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Use of the International Classification of Functioning, Disability and Health (ICF) to identify preliminary comprehensive and brief core sets for multiple sclerosis.

Identifieur interne : 003A39 ( Main/Exploration ); précédent : 003A38; suivant : 003A40

Use of the International Classification of Functioning, Disability and Health (ICF) to identify preliminary comprehensive and brief core sets for multiple sclerosis.

Auteurs : Fary Khan [Australie] ; Julie F. Pallant

Source :

RBID : pubmed:17364771

Descripteurs français

English descriptors

Abstract

PURPOSE

To identify the preliminary comprehensive and brief core sets for multiple sclerosis (MS), in a Delphi process using the International Classification of Functioning, Disability and Health (ICF).

METHOD

Focus groups and a consensus process were used to identify ICF core sets for MS. This included: preliminary ICF studies; empirical patient data collection for 101 MS participants; review of the evidence base and treatment in MS literature followed by a Delphi exercise with 23 physicians and allied health professionals in Melbourne, Australia.

RESULTS

One hundred and forty-four (40%) second level ICF categories were selected by 23 participants in three rounds. The comprehensive MS ICF core set includes 34 (24%) categories from the component 'body function', six (4%) categories from 'body structures', 68 (47%) from 'activities and participation' and 36 (25%) from the component 'environmental' factors. Ten categories in 'personal factors' in MS were also suggested by the participants after intensive discussions. The brief set comprises 30 categories, 21% of categories in the comprehensive core set.

CONCLUSION

Consensus expert opinion can use ICF categories to identify the core set for MS which reflects disease complexity and care burden for persons' with MS. Further research is needed to identify ICF categories of relevant personal factors to improve our understanding of the large social and cultural variance associated with them.


DOI: 10.1080/09638280600756141
PubMed: 17364771


Affiliations:


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Le document en format XML

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<nlm:affiliation>Department of Rehabilitation Medicine, University of Melbourne, Royal Melbourne Hospital, Poplar Road Parkville, Melbourne, VIC, 3052, Australia. fary.khan@mh.org.au</nlm:affiliation>
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<wicri:regionArea>Department of Rehabilitation Medicine, University of Melbourne, Royal Melbourne Hospital, Poplar Road Parkville, Melbourne, VIC, 3052</wicri:regionArea>
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<term>Humans (MeSH)</term>
<term>Multiple Sclerosis (rehabilitation)</term>
<term>Outcome Assessment, Health Care (MeSH)</term>
<term>Vocabulary, Controlled (MeSH)</term>
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<term>Consensus (MeSH)</term>
<term>Groupes de discussion (MeSH)</term>
<term>Humains (MeSH)</term>
<term>Indicateurs d'état de santé (MeSH)</term>
<term>Méthode Delphi (MeSH)</term>
<term>Sclérose en plaques (rééducation et réadaptation)</term>
<term>Vocabulaire contrôlé (MeSH)</term>
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<term>Multiple Sclerosis</term>
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<term>Sclérose en plaques</term>
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<b>PURPOSE</b>
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<p>
<b>METHOD</b>
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<p>Focus groups and a consensus process were used to identify ICF core sets for MS. This included: preliminary ICF studies; empirical patient data collection for 101 MS participants; review of the evidence base and treatment in MS literature followed by a Delphi exercise with 23 physicians and allied health professionals in Melbourne, Australia.</p>
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<p>One hundred and forty-four (40%) second level ICF categories were selected by 23 participants in three rounds. The comprehensive MS ICF core set includes 34 (24%) categories from the component 'body function', six (4%) categories from 'body structures', 68 (47%) from 'activities and participation' and 36 (25%) from the component 'environmental' factors. Ten categories in 'personal factors' in MS were also suggested by the participants after intensive discussions. The brief set comprises 30 categories, 21% of categories in the comprehensive core set.</p>
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<b>CONCLUSION</b>
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<p>Consensus expert opinion can use ICF categories to identify the core set for MS which reflects disease complexity and care burden for persons' with MS. Further research is needed to identify ICF categories of relevant personal factors to improve our understanding of the large social and cultural variance associated with them.</p>
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