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<record><TEI><teiHeader><fileDesc><titleStmt><title xml:lang="en">Waiving confidentiality for the greater good</title>
<author><name sortKey="Chan, An Wen" sort="Chan, An Wen" uniqKey="Chan A" first="An-Wen" last="Chan">An-Wen Chan</name>
<affiliation><nlm:aff id="aff1"> Randomized Controlled Trials Unit, Canadian Institutes of Health Research, Toronto, Canada</nlm:aff>
</affiliation>
</author>
<author><name sortKey="Upshur, Ross" sort="Upshur, Ross" uniqKey="Upshur R" first="Ross" last="Upshur">Ross Upshur</name>
<affiliation><nlm:aff id="aff2"> Primary Care Research Unit, University of Toronto, Canada</nlm:aff>
</affiliation>
</author>
<author><name sortKey="Singh, Jerome A" sort="Singh, Jerome A" uniqKey="Singh J" first="Jerome A" last="Singh">Jerome A. Singh</name>
<affiliation><nlm:aff id="aff3"> Bioethics and Health Law Programme, Centre for the AIDS Program of Research, Durban, South Africa</nlm:aff>
</affiliation>
</author>
<author><name sortKey="Ghersi, Davina" sort="Ghersi, Davina" uniqKey="Ghersi D" first="Davina" last="Ghersi">Davina Ghersi</name>
<affiliation><nlm:aff id="aff4"> Systematic Reviews and Health Care Assessment, National Health and Medical Research Council Clinical Trials Centre, University of Sydney, Australia</nlm:aff>
</affiliation>
</author>
<author><name sortKey="Chapuis, Francois" sort="Chapuis, Francois" uniqKey="Chapuis F" first="François" last="Chapuis">François Chapuis</name>
<affiliation><nlm:aff id="aff5"> Clinical Epidemiology Unit, Hospices Civils de Lyon, Claude Bernard University, Lyon, France</nlm:aff>
</affiliation>
</author>
<author><name sortKey="Altman, Douglas G" sort="Altman, Douglas G" uniqKey="Altman D" first="Douglas G" last="Altman">Douglas G. Altman</name>
<affiliation><nlm:aff id="aff6"> Cancer Research UK and NHS Centre for Statistics in Medicine, Oxford</nlm:aff>
</affiliation>
</author>
</titleStmt>
<publicationStmt><idno type="wicri:source">PMC</idno>
<idno type="pmid">16675819</idno>
<idno type="pmc">1458595</idno>
<idno type="url">http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1458595</idno>
<idno type="RBID">PMC:1458595</idno>
<date when="2006">2006</date>
<idno type="wicri:Area/Pmc/Corpus">001282</idno>
<idno type="wicri:explorRef" wicri:stream="Pmc" wicri:step="Corpus" wicri:corpus="PMC">001282</idno>
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<sourceDesc><biblStruct><analytic><title xml:lang="en" level="a" type="main">Waiving confidentiality for the greater good</title>
<author><name sortKey="Chan, An Wen" sort="Chan, An Wen" uniqKey="Chan A" first="An-Wen" last="Chan">An-Wen Chan</name>
<affiliation><nlm:aff id="aff1"> Randomized Controlled Trials Unit, Canadian Institutes of Health Research, Toronto, Canada</nlm:aff>
</affiliation>
</author>
<author><name sortKey="Upshur, Ross" sort="Upshur, Ross" uniqKey="Upshur R" first="Ross" last="Upshur">Ross Upshur</name>
<affiliation><nlm:aff id="aff2"> Primary Care Research Unit, University of Toronto, Canada</nlm:aff>
</affiliation>
</author>
<author><name sortKey="Singh, Jerome A" sort="Singh, Jerome A" uniqKey="Singh J" first="Jerome A" last="Singh">Jerome A. Singh</name>
<affiliation><nlm:aff id="aff3"> Bioethics and Health Law Programme, Centre for the AIDS Program of Research, Durban, South Africa</nlm:aff>
</affiliation>
</author>
<author><name sortKey="Ghersi, Davina" sort="Ghersi, Davina" uniqKey="Ghersi D" first="Davina" last="Ghersi">Davina Ghersi</name>
<affiliation><nlm:aff id="aff4"> Systematic Reviews and Health Care Assessment, National Health and Medical Research Council Clinical Trials Centre, University of Sydney, Australia</nlm:aff>
</affiliation>
</author>
<author><name sortKey="Chapuis, Francois" sort="Chapuis, Francois" uniqKey="Chapuis F" first="François" last="Chapuis">François Chapuis</name>
<affiliation><nlm:aff id="aff5"> Clinical Epidemiology Unit, Hospices Civils de Lyon, Claude Bernard University, Lyon, France</nlm:aff>
</affiliation>
</author>
<author><name sortKey="Altman, Douglas G" sort="Altman, Douglas G" uniqKey="Altman D" first="Douglas G" last="Altman">Douglas G. Altman</name>
<affiliation><nlm:aff id="aff6"> Cancer Research UK and NHS Centre for Statistics in Medicine, Oxford</nlm:aff>
</affiliation>
</author>
</analytic>
<series><title level="j">BMJ : British Medical Journal</title>
<idno type="ISSN">0959-8138</idno>
<idno type="eISSN">1756-1833</idno>
<imprint><date when="2006">2006</date>
</imprint>
</series>
</biblStruct>
</sourceDesc>
</fileDesc>
<profileDesc><textClass></textClass>
</profileDesc>
</teiHeader>
</TEI>
<pmc article-type="editorial"><pmc-comment>The publisher of this article does not allow downloading of the full text in XML form.</pmc-comment>
<front><journal-meta><journal-id journal-id-type="nlm-ta">BMJ</journal-id>
<journal-id journal-id-type="iso-abbrev">BMJ</journal-id>
<journal-id journal-id-type="publisher-id">bmj</journal-id>
<journal-title-group><journal-title>BMJ : British Medical Journal</journal-title>
</journal-title-group>
<issn pub-type="ppub">0959-8138</issn>
<issn pub-type="epub">1756-1833</issn>
<publisher><publisher-name>BMJ Group</publisher-name>
</publisher>
</journal-meta>
<article-meta><article-id pub-id-type="pmid">16675819</article-id>
<article-id pub-id-type="pmc">1458595</article-id>
<article-id pub-id-type="publisher-id">1086</article-id>
<article-categories><subj-group subj-group-type="heading"><subject>Analysis and Comment</subject>
</subj-group>
<series-title><italic>Research protocols</italic>
</series-title>
</article-categories>
<title-group><article-title>Waiving confidentiality for the greater good</article-title>
</title-group>
<contrib-group><contrib contrib-type="author"><name><surname>Chan</surname>
<given-names>An-Wen</given-names>
</name>
<role>special advisor</role>
<xref ref-type="aff" rid="aff1">1</xref>
</contrib>
<contrib contrib-type="author"><name><surname>Upshur</surname>
<given-names>Ross</given-names>
</name>
<role>director</role>
<xref ref-type="aff" rid="aff2">2</xref>
</contrib>
<contrib contrib-type="author"><name><surname>Singh</surname>
<given-names>Jerome A</given-names>
</name>
<role>head</role>
<xref ref-type="aff" rid="aff3">3</xref>
</contrib>
<contrib contrib-type="author"><name><surname>Ghersi</surname>
<given-names>Davina</given-names>
</name>
<role>director</role>
<xref ref-type="aff" rid="aff4">4</xref>
</contrib>
<contrib contrib-type="author"><name><surname>Chapuis</surname>
<given-names>François</given-names>
</name>
<role>senior researcher</role>
<xref ref-type="aff" rid="aff5">5</xref>
</contrib>
<contrib contrib-type="author"><name><surname>Altman</surname>
<given-names>Douglas G</given-names>
</name>
<role>director</role>
<xref ref-type="aff" rid="aff6">6</xref>
</contrib>
</contrib-group>
<aff id="aff1"><label>1</label>
Randomized Controlled Trials Unit, Canadian Institutes of Health Research, Toronto, Canada</aff>
<aff id="aff2"><label>2</label>
Primary Care Research Unit, University of Toronto, Canada</aff>
<aff id="aff3"><label>3</label>
Bioethics and Health Law Programme, Centre for the AIDS Program of Research, Durban, South Africa</aff>
<aff id="aff4"><label>4</label>
Systematic Reviews and Health Care Assessment, National Health and Medical Research Council Clinical Trials Centre, University of Sydney, Australia</aff>
<aff id="aff5"><label>5</label>
Clinical Epidemiology Unit, Hospices Civils de Lyon, Claude Bernard University, Lyon, France</aff>
<aff id="aff6"><label>6</label>
Cancer Research UK and NHS Centre for Statistics in Medicine, Oxford</aff>
<author-notes><corresp> Correspondence to: A-W Chan <email>anwen.chan@utoronto.ca</email>
</corresp>
</author-notes>
<pub-date pub-type="ppub"><day>6</day>
<month>5</month>
<year>2006</year>
</pub-date>
<volume>332</volume>
<issue>7549</issue>
<fpage>1086</fpage>
<lpage>1089</lpage>
<history><date date-type="accepted"><day>11</day>
<month>3</month>
<year>2006</year>
</date>
</history>
<permissions><copyright-statement>Copyright © 2006, BMJ Publishing Group Ltd.</copyright-statement>
<copyright-year>2006</copyright-year>
</permissions>
<self-uri xlink:title="pdf" xlink:href="ac1086.pdf"></self-uri>
</article-meta>
<notes><fn-group><fn><p><inline-graphic xlink:href="webplus.f2.gif"></inline-graphic>
<italic>References w1-w12 and a sample confidentiality agreement are on <ext-link ext-link-type="uri" xlink:href="bmj.com">bmj.com</ext-link>
</italic>
</p>
</fn>
<fn><p>We thank Tony Hope for helpful discussions and Evelyne Decullier for comments and help in obtaining legal references from France.</p>
</fn>
<fn><p>Contributors and sources: All authors have experience in methodological research and clinical trials, and several authors have compared cohorts of trial protocols with publications (AWC, DG, FC, DGA). Some authors also have expertise in bioethics research/teaching (RU, JAS, FC) and health law (JAS); RU has conducted research into the ethical aspects of when consent can be waived. This article arose from discussions regarding various experiences with accessing protocols. AWC and DGA contributed to the conception, background research, and drafting of the article. RU, JAS, DG, and FC contributed to the background research and drafting of the article. AWC is the guarantor.</p>
</fn>
<fn><p>Competing interests: None declared.</p>
</fn>
</fn-group>
</notes>
</front>
</pmc>
</record>
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