Limitations to providing adult cystic fibrosis care in Europe: Results of a care centre survey.
Identifieur interne : 000891 ( PubMed/Checkpoint ); précédent : 000890; suivant : 000892Limitations to providing adult cystic fibrosis care in Europe: Results of a care centre survey.
Auteurs : Susan Madge [Royaume-Uni] ; Scott C. Bell [Australie] ; Pierre-Régis Burgel [France] ; Karleen De Rijcke [Belgique] ; Francesco Blasi [Italie] ; J Stuart Elborn [Royaume-Uni]Source :
- Journal of cystic fibrosis : official journal of the European Cystic Fibrosis Society [ 1873-5010 ] ; 2017.
Abstract
There are a growing number of adults in Europe with a projected increase of 75% over the next decade. There is concern that provision of care will not be sufficient to meet needs. We aimed to establish the level of CF service throughout Europe.
DOI: 10.1016/j.jcf.2016.07.001
PubMed: 27469604
Affiliations:
- Australie, Belgique, France, Italie, Royaume-Uni
- Angleterre, Grand Londres, Lombardie, Région de Bruxelles-Capitale, Île-de-France
- Bruxelles, Londres, Milan, Paris
- Université Paris-Descartes
Links toward previous steps (curation, corpus...)
Links to Exploration step
pubmed:27469604Le document en format XML
<record><TEI><teiHeader><fileDesc><titleStmt><title xml:lang="en">Limitations to providing adult cystic fibrosis care in Europe: Results of a care centre survey.</title><author><name sortKey="Madge, Susan" sort="Madge, Susan" uniqKey="Madge S" first="Susan" last="Madge">Susan Madge</name><affiliation wicri:level="3"><nlm:affiliation>Department of Cystic Fibrosis, Royal Brompton Hospital, London, UK. Electronic address: s.madge@rbht.nhs.uk.</nlm:affiliation><country xml:lang="fr">Royaume-Uni</country><wicri:regionArea>Department of Cystic Fibrosis, Royal Brompton Hospital, London</wicri:regionArea><placeName><settlement type="city">Londres</settlement><region type="country">Angleterre</region><region type="région" nuts="1">Grand Londres</region></placeName></affiliation></author><author><name sortKey="Bell, Scott C" sort="Bell, Scott C" uniqKey="Bell S" first="Scott C" last="Bell">Scott C. Bell</name><affiliation wicri:level="1"><nlm:affiliation>Department of Thoracic Medicine, The Prince Charles Hospital, Brisbane, Australia; Lung Bacteria Group, QIMR Berghofer Medical Research Institute, Brisbane, Australia; School of Medicine, University of Queensland, Brisbane, Australia.</nlm:affiliation><country xml:lang="fr">Australie</country><wicri:regionArea>Department of Thoracic Medicine, The Prince Charles Hospital, Brisbane, Australia; Lung Bacteria Group, QIMR Berghofer Medical Research Institute, Brisbane, Australia; School of Medicine, University of Queensland, Brisbane</wicri:regionArea><wicri:noRegion>Brisbane</wicri:noRegion></affiliation></author><author><name sortKey="Burgel, Pierre Regis" sort="Burgel, Pierre Regis" uniqKey="Burgel P" first="Pierre-Régis" last="Burgel">Pierre-Régis Burgel</name><affiliation wicri:level="4"><nlm:affiliation>Department of Respiratory Medicine and Adult Cystic Fibrosis, Assistance Publique Hôpitaux de Paris, Paris, France; Université Paris Descartes, Sorbonne Paris Cité, Paris, France.</nlm:affiliation><country xml:lang="fr">France</country><wicri:regionArea>Department of Respiratory Medicine and Adult Cystic Fibrosis, Assistance Publique Hôpitaux de Paris, Paris, France; Université Paris Descartes, Sorbonne Paris Cité, Paris</wicri:regionArea><placeName><region type="region">Île-de-France</region><region type="old region">Île-de-France</region><settlement type="city">Paris</settlement><settlement type="city">Paris</settlement></placeName><orgName type="university">Université Paris-Descartes</orgName></affiliation></author><author><name sortKey="De Rijcke, Karleen" sort="De Rijcke, Karleen" uniqKey="De Rijcke K" first="Karleen" last="De Rijcke">Karleen De Rijcke</name><affiliation wicri:level="3"><nlm:affiliation>Cystic Fibrosis Europe, Brussels, Belgium.</nlm:affiliation><country xml:lang="fr">Belgique</country><wicri:regionArea>Cystic Fibrosis Europe, Brussels</wicri:regionArea><placeName><settlement type="city">Bruxelles</settlement><region nuts="2">Région de Bruxelles-Capitale</region></placeName></affiliation></author><author><name sortKey="Blasi, Francesco" sort="Blasi, Francesco" uniqKey="Blasi F" first="Francesco" last="Blasi">Francesco Blasi</name><affiliation wicri:level="3"><nlm:affiliation>Department of Pathophysiology and Transplantation, Università degli Studi di Milano, Fondazione IRCCS Cà Granda Ospedale Maggiore Policlinico Milan, Italy; Cardio-thoracic unit, IRCCS Fondazione Ospedale Maggiore, Milan, Italy.</nlm:affiliation><country xml:lang="fr">Italie</country><wicri:regionArea>Department of Pathophysiology and Transplantation, Università degli Studi di Milano, Fondazione IRCCS Cà Granda Ospedale Maggiore Policlinico Milan, Italy; Cardio-thoracic unit, IRCCS Fondazione Ospedale Maggiore, Milan</wicri:regionArea><placeName><settlement type="city">Milan</settlement><region nuts="2">Lombardie</region></placeName></affiliation></author><author><name sortKey="Elborn, J Stuart" sort="Elborn, J Stuart" uniqKey="Elborn J" first="J Stuart" last="Elborn">J Stuart Elborn</name><affiliation wicri:level="1"><nlm:affiliation>Queen's University Belfast, BT9 Room G.16, Health Sciences Building, 97 Lisburn Road, Belfast, UK.</nlm:affiliation><country xml:lang="fr">Royaume-Uni</country><wicri:regionArea>Queen's University Belfast, BT9 Room G.16, Health Sciences Building, 97 Lisburn Road, Belfast</wicri:regionArea><wicri:noRegion>Belfast</wicri:noRegion></affiliation></author></titleStmt><publicationStmt><idno type="wicri:source">PubMed</idno><date when="2017">2017</date><idno type="RBID">pubmed:27469604</idno><idno type="pmid">27469604</idno><idno type="doi">10.1016/j.jcf.2016.07.001</idno><idno type="wicri:Area/PubMed/Corpus">001277</idno><idno type="wicri:explorRef" wicri:stream="PubMed" wicri:step="Corpus" wicri:corpus="PubMed">001277</idno><idno type="wicri:Area/PubMed/Curation">001266</idno><idno type="wicri:explorRef" wicri:stream="PubMed" wicri:step="Curation">001266</idno><idno type="wicri:Area/PubMed/Checkpoint">001266</idno><idno type="wicri:explorRef" wicri:stream="Checkpoint" wicri:step="PubMed">001266</idno></publicationStmt><sourceDesc><biblStruct><analytic><title xml:lang="en">Limitations to providing adult cystic fibrosis care in Europe: Results of a care centre survey.</title><author><name sortKey="Madge, Susan" sort="Madge, Susan" uniqKey="Madge S" first="Susan" last="Madge">Susan Madge</name><affiliation wicri:level="3"><nlm:affiliation>Department of Cystic Fibrosis, Royal Brompton Hospital, London, UK. Electronic address: s.madge@rbht.nhs.uk.</nlm:affiliation><country xml:lang="fr">Royaume-Uni</country><wicri:regionArea>Department of Cystic Fibrosis, Royal Brompton Hospital, London</wicri:regionArea><placeName><settlement type="city">Londres</settlement><region type="country">Angleterre</region><region type="région" nuts="1">Grand Londres</region></placeName></affiliation></author><author><name sortKey="Bell, Scott C" sort="Bell, Scott C" uniqKey="Bell S" first="Scott C" last="Bell">Scott C. Bell</name><affiliation wicri:level="1"><nlm:affiliation>Department of Thoracic Medicine, The Prince Charles Hospital, Brisbane, Australia; Lung Bacteria Group, QIMR Berghofer Medical Research Institute, Brisbane, Australia; School of Medicine, University of Queensland, Brisbane, Australia.</nlm:affiliation><country xml:lang="fr">Australie</country><wicri:regionArea>Department of Thoracic Medicine, The Prince Charles Hospital, Brisbane, Australia; Lung Bacteria Group, QIMR Berghofer Medical Research Institute, Brisbane, Australia; School of Medicine, University of Queensland, Brisbane</wicri:regionArea><wicri:noRegion>Brisbane</wicri:noRegion></affiliation></author><author><name sortKey="Burgel, Pierre Regis" sort="Burgel, Pierre Regis" uniqKey="Burgel P" first="Pierre-Régis" last="Burgel">Pierre-Régis Burgel</name><affiliation wicri:level="4"><nlm:affiliation>Department of Respiratory Medicine and Adult Cystic Fibrosis, Assistance Publique Hôpitaux de Paris, Paris, France; Université Paris Descartes, Sorbonne Paris Cité, Paris, France.</nlm:affiliation><country xml:lang="fr">France</country><wicri:regionArea>Department of Respiratory Medicine and Adult Cystic Fibrosis, Assistance Publique Hôpitaux de Paris, Paris, France; Université Paris Descartes, Sorbonne Paris Cité, Paris</wicri:regionArea><placeName><region type="region">Île-de-France</region><region type="old region">Île-de-France</region><settlement type="city">Paris</settlement><settlement type="city">Paris</settlement></placeName><orgName type="university">Université Paris-Descartes</orgName></affiliation></author><author><name sortKey="De Rijcke, Karleen" sort="De Rijcke, Karleen" uniqKey="De Rijcke K" first="Karleen" last="De Rijcke">Karleen De Rijcke</name><affiliation wicri:level="3"><nlm:affiliation>Cystic Fibrosis Europe, Brussels, Belgium.</nlm:affiliation><country xml:lang="fr">Belgique</country><wicri:regionArea>Cystic Fibrosis Europe, Brussels</wicri:regionArea><placeName><settlement type="city">Bruxelles</settlement><region nuts="2">Région de Bruxelles-Capitale</region></placeName></affiliation></author><author><name sortKey="Blasi, Francesco" sort="Blasi, Francesco" uniqKey="Blasi F" first="Francesco" last="Blasi">Francesco Blasi</name><affiliation wicri:level="3"><nlm:affiliation>Department of Pathophysiology and Transplantation, Università degli Studi di Milano, Fondazione IRCCS Cà Granda Ospedale Maggiore Policlinico Milan, Italy; Cardio-thoracic unit, IRCCS Fondazione Ospedale Maggiore, Milan, Italy.</nlm:affiliation><country xml:lang="fr">Italie</country><wicri:regionArea>Department of Pathophysiology and Transplantation, Università degli Studi di Milano, Fondazione IRCCS Cà Granda Ospedale Maggiore Policlinico Milan, Italy; Cardio-thoracic unit, IRCCS Fondazione Ospedale Maggiore, Milan</wicri:regionArea><placeName><settlement type="city">Milan</settlement><region nuts="2">Lombardie</region></placeName></affiliation></author><author><name sortKey="Elborn, J Stuart" sort="Elborn, J Stuart" uniqKey="Elborn J" first="J Stuart" last="Elborn">J Stuart Elborn</name><affiliation wicri:level="1"><nlm:affiliation>Queen's University Belfast, BT9 Room G.16, Health Sciences Building, 97 Lisburn Road, Belfast, UK.</nlm:affiliation><country xml:lang="fr">Royaume-Uni</country><wicri:regionArea>Queen's University Belfast, BT9 Room G.16, Health Sciences Building, 97 Lisburn Road, Belfast</wicri:regionArea><wicri:noRegion>Belfast</wicri:noRegion></affiliation></author></analytic><series><title level="j">Journal of cystic fibrosis : official journal of the European Cystic Fibrosis Society</title><idno type="eISSN">1873-5010</idno><imprint><date when="2017" type="published">2017</date></imprint></series></biblStruct></sourceDesc></fileDesc><profileDesc><textClass></textClass></profileDesc></teiHeader><front><div type="abstract" xml:lang="en">There are a growing number of adults in Europe with a projected increase of 75% over the next decade. There is concern that provision of care will not be sufficient to meet needs. We aimed to establish the level of CF service throughout Europe.</div></front></TEI><pubmed><MedlineCitation Status="In-Process" Owner="NLM"><PMID Version="1">27469604</PMID><DateCreated><Year>2016</Year><Month>07</Month><Day>29</Day></DateCreated><DateRevised><Year>2017</Year><Month>01</Month><Day>17</Day></DateRevised><Article PubModel="Print-Electronic"><Journal><ISSN IssnType="Electronic">1873-5010</ISSN><JournalIssue CitedMedium="Internet"><Volume>16</Volume><Issue>1</Issue><PubDate><Year>2017</Year><Month>Jan</Month></PubDate></JournalIssue><Title>Journal of cystic fibrosis : official journal of the European Cystic Fibrosis Society</Title><ISOAbbreviation>J. Cyst. Fibros.</ISOAbbreviation></Journal><ArticleTitle>Limitations to providing adult cystic fibrosis care in Europe: Results of a care centre survey.</ArticleTitle><Pagination><MedlinePgn>85-88</MedlinePgn></Pagination><ELocationID EIdType="pii" ValidYN="Y">S1569-1993(16)30558-6</ELocationID><ELocationID EIdType="doi" ValidYN="Y">10.1016/j.jcf.2016.07.001</ELocationID><Abstract><AbstractText Label="BACKGROUND" NlmCategory="BACKGROUND">There are a growing number of adults in Europe with a projected increase of 75% over the next decade. There is concern that provision of care will not be sufficient to meet needs. We aimed to establish the level of CF service throughout Europe.</AbstractText><AbstractText Label="METHODS" NlmCategory="METHODS">An online survey designed by clinicians and patient representatives to explore level of service.</AbstractText><AbstractText Label="RESULTS" NlmCategory="RESULTS">Training opportunities for clinicians and resources (physical and manpower) to provide care to adults with CF are limited in Europe. Although specific adult CF care has been identified, teams continue to be supported by paediatric colleagues and many adults are still being admitted to paediatric wards. In some centres, service delivery, particularly infection control and access to some CF medication is insufficient and in many places poor personnel resources limits access to comprehensive multidisciplinary teams.</AbstractText><AbstractText Label="CONCLUSIONS" NlmCategory="CONCLUSIONS">This survey shows an urgent need for the development of resources for adult CF care, in both physical space and appropriately trained clinicians.</AbstractText><CopyrightInformation>Copyright © 2016 European Cystic Fibrosis Society. Published by Elsevier B.V. All rights reserved.</CopyrightInformation></Abstract><AuthorList CompleteYN="Y"><Author ValidYN="Y"><LastName>Madge</LastName><ForeName>Susan</ForeName><Initials>S</Initials><AffiliationInfo><Affiliation>Department of Cystic Fibrosis, Royal Brompton Hospital, London, UK. Electronic address: s.madge@rbht.nhs.uk.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Bell</LastName><ForeName>Scott C</ForeName><Initials>SC</Initials><AffiliationInfo><Affiliation>Department of Thoracic Medicine, The Prince Charles Hospital, Brisbane, Australia; Lung Bacteria Group, QIMR Berghofer Medical Research Institute, Brisbane, Australia; School of Medicine, University of Queensland, Brisbane, Australia.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Burgel</LastName><ForeName>Pierre-Régis</ForeName><Initials>PR</Initials><AffiliationInfo><Affiliation>Department of Respiratory Medicine and Adult Cystic Fibrosis, Assistance Publique Hôpitaux de Paris, Paris, France; Université Paris Descartes, Sorbonne Paris Cité, Paris, France.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>De Rijcke</LastName><ForeName>Karleen</ForeName><Initials>K</Initials><AffiliationInfo><Affiliation>Cystic Fibrosis Europe, Brussels, Belgium.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Blasi</LastName><ForeName>Francesco</ForeName><Initials>F</Initials><AffiliationInfo><Affiliation>Department of Pathophysiology and Transplantation, Università degli Studi di Milano, Fondazione IRCCS Cà Granda Ospedale Maggiore Policlinico Milan, Italy; Cardio-thoracic unit, IRCCS Fondazione Ospedale Maggiore, Milan, Italy.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Elborn</LastName><ForeName>J Stuart</ForeName><Initials>JS</Initials><AffiliationInfo><Affiliation>Queen's University Belfast, BT9 Room G.16, Health Sciences Building, 97 Lisburn Road, Belfast, UK.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><CollectiveName>ERS/ECFS task force: The provision of care for adults with cystic fibrosis in Europe</CollectiveName></Author></AuthorList><Language>eng</Language><PublicationTypeList><PublicationType UI="D016428">Journal Article</PublicationType></PublicationTypeList><ArticleDate DateType="Electronic"><Year>2016</Year><Month>07</Month><Day>26</Day></ArticleDate></Article><MedlineJournalInfo><Country>Netherlands</Country><MedlineTA>J Cyst Fibros</MedlineTA><NlmUniqueID>101128966</NlmUniqueID><ISSNLinking>1569-1993</ISSNLinking></MedlineJournalInfo><KeywordList Owner="NOTNLM"><Keyword MajorTopicYN="N">Adults</Keyword><Keyword MajorTopicYN="N">Cystic fibrosis</Keyword><Keyword MajorTopicYN="N">Eastern Europe</Keyword><Keyword MajorTopicYN="N">Service provision</Keyword><Keyword MajorTopicYN="N">Western Europe</Keyword></KeywordList></MedlineCitation><PubmedData><History><PubMedPubDate PubStatus="received"><Year>2016</Year><Month>04</Month><Day>07</Day></PubMedPubDate><PubMedPubDate PubStatus="revised"><Year>2016</Year><Month>06</Month><Day>28</Day></PubMedPubDate><PubMedPubDate PubStatus="accepted"><Year>2016</Year><Month>07</Month><Day>01</Day></PubMedPubDate><PubMedPubDate PubStatus="pubmed"><Year>2016</Year><Month>7</Month><Day>30</Day><Hour>6</Hour><Minute>0</Minute></PubMedPubDate><PubMedPubDate PubStatus="medline"><Year>2016</Year><Month>7</Month><Day>30</Day><Hour>6</Hour><Minute>0</Minute></PubMedPubDate><PubMedPubDate PubStatus="entrez"><Year>2016</Year><Month>7</Month><Day>30</Day><Hour>6</Hour><Minute>0</Minute></PubMedPubDate></History><PublicationStatus>ppublish</PublicationStatus><ArticleIdList><ArticleId IdType="pubmed">27469604</ArticleId><ArticleId IdType="pii">S1569-1993(16)30558-6</ArticleId><ArticleId IdType="doi">10.1016/j.jcf.2016.07.001</ArticleId></ArticleIdList></PubmedData></pubmed><affiliations><list><country><li>Australie</li><li>Belgique</li><li>France</li><li>Italie</li><li>Royaume-Uni</li></country><region><li>Angleterre</li><li>Grand Londres</li><li>Lombardie</li><li>Région de Bruxelles-Capitale</li><li>Île-de-France</li></region><settlement><li>Bruxelles</li><li>Londres</li><li>Milan</li><li>Paris</li></settlement><orgName><li>Université Paris-Descartes</li></orgName></list><tree><country name="Royaume-Uni"><region name="Angleterre"><name sortKey="Madge, Susan" sort="Madge, Susan" uniqKey="Madge S" first="Susan" last="Madge">Susan Madge</name></region><name sortKey="Elborn, J Stuart" sort="Elborn, J Stuart" uniqKey="Elborn J" first="J Stuart" last="Elborn">J Stuart Elborn</name></country><country name="Australie"><noRegion><name sortKey="Bell, Scott C" sort="Bell, Scott C" uniqKey="Bell S" first="Scott C" last="Bell">Scott C. Bell</name></noRegion></country><country name="France"><region name="Île-de-France"><name sortKey="Burgel, Pierre Regis" sort="Burgel, Pierre Regis" uniqKey="Burgel P" first="Pierre-Régis" last="Burgel">Pierre-Régis Burgel</name></region></country><country name="Belgique"><region name="Région de Bruxelles-Capitale"><name sortKey="De Rijcke, Karleen" sort="De Rijcke, Karleen" uniqKey="De Rijcke K" first="Karleen" last="De Rijcke">Karleen De Rijcke</name></region></country><country name="Italie"><region name="Lombardie"><name sortKey="Blasi, Francesco" sort="Blasi, Francesco" uniqKey="Blasi F" first="Francesco" last="Blasi">Francesco Blasi</name></region></country></tree></affiliations></record>Pour manipuler ce document sous Unix (Dilib)
EXPLOR_STEP=$WICRI_ROOT/Wicri/Asie/explor/AustralieFrV1/Data/PubMed/Checkpoint
HfdSelect -h $EXPLOR_STEP/biblio.hfd -nk 000891 | SxmlIndent | more
Ou
HfdSelect -h $EXPLOR_AREA/Data/PubMed/Checkpoint/biblio.hfd -nk 000891 | SxmlIndent | more
Pour mettre un lien sur cette page dans le réseau Wicri
{{Explor lien
|wiki= Wicri/Asie
|area= AustralieFrV1
|flux= PubMed
|étape= Checkpoint
|type= RBID
|clé= pubmed:27469604
|texte= Limitations to providing adult cystic fibrosis care in Europe: Results of a care centre survey.
}}
Pour générer des pages wiki
HfdIndexSelect -h $EXPLOR_AREA/Data/PubMed/Checkpoint/RBID.i -Sk "pubmed:27469604" \
| HfdSelect -Kh $EXPLOR_AREA/Data/PubMed/Checkpoint/biblio.hfd \
| NlmPubMed2Wicri -a AustralieFrV1
| This area was generated with Dilib version V0.6.33. |  |