Towards an expert consensus to delineate a clinical syndrome of chronic breathlessness.
Identifieur interne : 000126 ( PubMed/Checkpoint ); précédent : 000125; suivant : 000127Towards an expert consensus to delineate a clinical syndrome of chronic breathlessness.
Auteurs : Miriam J. Johnson [Royaume-Uni] ; Janelle Yorke [Royaume-Uni] ; John Hansen-Flaschen [États-Unis] ; Robert Lansing [États-Unis] ; Magnus Ekström [Suède] ; Thomas Similowski [France] ; David C. Currow [Royaume-Uni]Source :
- The European respiratory journal [ 1399-3003 ] ; 2017.
Abstract
Breathlessness that persists despite treatment for the underlying conditions is debilitating. Identifying this discrete entity as a clinical syndrome should raise awareness amongst patients, clinicians, service providers, researchers and research funders.Using the Delphi method, questions and statements were generated via expert group consultations and one-to-one interviews (n=17). These were subsequently circulated in three survey rounds (n=34, n=25, n=31) to an extended international group from various settings (clinical and laboratory; hospital, hospice and community) and working within the basic sciences and clinical specialties. The a priori target agreement for each question was 70%. Findings were discussed at a multinational workshop.The agreed term, chronic breathlessness syndrome, was defined as breathlessness that persists despite optimal treatment of the underlying pathophysiology and that results in disability. A stated duration was not needed for "chronic". Key terms for French and German translation were also discussed and the need for further consensus recognised, especially with regard to cultural and linguistic interpretation.We propose criteria for chronic breathlessness syndrome. Recognition is an important first step to address the therapeutic nihilism that has pervaded this neglected symptom and could empower patients and caregivers, improve clinical care, focus research, and encourage wider uptake of available and emerging evidence-based interventions.
DOI: 10.1183/13993003.02277-2016
PubMed: 28546269
Affiliations:
- France, Royaume-Uni, Suède, États-Unis
- Angleterre, Grand Manchester, Massachusetts, Pennsylvanie, Île-de-France
- Manchester, Paris
- Université de Manchester
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Johnson</name><affiliation wicri:level="1"><nlm:affiliation>Hull York Medical School, University of Hull, Hull, UK miriam.johnson@hyms.ac.uk.</nlm:affiliation><country wicri:rule="url">Royaume-Uni</country><wicri:regionArea>Hull York Medical School, University of Hull, Hull</wicri:regionArea><wicri:noRegion>Hull</wicri:noRegion></affiliation></author><author><name sortKey="Yorke, Janelle" sort="Yorke, Janelle" uniqKey="Yorke J" first="Janelle" last="Yorke">Janelle Yorke</name><affiliation wicri:level="4"><nlm:affiliation>School of Nursing, Midwifery and Social Work, University of Manchester, Manchester, UK.</nlm:affiliation><country xml:lang="fr">Royaume-Uni</country><wicri:regionArea>School of Nursing, Midwifery and Social Work, University of Manchester, Manchester</wicri:regionArea><placeName><settlement type="city">Manchester</settlement><region type="country">Angleterre</region><region type="région" nuts="1">Grand Manchester</region><settlement type="city">Manchester</settlement></placeName><orgName type="university">Université de Manchester</orgName></affiliation></author><author><name sortKey="Hansen Flaschen, John" sort="Hansen Flaschen, John" uniqKey="Hansen Flaschen J" first="John" last="Hansen-Flaschen">John Hansen-Flaschen</name><affiliation wicri:level="2"><nlm:affiliation>Perelman School of Medicine, Hospital of the University of Pennsylvania, Philadelphia, PA, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>Perelman School of Medicine, Hospital of the University of Pennsylvania, Philadelphia, PA</wicri:regionArea><placeName><region type="state">Pennsylvanie</region></placeName></affiliation></author><author><name sortKey="Lansing, Robert" sort="Lansing, Robert" uniqKey="Lansing R" first="Robert" last="Lansing">Robert Lansing</name><affiliation wicri:level="2"><nlm:affiliation>Harvard Medical School, Beth Israel Hospital, Boston, MA, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>Harvard Medical School, Beth Israel Hospital, Boston, MA</wicri:regionArea><placeName><region type="state">Massachusetts</region></placeName></affiliation></author><author><name sortKey="Ekstrom, Magnus" sort="Ekstrom, Magnus" uniqKey="Ekstrom M" first="Magnus" last="Ekström">Magnus Ekström</name><affiliation wicri:level="1"><nlm:affiliation>Dept of Clinical Sciences, Division of Respiratory Medicine & Allergology, Lund University, Lund, Sweden.</nlm:affiliation><country xml:lang="fr">Suède</country><wicri:regionArea>Dept of Clinical Sciences, Division of Respiratory Medicine & Allergology, Lund University, Lund</wicri:regionArea><wicri:noRegion>Lund</wicri:noRegion></affiliation></author><author><name sortKey="Similowski, Thomas" sort="Similowski, Thomas" uniqKey="Similowski T" first="Thomas" last="Similowski">Thomas Similowski</name><affiliation wicri:level="3"><nlm:affiliation>Service de Pneumologie et Reanimation Medicale, Groupe Hospitalier Pitie-Salpetriere Charles Foix, Paris, France.</nlm:affiliation><country xml:lang="fr">France</country><wicri:regionArea>Service de Pneumologie et Reanimation Medicale, Groupe Hospitalier Pitie-Salpetriere Charles Foix, Paris</wicri:regionArea><placeName><region type="region">Île-de-France</region><region type="old region">Île-de-France</region><settlement type="city">Paris</settlement></placeName></affiliation></author><author><name sortKey="Currow, David C" sort="Currow, David C" uniqKey="Currow D" first="David C" last="Currow">David C. Currow</name><affiliation wicri:level="1"><nlm:affiliation>Hull York Medical School, University of Hull, Hull, UK.</nlm:affiliation><country xml:lang="fr">Royaume-Uni</country><wicri:regionArea>Hull York Medical School, University of Hull, Hull</wicri:regionArea><wicri:noRegion>Hull</wicri:noRegion></affiliation></author></analytic><series><title level="j">The European respiratory journal</title><idno type="eISSN">1399-3003</idno><imprint><date when="2017" type="published">2017</date></imprint></series></biblStruct></sourceDesc></fileDesc><profileDesc><textClass></textClass></profileDesc></teiHeader><front><div type="abstract" xml:lang="en">Breathlessness that persists despite treatment for the underlying conditions is debilitating. Identifying this discrete entity as a clinical syndrome should raise awareness amongst patients, clinicians, service providers, researchers and research funders.Using the Delphi method, questions and statements were generated via expert group consultations and one-to-one interviews (n=17). These were subsequently circulated in three survey rounds (n=34, n=25, n=31) to an extended international group from various settings (clinical and laboratory; hospital, hospice and community) and working within the basic sciences and clinical specialties. The a priori target agreement for each question was 70%. Findings were discussed at a multinational workshop.The agreed term, chronic breathlessness syndrome, was defined as breathlessness that persists despite optimal treatment of the underlying pathophysiology and that results in disability. A stated duration was not needed for "chronic". Key terms for French and German translation were also discussed and the need for further consensus recognised, especially with regard to cultural and linguistic interpretation.We propose criteria for chronic breathlessness syndrome. Recognition is an important first step to address the therapeutic nihilism that has pervaded this neglected symptom and could empower patients and caregivers, improve clinical care, focus research, and encourage wider uptake of available and emerging evidence-based interventions.</div></front></TEI><pubmed><MedlineCitation Status="In-Process" Owner="NLM"><PMID Version="1">28546269</PMID><DateCreated><Year>2017</Year><Month>05</Month><Day>26</Day></DateCreated><DateRevised><Year>2017</Year><Month>05</Month><Day>26</Day></DateRevised><Article PubModel="Electronic-Print"><Journal><ISSN IssnType="Electronic">1399-3003</ISSN><JournalIssue CitedMedium="Internet"><Volume>49</Volume><Issue>5</Issue><PubDate><Year>2017</Year><Month>May</Month></PubDate></JournalIssue><Title>The European respiratory journal</Title><ISOAbbreviation>Eur. Respir. J.</ISOAbbreviation></Journal><ArticleTitle>Towards an expert consensus to delineate a clinical syndrome of chronic breathlessness.</ArticleTitle><ELocationID EIdType="pii" ValidYN="Y">1602277</ELocationID><ELocationID EIdType="doi" ValidYN="Y">10.1183/13993003.02277-2016</ELocationID><Abstract><AbstractText>Breathlessness that persists despite treatment for the underlying conditions is debilitating. Identifying this discrete entity as a clinical syndrome should raise awareness amongst patients, clinicians, service providers, researchers and research funders.Using the Delphi method, questions and statements were generated via expert group consultations and one-to-one interviews (n=17). These were subsequently circulated in three survey rounds (n=34, n=25, n=31) to an extended international group from various settings (clinical and laboratory; hospital, hospice and community) and working within the basic sciences and clinical specialties. The a priori target agreement for each question was 70%. Findings were discussed at a multinational workshop.The agreed term, chronic breathlessness syndrome, was defined as breathlessness that persists despite optimal treatment of the underlying pathophysiology and that results in disability. A stated duration was not needed for "chronic". Key terms for French and German translation were also discussed and the need for further consensus recognised, especially with regard to cultural and linguistic interpretation.We propose criteria for chronic breathlessness syndrome. Recognition is an important first step to address the therapeutic nihilism that has pervaded this neglected symptom and could empower patients and caregivers, improve clinical care, focus research, and encourage wider uptake of available and emerging evidence-based interventions.</AbstractText><CopyrightInformation>Copyright ©ERS 2017.</CopyrightInformation></Abstract><AuthorList CompleteYN="Y"><Author ValidYN="Y"><LastName>Johnson</LastName><ForeName>Miriam J</ForeName><Initials>MJ</Initials><AffiliationInfo><Affiliation>Hull York Medical School, University of Hull, Hull, UK miriam.johnson@hyms.ac.uk.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Yorke</LastName><ForeName>Janelle</ForeName><Initials>J</Initials><AffiliationInfo><Affiliation>School of Nursing, Midwifery and Social Work, University of Manchester, Manchester, UK.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Hansen-Flaschen</LastName><ForeName>John</ForeName><Initials>J</Initials><Identifier Source="ORCID">http://orcid.org/0000-0003-1989-7244</Identifier><AffiliationInfo><Affiliation>Perelman School of Medicine, Hospital of the University of Pennsylvania, Philadelphia, PA, USA.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Lansing</LastName><ForeName>Robert</ForeName><Initials>R</Initials><AffiliationInfo><Affiliation>Harvard Medical School, Beth Israel Hospital, Boston, MA, USA.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Ekström</LastName><ForeName>Magnus</ForeName><Initials>M</Initials><AffiliationInfo><Affiliation>Dept of Clinical Sciences, Division of Respiratory Medicine & Allergology, Lund University, Lund, Sweden.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Similowski</LastName><ForeName>Thomas</ForeName><Initials>T</Initials><AffiliationInfo><Affiliation>Service de Pneumologie et Reanimation Medicale, Groupe Hospitalier Pitie-Salpetriere Charles Foix, Paris, France.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Currow</LastName><ForeName>David C</ForeName><Initials>DC</Initials><AffiliationInfo><Affiliation>Hull York Medical School, University of Hull, Hull, UK.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>University of Technology Sydney, Sydney, Australia.</Affiliation></AffiliationInfo></Author></AuthorList><Language>eng</Language><PublicationTypeList><PublicationType UI="D016428">Journal Article</PublicationType></PublicationTypeList><ArticleDate DateType="Electronic"><Year>2017</Year><Month>05</Month><Day>25</Day></ArticleDate></Article><MedlineJournalInfo><Country>England</Country><MedlineTA>Eur Respir J</MedlineTA><NlmUniqueID>8803460</NlmUniqueID><ISSNLinking>0903-1936</ISSNLinking></MedlineJournalInfo><CoiStatement>Conflict of interest: Disclosures can be found alongside this article at erj.ersjournals.com</CoiStatement></MedlineCitation><PubmedData><History><PubMedPubDate PubStatus="received"><Year>2016</Year><Month>09</Month><Day>27</Day></PubMedPubDate><PubMedPubDate PubStatus="accepted"><Year>2017</Year><Month>02</Month><Day>14</Day></PubMedPubDate><PubMedPubDate PubStatus="entrez"><Year>2017</Year><Month>5</Month><Day>27</Day><Hour>6</Hour><Minute>0</Minute></PubMedPubDate><PubMedPubDate PubStatus="pubmed"><Year>2017</Year><Month>5</Month><Day>27</Day><Hour>6</Hour><Minute>0</Minute></PubMedPubDate><PubMedPubDate PubStatus="medline"><Year>2017</Year><Month>5</Month><Day>27</Day><Hour>6</Hour><Minute>0</Minute></PubMedPubDate></History><PublicationStatus>epublish</PublicationStatus><ArticleIdList><ArticleId IdType="pubmed">28546269</ArticleId><ArticleId IdType="pii">49/5/1602277</ArticleId><ArticleId IdType="doi">10.1183/13993003.02277-2016</ArticleId></ArticleIdList></PubmedData></pubmed><affiliations><list><country><li>France</li><li>Royaume-Uni</li><li>Suède</li><li>États-Unis</li></country><region><li>Angleterre</li><li>Grand Manchester</li><li>Massachusetts</li><li>Pennsylvanie</li><li>Île-de-France</li></region><settlement><li>Manchester</li><li>Paris</li></settlement><orgName><li>Université de Manchester</li></orgName></list><tree><country name="Royaume-Uni"><noRegion><name sortKey="Johnson, Miriam J" sort="Johnson, Miriam J" uniqKey="Johnson M" first="Miriam J" last="Johnson">Miriam J. Johnson</name></noRegion><name sortKey="Currow, David C" sort="Currow, David C" uniqKey="Currow D" first="David C" last="Currow">David C. Currow</name><name sortKey="Yorke, Janelle" sort="Yorke, Janelle" uniqKey="Yorke J" first="Janelle" last="Yorke">Janelle Yorke</name></country><country name="États-Unis"><region name="Pennsylvanie"><name sortKey="Hansen Flaschen, John" sort="Hansen Flaschen, John" uniqKey="Hansen Flaschen J" first="John" last="Hansen-Flaschen">John Hansen-Flaschen</name></region><name sortKey="Lansing, Robert" sort="Lansing, Robert" uniqKey="Lansing R" first="Robert" last="Lansing">Robert Lansing</name></country><country name="Suède"><noRegion><name sortKey="Ekstrom, Magnus" sort="Ekstrom, Magnus" uniqKey="Ekstrom M" first="Magnus" last="Ekström">Magnus Ekström</name></noRegion></country><country name="France"><region name="Île-de-France"><name sortKey="Similowski, Thomas" sort="Similowski, Thomas" uniqKey="Similowski T" first="Thomas" last="Similowski">Thomas Similowski</name></region></country></tree></affiliations></record>Pour manipuler ce document sous Unix (Dilib)
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