Mortality and Causes of Death in Patients with Sporadic Inclusion Body Myositis: Survey Study Based on the Clinical Experience of Specialists in Australia, Europe and the USA.
Identifieur interne : 001A39 ( PubMed/Checkpoint ); précédent : 001A38; suivant : 001A40Mortality and Causes of Death in Patients with Sporadic Inclusion Body Myositis: Survey Study Based on the Clinical Experience of Specialists in Australia, Europe and the USA.
Auteurs : Mark A. Price [États-Unis] ; Victoria Barghout [États-Unis] ; Olivier Benveniste [France] ; Lisa Christopher-Stine [États-Unis] ; Alastair Corbett [Australie] ; Marianne De Visser [Pays-Bas] ; David Hilton-Jones [Royaume-Uni] ; John T. Kissel [États-Unis] ; Thomas E. Lloyd [États-Unis] ; Ingrid E. Lundberg [Suède] ; Francis Mastaglia [Australie] ; Tahseen Mozaffar [États-Unis] ; Merrilee Needham [Australie] ; Jens Schmidt [Allemagne] ; Kumaraswamy Sivakumar [États-Unis] ; Carla Demuro [États-Unis] ; Brian S. Tseng [États-Unis]Source :
- Journal of neuromuscular diseases [ 2214-3599 ] ; 2016.
Abstract
There is a paucity of data on mortality and causes of death (CoDs) in patients with sporadic inclusion body myositis (sIBM), a rare, progressive, degenerative, inflammatory myopathy that typically affects those aged over 50 years.
DOI: 10.3233/JND-150138
PubMed: 27854208
Affiliations:
- Allemagne, Australie, France, Pays-Bas, Royaume-Uni, Suède, États-Unis
- Angleterre, Arizona, Basse-Saxe, Californie, Caroline du Nord, Hollande-Septentrionale, Maryland, New Jersey, Ohio, Oxfordshire, Svealand, Île-de-France
- Amsterdam, Göttingen, Oxford, Paris, Stockholm
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Price</name><affiliation wicri:level="2"><nlm:affiliation>RTI Health Solutions, Research Triangle Park, NC, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>RTI Health Solutions, Research Triangle Park, NC</wicri:regionArea><placeName><region type="state">Caroline du Nord</region></placeName></affiliation></author><author><name sortKey="Barghout, Victoria" sort="Barghout, Victoria" uniqKey="Barghout V" first="Victoria" last="Barghout">Victoria Barghout</name><affiliation wicri:level="2"><nlm:affiliation>VEB HealthCare LLC, Morristown, NJ, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>VEB HealthCare LLC, Morristown, NJ</wicri:regionArea><placeName><region type="state">New Jersey</region></placeName></affiliation></author><author><name sortKey="Benveniste, Olivier" sort="Benveniste, Olivier" uniqKey="Benveniste O" first="Olivier" last="Benveniste">Olivier Benveniste</name><affiliation wicri:level="3"><nlm:affiliation>Assistance Publique - Hôpitaux de Paris, Pitié-Salpêtrière University Hospital, Department of Internal Medicine, Pierre and Marie Curie University, Paris, France.</nlm:affiliation><country xml:lang="fr">France</country><wicri:regionArea>Assistance Publique - Hôpitaux de Paris, Pitié-Salpêtrière University Hospital, Department of Internal Medicine, Pierre and Marie Curie University, Paris</wicri:regionArea><placeName><region type="region">Île-de-France</region><region type="old region">Île-de-France</region><settlement type="city">Paris</settlement></placeName></affiliation></author><author><name sortKey="Christopher Stine, Lisa" sort="Christopher Stine, Lisa" uniqKey="Christopher Stine L" first="Lisa" last="Christopher-Stine">Lisa Christopher-Stine</name><affiliation wicri:level="2"><nlm:affiliation>Johns Hopkins Myositis Center, Division of Rheumatology, Johns Hopkins University, Baltimore, MD, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>Johns Hopkins Myositis Center, Division of Rheumatology, Johns Hopkins University, Baltimore, MD</wicri:regionArea><placeName><region type="state">Maryland</region></placeName></affiliation></author><author><name sortKey="Corbett, Alastair" sort="Corbett, Alastair" uniqKey="Corbett A" first="Alastair" last="Corbett">Alastair Corbett</name><affiliation wicri:level="1"><nlm:affiliation>Department of Neurology, Concord Hospital, Concord, NSW, Australia.</nlm:affiliation><country xml:lang="fr">Australie</country><wicri:regionArea>Department of Neurology, Concord Hospital, Concord, NSW</wicri:regionArea><wicri:noRegion>NSW</wicri:noRegion></affiliation></author><author><name sortKey="De Visser, Marianne" sort="De Visser, Marianne" uniqKey="De Visser M" first="Marianne" last="De Visser">Marianne De Visser</name><affiliation wicri:level="3"><nlm:affiliation>Department of Neurology, Academic Medical Center, Amsterdam, Netherlands.</nlm:affiliation><country xml:lang="fr">Pays-Bas</country><wicri:regionArea>Department of Neurology, Academic Medical Center, Amsterdam</wicri:regionArea><placeName><settlement type="city">Amsterdam</settlement><region nuts="2" type="province">Hollande-Septentrionale</region></placeName></affiliation></author><author><name sortKey="Hilton Jones, David" sort="Hilton Jones, David" uniqKey="Hilton Jones D" first="David" last="Hilton-Jones">David Hilton-Jones</name><affiliation wicri:level="3"><nlm:affiliation>Department of Neurology, John Radcliffe Hospital, Oxford, UK.</nlm:affiliation><country xml:lang="fr">Royaume-Uni</country><wicri:regionArea>Department of Neurology, John Radcliffe Hospital, Oxford</wicri:regionArea><placeName><settlement type="city">Oxford</settlement><region type="country">Angleterre</region><region type="comté" nuts="2">Oxfordshire</region></placeName></affiliation></author><author><name sortKey="Kissel, John T" sort="Kissel, John T" uniqKey="Kissel J" first="John T" last="Kissel">John T. Kissel</name><affiliation wicri:level="2"><nlm:affiliation>Departments of Neurology and Pediatrics, The Ohio State University Wexner Medical Center, Columbus, OH, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>Departments of Neurology and Pediatrics, The Ohio State University Wexner Medical Center, Columbus, OH</wicri:regionArea><placeName><region type="state">Ohio</region></placeName></affiliation></author><author><name sortKey="Lloyd, Thomas E" sort="Lloyd, Thomas E" uniqKey="Lloyd T" first="Thomas E" last="Lloyd">Thomas E. Lloyd</name><affiliation wicri:level="2"><nlm:affiliation>Departments of Neurology and Neuroscience, Johns Hopkins University School of Medicine, Baltimore, MD, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>Departments of Neurology and Neuroscience, Johns Hopkins University School of Medicine, Baltimore, MD</wicri:regionArea><placeName><region type="state">Maryland</region></placeName></affiliation></author><author><name sortKey="Lundberg, Ingrid E" sort="Lundberg, Ingrid E" uniqKey="Lundberg I" first="Ingrid E" last="Lundberg">Ingrid E. Lundberg</name><affiliation wicri:level="3"><nlm:affiliation>Rheumatology Unit, Department of Medicine, Karolinska University Hospital, Solna, Karolinska Institutet, Stockholm, Sweden.</nlm:affiliation><country xml:lang="fr">Suède</country><wicri:regionArea>Rheumatology Unit, Department of Medicine, Karolinska University Hospital, Solna, Karolinska Institutet, Stockholm</wicri:regionArea><placeName><settlement type="city">Stockholm</settlement><region nuts="2">Svealand</region></placeName></affiliation></author><author><name sortKey="Mastaglia, Francis" sort="Mastaglia, Francis" uniqKey="Mastaglia F" first="Francis" last="Mastaglia">Francis Mastaglia</name><affiliation wicri:level="1"><nlm:affiliation>Institute for Immunology and Infectious Diseases, Murdoch University, WA, Australia.</nlm:affiliation><country xml:lang="fr">Australie</country><wicri:regionArea>Institute for Immunology and Infectious Diseases, Murdoch University, WA</wicri:regionArea><wicri:noRegion>WA</wicri:noRegion></affiliation></author><author><name sortKey="Mozaffar, Tahseen" sort="Mozaffar, Tahseen" uniqKey="Mozaffar T" first="Tahseen" last="Mozaffar">Tahseen Mozaffar</name><affiliation wicri:level="2"><nlm:affiliation>Department of Neurology and Orthopedic Surgery, University of California, Irvine, CA, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>Department of Neurology and Orthopedic Surgery, University of California, Irvine, CA</wicri:regionArea><placeName><region type="state">Californie</region></placeName></affiliation></author><author><name sortKey="Needham, Merrilee" sort="Needham, Merrilee" uniqKey="Needham M" first="Merrilee" last="Needham">Merrilee Needham</name><affiliation wicri:level="1"><nlm:affiliation>Western Australian Neuromuscular Research Institute, University of Western Australia, Murdoch University and Department of Neurology, Fiona Stanley Hospital, Perth, WA, Australia.</nlm:affiliation><country xml:lang="fr">Australie</country><wicri:regionArea>Western Australian Neuromuscular Research Institute, University of Western Australia, Murdoch University and Department of Neurology, Fiona Stanley Hospital, Perth, WA</wicri:regionArea><wicri:noRegion>WA</wicri:noRegion></affiliation></author><author><name sortKey="Schmidt, Jens" sort="Schmidt, Jens" uniqKey="Schmidt J" first="Jens" last="Schmidt">Jens Schmidt</name><affiliation wicri:level="3"><nlm:affiliation>Department of Neurology, University Medical Center Göttingen; Department of Neuroimmunology, Institute for Multiple Sclerosis Research and Hertie Foundation, University Medical Center Göttingen, Göttingen, Germany.</nlm:affiliation><country xml:lang="fr">Allemagne</country><wicri:regionArea>Department of Neurology, University Medical Center Göttingen; Department of Neuroimmunology, Institute for Multiple Sclerosis Research and Hertie Foundation, University Medical Center Göttingen, Göttingen</wicri:regionArea><placeName><region type="land" nuts="2">Basse-Saxe</region><settlement type="city">Göttingen</settlement></placeName></affiliation></author><author><name sortKey="Sivakumar, Kumaraswamy" sort="Sivakumar, Kumaraswamy" uniqKey="Sivakumar K" first="Kumaraswamy" last="Sivakumar">Kumaraswamy Sivakumar</name><affiliation wicri:level="2"><nlm:affiliation>Arizona Neurological Research Center, Scottsdale, AZ, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>Arizona Neurological Research Center, Scottsdale, AZ</wicri:regionArea><placeName><region type="state">Arizona</region></placeName></affiliation></author><author><name sortKey="Demuro, Carla" sort="Demuro, Carla" uniqKey="Demuro C" first="Carla" last="Demuro">Carla Demuro</name><affiliation wicri:level="2"><nlm:affiliation>RTI Health Solutions, Research Triangle Park, NC, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>RTI Health Solutions, Research Triangle Park, NC</wicri:regionArea><placeName><region type="state">Caroline du Nord</region></placeName></affiliation></author><author><name sortKey="Tseng, Brian S" sort="Tseng, Brian S" uniqKey="Tseng B" first="Brian S" last="Tseng">Brian S. Tseng</name><affiliation wicri:level="2"><nlm:affiliation>Novartis Pharma Corporation, East Hanover, NJ, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>Novartis Pharma Corporation, East Hanover, NJ</wicri:regionArea><placeName><region type="state">New Jersey</region></placeName></affiliation></author></titleStmt><publicationStmt><idno type="wicri:source">PubMed</idno><date when="2016">2016</date><idno type="RBID">pubmed:27854208</idno><idno type="pmid">27854208</idno><idno type="doi">10.3233/JND-150138</idno><idno type="wicri:Area/PubMed/Corpus">002167</idno><idno type="wicri:explorRef" wicri:stream="PubMed" wicri:step="Corpus" wicri:corpus="PubMed">002167</idno><idno type="wicri:Area/PubMed/Curation">002141</idno><idno type="wicri:explorRef" wicri:stream="PubMed" wicri:step="Curation">002141</idno><idno type="wicri:Area/PubMed/Checkpoint">002141</idno><idno type="wicri:explorRef" wicri:stream="Checkpoint" wicri:step="PubMed">002141</idno></publicationStmt><sourceDesc><biblStruct><analytic><title xml:lang="en">Mortality and Causes of Death in Patients with Sporadic Inclusion Body Myositis: Survey Study Based on the Clinical Experience of Specialists in Australia, Europe and the USA.</title><author><name sortKey="Price, Mark A" sort="Price, Mark A" uniqKey="Price M" first="Mark A" last="Price">Mark A. Price</name><affiliation wicri:level="2"><nlm:affiliation>RTI Health Solutions, Research Triangle Park, NC, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>RTI Health Solutions, Research Triangle Park, NC</wicri:regionArea><placeName><region type="state">Caroline du Nord</region></placeName></affiliation></author><author><name sortKey="Barghout, Victoria" sort="Barghout, Victoria" uniqKey="Barghout V" first="Victoria" last="Barghout">Victoria Barghout</name><affiliation wicri:level="2"><nlm:affiliation>VEB HealthCare LLC, Morristown, NJ, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>VEB HealthCare LLC, Morristown, NJ</wicri:regionArea><placeName><region type="state">New Jersey</region></placeName></affiliation></author><author><name sortKey="Benveniste, Olivier" sort="Benveniste, Olivier" uniqKey="Benveniste O" first="Olivier" last="Benveniste">Olivier Benveniste</name><affiliation wicri:level="3"><nlm:affiliation>Assistance Publique - Hôpitaux de Paris, Pitié-Salpêtrière University Hospital, Department of Internal Medicine, Pierre and Marie Curie University, Paris, France.</nlm:affiliation><country xml:lang="fr">France</country><wicri:regionArea>Assistance Publique - Hôpitaux de Paris, Pitié-Salpêtrière University Hospital, Department of Internal Medicine, Pierre and Marie Curie University, Paris</wicri:regionArea><placeName><region type="region">Île-de-France</region><region type="old region">Île-de-France</region><settlement type="city">Paris</settlement></placeName></affiliation></author><author><name sortKey="Christopher Stine, Lisa" sort="Christopher Stine, Lisa" uniqKey="Christopher Stine L" first="Lisa" last="Christopher-Stine">Lisa Christopher-Stine</name><affiliation wicri:level="2"><nlm:affiliation>Johns Hopkins Myositis Center, Division of Rheumatology, Johns Hopkins University, Baltimore, MD, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>Johns Hopkins Myositis Center, Division of Rheumatology, Johns Hopkins University, Baltimore, MD</wicri:regionArea><placeName><region type="state">Maryland</region></placeName></affiliation></author><author><name sortKey="Corbett, Alastair" sort="Corbett, Alastair" uniqKey="Corbett A" first="Alastair" last="Corbett">Alastair Corbett</name><affiliation wicri:level="1"><nlm:affiliation>Department of Neurology, Concord Hospital, Concord, NSW, Australia.</nlm:affiliation><country xml:lang="fr">Australie</country><wicri:regionArea>Department of Neurology, Concord Hospital, Concord, NSW</wicri:regionArea><wicri:noRegion>NSW</wicri:noRegion></affiliation></author><author><name sortKey="De Visser, Marianne" sort="De Visser, Marianne" uniqKey="De Visser M" first="Marianne" last="De Visser">Marianne De Visser</name><affiliation wicri:level="3"><nlm:affiliation>Department of Neurology, Academic Medical Center, Amsterdam, Netherlands.</nlm:affiliation><country xml:lang="fr">Pays-Bas</country><wicri:regionArea>Department of Neurology, Academic Medical Center, Amsterdam</wicri:regionArea><placeName><settlement type="city">Amsterdam</settlement><region nuts="2" type="province">Hollande-Septentrionale</region></placeName></affiliation></author><author><name sortKey="Hilton Jones, David" sort="Hilton Jones, David" uniqKey="Hilton Jones D" first="David" last="Hilton-Jones">David Hilton-Jones</name><affiliation wicri:level="3"><nlm:affiliation>Department of Neurology, John Radcliffe Hospital, Oxford, UK.</nlm:affiliation><country xml:lang="fr">Royaume-Uni</country><wicri:regionArea>Department of Neurology, John Radcliffe Hospital, Oxford</wicri:regionArea><placeName><settlement type="city">Oxford</settlement><region type="country">Angleterre</region><region type="comté" nuts="2">Oxfordshire</region></placeName></affiliation></author><author><name sortKey="Kissel, John T" sort="Kissel, John T" uniqKey="Kissel J" first="John T" last="Kissel">John T. Kissel</name><affiliation wicri:level="2"><nlm:affiliation>Departments of Neurology and Pediatrics, The Ohio State University Wexner Medical Center, Columbus, OH, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>Departments of Neurology and Pediatrics, The Ohio State University Wexner Medical Center, Columbus, OH</wicri:regionArea><placeName><region type="state">Ohio</region></placeName></affiliation></author><author><name sortKey="Lloyd, Thomas E" sort="Lloyd, Thomas E" uniqKey="Lloyd T" first="Thomas E" last="Lloyd">Thomas E. Lloyd</name><affiliation wicri:level="2"><nlm:affiliation>Departments of Neurology and Neuroscience, Johns Hopkins University School of Medicine, Baltimore, MD, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>Departments of Neurology and Neuroscience, Johns Hopkins University School of Medicine, Baltimore, MD</wicri:regionArea><placeName><region type="state">Maryland</region></placeName></affiliation></author><author><name sortKey="Lundberg, Ingrid E" sort="Lundberg, Ingrid E" uniqKey="Lundberg I" first="Ingrid E" last="Lundberg">Ingrid E. Lundberg</name><affiliation wicri:level="3"><nlm:affiliation>Rheumatology Unit, Department of Medicine, Karolinska University Hospital, Solna, Karolinska Institutet, Stockholm, Sweden.</nlm:affiliation><country xml:lang="fr">Suède</country><wicri:regionArea>Rheumatology Unit, Department of Medicine, Karolinska University Hospital, Solna, Karolinska Institutet, Stockholm</wicri:regionArea><placeName><settlement type="city">Stockholm</settlement><region nuts="2">Svealand</region></placeName></affiliation></author><author><name sortKey="Mastaglia, Francis" sort="Mastaglia, Francis" uniqKey="Mastaglia F" first="Francis" last="Mastaglia">Francis Mastaglia</name><affiliation wicri:level="1"><nlm:affiliation>Institute for Immunology and Infectious Diseases, Murdoch University, WA, Australia.</nlm:affiliation><country xml:lang="fr">Australie</country><wicri:regionArea>Institute for Immunology and Infectious Diseases, Murdoch University, WA</wicri:regionArea><wicri:noRegion>WA</wicri:noRegion></affiliation></author><author><name sortKey="Mozaffar, Tahseen" sort="Mozaffar, Tahseen" uniqKey="Mozaffar T" first="Tahseen" last="Mozaffar">Tahseen Mozaffar</name><affiliation wicri:level="2"><nlm:affiliation>Department of Neurology and Orthopedic Surgery, University of California, Irvine, CA, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>Department of Neurology and Orthopedic Surgery, University of California, Irvine, CA</wicri:regionArea><placeName><region type="state">Californie</region></placeName></affiliation></author><author><name sortKey="Needham, Merrilee" sort="Needham, Merrilee" uniqKey="Needham M" first="Merrilee" last="Needham">Merrilee Needham</name><affiliation wicri:level="1"><nlm:affiliation>Western Australian Neuromuscular Research Institute, University of Western Australia, Murdoch University and Department of Neurology, Fiona Stanley Hospital, Perth, WA, Australia.</nlm:affiliation><country xml:lang="fr">Australie</country><wicri:regionArea>Western Australian Neuromuscular Research Institute, University of Western Australia, Murdoch University and Department of Neurology, Fiona Stanley Hospital, Perth, WA</wicri:regionArea><wicri:noRegion>WA</wicri:noRegion></affiliation></author><author><name sortKey="Schmidt, Jens" sort="Schmidt, Jens" uniqKey="Schmidt J" first="Jens" last="Schmidt">Jens Schmidt</name><affiliation wicri:level="3"><nlm:affiliation>Department of Neurology, University Medical Center Göttingen; Department of Neuroimmunology, Institute for Multiple Sclerosis Research and Hertie Foundation, University Medical Center Göttingen, Göttingen, Germany.</nlm:affiliation><country xml:lang="fr">Allemagne</country><wicri:regionArea>Department of Neurology, University Medical Center Göttingen; Department of Neuroimmunology, Institute for Multiple Sclerosis Research and Hertie Foundation, University Medical Center Göttingen, Göttingen</wicri:regionArea><placeName><region type="land" nuts="2">Basse-Saxe</region><settlement type="city">Göttingen</settlement></placeName></affiliation></author><author><name sortKey="Sivakumar, Kumaraswamy" sort="Sivakumar, Kumaraswamy" uniqKey="Sivakumar K" first="Kumaraswamy" last="Sivakumar">Kumaraswamy Sivakumar</name><affiliation wicri:level="2"><nlm:affiliation>Arizona Neurological Research Center, Scottsdale, AZ, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>Arizona Neurological Research Center, Scottsdale, AZ</wicri:regionArea><placeName><region type="state">Arizona</region></placeName></affiliation></author><author><name sortKey="Demuro, Carla" sort="Demuro, Carla" uniqKey="Demuro C" first="Carla" last="Demuro">Carla Demuro</name><affiliation wicri:level="2"><nlm:affiliation>RTI Health Solutions, Research Triangle Park, NC, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>RTI Health Solutions, Research Triangle Park, NC</wicri:regionArea><placeName><region type="state">Caroline du Nord</region></placeName></affiliation></author><author><name sortKey="Tseng, Brian S" sort="Tseng, Brian S" uniqKey="Tseng B" first="Brian S" last="Tseng">Brian S. Tseng</name><affiliation wicri:level="2"><nlm:affiliation>Novartis Pharma Corporation, East Hanover, NJ, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>Novartis Pharma Corporation, East Hanover, NJ</wicri:regionArea><placeName><region type="state">New Jersey</region></placeName></affiliation></author></analytic><series><title level="j">Journal of neuromuscular diseases</title><idno type="ISSN">2214-3599</idno><imprint><date when="2016" type="published">2016</date></imprint></series></biblStruct></sourceDesc></fileDesc><profileDesc><textClass></textClass></profileDesc></teiHeader><front><div type="abstract" xml:lang="en">There is a paucity of data on mortality and causes of death (CoDs) in patients with sporadic inclusion body myositis (sIBM), a rare, progressive, degenerative, inflammatory myopathy that typically affects those aged over 50 years.</div></front></TEI><pubmed><MedlineCitation Status="In-Data-Review" Owner="NLM"><PMID Version="1">27854208</PMID><DateCreated><Year>2016</Year><Month>11</Month><Day>17</Day></DateCreated><DateRevised><Year>2017</Year><Month>02</Month><Day>20</Day></DateRevised><Article PubModel="Print"><Journal><ISSN IssnType="Print">2214-3599</ISSN><JournalIssue CitedMedium="Print"><Volume>3</Volume><Issue>1</Issue><PubDate><Year>2016</Year><Month>Mar</Month><Day>03</Day></PubDate></JournalIssue><Title>Journal of neuromuscular diseases</Title><ISOAbbreviation>J Neuromuscul Dis</ISOAbbreviation></Journal><ArticleTitle>Mortality and Causes of Death in Patients with Sporadic Inclusion Body Myositis: Survey Study Based on the Clinical Experience of Specialists in Australia, Europe and the USA.</ArticleTitle><Pagination><MedlinePgn>67-75</MedlinePgn></Pagination><Abstract><AbstractText Label="BACKGROUND" NlmCategory="BACKGROUND">There is a paucity of data on mortality and causes of death (CoDs) in patients with sporadic inclusion body myositis (sIBM), a rare, progressive, degenerative, inflammatory myopathy that typically affects those aged over 50 years.</AbstractText><AbstractText Label="OBJECTIVE" NlmCategory="OBJECTIVE">Based on patient records and expertise of clinical specialists, this study used questionnaires to evaluate physicians' views on clinical characteristics of sIBM that may impact on premature mortality and CoDs in these patients.</AbstractText><AbstractText Label="METHODS" NlmCategory="METHODS">Thirteen physicians from seven countries completed two questionnaires online between December 20, 2012 and January 15, 2013. Responses to the first questionnaire were collated and presented in the second questionnaire to seek elaboration and identify consensus.</AbstractText><AbstractText Label="RESULTS" NlmCategory="RESULTS">All 13 physicians completed both questionnaires, providing responses based on 585 living and 149 deceased patients under their care. Patients were reported to have experienced dysphagia (60.2%) and injurious falls (44.3%) during their disease. Over half of physicians reported that a subset of their patients with sIBM had a shortened lifespan (8/13), and agreed that bulbar dysfunction/dysphagia/oropharyngeal involvement (12/13), early-onset disease (8/13), severe symptoms (8/13), and falls (7/13) impacted lifespan. Factors related to sIBM were reported as CoDs in 40% of deceased patients. Oropharyngeal muscle dysfunction was ranked as the leading feature of sIBM that could contribute to death. The risk of premature mortality was higher than the age-matched comparison population.</AbstractText><AbstractText Label="CONCLUSIONS" NlmCategory="CONCLUSIONS">In the absence of data from traditional sources, this study suggests that features of sIBM may contribute to premature mortality and may be used to inform future studies.</AbstractText></Abstract><AuthorList CompleteYN="Y"><Author ValidYN="Y"><LastName>Price</LastName><ForeName>Mark A</ForeName><Initials>MA</Initials><AffiliationInfo><Affiliation>RTI Health Solutions, Research Triangle Park, NC, USA.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Barghout</LastName><ForeName>Victoria</ForeName><Initials>V</Initials><AffiliationInfo><Affiliation>VEB HealthCare LLC, Morristown, NJ, USA.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Benveniste</LastName><ForeName>Olivier</ForeName><Initials>O</Initials><AffiliationInfo><Affiliation>Assistance Publique - Hôpitaux de Paris, Pitié-Salpêtrière University Hospital, Department of Internal Medicine, Pierre and Marie Curie University, Paris, France.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Christopher-Stine</LastName><ForeName>Lisa</ForeName><Initials>L</Initials><AffiliationInfo><Affiliation>Johns Hopkins Myositis Center, Division of Rheumatology, Johns Hopkins University, Baltimore, MD, USA.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Corbett</LastName><ForeName>Alastair</ForeName><Initials>A</Initials><AffiliationInfo><Affiliation>Department of Neurology, Concord Hospital, Concord, NSW, Australia.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>de Visser</LastName><ForeName>Marianne</ForeName><Initials>M</Initials><AffiliationInfo><Affiliation>Department of Neurology, Academic Medical Center, Amsterdam, Netherlands.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Hilton-Jones</LastName><ForeName>David</ForeName><Initials>D</Initials><AffiliationInfo><Affiliation>Department of Neurology, John Radcliffe Hospital, Oxford, UK.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Kissel</LastName><ForeName>John T</ForeName><Initials>JT</Initials><AffiliationInfo><Affiliation>Departments of Neurology and Pediatrics, The Ohio State University Wexner Medical Center, Columbus, OH, USA.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Lloyd</LastName><ForeName>Thomas E</ForeName><Initials>TE</Initials><AffiliationInfo><Affiliation>Departments of Neurology and Neuroscience, Johns Hopkins University School of Medicine, Baltimore, MD, USA.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Lundberg</LastName><ForeName>Ingrid E</ForeName><Initials>IE</Initials><AffiliationInfo><Affiliation>Rheumatology Unit, Department of Medicine, Karolinska University Hospital, Solna, Karolinska Institutet, Stockholm, Sweden.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Mastaglia</LastName><ForeName>Francis</ForeName><Initials>F</Initials><AffiliationInfo><Affiliation>Institute for Immunology and Infectious Diseases, Murdoch University, WA, Australia.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Mozaffar</LastName><ForeName>Tahseen</ForeName><Initials>T</Initials><AffiliationInfo><Affiliation>Department of Neurology and Orthopedic Surgery, University of California, Irvine, CA, USA.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Needham</LastName><ForeName>Merrilee</ForeName><Initials>M</Initials><AffiliationInfo><Affiliation>Western Australian Neuromuscular Research Institute, University of Western Australia, Murdoch University and Department of Neurology, Fiona Stanley Hospital, Perth, WA, Australia.</Affiliation></AffiliationInfo></Author><Author 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USA.</Affiliation></AffiliationInfo></Author></AuthorList><Language>eng</Language><PublicationTypeList><PublicationType UI="D016428">Journal Article</PublicationType></PublicationTypeList></Article><MedlineJournalInfo><Country>Netherlands</Country><MedlineTA>J Neuromuscul Dis</MedlineTA><NlmUniqueID>101649948</NlmUniqueID></MedlineJournalInfo><CommentsCorrectionsList><CommentsCorrections RefType="Cites"><RefSource>Age Ageing. 2006 Jan;35(1):91-4</RefSource><PMID Version="1">16364943</PMID></CommentsCorrections><CommentsCorrections RefType="Cites"><RefSource>J Neurol Neurosurg Psychiatry. 2008 Sep;79(9):1056-60</RefSource><PMID Version="1">18258695</PMID></CommentsCorrections><CommentsCorrections RefType="Cites"><RefSource>Brain. 2011 Nov;134(Pt 11):3167-75</RefSource><PMID Version="1">21908393</PMID></CommentsCorrections><CommentsCorrections RefType="Cites"><RefSource>Brain. 2011 Nov;134(Pt 11):3176-84</RefSource><PMID 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disease</Keyword></KeywordList></MedlineCitation><PubmedData><History><PubMedPubDate PubStatus="entrez"><Year>2016</Year><Month>11</Month><Day>18</Day><Hour>6</Hour><Minute>0</Minute></PubMedPubDate><PubMedPubDate PubStatus="pubmed"><Year>2016</Year><Month>11</Month><Day>18</Day><Hour>6</Hour><Minute>0</Minute></PubMedPubDate><PubMedPubDate PubStatus="medline"><Year>2016</Year><Month>11</Month><Day>18</Day><Hour>6</Hour><Minute>0</Minute></PubMedPubDate></History><PublicationStatus>ppublish</PublicationStatus><ArticleIdList><ArticleId IdType="pubmed">27854208</ArticleId><ArticleId IdType="pii">JND150138</ArticleId><ArticleId IdType="doi">10.3233/JND-150138</ArticleId><ArticleId IdType="pmc">PMC5271419</ArticleId></ArticleIdList></PubmedData></pubmed><affiliations><list><country><li>Allemagne</li><li>Australie</li><li>France</li><li>Pays-Bas</li><li>Royaume-Uni</li><li>Suède</li><li>États-Unis</li></country><region><li>Angleterre</li><li>Arizona</li><li>Basse-Saxe</li><li>Californie</li><li>Caroline du Nord</li><li>Hollande-Septentrionale</li><li>Maryland</li><li>New Jersey</li><li>Ohio</li><li>Oxfordshire</li><li>Svealand</li><li>Île-de-France</li></region><settlement><li>Amsterdam</li><li>Göttingen</li><li>Oxford</li><li>Paris</li><li>Stockholm</li></settlement></list><tree><country name="États-Unis"><region name="Caroline du Nord"><name sortKey="Price, Mark A" sort="Price, Mark A" uniqKey="Price M" first="Mark A" last="Price">Mark A. Price</name></region><name sortKey="Barghout, Victoria" sort="Barghout, Victoria" uniqKey="Barghout V" first="Victoria" last="Barghout">Victoria Barghout</name><name sortKey="Christopher Stine, Lisa" sort="Christopher Stine, Lisa" uniqKey="Christopher Stine L" first="Lisa" last="Christopher-Stine">Lisa Christopher-Stine</name><name sortKey="Demuro, Carla" sort="Demuro, Carla" uniqKey="Demuro C" first="Carla" last="Demuro">Carla Demuro</name><name sortKey="Kissel, John T" sort="Kissel, John T" uniqKey="Kissel J" first="John T" last="Kissel">John T. Kissel</name><name sortKey="Lloyd, Thomas E" sort="Lloyd, Thomas E" uniqKey="Lloyd T" first="Thomas E" last="Lloyd">Thomas E. Lloyd</name><name sortKey="Mozaffar, Tahseen" sort="Mozaffar, Tahseen" uniqKey="Mozaffar T" first="Tahseen" last="Mozaffar">Tahseen Mozaffar</name><name sortKey="Sivakumar, Kumaraswamy" sort="Sivakumar, Kumaraswamy" uniqKey="Sivakumar K" first="Kumaraswamy" last="Sivakumar">Kumaraswamy Sivakumar</name><name sortKey="Tseng, Brian S" sort="Tseng, Brian S" uniqKey="Tseng B" first="Brian S" last="Tseng">Brian S. Tseng</name></country><country name="France"><region name="Île-de-France"><name sortKey="Benveniste, Olivier" sort="Benveniste, Olivier" uniqKey="Benveniste O" first="Olivier" last="Benveniste">Olivier Benveniste</name></region></country><country name="Australie"><noRegion><name sortKey="Corbett, Alastair" sort="Corbett, Alastair" uniqKey="Corbett A" first="Alastair" last="Corbett">Alastair Corbett</name></noRegion><name sortKey="Mastaglia, Francis" sort="Mastaglia, Francis" uniqKey="Mastaglia F" first="Francis" last="Mastaglia">Francis Mastaglia</name><name sortKey="Needham, Merrilee" sort="Needham, Merrilee" uniqKey="Needham M" first="Merrilee" last="Needham">Merrilee Needham</name></country><country name="Pays-Bas"><region name="Hollande-Septentrionale"><name sortKey="De Visser, Marianne" sort="De Visser, Marianne" uniqKey="De Visser M" first="Marianne" last="De Visser">Marianne De Visser</name></region></country><country name="Royaume-Uni"><region name="Angleterre"><name sortKey="Hilton Jones, David" sort="Hilton Jones, David" uniqKey="Hilton Jones D" first="David" last="Hilton-Jones">David Hilton-Jones</name></region></country><country name="Suède"><region name="Svealand"><name sortKey="Lundberg, Ingrid E" sort="Lundberg, Ingrid E" uniqKey="Lundberg I" first="Ingrid E" last="Lundberg">Ingrid E. Lundberg</name></region></country><country name="Allemagne"><region name="Basse-Saxe"><name sortKey="Schmidt, Jens" sort="Schmidt, Jens" uniqKey="Schmidt J" first="Jens" last="Schmidt">Jens Schmidt</name></region></country></tree></affiliations></record>Pour manipuler ce document sous Unix (Dilib)
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