Serveur d'exploration sur les relations entre la France et l'Australie

Attention, ce site est en cours de développement !
Attention, site généré par des moyens informatiques à partir de corpus bruts.
Les informations ne sont donc pas validées.

European Cystic Fibrosis Society Standards of Care: Best Practice guidelines.

Identifieur interne : 003796 ( PubMed/Corpus ); précédent : 003795; suivant : 003797

European Cystic Fibrosis Society Standards of Care: Best Practice guidelines.

Auteurs : Alan R. Smyth ; Scott C. Bell ; Snezana Bojcin ; Mandy Bryon ; Alistair Duff ; Patrick Flume ; Nataliya Kashirskaya ; Anne Munck ; Felix Ratjen ; Sarah Jane Schwarzenberg ; Isabelle Sermet-Gaudelus ; Kevin W. Southern ; Giovanni Taccetti ; Gerald Ullrich ; Sue Wolfe

Source :

RBID : pubmed:24856775

English descriptors

Abstract

Specialised CF care has led to a dramatic improvement in survival in CF: in the last four decades, well above what was seen in the general population over the same period. With the implementation of newborn screening in many European countries, centres are increasingly caring for a cohort of patients who have minimal lung disease at diagnosis and therefore have the potential to enjoy an excellent quality of life and an even greater life expectancy than was seen previously. To allow high quality care to be delivered throughout Europe, a landmark document was published in 2005 that sets standards of care. Our current document builds on this work, setting standards for best practice in key aspects of CF care. The objective of our document is to give a broad overview of the standards expected for screening, diagnosis, pre-emptive treatment of lung disease, nutrition, complications, transplant/end of life care and psychological support. For comprehensive details of clinical care of CF, references to the most up to date European Consensus Statements, Guidelines or Position Papers are provided in Table 1. We hope that this best practice document will be useful to clinical teams both in countries where CF care is developing and those with established CF centres.

DOI: 10.1016/j.jcf.2014.03.010
PubMed: 24856775

Links to Exploration step

pubmed:24856775

Le document en format XML

<record>
<TEI>
<teiHeader>
<fileDesc>
<titleStmt>
<title xml:lang="en">European Cystic Fibrosis Society Standards of Care: Best Practice guidelines.</title>
<author>
<name sortKey="Smyth, Alan R" sort="Smyth, Alan R" uniqKey="Smyth A" first="Alan R" last="Smyth">Alan R. Smyth</name>
<affiliation>
<nlm:affiliation>Division of Child Health, Obstetrics & Gynaecology (COG), School of Medicine, University of Nottingham, UK. Electronic address: Alan.Smyth@nottingham.ac.uk.</nlm:affiliation>
</affiliation>
</author>
<author>
<name sortKey="Bell, Scott C" sort="Bell, Scott C" uniqKey="Bell S" first="Scott C" last="Bell">Scott C. Bell</name>
<affiliation>
<nlm:affiliation>Department of Thoracic Medicine, The Prince Charles Hospital, Australia; Queensland Children's Medical Research Institute, Brisbane, Australia.</nlm:affiliation>
</affiliation>
</author>
<author>
<name sortKey="Bojcin, Snezana" sort="Bojcin, Snezana" uniqKey="Bojcin S" first="Snezana" last="Bojcin">Snezana Bojcin</name>
<affiliation>
<nlm:affiliation>Cystic Fibrosis Europe, Denmark; Macedonian Cystic Fibrosis Association, Misko Mihajlovski 15, 1000 Skopje, Republic of Macedonia.</nlm:affiliation>
</affiliation>
</author>
<author>
<name sortKey="Bryon, Mandy" sort="Bryon, Mandy" uniqKey="Bryon M" first="Mandy" last="Bryon">Mandy Bryon</name>
<affiliation>
<nlm:affiliation>Cystic Fibrosis Unit, Great Ormond Street Hospital for Children, London, UK.</nlm:affiliation>
</affiliation>
</author>
<author>
<name sortKey="Duff, Alistair" sort="Duff, Alistair" uniqKey="Duff A" first="Alistair" last="Duff">Alistair Duff</name>
<affiliation>
<nlm:affiliation>Regional Paediatric CF Unit, The Leeds Children's Hospital, Belmont Grove, Leeds LS2 9NS, UK.</nlm:affiliation>
</affiliation>
</author>
<author>
<name sortKey="Flume, Patrick" sort="Flume, Patrick" uniqKey="Flume P" first="Patrick" last="Flume">Patrick Flume</name>
<affiliation>
<nlm:affiliation>Medical University of South Carolina, Charleston, SC, USA.</nlm:affiliation>
</affiliation>
</author>
<author>
<name sortKey="Kashirskaya, Nataliya" sort="Kashirskaya, Nataliya" uniqKey="Kashirskaya N" first="Nataliya" last="Kashirskaya">Nataliya Kashirskaya</name>
<affiliation>
<nlm:affiliation>Department of Cystic Fibrosis, Research Centre for Medical Genetics, RAMS, Moscow, Russia.</nlm:affiliation>
</affiliation>
</author>
<author>
<name sortKey="Munck, Anne" sort="Munck, Anne" uniqKey="Munck A" first="Anne" last="Munck">Anne Munck</name>
<affiliation>
<nlm:affiliation>Assistance publique-Hôpitaux de Paris, Hôpital Robert Debré, Paediatric Gastroenterology and Respiratory Department, CF Centre, Université Paris 7, 75019, Paris, France; Association française pour le dépistage et la prévention des handicaps de l'enfant (AFDPHE), France.</nlm:affiliation>
</affiliation>
</author>
<author>
<name sortKey="Ratjen, Felix" sort="Ratjen, Felix" uniqKey="Ratjen F" first="Felix" last="Ratjen">Felix Ratjen</name>
<affiliation>
<nlm:affiliation>Division of Respiratory Medicine, Department of Paediatrics, The Hospital for Sick Children, University of Toronto, Canada; Physiology and Experimental Medicine, Research Institute, The Hospital for Sick Children, University of Toronto, Canada.</nlm:affiliation>
</affiliation>
</author>
<author>
<name sortKey="Schwarzenberg, Sarah Jane" sort="Schwarzenberg, Sarah Jane" uniqKey="Schwarzenberg S" first="Sarah Jane" last="Schwarzenberg">Sarah Jane Schwarzenberg</name>
<affiliation>
<nlm:affiliation>Pediatric Gastroenterology, Hepatology, and Nutrition, University of Minnesota, Amplatz Children's Hospital, Minneapolis, MN, USA.</nlm:affiliation>
</affiliation>
</author>
<author>
<name sortKey="Sermet Gaudelus, Isabelle" sort="Sermet Gaudelus, Isabelle" uniqKey="Sermet Gaudelus I" first="Isabelle" last="Sermet-Gaudelus">Isabelle Sermet-Gaudelus</name>
<affiliation>
<nlm:affiliation>INSERM U1151, France; Université René Descartes Paris 5, France; Unité fonctionnelle de Mucoviscidose, Service de Pneumo-Pédiatrie, Hôpital Necker-Enfants Malades, 149 rue de Sèvres, 75743, Paris, France.</nlm:affiliation>
</affiliation>
</author>
<author>
<name sortKey="Southern, Kevin W" sort="Southern, Kevin W" uniqKey="Southern K" first="Kevin W" last="Southern">Kevin W. Southern</name>
<affiliation>
<nlm:affiliation>Department of Women's and Children's Health, University of Liverpool, UK.</nlm:affiliation>
</affiliation>
</author>
<author>
<name sortKey="Taccetti, Giovanni" sort="Taccetti, Giovanni" uniqKey="Taccetti G" first="Giovanni" last="Taccetti">Giovanni Taccetti</name>
<affiliation>
<nlm:affiliation>Institute of Child Health, Alder Hey Children's Hospital, Eaton Road, Liverpool L12 2AP, UK; Cystic Fibrosis Centre, Department of Paediatric Medicine, Anna Meyer Children's University Hospital, Florence, Italy.</nlm:affiliation>
</affiliation>
</author>
<author>
<name sortKey="Ullrich, Gerald" sort="Ullrich, Gerald" uniqKey="Ullrich G" first="Gerald" last="Ullrich">Gerald Ullrich</name>
<affiliation>
<nlm:affiliation>Reutzstr. 1, 19055, Schwerin, Germany.</nlm:affiliation>
</affiliation>
</author>
<author>
<name sortKey="Wolfe, Sue" sort="Wolfe, Sue" uniqKey="Wolfe S" first="Sue" last="Wolfe">Sue Wolfe</name>
<affiliation>
<nlm:affiliation>Paediatric Cystic Fibrosis, Regional Paediatric CF Unit, The Leeds Children's Hospital, Belmont Grove, Leeds LS2 9NS, UK.</nlm:affiliation>
</affiliation>
</author>
</titleStmt>
<publicationStmt>
<idno type="wicri:source">PubMed</idno>
<date when="2014">2014</date>
<idno type="RBID">pubmed:24856775</idno>
<idno type="pmid">24856775</idno>
<idno type="doi">10.1016/j.jcf.2014.03.010</idno>
<idno type="wicri:Area/PubMed/Corpus">003796</idno>
<idno type="wicri:explorRef" wicri:stream="PubMed" wicri:step="Corpus" wicri:corpus="PubMed">003796</idno>
</publicationStmt>
<sourceDesc>
<biblStruct>
<analytic>
<title xml:lang="en">European Cystic Fibrosis Society Standards of Care: Best Practice guidelines.</title>
<author>
<name sortKey="Smyth, Alan R" sort="Smyth, Alan R" uniqKey="Smyth A" first="Alan R" last="Smyth">Alan R. Smyth</name>
<affiliation>
<nlm:affiliation>Division of Child Health, Obstetrics & Gynaecology (COG), School of Medicine, University of Nottingham, UK. Electronic address: Alan.Smyth@nottingham.ac.uk.</nlm:affiliation>
</affiliation>
</author>
<author>
<name sortKey="Bell, Scott C" sort="Bell, Scott C" uniqKey="Bell S" first="Scott C" last="Bell">Scott C. Bell</name>
<affiliation>
<nlm:affiliation>Department of Thoracic Medicine, The Prince Charles Hospital, Australia; Queensland Children's Medical Research Institute, Brisbane, Australia.</nlm:affiliation>
</affiliation>
</author>
<author>
<name sortKey="Bojcin, Snezana" sort="Bojcin, Snezana" uniqKey="Bojcin S" first="Snezana" last="Bojcin">Snezana Bojcin</name>
<affiliation>
<nlm:affiliation>Cystic Fibrosis Europe, Denmark; Macedonian Cystic Fibrosis Association, Misko Mihajlovski 15, 1000 Skopje, Republic of Macedonia.</nlm:affiliation>
</affiliation>
</author>
<author>
<name sortKey="Bryon, Mandy" sort="Bryon, Mandy" uniqKey="Bryon M" first="Mandy" last="Bryon">Mandy Bryon</name>
<affiliation>
<nlm:affiliation>Cystic Fibrosis Unit, Great Ormond Street Hospital for Children, London, UK.</nlm:affiliation>
</affiliation>
</author>
<author>
<name sortKey="Duff, Alistair" sort="Duff, Alistair" uniqKey="Duff A" first="Alistair" last="Duff">Alistair Duff</name>
<affiliation>
<nlm:affiliation>Regional Paediatric CF Unit, The Leeds Children's Hospital, Belmont Grove, Leeds LS2 9NS, UK.</nlm:affiliation>
</affiliation>
</author>
<author>
<name sortKey="Flume, Patrick" sort="Flume, Patrick" uniqKey="Flume P" first="Patrick" last="Flume">Patrick Flume</name>
<affiliation>
<nlm:affiliation>Medical University of South Carolina, Charleston, SC, USA.</nlm:affiliation>
</affiliation>
</author>
<author>
<name sortKey="Kashirskaya, Nataliya" sort="Kashirskaya, Nataliya" uniqKey="Kashirskaya N" first="Nataliya" last="Kashirskaya">Nataliya Kashirskaya</name>
<affiliation>
<nlm:affiliation>Department of Cystic Fibrosis, Research Centre for Medical Genetics, RAMS, Moscow, Russia.</nlm:affiliation>
</affiliation>
</author>
<author>
<name sortKey="Munck, Anne" sort="Munck, Anne" uniqKey="Munck A" first="Anne" last="Munck">Anne Munck</name>
<affiliation>
<nlm:affiliation>Assistance publique-Hôpitaux de Paris, Hôpital Robert Debré, Paediatric Gastroenterology and Respiratory Department, CF Centre, Université Paris 7, 75019, Paris, France; Association française pour le dépistage et la prévention des handicaps de l'enfant (AFDPHE), France.</nlm:affiliation>
</affiliation>
</author>
<author>
<name sortKey="Ratjen, Felix" sort="Ratjen, Felix" uniqKey="Ratjen F" first="Felix" last="Ratjen">Felix Ratjen</name>
<affiliation>
<nlm:affiliation>Division of Respiratory Medicine, Department of Paediatrics, The Hospital for Sick Children, University of Toronto, Canada; Physiology and Experimental Medicine, Research Institute, The Hospital for Sick Children, University of Toronto, Canada.</nlm:affiliation>
</affiliation>
</author>
<author>
<name sortKey="Schwarzenberg, Sarah Jane" sort="Schwarzenberg, Sarah Jane" uniqKey="Schwarzenberg S" first="Sarah Jane" last="Schwarzenberg">Sarah Jane Schwarzenberg</name>
<affiliation>
<nlm:affiliation>Pediatric Gastroenterology, Hepatology, and Nutrition, University of Minnesota, Amplatz Children's Hospital, Minneapolis, MN, USA.</nlm:affiliation>
</affiliation>
</author>
<author>
<name sortKey="Sermet Gaudelus, Isabelle" sort="Sermet Gaudelus, Isabelle" uniqKey="Sermet Gaudelus I" first="Isabelle" last="Sermet-Gaudelus">Isabelle Sermet-Gaudelus</name>
<affiliation>
<nlm:affiliation>INSERM U1151, France; Université René Descartes Paris 5, France; Unité fonctionnelle de Mucoviscidose, Service de Pneumo-Pédiatrie, Hôpital Necker-Enfants Malades, 149 rue de Sèvres, 75743, Paris, France.</nlm:affiliation>
</affiliation>
</author>
<author>
<name sortKey="Southern, Kevin W" sort="Southern, Kevin W" uniqKey="Southern K" first="Kevin W" last="Southern">Kevin W. Southern</name>
<affiliation>
<nlm:affiliation>Department of Women's and Children's Health, University of Liverpool, UK.</nlm:affiliation>
</affiliation>
</author>
<author>
<name sortKey="Taccetti, Giovanni" sort="Taccetti, Giovanni" uniqKey="Taccetti G" first="Giovanni" last="Taccetti">Giovanni Taccetti</name>
<affiliation>
<nlm:affiliation>Institute of Child Health, Alder Hey Children's Hospital, Eaton Road, Liverpool L12 2AP, UK; Cystic Fibrosis Centre, Department of Paediatric Medicine, Anna Meyer Children's University Hospital, Florence, Italy.</nlm:affiliation>
</affiliation>
</author>
<author>
<name sortKey="Ullrich, Gerald" sort="Ullrich, Gerald" uniqKey="Ullrich G" first="Gerald" last="Ullrich">Gerald Ullrich</name>
<affiliation>
<nlm:affiliation>Reutzstr. 1, 19055, Schwerin, Germany.</nlm:affiliation>
</affiliation>
</author>
<author>
<name sortKey="Wolfe, Sue" sort="Wolfe, Sue" uniqKey="Wolfe S" first="Sue" last="Wolfe">Sue Wolfe</name>
<affiliation>
<nlm:affiliation>Paediatric Cystic Fibrosis, Regional Paediatric CF Unit, The Leeds Children's Hospital, Belmont Grove, Leeds LS2 9NS, UK.</nlm:affiliation>
</affiliation>
</author>
</analytic>
<series>
<title level="j">Journal of cystic fibrosis : official journal of the European Cystic Fibrosis Society</title>
<idno type="eISSN">1873-5010</idno>
<imprint>
<date when="2014" type="published">2014</date>
</imprint>
</series>
</biblStruct>
</sourceDesc>
</fileDesc>
<profileDesc>
<textClass>
<keywords scheme="KwdEn" xml:lang="en">
<term>Adolescent</term>
<term>Adult</term>
<term>Child</term>
<term>Child, Preschool</term>
<term>Cystic Fibrosis (complications)</term>
<term>Cystic Fibrosis (diagnosis)</term>
<term>Cystic Fibrosis (therapy)</term>
<term>Europe</term>
<term>Female</term>
<term>Health Services Accessibility (organization & administration)</term>
<term>Humans</term>
<term>Infant</term>
<term>Infant, Newborn</term>
<term>Lung Transplantation</term>
<term>Male</term>
<term>Social Support</term>
<term>Standard of Care (organization & administration)</term>
<term>Terminal Care (organization & administration)</term>
<term>Young Adult</term>
</keywords>
<keywords scheme="MESH" type="geographic" xml:lang="en">
<term>Europe</term>
</keywords>
<keywords scheme="MESH" qualifier="complications" xml:lang="en">
<term>Cystic Fibrosis</term>
</keywords>
<keywords scheme="MESH" qualifier="diagnosis" xml:lang="en">
<term>Cystic Fibrosis</term>
</keywords>
<keywords scheme="MESH" qualifier="organization & administration" xml:lang="en">
<term>Health Services Accessibility</term>
<term>Standard of Care</term>
<term>Terminal Care</term>
</keywords>
<keywords scheme="MESH" qualifier="therapy" xml:lang="en">
<term>Cystic Fibrosis</term>
</keywords>
<keywords scheme="MESH" xml:lang="en">
<term>Adolescent</term>
<term>Adult</term>
<term>Child</term>
<term>Child, Preschool</term>
<term>Female</term>
<term>Humans</term>
<term>Infant</term>
<term>Infant, Newborn</term>
<term>Lung Transplantation</term>
<term>Male</term>
<term>Social Support</term>
<term>Young Adult</term>
</keywords>
</textClass>
</profileDesc>
</teiHeader>
<front>
<div type="abstract" xml:lang="en">Specialised CF care has led to a dramatic improvement in survival in CF: in the last four decades, well above what was seen in the general population over the same period. With the implementation of newborn screening in many European countries, centres are increasingly caring for a cohort of patients who have minimal lung disease at diagnosis and therefore have the potential to enjoy an excellent quality of life and an even greater life expectancy than was seen previously. To allow high quality care to be delivered throughout Europe, a landmark document was published in 2005 that sets standards of care. Our current document builds on this work, setting standards for best practice in key aspects of CF care. The objective of our document is to give a broad overview of the standards expected for screening, diagnosis, pre-emptive treatment of lung disease, nutrition, complications, transplant/end of life care and psychological support. For comprehensive details of clinical care of CF, references to the most up to date European Consensus Statements, Guidelines or Position Papers are provided in Table 1. We hope that this best practice document will be useful to clinical teams both in countries where CF care is developing and those with established CF centres.</div>
</front>
</TEI>
<pubmed>
<MedlineCitation Status="MEDLINE" Owner="NLM">
<PMID Version="1">24856775</PMID>
<DateCreated>
<Year>2014</Year>
<Month>05</Month>
<Day>26</Day>
</DateCreated>
<DateCompleted>
<Year>2015</Year>
<Month>01</Month>
<Day>15</Day>
</DateCompleted>
<DateRevised>
<Year>2017</Year>
<Month>11</Month>
<Day>10</Day>
</DateRevised>
<Article PubModel="Print">
<Journal>
<ISSN IssnType="Electronic">1873-5010</ISSN>
<JournalIssue CitedMedium="Internet">
<Volume>13 Suppl 1</Volume>
<PubDate>
<Year>2014</Year>
<Month>May</Month>
</PubDate>
</JournalIssue>
<Title>Journal of cystic fibrosis : official journal of the European Cystic Fibrosis Society</Title>
<ISOAbbreviation>J. Cyst. Fibros.</ISOAbbreviation>
</Journal>
<ArticleTitle>European Cystic Fibrosis Society Standards of Care: Best Practice guidelines.</ArticleTitle>
<Pagination>
<MedlinePgn>S23-42</MedlinePgn>
</Pagination>
<ELocationID EIdType="doi" ValidYN="Y">10.1016/j.jcf.2014.03.010</ELocationID>
<ELocationID EIdType="pii" ValidYN="Y">S1569-1993(14)00085-X</ELocationID>
<Abstract>
<AbstractText>Specialised CF care has led to a dramatic improvement in survival in CF: in the last four decades, well above what was seen in the general population over the same period. With the implementation of newborn screening in many European countries, centres are increasingly caring for a cohort of patients who have minimal lung disease at diagnosis and therefore have the potential to enjoy an excellent quality of life and an even greater life expectancy than was seen previously. To allow high quality care to be delivered throughout Europe, a landmark document was published in 2005 that sets standards of care. Our current document builds on this work, setting standards for best practice in key aspects of CF care. The objective of our document is to give a broad overview of the standards expected for screening, diagnosis, pre-emptive treatment of lung disease, nutrition, complications, transplant/end of life care and psychological support. For comprehensive details of clinical care of CF, references to the most up to date European Consensus Statements, Guidelines or Position Papers are provided in Table 1. We hope that this best practice document will be useful to clinical teams both in countries where CF care is developing and those with established CF centres.</AbstractText>
<CopyrightInformation>Copyright © 2014 European Cystic Fibrosis Society. Published by Elsevier B.V. All rights reserved.</CopyrightInformation>
</Abstract>
<AuthorList CompleteYN="Y">
<Author ValidYN="Y">
<LastName>Smyth</LastName>
<ForeName>Alan R</ForeName>
<Initials>AR</Initials>
<AffiliationInfo>
<Affiliation>Division of Child Health, Obstetrics & Gynaecology (COG), School of Medicine, University of Nottingham, UK. Electronic address: Alan.Smyth@nottingham.ac.uk.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y">
<LastName>Bell</LastName>
<ForeName>Scott C</ForeName>
<Initials>SC</Initials>
<AffiliationInfo>
<Affiliation>Department of Thoracic Medicine, The Prince Charles Hospital, Australia; Queensland Children's Medical Research Institute, Brisbane, Australia.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y">
<LastName>Bojcin</LastName>
<ForeName>Snezana</ForeName>
<Initials>S</Initials>
<AffiliationInfo>
<Affiliation>Cystic Fibrosis Europe, Denmark; Macedonian Cystic Fibrosis Association, Misko Mihajlovski 15, 1000 Skopje, Republic of Macedonia.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y">
<LastName>Bryon</LastName>
<ForeName>Mandy</ForeName>
<Initials>M</Initials>
<AffiliationInfo>
<Affiliation>Cystic Fibrosis Unit, Great Ormond Street Hospital for Children, London, UK.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y">
<LastName>Duff</LastName>
<ForeName>Alistair</ForeName>
<Initials>A</Initials>
<AffiliationInfo>
<Affiliation>Regional Paediatric CF Unit, The Leeds Children's Hospital, Belmont Grove, Leeds LS2 9NS, UK.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y">
<LastName>Flume</LastName>
<ForeName>Patrick</ForeName>
<Initials>P</Initials>
<AffiliationInfo>
<Affiliation>Medical University of South Carolina, Charleston, SC, USA.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y">
<LastName>Kashirskaya</LastName>
<ForeName>Nataliya</ForeName>
<Initials>N</Initials>
<AffiliationInfo>
<Affiliation>Department of Cystic Fibrosis, Research Centre for Medical Genetics, RAMS, Moscow, Russia.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y">
<LastName>Munck</LastName>
<ForeName>Anne</ForeName>
<Initials>A</Initials>
<AffiliationInfo>
<Affiliation>Assistance publique-Hôpitaux de Paris, Hôpital Robert Debré, Paediatric Gastroenterology and Respiratory Department, CF Centre, Université Paris 7, 75019, Paris, France; Association française pour le dépistage et la prévention des handicaps de l'enfant (AFDPHE), France.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y">
<LastName>Ratjen</LastName>
<ForeName>Felix</ForeName>
<Initials>F</Initials>
<AffiliationInfo>
<Affiliation>Division of Respiratory Medicine, Department of Paediatrics, The Hospital for Sick Children, University of Toronto, Canada; Physiology and Experimental Medicine, Research Institute, The Hospital for Sick Children, University of Toronto, Canada.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y">
<LastName>Schwarzenberg</LastName>
<ForeName>Sarah Jane</ForeName>
<Initials>SJ</Initials>
<AffiliationInfo>
<Affiliation>Pediatric Gastroenterology, Hepatology, and Nutrition, University of Minnesota, Amplatz Children's Hospital, Minneapolis, MN, USA.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y">
<LastName>Sermet-Gaudelus</LastName>
<ForeName>Isabelle</ForeName>
<Initials>I</Initials>
<AffiliationInfo>
<Affiliation>INSERM U1151, France; Université René Descartes Paris 5, France; Unité fonctionnelle de Mucoviscidose, Service de Pneumo-Pédiatrie, Hôpital Necker-Enfants Malades, 149 rue de Sèvres, 75743, Paris, France.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y">
<LastName>Southern</LastName>
<ForeName>Kevin W</ForeName>
<Initials>KW</Initials>
<AffiliationInfo>
<Affiliation>Department of Women's and Children's Health, University of Liverpool, UK.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y">
<LastName>Taccetti</LastName>
<ForeName>Giovanni</ForeName>
<Initials>G</Initials>
<AffiliationInfo>
<Affiliation>Institute of Child Health, Alder Hey Children's Hospital, Eaton Road, Liverpool L12 2AP, UK; Cystic Fibrosis Centre, Department of Paediatric Medicine, Anna Meyer Children's University Hospital, Florence, Italy.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y">
<LastName>Ullrich</LastName>
<ForeName>Gerald</ForeName>
<Initials>G</Initials>
<AffiliationInfo>
<Affiliation>Reutzstr. 1, 19055, Schwerin, Germany.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y">
<LastName>Wolfe</LastName>
<ForeName>Sue</ForeName>
<Initials>S</Initials>
<AffiliationInfo>
<Affiliation>Paediatric Cystic Fibrosis, Regional Paediatric CF Unit, The Leeds Children's Hospital, Belmont Grove, Leeds LS2 9NS, UK.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y">
<CollectiveName>European Cystic Fibrosis Society</CollectiveName>
</Author>
</AuthorList>
<Language>eng</Language>
<GrantList CompleteYN="Y">
<Grant>
<GrantID>PB-PG-1207-15025</GrantID>
<Agency>Department of Health</Agency>
<Country>United Kingdom</Country>
</Grant>
</GrantList>
<PublicationTypeList>
<PublicationType UI="D016428">Journal Article</PublicationType>
<PublicationType UI="D017065">Practice Guideline</PublicationType>
<PublicationType UI="D016454">Review</PublicationType>
</PublicationTypeList>
</Article>
<MedlineJournalInfo>
<Country>Netherlands</Country>
<MedlineTA>J Cyst Fibros</MedlineTA>
<NlmUniqueID>101128966</NlmUniqueID>
<ISSNLinking>1569-1993</ISSNLinking>
</MedlineJournalInfo>
<CitationSubset>IM</CitationSubset>
<MeshHeadingList>
<MeshHeading>
<DescriptorName UI="D000293" MajorTopicYN="N">Adolescent</DescriptorName>
</MeshHeading>
<MeshHeading>
<DescriptorName UI="D000328" MajorTopicYN="N">Adult</DescriptorName>
</MeshHeading>
<MeshHeading>
<DescriptorName UI="D002648" MajorTopicYN="N">Child</DescriptorName>
</MeshHeading>
<MeshHeading>
<DescriptorName UI="D002675" MajorTopicYN="N">Child, Preschool</DescriptorName>
</MeshHeading>
<MeshHeading>
<DescriptorName UI="D003550" MajorTopicYN="N">Cystic Fibrosis</DescriptorName>
<QualifierName UI="Q000150" MajorTopicYN="N">complications</QualifierName>
<QualifierName UI="Q000175" MajorTopicYN="Y">diagnosis</QualifierName>
<QualifierName UI="Q000628" MajorTopicYN="Y">therapy</QualifierName>
</MeshHeading>
<MeshHeading>
<DescriptorName UI="D005060" MajorTopicYN="N" Type="Geographic">Europe</DescriptorName>
</MeshHeading>
<MeshHeading>
<DescriptorName UI="D005260" MajorTopicYN="N">Female</DescriptorName>
</MeshHeading>
<MeshHeading>
<DescriptorName UI="D006297" MajorTopicYN="N">Health Services Accessibility</DescriptorName>
<QualifierName UI="Q000458" MajorTopicYN="Y">organization & administration</QualifierName>
</MeshHeading>
<MeshHeading>
<DescriptorName UI="D006801" MajorTopicYN="N">Humans</DescriptorName>
</MeshHeading>
<MeshHeading>
<DescriptorName UI="D007223" MajorTopicYN="N">Infant</DescriptorName>
</MeshHeading>
<MeshHeading>
<DescriptorName UI="D007231" MajorTopicYN="N">Infant, Newborn</DescriptorName>
</MeshHeading>
<MeshHeading>
<DescriptorName UI="D016040" MajorTopicYN="N">Lung Transplantation</DescriptorName>
</MeshHeading>
<MeshHeading>
<DescriptorName UI="D008297" MajorTopicYN="N">Male</DescriptorName>
</MeshHeading>
<MeshHeading>
<DescriptorName UI="D012944" MajorTopicYN="N">Social Support</DescriptorName>
</MeshHeading>
<MeshHeading>
<DescriptorName UI="D059039" MajorTopicYN="N">Standard of Care</DescriptorName>
<QualifierName UI="Q000458" MajorTopicYN="Y">organization & administration</QualifierName>
</MeshHeading>
<MeshHeading>
<DescriptorName UI="D013727" MajorTopicYN="N">Terminal Care</DescriptorName>
<QualifierName UI="Q000458" MajorTopicYN="N">organization & administration</QualifierName>
</MeshHeading>
<MeshHeading>
<DescriptorName UI="D055815" MajorTopicYN="N">Young Adult</DescriptorName>
</MeshHeading>
</MeshHeadingList>
<KeywordList Owner="NOTNLM">
<Keyword MajorTopicYN="N">Cystic fibrosis</Keyword>
<Keyword MajorTopicYN="N">Multidisciplinary management</Keyword>
<Keyword MajorTopicYN="N">Standards of care</Keyword>
</KeywordList>
</MedlineCitation>
<PubmedData>
<History>
<PubMedPubDate PubStatus="entrez">
<Year>2014</Year>
<Month>5</Month>
<Day>27</Day>
<Hour>6</Hour>
<Minute>0</Minute>
</PubMedPubDate>
<PubMedPubDate PubStatus="pubmed">
<Year>2014</Year>
<Month>5</Month>
<Day>27</Day>
<Hour>6</Hour>
<Minute>0</Minute>
</PubMedPubDate>
<PubMedPubDate PubStatus="medline">
<Year>2015</Year>
<Month>1</Month>
<Day>16</Day>
<Hour>6</Hour>
<Minute>0</Minute>
</PubMedPubDate>
</History>
<PublicationStatus>ppublish</PublicationStatus>
<ArticleIdList>
<ArticleId IdType="pubmed">24856775</ArticleId>
<ArticleId IdType="pii">S1569-1993(14)00085-X</ArticleId>
<ArticleId IdType="doi">10.1016/j.jcf.2014.03.010</ArticleId>
</ArticleIdList>
</PubmedData>
</pubmed>
</record>

Pour manipuler ce document sous Unix (Dilib)

EXPLOR_STEP=$WICRI_ROOT/Wicri/Asie/explor/AustralieFrV1/Data/PubMed/Corpus
HfdSelect -h $EXPLOR_STEP/biblio.hfd -nk 003796 | SxmlIndent | more

Ou

HfdSelect -h $EXPLOR_AREA/Data/PubMed/Corpus/biblio.hfd -nk 003796 | SxmlIndent | more

Pour mettre un lien sur cette page dans le réseau Wicri

{{Explor lien
   |wiki=    Wicri/Asie
   |area=    AustralieFrV1
   |flux=    PubMed
   |étape=   Corpus
   |type=    RBID
   |clé=     pubmed:24856775
   |texte=   European Cystic Fibrosis Society Standards of Care: Best Practice guidelines.
}}

Pour générer des pages wiki

HfdIndexSelect -h $EXPLOR_AREA/Data/PubMed/Corpus/RBID.i   -Sk "pubmed:24856775" \
       | HfdSelect -Kh $EXPLOR_AREA/Data/PubMed/Corpus/biblio.hfd   \
       | NlmPubMed2Wicri -a AustralieFrV1 

Wicri

This area was generated with Dilib version V0.6.33.
Data generation: Tue Dec 5 10:43:12 2017. Site generation: Tue Mar 5 14:07:20 2024