THU0564 Peer Patient Educators within Rheumatoid Arthritis Patient Education Programs in France
Identifieur interne : 000C44 ( Istex/Corpus ); précédent : 000C43; suivant : 000C45THU0564 Peer Patient Educators within Rheumatoid Arthritis Patient Education Programs in France
Auteurs : J.-D. Cohen ; C. Beauvais ; G. Hayem ; L. Grange ; D.-R. Bertholon ; M. Karrer ; S. ChirolSource :
- Annals of the Rheumatic Diseases [ 0003-4967 ] ; 2013-06.
Abstract
Background Rheumatoid arthritis (RA) is a chronic disease, which management benefits from Patient Education Programs (PEP). According to national health authority recommendations, French patients are encouraged to help in designing and implementing PEP. With the support of the French Society of Rheumatology, ANDAR, the national patient organization against RA, decided to implement a one-year pilot program of Peer Patient Educators (PPE) within hospitals. This pilot program was selected by the French Ministry of Health and extended to other hospitals for an additional year. Objectives The objectives were to recruit, train, and integrate PPE within multidisciplinary teams and to evaluate their involvement. Methods This was a multicenter national study, over two years, supervised by a steering committee composed of patient representatives, rheumatologists, a psychotherapist and a consultant agency specialized in PEP. PPE candidates were recruited by healthcare professionals within each hospital unit caseload. Candidates were screened by ANDAR and the consulting agency. Candidates underwent 42 hours of training (PEP basics, confidentiality, facilitation, active listening, and group animation skills medical knowledge). After discussion among project organizers, trainees were integrated within their hospital unit PEP where they had the opportunity to participate in program design, educational diagnosis and workshop animation. For the first year, evaluation included the acceptability of the PPE within PEP and their involvement extent. Recommendations were made as to best practices for PEP. Results 11 rheumatology units were involved, 21 PPE trained and 19 involved Year 1: 5 units approached, 4 involved; 8 PPE selected and trained, 6 finally involved (1 disease aggravation, 1 unavailable) Activities: Educative diagnosis and PEP workshop animation (1), PEP workshop animation (4), interplay patients/educators (1) Evaluation I- Acceptability High acceptance of the PPE by other patients; Good acceptance from healthcare professionals despite a few instances of resistance II – Feasibility Favorable conditions: PEP experience within the unit, Recognition of added values brought by patients, PPE selection by the units themselves, Early information of the unit team about the project, Quality of the training provided, Innovative project, Acceptance of patient organization involvement within the healthcare system Blocks: Units understaffing, Previous unsuccessful collaborating experiences with patients, Resistance to change, Doubts about PPE emotional resilience, Fears around sharing confidential medical information with PPE Year-1 evaluation allowed us to improve our selection criteria for candidates as well as our training program. Year 2 9 units approached, 7 involved; 14 PPE selected, 13 trained; 13 involved Activities: PEP workshop animation (13) Conclusions We fulfilled the objective of integrating trained PPE with hospital-run RA PEP, and evaluation shows strong commitment of PPE. The second year confirms the project feasibility. Today, PPE commitment and beneficial input keep growing. New PEP units willing to join the program in following years. Disclosure of Interest None Declared
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DOI: 10.1136/annrheumdis-2013-eular.1092
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Grange</name><affiliation><mods:affiliation>Rhumatologie, CHU Hopital Sud, Grenoble</mods:affiliation></affiliation></author><author><name sortKey="Bertholon, D R" sort="Bertholon, D R" uniqKey="Bertholon D" first="D.-R." last="Bertholon">D.-R. Bertholon</name><affiliation><mods:affiliation>Empatient, Agency</mods:affiliation></affiliation></author><author><name sortKey="Karrer, M" sort="Karrer, M" uniqKey="Karrer M" first="M." last="Karrer">M. Karrer</name><affiliation><mods:affiliation>Empatient, Agency</mods:affiliation></affiliation></author><author><name sortKey="Chirol, S" sort="Chirol, S" uniqKey="Chirol S" first="S." last="Chirol">S. Chirol</name><affiliation><mods:affiliation>ANDAR, Association, Paris, France</mods:affiliation></affiliation></author></titleStmt><publicationStmt><idno type="wicri:source">ISTEX</idno><idno type="RBID">ISTEX:52825B348737646D566718B26F94222021E73FC2</idno><date when="2013" year="2013">2013</date><idno type="doi">10.1136/annrheumdis-2013-eular.1092</idno><idno type="url">https://api.istex.fr/document/52825B348737646D566718B26F94222021E73FC2/fulltext/pdf</idno><idno type="wicri:Area/Istex/Corpus">000C44</idno></publicationStmt><sourceDesc><biblStruct><analytic><title level="a" type="main" xml:lang="en">THU0564 Peer Patient Educators within Rheumatoid Arthritis Patient Education Programs in France</title><author><name sortKey="Cohen, J D" sort="Cohen, J D" uniqKey="Cohen J" first="J.-D." last="Cohen">J.-D. Cohen</name><affiliation><mods:affiliation>Rhumatologie, CHU Lapeyronie, Montpellier</mods:affiliation></affiliation></author><author><name sortKey="Beauvais, C" sort="Beauvais, C" uniqKey="Beauvais C" first="C." last="Beauvais">C. Beauvais</name><affiliation><mods:affiliation>Rhumatologie, CHU Saint-Antoine</mods:affiliation></affiliation></author><author><name sortKey="Hayem, G" sort="Hayem, G" uniqKey="Hayem G" first="G." last="Hayem">G. Hayem</name><affiliation><mods:affiliation>Rhumatologie, CHU Bichat, Paris</mods:affiliation></affiliation></author><author><name sortKey="Grange, L" sort="Grange, L" uniqKey="Grange L" first="L." last="Grange">L. Grange</name><affiliation><mods:affiliation>Rhumatologie, CHU Hopital Sud, Grenoble</mods:affiliation></affiliation></author><author><name sortKey="Bertholon, D R" sort="Bertholon, D R" uniqKey="Bertholon D" first="D.-R." last="Bertholon">D.-R. Bertholon</name><affiliation><mods:affiliation>Empatient, Agency</mods:affiliation></affiliation></author><author><name sortKey="Karrer, M" sort="Karrer, M" uniqKey="Karrer M" first="M." last="Karrer">M. Karrer</name><affiliation><mods:affiliation>Empatient, Agency</mods:affiliation></affiliation></author><author><name sortKey="Chirol, S" sort="Chirol, S" uniqKey="Chirol S" first="S." last="Chirol">S. Chirol</name><affiliation><mods:affiliation>ANDAR, Association, Paris, France</mods:affiliation></affiliation></author></analytic><monogr></monogr><series><title level="j">Annals of the Rheumatic Diseases</title><title level="j" type="abbrev">Ann Rheum Dis</title><idno type="ISSN">0003-4967</idno><idno type="eISSN">1468-2060</idno><imprint><publisher>BMJ Publishing Group Ltd and European League Against Rheumatism</publisher><date type="published" when="2013-06">2013-06</date><biblScope unit="volume">72</biblScope><biblScope unit="issue">Suppl 3</biblScope><biblScope unit="page" from="A355">A355</biblScope></imprint><idno type="ISSN">0003-4967</idno></series><idno type="istex">52825B348737646D566718B26F94222021E73FC2</idno><idno type="DOI">10.1136/annrheumdis-2013-eular.1092</idno><idno type="href">annrheumdis-72-A355-1.pdf</idno><idno type="ArticleID">annrheumdis-2013-eular.1092</idno><idno type="local">annrheumdis;72/Suppl_3/A355-a</idno></biblStruct></sourceDesc><seriesStmt><idno type="ISSN">0003-4967</idno></seriesStmt></fileDesc><profileDesc><textClass></textClass><langUsage><language ident="en">en</language></langUsage></profileDesc></teiHeader><front><div type="abstract">Background Rheumatoid arthritis (RA) is a chronic disease, which management benefits from Patient Education Programs (PEP). According to national health authority recommendations, French patients are encouraged to help in designing and implementing PEP. With the support of the French Society of Rheumatology, ANDAR, the national patient organization against RA, decided to implement a one-year pilot program of Peer Patient Educators (PPE) within hospitals. This pilot program was selected by the French Ministry of Health and extended to other hospitals for an additional year. Objectives The objectives were to recruit, train, and integrate PPE within multidisciplinary teams and to evaluate their involvement. Methods This was a multicenter national study, over two years, supervised by a steering committee composed of patient representatives, rheumatologists, a psychotherapist and a consultant agency specialized in PEP. PPE candidates were recruited by healthcare professionals within each hospital unit caseload. Candidates were screened by ANDAR and the consulting agency. Candidates underwent 42 hours of training (PEP basics, confidentiality, facilitation, active listening, and group animation skills medical knowledge). After discussion among project organizers, trainees were integrated within their hospital unit PEP where they had the opportunity to participate in program design, educational diagnosis and workshop animation. For the first year, evaluation included the acceptability of the PPE within PEP and their involvement extent. Recommendations were made as to best practices for PEP. Results 11 rheumatology units were involved, 21 PPE trained and 19 involved Year 1: 5 units approached, 4 involved; 8 PPE selected and trained, 6 finally involved (1 disease aggravation, 1 unavailable) Activities: Educative diagnosis and PEP workshop animation (1), PEP workshop animation (4), interplay patients/educators (1) Evaluation I- Acceptability High acceptance of the PPE by other patients; Good acceptance from healthcare professionals despite a few instances of resistance II – Feasibility Favorable conditions: PEP experience within the unit, Recognition of added values brought by patients, PPE selection by the units themselves, Early information of the unit team about the project, Quality of the training provided, Innovative project, Acceptance of patient organization involvement within the healthcare system Blocks: Units understaffing, Previous unsuccessful collaborating experiences with patients, Resistance to change, Doubts about PPE emotional resilience, Fears around sharing confidential medical information with PPE Year-1 evaluation allowed us to improve our selection criteria for candidates as well as our training program. Year 2 9 units approached, 7 involved; 14 PPE selected, 13 trained; 13 involved Activities: PEP workshop animation (13) Conclusions We fulfilled the objective of integrating trained PPE with hospital-run RA PEP, and evaluation shows strong commitment of PPE. The second year confirms the project feasibility. Today, PPE commitment and beneficial input keep growing. New PEP units willing to join the program in following years. Disclosure of Interest None Declared</div></front></TEI><istex><corpusName>bmj</corpusName><author><json:item><name>J.-D. Cohen</name><affiliations><json:string>Rhumatologie, CHU Lapeyronie, Montpellier</json:string></affiliations></json:item><json:item><name>C. Beauvais</name><affiliations><json:string>Rhumatologie, CHU Saint-Antoine</json:string></affiliations></json:item><json:item><name>G. Hayem</name><affiliations><json:string>Rhumatologie, CHU Bichat, Paris</json:string></affiliations></json:item><json:item><name>L. Grange</name><affiliations><json:string>Rhumatologie, CHU Hopital Sud, Grenoble</json:string></affiliations></json:item><json:item><name>D.-R. Bertholon</name><affiliations><json:string>Empatient, Agency</json:string></affiliations></json:item><json:item><name>M. Karrer</name><affiliations><json:string>Empatient, Agency</json:string></affiliations></json:item><json:item><name>S. Chirol</name><affiliations><json:string>ANDAR, Association, Paris, France</json:string></affiliations></json:item></author><articleId><json:string>annrheumdis-2013-eular.1092</json:string></articleId><language><json:string>eng</json:string></language><originalGenre><json:string>abstract</json:string></originalGenre><abstract>Background Rheumatoid arthritis (RA) is a chronic disease, which management benefits from Patient Education Programs (PEP). According to national health authority recommendations, French patients are encouraged to help in designing and implementing PEP. With the support of the French Society of Rheumatology, ANDAR, the national patient organization against RA, decided to implement a one-year pilot program of Peer Patient Educators (PPE) within hospitals. This pilot program was selected by the French Ministry of Health and extended to other hospitals for an additional year. Objectives The objectives were to recruit, train, and integrate PPE within multidisciplinary teams and to evaluate their involvement. Methods This was a multicenter national study, over two years, supervised by a steering committee composed of patient representatives, rheumatologists, a psychotherapist and a consultant agency specialized in PEP. PPE candidates were recruited by healthcare professionals within each hospital unit caseload. Candidates were screened by ANDAR and the consulting agency. Candidates underwent 42 hours of training (PEP basics, confidentiality, facilitation, active listening, and group animation skills medical knowledge). After discussion among project organizers, trainees were integrated within their hospital unit PEP where they had the opportunity to participate in program design, educational diagnosis and workshop animation. For the first year, evaluation included the acceptability of the PPE within PEP and their involvement extent. Recommendations were made as to best practices for PEP. Results 11 rheumatology units were involved, 21 PPE trained and 19 involved Year 1: 5 units approached, 4 involved; 8 PPE selected and trained, 6 finally involved (1 disease aggravation, 1 unavailable) Activities: Educative diagnosis and PEP workshop animation (1), PEP workshop animation (4), interplay patients/educators (1) Evaluation I- Acceptability High acceptance of the PPE by other patients; Good acceptance from healthcare professionals despite a few instances of resistance II – Feasibility Favorable conditions: PEP experience within the unit, Recognition of added values brought by patients, PPE selection by the units themselves, Early information of the unit team about the project, Quality of the training provided, Innovative project, Acceptance of patient organization involvement within the healthcare system Blocks: Units understaffing, Previous unsuccessful collaborating experiences with patients, Resistance to change, Doubts about PPE emotional resilience, Fears around sharing confidential medical information with PPE Year-1 evaluation allowed us to improve our selection criteria for candidates as well as our training program. Year 2 9 units approached, 7 involved; 14 PPE selected, 13 trained; 13 involved Activities: PEP workshop animation (13) Conclusions We fulfilled the objective of integrating trained PPE with hospital-run RA PEP, and evaluation shows strong commitment of PPE. The second year confirms the project feasibility. Today, PPE commitment and beneficial input keep growing. New PEP units willing to join the program in following years. Disclosure of Interest None Declared</abstract><qualityIndicators><score>4.794</score><pdfVersion>1.4</pdfVersion><pdfPageSize>594.72 x 841.68 pts</pdfPageSize><refBibsNative>false</refBibsNative><keywordCount>0</keywordCount><abstractCharCount>3229</abstractCharCount><pdfWordCount>1294</pdfWordCount><pdfCharCount>8875</pdfCharCount><pdfPageCount>1</pdfPageCount><abstractWordCount>452</abstractWordCount></qualityIndicators><title>THU0564 Peer Patient Educators within Rheumatoid Arthritis Patient Education Programs in France</title><genre><json:string>abstract</json:string></genre><host><volume>72</volume><publisherId><json:string>ard</json:string></publisherId><pages><first>A355</first></pages><issn><json:string>0003-4967</json:string></issn><issue>Suppl 3</issue><genre><json:string>journal</json:string></genre><language><json:string>unknown</json:string></language><eissn><json:string>1468-2060</json:string></eissn><title>Annals of the Rheumatic Diseases</title></host><publicationDate>2013</publicationDate><copyrightDate>2013</copyrightDate><doi><json:string>10.1136/annrheumdis-2013-eular.1092</json:string></doi><id>52825B348737646D566718B26F94222021E73FC2</id><score>0.21293707</score><fulltext><json:item><original>true</original><mimetype>application/pdf</mimetype><extension>pdf</extension><uri>https://api.istex.fr/document/52825B348737646D566718B26F94222021E73FC2/fulltext/pdf</uri></json:item><json:item><original>false</original><mimetype>application/zip</mimetype><extension>zip</extension><uri>https://api.istex.fr/document/52825B348737646D566718B26F94222021E73FC2/fulltext/zip</uri></json:item><istex:fulltextTEI uri="https://api.istex.fr/document/52825B348737646D566718B26F94222021E73FC2/fulltext/tei"><teiHeader><fileDesc><titleStmt><title level="a" type="main" xml:lang="en">THU0564 Peer Patient Educators within Rheumatoid Arthritis Patient Education Programs in France</title></titleStmt><publicationStmt><authority>ISTEX</authority><publisher>BMJ Publishing Group Ltd and European League Against Rheumatism</publisher><availability><p>© 2013, Published by the BMJ Publishing Group Limited. For permission to use (where not already granted under a licence) please go to http://group.bmj.com/group/rights-licensing/permissions</p></availability><date>2013</date></publicationStmt><sourceDesc><biblStruct type="inbook"><analytic><title level="a" type="main" xml:lang="en">THU0564 Peer Patient Educators within Rheumatoid Arthritis Patient Education Programs in France</title><author xml:id="author-1"><persName><forename type="first">J.-D.</forename><surname>Cohen</surname></persName><affiliation>Rhumatologie, CHU Lapeyronie, Montpellier</affiliation></author><author xml:id="author-2"><persName><forename type="first">C.</forename><surname>Beauvais</surname></persName><affiliation>Rhumatologie, CHU Saint-Antoine</affiliation></author><author xml:id="author-3"><persName><forename type="first">G.</forename><surname>Hayem</surname></persName><affiliation>Rhumatologie, CHU Bichat, Paris</affiliation></author><author xml:id="author-4"><persName><forename type="first">L.</forename><surname>Grange</surname></persName><affiliation>Rhumatologie, CHU Hopital Sud, Grenoble</affiliation></author><author xml:id="author-5"><persName><forename type="first">D.-R.</forename><surname>Bertholon</surname></persName><affiliation>Empatient, Agency</affiliation></author><author xml:id="author-6"><persName><forename type="first">M.</forename><surname>Karrer</surname></persName><affiliation>Empatient, Agency</affiliation></author><author xml:id="author-7"><persName><forename type="first">S.</forename><surname>Chirol</surname></persName><affiliation>ANDAR, Association, Paris, France</affiliation></author></analytic><monogr><title level="j">Annals of the Rheumatic Diseases</title><title level="j" type="abbrev">Ann Rheum Dis</title><idno type="pISSN">0003-4967</idno><idno type="eISSN">1468-2060</idno><imprint><publisher>BMJ Publishing Group Ltd and European League Against Rheumatism</publisher><date type="published" when="2013-06"></date><biblScope unit="volume">72</biblScope><biblScope unit="issue">Suppl 3</biblScope><biblScope unit="page" from="A355">A355</biblScope></imprint></monogr><idno type="istex">52825B348737646D566718B26F94222021E73FC2</idno><idno type="DOI">10.1136/annrheumdis-2013-eular.1092</idno><idno type="href">annrheumdis-72-A355-1.pdf</idno><idno type="ArticleID">annrheumdis-2013-eular.1092</idno><idno type="local">annrheumdis;72/Suppl_3/A355-a</idno></biblStruct></sourceDesc></fileDesc><profileDesc><creation><date>2013</date></creation><langUsage><language ident="en">en</language></langUsage><abstract><p>Background Rheumatoid arthritis (RA) is a chronic disease, which management benefits from Patient Education Programs (PEP). According to national health authority recommendations, French patients are encouraged to help in designing and implementing PEP. With the support of the French Society of Rheumatology, ANDAR, the national patient organization against RA, decided to implement a one-year pilot program of Peer Patient Educators (PPE) within hospitals. This pilot program was selected by the French Ministry of Health and extended to other hospitals for an additional year. Objectives The objectives were to recruit, train, and integrate PPE within multidisciplinary teams and to evaluate their involvement. Methods This was a multicenter national study, over two years, supervised by a steering committee composed of patient representatives, rheumatologists, a psychotherapist and a consultant agency specialized in PEP. PPE candidates were recruited by healthcare professionals within each hospital unit caseload. Candidates were screened by ANDAR and the consulting agency. Candidates underwent 42 hours of training (PEP basics, confidentiality, facilitation, active listening, and group animation skills medical knowledge). After discussion among project organizers, trainees were integrated within their hospital unit PEP where they had the opportunity to participate in program design, educational diagnosis and workshop animation. For the first year, evaluation included the acceptability of the PPE within PEP and their involvement extent. Recommendations were made as to best practices for PEP. Results 11 rheumatology units were involved, 21 PPE trained and 19 involved Year 1: 5 units approached, 4 involved; 8 PPE selected and trained, 6 finally involved (1 disease aggravation, 1 unavailable) Activities: Educative diagnosis and PEP workshop animation (1), PEP workshop animation (4), interplay patients/educators (1) Evaluation I- Acceptability High acceptance of the PPE by other patients; Good acceptance from healthcare professionals despite a few instances of resistance II – Feasibility Favorable conditions: PEP experience within the unit, Recognition of added values brought by patients, PPE selection by the units themselves, Early information of the unit team about the project, Quality of the training provided, Innovative project, Acceptance of patient organization involvement within the healthcare system Blocks: Units understaffing, Previous unsuccessful collaborating experiences with patients, Resistance to change, Doubts about PPE emotional resilience, Fears around sharing confidential medical information with PPE Year-1 evaluation allowed us to improve our selection criteria for candidates as well as our training program. Year 2 9 units approached, 7 involved; 14 PPE selected, 13 trained; 13 involved Activities: PEP workshop animation (13) Conclusions We fulfilled the objective of integrating trained PPE with hospital-run RA PEP, and evaluation shows strong commitment of PPE. The second year confirms the project feasibility. Today, PPE commitment and beneficial input keep growing. New PEP units willing to join the program in following years. Disclosure of Interest None Declared</p></abstract></profileDesc><revisionDesc><change when="2013-06">Published</change></revisionDesc></teiHeader></istex:fulltextTEI><json:item><original>false</original><mimetype>text/plain</mimetype><extension>txt</extension><uri>https://api.istex.fr/document/52825B348737646D566718B26F94222021E73FC2/fulltext/txt</uri></json:item></fulltext><metadata><istex:metadataXml wicri:clean="corpus bmj" wicri:toSee="no header"><istex:xmlDeclaration>version="1.0" encoding="UTF-8" standalone="no"</istex:xmlDeclaration><istex:docType PUBLIC="-//NLM//DTD Journal Archiving and Interchange DTD v2.3 20070202//EN" URI="archivearticle.dtd" name="istex:docType"></istex:docType><istex:document><article article-type="abstract" xml:lang="EN"><front><journal-meta><journal-id journal-id-type="hwp">annrheumdis</journal-id><journal-id journal-id-type="nlm-ta">Ann Rheum Dis</journal-id><journal-id journal-id-type="publisher-id">ard</journal-id><journal-title>Annals of the Rheumatic Diseases</journal-title><abbrev-journal-title abbrev-type="publisher">Ann Rheum Dis</abbrev-journal-title><abbrev-journal-title>Ann Rheum Dis</abbrev-journal-title><issn pub-type="ppub">0003-4967</issn><issn pub-type="epub">1468-2060</issn><publisher><publisher-name>BMJ Publishing Group Ltd and European League Against Rheumatism</publisher-name></publisher></journal-meta><article-meta><article-id pub-id-type="publisher-id">annrheumdis-2013-eular.1092</article-id><article-id pub-id-type="doi">10.1136/annrheumdis-2013-eular.1092</article-id><article-id pub-id-type="other">annrheumdis;72/Suppl_3/A355-a</article-id><article-id pub-id-type="other">annrheumdis;annrheumdis-2013-eular.1092</article-id><article-id pub-id-type="other">A355.1</article-id><article-id pub-id-type="other">annrheumdis-2013-eular.1092</article-id><article-categories><subj-group subj-group-type="heading"><subject>Poster Presentation</subject><subj-group subj-group-type="heading"><subject>Education</subject></subj-group></subj-group></article-categories><title-group><article-title>THU0564 Peer Patient Educators within Rheumatoid Arthritis Patient Education Programs in France</article-title></title-group><contrib-group><contrib contrib-type="author" xlink:type="simple"><name name-style="western"><surname>Cohen</surname><given-names>J.-D.</given-names></name><xref ref-type="aff" rid="AF05641"><sup>1</sup></xref></contrib><contrib contrib-type="author" xlink:type="simple"><name name-style="western"><surname>Beauvais</surname><given-names>C.</given-names></name><xref ref-type="aff" rid="AF05642"><sup>2</sup></xref></contrib><contrib contrib-type="author" xlink:type="simple"><name name-style="western"><surname>Hayem</surname><given-names>G.</given-names></name><xref ref-type="aff" rid="AF05643"><sup>3</sup></xref></contrib><contrib contrib-type="author" xlink:type="simple"><name name-style="western"><surname>Grange</surname><given-names>L.</given-names></name><xref ref-type="aff" rid="AF05644"><sup>4</sup></xref></contrib><contrib contrib-type="author" xlink:type="simple"><name name-style="western"><surname>Bertholon</surname><given-names>D.-R.</given-names></name><xref ref-type="aff" rid="AF05645"><sup>5</sup></xref></contrib><contrib contrib-type="author" xlink:type="simple"><name name-style="western"><surname>Karrer</surname><given-names>M.</given-names></name><xref ref-type="aff" rid="AF05645"><sup>5</sup></xref></contrib><contrib contrib-type="author" xlink:type="simple"><name name-style="western"><surname>Chirol</surname><given-names>S.</given-names></name><xref ref-type="aff" rid="AF05646"><sup>6</sup></xref></contrib></contrib-group><aff id="AF05641"><sup>1</sup>Rhumatologie, CHU Lapeyronie, Montpellier</aff><aff id="AF05642"><sup>2</sup>Rhumatologie, CHU Saint-Antoine</aff><aff id="AF05643"><sup>3</sup>Rhumatologie, CHU Bichat, Paris</aff><aff id="AF05644"><sup>4</sup>Rhumatologie, CHU Hopital Sud, Grenoble</aff><aff id="AF05645"><sup>5</sup>Empatient, Agency</aff><aff id="AF05646"><sup>6</sup>ANDAR, Association, Paris, France</aff><pub-date pub-type="ppub"><month>06</month><year>2013</year></pub-date><volume>72</volume><volume-id pub-id-type="other">72</volume-id><volume-id pub-id-type="other">72</volume-id><issue>Suppl 3</issue><issue-id pub-id-type="other">annrheumdis;72/Suppl_3</issue-id><issue-id pub-id-type="other" content-type="supplement">Suppl_3</issue-id><issue-id pub-id-type="other">72/Suppl_3</issue-id><issue-title>Annual European Congress of Rheumatology EULAR abstracts 2013, 12–15 June 2013, Spain</issue-title><fpage seq="1">A355</fpage><permissions><copyright-statement>© 2013, Published by the BMJ Publishing Group Limited. For permission to use (where not already granted under a licence) please go to http://group.bmj.com/group/rights-licensing/permissions</copyright-statement><copyright-year>2013</copyright-year></permissions><self-uri content-type="pdf" xlink:role="full-text" xlink:href="annrheumdis-72-A355-1.pdf"></self-uri><abstract><sec><title>Background</title><p>Rheumatoid arthritis (RA) is a chronic disease, which management benefits from Patient Education Programs (PEP). According to national health authority recommendations, French patients are encouraged to help in designing and implementing PEP. With the support of the French Society of Rheumatology, ANDAR, the national patient organization against RA, decided to implement a one-year pilot program of Peer Patient Educators (PPE) within hospitals. This pilot program was selected by the French Ministry of Health and extended to other hospitals for an additional year.</p></sec><sec><title>Objectives</title><p>The objectives were to recruit, train, and integrate PPE within multidisciplinary teams and to evaluate their involvement.</p></sec><sec><title>Methods</title><p>This was a multicenter national study, over two years, supervised by a steering committee composed of patient representatives, rheumatologists, a psychotherapist and a consultant agency specialized in PEP. PPE candidates were recruited by healthcare professionals within each hospital unit caseload. Candidates were screened by ANDAR and the consulting agency. Candidates underwent 42 hours of training (PEP basics, confidentiality, facilitation, active listening, and group animation skills medical knowledge). After discussion among project organizers, trainees were integrated within their hospital unit PEP where they had the opportunity to participate in program design, educational diagnosis and workshop animation. For the first year, evaluation included the acceptability of the PPE within PEP and their involvement extent. Recommendations were made as to best practices for PEP.</p></sec><sec><title>Results</title><p>11 rheumatology units were involved, 21 PPE trained and 19 involved</p><p><bold>Year 1</bold>: 5 units approached, 4 involved; 8 PPE selected and trained, 6 finally involved (1 disease aggravation, 1 unavailable)</p><p>Activities: Educative diagnosis and PEP workshop animation (1), PEP workshop animation (4), interplay patients/educators (1)</p><p>Evaluation</p><p>I- Acceptability</p><p>High acceptance of the PPE by other patients; Good acceptance from healthcare professionals despite a few instances of resistance</p><p>II – Feasibility</p><p>Favorable conditions: PEP experience within the unit, Recognition of added values brought by patients, PPE selection by the units themselves, Early information of the unit team about the project, Quality of the training provided, Innovative project, Acceptance of patient organization involvement within the healthcare system</p><p>Blocks: Units understaffing, Previous unsuccessful collaborating experiences with patients, Resistance to change, Doubts about PPE emotional resilience, Fears around sharing confidential medical information with PPE</p><p>Year-1 evaluation allowed us to improve our selection criteria for candidates as well as our training program.</p></sec><sec><title>Year 2</title><p>9 units approached, 7 involved; 14 PPE selected, 13 trained; 13 involved</p><p>Activities: PEP workshop animation (13)</p></sec><sec><title>Conclusions</title><p>We fulfilled the objective of integrating trained PPE with hospital-run RA PEP, and evaluation shows strong commitment of PPE. The second year confirms the project feasibility. Today, PPE commitment and beneficial input keep growing. New PEP units willing to join the program in following years.</p></sec><sec><title>Disclosure of Interest</title><p>None Declared</p></sec></abstract></article-meta></front></article></istex:document></istex:metadataXml><mods version="3.6"><titleInfo lang="en"><title>THU0564 Peer Patient Educators within Rheumatoid Arthritis Patient Education Programs in France</title></titleInfo><titleInfo type="alternative" lang="en" contentType="CDATA"><title>THU0564 Peer Patient Educators within Rheumatoid Arthritis Patient Education Programs in France</title></titleInfo><name type="personal"><namePart type="given">J.-D.</namePart><namePart type="family">Cohen</namePart><affiliation>Rhumatologie, CHU Lapeyronie, Montpellier</affiliation><role><roleTerm type="text">author</roleTerm></role></name><name type="personal"><namePart type="given">C.</namePart><namePart type="family">Beauvais</namePart><affiliation>Rhumatologie, CHU Saint-Antoine</affiliation><role><roleTerm type="text">author</roleTerm></role></name><name type="personal"><namePart type="given">G.</namePart><namePart type="family">Hayem</namePart><affiliation>Rhumatologie, CHU Bichat, Paris</affiliation><role><roleTerm type="text">author</roleTerm></role></name><name type="personal"><namePart type="given">L.</namePart><namePart type="family">Grange</namePart><affiliation>Rhumatologie, CHU Hopital Sud, Grenoble</affiliation><role><roleTerm type="text">author</roleTerm></role></name><name type="personal"><namePart type="given">D.-R.</namePart><namePart type="family">Bertholon</namePart><affiliation>Empatient, Agency</affiliation><role><roleTerm type="text">author</roleTerm></role></name><name type="personal"><namePart type="given">M.</namePart><namePart type="family">Karrer</namePart><affiliation>Empatient, Agency</affiliation><role><roleTerm type="text">author</roleTerm></role></name><name type="personal"><namePart type="given">S.</namePart><namePart type="family">Chirol</namePart><affiliation>ANDAR, Association, Paris, France</affiliation><role><roleTerm type="text">author</roleTerm></role></name><typeOfResource>text</typeOfResource><genre type="abstract" displayLabel="abstract"></genre><originInfo><publisher>BMJ Publishing Group Ltd and European League Against Rheumatism</publisher><dateIssued encoding="w3cdtf">2013-06</dateIssued><copyrightDate encoding="w3cdtf">2013</copyrightDate></originInfo><language><languageTerm type="code" authority="iso639-2b">eng</languageTerm><languageTerm type="code" authority="rfc3066">en</languageTerm></language><physicalDescription><internetMediaType>text/html</internetMediaType></physicalDescription><abstract>Background Rheumatoid arthritis (RA) is a chronic disease, which management benefits from Patient Education Programs (PEP). According to national health authority recommendations, French patients are encouraged to help in designing and implementing PEP. With the support of the French Society of Rheumatology, ANDAR, the national patient organization against RA, decided to implement a one-year pilot program of Peer Patient Educators (PPE) within hospitals. This pilot program was selected by the French Ministry of Health and extended to other hospitals for an additional year. Objectives The objectives were to recruit, train, and integrate PPE within multidisciplinary teams and to evaluate their involvement. Methods This was a multicenter national study, over two years, supervised by a steering committee composed of patient representatives, rheumatologists, a psychotherapist and a consultant agency specialized in PEP. PPE candidates were recruited by healthcare professionals within each hospital unit caseload. Candidates were screened by ANDAR and the consulting agency. Candidates underwent 42 hours of training (PEP basics, confidentiality, facilitation, active listening, and group animation skills medical knowledge). After discussion among project organizers, trainees were integrated within their hospital unit PEP where they had the opportunity to participate in program design, educational diagnosis and workshop animation. For the first year, evaluation included the acceptability of the PPE within PEP and their involvement extent. Recommendations were made as to best practices for PEP. Results 11 rheumatology units were involved, 21 PPE trained and 19 involved Year 1: 5 units approached, 4 involved; 8 PPE selected and trained, 6 finally involved (1 disease aggravation, 1 unavailable) Activities: Educative diagnosis and PEP workshop animation (1), PEP workshop animation (4), interplay patients/educators (1) Evaluation I- Acceptability High acceptance of the PPE by other patients; Good acceptance from healthcare professionals despite a few instances of resistance II – Feasibility Favorable conditions: PEP experience within the unit, Recognition of added values brought by patients, PPE selection by the units themselves, Early information of the unit team about the project, Quality of the training provided, Innovative project, Acceptance of patient organization involvement within the healthcare system Blocks: Units understaffing, Previous unsuccessful collaborating experiences with patients, Resistance to change, Doubts about PPE emotional resilience, Fears around sharing confidential medical information with PPE Year-1 evaluation allowed us to improve our selection criteria for candidates as well as our training program. Year 2 9 units approached, 7 involved; 14 PPE selected, 13 trained; 13 involved Activities: PEP workshop animation (13) Conclusions We fulfilled the objective of integrating trained PPE with hospital-run RA PEP, and evaluation shows strong commitment of PPE. The second year confirms the project feasibility. Today, PPE commitment and beneficial input keep growing. New PEP units willing to join the program in following years. Disclosure of Interest None Declared</abstract><relatedItem type="host"><titleInfo><title>Annals of the Rheumatic Diseases</title></titleInfo><titleInfo type="abbreviated"><title>Ann Rheum Dis</title></titleInfo><genre type="journal">journal</genre><identifier type="ISSN">0003-4967</identifier><identifier type="eISSN">1468-2060</identifier><identifier type="PublisherID">ard</identifier><identifier type="PublisherID-hwp">annrheumdis</identifier><identifier type="PublisherID-nlm-ta">Ann Rheum Dis</identifier><part><date>2013</date><detail type="title"><title>Annual European Congress of Rheumatology EULAR abstracts 2013, 12–15 June 2013, Spain</title></detail><detail type="volume"><caption>vol.</caption><number>72</number></detail><detail type="issue"><caption>no.</caption><number>Suppl 3</number></detail><extent unit="pages"><start>A355</start></extent></part></relatedItem><identifier type="istex">52825B348737646D566718B26F94222021E73FC2</identifier><identifier type="DOI">10.1136/annrheumdis-2013-eular.1092</identifier><identifier type="href">annrheumdis-72-A355-1.pdf</identifier><identifier type="ArticleID">annrheumdis-2013-eular.1092</identifier><identifier type="local">annrheumdis;72/Suppl_3/A355-a</identifier><accessCondition type="use and reproduction" contentType="copyright">© 2013, Published by the BMJ Publishing Group Limited. 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