Bitter experiences of elderly parents of children with intellectual disabilities: A phenomenological study
Identifieur interne : 000039 ( Pmc/Curation ); précédent : 000038; suivant : 000040Bitter experiences of elderly parents of children with intellectual disabilities: A phenomenological study
Auteurs : Arya Hamedanchi [Iran] ; Hamid Reza Khankeh [Suède] ; Reza Fadayevatan [Iran] ; Robab Teymouri [Iran] ; Robab Sahaf [Iran]Source :
- Iranian Journal of Nursing and Midwifery Research [ 1735-9066 ] ; 2016.
Abstract
It is predicted that over the next 30 years, there will be a significant increase in the number of elderly parents who care for their children with intellectual disability. This paper is part of a larger qualitative study which investigated the unpleasant experiences of these parents.
A phenomenological approach was adopted and data were collected through unstructured in-depth interviews with elderly parents of children with intellectual disability. The data were analyzed using Colaizzi's seven-step method.
“Bitterness” is one of the four emergent themes extracted in this study which has five theme clusters: inappropriate behavior toward the child in the society, the society's failure to support the child with intellectual disability, sorrows experienced by parents, the child's problems, and barriers in the care of the child with intellectual disability. One significant barrier in the last theme cluster is limitations due to aging.
The findings of this study suggest that the elderly parents of children with intellectual disability experience many sorrows and unpleasant feelings, but they mostly consider the social factors as the cause of problems and not the presence of the child. The results also indicate that older parents cannot look after the child as before in their old age; so, future well-designed studies are required for identification of the process of supporting them.
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DOI: 10.4103/1735-9066.180385
PubMed: 27186205
PubMed Central: 4857662
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Hamid Reza Khankeh<affiliation><nlm:aff id="aff2">Health in Emergency and Disaster Department and Research Center, University of Social Welfare and Rehabilitation Sciences, Tehran Iran</nlm:aff><wicri:noCountry code="subfield">Tehran Iran</wicri:noCountry></affiliation><affiliation wicri:level="1"><nlm:aff id="aff3">Department of Clinical Science and Education, Karolinska Institutet, Sweden</nlm:aff><country xml:lang="fr">Suède</country><wicri:regionArea>Department of Clinical Science and Education, Karolinska Institutet</wicri:regionArea></affiliation>Le document en format XML
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Rehabilitation Sciences, Tehran Iran</nlm:aff><wicri:noCountry code="subfield">Tehran Iran</wicri:noCountry></affiliation><affiliation wicri:level="1"><nlm:aff id="aff3">Department of Clinical Science and Education, Karolinska Institutet, Sweden</nlm:aff><country xml:lang="fr">Suède</country><wicri:regionArea>Department of Clinical Science and Education, Karolinska Institutet</wicri:regionArea></affiliation></author><author><name sortKey="Fadayevatan, Reza" sort="Fadayevatan, Reza" uniqKey="Fadayevatan R" first="Reza" last="Fadayevatan">Reza Fadayevatan</name><affiliation wicri:level="1"><nlm:aff id="aff1">Iranian Research Center on Aging, Department of Aging, University of Social Welfare and Rehabilitation Sciences, Tehran, Iran</nlm:aff><country xml:lang="fr">Iran</country><wicri:regionArea>Iranian Research Center on Aging, Department of Aging, University of Social Welfare and Rehabilitation Sciences, Tehran</wicri:regionArea></affiliation></author><author><name sortKey="Teymouri, Robab" sort="Teymouri, Robab" uniqKey="Teymouri R" first="Robab" last="Teymouri">Robab Teymouri</name><affiliation wicri:level="1"><nlm:aff id="aff4">Pediatric Neurorehabilitation Research Center, University of Social Welfare and Rehabilitation Sciences, Tehran, Iran</nlm:aff><country xml:lang="fr">Iran</country><wicri:regionArea>Pediatric Neurorehabilitation Research Center, University of Social Welfare and Rehabilitation Sciences, Tehran</wicri:regionArea></affiliation></author><author><name sortKey="Sahaf, Robab" sort="Sahaf, Robab" uniqKey="Sahaf R" first="Robab" last="Sahaf">Robab Sahaf</name><affiliation wicri:level="1"><nlm:aff id="aff1">Iranian Research Center on Aging, Department of Aging, University of Social Welfare and Rehabilitation Sciences, Tehran, Iran</nlm:aff><country xml:lang="fr">Iran</country><wicri:regionArea>Iranian Research Center on Aging, Department of Aging, University of Social Welfare and Rehabilitation Sciences, 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Hamedanchi</name><affiliation wicri:level="1"><nlm:aff id="aff1">Iranian Research Center on Aging, Department of Aging, University of Social Welfare and Rehabilitation Sciences, Tehran, Iran</nlm:aff><country xml:lang="fr">Iran</country><wicri:regionArea>Iranian Research Center on Aging, Department of Aging, University of Social Welfare and Rehabilitation Sciences, Tehran</wicri:regionArea></affiliation></author><author><name sortKey="Khankeh, Hamid Reza" sort="Khankeh, Hamid Reza" uniqKey="Khankeh H" first="Hamid Reza" last="Khankeh">Hamid Reza Khankeh</name><affiliation><nlm:aff id="aff2">Health in Emergency and Disaster Department and Research Center, University of Social Welfare and Rehabilitation Sciences, Tehran Iran</nlm:aff><wicri:noCountry code="subfield">Tehran Iran</wicri:noCountry></affiliation><affiliation wicri:level="1"><nlm:aff id="aff3">Department of Clinical Science and Education, Karolinska Institutet, Sweden</nlm:aff><country xml:lang="fr">Suède</country><wicri:regionArea>Department of Clinical Science and Education, Karolinska Institutet</wicri:regionArea></affiliation></author><author><name sortKey="Fadayevatan, Reza" sort="Fadayevatan, Reza" uniqKey="Fadayevatan R" first="Reza" last="Fadayevatan">Reza Fadayevatan</name><affiliation wicri:level="1"><nlm:aff id="aff1">Iranian Research Center on Aging, Department of Aging, University of Social Welfare and Rehabilitation Sciences, Tehran, Iran</nlm:aff><country xml:lang="fr">Iran</country><wicri:regionArea>Iranian Research Center on Aging, Department of Aging, University of Social Welfare and Rehabilitation Sciences, Tehran</wicri:regionArea></affiliation></author><author><name sortKey="Teymouri, Robab" sort="Teymouri, Robab" uniqKey="Teymouri R" first="Robab" last="Teymouri">Robab Teymouri</name><affiliation wicri:level="1"><nlm:aff id="aff4">Pediatric Neurorehabilitation Research Center, University of Social Welfare and Rehabilitation Sciences, Tehran, Iran</nlm:aff><country xml:lang="fr">Iran</country><wicri:regionArea>Pediatric Neurorehabilitation Research Center, University of Social Welfare and Rehabilitation Sciences, Tehran</wicri:regionArea></affiliation></author><author><name sortKey="Sahaf, Robab" sort="Sahaf, Robab" uniqKey="Sahaf R" first="Robab" last="Sahaf">Robab Sahaf</name><affiliation wicri:level="1"><nlm:aff id="aff1">Iranian Research Center on Aging, Department of Aging, University of Social Welfare and Rehabilitation Sciences, Tehran, Iran</nlm:aff><country xml:lang="fr">Iran</country><wicri:regionArea>Iranian Research Center on Aging, Department of Aging, University of Social Welfare and Rehabilitation Sciences, Tehran</wicri:regionArea></affiliation></author></analytic><series><title level="j">Iranian Journal of Nursing and Midwifery Research</title><idno type="ISSN">1735-9066</idno><idno type="eISSN">2228-5504</idno><imprint><date when="2016">2016</date></imprint></series></biblStruct></sourceDesc></fileDesc><profileDesc><textClass></textClass></profileDesc></teiHeader><front><div type="abstract" xml:lang="en"><sec id="st1"><title>Background:</title><p>It is predicted that over the next 30 years, there will be a significant increase in the number of elderly parents who care for their children with intellectual disability. This paper is part of a larger qualitative study which investigated the unpleasant experiences of these parents.</p></sec><sec id="st2"><title>Materials and Methods:</title><p>A phenomenological approach was adopted and data were collected through unstructured in-depth interviews with elderly parents of children with intellectual disability. The data were analyzed using Colaizzi's seven-step method.</p></sec><sec id="st3"><title>Results:</title><p>“Bitterness” is one of the four emergent themes extracted in this study which has five theme clusters: inappropriate behavior toward the child in the society, the society's failure to support the child with intellectual disability, sorrows experienced by parents, the child's problems, and barriers in the care of the child with intellectual disability. One significant barrier in the last theme cluster is limitations due to aging.</p></sec><sec id="st4"><title>Conclusions:</title><p>The findings of this study suggest that the elderly parents of children with intellectual disability experience many sorrows and unpleasant feelings, but they mostly consider the social factors as the cause of problems and not the presence of the child. The results also indicate that older parents cannot look after the child as before in their old age; so, future well-designed studies are required for identification of the process of supporting them.</p></sec></div></front><back><div1 type="bibliography"><listBibl><biblStruct><analytic><author><name sortKey="Vickers, K" uniqKey="Vickers K">K Vickers</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Majumdar, M" uniqKey="Majumdar M">M Majumdar</name></author><author><name sortKey="Da Silva Pereira, Y" uniqKey="Da Silva Pereira Y">Y Da Silva Pereira</name></author><author><name sortKey="Fernandes, J" uniqKey="Fernandes J">J Fernandes</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Bayat, M" uniqKey="Bayat M">M Bayat</name></author><author><name sortKey="Salehi, M" uniqKey="Salehi M">M Salehi</name></author><author><name sortKey="Bozorgnezhad, A" uniqKey="Bozorgnezhad A">A Bozorgnezhad</name></author><author><name sortKey="Asghari, A" uniqKey="Asghari A">A Asghari</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Greer, Fa" uniqKey="Greer F">FA Greer</name></author><author><name sortKey="Grey, Im" uniqKey="Grey I">IM Grey</name></author><author><name sortKey="Mcclean, B" uniqKey="Mcclean B">B McClean</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Barbosa, Ma" uniqKey="Barbosa M">MA Barbosa</name></author><author><name sortKey="Chaud, Mn" uniqKey="Chaud M">MN Chaud</name></author><author><name sortKey="Gomes, Mm" uniqKey="Gomes M">MM Gomes</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Pilusa, Ne" uniqKey="Pilusa N">NE Pilusa</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Jack, M" uniqKey="Jack M">M Jack</name></author><author><name sortKey="Guralnik, Lf" uniqKey="Guralnik L">LF Guralnik</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Holloway, I" uniqKey="Holloway I">I Holloway</name></author><author><name sortKey="Wheeler, S" uniqKey="Wheeler S">S Wheeler</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Colaizzi, Pf" uniqKey="Colaizzi P">PF Colaizzi</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Hamedanchi, A" uniqKey="Hamedanchi A">A Hamedanchi</name></author><author><name sortKey="Sahaf, R" uniqKey="Sahaf R">R Sahaf</name></author><author><name sortKey="Fadaye Vatan, R" uniqKey="Fadaye Vatan R">R Fadaye Vatan</name></author><author><name sortKey="Khankeh, Hr" uniqKey="Khankeh H">HR Khankeh</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Reichman, Ne" uniqKey="Reichman N">NE Reichman</name></author><author><name sortKey="Corman, H" uniqKey="Corman H">H Corman</name></author><author><name sortKey="Noonan, K" uniqKey="Noonan K">K Noonan</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Mohammadkhan Kermanshahi, S" uniqKey="Mohammadkhan Kermanshahi S">S Mohammadkhan-Kermanshahi</name></author><author><name sortKey="Vanki, Z" uniqKey="Vanki Z">Z Vanki</name></author><author><name sortKey="Ahmadi, F" uniqKey="Ahmadi F">F Ahmadi</name></author><author><name sortKey="Azad Fallah, P" uniqKey="Azad Fallah P">P Azad-Fallah</name></author><author><name sortKey="Kazem Nezhad, A" uniqKey="Kazem Nezhad A">A Kazem-Nezhad</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Minnes, P" uniqKey="Minnes P">P Minnes</name></author><author><name sortKey="Woodford, L" uniqKey="Woodford L">L Woodford</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Kearney, Pm" uniqKey="Kearney P">PM Kearney</name></author><author><name sortKey="Griffin, T" uniqKey="Griffin T">T Griffin</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Kausar, S" uniqKey="Kausar S">S Kausar</name></author><author><name sortKey="Jevne, Rf" uniqKey="Jevne R">RF Jevne</name></author><author><name sortKey="Sobsey, D" uniqKey="Sobsey D">D Sobsey</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Haworth, Am" uniqKey="Haworth A">AM Haworth</name></author><author><name sortKey="Hill, Ae" uniqKey="Hill A">AE Hill</name></author><author><name sortKey="Glidden, Lm" uniqKey="Glidden L">LM Glidden</name></author></analytic></biblStruct></listBibl></div1></back></TEI><pmc article-type="research-article"><pmc-dir>properties open_access</pmc-dir>
<front><journal-meta><journal-id journal-id-type="nlm-ta">Iran J Nurs Midwifery Res</journal-id><journal-id journal-id-type="iso-abbrev">Iran J Nurs Midwifery Res</journal-id><journal-id journal-id-type="publisher-id">IJNMR</journal-id><journal-title-group><journal-title>Iranian Journal of Nursing and Midwifery Research</journal-title></journal-title-group><issn pub-type="ppub">1735-9066</issn><issn pub-type="epub">2228-5504</issn><publisher><publisher-name>Medknow Publications & Media Pvt Ltd</publisher-name><publisher-loc>India</publisher-loc></publisher></journal-meta><article-meta><article-id pub-id-type="pmid">27186205</article-id><article-id pub-id-type="pmc">4857662</article-id><article-id pub-id-type="publisher-id">IJNMR-21-278</article-id><article-id pub-id-type="doi">10.4103/1735-9066.180385</article-id><article-categories><subj-group subj-group-type="heading"><subject>Original Article</subject></subj-group></article-categories><title-group><article-title>Bitter experiences of elderly parents of children with intellectual disabilities: A phenomenological study</article-title></title-group><contrib-group><contrib contrib-type="author"><name><surname>Hamedanchi</surname><given-names>Arya</given-names></name><xref ref-type="aff" rid="aff1">1</xref></contrib><contrib contrib-type="author"><name><surname>Khankeh</surname><given-names>Hamid Reza</given-names></name><xref ref-type="aff" rid="aff2">2</xref><xref ref-type="aff" rid="aff3">3</xref></contrib><contrib contrib-type="author"><name><surname>Fadayevatan</surname><given-names>Reza</given-names></name><xref ref-type="aff" rid="aff1">1</xref></contrib><contrib contrib-type="author"><name><surname>Teymouri</surname><given-names>Robab</given-names></name><xref ref-type="aff" rid="aff4">4</xref></contrib><contrib contrib-type="author"><name><surname>Sahaf</surname><given-names>Robab</given-names></name><xref ref-type="aff" rid="aff1">1</xref><xref ref-type="corresp" rid="cor1"></xref></contrib></contrib-group><aff id="aff1"><label>1</label>Iranian Research Center on Aging, Department of Aging, University of Social Welfare and Rehabilitation Sciences, Tehran, Iran</aff><aff id="aff2"><label>2</label>Health in Emergency and Disaster Department and Research Center, University of Social Welfare and Rehabilitation Sciences, Tehran Iran</aff><aff id="aff3"><label>3</label>Department of Clinical Science and Education, Karolinska Institutet, Sweden</aff><aff id="aff4"><label>4</label>Pediatric Neurorehabilitation Research Center, University of Social Welfare and Rehabilitation Sciences, Tehran, Iran</aff><author-notes><corresp id="cor1"><bold>Address for correspondence:</bold> Dr. Robab Sahaf, Kodakyar Avenue, Daneshjo Boulevard, Evin, Tehran - 19857 13834, Iran. E-mail: <email xlink:href="robabsahaf@gmail.com">robabsahaf@gmail.com</email></corresp></author-notes><pub-date pub-type="ppub"><season>May-Jun</season><year>2016</year></pub-date><volume>21</volume><issue>3</issue><fpage>278</fpage><lpage>283</lpage><history><date date-type="received"><day>07</day><month>3</month><year>2014</year></date><date date-type="accepted"><day>30</day><month>12</month><year>2015</year></date></history><permissions><copyright-statement>Copyright: © Iranian Journal of Nursing and Midwifery Research</copyright-statement><copyright-year>2016</copyright-year><license license-type="open-access" xlink:href="http://creativecommons.org/licenses/by-nc-sa/3.0"><license-p>This is an open access article distributed under the terms of the Creative Commons Attribution NonCommercial ShareAlike 3.0 License, which allows others to remix, tweak, and build upon the work non commercially, as long as the author is credited and the new creations are licensed under the identical terms.</license-p></license></permissions><abstract><sec id="st1"><title>Background:</title><p>It is predicted that over the next 30 years, there will be a significant increase in the number of elderly parents who care for their children with intellectual disability. This paper is part of a larger qualitative study which investigated the unpleasant experiences of these parents.</p></sec><sec id="st2"><title>Materials and Methods:</title><p>A phenomenological approach was adopted and data were collected through unstructured in-depth interviews with elderly parents of children with intellectual disability. The data were analyzed using Colaizzi's seven-step method.</p></sec><sec id="st3"><title>Results:</title><p>“Bitterness” is one of the four emergent themes extracted in this study which has five theme clusters: inappropriate behavior toward the child in the society, the society's failure to support the child with intellectual disability, sorrows experienced by parents, the child's problems, and barriers in the care of the child with intellectual disability. One significant barrier in the last theme cluster is limitations due to aging.</p></sec><sec id="st4"><title>Conclusions:</title><p>The findings of this study suggest that the elderly parents of children with intellectual disability experience many sorrows and unpleasant feelings, but they mostly consider the social factors as the cause of problems and not the presence of the child. The results also indicate that older parents cannot look after the child as before in their old age; so, future well-designed studies are required for identification of the process of supporting them.</p></sec></abstract><kwd-group><kwd>Child</kwd><kwd>children with intellectual disabilities</kwd><kwd>elderly parents</kwd><kwd>intellectual disability</kwd><kwd>Iran</kwd><kwd>parents</kwd><kwd>phenomenology</kwd><kwd>qualitative research</kwd></kwd-group></article-meta></front></pmc></record>Pour manipuler ce document sous Unix (Dilib)
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