Telephone support group intervention for persons with hemophilia and HIV/AIDS and family caregivers
Identifieur interne : 000B01 ( Istex/Corpus ); précédent : 000B00; suivant : 000B02Telephone support group intervention for persons with hemophilia and HIV/AIDS and family caregivers
Auteurs : Miriam J. Stewart ; Geraldine Hart ; Karen Mann ; Susan Jackson ; Lynn Langille ; Marie ReidySource :
- International Journal of Nursing Studies [ 0020-7489 ] ; 2001.
Abstract
The purpose of this pilot project was to test the feasibility of a telephone support group intervention for persons with hemophilia and HIV/AIDS and for their family caregivers. Their support needs were unique because they did not identify with predominant groups of persons with AIDS and were geographically dispersed from peers. The 12 week intervention involved separate telephone support groups for hemophiliacs and for family caregivers. The two groups, comprised of a predetermined maximum of six people, were co-led by a professional and a peer. The support group for family caregivers involved six people and the group for men with hemophilia included five people, including one peer facilitator and one professional facilitator in each group. The telephone support group discussions were taped, transcribed, and analyzed for prevalent themes. The peer and professional facilitators maintained weekly field notes. All participants reported that the telephone groups had a positive impact on meeting their support needs. They believed that they had benefitted from sharing information and that the support groups had decreased their feelings of isolation and loneliness. Participants, however, contended that the intervention should be longer than 12 weeks.
Url:
DOI: 10.1016/S0020-7489(00)00035-3
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Stewart</name><affiliation><mods:affiliation>Faculty of Nursing, University of Alberta, Edmonton, AB, Canada</mods:affiliation></affiliation></author><author><name sortKey="Hart, Geraldine" sort="Hart, Geraldine" uniqKey="Hart G" first="Geraldine" last="Hart">Geraldine Hart</name><affiliation><mods:affiliation>Faculty of Nursing, University of Alberta, Edmonton, AB, Canada</mods:affiliation></affiliation></author><author><name sortKey="Mann, Karen" sort="Mann, Karen" uniqKey="Mann K" first="Karen" last="Mann">Karen Mann</name><affiliation><mods:affiliation>Department of Medicine, Dalhousie University, Halifax, Nova Scotia, B3H 3J5, Canada</mods:affiliation></affiliation></author><author><name sortKey="Jackson, Susan" sort="Jackson, Susan" uniqKey="Jackson S" first="Susan" last="Jackson">Susan Jackson</name><affiliation><mods:affiliation>Atlantic Health Promotion Research Centre, Dalhousie University, Halifax, NS, Canada B3H 3J5</mods:affiliation></affiliation></author><author><name sortKey="Langille, Lynn" sort="Langille, Lynn" uniqKey="Langille L" first="Lynn" last="Langille">Lynn Langille</name><affiliation><mods:affiliation>Atlantic Health Promotion Research Centre, Dalhousie University, Halifax, NS, Canada B3H 3J5</mods:affiliation></affiliation></author><author><name sortKey="Reidy, Marie" sort="Reidy, Marie" uniqKey="Reidy M" first="Marie" last="Reidy">Marie Reidy</name><affiliation><mods:affiliation>School of Nursing, University of Montreal, Montreal, Quebec, Canada H3C 3J7</mods:affiliation></affiliation></author></analytic><monogr></monogr><series><title level="j">International Journal of Nursing Studies</title><title level="j" type="abbrev">NS</title><idno type="ISSN">0020-7489</idno><imprint><publisher>ELSEVIER</publisher><date type="published" when="2001">2001</date><biblScope unit="volume">38</biblScope><biblScope unit="issue">2</biblScope><biblScope unit="page" from="209">209</biblScope><biblScope unit="page" to="225">225</biblScope></imprint><idno type="ISSN">0020-7489</idno></series><idno type="istex">AA5FDFE113C75BBF451A9FF7871CF67194478FB8</idno><idno type="DOI">10.1016/S0020-7489(00)00035-3</idno><idno type="PII">S0020-7489(00)00035-3</idno></biblStruct></sourceDesc><seriesStmt><idno type="ISSN">0020-7489</idno></seriesStmt></fileDesc><profileDesc><textClass></textClass><langUsage><language ident="en">en</language></langUsage></profileDesc></teiHeader><front><div type="abstract" xml:lang="en">The purpose of this pilot project was to test the feasibility of a telephone support group intervention for persons with hemophilia and HIV/AIDS and for their family caregivers. Their support needs were unique because they did not identify with predominant groups of persons with AIDS and were geographically dispersed from peers. The 12 week intervention involved separate telephone support groups for hemophiliacs and for family caregivers. The two groups, comprised of a predetermined maximum of six people, were co-led by a professional and a peer. The support group for family caregivers involved six people and the group for men with hemophilia included five people, including one peer facilitator and one professional facilitator in each group. The telephone support group discussions were taped, transcribed, and analyzed for prevalent themes. The peer and professional facilitators maintained weekly field notes. All participants reported that the telephone groups had a positive impact on meeting their support needs. They believed that they had benefitted from sharing information and that the support groups had decreased their feelings of isolation and loneliness. Participants, however, contended that the intervention should be longer than 12 weeks.</div></front></TEI><istex><corpusName>elsevier</corpusName><author><json:item><name>Miriam J. Stewart</name><affiliations><json:string>Faculty of Nursing, University of Alberta, Edmonton, AB, Canada</json:string></affiliations></json:item><json:item><name>Geraldine Hart</name><affiliations><json:string>Faculty of Nursing, University of Alberta, Edmonton, AB, Canada</json:string></affiliations></json:item><json:item><name>Karen Mann</name><affiliations><json:string>Department of Medicine, Dalhousie University, Halifax, Nova Scotia, B3H 3J5, Canada</json:string></affiliations></json:item><json:item><name>Susan Jackson</name><affiliations><json:string>Atlantic Health Promotion Research Centre, Dalhousie University, Halifax, NS, Canada B3H 3J5</json:string></affiliations></json:item><json:item><name>Lynn Langille</name><affiliations><json:string>Atlantic Health Promotion Research Centre, Dalhousie University, Halifax, NS, Canada B3H 3J5</json:string></affiliations></json:item><json:item><name>Marie Reidy</name><affiliations><json:string>School of Nursing, University of Montreal, Montreal, Quebec, Canada H3C 3J7</json:string></affiliations></json:item></author><subject><json:item><lang><json:string>eng</json:string></lang><value>Hemophilia</value></json:item><json:item><lang><json:string>eng</json:string></lang><value>HIV/AIDS</value></json:item><json:item><lang><json:string>eng</json:string></lang><value>Family caregivers</value></json:item><json:item><lang><json:string>eng</json:string></lang><value>Support groups</value></json:item><json:item><lang><json:string>eng</json:string></lang><value>Loneliness</value></json:item><json:item><lang><json:string>eng</json:string></lang><value>Coping</value></json:item><json:item><lang><json:string>eng</json:string></lang><value>Stress</value></json:item></subject><language><json:string>eng</json:string></language><originalGenre><json:string>Full-length article</json:string></originalGenre><abstract>The purpose of this pilot project was to test the feasibility of a telephone support group intervention for persons with hemophilia and HIV/AIDS and for their family caregivers. Their support needs were unique because they did not identify with predominant groups of persons with AIDS and were geographically dispersed from peers. The 12 week intervention involved separate telephone support groups for hemophiliacs and for family caregivers. The two groups, comprised of a predetermined maximum of six people, were co-led by a professional and a peer. The support group for family caregivers involved six people and the group for men with hemophilia included five people, including one peer facilitator and one professional facilitator in each group. The telephone support group discussions were taped, transcribed, and analyzed for prevalent themes. The peer and professional facilitators maintained weekly field notes. All participants reported that the telephone groups had a positive impact on meeting their support needs. They believed that they had benefitted from sharing information and that the support groups had decreased their feelings of isolation and loneliness. 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Tel.: +1-780-492-9413</p></note><affiliation>Faculty of Nursing, University of Alberta, Edmonton, AB, Canada</affiliation></author><author xml:id="author-2"><persName><forename type="first">Geraldine</forename><surname>Hart</surname></persName><affiliation>Faculty of Nursing, University of Alberta, Edmonton, AB, Canada</affiliation></author><author xml:id="author-3"><persName><forename type="first">Karen</forename><surname>Mann</surname></persName><affiliation>Department of Medicine, Dalhousie University, Halifax, Nova Scotia, B3H 3J5, Canada</affiliation></author><author xml:id="author-4"><persName><forename type="first">Susan</forename><surname>Jackson</surname></persName><affiliation>Atlantic Health Promotion Research Centre, Dalhousie University, Halifax, NS, Canada B3H 3J5</affiliation></author><author xml:id="author-5"><persName><forename type="first">Lynn</forename><surname>Langille</surname></persName><affiliation>Atlantic Health Promotion Research Centre, Dalhousie University, Halifax, NS, Canada B3H 3J5</affiliation></author><author xml:id="author-6"><persName><forename type="first">Marie</forename><surname>Reidy</surname></persName><affiliation>School of Nursing, University of Montreal, Montreal, Quebec, Canada H3C 3J7</affiliation></author></analytic><monogr><title level="j">International Journal of Nursing Studies</title><title level="j" type="abbrev">NS</title><idno type="pISSN">0020-7489</idno><idno type="PII">S0020-7489(00)X0037-5</idno><imprint><publisher>ELSEVIER</publisher><date type="published" when="2001"></date><biblScope unit="volume">38</biblScope><biblScope unit="issue">2</biblScope><biblScope unit="page" from="209">209</biblScope><biblScope unit="page" to="225">225</biblScope></imprint></monogr><idno type="istex">AA5FDFE113C75BBF451A9FF7871CF67194478FB8</idno><idno type="DOI">10.1016/S0020-7489(00)00035-3</idno><idno type="PII">S0020-7489(00)00035-3</idno></biblStruct></sourceDesc></fileDesc><profileDesc><creation><date>2001</date></creation><langUsage><language ident="en">en</language></langUsage><abstract xml:lang="en"><p>The purpose of this pilot project was to test the feasibility of a telephone support group intervention for persons with hemophilia and HIV/AIDS and for their family caregivers. Their support needs were unique because they did not identify with predominant groups of persons with AIDS and were geographically dispersed from peers. The 12 week intervention involved separate telephone support groups for hemophiliacs and for family caregivers. The two groups, comprised of a predetermined maximum of six people, were co-led by a professional and a peer. The support group for family caregivers involved six people and the group for men with hemophilia included five people, including one peer facilitator and one professional facilitator in each group. The telephone support group discussions were taped, transcribed, and analyzed for prevalent themes. The peer and professional facilitators maintained weekly field notes. All participants reported that the telephone groups had a positive impact on meeting their support needs. They believed that they had benefitted from sharing information and that the support groups had decreased their feelings of isolation and loneliness. Participants, however, contended that the intervention should be longer than 12 weeks.</p></abstract><textClass><keywords scheme="keyword"><list><head>Keywords</head><item><term>Hemophilia</term></item><item><term>HIV/AIDS</term></item><item><term>Family caregivers</term></item><item><term>Support groups</term></item><item><term>Loneliness</term></item><item><term>Coping</term></item><item><term>Stress</term></item></list></keywords></textClass></profileDesc><revisionDesc><change when="1999-10-27">Modified</change><change when="2001">Published</change></revisionDesc></teiHeader></istex:fulltextTEI><json:item><extension>txt</extension><original>false</original><mimetype>text/plain</mimetype><uri>https://api.istex.fr/document/AA5FDFE113C75BBF451A9FF7871CF67194478FB8/fulltext/txt</uri></json:item></fulltext><metadata><istex:metadataXml wicri:clean="Elsevier, elements deleted: ce:floats; body; tail"><istex:xmlDeclaration>version="1.0" encoding="utf-8"</istex:xmlDeclaration><istex:docType PUBLIC="-//ES//DTD journal article DTD version 4.5.2//EN//XML" URI="art452.dtd" name="istex:docType"><istex:entity SYSTEM="gr1" NDATA="IMAGE" name="gr1"></istex:entity></istex:docType><istex:document><converted-article version="4.5.2" docsubtype="fla"><item-info><jid>NS</jid><aid>387</aid><ce:pii>S0020-7489(00)00035-3</ce:pii><ce:doi>10.1016/S0020-7489(00)00035-3</ce:doi><ce:copyright type="unknown" year="2001"></ce:copyright></item-info><head><ce:title>Telephone support group intervention for persons with hemophilia and HIV/AIDS and family caregivers</ce:title><ce:author-group><ce:author><ce:given-name>Miriam J.</ce:given-name><ce:surname>Stewart</ce:surname><ce:cross-ref refid="AFF1"><ce:sup>a</ce:sup></ce:cross-ref><ce:cross-ref refid="CORR1">*</ce:cross-ref></ce:author><ce:author><ce:given-name>Geraldine</ce:given-name><ce:surname>Hart</ce:surname><ce:cross-ref refid="AFF1"><ce:sup>a</ce:sup></ce:cross-ref></ce:author><ce:author><ce:given-name>Karen</ce:given-name><ce:surname>Mann</ce:surname><ce:cross-ref refid="AFF2"><ce:sup>b</ce:sup></ce:cross-ref></ce:author><ce:author><ce:given-name>Susan</ce:given-name><ce:surname>Jackson</ce:surname><ce:cross-ref refid="AFF3"><ce:sup>c</ce:sup></ce:cross-ref></ce:author><ce:author><ce:given-name>Lynn</ce:given-name><ce:surname>Langille</ce:surname><ce:cross-ref refid="AFF3"><ce:sup>c</ce:sup></ce:cross-ref></ce:author><ce:author><ce:given-name>Marie</ce:given-name><ce:surname>Reidy</ce:surname><ce:cross-ref refid="AFF4"><ce:sup>d</ce:sup></ce:cross-ref></ce:author><ce:affiliation id="AFF1"><ce:label>a</ce:label><ce:textfn>Faculty of Nursing, University of Alberta, Edmonton, AB, Canada</ce:textfn></ce:affiliation><ce:affiliation id="AFF2"><ce:label>b</ce:label><ce:textfn>Department of Medicine, Dalhousie University, Halifax, Nova Scotia, B3H 3J5, Canada</ce:textfn></ce:affiliation><ce:affiliation id="AFF3"><ce:label>c</ce:label><ce:textfn>Atlantic Health Promotion Research Centre, Dalhousie University, Halifax, NS, Canada B3H 3J5</ce:textfn></ce:affiliation><ce:affiliation id="AFF4"><ce:label>d</ce:label><ce:textfn>School of Nursing, University of Montreal, Montreal, Quebec, Canada H3C 3J7</ce:textfn></ce:affiliation><ce:correspondence id="CORR1"><ce:label>*</ce:label><ce:text>Corresponding author. Tel.: +1-780-492-9413</ce:text></ce:correspondence></ce:author-group><ce:date-received day="4" month="8" year="1999"></ce:date-received><ce:date-revised day="27" month="10" year="1999"></ce:date-revised><ce:date-accepted day="23" month="12" year="1999"></ce:date-accepted><ce:abstract><ce:section-title>Abstract</ce:section-title><ce:abstract-sec><ce:simple-para>The purpose of this pilot project was to test the feasibility of a telephone support group intervention for persons with hemophilia and HIV/AIDS and for their family caregivers. Their support needs were unique because they did not identify with predominant groups of persons with AIDS and were geographically dispersed from peers. The 12 week intervention involved separate telephone support groups for hemophiliacs and for family caregivers. The two groups, comprised of a predetermined maximum of six people, were co-led by a professional and a peer. The support group for family caregivers involved six people and the group for men with hemophilia included five people, including one peer facilitator and one professional facilitator in each group. The telephone support group discussions were taped, transcribed, and analyzed for prevalent themes. The peer and professional facilitators maintained weekly field notes. All participants reported that the telephone groups had a positive impact on meeting their support needs. They believed that they had benefitted from sharing information and that the support groups had decreased their feelings of isolation and loneliness. Participants, however, contended that the intervention should be longer than 12 weeks.</ce:simple-para></ce:abstract-sec></ce:abstract><ce:keywords class="keyword"><ce:section-title>Keywords</ce:section-title><ce:keyword><ce:text>Hemophilia</ce:text></ce:keyword><ce:keyword><ce:text>HIV/AIDS</ce:text></ce:keyword><ce:keyword><ce:text>Family caregivers</ce:text></ce:keyword><ce:keyword><ce:text>Support groups</ce:text></ce:keyword><ce:keyword><ce:text>Loneliness</ce:text></ce:keyword><ce:keyword><ce:text>Coping</ce:text></ce:keyword><ce:keyword><ce:text>Stress</ce:text></ce:keyword></ce:keywords></head></converted-article></istex:document></istex:metadataXml><mods version="3.6"><titleInfo><title>Telephone support group intervention for persons with hemophilia and HIV/AIDS and family caregivers</title></titleInfo><titleInfo type="alternative" contentType="CDATA"><title>Telephone support group intervention for persons with hemophilia and HIV/AIDS and family caregivers</title></titleInfo><name type="personal"><namePart type="given">Miriam J.</namePart><namePart type="family">Stewart</namePart><affiliation>Faculty of Nursing, University of Alberta, Edmonton, AB, Canada</affiliation><description>Corresponding author. Tel.: +1-780-492-9413</description><role><roleTerm type="text">author</roleTerm></role></name><name type="personal"><namePart type="given">Geraldine</namePart><namePart type="family">Hart</namePart><affiliation>Faculty of Nursing, University of Alberta, Edmonton, AB, Canada</affiliation><role><roleTerm type="text">author</roleTerm></role></name><name type="personal"><namePart type="given">Karen</namePart><namePart type="family">Mann</namePart><affiliation>Department of Medicine, Dalhousie University, Halifax, Nova Scotia, B3H 3J5, Canada</affiliation><role><roleTerm type="text">author</roleTerm></role></name><name type="personal"><namePart type="given">Susan</namePart><namePart type="family">Jackson</namePart><affiliation>Atlantic Health Promotion Research Centre, Dalhousie University, Halifax, NS, Canada B3H 3J5</affiliation><role><roleTerm type="text">author</roleTerm></role></name><name type="personal"><namePart type="given">Lynn</namePart><namePart type="family">Langille</namePart><affiliation>Atlantic Health Promotion Research Centre, Dalhousie University, Halifax, NS, Canada B3H 3J5</affiliation><role><roleTerm type="text">author</roleTerm></role></name><name type="personal"><namePart type="given">Marie</namePart><namePart type="family">Reidy</namePart><affiliation>School of Nursing, University of Montreal, Montreal, Quebec, Canada H3C 3J7</affiliation><role><roleTerm type="text">author</roleTerm></role></name><typeOfResource>text</typeOfResource><genre type="research-article" displayLabel="Full-length article"></genre><originInfo><publisher>ELSEVIER</publisher><dateIssued encoding="w3cdtf">2001</dateIssued><dateModified encoding="w3cdtf">1999-10-27</dateModified><copyrightDate encoding="w3cdtf">2001</copyrightDate></originInfo><language><languageTerm type="code" authority="iso639-2b">eng</languageTerm><languageTerm type="code" authority="rfc3066">en</languageTerm></language><physicalDescription><internetMediaType>text/html</internetMediaType></physicalDescription><abstract lang="en">The purpose of this pilot project was to test the feasibility of a telephone support group intervention for persons with hemophilia and HIV/AIDS and for their family caregivers. Their support needs were unique because they did not identify with predominant groups of persons with AIDS and were geographically dispersed from peers. The 12 week intervention involved separate telephone support groups for hemophiliacs and for family caregivers. The two groups, comprised of a predetermined maximum of six people, were co-led by a professional and a peer. The support group for family caregivers involved six people and the group for men with hemophilia included five people, including one peer facilitator and one professional facilitator in each group. The telephone support group discussions were taped, transcribed, and analyzed for prevalent themes. The peer and professional facilitators maintained weekly field notes. All participants reported that the telephone groups had a positive impact on meeting their support needs. They believed that they had benefitted from sharing information and that the support groups had decreased their feelings of isolation and loneliness. Participants, however, contended that the intervention should be longer than 12 weeks.</abstract><note type="content">Fig. 1: Conceptual framework for support intervention.</note><note type="content">Table 1: Revised facilitator guide</note><note type="content">Table 2: Summary of themes</note><subject><genre>Keywords</genre><topic>Hemophilia</topic><topic>HIV/AIDS</topic><topic>Family caregivers</topic><topic>Support groups</topic><topic>Loneliness</topic><topic>Coping</topic><topic>Stress</topic></subject><relatedItem type="host"><titleInfo><title>International Journal of Nursing Studies</title></titleInfo><titleInfo type="abbreviated"><title>NS</title></titleInfo><genre type="journal">journal</genre><originInfo><dateIssued encoding="w3cdtf">200104</dateIssued></originInfo><identifier type="ISSN">0020-7489</identifier><identifier type="PII">S0020-7489(00)X0037-5</identifier><part><date>200104</date><detail type="volume"><number>38</number><caption>vol.</caption></detail><detail type="issue"><number>2</number><caption>no.</caption></detail><extent unit="issue pages"><start>129</start><end>240</end></extent><extent unit="pages"><start>209</start><end>225</end></extent></part></relatedItem><identifier type="istex">AA5FDFE113C75BBF451A9FF7871CF67194478FB8</identifier><identifier type="DOI">10.1016/S0020-7489(00)00035-3</identifier><identifier type="PII">S0020-7489(00)00035-3</identifier><recordInfo><recordContentSource>ELSEVIER</recordContentSource></recordInfo></mods></metadata><serie></serie></istex></record>Pour manipuler ce document sous Unix (Dilib)
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|texte= Telephone support group intervention for persons with hemophilia and HIV/AIDS and family caregivers
}}
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