliation>School Psychology and Development in Context, KU Leuven, Leuven, Belgium.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>UNIBS, University of the Free State, Bloemfontein, South Africa.</Affiliation></AffiliationInfo></Author></AuthorList><Language>eng</Language><GrantList CompleteYN="Y"><Grant><GrantID>G.0B35.14N</GrantID><Agency>Fonds Wetenschappelijk Onderzoek</Agency><Country></Country></Grant></GrantList><PublicationTypeList><PublicationType UI="D016428">Journal Article</PublicationType></PublicationTypeList><ArticleDate DateType="Electronic"><Year>2019</Year><Month>12</Month><Day>18</Day></ArticleDate></Article><MedlineJournalInfo><Country>United States</Country><MedlineTA>J Youth Adolesc</MedlineTA><NlmUniqueID>0333507</NlmUniqueID><ISSNLinking>0047-2891</ISSNLinking></MedlineJournalInfo><CitationSubset>IM</CitationSubset><MeshHeadingList><MeshHeading><DescriptorName UI="D000293" MajorTopicYN="N">Adolescent</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D001007" MajorTopicYN="N">Anxiety</DescriptorName><QualifierName UI="Q000523" MajorTopicYN="Y">psychology</QualifierName></MeshHeading><MeshHeading><DescriptorName UI="D003922" MajorTopicYN="N">Diabetes Mellitus, Type 1</DescriptorName><QualifierName UI="Q000523" MajorTopicYN="Y">psychology</QualifierName></MeshHeading><MeshHeading><DescriptorName UI="D005260" MajorTopicYN="N">Female</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D006801" MajorTopicYN="N">Humans</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D007398" MajorTopicYN="N">Interpersonal Relations</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D008137" MajorTopicYN="N">Longitudinal Studies</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D008297" MajorTopicYN="N">Male</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D010287" MajorTopicYN="Y">Parent-Child Relations</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D010379" MajorTopicYN="Y">Peer Group</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D012649" MajorTopicYN="Y">Self Concept</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D012931" MajorTopicYN="N">Social Environment</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D011795" MajorTopicYN="N">Surveys and Questionnaires</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D055815" MajorTopicYN="N">Young Adult</DescriptorName></MeshHeading></MeshHeadingList><KeywordList Owner="NOTNLM"><Keyword MajorTopicYN="N">Adolescents</Keyword><Keyword MajorTopicYN="N">Chronic disease</Keyword><Keyword MajorTopicYN="N">Diabetes mellitus, type 1</Keyword><Keyword 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