Global Application of the Assessment of Communication Skills of Paediatric Endocrinology Fellows in the Management of Differences in Sex Development Using the ESPE E-Learning.Org Portal.
Identifieur interne : 001195 ( PubMed/Corpus ); précédent : 001194; suivant : 001196Global Application of the Assessment of Communication Skills of Paediatric Endocrinology Fellows in the Management of Differences in Sex Development Using the ESPE E-Learning.Org Portal.
Auteurs : Laura J C. Kranenburg ; Sam T H. Reerds ; Martine Cools ; Julie Alderson ; Miriam Muscarella ; Ellie Magrite ; Martijn Kuiper ; Shereen Abdelgaffar ; Antonio Balsamo ; Raja Brauner ; Jean Pierre Chanoine ; Asma Deeb ; Patricia Fechner ; Alina German ; Paul Martin Holterhus ; Anders Juul ; Berenice B. Mendonca ; Kristen Neville ; Anna Nordenstrom ; Wilma Oostdijk ; Rodolfo A. Rey ; Meilan M. Rutter ; Nalini Shah ; Xiaoping Luo ; Kalinka Grijpink ; Stenvert L S. DropSource :
- Hormone research in paediatrics [ 1663-2826 ] ; 2017.
Abstract
Information sharing in chronic conditions such as disorders of/differences in sex development (DSD) is essential for a comprehensive understanding by parents and patients. We report on a qualitative analysis of communication skills of fellows undergoing training in paediatric endocrinology. Guidelines are created for the assessment of communication between health professionals and individuals with DSD and their parents.
DOI: 10.1159/000475992
PubMed: 28689203
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<record><TEI><teiHeader><fileDesc><titleStmt><title xml:lang="en">Global Application of the Assessment of Communication Skills of Paediatric Endocrinology Fellows in the Management of Differences in Sex Development Using the ESPE E-Learning.Org Portal.</title>
<author><name sortKey="Kranenburg, Laura J C" sort="Kranenburg, Laura J C" uniqKey="Kranenburg L" first="Laura J C" last="Kranenburg">Laura J C. Kranenburg</name>
<affiliation><nlm:affiliation>Department of Rheumatology, Maasstad Ziekenhuis, Rotterdam, the Netherlands.</nlm:affiliation>
</affiliation>
</author>
<author><name sortKey="Reerds, Sam T H" sort="Reerds, Sam T H" uniqKey="Reerds S" first="Sam T H" last="Reerds">Sam T H. Reerds</name>
<affiliation><nlm:affiliation>Department of Pediatrics, Division of Pediatric Endocrinology, Sophia Children's Hospital/Erasmus MC, Rotterdam, the Netherlands.</nlm:affiliation>
</affiliation>
</author>
<author><name sortKey="Cools, Martine" sort="Cools, Martine" uniqKey="Cools M" first="Martine" last="Cools">Martine Cools</name>
<affiliation><nlm:affiliation>Department of Pediatrics, Division of Pediatric Endocrinology, Ghent University, Ghent University Hospital, Ghent, Belgium.</nlm:affiliation>
</affiliation>
</author>
<author><name sortKey="Alderson, Julie" sort="Alderson, Julie" uniqKey="Alderson J" first="Julie" last="Alderson">Julie Alderson</name>
<affiliation><nlm:affiliation>Psychological Health Services, University Hospitals Bristol NHS Foundation Trust, Bristol, United Kingdom.</nlm:affiliation>
</affiliation>
</author>
<author><name sortKey="Muscarella, Miriam" sort="Muscarella, Miriam" uniqKey="Muscarella M" first="Miriam" last="Muscarella">Miriam Muscarella</name>
<affiliation><nlm:affiliation>USCF School of Medicine, Class of 2019, San Francisco, California, USA.</nlm:affiliation>
</affiliation>
</author>
<author><name sortKey="Magrite, Ellie" sort="Magrite, Ellie" uniqKey="Magrite E" first="Ellie" last="Magrite">Ellie Magrite</name>
<affiliation><nlm:affiliation>Founder and Trustee, dsdfamilies, Edinburgh, United Kingdom.</nlm:affiliation>
</affiliation>
</author>
<author><name sortKey="Kuiper, Martijn" sort="Kuiper, Martijn" uniqKey="Kuiper M" first="Martijn" last="Kuiper">Martijn Kuiper</name>
<affiliation><nlm:affiliation>Department of Rheumatology, Maasstad Ziekenhuis, Rotterdam, the Netherlands.</nlm:affiliation>
</affiliation>
</author>
<author><name sortKey="Abdelgaffar, Shereen" sort="Abdelgaffar, Shereen" uniqKey="Abdelgaffar S" first="Shereen" last="Abdelgaffar">Shereen Abdelgaffar</name>
<affiliation><nlm:affiliation>Department of Pediatrics, Cairo University, Cairo, Egypt.</nlm:affiliation>
</affiliation>
</author>
<author><name sortKey="Balsamo, Antonio" sort="Balsamo, Antonio" uniqKey="Balsamo A" first="Antonio" last="Balsamo">Antonio Balsamo</name>
<affiliation><nlm:affiliation>Department of Medical and Surgical Sciences, Division of Pediatric Endocrinology, University Hospital S. Orsola-Malpighi, Bologna, Italy.</nlm:affiliation>
</affiliation>
</author>
<author><name sortKey="Brauner, Raja" sort="Brauner, Raja" uniqKey="Brauner R" first="Raja" last="Brauner">Raja Brauner</name>
<affiliation><nlm:affiliation>Fondation Ophtalmologique Adolphe de Rothschild and Université Paris Descartes, Paris, France.</nlm:affiliation>
</affiliation>
</author>
<author><name sortKey="Chanoine, Jean Pierre" sort="Chanoine, Jean Pierre" uniqKey="Chanoine J" first="Jean Pierre" last="Chanoine">Jean Pierre Chanoine</name>
<affiliation><nlm:affiliation>Department of Paediatrics, British Columbia Children's Hospital, Vancouver, British Columbia, Canada.</nlm:affiliation>
</affiliation>
</author>
<author><name sortKey="Deeb, Asma" sort="Deeb, Asma" uniqKey="Deeb A" first="Asma" last="Deeb">Asma Deeb</name>
<affiliation><nlm:affiliation>Department of Paediatrics, Mafraq Hospital, Abu Dhabi, United Arab Emirates.</nlm:affiliation>
</affiliation>
</author>
<author><name sortKey="Fechner, Patricia" sort="Fechner, Patricia" uniqKey="Fechner P" first="Patricia" last="Fechner">Patricia Fechner</name>
<affiliation><nlm:affiliation>Department of Pediatrics, University of Washington, Seattle Children's Hospital, Seattle, Washington, USA.</nlm:affiliation>
</affiliation>
</author>
<author><name sortKey="German, Alina" sort="German, Alina" uniqKey="German A" first="Alina" last="German">Alina German</name>
<affiliation><nlm:affiliation>Department of Pediatrics, Bnai-Zion Medical Center, Technion, Haifa, Israel.</nlm:affiliation>
</affiliation>
</author>
<author><name sortKey="Holterhus, Paul Martin" sort="Holterhus, Paul Martin" uniqKey="Holterhus P" first="Paul Martin" last="Holterhus">Paul Martin Holterhus</name>
<affiliation><nlm:affiliation>Department of Pediatrics, Division of Pediatric Endocrinology and Diabetes, University Hospital of Schleswig-Holstein, Campus Kiel/Christian Albrecht University of Kiel, Kiel, Germany.</nlm:affiliation>
</affiliation>
</author>
<author><name sortKey="Juul, Anders" sort="Juul, Anders" uniqKey="Juul A" first="Anders" last="Juul">Anders Juul</name>
<affiliation><nlm:affiliation>Department of Growth and Reproduction, Rigshospitalet, University of Copenhagen, Copenhagen, Denmark.</nlm:affiliation>
</affiliation>
</author>
<author><name sortKey="Mendonca, Berenice B" sort="Mendonca, Berenice B" uniqKey="Mendonca B" first="Berenice B" last="Mendonca">Berenice B. Mendonca</name>
<affiliation><nlm:affiliation>Department of Internal Medicine, Medical School, University of São Paulo, São Paulo, Brazil.</nlm:affiliation>
</affiliation>
</author>
<author><name sortKey="Neville, Kristen" sort="Neville, Kristen" uniqKey="Neville K" first="Kristen" last="Neville">Kristen Neville</name>
<affiliation><nlm:affiliation>Department of Pediatric Endocrinology, Sydney Children's Hospital, Randwick, New South Wales, Australia.</nlm:affiliation>
</affiliation>
</author>
<author><name sortKey="Nordenstrom, Anna" sort="Nordenstrom, Anna" uniqKey="Nordenstrom A" first="Anna" last="Nordenstrom">Anna Nordenstrom</name>
<affiliation><nlm:affiliation>Department of Women's and Children's Health, Karolinka Institutet, Stockholm, Sweden.</nlm:affiliation>
</affiliation>
</author>
<author><name sortKey="Oostdijk, Wilma" sort="Oostdijk, Wilma" uniqKey="Oostdijk W" first="Wilma" last="Oostdijk">Wilma Oostdijk</name>
<affiliation><nlm:affiliation>Department of Pediatrics, Leiden University Medical Center, Leiden, the Netherlands.</nlm:affiliation>
</affiliation>
</author>
<author><name sortKey="Rey, Rodolfo A" sort="Rey, Rodolfo A" uniqKey="Rey R" first="Rodolfo A" last="Rey">Rodolfo A. Rey</name>
<affiliation><nlm:affiliation>Pediatrics Centro de Investigaciones Endocrinológicas "Dr. César Bergadá" (CEDIE), CONICET-FEI División de Endocrinología, Hospital de Niños Ricardo Gutiérrez, Buenos Aires, Argentina.</nlm:affiliation>
</affiliation>
</author>
<author><name sortKey="Rutter, Meilan M" sort="Rutter, Meilan M" uniqKey="Rutter M" first="Meilan M" last="Rutter">Meilan M. Rutter</name>
<affiliation><nlm:affiliation>Division of Endocrinology, Cincinnati Children's Hospital Medical Center, University of Cincinnati, Cincinnati, Ohio, USA.</nlm:affiliation>
</affiliation>
</author>
<author><name sortKey="Shah, Nalini" sort="Shah, Nalini" uniqKey="Shah N" first="Nalini" last="Shah">Nalini Shah</name>
<affiliation><nlm:affiliation>Department of Endocrinology, Seth GS Medical College & KEM Hospital, Mumbai, India.</nlm:affiliation>
</affiliation>
</author>
<author><name sortKey="Luo, Xiaoping" sort="Luo, Xiaoping" uniqKey="Luo X" first="Xiaoping" last="Luo">Xiaoping Luo</name>
<affiliation><nlm:affiliation>Department of Pediatrics, Tongji Hospital, Wuhan, China.</nlm:affiliation>
</affiliation>
</author>
<author><name sortKey="Grijpink, Kalinka" sort="Grijpink, Kalinka" uniqKey="Grijpink K" first="Kalinka" last="Grijpink">Kalinka Grijpink</name>
<affiliation><nlm:affiliation>Division Education and Student Support, Faculty EEMS, Delft University of Technology, Delft, the Netherlands.</nlm:affiliation>
</affiliation>
</author>
<author><name sortKey="Drop, Stenvert L S" sort="Drop, Stenvert L S" uniqKey="Drop S" first="Stenvert L S" last="Drop">Stenvert L S. Drop</name>
<affiliation><nlm:affiliation>Department of Pediatrics, Division of Pediatric Endocrinology, Sophia Children's Hospital/Erasmus MC, Rotterdam, the Netherlands.</nlm:affiliation>
</affiliation>
</author>
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<sourceDesc><biblStruct><analytic><title xml:lang="en">Global Application of the Assessment of Communication Skills of Paediatric Endocrinology Fellows in the Management of Differences in Sex Development Using the ESPE E-Learning.Org Portal.</title>
<author><name sortKey="Kranenburg, Laura J C" sort="Kranenburg, Laura J C" uniqKey="Kranenburg L" first="Laura J C" last="Kranenburg">Laura J C. Kranenburg</name>
<affiliation><nlm:affiliation>Department of Rheumatology, Maasstad Ziekenhuis, Rotterdam, the Netherlands.</nlm:affiliation>
</affiliation>
</author>
<author><name sortKey="Reerds, Sam T H" sort="Reerds, Sam T H" uniqKey="Reerds S" first="Sam T H" last="Reerds">Sam T H. Reerds</name>
<affiliation><nlm:affiliation>Department of Pediatrics, Division of Pediatric Endocrinology, Sophia Children's Hospital/Erasmus MC, Rotterdam, the Netherlands.</nlm:affiliation>
</affiliation>
</author>
<author><name sortKey="Cools, Martine" sort="Cools, Martine" uniqKey="Cools M" first="Martine" last="Cools">Martine Cools</name>
<affiliation><nlm:affiliation>Department of Pediatrics, Division of Pediatric Endocrinology, Ghent University, Ghent University Hospital, Ghent, Belgium.</nlm:affiliation>
</affiliation>
</author>
<author><name sortKey="Alderson, Julie" sort="Alderson, Julie" uniqKey="Alderson J" first="Julie" last="Alderson">Julie Alderson</name>
<affiliation><nlm:affiliation>Psychological Health Services, University Hospitals Bristol NHS Foundation Trust, Bristol, United Kingdom.</nlm:affiliation>
</affiliation>
</author>
<author><name sortKey="Muscarella, Miriam" sort="Muscarella, Miriam" uniqKey="Muscarella M" first="Miriam" last="Muscarella">Miriam Muscarella</name>
<affiliation><nlm:affiliation>USCF School of Medicine, Class of 2019, San Francisco, California, USA.</nlm:affiliation>
</affiliation>
</author>
<author><name sortKey="Magrite, Ellie" sort="Magrite, Ellie" uniqKey="Magrite E" first="Ellie" last="Magrite">Ellie Magrite</name>
<affiliation><nlm:affiliation>Founder and Trustee, dsdfamilies, Edinburgh, United Kingdom.</nlm:affiliation>
</affiliation>
</author>
<author><name sortKey="Kuiper, Martijn" sort="Kuiper, Martijn" uniqKey="Kuiper M" first="Martijn" last="Kuiper">Martijn Kuiper</name>
<affiliation><nlm:affiliation>Department of Rheumatology, Maasstad Ziekenhuis, Rotterdam, the Netherlands.</nlm:affiliation>
</affiliation>
</author>
<author><name sortKey="Abdelgaffar, Shereen" sort="Abdelgaffar, Shereen" uniqKey="Abdelgaffar S" first="Shereen" last="Abdelgaffar">Shereen Abdelgaffar</name>
<affiliation><nlm:affiliation>Department of Pediatrics, Cairo University, Cairo, Egypt.</nlm:affiliation>
</affiliation>
</author>
<author><name sortKey="Balsamo, Antonio" sort="Balsamo, Antonio" uniqKey="Balsamo A" first="Antonio" last="Balsamo">Antonio Balsamo</name>
<affiliation><nlm:affiliation>Department of Medical and Surgical Sciences, Division of Pediatric Endocrinology, University Hospital S. Orsola-Malpighi, Bologna, Italy.</nlm:affiliation>
</affiliation>
</author>
<author><name sortKey="Brauner, Raja" sort="Brauner, Raja" uniqKey="Brauner R" first="Raja" last="Brauner">Raja Brauner</name>
<affiliation><nlm:affiliation>Fondation Ophtalmologique Adolphe de Rothschild and Université Paris Descartes, Paris, France.</nlm:affiliation>
</affiliation>
</author>
<author><name sortKey="Chanoine, Jean Pierre" sort="Chanoine, Jean Pierre" uniqKey="Chanoine J" first="Jean Pierre" last="Chanoine">Jean Pierre Chanoine</name>
<affiliation><nlm:affiliation>Department of Paediatrics, British Columbia Children's Hospital, Vancouver, British Columbia, Canada.</nlm:affiliation>
</affiliation>
</author>
<author><name sortKey="Deeb, Asma" sort="Deeb, Asma" uniqKey="Deeb A" first="Asma" last="Deeb">Asma Deeb</name>
<affiliation><nlm:affiliation>Department of Paediatrics, Mafraq Hospital, Abu Dhabi, United Arab Emirates.</nlm:affiliation>
</affiliation>
</author>
<author><name sortKey="Fechner, Patricia" sort="Fechner, Patricia" uniqKey="Fechner P" first="Patricia" last="Fechner">Patricia Fechner</name>
<affiliation><nlm:affiliation>Department of Pediatrics, University of Washington, Seattle Children's Hospital, Seattle, Washington, USA.</nlm:affiliation>
</affiliation>
</author>
<author><name sortKey="German, Alina" sort="German, Alina" uniqKey="German A" first="Alina" last="German">Alina German</name>
<affiliation><nlm:affiliation>Department of Pediatrics, Bnai-Zion Medical Center, Technion, Haifa, Israel.</nlm:affiliation>
</affiliation>
</author>
<author><name sortKey="Holterhus, Paul Martin" sort="Holterhus, Paul Martin" uniqKey="Holterhus P" first="Paul Martin" last="Holterhus">Paul Martin Holterhus</name>
<affiliation><nlm:affiliation>Department of Pediatrics, Division of Pediatric Endocrinology and Diabetes, University Hospital of Schleswig-Holstein, Campus Kiel/Christian Albrecht University of Kiel, Kiel, Germany.</nlm:affiliation>
</affiliation>
</author>
<author><name sortKey="Juul, Anders" sort="Juul, Anders" uniqKey="Juul A" first="Anders" last="Juul">Anders Juul</name>
<affiliation><nlm:affiliation>Department of Growth and Reproduction, Rigshospitalet, University of Copenhagen, Copenhagen, Denmark.</nlm:affiliation>
</affiliation>
</author>
<author><name sortKey="Mendonca, Berenice B" sort="Mendonca, Berenice B" uniqKey="Mendonca B" first="Berenice B" last="Mendonca">Berenice B. Mendonca</name>
<affiliation><nlm:affiliation>Department of Internal Medicine, Medical School, University of São Paulo, São Paulo, Brazil.</nlm:affiliation>
</affiliation>
</author>
<author><name sortKey="Neville, Kristen" sort="Neville, Kristen" uniqKey="Neville K" first="Kristen" last="Neville">Kristen Neville</name>
<affiliation><nlm:affiliation>Department of Pediatric Endocrinology, Sydney Children's Hospital, Randwick, New South Wales, Australia.</nlm:affiliation>
</affiliation>
</author>
<author><name sortKey="Nordenstrom, Anna" sort="Nordenstrom, Anna" uniqKey="Nordenstrom A" first="Anna" last="Nordenstrom">Anna Nordenstrom</name>
<affiliation><nlm:affiliation>Department of Women's and Children's Health, Karolinka Institutet, Stockholm, Sweden.</nlm:affiliation>
</affiliation>
</author>
<author><name sortKey="Oostdijk, Wilma" sort="Oostdijk, Wilma" uniqKey="Oostdijk W" first="Wilma" last="Oostdijk">Wilma Oostdijk</name>
<affiliation><nlm:affiliation>Department of Pediatrics, Leiden University Medical Center, Leiden, the Netherlands.</nlm:affiliation>
</affiliation>
</author>
<author><name sortKey="Rey, Rodolfo A" sort="Rey, Rodolfo A" uniqKey="Rey R" first="Rodolfo A" last="Rey">Rodolfo A. Rey</name>
<affiliation><nlm:affiliation>Pediatrics Centro de Investigaciones Endocrinológicas "Dr. César Bergadá" (CEDIE), CONICET-FEI División de Endocrinología, Hospital de Niños Ricardo Gutiérrez, Buenos Aires, Argentina.</nlm:affiliation>
</affiliation>
</author>
<author><name sortKey="Rutter, Meilan M" sort="Rutter, Meilan M" uniqKey="Rutter M" first="Meilan M" last="Rutter">Meilan M. Rutter</name>
<affiliation><nlm:affiliation>Division of Endocrinology, Cincinnati Children's Hospital Medical Center, University of Cincinnati, Cincinnati, Ohio, USA.</nlm:affiliation>
</affiliation>
</author>
<author><name sortKey="Shah, Nalini" sort="Shah, Nalini" uniqKey="Shah N" first="Nalini" last="Shah">Nalini Shah</name>
<affiliation><nlm:affiliation>Department of Endocrinology, Seth GS Medical College & KEM Hospital, Mumbai, India.</nlm:affiliation>
</affiliation>
</author>
<author><name sortKey="Luo, Xiaoping" sort="Luo, Xiaoping" uniqKey="Luo X" first="Xiaoping" last="Luo">Xiaoping Luo</name>
<affiliation><nlm:affiliation>Department of Pediatrics, Tongji Hospital, Wuhan, China.</nlm:affiliation>
</affiliation>
</author>
<author><name sortKey="Grijpink, Kalinka" sort="Grijpink, Kalinka" uniqKey="Grijpink K" first="Kalinka" last="Grijpink">Kalinka Grijpink</name>
<affiliation><nlm:affiliation>Division Education and Student Support, Faculty EEMS, Delft University of Technology, Delft, the Netherlands.</nlm:affiliation>
</affiliation>
</author>
<author><name sortKey="Drop, Stenvert L S" sort="Drop, Stenvert L S" uniqKey="Drop S" first="Stenvert L S" last="Drop">Stenvert L S. Drop</name>
<affiliation><nlm:affiliation>Department of Pediatrics, Division of Pediatric Endocrinology, Sophia Children's Hospital/Erasmus MC, Rotterdam, the Netherlands.</nlm:affiliation>
</affiliation>
</author>
</analytic>
<series><title level="j">Hormone research in paediatrics</title>
<idno type="eISSN">1663-2826</idno>
<imprint><date when="2017" type="published">2017</date>
</imprint>
</series>
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<front><div type="abstract" xml:lang="en">Information sharing in chronic conditions such as disorders of/differences in sex development (DSD) is essential for a comprehensive understanding by parents and patients. We report on a qualitative analysis of communication skills of fellows undergoing training in paediatric endocrinology. Guidelines are created for the assessment of communication between health professionals and individuals with DSD and their parents.</div>
</front>
</TEI>
<pubmed><MedlineCitation Status="In-Process" Owner="NLM"><PMID Version="1">28689203</PMID>
<DateCreated><Year>2017</Year>
<Month>07</Month>
<Day>09</Day>
</DateCreated>
<DateRevised><Year>2017</Year>
<Month>09</Month>
<Day>21</Day>
</DateRevised>
<Article PubModel="Print-Electronic"><Journal><ISSN IssnType="Electronic">1663-2826</ISSN>
<JournalIssue CitedMedium="Internet"><Volume>88</Volume>
<Issue>2</Issue>
<PubDate><Year>2017</Year>
</PubDate>
</JournalIssue>
<Title>Hormone research in paediatrics</Title>
<ISOAbbreviation>Horm Res Paediatr</ISOAbbreviation>
</Journal>
<ArticleTitle>Global Application of the Assessment of Communication Skills of Paediatric Endocrinology Fellows in the Management of Differences in Sex Development Using the ESPE E-Learning.Org Portal.</ArticleTitle>
<Pagination><MedlinePgn>127-139</MedlinePgn>
</Pagination>
<ELocationID EIdType="doi" ValidYN="Y">10.1159/000475992</ELocationID>
<Abstract><AbstractText Label="BACKGROUND" NlmCategory="BACKGROUND">Information sharing in chronic conditions such as disorders of/differences in sex development (DSD) is essential for a comprehensive understanding by parents and patients. We report on a qualitative analysis of communication skills of fellows undergoing training in paediatric endocrinology. Guidelines are created for the assessment of communication between health professionals and individuals with DSD and their parents.</AbstractText>
<AbstractText Label="METHODS" NlmCategory="METHODS">Paediatric endocrinology fellows worldwide were invited to study two interactive online cases (www.espe-elearning.org) and to describe a best practice communication with (i) the parents of a newborn with congenital adrenal hyperplasia and (ii) a young woman with 46,XY gonadal dysgenesis. The replies were analysed regarding completeness, quality, and evidence of empathy. Guidelines for structured assessment of responses were developed by 22 senior paediatric endocrinologists worldwide who assessed 10 selected replies. Consensus of assessors was established and the evaluation guidelines were created.</AbstractText>
<AbstractText Label="RESULTS" NlmCategory="RESULTS">The replies of the fellows showed considerable variation in completeness, quality of wording, and evidence of empathy. Many relevant aspects of competent clinical communication were not mentioned; 15% (case 1) and 17% (case 2) of the replies were considered poor/insufficient. There was also marked variation between 17 senior experts in the application of the guidelines to assess communication skills. The guidelines were then adjusted to a 3-level assessment with empathy as a separate key item to better reflect the qualitative differences in the replies and for simplicity of use by evaluators.</AbstractText>
<AbstractText Label="CONCLUSIONS" NlmCategory="CONCLUSIONS">E-learning can play an important role in assessing communication skills. A practical tool is provided to assess how information is shared with patients with DSD and their families and should be refined by all stakeholders, notably interdisciplinary health professionals and patient representatives.</AbstractText>
<CopyrightInformation>© 2017 S. Karger AG, Basel.</CopyrightInformation>
</Abstract>
<AuthorList CompleteYN="Y"><Author ValidYN="Y"><LastName>Kranenburg</LastName>
<ForeName>Laura J C</ForeName>
<Initials>LJC</Initials>
<AffiliationInfo><Affiliation>Department of Rheumatology, Maasstad Ziekenhuis, Rotterdam, the Netherlands.</Affiliation>
</AffiliationInfo>
<AffiliationInfo><Affiliation>Department of Pediatrics, Division of Pediatric Endocrinology, Sophia Children's Hospital/Erasmus MC, Rotterdam, the Netherlands.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y"><LastName>Reerds</LastName>
<ForeName>Sam T H</ForeName>
<Initials>STH</Initials>
<AffiliationInfo><Affiliation>Department of Pediatrics, Division of Pediatric Endocrinology, Sophia Children's Hospital/Erasmus MC, Rotterdam, the Netherlands.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y"><LastName>Cools</LastName>
<ForeName>Martine</ForeName>
<Initials>M</Initials>
<AffiliationInfo><Affiliation>Department of Pediatrics, Division of Pediatric Endocrinology, Ghent University, Ghent University Hospital, Ghent, Belgium.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y"><LastName>Alderson</LastName>
<ForeName>Julie</ForeName>
<Initials>J</Initials>
<AffiliationInfo><Affiliation>Psychological Health Services, University Hospitals Bristol NHS Foundation Trust, Bristol, United Kingdom.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y"><LastName>Muscarella</LastName>
<ForeName>Miriam</ForeName>
<Initials>M</Initials>
<AffiliationInfo><Affiliation>USCF School of Medicine, Class of 2019, San Francisco, California, USA.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y"><LastName>Magrite</LastName>
<ForeName>Ellie</ForeName>
<Initials>E</Initials>
<AffiliationInfo><Affiliation>Founder and Trustee, dsdfamilies, Edinburgh, United Kingdom.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y"><LastName>Kuiper</LastName>
<ForeName>Martijn</ForeName>
<Initials>M</Initials>
<AffiliationInfo><Affiliation>Department of Rheumatology, Maasstad Ziekenhuis, Rotterdam, the Netherlands.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y"><LastName>Abdelgaffar</LastName>
<ForeName>Shereen</ForeName>
<Initials>S</Initials>
<AffiliationInfo><Affiliation>Department of Pediatrics, Cairo University, Cairo, Egypt.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y"><LastName>Balsamo</LastName>
<ForeName>Antonio</ForeName>
<Initials>A</Initials>
<AffiliationInfo><Affiliation>Department of Medical and Surgical Sciences, Division of Pediatric Endocrinology, University Hospital S. Orsola-Malpighi, Bologna, Italy.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y"><LastName>Brauner</LastName>
<ForeName>Raja</ForeName>
<Initials>R</Initials>
<AffiliationInfo><Affiliation>Fondation Ophtalmologique Adolphe de Rothschild and Université Paris Descartes, Paris, France.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y"><LastName>Chanoine</LastName>
<ForeName>Jean Pierre</ForeName>
<Initials>JP</Initials>
<AffiliationInfo><Affiliation>Department of Paediatrics, British Columbia Children's Hospital, Vancouver, British Columbia, Canada.</Affiliation>
</AffiliationInfo>
</Author>
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<AffiliationInfo><Affiliation>Department of Pediatrics, University of Washington, Seattle Children's Hospital, Seattle, Washington, USA.</Affiliation>
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<ForeName>Alina</ForeName>
<Initials>A</Initials>
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<Author ValidYN="Y"><LastName>Holterhus</LastName>
<ForeName>Paul Martin</ForeName>
<Initials>PM</Initials>
<AffiliationInfo><Affiliation>Department of Pediatrics, Division of Pediatric Endocrinology and Diabetes, University Hospital of Schleswig-Holstein, Campus Kiel/Christian Albrecht University of Kiel, Kiel, Germany.</Affiliation>
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<Author ValidYN="Y"><LastName>Juul</LastName>
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<Initials>A</Initials>
<AffiliationInfo><Affiliation>Department of Growth and Reproduction, Rigshospitalet, University of Copenhagen, Copenhagen, Denmark.</Affiliation>
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<ForeName>Berenice B</ForeName>
<Initials>BB</Initials>
<AffiliationInfo><Affiliation>Department of Internal Medicine, Medical School, University of São Paulo, São Paulo, Brazil.</Affiliation>
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<Author ValidYN="Y"><LastName>Neville</LastName>
<ForeName>Kristen</ForeName>
<Initials>K</Initials>
<AffiliationInfo><Affiliation>Department of Pediatric Endocrinology, Sydney Children's Hospital, Randwick, New South Wales, Australia.</Affiliation>
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<Initials>A</Initials>
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<ForeName>Meilan M</ForeName>
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<AffiliationInfo><Affiliation>Division of Endocrinology, Cincinnati Children's Hospital Medical Center, University of Cincinnati, Cincinnati, Ohio, USA.</Affiliation>
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<ForeName>Nalini</ForeName>
<Initials>N</Initials>
<AffiliationInfo><Affiliation>Department of Endocrinology, Seth GS Medical College & KEM Hospital, Mumbai, India.</Affiliation>
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<ForeName>Xiaoping</ForeName>
<Initials>X</Initials>
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<ForeName>Kalinka</ForeName>
<Initials>K</Initials>
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<ForeName>Stenvert L S</ForeName>
<Initials>SLS</Initials>
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<Month>07</Month>
<Day>07</Day>
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<MedlineJournalInfo><Country>Switzerland</Country>
<MedlineTA>Horm Res Paediatr</MedlineTA>
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<KeywordList Owner="NOTNLM"><Keyword MajorTopicYN="N">Competency assessment</Keyword>
<Keyword MajorTopicYN="N">Congenital adrenal hyperplasia</Keyword>
<Keyword MajorTopicYN="N">Disorders of sex development</Keyword>
<Keyword MajorTopicYN="N">E-learning</Keyword>
<Keyword MajorTopicYN="N">Online learning</Keyword>
<Keyword MajorTopicYN="N">Subspecialty training</Keyword>
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<Month>01</Month>
<Day>04</Day>
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<Month>04</Month>
<Day>19</Day>
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<ArticleId IdType="doi">10.1159/000475992</ArticleId>
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