Successful Stepwise Development of Patient Research Partnership: 14 Years' Experience of Actions and Consequences in Outcome Measures in Rheumatology (OMERACT).
Identifieur interne : 000325 ( PubMed/Checkpoint ); précédent : 000324; suivant : 000326Successful Stepwise Development of Patient Research Partnership: 14 Years' Experience of Actions and Consequences in Outcome Measures in Rheumatology (OMERACT).
Auteurs : Maarten De Wit [Pays-Bas] ; John R. Kirwan [Royaume-Uni] ; Peter Tugwell [Canada] ; Dorcas Beaton [Canada] ; Maarten Boers [Pays-Bas] ; Peter Brooks [Australie] ; Sarah Collins [Royaume-Uni] ; Philip G. Conaghan [Royaume-Uni] ; Maria-Antonietta D'Agostino [France] ; Cathie Hofstetter [Canada] ; Rod Hughes [Royaume-Uni] ; Amye Leong [États-Unis] ; Ann Lyddiatt [Canada] ; Lyn March [Australie] ; James May [États-Unis] ; Pamela Montie [Canada] ; Pamela Richards [Royaume-Uni] ; Lee S. Simon [États-Unis] ; Jasvinder A. Singh [États-Unis] ; Vibeke Strand [États-Unis] ; Marieke Voshaar [Pays-Bas] ; Clifton O. Bingham [États-Unis] ; Laure Gossec [France]Source :
- The patient [ 1178-1661 ] ; 2017.
Abstract
There is increasing interest in making patient participation an integral component of medical research. However, practical guidance on optimizing this engagement in healthcare is scarce. Since 2002, patient involvement has been one of the key features of the Outcome Measures in Rheumatology (OMERACT) international consensus effort. Based on a review of cumulative data from qualitative studies and internal surveys among OMERACT participants, we explored the potential benefits and challenges of involving patient research partners in conferences and working group activities. We supplemented our review with personal experiences and reflections regarding patient participation in the OMERACT process. We found that between 2002 and 2016, 67 patients have attended OMERACT conferences, of whom 28 had sustained involvement; many other patients contributed to OMERACT working groups. Their participation provided face validity to the OMERACT process and expanded the research agenda. Essential facilitators have been the financial commitment to guarantee sustainable involvement of patients at these conferences, procedures for recruitment, selection and support, and dedicated time allocated in the program for patient issues. Current challenges include the representativeness of the patient panel, risk of pseudo-professionalization, and disparity in patients' and researchers' perception of involvement. In conclusion, OMERACT has embedded long-term patient involvement in the consensus-building process on the measurement of core health outcomes. This integrative process continues to evolve iteratively. We believe that the practical points raised here can improve participatory research implementation.
DOI: 10.1007/s40271-016-0198-4
PubMed: 27704486
Affiliations:
- Australie, Canada, France, Pays-Bas, Royaume-Uni, États-Unis
- Alabama, Angleterre, Californie, Grand Londres, Hollande-Septentrionale, Maryland, Nouvelle-Galles du Sud, Ontario, Victoria (État), Washington (État), Yorkshire-et-Humber, Île-de-France
- Amsterdam, Boulogne-Billancourt, Leeds, Londres, Melbourne, Paris, Sydney, Toronto
- Université de Leeds, Université de Melbourne, Université de Sydney, Université de Toronto
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<record><TEI><teiHeader><fileDesc><titleStmt><title xml:lang="en">Successful Stepwise Development of Patient Research Partnership: 14 Years' Experience of Actions and Consequences in Outcome Measures in Rheumatology (OMERACT).</title><author><name sortKey="De Wit, Maarten" sort="De Wit, Maarten" uniqKey="De Wit M" first="Maarten" last="De Wit">Maarten De Wit</name><affiliation wicri:level="3"><nlm:affiliation>OMERACT Patient Research Partner, Amsterdam, The Netherlands. mp.dewit@vumc.nl.</nlm:affiliation><country xml:lang="fr">Pays-Bas</country><wicri:regionArea>OMERACT Patient Research Partner, Amsterdam</wicri:regionArea><placeName><settlement type="city">Amsterdam</settlement><region nuts="2" type="province">Hollande-Septentrionale</region></placeName></affiliation></author><author><name sortKey="Kirwan, John R" sort="Kirwan, John R" uniqKey="Kirwan J" first="John R" last="Kirwan">John R. Kirwan</name><affiliation wicri:level="1"><nlm:affiliation>Academic Rheumatology Unit, Bristol Royal Infirmary, University of Bristol, Bristol, BS2 8HW, UK.</nlm:affiliation><country xml:lang="fr">Royaume-Uni</country><wicri:regionArea>Academic Rheumatology Unit, Bristol Royal Infirmary, University of Bristol, Bristol, BS2 8HW</wicri:regionArea><wicri:noRegion>BS2 8HW</wicri:noRegion></affiliation></author><author><name sortKey="Tugwell, Peter" sort="Tugwell, Peter" uniqKey="Tugwell P" first="Peter" last="Tugwell">Peter Tugwell</name><affiliation wicri:level="1"><nlm:affiliation>Department of Medicine, University of Ottawa, Ottawa, ON, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>Department of Medicine, University of Ottawa, Ottawa, ON</wicri:regionArea><wicri:noRegion>ON</wicri:noRegion></affiliation></author><author><name sortKey="Beaton, Dorcas" sort="Beaton, Dorcas" uniqKey="Beaton D" first="Dorcas" last="Beaton">Dorcas Beaton</name><affiliation wicri:level="4"><nlm:affiliation>Musculoskeletal Health and Outcomes Research, Li Ka Shing Knowledge Institute, St Michael's Hospital, University of Toronto, Toronto, ON, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>Musculoskeletal Health and Outcomes Research, Li Ka Shing Knowledge Institute, St Michael's Hospital, University of Toronto, Toronto, ON</wicri:regionArea><orgName type="university">Université de Toronto</orgName><placeName><settlement type="city">Toronto</settlement><region type="state">Ontario</region></placeName></affiliation></author><author><name sortKey="Boers, Maarten" sort="Boers, Maarten" uniqKey="Boers M" first="Maarten" last="Boers">Maarten Boers</name><affiliation wicri:level="3"><nlm:affiliation>Department of Epidemiology and Biostatistics, Amsterdam Rheumatology and Immunology Center, VU University Medical Center, Amsterdam, The Netherlands.</nlm:affiliation><country xml:lang="fr">Pays-Bas</country><wicri:regionArea>Department of Epidemiology and Biostatistics, Amsterdam Rheumatology and Immunology Center, VU University Medical Center, Amsterdam</wicri:regionArea><placeName><settlement type="city">Amsterdam</settlement><region nuts="2" type="province">Hollande-Septentrionale</region></placeName></affiliation></author><author><name sortKey="Brooks, Peter" sort="Brooks, Peter" uniqKey="Brooks P" first="Peter" last="Brooks">Peter Brooks</name><affiliation wicri:level="4"><nlm:affiliation>Centre for Health Policy School of Population and Global Health, University of Melbourne, Melbourne, VIC, Australia.</nlm:affiliation><country xml:lang="fr">Australie</country><wicri:regionArea>Centre for Health Policy School of Population and Global Health, University of Melbourne, Melbourne, VIC</wicri:regionArea><orgName type="university">Université de Melbourne</orgName><placeName><settlement type="city">Melbourne</settlement><region type="état">Victoria (État)</region></placeName></affiliation></author><author><name sortKey="Collins, Sarah" sort="Collins, Sarah" uniqKey="Collins S" first="Sarah" last="Collins">Sarah Collins</name><affiliation wicri:level="3"><nlm:affiliation>OMERACT Patient Research Partner, London, UK.</nlm:affiliation><country xml:lang="fr">Royaume-Uni</country><wicri:regionArea>OMERACT Patient Research Partner, London</wicri:regionArea><placeName><settlement type="city">Londres</settlement><region type="country">Angleterre</region><region type="région" nuts="1">Grand Londres</region></placeName></affiliation></author><author><name sortKey="Conaghan, Philip G" sort="Conaghan, Philip G" uniqKey="Conaghan P" first="Philip G" last="Conaghan">Philip G. Conaghan</name><affiliation wicri:level="4"><nlm:affiliation>NIHR Leeds Musculoskeletal Biomedical Research Unit, Leeds Institute of Rheumatic and Musculoskeletal Medicine, University of Leeds, Leeds, UK.</nlm:affiliation><country xml:lang="fr">Royaume-Uni</country><wicri:regionArea>NIHR Leeds Musculoskeletal Biomedical Research Unit, Leeds Institute of Rheumatic and Musculoskeletal Medicine, University of Leeds, Leeds</wicri:regionArea><orgName type="university">Université de Leeds</orgName><placeName><settlement type="city">Leeds</settlement><region type="country">Angleterre</region><region type="région" nuts="1">Yorkshire-et-Humber</region></placeName></affiliation></author><author><name sortKey="D Agostino, Maria Antonietta" sort="D Agostino, Maria Antonietta" uniqKey="D Agostino M" first="Maria-Antonietta" last="D'Agostino">Maria-Antonietta D'Agostino</name><affiliation wicri:level="3"><nlm:affiliation>Department of Rheumatology, Hôpital Ambroise Paré, APHP, Université Versailles Saint Quentin en Yvelines, Boulogne-Billancourt, France.</nlm:affiliation><country xml:lang="fr">France</country><wicri:regionArea>Department of Rheumatology, Hôpital Ambroise Paré, APHP, Université Versailles Saint Quentin en Yvelines, Boulogne-Billancourt</wicri:regionArea><placeName><region type="region">Île-de-France</region><region type="old region">Île-de-France</region><settlement type="city">Boulogne-Billancourt</settlement></placeName></affiliation></author><author><name sortKey="Hofstetter, Cathie" sort="Hofstetter, Cathie" uniqKey="Hofstetter C" first="Cathie" last="Hofstetter">Cathie Hofstetter</name><affiliation wicri:level="1"><nlm:affiliation>OMERACT Patient Research Partner, Vancouver, BC, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>OMERACT Patient Research Partner, Vancouver, BC</wicri:regionArea><wicri:noRegion>BC</wicri:noRegion></affiliation></author><author><name sortKey="Hughes, Rod" sort="Hughes, Rod" uniqKey="Hughes R" first="Rod" last="Hughes">Rod Hughes</name><affiliation wicri:level="1"><nlm:affiliation>Ashford St Peter's Foundation trust Hospital, Chertsey, Surrey, UK.</nlm:affiliation><country xml:lang="fr">Royaume-Uni</country><wicri:regionArea>Ashford St Peter's Foundation trust Hospital, Chertsey, Surrey</wicri:regionArea><wicri:noRegion>Surrey</wicri:noRegion></affiliation></author><author><name sortKey="Leong, Amye" sort="Leong, Amye" uniqKey="Leong A" first="Amye" last="Leong">Amye Leong</name><affiliation wicri:level="2"><nlm:affiliation>OMERACT Patient Research Partner, Santa Barbara, CA, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>OMERACT Patient Research Partner, Santa Barbara, CA</wicri:regionArea><placeName><region type="state">Californie</region></placeName></affiliation></author><author><name sortKey="Lyddiatt, Ann" sort="Lyddiatt, Ann" uniqKey="Lyddiatt A" first="Ann" last="Lyddiatt">Ann Lyddiatt</name><affiliation wicri:level="1"><nlm:affiliation>OMERACT Patient Research Partner, Vancouver, BC, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>OMERACT Patient Research Partner, Vancouver, BC</wicri:regionArea><wicri:noRegion>BC</wicri:noRegion></affiliation></author><author><name sortKey="March, Lyn" sort="March, Lyn" uniqKey="March L" first="Lyn" last="March">Lyn March</name><affiliation wicri:level="4"><nlm:affiliation>Institute of Bone and Joint Research, Sydney Medical School and School of Public Health, University of Sydney, Sydney, NSW, Australia.</nlm:affiliation><country xml:lang="fr">Australie</country><wicri:regionArea>Institute of Bone and Joint Research, Sydney Medical School and School of Public Health, University of Sydney, Sydney, NSW</wicri:regionArea><orgName type="university">Université de Sydney</orgName><placeName><settlement type="city">Sydney</settlement><region type="état">Nouvelle-Galles du Sud</region></placeName></affiliation></author><author><name sortKey="May, James" sort="May, James" uniqKey="May J" first="James" last="May">James May</name><affiliation wicri:level="2"><nlm:affiliation>OMERACT Patient Research Partner, Seattle, WA, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>OMERACT Patient Research Partner, Seattle, WA</wicri:regionArea><placeName><region type="state">Washington (État)</region></placeName></affiliation></author><author><name sortKey="Montie, Pamela" sort="Montie, Pamela" uniqKey="Montie P" first="Pamela" last="Montie">Pamela Montie</name><affiliation wicri:level="1"><nlm:affiliation>OMERACT Patient Research Partner, Vancouver, BC, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>OMERACT Patient Research Partner, Vancouver, BC</wicri:regionArea><wicri:noRegion>BC</wicri:noRegion></affiliation></author><author><name sortKey="Richards, Pamela" sort="Richards, Pamela" uniqKey="Richards P" first="Pamela" last="Richards">Pamela Richards</name><affiliation wicri:level="1"><nlm:affiliation>Academic Rheumatology Unit, Bristol Royal Infirmary, University of Bristol, Bristol, BS2 8HW, UK.</nlm:affiliation><country xml:lang="fr">Royaume-Uni</country><wicri:regionArea>Academic Rheumatology Unit, Bristol Royal Infirmary, University of Bristol, Bristol, BS2 8HW</wicri:regionArea><wicri:noRegion>BS2 8HW</wicri:noRegion></affiliation></author><author><name sortKey="Simon, Lee S" sort="Simon, Lee S" uniqKey="Simon L" first="Lee S" last="Simon">Lee S. Simon</name><affiliation wicri:level="1"><nlm:affiliation>SDG LLC, Cambridge, MA, 02139, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>SDG LLC, Cambridge, MA, 02139</wicri:regionArea><wicri:noRegion>02139</wicri:noRegion></affiliation></author><author><name sortKey="Singh, Jasvinder A" sort="Singh, Jasvinder A" uniqKey="Singh J" first="Jasvinder A" last="Singh">Jasvinder A. Singh</name><affiliation wicri:level="2"><nlm:affiliation>Medicine Service, VA Medical Center, Birmingham, AL, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>Medicine Service, VA Medical Center, Birmingham, AL</wicri:regionArea><placeName><region type="state">Alabama</region></placeName></affiliation></author><author><name sortKey="Strand, Vibeke" sort="Strand, Vibeke" uniqKey="Strand V" first="Vibeke" last="Strand">Vibeke Strand</name><affiliation wicri:level="2"><nlm:affiliation>Division Immunology/Rheumatology, Stanford University School of Medicine, Palo Alto, CA, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>Division Immunology/Rheumatology, Stanford University School of Medicine, Palo Alto, CA</wicri:regionArea><placeName><region type="state">Californie</region></placeName></affiliation></author><author><name sortKey="Voshaar, Marieke" sort="Voshaar, Marieke" uniqKey="Voshaar M" first="Marieke" last="Voshaar">Marieke Voshaar</name><affiliation wicri:level="3"><nlm:affiliation>OMERACT Patient Research Partner, Amsterdam, The Netherlands.</nlm:affiliation><country xml:lang="fr">Pays-Bas</country><wicri:regionArea>OMERACT Patient Research Partner, Amsterdam</wicri:regionArea><placeName><settlement type="city">Amsterdam</settlement><region nuts="2" type="province">Hollande-Septentrionale</region></placeName></affiliation></author><author><name sortKey="Bingham, Clifton O" sort="Bingham, Clifton O" uniqKey="Bingham C" first="Clifton O" last="Bingham">Clifton O. Bingham</name><affiliation wicri:level="2"><nlm:affiliation>Division of Rheumatology, Johns Hopkins University, Baltimore, MD, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>Division of Rheumatology, Johns Hopkins University, Baltimore, MD</wicri:regionArea><placeName><region type="state">Maryland</region></placeName></affiliation></author><author><name sortKey="Gossec, Laure" sort="Gossec, Laure" uniqKey="Gossec L" first="Laure" last="Gossec">Laure Gossec</name><affiliation wicri:level="3"><nlm:affiliation>Institut Pierre Louis d'Epidémiologie et de Santé Publique, Sorbonne Universités, UPMC Univ Paris 06, GRC-08, Paris, France.</nlm:affiliation><country xml:lang="fr">France</country><wicri:regionArea>Institut Pierre Louis d'Epidémiologie et de Santé Publique, Sorbonne Universités, UPMC Univ Paris 06, GRC-08, Paris</wicri:regionArea><placeName><region type="region">Île-de-France</region><region type="old region">Île-de-France</region><settlement type="city">Paris</settlement></placeName></affiliation></author></titleStmt><publicationStmt><idno type="wicri:source">PubMed</idno><date when="2017">2017</date><idno type="RBID">pubmed:27704486</idno><idno type="pmid">27704486</idno><idno type="doi">10.1007/s40271-016-0198-4</idno><idno type="wicri:Area/PubMed/Corpus">000E94</idno><idno type="wicri:explorRef" wicri:stream="PubMed" wicri:step="Corpus" wicri:corpus="PubMed">000E94</idno><idno type="wicri:Area/PubMed/Curation">000E91</idno><idno type="wicri:explorRef" wicri:stream="PubMed" wicri:step="Curation">000E91</idno><idno type="wicri:Area/PubMed/Checkpoint">000E91</idno><idno type="wicri:explorRef" wicri:stream="Checkpoint" wicri:step="PubMed">000E91</idno></publicationStmt><sourceDesc><biblStruct><analytic><title xml:lang="en">Successful Stepwise Development of Patient Research Partnership: 14 Years' Experience of Actions and Consequences in Outcome Measures in Rheumatology (OMERACT).</title><author><name sortKey="De Wit, Maarten" sort="De Wit, Maarten" uniqKey="De Wit M" first="Maarten" last="De Wit">Maarten De Wit</name><affiliation wicri:level="3"><nlm:affiliation>OMERACT Patient Research Partner, Amsterdam, The Netherlands. mp.dewit@vumc.nl.</nlm:affiliation><country xml:lang="fr">Pays-Bas</country><wicri:regionArea>OMERACT Patient Research Partner, Amsterdam</wicri:regionArea><placeName><settlement type="city">Amsterdam</settlement><region nuts="2" type="province">Hollande-Septentrionale</region></placeName></affiliation></author><author><name sortKey="Kirwan, John R" sort="Kirwan, John R" uniqKey="Kirwan J" first="John R" last="Kirwan">John R. Kirwan</name><affiliation wicri:level="1"><nlm:affiliation>Academic Rheumatology Unit, Bristol Royal Infirmary, University of Bristol, Bristol, BS2 8HW, UK.</nlm:affiliation><country xml:lang="fr">Royaume-Uni</country><wicri:regionArea>Academic Rheumatology Unit, Bristol Royal Infirmary, University of Bristol, Bristol, BS2 8HW</wicri:regionArea><wicri:noRegion>BS2 8HW</wicri:noRegion></affiliation></author><author><name sortKey="Tugwell, Peter" sort="Tugwell, Peter" uniqKey="Tugwell P" first="Peter" last="Tugwell">Peter Tugwell</name><affiliation wicri:level="1"><nlm:affiliation>Department of Medicine, University of Ottawa, Ottawa, ON, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>Department of Medicine, University of Ottawa, Ottawa, ON</wicri:regionArea><wicri:noRegion>ON</wicri:noRegion></affiliation></author><author><name sortKey="Beaton, Dorcas" sort="Beaton, Dorcas" uniqKey="Beaton D" first="Dorcas" last="Beaton">Dorcas Beaton</name><affiliation wicri:level="4"><nlm:affiliation>Musculoskeletal Health and Outcomes Research, Li Ka Shing Knowledge Institute, St Michael's Hospital, University of Toronto, Toronto, ON, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>Musculoskeletal Health and Outcomes Research, Li Ka Shing Knowledge Institute, St Michael's Hospital, University of Toronto, Toronto, ON</wicri:regionArea><orgName type="university">Université de Toronto</orgName><placeName><settlement type="city">Toronto</settlement><region type="state">Ontario</region></placeName></affiliation></author><author><name sortKey="Boers, Maarten" sort="Boers, Maarten" uniqKey="Boers M" first="Maarten" last="Boers">Maarten Boers</name><affiliation wicri:level="3"><nlm:affiliation>Department of Epidemiology and Biostatistics, Amsterdam Rheumatology and Immunology Center, VU University Medical Center, Amsterdam, The Netherlands.</nlm:affiliation><country xml:lang="fr">Pays-Bas</country><wicri:regionArea>Department of Epidemiology and Biostatistics, Amsterdam Rheumatology and Immunology Center, VU University Medical Center, Amsterdam</wicri:regionArea><placeName><settlement type="city">Amsterdam</settlement><region nuts="2" type="province">Hollande-Septentrionale</region></placeName></affiliation></author><author><name sortKey="Brooks, Peter" sort="Brooks, Peter" uniqKey="Brooks P" first="Peter" last="Brooks">Peter Brooks</name><affiliation wicri:level="4"><nlm:affiliation>Centre for Health Policy School of Population and Global Health, University of Melbourne, Melbourne, VIC, Australia.</nlm:affiliation><country xml:lang="fr">Australie</country><wicri:regionArea>Centre for Health Policy School of Population and Global Health, University of Melbourne, Melbourne, VIC</wicri:regionArea><orgName type="university">Université de Melbourne</orgName><placeName><settlement type="city">Melbourne</settlement><region type="état">Victoria (État)</region></placeName></affiliation></author><author><name sortKey="Collins, Sarah" sort="Collins, Sarah" uniqKey="Collins S" first="Sarah" last="Collins">Sarah Collins</name><affiliation wicri:level="3"><nlm:affiliation>OMERACT Patient Research Partner, London, UK.</nlm:affiliation><country xml:lang="fr">Royaume-Uni</country><wicri:regionArea>OMERACT Patient Research Partner, London</wicri:regionArea><placeName><settlement type="city">Londres</settlement><region type="country">Angleterre</region><region type="région" nuts="1">Grand Londres</region></placeName></affiliation></author><author><name sortKey="Conaghan, Philip G" sort="Conaghan, Philip G" uniqKey="Conaghan P" first="Philip G" last="Conaghan">Philip G. Conaghan</name><affiliation wicri:level="4"><nlm:affiliation>NIHR Leeds Musculoskeletal Biomedical Research Unit, Leeds Institute of Rheumatic and Musculoskeletal Medicine, University of Leeds, Leeds, UK.</nlm:affiliation><country xml:lang="fr">Royaume-Uni</country><wicri:regionArea>NIHR Leeds Musculoskeletal Biomedical Research Unit, Leeds Institute of Rheumatic and Musculoskeletal Medicine, University of Leeds, Leeds</wicri:regionArea><orgName type="university">Université de Leeds</orgName><placeName><settlement type="city">Leeds</settlement><region type="country">Angleterre</region><region type="région" nuts="1">Yorkshire-et-Humber</region></placeName></affiliation></author><author><name sortKey="D Agostino, Maria Antonietta" sort="D Agostino, Maria Antonietta" uniqKey="D Agostino M" first="Maria-Antonietta" last="D'Agostino">Maria-Antonietta D'Agostino</name><affiliation wicri:level="3"><nlm:affiliation>Department of Rheumatology, Hôpital Ambroise Paré, APHP, Université Versailles Saint Quentin en Yvelines, Boulogne-Billancourt, France.</nlm:affiliation><country xml:lang="fr">France</country><wicri:regionArea>Department of Rheumatology, Hôpital Ambroise Paré, APHP, Université Versailles Saint Quentin en Yvelines, Boulogne-Billancourt</wicri:regionArea><placeName><region type="region">Île-de-France</region><region type="old region">Île-de-France</region><settlement type="city">Boulogne-Billancourt</settlement></placeName></affiliation></author><author><name sortKey="Hofstetter, Cathie" sort="Hofstetter, Cathie" uniqKey="Hofstetter C" first="Cathie" last="Hofstetter">Cathie Hofstetter</name><affiliation wicri:level="1"><nlm:affiliation>OMERACT Patient Research Partner, Vancouver, BC, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>OMERACT Patient Research Partner, Vancouver, BC</wicri:regionArea><wicri:noRegion>BC</wicri:noRegion></affiliation></author><author><name sortKey="Hughes, Rod" sort="Hughes, Rod" uniqKey="Hughes R" first="Rod" last="Hughes">Rod Hughes</name><affiliation wicri:level="1"><nlm:affiliation>Ashford St Peter's Foundation trust Hospital, Chertsey, Surrey, UK.</nlm:affiliation><country xml:lang="fr">Royaume-Uni</country><wicri:regionArea>Ashford St Peter's Foundation trust Hospital, Chertsey, Surrey</wicri:regionArea><wicri:noRegion>Surrey</wicri:noRegion></affiliation></author><author><name sortKey="Leong, Amye" sort="Leong, Amye" uniqKey="Leong A" first="Amye" last="Leong">Amye Leong</name><affiliation wicri:level="2"><nlm:affiliation>OMERACT Patient Research Partner, Santa Barbara, CA, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>OMERACT Patient Research Partner, Santa Barbara, CA</wicri:regionArea><placeName><region type="state">Californie</region></placeName></affiliation></author><author><name sortKey="Lyddiatt, Ann" sort="Lyddiatt, Ann" uniqKey="Lyddiatt A" first="Ann" last="Lyddiatt">Ann Lyddiatt</name><affiliation wicri:level="1"><nlm:affiliation>OMERACT Patient Research Partner, Vancouver, BC, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>OMERACT Patient Research Partner, Vancouver, BC</wicri:regionArea><wicri:noRegion>BC</wicri:noRegion></affiliation></author><author><name sortKey="March, Lyn" sort="March, Lyn" uniqKey="March L" first="Lyn" last="March">Lyn March</name><affiliation wicri:level="4"><nlm:affiliation>Institute of Bone and Joint Research, Sydney Medical School and School of Public Health, University of Sydney, Sydney, NSW, Australia.</nlm:affiliation><country xml:lang="fr">Australie</country><wicri:regionArea>Institute of Bone and Joint Research, Sydney Medical School and School of Public Health, University of Sydney, Sydney, NSW</wicri:regionArea><orgName type="university">Université de Sydney</orgName><placeName><settlement type="city">Sydney</settlement><region type="état">Nouvelle-Galles du Sud</region></placeName></affiliation></author><author><name sortKey="May, James" sort="May, James" uniqKey="May J" first="James" last="May">James May</name><affiliation wicri:level="2"><nlm:affiliation>OMERACT Patient Research Partner, Seattle, WA, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>OMERACT Patient Research Partner, Seattle, WA</wicri:regionArea><placeName><region type="state">Washington (État)</region></placeName></affiliation></author><author><name sortKey="Montie, Pamela" sort="Montie, Pamela" uniqKey="Montie P" first="Pamela" last="Montie">Pamela Montie</name><affiliation wicri:level="1"><nlm:affiliation>OMERACT Patient Research Partner, Vancouver, BC, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>OMERACT Patient Research Partner, Vancouver, BC</wicri:regionArea><wicri:noRegion>BC</wicri:noRegion></affiliation></author><author><name sortKey="Richards, Pamela" sort="Richards, Pamela" uniqKey="Richards P" first="Pamela" last="Richards">Pamela Richards</name><affiliation wicri:level="1"><nlm:affiliation>Academic Rheumatology Unit, Bristol Royal Infirmary, University of Bristol, Bristol, BS2 8HW, UK.</nlm:affiliation><country xml:lang="fr">Royaume-Uni</country><wicri:regionArea>Academic Rheumatology Unit, Bristol Royal Infirmary, University of Bristol, Bristol, BS2 8HW</wicri:regionArea><wicri:noRegion>BS2 8HW</wicri:noRegion></affiliation></author><author><name sortKey="Simon, Lee S" sort="Simon, Lee S" uniqKey="Simon L" first="Lee S" last="Simon">Lee S. Simon</name><affiliation wicri:level="1"><nlm:affiliation>SDG LLC, Cambridge, MA, 02139, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>SDG LLC, Cambridge, MA, 02139</wicri:regionArea><wicri:noRegion>02139</wicri:noRegion></affiliation></author><author><name sortKey="Singh, Jasvinder A" sort="Singh, Jasvinder A" uniqKey="Singh J" first="Jasvinder A" last="Singh">Jasvinder A. Singh</name><affiliation wicri:level="2"><nlm:affiliation>Medicine Service, VA Medical Center, Birmingham, AL, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>Medicine Service, VA Medical Center, Birmingham, AL</wicri:regionArea><placeName><region type="state">Alabama</region></placeName></affiliation></author><author><name sortKey="Strand, Vibeke" sort="Strand, Vibeke" uniqKey="Strand V" first="Vibeke" last="Strand">Vibeke Strand</name><affiliation wicri:level="2"><nlm:affiliation>Division Immunology/Rheumatology, Stanford University School of Medicine, Palo Alto, CA, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>Division Immunology/Rheumatology, Stanford University School of Medicine, Palo Alto, CA</wicri:regionArea><placeName><region type="state">Californie</region></placeName></affiliation></author><author><name sortKey="Voshaar, Marieke" sort="Voshaar, Marieke" uniqKey="Voshaar M" first="Marieke" last="Voshaar">Marieke Voshaar</name><affiliation wicri:level="3"><nlm:affiliation>OMERACT Patient Research Partner, Amsterdam, The Netherlands.</nlm:affiliation><country xml:lang="fr">Pays-Bas</country><wicri:regionArea>OMERACT Patient Research Partner, Amsterdam</wicri:regionArea><placeName><settlement type="city">Amsterdam</settlement><region nuts="2" type="province">Hollande-Septentrionale</region></placeName></affiliation></author><author><name sortKey="Bingham, Clifton O" sort="Bingham, Clifton O" uniqKey="Bingham C" first="Clifton O" last="Bingham">Clifton O. Bingham</name><affiliation wicri:level="2"><nlm:affiliation>Division of Rheumatology, Johns Hopkins University, Baltimore, MD, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>Division of Rheumatology, Johns Hopkins University, Baltimore, MD</wicri:regionArea><placeName><region type="state">Maryland</region></placeName></affiliation></author><author><name sortKey="Gossec, Laure" sort="Gossec, Laure" uniqKey="Gossec L" first="Laure" last="Gossec">Laure Gossec</name><affiliation wicri:level="3"><nlm:affiliation>Institut Pierre Louis d'Epidémiologie et de Santé Publique, Sorbonne Universités, UPMC Univ Paris 06, GRC-08, Paris, France.</nlm:affiliation><country xml:lang="fr">France</country><wicri:regionArea>Institut Pierre Louis d'Epidémiologie et de Santé Publique, Sorbonne Universités, UPMC Univ Paris 06, GRC-08, Paris</wicri:regionArea><placeName><region type="region">Île-de-France</region><region type="old region">Île-de-France</region><settlement type="city">Paris</settlement></placeName></affiliation></author></analytic><series><title level="j">The patient</title><idno type="eISSN">1178-1661</idno><imprint><date when="2017" type="published">2017</date></imprint></series></biblStruct></sourceDesc></fileDesc><profileDesc><textClass></textClass></profileDesc></teiHeader><front><div type="abstract" xml:lang="en">There is increasing interest in making patient participation an integral component of medical research. However, practical guidance on optimizing this engagement in healthcare is scarce. Since 2002, patient involvement has been one of the key features of the Outcome Measures in Rheumatology (OMERACT) international consensus effort. Based on a review of cumulative data from qualitative studies and internal surveys among OMERACT participants, we explored the potential benefits and challenges of involving patient research partners in conferences and working group activities. We supplemented our review with personal experiences and reflections regarding patient participation in the OMERACT process. We found that between 2002 and 2016, 67 patients have attended OMERACT conferences, of whom 28 had sustained involvement; many other patients contributed to OMERACT working groups. Their participation provided face validity to the OMERACT process and expanded the research agenda. Essential facilitators have been the financial commitment to guarantee sustainable involvement of patients at these conferences, procedures for recruitment, selection and support, and dedicated time allocated in the program for patient issues. Current challenges include the representativeness of the patient panel, risk of pseudo-professionalization, and disparity in patients' and researchers' perception of involvement. In conclusion, OMERACT has embedded long-term patient involvement in the consensus-building process on the measurement of core health outcomes. This integrative process continues to evolve iteratively. We believe that the practical points raised here can improve participatory research implementation.</div></front></TEI><pubmed><MedlineCitation Status="In-Process" Owner="NLM"><PMID Version="1">27704486</PMID><DateCreated><Year>2016</Year><Month>10</Month><Day>05</Day></DateCreated><DateRevised><Year>2017</Year><Month>04</Month><Day>06</Day></DateRevised><Article PubModel="Print"><Journal><ISSN IssnType="Electronic">1178-1661</ISSN><JournalIssue CitedMedium="Internet"><Volume>10</Volume><Issue>2</Issue><PubDate><Year>2017</Year><Month>Apr</Month></PubDate></JournalIssue><Title>The patient</Title><ISOAbbreviation>Patient</ISOAbbreviation></Journal><ArticleTitle>Successful Stepwise Development of Patient Research Partnership: 14 Years' Experience of Actions and Consequences in Outcome Measures in Rheumatology (OMERACT).</ArticleTitle><Pagination><MedlinePgn>141-152</MedlinePgn></Pagination><ELocationID EIdType="doi" ValidYN="Y">10.1007/s40271-016-0198-4</ELocationID><Abstract><AbstractText>There is increasing interest in making patient participation an integral component of medical research. However, practical guidance on optimizing this engagement in healthcare is scarce. Since 2002, patient involvement has been one of the key features of the Outcome Measures in Rheumatology (OMERACT) international consensus effort. Based on a review of cumulative data from qualitative studies and internal surveys among OMERACT participants, we explored the potential benefits and challenges of involving patient research partners in conferences and working group activities. We supplemented our review with personal experiences and reflections regarding patient participation in the OMERACT process. We found that between 2002 and 2016, 67 patients have attended OMERACT conferences, of whom 28 had sustained involvement; many other patients contributed to OMERACT working groups. Their participation provided face validity to the OMERACT process and expanded the research agenda. Essential facilitators have been the financial commitment to guarantee sustainable involvement of patients at these conferences, procedures for recruitment, selection and support, and dedicated time allocated in the program for patient issues. Current challenges include the representativeness of the patient panel, risk of pseudo-professionalization, and disparity in patients' and researchers' perception of involvement. In conclusion, OMERACT has embedded long-term patient involvement in the consensus-building process on the measurement of core health outcomes. This integrative process continues to evolve iteratively. We believe that the practical points raised here can improve participatory research implementation.</AbstractText></Abstract><AuthorList CompleteYN="Y"><Author ValidYN="Y"><LastName>de Wit</LastName><ForeName>Maarten</ForeName><Initials>M</Initials><Identifier Source="ORCID">http://orcid.org/0000-0002-8428-6354</Identifier><AffiliationInfo><Affiliation>OMERACT Patient Research Partner, Amsterdam, The Netherlands. mp.dewit@vumc.nl.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>Department of Medical Humanities, VU University Medical Centre/EMGO+ instituut, Van der Boechorststraat 7, 1081 BT, Amsterdam, The Netherlands. mp.dewit@vumc.nl.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Kirwan</LastName><ForeName>John R</ForeName><Initials>JR</Initials><AffiliationInfo><Affiliation>Academic Rheumatology Unit, Bristol Royal Infirmary, University of Bristol, Bristol, BS2 8HW, UK.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Tugwell</LastName><ForeName>Peter</ForeName><Initials>P</Initials><AffiliationInfo><Affiliation>Department of Medicine, University of Ottawa, Ottawa, ON, Canada.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Beaton</LastName><ForeName>Dorcas</ForeName><Initials>D</Initials><AffiliationInfo><Affiliation>Musculoskeletal Health and Outcomes Research, Li Ka Shing Knowledge Institute, St Michael's Hospital, University of Toronto, Toronto, ON, Canada.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Boers</LastName><ForeName>Maarten</ForeName><Initials>M</Initials><AffiliationInfo><Affiliation>Department of Epidemiology and Biostatistics, Amsterdam Rheumatology and Immunology Center, VU University Medical Center, Amsterdam, The Netherlands.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Brooks</LastName><ForeName>Peter</ForeName><Initials>P</Initials><AffiliationInfo><Affiliation>Centre for Health Policy School of Population and Global Health, University of Melbourne, Melbourne, VIC, Australia.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Collins</LastName><ForeName>Sarah</ForeName><Initials>S</Initials><AffiliationInfo><Affiliation>OMERACT Patient Research Partner, London, UK.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Conaghan</LastName><ForeName>Philip G</ForeName><Initials>PG</Initials><AffiliationInfo><Affiliation>NIHR Leeds Musculoskeletal Biomedical Research Unit, Leeds Institute of Rheumatic and Musculoskeletal Medicine, University of Leeds, Leeds, UK.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>D'Agostino</LastName><ForeName>Maria-Antonietta</ForeName><Initials>MA</Initials><AffiliationInfo><Affiliation>Department of Rheumatology, Hôpital Ambroise Paré, APHP, Université Versailles Saint Quentin en Yvelines, Boulogne-Billancourt, France.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Hofstetter</LastName><ForeName>Cathie</ForeName><Initials>C</Initials><AffiliationInfo><Affiliation>OMERACT Patient Research Partner, Vancouver, BC, Canada.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Hughes</LastName><ForeName>Rod</ForeName><Initials>R</Initials><AffiliationInfo><Affiliation>Ashford St Peter's Foundation trust Hospital, Chertsey, Surrey, UK.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Leong</LastName><ForeName>Amye</ForeName><Initials>A</Initials><AffiliationInfo><Affiliation>OMERACT Patient Research Partner, Santa Barbara, CA, USA.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>Healthy Motivations, Santa Barbara, CA, 93108, USA.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>Bone and Joint Decade, The Global Alliance for Musculoskeletal Health, Truro, Cornwall, UK.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Lyddiatt</LastName><ForeName>Ann</ForeName><Initials>A</Initials><AffiliationInfo><Affiliation>OMERACT Patient Research Partner, Vancouver, BC, Canada.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>March</LastName><ForeName>Lyn</ForeName><Initials>L</Initials><AffiliationInfo><Affiliation>Institute of Bone and Joint Research, Sydney Medical School and School of Public Health, University of Sydney, Sydney, NSW, Australia.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>Department of Rheumatology, Royal North Shore, St. Leonards, NSW, Australia.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>May</LastName><ForeName>James</ForeName><Initials>J</Initials><AffiliationInfo><Affiliation>OMERACT Patient Research Partner, Seattle, WA, USA.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Montie</LastName><ForeName>Pamela</ForeName><Initials>P</Initials><AffiliationInfo><Affiliation>OMERACT Patient Research Partner, Vancouver, BC, Canada.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>Arthritis Patient Advisory Board, Arthritis Research Centre Canada, Richmond, BC, Canada.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Richards</LastName><ForeName>Pamela</ForeName><Initials>P</Initials><AffiliationInfo><Affiliation>Academic Rheumatology Unit, Bristol Royal Infirmary, University of Bristol, Bristol, BS2 8HW, UK.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>OMERACT Patient Research Partner, Bristol, UK.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Simon</LastName><ForeName>Lee S</ForeName><Initials>LS</Initials><AffiliationInfo><Affiliation>SDG LLC, Cambridge, MA, 02139, USA.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Singh</LastName><ForeName>Jasvinder A</ForeName><Initials>JA</Initials><AffiliationInfo><Affiliation>Medicine Service, VA Medical Center, Birmingham, AL, USA.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>Division of Epidemiology at School of Public Health, Department of Medicine at School of Medicine, University of Alabama, Birmingham, AL, 35294-0022, USA.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>Department of Orthopedic Surgery, Mayo Clinic College of Medicine, Rochester, MN, 55905, USA.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Strand</LastName><ForeName>Vibeke</ForeName><Initials>V</Initials><AffiliationInfo><Affiliation>Division Immunology/Rheumatology, Stanford University School of Medicine, Palo Alto, CA, USA.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Voshaar</LastName><ForeName>Marieke</ForeName><Initials>M</Initials><AffiliationInfo><Affiliation>OMERACT Patient Research Partner, Amsterdam, The Netherlands.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>Department of Psychology, Health and Technology, University of Twente, Enschede, The Netherlands.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Bingham</LastName><ForeName>Clifton O</ForeName><Initials>CO</Initials><Suffix>3rd</Suffix><AffiliationInfo><Affiliation>Division of Rheumatology, Johns Hopkins University, Baltimore, MD, USA.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Gossec</LastName><ForeName>Laure</ForeName><Initials>L</Initials><AffiliationInfo><Affiliation>Institut Pierre Louis d'Epidémiologie et de Santé Publique, Sorbonne Universités, UPMC Univ Paris 06, GRC-08, Paris, France.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>Rheumatology Department, Pitie-Salpétrière Hospital, AP-HP, Paris, France.</Affiliation></AffiliationInfo></Author></AuthorList><Language>eng</Language><PublicationTypeList><PublicationType UI="D016428">Journal Article</PublicationType></PublicationTypeList></Article><MedlineJournalInfo><Country>New 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IdType="pmc">PMC5362656</ArticleId></ArticleIdList></PubmedData></pubmed><affiliations><list><country><li>Australie</li><li>Canada</li><li>France</li><li>Pays-Bas</li><li>Royaume-Uni</li><li>États-Unis</li></country><region><li>Alabama</li><li>Angleterre</li><li>Californie</li><li>Grand Londres</li><li>Hollande-Septentrionale</li><li>Maryland</li><li>Nouvelle-Galles du Sud</li><li>Ontario</li><li>Victoria (État)</li><li>Washington (État)</li><li>Yorkshire-et-Humber</li><li>Île-de-France</li></region><settlement><li>Amsterdam</li><li>Boulogne-Billancourt</li><li>Leeds</li><li>Londres</li><li>Melbourne</li><li>Paris</li><li>Sydney</li><li>Toronto</li></settlement><orgName><li>Université de Leeds</li><li>Université de Melbourne</li><li>Université de Sydney</li><li>Université de Toronto</li></orgName></list><tree><country name="Pays-Bas"><region name="Hollande-Septentrionale"><name sortKey="De Wit, Maarten" sort="De Wit, Maarten" uniqKey="De Wit M" first="Maarten" last="De Wit">Maarten De Wit</name></region><name sortKey="Boers, Maarten" sort="Boers, Maarten" uniqKey="Boers M" first="Maarten" last="Boers">Maarten Boers</name><name sortKey="Voshaar, Marieke" sort="Voshaar, Marieke" uniqKey="Voshaar M" first="Marieke" last="Voshaar">Marieke Voshaar</name></country><country name="Royaume-Uni"><noRegion><name sortKey="Kirwan, John R" sort="Kirwan, John R" uniqKey="Kirwan J" first="John R" last="Kirwan">John R. Kirwan</name></noRegion><name sortKey="Collins, Sarah" sort="Collins, Sarah" uniqKey="Collins S" first="Sarah" last="Collins">Sarah Collins</name><name sortKey="Conaghan, Philip G" sort="Conaghan, Philip G" uniqKey="Conaghan P" first="Philip G" last="Conaghan">Philip G. Conaghan</name><name sortKey="Hughes, Rod" sort="Hughes, Rod" uniqKey="Hughes R" first="Rod" last="Hughes">Rod Hughes</name><name sortKey="Richards, Pamela" sort="Richards, Pamela" uniqKey="Richards P" first="Pamela" last="Richards">Pamela Richards</name></country><country name="Canada"><noRegion><name sortKey="Tugwell, Peter" sort="Tugwell, Peter" uniqKey="Tugwell P" first="Peter" last="Tugwell">Peter Tugwell</name></noRegion><name sortKey="Beaton, Dorcas" sort="Beaton, Dorcas" uniqKey="Beaton D" first="Dorcas" last="Beaton">Dorcas Beaton</name><name sortKey="Hofstetter, Cathie" sort="Hofstetter, Cathie" uniqKey="Hofstetter C" first="Cathie" last="Hofstetter">Cathie Hofstetter</name><name sortKey="Lyddiatt, Ann" sort="Lyddiatt, Ann" uniqKey="Lyddiatt A" first="Ann" last="Lyddiatt">Ann Lyddiatt</name><name sortKey="Montie, Pamela" sort="Montie, Pamela" uniqKey="Montie P" first="Pamela" last="Montie">Pamela Montie</name></country><country name="Australie"><region name="Victoria (État)"><name sortKey="Brooks, Peter" sort="Brooks, Peter" uniqKey="Brooks P" first="Peter" last="Brooks">Peter Brooks</name></region><name sortKey="March, Lyn" sort="March, Lyn" uniqKey="March L" first="Lyn" last="March">Lyn March</name></country><country name="France"><region name="Île-de-France"><name sortKey="D Agostino, Maria Antonietta" sort="D Agostino, Maria Antonietta" uniqKey="D Agostino M" first="Maria-Antonietta" last="D'Agostino">Maria-Antonietta D'Agostino</name></region><name sortKey="Gossec, Laure" sort="Gossec, Laure" uniqKey="Gossec L" first="Laure" last="Gossec">Laure Gossec</name></country><country name="États-Unis"><region name="Californie"><name sortKey="Leong, Amye" sort="Leong, Amye" uniqKey="Leong A" first="Amye" last="Leong">Amye Leong</name></region><name sortKey="Bingham, Clifton O" sort="Bingham, Clifton O" uniqKey="Bingham C" first="Clifton O" last="Bingham">Clifton O. Bingham</name><name sortKey="May, James" sort="May, James" uniqKey="May J" first="James" last="May">James May</name><name sortKey="Simon, Lee S" sort="Simon, Lee S" uniqKey="Simon L" first="Lee S" last="Simon">Lee S. Simon</name><name sortKey="Singh, Jasvinder A" sort="Singh, Jasvinder A" uniqKey="Singh J" first="Jasvinder A" last="Singh">Jasvinder A. Singh</name><name sortKey="Strand, Vibeke" sort="Strand, Vibeke" uniqKey="Strand V" first="Vibeke" last="Strand">Vibeke Strand</name></country></tree></affiliations></record>Pour manipuler ce document sous Unix (Dilib)
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HfdIndexSelect -h $EXPLOR_AREA/Data/PubMed/Checkpoint/RBID.i -Sk "pubmed:27704486" \
| HfdSelect -Kh $EXPLOR_AREA/Data/PubMed/Checkpoint/biblio.hfd \
| NlmPubMed2Wicri -a AustralieFrV1
| This area was generated with Dilib version V0.6.33. |  |