Using patient values and preferences to inform the importance of health outcomes in practice guideline development following the GRADE approach.
Identifieur interne : 000C95 ( PubMed/Curation ); précédent : 000C94; suivant : 000C96Using patient values and preferences to inform the importance of health outcomes in practice guideline development following the GRADE approach.
Auteurs : Yuan Zhang [Canada] ; Pablo Alonso Coello [Canada] ; Jan Bro Ek [Canada] ; Wojtek Wiercioch [Canada] ; Itziar Etxeandia-Ikobaltzeta [Canada] ; Elie A. Akl [Canada] ; Joerg J. Meerpohl [Allemagne] ; Waleed Alhazzani [Canada] ; Alonso Carrasco-Labra [Canada] ; Rebecca L. Morgan [Canada] ; Reem A. Mustafa [Canada] ; John J. Riva [Canada] ; Ainsley Moore [Canada] ; Juan José Yepes-Nu Ez [Canada] ; Carlos Cuello-Garcia [Canada] ; Zulfa Alrayees [Arabie saoudite] ; Veena Manja [États-Unis] ; Maicon Falavigna [Brésil] ; Ignacio Neumann [Canada] ; Romina Brignardello-Petersen [Canada] ; Nancy Santesso [Canada] ; Bram Rochwerg [Canada] ; Andrea Darzi [Liban] ; Maria Ximena Rojas [Colombie] ; Yaser Adi [Arabie saoudite] ; Claudia Bollig [Allemagne] ; Reem Waziry [Liban] ; Holger J. Schünemann [Canada]Source :
- Health and quality of life outcomes [ 1477-7525 ] ; 2017.
Descripteurs français
- KwdFr :
- MESH :
English descriptors
- KwdEn :
- MESH :
- methods : Evidence-Based Medicine.
- psychology : Patient Preference.
- standards : Outcome Assessment (Health Care), Practice Guidelines as Topic.
- Humans, Quality of Life, Saudi Arabia, Social Values.
Abstract
There are diverse opinions and confusion about defining and including patient values and preferences (i.e. the importance people place on the health outcomes) in the guideline development processes. This article aims to provide an overview of a process for systematically incorporating values and preferences in guideline development.
DOI: 10.1186/s12955-017-0621-0
PubMed: 28460638
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Mustafa</name><affiliation wicri:level="1"><nlm:affiliation>Department of Health Research Methods, Evidence and Impact, McMaster University, 1280 Main Street West, Hamilton, ON, L8S 4K1, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>Department of Health Research Methods, Evidence and Impact, McMaster University, 1280 Main Street West, Hamilton, ON, L8S 4K1</wicri:regionArea></affiliation></author><author><name sortKey="Riva, John J" sort="Riva, John J" uniqKey="Riva J" first="John J" last="Riva">John J. 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sortKey="Yepes Nu Ez, Juan Jose" sort="Yepes Nu Ez, Juan Jose" uniqKey="Yepes Nu Ez J" first="Juan José" last="Yepes-Nu Ez">Juan José Yepes-Nu Ez</name><affiliation wicri:level="1"><nlm:affiliation>Department of Health Research Methods, Evidence and Impact, McMaster University, 1280 Main Street West, Hamilton, ON, L8S 4K1, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>Department of Health Research Methods, Evidence and Impact, McMaster University, 1280 Main Street West, Hamilton, ON, L8S 4K1</wicri:regionArea></affiliation></author><author><name sortKey="Cuello Garcia, Carlos" sort="Cuello Garcia, Carlos" uniqKey="Cuello Garcia C" first="Carlos" last="Cuello-Garcia">Carlos Cuello-Garcia</name><affiliation wicri:level="1"><nlm:affiliation>Department of Health Research Methods, Evidence and Impact, McMaster University, 1280 Main Street West, Hamilton, ON, L8S 4K1, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>Department of Health Research Methods, Evidence and Impact, McMaster University, 1280 Main Street West, Hamilton, ON, L8S 4K1</wicri:regionArea></affiliation></author><author><name sortKey="Alrayees, Zulfa" sort="Alrayees, Zulfa" uniqKey="Alrayees Z" first="Zulfa" last="Alrayees">Zulfa Alrayees</name><affiliation wicri:level="1"><nlm:affiliation>Ministry of Health, Riyadh, Saudi Arabia.</nlm:affiliation><country xml:lang="fr">Arabie saoudite</country><wicri:regionArea>Ministry of Health, Riyadh</wicri:regionArea></affiliation></author><author><name sortKey="Manja, Veena" sort="Manja, Veena" uniqKey="Manja V" first="Veena" last="Manja">Veena Manja</name><affiliation wicri:level="1"><nlm:affiliation>Division of Cardiology, Department of Medicine, Veterans Affairs Medical Center, Buffalo, NY, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>Division of Cardiology, Department of Medicine, Veterans Affairs Medical Center, Buffalo, NY</wicri:regionArea></affiliation></author><author><name sortKey="Falavigna, Maicon" sort="Falavigna, Maicon" uniqKey="Falavigna M" first="Maicon" last="Falavigna">Maicon Falavigna</name><affiliation wicri:level="1"><nlm:affiliation>Hospital Moinhos de Vento, Porto Alegre, Brazil.</nlm:affiliation><country xml:lang="fr">Brésil</country><wicri:regionArea>Hospital Moinhos de Vento, Porto Alegre</wicri:regionArea></affiliation></author><author><name sortKey="Neumann, Ignacio" sort="Neumann, Ignacio" uniqKey="Neumann I" first="Ignacio" last="Neumann">Ignacio Neumann</name><affiliation wicri:level="1"><nlm:affiliation>Department of Health Research Methods, Evidence and Impact, McMaster University, 1280 Main Street West, Hamilton, ON, L8S 4K1, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>Department of Health Research Methods, Evidence and Impact, McMaster University, 1280 Main Street West, Hamilton, ON, L8S 4K1</wicri:regionArea></affiliation></author><author><name sortKey="Brignardello Petersen, Romina" sort="Brignardello Petersen, Romina" uniqKey="Brignardello Petersen R" first="Romina" last="Brignardello-Petersen">Romina Brignardello-Petersen</name><affiliation wicri:level="1"><nlm:affiliation>Department of Health Research Methods, Evidence and Impact, McMaster University, 1280 Main Street West, Hamilton, ON, L8S 4K1, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>Department of Health Research Methods, Evidence and Impact, McMaster University, 1280 Main Street West, Hamilton, ON, L8S 4K1</wicri:regionArea></affiliation></author><author><name sortKey="Santesso, Nancy" sort="Santesso, Nancy" uniqKey="Santesso N" first="Nancy" last="Santesso">Nancy Santesso</name><affiliation wicri:level="1"><nlm:affiliation>Department of Health Research Methods, Evidence and Impact, McMaster University, 1280 Main Street West, Hamilton, ON, L8S 4K1, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>Department of Health Research Methods, Evidence and Impact, McMaster University, 1280 Main Street West, Hamilton, ON, L8S 4K1</wicri:regionArea></affiliation></author><author><name sortKey="Rochwerg, Bram" sort="Rochwerg, Bram" uniqKey="Rochwerg B" first="Bram" last="Rochwerg">Bram Rochwerg</name><affiliation wicri:level="1"><nlm:affiliation>Department of Health Research Methods, Evidence and Impact, McMaster University, 1280 Main Street West, Hamilton, ON, L8S 4K1, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>Department of Health Research Methods, Evidence and Impact, McMaster University, 1280 Main Street West, Hamilton, ON, L8S 4K1</wicri:regionArea></affiliation></author><author><name sortKey="Darzi, Andrea" sort="Darzi, Andrea" uniqKey="Darzi A" first="Andrea" last="Darzi">Andrea Darzi</name><affiliation wicri:level="1"><nlm:affiliation>Department of Internal Medicine, Faculty of Health Sciences, American University of Beirut, Beirut, Lebanon.</nlm:affiliation><country xml:lang="fr">Liban</country><wicri:regionArea>Department of Internal Medicine, Faculty of Health Sciences, American University of Beirut, Beirut</wicri:regionArea></affiliation></author><author><name sortKey="Rojas, Maria Ximena" sort="Rojas, Maria Ximena" uniqKey="Rojas M" first="Maria Ximena" last="Rojas">Maria Ximena Rojas</name><affiliation wicri:level="1"><nlm:affiliation>Department of Clinical Epidemiology and Biostatistics, Pontificia Universidad Javeriana, Bogotá, Colombia.</nlm:affiliation><country xml:lang="fr">Colombie</country><wicri:regionArea>Department of Clinical Epidemiology and Biostatistics, Pontificia Universidad Javeriana, Bogotá</wicri:regionArea></affiliation></author><author><name sortKey="Adi, Yaser" sort="Adi, Yaser" uniqKey="Adi Y" first="Yaser" last="Adi">Yaser Adi</name><affiliation wicri:level="1"><nlm:affiliation>King Faisal Specialist Hospital and Research Centre, Riyadh, Saudi Arabia.</nlm:affiliation><country xml:lang="fr">Arabie saoudite</country><wicri:regionArea>King Faisal Specialist Hospital and Research Centre, Riyadh</wicri:regionArea></affiliation></author><author><name sortKey="Bollig, Claudia" sort="Bollig, Claudia" uniqKey="Bollig C" first="Claudia" last="Bollig">Claudia Bollig</name><affiliation wicri:level="1"><nlm:affiliation>Cochrane Germany, Medical Center - University of Freiburg, Faculty of Medicine, University of Freiburg, Freiburg, Germany.</nlm:affiliation><country xml:lang="fr">Allemagne</country><wicri:regionArea>Cochrane Germany, Medical Center - University of Freiburg, Faculty of Medicine, University of Freiburg, Freiburg</wicri:regionArea></affiliation></author><author><name sortKey="Waziry, Reem" sort="Waziry, Reem" uniqKey="Waziry R" first="Reem" last="Waziry">Reem Waziry</name><affiliation wicri:level="1"><nlm:affiliation>Department of Internal Medicine, Faculty of Health Sciences, American University of Beirut, Beirut, Lebanon.</nlm:affiliation><country xml:lang="fr">Liban</country><wicri:regionArea>Department of Internal Medicine, Faculty of Health Sciences, American University of Beirut, Beirut</wicri:regionArea></affiliation></author><author><name sortKey="Schunemann, Holger J" sort="Schunemann, Holger J" uniqKey="Schunemann H" first="Holger J" last="Schünemann">Holger J. Schünemann</name><affiliation wicri:level="1"><nlm:affiliation>Department of Health Research Methods, Evidence and Impact, McMaster University, 1280 Main Street West, Hamilton, ON, L8S 4K1, Canada. schuneh@mcmaster.ca.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>Department of Health Research Methods, Evidence and Impact, McMaster University, 1280 Main Street West, Hamilton, ON, L8S 4K1</wicri:regionArea></affiliation></author></titleStmt><publicationStmt><idno type="wicri:source">PubMed</idno><date when="2017">2017</date><idno type="RBID">pubmed:28460638</idno><idno type="pmid">28460638</idno><idno type="doi">10.1186/s12955-017-0621-0</idno><idno type="wicri:Area/PubMed/Corpus">000C98</idno><idno type="wicri:explorRef" wicri:stream="PubMed" wicri:step="Corpus" wicri:corpus="PubMed">000C98</idno><idno type="wicri:Area/PubMed/Curation">000C95</idno><idno type="wicri:explorRef" wicri:stream="PubMed" wicri:step="Curation">000C95</idno></publicationStmt><sourceDesc><biblStruct><analytic><title xml:lang="en">Using patient values and preferences to inform the importance of health outcomes in practice guideline development following the GRADE approach.</title><author><name sortKey="Zhang, Yuan" sort="Zhang, Yuan" uniqKey="Zhang Y" first="Yuan" last="Zhang">Yuan Zhang</name><affiliation wicri:level="1"><nlm:affiliation>Department of Health Research Methods, Evidence and Impact, McMaster University, 1280 Main Street West, Hamilton, ON, L8S 4K1, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>Department of Health Research Methods, Evidence and Impact, McMaster University, 1280 Main Street West, Hamilton, ON, L8S 4K1</wicri:regionArea></affiliation></author><author><name sortKey="Coello, Pablo Alonso" sort="Coello, Pablo Alonso" uniqKey="Coello P" first="Pablo Alonso" last="Coello">Pablo Alonso Coello</name><affiliation wicri:level="1"><nlm:affiliation>Department of Health Research Methods, Evidence and Impact, McMaster University, 1280 Main Street West, Hamilton, ON, L8S 4K1, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>Department of Health Research Methods, Evidence and Impact, McMaster University, 1280 Main Street West, Hamilton, ON, L8S 4K1</wicri:regionArea></affiliation></author><author><name sortKey="Bro Ek, Jan" sort="Bro Ek, Jan" uniqKey="Bro Ek J" first="Jan" last="Bro Ek">Jan Bro Ek</name><affiliation wicri:level="1"><nlm:affiliation>Department of Health Research Methods, Evidence and Impact, McMaster University, 1280 Main Street West, Hamilton, ON, L8S 4K1, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>Department of Health Research Methods, Evidence and Impact, McMaster University, 1280 Main Street West, Hamilton, ON, L8S 4K1</wicri:regionArea></affiliation></author><author><name sortKey="Wiercioch, Wojtek" sort="Wiercioch, Wojtek" uniqKey="Wiercioch W" first="Wojtek" last="Wiercioch">Wojtek Wiercioch</name><affiliation wicri:level="1"><nlm:affiliation>Department of Health Research Methods, Evidence and Impact, McMaster University, 1280 Main Street West, Hamilton, ON, L8S 4K1, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>Department of Health Research Methods, Evidence and Impact, McMaster University, 1280 Main Street West, Hamilton, ON, L8S 4K1</wicri:regionArea></affiliation></author><author><name sortKey="Etxeandia Ikobaltzeta, Itziar" sort="Etxeandia Ikobaltzeta, Itziar" uniqKey="Etxeandia Ikobaltzeta I" first="Itziar" last="Etxeandia-Ikobaltzeta">Itziar Etxeandia-Ikobaltzeta</name><affiliation wicri:level="1"><nlm:affiliation>Department of Health Research Methods, Evidence and Impact, McMaster University, 1280 Main Street West, Hamilton, ON, L8S 4K1, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>Department of Health Research Methods, Evidence and Impact, McMaster University, 1280 Main Street West, Hamilton, ON, L8S 4K1</wicri:regionArea></affiliation></author><author><name sortKey="Akl, Elie A" sort="Akl, Elie A" uniqKey="Akl E" first="Elie A" last="Akl">Elie A. Akl</name><affiliation wicri:level="1"><nlm:affiliation>Department of Health Research Methods, Evidence and Impact, McMaster University, 1280 Main Street West, Hamilton, ON, L8S 4K1, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>Department of Health Research Methods, Evidence and Impact, McMaster University, 1280 Main Street West, Hamilton, ON, L8S 4K1</wicri:regionArea></affiliation></author><author><name sortKey="Meerpohl, Joerg J" sort="Meerpohl, Joerg J" uniqKey="Meerpohl J" first="Joerg J" last="Meerpohl">Joerg J. Meerpohl</name><affiliation wicri:level="1"><nlm:affiliation>Cochrane Germany, Medical Center - University of Freiburg, Faculty of Medicine, University of Freiburg, Freiburg, Germany.</nlm:affiliation><country xml:lang="fr">Allemagne</country><wicri:regionArea>Cochrane Germany, Medical Center - University of Freiburg, Faculty of Medicine, University of Freiburg, Freiburg</wicri:regionArea></affiliation></author><author><name sortKey="Alhazzani, Waleed" sort="Alhazzani, Waleed" uniqKey="Alhazzani W" first="Waleed" last="Alhazzani">Waleed Alhazzani</name><affiliation wicri:level="1"><nlm:affiliation>Department of Health Research Methods, Evidence and Impact, McMaster University, 1280 Main Street West, Hamilton, ON, L8S 4K1, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>Department of Health Research Methods, Evidence and Impact, McMaster University, 1280 Main Street West, Hamilton, ON, L8S 4K1</wicri:regionArea></affiliation></author><author><name sortKey="Carrasco Labra, Alonso" sort="Carrasco Labra, Alonso" uniqKey="Carrasco Labra A" first="Alonso" last="Carrasco-Labra">Alonso Carrasco-Labra</name><affiliation wicri:level="1"><nlm:affiliation>Department of Health Research Methods, Evidence and Impact, McMaster University, 1280 Main Street West, Hamilton, ON, L8S 4K1, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>Department of Health Research Methods, Evidence and Impact, McMaster University, 1280 Main Street West, Hamilton, ON, L8S 4K1</wicri:regionArea></affiliation></author><author><name sortKey="Morgan, Rebecca L" sort="Morgan, Rebecca L" uniqKey="Morgan R" first="Rebecca L" last="Morgan">Rebecca L. Morgan</name><affiliation wicri:level="1"><nlm:affiliation>Department of Health Research Methods, Evidence and Impact, McMaster University, 1280 Main Street West, Hamilton, ON, L8S 4K1, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>Department of Health Research Methods, Evidence and Impact, McMaster University, 1280 Main Street West, Hamilton, ON, L8S 4K1</wicri:regionArea></affiliation></author><author><name sortKey="Mustafa, Reem A" sort="Mustafa, Reem A" uniqKey="Mustafa R" first="Reem A" last="Mustafa">Reem A. Mustafa</name><affiliation wicri:level="1"><nlm:affiliation>Department of Health Research Methods, Evidence and Impact, McMaster University, 1280 Main Street West, Hamilton, ON, L8S 4K1, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>Department of Health Research Methods, Evidence and Impact, McMaster University, 1280 Main Street West, Hamilton, ON, L8S 4K1</wicri:regionArea></affiliation></author><author><name sortKey="Riva, John J" sort="Riva, John J" uniqKey="Riva J" first="John J" last="Riva">John J. Riva</name><affiliation wicri:level="1"><nlm:affiliation>Department of Health Research Methods, Evidence and Impact, McMaster University, 1280 Main Street West, Hamilton, ON, L8S 4K1, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>Department of Health Research Methods, Evidence and Impact, McMaster University, 1280 Main Street West, Hamilton, ON, L8S 4K1</wicri:regionArea></affiliation></author><author><name sortKey="Moore, Ainsley" sort="Moore, Ainsley" uniqKey="Moore A" first="Ainsley" last="Moore">Ainsley Moore</name><affiliation wicri:level="1"><nlm:affiliation>Department of Health Research Methods, Evidence and Impact, McMaster University, 1280 Main Street West, Hamilton, ON, L8S 4K1, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>Department of Health Research Methods, Evidence and Impact, McMaster University, 1280 Main Street West, Hamilton, ON, L8S 4K1</wicri:regionArea></affiliation></author><author><name sortKey="Yepes Nu Ez, Juan Jose" sort="Yepes Nu Ez, Juan Jose" uniqKey="Yepes Nu Ez J" first="Juan José" last="Yepes-Nu Ez">Juan José Yepes-Nu Ez</name><affiliation wicri:level="1"><nlm:affiliation>Department of Health Research Methods, Evidence and Impact, McMaster University, 1280 Main Street West, Hamilton, ON, L8S 4K1, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>Department of Health Research Methods, Evidence and Impact, McMaster University, 1280 Main Street West, Hamilton, ON, L8S 4K1</wicri:regionArea></affiliation></author><author><name sortKey="Cuello Garcia, Carlos" sort="Cuello Garcia, Carlos" uniqKey="Cuello Garcia C" first="Carlos" last="Cuello-Garcia">Carlos Cuello-Garcia</name><affiliation wicri:level="1"><nlm:affiliation>Department of Health Research Methods, Evidence and Impact, McMaster University, 1280 Main Street West, Hamilton, ON, L8S 4K1, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>Department of Health Research Methods, Evidence and Impact, McMaster University, 1280 Main Street West, Hamilton, ON, L8S 4K1</wicri:regionArea></affiliation></author><author><name sortKey="Alrayees, Zulfa" sort="Alrayees, Zulfa" uniqKey="Alrayees Z" first="Zulfa" last="Alrayees">Zulfa Alrayees</name><affiliation wicri:level="1"><nlm:affiliation>Ministry of Health, Riyadh, Saudi Arabia.</nlm:affiliation><country xml:lang="fr">Arabie saoudite</country><wicri:regionArea>Ministry of Health, Riyadh</wicri:regionArea></affiliation></author><author><name sortKey="Manja, Veena" sort="Manja, Veena" uniqKey="Manja V" first="Veena" last="Manja">Veena Manja</name><affiliation wicri:level="1"><nlm:affiliation>Division of Cardiology, Department of Medicine, Veterans Affairs Medical Center, Buffalo, NY, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>Division of Cardiology, Department of Medicine, Veterans Affairs Medical Center, Buffalo, NY</wicri:regionArea></affiliation></author><author><name sortKey="Falavigna, Maicon" sort="Falavigna, Maicon" uniqKey="Falavigna M" first="Maicon" last="Falavigna">Maicon Falavigna</name><affiliation wicri:level="1"><nlm:affiliation>Hospital Moinhos de Vento, Porto Alegre, Brazil.</nlm:affiliation><country xml:lang="fr">Brésil</country><wicri:regionArea>Hospital Moinhos de Vento, Porto Alegre</wicri:regionArea></affiliation></author><author><name sortKey="Neumann, Ignacio" sort="Neumann, Ignacio" uniqKey="Neumann I" first="Ignacio" last="Neumann">Ignacio Neumann</name><affiliation wicri:level="1"><nlm:affiliation>Department of Health Research Methods, Evidence and Impact, McMaster University, 1280 Main Street West, Hamilton, ON, L8S 4K1, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>Department of Health Research Methods, Evidence and Impact, McMaster University, 1280 Main Street West, Hamilton, ON, L8S 4K1</wicri:regionArea></affiliation></author><author><name sortKey="Brignardello Petersen, Romina" sort="Brignardello Petersen, Romina" uniqKey="Brignardello Petersen R" first="Romina" last="Brignardello-Petersen">Romina Brignardello-Petersen</name><affiliation wicri:level="1"><nlm:affiliation>Department of Health Research Methods, Evidence and Impact, McMaster University, 1280 Main Street West, Hamilton, ON, L8S 4K1, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>Department of Health Research Methods, Evidence and Impact, McMaster University, 1280 Main Street West, Hamilton, ON, L8S 4K1</wicri:regionArea></affiliation></author><author><name sortKey="Santesso, Nancy" sort="Santesso, Nancy" uniqKey="Santesso N" first="Nancy" last="Santesso">Nancy Santesso</name><affiliation wicri:level="1"><nlm:affiliation>Department of Health Research Methods, Evidence and Impact, McMaster University, 1280 Main Street West, Hamilton, ON, L8S 4K1, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>Department of Health Research Methods, Evidence and Impact, McMaster University, 1280 Main Street West, Hamilton, ON, L8S 4K1</wicri:regionArea></affiliation></author><author><name sortKey="Rochwerg, Bram" sort="Rochwerg, Bram" uniqKey="Rochwerg B" first="Bram" last="Rochwerg">Bram Rochwerg</name><affiliation wicri:level="1"><nlm:affiliation>Department of Health Research Methods, Evidence and Impact, McMaster University, 1280 Main Street West, Hamilton, ON, L8S 4K1, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>Department of Health Research Methods, Evidence and Impact, McMaster University, 1280 Main Street West, Hamilton, ON, L8S 4K1</wicri:regionArea></affiliation></author><author><name sortKey="Darzi, Andrea" sort="Darzi, Andrea" uniqKey="Darzi A" first="Andrea" last="Darzi">Andrea Darzi</name><affiliation wicri:level="1"><nlm:affiliation>Department of Internal Medicine, Faculty of Health Sciences, American University of Beirut, Beirut, Lebanon.</nlm:affiliation><country xml:lang="fr">Liban</country><wicri:regionArea>Department of Internal Medicine, Faculty of Health Sciences, American University of Beirut, Beirut</wicri:regionArea></affiliation></author><author><name sortKey="Rojas, Maria Ximena" sort="Rojas, Maria Ximena" uniqKey="Rojas M" first="Maria Ximena" last="Rojas">Maria Ximena Rojas</name><affiliation wicri:level="1"><nlm:affiliation>Department of Clinical Epidemiology and Biostatistics, Pontificia Universidad Javeriana, Bogotá, Colombia.</nlm:affiliation><country xml:lang="fr">Colombie</country><wicri:regionArea>Department of Clinical Epidemiology and Biostatistics, Pontificia Universidad Javeriana, Bogotá</wicri:regionArea></affiliation></author><author><name sortKey="Adi, Yaser" sort="Adi, Yaser" uniqKey="Adi Y" first="Yaser" last="Adi">Yaser Adi</name><affiliation wicri:level="1"><nlm:affiliation>King Faisal Specialist Hospital and Research Centre, Riyadh, Saudi Arabia.</nlm:affiliation><country xml:lang="fr">Arabie saoudite</country><wicri:regionArea>King Faisal Specialist Hospital and Research Centre, Riyadh</wicri:regionArea></affiliation></author><author><name sortKey="Bollig, Claudia" sort="Bollig, Claudia" uniqKey="Bollig C" first="Claudia" last="Bollig">Claudia Bollig</name><affiliation wicri:level="1"><nlm:affiliation>Cochrane Germany, Medical Center - University of Freiburg, Faculty of Medicine, University of Freiburg, Freiburg, Germany.</nlm:affiliation><country xml:lang="fr">Allemagne</country><wicri:regionArea>Cochrane Germany, Medical Center - University of Freiburg, Faculty of Medicine, University of Freiburg, Freiburg</wicri:regionArea></affiliation></author><author><name sortKey="Waziry, Reem" sort="Waziry, Reem" uniqKey="Waziry R" first="Reem" last="Waziry">Reem Waziry</name><affiliation wicri:level="1"><nlm:affiliation>Department of Internal Medicine, Faculty of Health Sciences, American University of Beirut, Beirut, Lebanon.</nlm:affiliation><country xml:lang="fr">Liban</country><wicri:regionArea>Department of Internal Medicine, Faculty of Health Sciences, American University of Beirut, Beirut</wicri:regionArea></affiliation></author><author><name sortKey="Schunemann, Holger J" sort="Schunemann, Holger J" uniqKey="Schunemann H" first="Holger J" last="Schünemann">Holger J. Schünemann</name><affiliation wicri:level="1"><nlm:affiliation>Department of Health Research Methods, Evidence and Impact, McMaster University, 1280 Main Street West, Hamilton, ON, L8S 4K1, Canada. schuneh@mcmaster.ca.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>Department of Health Research Methods, Evidence and Impact, McMaster University, 1280 Main Street West, Hamilton, ON, L8S 4K1</wicri:regionArea></affiliation></author></analytic><series><title level="j">Health and quality of life outcomes</title><idno type="eISSN">1477-7525</idno><imprint><date when="2017" type="published">2017</date></imprint></series></biblStruct></sourceDesc></fileDesc><profileDesc><textClass><keywords scheme="KwdEn" xml:lang="en"><term>Evidence-Based Medicine (methods)</term><term>Humans</term><term>Outcome Assessment (Health Care) (standards)</term><term>Patient Preference (psychology)</term><term>Practice Guidelines as Topic (standards)</term><term>Quality of Life</term><term>Saudi Arabia</term><term>Social Values</term></keywords><keywords scheme="KwdFr" xml:lang="fr"><term>Arabie saoudite</term><term>Guides de bonnes pratiques cliniques comme sujet (normes)</term><term>Humains</term><term>Médecine factuelle ()</term><term>Préférence du patient (psychologie)</term><term>Qualité de vie</term><term>Valeurs sociales</term><term>Évaluation de résultat (soins) (normes)</term></keywords><keywords scheme="MESH" qualifier="methods" xml:lang="en"><term>Evidence-Based Medicine</term></keywords><keywords scheme="MESH" qualifier="normes" xml:lang="fr"><term>Guides de bonnes pratiques cliniques comme sujet</term><term>Évaluation de résultat (soins)</term></keywords><keywords scheme="MESH" qualifier="psychologie" xml:lang="fr"><term>Préférence du patient</term></keywords><keywords scheme="MESH" qualifier="psychology" xml:lang="en"><term>Patient Preference</term></keywords><keywords scheme="MESH" qualifier="standards" xml:lang="en"><term>Outcome Assessment (Health Care)</term><term>Practice Guidelines as Topic</term></keywords><keywords scheme="MESH" xml:lang="en"><term>Humans</term><term>Quality of Life</term><term>Saudi Arabia</term><term>Social Values</term></keywords><keywords scheme="MESH" xml:lang="fr"><term>Arabie saoudite</term><term>Humains</term><term>Médecine factuelle</term><term>Qualité de vie</term><term>Valeurs sociales</term></keywords></textClass></profileDesc></teiHeader><front><div type="abstract" xml:lang="en">There are diverse opinions and confusion about defining and including patient values and preferences (i.e. the importance people place on the health outcomes) in the guideline development processes. This article aims to provide an overview of a process for systematically incorporating values and preferences in guideline development.</div></front></TEI><pubmed><MedlineCitation Status="MEDLINE" Owner="NLM"><PMID Version="1">28460638</PMID><DateCreated><Year>2017</Year><Month>05</Month><Day>02</Day></DateCreated><DateCompleted><Year>2017</Year><Month>08</Month><Day>25</Day></DateCompleted><DateRevised><Year>2017</Year><Month>08</Month><Day>25</Day></DateRevised><Article PubModel="Electronic"><Journal><ISSN IssnType="Electronic">1477-7525</ISSN><JournalIssue CitedMedium="Internet"><Volume>15</Volume><Issue>1</Issue><PubDate><Year>2017</Year><Month>May</Month><Day>02</Day></PubDate></JournalIssue><Title>Health and quality of life outcomes</Title><ISOAbbreviation>Health Qual Life Outcomes</ISOAbbreviation></Journal><ArticleTitle>Using patient values and preferences to inform the importance of health outcomes in practice guideline development following the GRADE approach.</ArticleTitle><Pagination><MedlinePgn>52</MedlinePgn></Pagination><ELocationID EIdType="doi" ValidYN="Y">10.1186/s12955-017-0621-0</ELocationID><Abstract><AbstractText Label="BACKGROUND" NlmCategory="BACKGROUND">There are diverse opinions and confusion about defining and including patient values and preferences (i.e. the importance people place on the health outcomes) in the guideline development processes. This article aims to provide an overview of a process for systematically incorporating values and preferences in guideline development.</AbstractText><AbstractText Label="METHODS" NlmCategory="METHODS">In 2013 and 2014, we followed the Grading of Recommendations Assessment, Development and Evaluation (GRADE) approach to adopt, adapt and develop 226 recommendations in 22 guidelines for the Ministry of Health of the Kingdom of Saudi Arabia. To collect context-specific values and preferences for each recommendation, we performed systematic reviews, asked clinical experts to provide feedback according to their clinical experience, and consulted patient representatives.</AbstractText><AbstractText Label="RESULTS" NlmCategory="RESULTS">We found several types of studies addressing the importance of outcomes, including those reporting utilities, non-utility measures of health states based on structured questionnaires or scales, and qualitative studies. Guideline panels used the relative importance of outcomes based on values and preferences to weigh the balance of desirable and undesirable consequences of alternative intervention options. However, we found few studies addressing local values and preferences.</AbstractText><AbstractText Label="CONCLUSIONS" NlmCategory="CONCLUSIONS">Currently there are different but no firmly established processes for integrating patient values and preferences in healthcare decision-making of practice guideline development. With GRADE Evidence-to-Decision (EtD) frameworks, we provide an empirical strategy to find and incorporate values and preferences in guidelines by performing systematic reviews and eliciting information from guideline panel members and patient representatives. However, more research and practical guidance are needed on how to search for relevant studies and grey literature, assess the certainty of this evidence, and best summarize and present the findings.</AbstractText></Abstract><AuthorList CompleteYN="Y"><Author ValidYN="Y"><LastName>Zhang</LastName><ForeName>Yuan</ForeName><Initials>Y</Initials><AffiliationInfo><Affiliation>Department of Health Research Methods, Evidence and Impact, McMaster University, 1280 Main Street West, Hamilton, ON, L8S 4K1, Canada.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Coello</LastName><ForeName>Pablo Alonso</ForeName><Initials>PA</Initials><AffiliationInfo><Affiliation>Department of Health Research Methods, Evidence and Impact, McMaster University, 1280 Main Street West, Hamilton, ON, L8S 4K1, Canada.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>Iberoamerican Cochrane Centre, CIBERESP-IIB Sant Pau, Barcelona, Spain.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Brożek</LastName><ForeName>Jan</ForeName><Initials>J</Initials><AffiliationInfo><Affiliation>Department of Health Research Methods, Evidence and Impact, McMaster University, 1280 Main Street West, Hamilton, ON, L8S 4K1, Canada.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>Department of Medicine, McMaster University, Hamilton, Canada.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Wiercioch</LastName><ForeName>Wojtek</ForeName><Initials>W</Initials><AffiliationInfo><Affiliation>Department of Health Research Methods, Evidence and Impact, McMaster University, 1280 Main Street West, Hamilton, ON, L8S 4K1, Canada.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Etxeandia-Ikobaltzeta</LastName><ForeName>Itziar</ForeName><Initials>I</Initials><AffiliationInfo><Affiliation>Department of Health Research Methods, Evidence and Impact, McMaster University, 1280 Main Street West, Hamilton, ON, L8S 4K1, Canada.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Akl</LastName><ForeName>Elie A</ForeName><Initials>EA</Initials><AffiliationInfo><Affiliation>Department of Health Research Methods, Evidence and Impact, McMaster University, 1280 Main Street West, Hamilton, ON, L8S 4K1, Canada.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>Department of Internal Medicine, Faculty of Health Sciences, American University of Beirut, Beirut, Lebanon.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Meerpohl</LastName><ForeName>Joerg J</ForeName><Initials>JJ</Initials><AffiliationInfo><Affiliation>Cochrane Germany, Medical Center - University of Freiburg, Faculty of Medicine, University of Freiburg, Freiburg, Germany.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>Centre de Recherche Épidémiologie et Statistique Sorbonne Paris Cité - U1153, Inserm/Université Paris Descartes, Cochrane France, Hôpital Hôtel-Dieu, 1 place du Parvis Notre Dame, 75181, Paris, Cedex 04, France.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Alhazzani</LastName><ForeName>Waleed</ForeName><Initials>W</Initials><AffiliationInfo><Affiliation>Department of Health Research Methods, Evidence and Impact, McMaster University, 1280 Main Street West, Hamilton, ON, L8S 4K1, Canada.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>Department of Medicine, McMaster University, Hamilton, Canada.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Carrasco-Labra</LastName><ForeName>Alonso</ForeName><Initials>A</Initials><AffiliationInfo><Affiliation>Department of Health Research Methods, Evidence and Impact, McMaster University, 1280 Main Street West, Hamilton, ON, L8S 4K1, Canada.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>Evidence-Based Dentistry Unit, Faculty of Dentistry, Universidad de Chile, Santiago, Chile.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Morgan</LastName><ForeName>Rebecca L</ForeName><Initials>RL</Initials><AffiliationInfo><Affiliation>Department of Health Research Methods, Evidence and Impact, McMaster University, 1280 Main Street West, Hamilton, ON, L8S 4K1, Canada.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Mustafa</LastName><ForeName>Reem A</ForeName><Initials>RA</Initials><AffiliationInfo><Affiliation>Department of Health Research Methods, Evidence and Impact, McMaster University, 1280 Main Street West, Hamilton, ON, L8S 4K1, Canada.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>Departments of Internal Medicine/Nephrology and Biomedical and Health Informatics, University of Missouri-Kansas City, Kansas City, MO, USA.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Riva</LastName><ForeName>John J</ForeName><Initials>JJ</Initials><AffiliationInfo><Affiliation>Department of Health Research Methods, Evidence and Impact, McMaster University, 1280 Main Street West, Hamilton, ON, L8S 4K1, Canada.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>Department of Family Medicine, McMaster University, David Braley Health Sciences Centre, 100 Main Street West, 6th Floor, Hamilton, ON, L8P 1H6, Canada.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Moore</LastName><ForeName>Ainsley</ForeName><Initials>A</Initials><AffiliationInfo><Affiliation>Department of Health Research Methods, Evidence and Impact, McMaster University, 1280 Main Street West, Hamilton, ON, L8S 4K1, Canada.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>Department of Family Medicine, McMaster University, David Braley Health Sciences Centre, 100 Main Street West, 6th Floor, Hamilton, ON, L8P 1H6, Canada.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Yepes-Nuñez</LastName><ForeName>Juan José</ForeName><Initials>JJ</Initials><AffiliationInfo><Affiliation>Department of Health Research Methods, Evidence and Impact, McMaster University, 1280 Main Street West, Hamilton, ON, L8S 4K1, Canada.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>School of Medicine, University of Antioquia, Medellín, Colombia.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Cuello-Garcia</LastName><ForeName>Carlos</ForeName><Initials>C</Initials><AffiliationInfo><Affiliation>Department of Health Research Methods, Evidence and Impact, McMaster University, 1280 Main Street West, Hamilton, ON, L8S 4K1, Canada.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>Tecnologico de Monterrey School of Medicine, Monterrey, Mexico.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>AlRayees</LastName><ForeName>Zulfa</ForeName><Initials>Z</Initials><AffiliationInfo><Affiliation>Ministry of Health, Riyadh, Saudi Arabia.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Manja</LastName><ForeName>Veena</ForeName><Initials>V</Initials><AffiliationInfo><Affiliation>Division of Cardiology, Department of Medicine, Veterans Affairs Medical Center, Buffalo, NY, USA.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>Department of Internal Medicine, University at Buffalo, the State University of New York, Buffalo, NY, USA.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Falavigna</LastName><ForeName>Maicon</ForeName><Initials>M</Initials><AffiliationInfo><Affiliation>Hospital Moinhos de Vento, Porto Alegre, Brazil.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>National Institute of Science and Technology for Health Technology Assessment, Federal University of Rio Grande do Sul, Porto Alegre, Brazil.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Neumann</LastName><ForeName>Ignacio</ForeName><Initials>I</Initials><AffiliationInfo><Affiliation>Department of Health Research Methods, Evidence and Impact, McMaster University, 1280 Main Street West, Hamilton, ON, L8S 4K1, Canada.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>Department of Internal Medicine, Pontificia Universidad Católica de Chile, Santiago, Chile.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Brignardello-Petersen</LastName><ForeName>Romina</ForeName><Initials>R</Initials><AffiliationInfo><Affiliation>Department of Health Research Methods, Evidence and Impact, McMaster University, 1280 Main Street West, Hamilton, ON, L8S 4K1, Canada.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>Evidence-Based Dentistry Unit, Faculty of Dentistry, Universidad de Chile, Santiago, Chile.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Santesso</LastName><ForeName>Nancy</ForeName><Initials>N</Initials><AffiliationInfo><Affiliation>Department of Health Research Methods, Evidence and Impact, McMaster University, 1280 Main Street West, Hamilton, ON, L8S 4K1, Canada.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Rochwerg</LastName><ForeName>Bram</ForeName><Initials>B</Initials><AffiliationInfo><Affiliation>Department of Health Research Methods, Evidence and Impact, McMaster University, 1280 Main Street West, Hamilton, ON, L8S 4K1, Canada.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>Department of Medicine, McMaster University, Hamilton, Canada.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Darzi</LastName><ForeName>Andrea</ForeName><Initials>A</Initials><AffiliationInfo><Affiliation>Department of Internal Medicine, Faculty of Health Sciences, American University of Beirut, Beirut, Lebanon.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Rojas</LastName><ForeName>Maria Ximena</ForeName><Initials>MX</Initials><AffiliationInfo><Affiliation>Department of Clinical Epidemiology and Biostatistics, Pontificia Universidad Javeriana, Bogotá, Colombia.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Adi</LastName><ForeName>Yaser</ForeName><Initials>Y</Initials><AffiliationInfo><Affiliation>King Faisal Specialist Hospital and Research Centre, Riyadh, Saudi Arabia.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Bollig</LastName><ForeName>Claudia</ForeName><Initials>C</Initials><AffiliationInfo><Affiliation>Cochrane Germany, Medical Center - University of Freiburg, Faculty of Medicine, University of Freiburg, Freiburg, Germany.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Waziry</LastName><ForeName>Reem</ForeName><Initials>R</Initials><AffiliationInfo><Affiliation>Department of Internal Medicine, Faculty of Health Sciences, American University of Beirut, Beirut, Lebanon.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>The Kirby Institute, University of New South Wales, New South Wales, Australia.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Schünemann</LastName><ForeName>Holger J</ForeName><Initials>HJ</Initials><AffiliationInfo><Affiliation>Department of Health Research Methods, Evidence and Impact, McMaster University, 1280 Main Street West, Hamilton, ON, L8S 4K1, Canada. schuneh@mcmaster.ca.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>Department of Medicine, McMaster University, Hamilton, Canada. schuneh@mcmaster.ca.</Affiliation></AffiliationInfo></Author></AuthorList><Language>eng</Language><PublicationTypeList><PublicationType UI="D016428">Journal Article</PublicationType><PublicationType UI="D016454">Review</PublicationType></PublicationTypeList><ArticleDate DateType="Electronic"><Year>2017</Year><Month>05</Month><Day>02</Day></ArticleDate></Article><MedlineJournalInfo><Country>England</Country><MedlineTA>Health Qual Life 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preferences</Keyword><Keyword MajorTopicYN="N">Patient values</Keyword><Keyword MajorTopicYN="N">Systematic review</Keyword></KeywordList></MedlineCitation><PubmedData><History><PubMedPubDate PubStatus="received"><Year>2016</Year><Month>09</Month><Day>21</Day></PubMedPubDate><PubMedPubDate PubStatus="accepted"><Year>2017</Year><Month>03</Month><Day>02</Day></PubMedPubDate><PubMedPubDate PubStatus="entrez"><Year>2017</Year><Month>5</Month><Day>3</Day><Hour>6</Hour><Minute>0</Minute></PubMedPubDate><PubMedPubDate PubStatus="pubmed"><Year>2017</Year><Month>5</Month><Day>4</Day><Hour>6</Hour><Minute>0</Minute></PubMedPubDate><PubMedPubDate PubStatus="medline"><Year>2017</Year><Month>8</Month><Day>26</Day><Hour>6</Hour><Minute>0</Minute></PubMedPubDate></History><PublicationStatus>epublish</PublicationStatus><ArticleIdList><ArticleId IdType="pubmed">28460638</ArticleId><ArticleId IdType="doi">10.1186/s12955-017-0621-0</ArticleId><ArticleId 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