Updating the OMERACT filter: implications for patient-reported outcomes.
Identifieur interne : 003786 ( PubMed/Corpus ); précédent : 003785; suivant : 003787Updating the OMERACT filter: implications for patient-reported outcomes.
Auteurs : John R. Kirwan ; Susan J. Bartlett ; Dorcas E. Beaton ; Maarten Boers ; Ailsa Bosworth ; Peter M. Brooks ; Ernest Choy ; Maarten De Wit ; Francis Guillemin ; Sarah Hewlett ; Tore K. Kvien ; Robert B. Landewé ; Amye L. Leong ; Anne Lyddiatt ; Lyn March ; James May ; Pamela Lesley Montie ; Enkeleida Nikaï ; Pam Richards ; Marieke M J H. Voshaar ; Wilma Smeets ; Vibeke Strand ; Peter Tugwell ; Laure GossecSource :
- The Journal of rheumatology [ 0315-162X ] ; 2014.
English descriptors
- KwdEn :
- Humans, Outcome and Process Assessment (Health Care) (standards), Outcome and Process Assessment (Health Care) (trends), Patient Participation, Randomized Controlled Trials as Topic (standards), Reproducibility of Results, Rheumatic Diseases (therapy), Rheumatology (standards), Self Report (standards).
- MESH :
Abstract
At a previous Outcome Measures in Rheumatology (OMERACT) meeting, participants reflected on the underlying methods of patient-reported outcome (PRO) instrument development. The participants requested proposals for more explicit instrument development protocols that would contribute to an enhanced version of the "Truth" statement in the OMERACT Filter, a widely used guide for outcome validation. In the present OMERACT session, we explored to what extent these new Filter 2.0 proposals were practicable, feasible, and already being applied.
DOI: 10.3899/jrheum.131312
PubMed: 24584919
Links to Exploration step
pubmed:24584919Le document en format XML
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<affiliation><nlm:affiliation>From the University of Bristol, Academic Rheumatology Unit, and the University of the West of England, Academic Rheumatology Unit, Bristol Royal Infirmary, Bristol, UK; Department of Medicine, McGill University, Montreal, Quebec, Canada; Division of Rheumatology, Johns Hopkins University, Baltimore, Maryland, USA; Department of Occupational Sciences and Occupational Therapy, Institute for Health Policy Management and Evaluation, University of Toronto, Toronto, Ontario, Canada; Departments of Epidemiology and Biostatistics, and Rheumatology, and Department of Medical Humanities, VU University Medical Center, Amsterdam, The Netherlands; National Rheumatoid Arthritis Society, Maidenhead, Berkshire, UK; Faculty of Health Sciences, University of Queensland, Royal Brisbane and Women's Hospital, Herston, Brisbane, Australia; Section of Rheumatology, Cardiff University School of Medicine, Cardiff, UK; Université de Lorraine, Université Paris Descartes, Paris, France; Department of Rheumatology, Diakonhjemmet Hospital, Oslo, Norway; Department of Clinical Immunology and Rheumatology, Academic Medical Center, University of Amsterdam and Atrium Medical Center Heerlen, Amsterdam, The Netherlands; Healthy Motivation, Bone and Joint Decade, Santa Barbara, California, USA; Cochrane Musculoskeletal Group, Institute of Population Health, Ottawa, Ontario, Canada; Department of Rheumatology, Royal North Shore Hospital, St. Leonards, New South Wales, Australia; Consumer Advisory Board, Arthritis Research Centre of Canada, Richmond, British Columbia, Canada; UCB Pharma S.A., Brussels, Belgium; Division of Immunology/Rheumatology, Stanford University School of Medicine, Palo Alto, California, USA; Department of Medicine, University of Ottawa, Ottawa, Ontario, Canada; Université Pierre et Marie Curie (UPMC) - Paris 6, GRC-UMPC 08 (EEMOIS); AP-HP Pitié Salpêtrière Hospital, Department of Rheumatology, Paris, France.</nlm:affiliation>
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<author><name sortKey="Voshaar, Marieke M J H" sort="Voshaar, Marieke M J H" uniqKey="Voshaar M" first="Marieke M J H" last="Voshaar">Marieke M J H. Voshaar</name>
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<affiliation><nlm:affiliation>From the University of Bristol, Academic Rheumatology Unit, and the University of the West of England, Academic Rheumatology Unit, Bristol Royal Infirmary, Bristol, UK; Department of Medicine, McGill University, Montreal, Quebec, Canada; Division of Rheumatology, Johns Hopkins University, Baltimore, Maryland, USA; Department of Occupational Sciences and Occupational Therapy, Institute for Health Policy Management and Evaluation, University of Toronto, Toronto, Ontario, Canada; Departments of Epidemiology and Biostatistics, and Rheumatology, and Department of Medical Humanities, VU University Medical Center, Amsterdam, The Netherlands; National Rheumatoid Arthritis Society, Maidenhead, Berkshire, UK; Faculty of Health Sciences, University of Queensland, Royal Brisbane and Women's Hospital, Herston, Brisbane, Australia; Section of Rheumatology, Cardiff University School of Medicine, Cardiff, UK; Université de Lorraine, Université Paris Descartes, Paris, France; Department of Rheumatology, Diakonhjemmet Hospital, Oslo, Norway; Department of Clinical Immunology and Rheumatology, Academic Medical Center, University of Amsterdam and Atrium Medical Center Heerlen, Amsterdam, The Netherlands; Healthy Motivation, Bone and Joint Decade, Santa Barbara, California, USA; Cochrane Musculoskeletal Group, Institute of Population Health, Ottawa, Ontario, Canada; Department of Rheumatology, Royal North Shore Hospital, St. Leonards, New South Wales, Australia; Consumer Advisory Board, Arthritis Research Centre of Canada, Richmond, British Columbia, Canada; UCB Pharma S.A., Brussels, Belgium; Division of Immunology/Rheumatology, Stanford University School of Medicine, Palo Alto, California, USA; Department of Medicine, University of Ottawa, Ottawa, Ontario, Canada; Université Pierre et Marie Curie (UPMC) - Paris 6, GRC-UMPC 08 (EEMOIS); AP-HP Pitié Salpêtrière Hospital, Department of Rheumatology, Paris, France.</nlm:affiliation>
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<author><name sortKey="Brooks, Peter M" sort="Brooks, Peter M" uniqKey="Brooks P" first="Peter M" last="Brooks">Peter M. Brooks</name>
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<author><name sortKey="Choy, Ernest" sort="Choy, Ernest" uniqKey="Choy E" first="Ernest" last="Choy">Ernest Choy</name>
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<author><name sortKey="De Wit, Maarten" sort="De Wit, Maarten" uniqKey="De Wit M" first="Maarten" last="De Wit">Maarten De Wit</name>
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<author><name sortKey="Guillemin, Francis" sort="Guillemin, Francis" uniqKey="Guillemin F" first="Francis" last="Guillemin">Francis Guillemin</name>
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<author><name sortKey="Hewlett, Sarah" sort="Hewlett, Sarah" uniqKey="Hewlett S" first="Sarah" last="Hewlett">Sarah Hewlett</name>
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<author><name sortKey="Kvien, Tore K" sort="Kvien, Tore K" uniqKey="Kvien T" first="Tore K" last="Kvien">Tore K. Kvien</name>
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<author><name sortKey="Landewe, Robert B" sort="Landewe, Robert B" uniqKey="Landewe R" first="Robert B" last="Landewé">Robert B. Landewé</name>
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<author><name sortKey="Leong, Amye L" sort="Leong, Amye L" uniqKey="Leong A" first="Amye L" last="Leong">Amye L. Leong</name>
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<author><name sortKey="Lyddiatt, Anne" sort="Lyddiatt, Anne" uniqKey="Lyddiatt A" first="Anne" last="Lyddiatt">Anne Lyddiatt</name>
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<author><name sortKey="March, Lyn" sort="March, Lyn" uniqKey="March L" first="Lyn" last="March">Lyn March</name>
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<author><name sortKey="May, James" sort="May, James" uniqKey="May J" first="James" last="May">James May</name>
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<author><name sortKey="Montie, Pamela Lesley" sort="Montie, Pamela Lesley" uniqKey="Montie P" first="Pamela Lesley" last="Montie">Pamela Lesley Montie</name>
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<author><name sortKey="Nikai, Enkeleida" sort="Nikai, Enkeleida" uniqKey="Nikai E" first="Enkeleida" last="Nikaï">Enkeleida Nikaï</name>
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<author><name sortKey="Richards, Pam" sort="Richards, Pam" uniqKey="Richards P" first="Pam" last="Richards">Pam Richards</name>
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<author><name sortKey="Voshaar, Marieke M J H" sort="Voshaar, Marieke M J H" uniqKey="Voshaar M" first="Marieke M J H" last="Voshaar">Marieke M J H. Voshaar</name>
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<author><name sortKey="Smeets, Wilma" sort="Smeets, Wilma" uniqKey="Smeets W" first="Wilma" last="Smeets">Wilma Smeets</name>
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<author><name sortKey="Strand, Vibeke" sort="Strand, Vibeke" uniqKey="Strand V" first="Vibeke" last="Strand">Vibeke Strand</name>
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<author><name sortKey="Tugwell, Peter" sort="Tugwell, Peter" uniqKey="Tugwell P" first="Peter" last="Tugwell">Peter Tugwell</name>
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<author><name sortKey="Gossec, Laure" sort="Gossec, Laure" uniqKey="Gossec L" first="Laure" last="Gossec">Laure Gossec</name>
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<series><title level="j">The Journal of rheumatology</title>
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<term>Patient Participation</term>
<term>Randomized Controlled Trials as Topic (standards)</term>
<term>Reproducibility of Results</term>
<term>Rheumatic Diseases (therapy)</term>
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<term>Randomized Controlled Trials as Topic</term>
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<term>Self Report</term>
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</keywords>
<keywords scheme="MESH" qualifier="trends" xml:lang="en"><term>Outcome and Process Assessment (Health Care)</term>
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<keywords scheme="MESH" xml:lang="en"><term>Humans</term>
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<front><div type="abstract" xml:lang="en">At a previous Outcome Measures in Rheumatology (OMERACT) meeting, participants reflected on the underlying methods of patient-reported outcome (PRO) instrument development. The participants requested proposals for more explicit instrument development protocols that would contribute to an enhanced version of the "Truth" statement in the OMERACT Filter, a widely used guide for outcome validation. In the present OMERACT session, we explored to what extent these new Filter 2.0 proposals were practicable, feasible, and already being applied.</div>
</front>
</TEI>
<pubmed><MedlineCitation Status="MEDLINE" Owner="NLM"><PMID Version="1">24584919</PMID>
<DateCreated><Year>2014</Year>
<Month>05</Month>
<Day>05</Day>
</DateCreated>
<DateCompleted><Year>2015</Year>
<Month>02</Month>
<Day>04</Day>
</DateCompleted>
<DateRevised><Year>2014</Year>
<Month>05</Month>
<Day>05</Day>
</DateRevised>
<Article PubModel="Print-Electronic"><Journal><ISSN IssnType="Print">0315-162X</ISSN>
<JournalIssue CitedMedium="Internet"><Volume>41</Volume>
<Issue>5</Issue>
<PubDate><Year>2014</Year>
<Month>May</Month>
</PubDate>
</JournalIssue>
<Title>The Journal of rheumatology</Title>
<ISOAbbreviation>J. Rheumatol.</ISOAbbreviation>
</Journal>
<ArticleTitle>Updating the OMERACT filter: implications for patient-reported outcomes.</ArticleTitle>
<Pagination><MedlinePgn>1011-5</MedlinePgn>
</Pagination>
<ELocationID EIdType="doi" ValidYN="Y">10.3899/jrheum.131312</ELocationID>
<Abstract><AbstractText Label="OBJECTIVE" NlmCategory="OBJECTIVE">At a previous Outcome Measures in Rheumatology (OMERACT) meeting, participants reflected on the underlying methods of patient-reported outcome (PRO) instrument development. The participants requested proposals for more explicit instrument development protocols that would contribute to an enhanced version of the "Truth" statement in the OMERACT Filter, a widely used guide for outcome validation. In the present OMERACT session, we explored to what extent these new Filter 2.0 proposals were practicable, feasible, and already being applied.</AbstractText>
<AbstractText Label="METHODS" NlmCategory="METHODS">Following overview presentations, discussion groups critically reviewed the extent to which case studies of current OMERACT Working Groups complied with or negated the proposed PRO development framework, whether these observations had a more general application, and what issues remained to be resolved.</AbstractText>
<AbstractText Label="RESULTS" NlmCategory="RESULTS">Several aspects of PRO development were recognized as particularly important, and the need to directly involve patients at every stage of an iterative PRO development program was endorsed. This included recognition that patients contribute as partners in the research and not merely as subjects. Correct communication of concepts with the words used in questionnaires was central to their performance as measuring instruments, and ensuring this understanding crossed cultural and linguistic boundaries was important in international studies or comparisons.</AbstractText>
<AbstractText Label="CONCLUSION" NlmCategory="CONCLUSIONS">Participants recognized, endorsed, and were generally already putting into practice the principles of PRO development presented in the plenary session. Further work is needed on some existing instruments and on establishing widespread good practice for working in close collaboration with patients.</AbstractText>
</Abstract>
<AuthorList CompleteYN="Y"><Author ValidYN="Y"><LastName>Kirwan</LastName>
<ForeName>John R</ForeName>
<Initials>JR</Initials>
<AffiliationInfo><Affiliation>From the University of Bristol, Academic Rheumatology Unit, and the University of the West of England, Academic Rheumatology Unit, Bristol Royal Infirmary, Bristol, UK; Department of Medicine, McGill University, Montreal, Quebec, Canada; Division of Rheumatology, Johns Hopkins University, Baltimore, Maryland, USA; Department of Occupational Sciences and Occupational Therapy, Institute for Health Policy Management and Evaluation, University of Toronto, Toronto, Ontario, Canada; Departments of Epidemiology and Biostatistics, and Rheumatology, and Department of Medical Humanities, VU University Medical Center, Amsterdam, The Netherlands; National Rheumatoid Arthritis Society, Maidenhead, Berkshire, UK; Faculty of Health Sciences, University of Queensland, Royal Brisbane and Women's Hospital, Herston, Brisbane, Australia; Section of Rheumatology, Cardiff University School of Medicine, Cardiff, UK; Université de Lorraine, Université Paris Descartes, Paris, France; Department of Rheumatology, Diakonhjemmet Hospital, Oslo, Norway; Department of Clinical Immunology and Rheumatology, Academic Medical Center, University of Amsterdam and Atrium Medical Center Heerlen, Amsterdam, The Netherlands; Healthy Motivation, Bone and Joint Decade, Santa Barbara, California, USA; Cochrane Musculoskeletal Group, Institute of Population Health, Ottawa, Ontario, Canada; Department of Rheumatology, Royal North Shore Hospital, St. Leonards, New South Wales, Australia; Consumer Advisory Board, Arthritis Research Centre of Canada, Richmond, British Columbia, Canada; UCB Pharma S.A., Brussels, Belgium; Division of Immunology/Rheumatology, Stanford University School of Medicine, Palo Alto, California, USA; Department of Medicine, University of Ottawa, Ottawa, Ontario, Canada; Université Pierre et Marie Curie (UPMC) - Paris 6, GRC-UMPC 08 (EEMOIS); AP-HP Pitié Salpêtrière Hospital, Department of Rheumatology, Paris, France.</Affiliation>
</AffiliationInfo>
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<Author ValidYN="Y"><LastName>Bartlett</LastName>
<ForeName>Susan J</ForeName>
<Initials>SJ</Initials>
</Author>
<Author ValidYN="Y"><LastName>Beaton</LastName>
<ForeName>Dorcas E</ForeName>
<Initials>DE</Initials>
</Author>
<Author ValidYN="Y"><LastName>Boers</LastName>
<ForeName>Maarten</ForeName>
<Initials>M</Initials>
</Author>
<Author ValidYN="Y"><LastName>Bosworth</LastName>
<ForeName>Ailsa</ForeName>
<Initials>A</Initials>
</Author>
<Author ValidYN="Y"><LastName>Brooks</LastName>
<ForeName>Peter M</ForeName>
<Initials>PM</Initials>
</Author>
<Author ValidYN="Y"><LastName>Choy</LastName>
<ForeName>Ernest</ForeName>
<Initials>E</Initials>
</Author>
<Author ValidYN="Y"><LastName>de Wit</LastName>
<ForeName>Maarten</ForeName>
<Initials>M</Initials>
</Author>
<Author ValidYN="Y"><LastName>Guillemin</LastName>
<ForeName>Francis</ForeName>
<Initials>F</Initials>
</Author>
<Author ValidYN="Y"><LastName>Hewlett</LastName>
<ForeName>Sarah</ForeName>
<Initials>S</Initials>
</Author>
<Author ValidYN="Y"><LastName>Kvien</LastName>
<ForeName>Tore K</ForeName>
<Initials>TK</Initials>
</Author>
<Author ValidYN="Y"><LastName>Landewé</LastName>
<ForeName>Robert B</ForeName>
<Initials>RB</Initials>
</Author>
<Author ValidYN="Y"><LastName>Leong</LastName>
<ForeName>Amye L</ForeName>
<Initials>AL</Initials>
</Author>
<Author ValidYN="Y"><LastName>Lyddiatt</LastName>
<ForeName>Anne</ForeName>
<Initials>A</Initials>
</Author>
<Author ValidYN="Y"><LastName>March</LastName>
<ForeName>Lyn</ForeName>
<Initials>L</Initials>
</Author>
<Author ValidYN="Y"><LastName>May</LastName>
<ForeName>James</ForeName>
<Initials>J</Initials>
</Author>
<Author ValidYN="Y"><LastName>Montie</LastName>
<ForeName>Pamela Lesley</ForeName>
<Initials>PL</Initials>
</Author>
<Author ValidYN="Y"><LastName>Nikaï</LastName>
<ForeName>Enkeleida</ForeName>
<Initials>E</Initials>
</Author>
<Author ValidYN="Y"><LastName>Richards</LastName>
<ForeName>Pam</ForeName>
<Initials>P</Initials>
</Author>
<Author ValidYN="Y"><LastName>Voshaar</LastName>
<ForeName>Marieke M J H</ForeName>
<Initials>MM</Initials>
</Author>
<Author ValidYN="Y"><LastName>Smeets</LastName>
<ForeName>Wilma</ForeName>
<Initials>W</Initials>
</Author>
<Author ValidYN="Y"><LastName>Strand</LastName>
<ForeName>Vibeke</ForeName>
<Initials>V</Initials>
</Author>
<Author ValidYN="Y"><LastName>Tugwell</LastName>
<ForeName>Peter</ForeName>
<Initials>P</Initials>
</Author>
<Author ValidYN="Y"><LastName>Gossec</LastName>
<ForeName>Laure</ForeName>
<Initials>L</Initials>
</Author>
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<Language>eng</Language>
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<Month>03</Month>
<Day>01</Day>
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<MedlineJournalInfo><Country>Canada</Country>
<MedlineTA>J Rheumatol</MedlineTA>
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<QualifierName UI="Q000592" MajorTopicYN="Y">standards</QualifierName>
<QualifierName UI="Q000639" MajorTopicYN="Y">trends</QualifierName>
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<MeshHeading><DescriptorName UI="D010358" MajorTopicYN="N">Patient Participation</DescriptorName>
</MeshHeading>
<MeshHeading><DescriptorName UI="D016032" MajorTopicYN="N">Randomized Controlled Trials as Topic</DescriptorName>
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