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<record><TEI><teiHeader><fileDesc><titleStmt><title xml:lang="en">Development of a Draft Core Set of Domains for Measuring Shared Decision Making in Osteoarthritis: An OMERACT Working Group on Shared Decision Making</title><author><name sortKey="Toupin April, Karine" sort="Toupin April, Karine" uniqKey="Toupin April K" first="Karine" last="Toupin April">Karine Toupin April</name></author><author><name sortKey="Barton, Jennifer" sort="Barton, Jennifer" uniqKey="Barton J" first="Jennifer" last="Barton">Jennifer Barton</name></author><author><name sortKey="Fraenkel, Liana" sort="Fraenkel, Liana" uniqKey="Fraenkel L" first="Liana" last="Fraenkel">Liana Fraenkel</name></author><author><name sortKey="Li, Linda" sort="Li, Linda" uniqKey="Li L" first="Linda" last="Li">Linda Li</name></author><author><name sortKey="Grandpierre, Viviane" sort="Grandpierre, Viviane" uniqKey="Grandpierre V" first="Viviane" last="Grandpierre">Viviane Grandpierre</name></author><author><name sortKey="Guillemin, Francis" sort="Guillemin, Francis" uniqKey="Guillemin F" first="Francis" last="Guillemin">Francis Guillemin</name></author><author><name sortKey="Rader, Tamara" sort="Rader, Tamara" uniqKey="Rader T" first="Tamara" last="Rader">Tamara Rader</name></author><author><name sortKey="Stacey, Dawn" sort="Stacey, Dawn" uniqKey="Stacey D" first="Dawn" last="Stacey">Dawn Stacey</name></author><author><name sortKey="Legare, France" sort="Legare, France" uniqKey="Legare F" first="France" last="Légaré">France Légaré</name></author><author><name sortKey="Jull, Janet" sort="Jull, Janet" uniqKey="Jull J" first="Janet" last="Jull">Janet Jull</name></author><author><name sortKey="Petkovic, Jennifer" sort="Petkovic, Jennifer" uniqKey="Petkovic J" first="Jennifer" last="Petkovic">Jennifer Petkovic</name></author><author><name sortKey="Scholte Voshaar, Marieke" sort="Scholte Voshaar, Marieke" uniqKey="Scholte Voshaar M" first="Marieke" last="Scholte Voshaar">Marieke Scholte Voshaar</name></author><author><name sortKey="Welch, Vivian" sort="Welch, Vivian" uniqKey="Welch V" first="Vivian" last="Welch">Vivian Welch</name></author><author><name sortKey="Lyddiatt, Anne" sort="Lyddiatt, Anne" uniqKey="Lyddiatt A" first="Anne" last="Lyddiatt">Anne Lyddiatt</name></author><author><name sortKey="Hofstetter, Cathie" sort="Hofstetter, Cathie" uniqKey="Hofstetter C" first="Cathie" last="Hofstetter">Cathie Hofstetter</name></author><author><name sortKey="De Wit, Maarten" sort="De Wit, Maarten" uniqKey="De Wit M" first="Maarten" last="De Wit">Maarten De Wit</name></author><author><name sortKey="March, Lyn" sort="March, Lyn" uniqKey="March L" first="Lyn" last="March">Lyn March</name></author><author><name sortKey="Meade, Tanya" sort="Meade, Tanya" uniqKey="Meade T" first="Tanya" last="Meade">Tanya Meade</name></author><author><name sortKey="Christensen, Robin" sort="Christensen, Robin" uniqKey="Christensen R" first="Robin" last="Christensen">Robin Christensen</name></author><author><name sortKey="Gaujoux Viala, Cecile" sort="Gaujoux Viala, Cecile" uniqKey="Gaujoux Viala C" first="Cécile" last="Gaujoux-Viala">Cécile Gaujoux-Viala</name></author><author><name sortKey="Suarez Almazor, Maria E" sort="Suarez Almazor, Maria E" uniqKey="Suarez Almazor M" first="Maria E." last="Suarez-Almazor">Maria E. Suarez-Almazor</name></author><author><name sortKey="Boonen, Annelies" sort="Boonen, Annelies" uniqKey="Boonen A" first="Annelies" last="Boonen">Annelies Boonen</name></author><author><name sortKey="Pohl, Christoph" sort="Pohl, Christoph" uniqKey="Pohl C" first="Christoph" last="Pohl">Christoph Pohl</name></author><author><name sortKey="Martin, Richard" sort="Martin, Richard" uniqKey="Martin R" first="Richard" last="Martin">Richard Martin</name></author><author><name sortKey="Tugwell, Peter" sort="Tugwell, Peter" uniqKey="Tugwell P" first="Peter" last="Tugwell">Peter Tugwell</name></author></titleStmt><publicationStmt><idno type="wicri:source">PMC</idno><idno type="pmid">25877502</idno><idno type="pmc">4607553</idno><idno type="url">http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4607553</idno><idno type="RBID">PMC:4607553</idno><idno type="doi">10.3899/jrheum.141205</idno><date when="2015">2015</date><idno type="wicri:Area/Pmc/Corpus">001F47</idno><idno type="wicri:explorRef" wicri:stream="Pmc" wicri:step="Corpus" wicri:corpus="PMC">001F47</idno></publicationStmt><sourceDesc><biblStruct><analytic><title xml:lang="en" level="a" type="main">Development of a Draft Core Set of Domains for Measuring Shared Decision Making in Osteoarthritis: An OMERACT Working Group on Shared Decision Making</title><author><name sortKey="Toupin April, Karine" sort="Toupin April, Karine" uniqKey="Toupin April K" first="Karine" last="Toupin April">Karine Toupin April</name></author><author><name sortKey="Barton, Jennifer" sort="Barton, Jennifer" uniqKey="Barton J" first="Jennifer" last="Barton">Jennifer Barton</name></author><author><name sortKey="Fraenkel, Liana" sort="Fraenkel, Liana" uniqKey="Fraenkel L" first="Liana" last="Fraenkel">Liana Fraenkel</name></author><author><name sortKey="Li, Linda" sort="Li, Linda" uniqKey="Li L" first="Linda" last="Li">Linda Li</name></author><author><name sortKey="Grandpierre, Viviane" sort="Grandpierre, Viviane" uniqKey="Grandpierre V" first="Viviane" last="Grandpierre">Viviane Grandpierre</name></author><author><name sortKey="Guillemin, Francis" sort="Guillemin, Francis" uniqKey="Guillemin F" first="Francis" last="Guillemin">Francis Guillemin</name></author><author><name sortKey="Rader, Tamara" sort="Rader, Tamara" uniqKey="Rader T" first="Tamara" last="Rader">Tamara Rader</name></author><author><name sortKey="Stacey, Dawn" sort="Stacey, Dawn" uniqKey="Stacey D" first="Dawn" last="Stacey">Dawn Stacey</name></author><author><name sortKey="Legare, France" sort="Legare, France" uniqKey="Legare F" first="France" last="Légaré">France Légaré</name></author><author><name sortKey="Jull, Janet" sort="Jull, Janet" uniqKey="Jull J" first="Janet" last="Jull">Janet Jull</name></author><author><name sortKey="Petkovic, Jennifer" sort="Petkovic, Jennifer" uniqKey="Petkovic J" first="Jennifer" last="Petkovic">Jennifer Petkovic</name></author><author><name sortKey="Scholte Voshaar, Marieke" sort="Scholte Voshaar, Marieke" uniqKey="Scholte Voshaar M" first="Marieke" last="Scholte Voshaar">Marieke Scholte Voshaar</name></author><author><name sortKey="Welch, Vivian" sort="Welch, Vivian" uniqKey="Welch V" first="Vivian" last="Welch">Vivian Welch</name></author><author><name sortKey="Lyddiatt, Anne" sort="Lyddiatt, Anne" uniqKey="Lyddiatt A" first="Anne" last="Lyddiatt">Anne Lyddiatt</name></author><author><name sortKey="Hofstetter, Cathie" sort="Hofstetter, Cathie" uniqKey="Hofstetter C" first="Cathie" last="Hofstetter">Cathie Hofstetter</name></author><author><name sortKey="De Wit, Maarten" sort="De Wit, Maarten" uniqKey="De Wit M" first="Maarten" last="De Wit">Maarten De Wit</name></author><author><name sortKey="March, Lyn" sort="March, Lyn" uniqKey="March L" first="Lyn" last="March">Lyn March</name></author><author><name sortKey="Meade, Tanya" sort="Meade, Tanya" uniqKey="Meade T" first="Tanya" last="Meade">Tanya Meade</name></author><author><name sortKey="Christensen, Robin" sort="Christensen, Robin" uniqKey="Christensen R" first="Robin" last="Christensen">Robin Christensen</name></author><author><name sortKey="Gaujoux Viala, Cecile" sort="Gaujoux Viala, Cecile" uniqKey="Gaujoux Viala C" first="Cécile" last="Gaujoux-Viala">Cécile Gaujoux-Viala</name></author><author><name sortKey="Suarez Almazor, Maria E" sort="Suarez Almazor, Maria E" uniqKey="Suarez Almazor M" first="Maria E." last="Suarez-Almazor">Maria E. Suarez-Almazor</name></author><author><name sortKey="Boonen, Annelies" sort="Boonen, Annelies" uniqKey="Boonen A" first="Annelies" last="Boonen">Annelies Boonen</name></author><author><name sortKey="Pohl, Christoph" sort="Pohl, Christoph" uniqKey="Pohl C" first="Christoph" last="Pohl">Christoph Pohl</name></author><author><name sortKey="Martin, Richard" sort="Martin, Richard" uniqKey="Martin R" first="Richard" last="Martin">Richard Martin</name></author><author><name sortKey="Tugwell, Peter" sort="Tugwell, Peter" uniqKey="Tugwell P" first="Peter" last="Tugwell">Peter Tugwell</name></author></analytic><series><title level="j">The Journal of rheumatology</title><idno type="ISSN">0315-162X</idno><imprint><date when="2015">2015</date></imprint></series></biblStruct></sourceDesc></fileDesc><profileDesc><textClass></textClass></profileDesc></teiHeader><front><div type="abstract" xml:lang="en"><sec id="S1"><title>Objective</title><p id="P1">Despite the importance of shared decision making for delivering patient-centred care in rheumatology, there is no consensus on how to measure its process and outcomes. The aim of this OMERACT working group is to determine the core set of domains for measuring shared decision making in intervention studies in adults with osteoarthritis (OA), from the perspective of patients, health professionals and researchers.</p></sec><sec id="S2"><title>Methods</title><p id="P2">We followed the OMERACT Filter 2.0 to develop a draft core domain set, which consisted of: (i) forming an OMERACT working group; (ii) conducting a review of domains of shared decision making; and (iii) obtaining the opinions of stakeholders using a modified nominal group process held at a session activity at the OMERACT 2014 meeting.</p></sec><sec id="S3"><title>Results</title><p id="P3">26 stakeholders from Europe, North America and Australia, including 5 patient research partners, participated in the session activity. Participants identified the following domains for measuring shared decision making to be included as part of the Draft Core Set: 1) Identifying the decision; 2) Exchanging Information; 3) Clarifying views; 4) Deliberating; 5) Making the decision; 6) Putting the decision into practice; and 7) Assessing the impact of the decision. Contextual factors were also suggested.</p></sec><sec id="S4"><title>Conclusion</title><p id="P4">We propose a Draft Core Set of shared decision making domains for OA intervention research studies. Next steps include a workshop at OMERACT 2016 to reach consensus on these proposed domains in the wider OMERACT group, as well as detail sub-domains and assess instruments to develop a Core Outcome Measurement Set.</p></sec></div></front></TEI><pmc article-type="research-article"><pmc-comment>The publisher of this article does not allow downloading of the full text in XML form.</pmc-comment>
<pmc-dir>properties manuscript</pmc-dir>
<front><journal-meta><journal-id journal-id-type="nlm-journal-id">7501984</journal-id><journal-id journal-id-type="pubmed-jr-id">5243</journal-id><journal-id journal-id-type="nlm-ta">J Rheumatol</journal-id><journal-id journal-id-type="iso-abbrev">J. Rheumatol.</journal-id><journal-title-group><journal-title>The Journal of rheumatology</journal-title></journal-title-group><issn pub-type="ppub">0315-162X</issn></journal-meta><article-meta><article-id pub-id-type="pmid">25877502</article-id><article-id pub-id-type="pmc">4607553</article-id><article-id pub-id-type="doi">10.3899/jrheum.141205</article-id><article-id pub-id-type="manuscript">NIHMS662717</article-id><article-categories><subj-group subj-group-type="heading"><subject>Article</subject></subj-group></article-categories><title-group><article-title>Development of a Draft Core Set of Domains for Measuring Shared Decision Making in Osteoarthritis: An OMERACT Working Group on Shared Decision Making</article-title></title-group><contrib-group><contrib contrib-type="author"><name><surname>Toupin April</surname><given-names>Karine</given-names></name><degrees>PhD</degrees><role>Associate Scientist</role><email>ktoupin@cheo.on.ca</email><aff id="A1">Children’s Hospital of Eastern Ontario Research Institute, Assistant Professor, Department of Pediatrics, University of Ottawa, Ottawa, Canada</aff></contrib><contrib contrib-type="author"><name><surname>Barton</surname><given-names>Jennifer</given-names></name><degrees>MD</degrees><email>Jennifer.Barton@va.gov</email><aff id="A2">VA Portland Health Care System, Assistant Professor, Oregon Health & Science University, Portland, OR, United States</aff></contrib><contrib contrib-type="author"><name><surname>Fraenkel</surname><given-names>Liana</given-names></name><degrees>MD</degrees><role>Associate Professor</role><email>liana.fraenkel@yale.edu</email><aff id="A3">Department of Internal Medicine, Yale University, New Haven, United States</aff></contrib><contrib contrib-type="author"><name><surname>Li</surname><given-names>Linda</given-names></name><degrees>PT, PhD</degrees><role>Associate Professor</role><email>lli@arthritisresearch.ca</email><aff id="A4">Department of Physical Therapy, University of British Columbia; Senior Scientist, Arthritis Research Centre of Canada, Vancouver, Canada</aff></contrib><contrib contrib-type="author"><name><surname>Grandpierre</surname><given-names>Viviane</given-names></name><degrees>PhD(c)</degrees><email>vgrandpierre@cheo.on.ca</email><aff id="A5">School of Rehabilitation Sciences, University of Ottawa, Children’s Hospital of Eastern Ontario Research Institute, Ottawa, Canada</aff></contrib><contrib contrib-type="author"><name><surname>Guillemin</surname><given-names>Francis</given-names></name><degrees>MD, PhD</degrees><role>Professor</role><email>francis.guillemin@univ-lorraine.fr</email><aff id="A6">Rheumatic Diseases, University of Lorraine, Nancy, France</aff></contrib><contrib contrib-type="author"><name><surname>Rader</surname><given-names>Tamara</given-names></name><degrees>MLIS</degrees><email>trader@uottawa.ca</email><aff id="A7">Institute of Population Health, Trials Search Coordinator & Knowledge Translation Specialist, University of Ottawa, Ottawa, Canada</aff></contrib><contrib contrib-type="author"><name><surname>Stacey</surname><given-names>Dawn</given-names></name><degrees>RN, PhD</degrees><role>Full Professor</role><email>Dawn.Stacey@uOttawa.ca</email><aff id="A8">School of Nursing, University of Ottawa, Ottawa, Canada</aff></contrib><contrib contrib-type="author"><name><surname>Légaré</surname><given-names>France</given-names></name><degrees>MD, PhD</degrees><role>Full Professor</role><email>France.Legare@mfa.ulaval.ca</email><aff id="A9">Department of Family Medicine and Emergency Medicine, Université Laval, Québec City, Canada</aff></contrib><contrib contrib-type="author"><name><surname>Jull</surname><given-names>Janet</given-names></name><degrees>OT, PhD</degrees><role>Postdoctoral Fellow</role><email>jjull013@uottawa.ca</email><aff id="A10">Institute of Population Health, Centre for Global Health, University of Ottawa, Canada, Bruyere Research Institute, University of Ottawa, Ottawa, Canada</aff></contrib><contrib contrib-type="author"><name><surname>Petkovic</surname><given-names>Jennifer</given-names></name><degrees>PhD(c)</degrees><email>jennifer.petkovic@uottawa.ca</email><aff id="A11">Institute of Population Health, Centre for Global Health, University of Ottawa, Canada</aff></contrib><contrib contrib-type="author"><name><surname>Scholte Voshaar</surname><given-names>Marieke</given-names></name><degrees>MSc</degrees><role>Patient Research Partner</role><email>marieke_scholte@hotmail.com</email><aff id="A12">University of Twente, Enschede, The Netherlands</aff></contrib><contrib contrib-type="author"><name><surname>Welch</surname><given-names>Vivian</given-names></name><degrees>PhD</degrees><role>Deputy Director</role><email>vivian.welch@uottawa.ca</email><aff id="A13">Institute of Population Health, Centre for Global Health, University of Ottawa, Canada, Bruyere Research Institute, University of Ottawa, Ottawa, Canada</aff></contrib><contrib contrib-type="author"><name><surname>Lyddiatt</surname><given-names>Anne</given-names></name><email>alyddiatt@primus.ca</email><aff id="A14">Patient Research Partner, Canada</aff></contrib><contrib contrib-type="author"><name><surname>Hofstetter</surname><given-names>Cathie</given-names></name><email>mcfence@on.aibn.com</email><aff id="A15">Patient Research Partner, Canada</aff></contrib><contrib contrib-type="author"><name><surname>De Wit</surname><given-names>Maarten</given-names></name><degrees>PhD</degrees><role>Patient Research Partner</role><email>martinusdewit@hotmail.com</email><aff id="A16">VU Medical Centre, Amsterdam, The Netherlands</aff></contrib><contrib contrib-type="author"><name><surname>March</surname><given-names>Lyn</given-names></name><degrees>MD</degrees><role>Professor</role><email>lynmar@med.usyd.edu.au</email><aff id="A17">Department of Medicine, University of Sydney, Institute of Bone and Joint Research, Sydney, Australia</aff></contrib><contrib contrib-type="author"><name><surname>Meade</surname><given-names>Tanya</given-names></name><degrees>PhD</degrees><role>Research Fellow</role><email>T.Meade@uws.edu.au</email><aff id="A18">University of Sydney, Sydney, Australia, University of Western Sydney, Sydney, Australia</aff></contrib><contrib contrib-type="author"><name><surname>Christensen</surname><given-names>Robin</given-names></name><degrees>PhD</degrees><role>Professor</role><email>Robin.Christensen@frh.regionh.dk</email><aff id="A19">Senior Biostatistician, Musculoskeletal Statistics Unit, The Parker Institute, Department of Rheumatology, University of Copenhagen, Bispebjerg and Frederiksberg Hospitals, Denmark</aff></contrib><contrib contrib-type="author"><name><surname>Gaujoux-Viala</surname><given-names>Cécile</given-names></name><degrees>MD, PhD</degrees><role>Associate Professor</role><email>cecile.gaujoux.viala@chu-nimes.fr</email><aff id="A20">Department of Rheumatology, Nîmes University Hospital, Montpellier I University, Nîmes, France</aff></contrib><contrib contrib-type="author"><name><surname>Suarez-Almazor</surname><given-names>Maria E.</given-names></name><degrees>MD, PhD</degrees><role>Professor</role><email>msalmazor@mdanderson.org</email><aff id="A21">Department of General Internal Medicine, Section of Rheumatology & Clinical Immunology, University of Texas MD Anderson Cancer Center, Houston, United States</aff></contrib><contrib contrib-type="author"><name><surname>Boonen</surname><given-names>Annelies</given-names></name><degrees>MD, PhD</degrees><role>Professor of Rheumatology</role><email>a.boonen@mumc.nl</email><aff id="A22">Division Head, Department of Internal Medicine, Division of Rheumatology, Maastricht University Medical Center and Caphri Research Institute, Maastricht University, Maastricht, The Netherlands</aff></contrib><contrib contrib-type="author"><name><surname>Pohl</surname><given-names>Christoph</given-names></name><degrees>MD</degrees><email>christoph.pohl222@googlemail.com</email><aff id="A23">Department of Internal Medicine II Rheumatology, Clinical Immunology, Osteology, Physical Therapy and Sports Medicine, Schlosspark-Klinik, Teaching Hospital of the Charité, University Medicine, Berlin, Germany</aff></contrib><contrib contrib-type="author"><name><surname>Martin</surname><given-names>Richard</given-names></name><degrees>MD</degrees><role>Professor of Medicine</role><email>martin@mi-arthritis.com</email><aff id="A24">Rheumatology, Michigan State University, College of Human Medicine Grand Rapids, East Lansing, United States</aff></contrib><contrib contrib-type="author"><name><surname>Tugwell</surname><given-names>Peter</given-names></name><degrees>MD</degrees><role>Professor</role><email>tugwell.bb@uottawa.ca</email><aff id="A25">Department of Medicine, Faculty of Medicine, University of Ottawa, Senior Scientist, Clinical Epidemiology Program, Ottawa Hospital Research Institute, Department of Epidemiology and Community Medicine, Faculty of Medicine, University of Ottawa, Institute of Population Health, Centre for Global Health, University of Ottawa, Ottawa, Canada</aff></contrib></contrib-group><author-notes><corresp id="cor1"><bold>Requests for reprints:</bold> Karine Toupin-April <email>ktoupin@cheo.on.ca</email>, <bold>Contact author:</bold> Karine Toupin-April <email>ktoupin@cheo.on.ca</email>, Tel: 613-737-7600 ext. 4197</corresp></author-notes><pub-date pub-type="nihms-submitted"><day>12</day><month>2</month><year>2015</year></pub-date><pub-date pub-type="epub"><day>15</day><month>4</month><year>2015</year></pub-date><pub-date pub-type="ppub"><month>12</month><year>2015</year></pub-date><pub-date pub-type="pmc-release"><day>01</day><month>12</month><year>2016</year></pub-date><volume>42</volume><issue>12</issue><fpage>2442</fpage><lpage>2447</lpage><pmc-comment>elocation-id from pubmed: 10.3899/jrheum.141205</pmc-comment>
<abstract><sec id="S1"><title>Objective</title><p id="P1">Despite the importance of shared decision making for delivering patient-centred care in rheumatology, there is no consensus on how to measure its process and outcomes. The aim of this OMERACT working group is to determine the core set of domains for measuring shared decision making in intervention studies in adults with osteoarthritis (OA), from the perspective of patients, health professionals and researchers.</p></sec><sec id="S2"><title>Methods</title><p id="P2">We followed the OMERACT Filter 2.0 to develop a draft core domain set, which consisted of: (i) forming an OMERACT working group; (ii) conducting a review of domains of shared decision making; and (iii) obtaining the opinions of stakeholders using a modified nominal group process held at a session activity at the OMERACT 2014 meeting.</p></sec><sec id="S3"><title>Results</title><p id="P3">26 stakeholders from Europe, North America and Australia, including 5 patient research partners, participated in the session activity. Participants identified the following domains for measuring shared decision making to be included as part of the Draft Core Set: 1) Identifying the decision; 2) Exchanging Information; 3) Clarifying views; 4) Deliberating; 5) Making the decision; 6) Putting the decision into practice; and 7) Assessing the impact of the decision. Contextual factors were also suggested.</p></sec><sec id="S4"><title>Conclusion</title><p id="P4">We propose a Draft Core Set of shared decision making domains for OA intervention research studies. Next steps include a workshop at OMERACT 2016 to reach consensus on these proposed domains in the wider OMERACT group, as well as detail sub-domains and assess instruments to develop a Core Outcome Measurement Set.</p></sec></abstract><kwd-group><title>Key indexing terms</title><kwd>Shared decision making</kwd><kwd>osteoarthritis</kwd><kwd>OMERACT</kwd><kwd>implementation</kwd><kwd>knowledge translation</kwd><kwd>outcomes</kwd><kwd>outcome assessment</kwd></kwd-group></article-meta></front></pmc></record>Pour manipuler ce document sous Unix (Dilib)
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