Consensus statement on definitions of disease, end points, and therapeutic response for pemphigus
Identifieur interne : 002A27 ( Pmc/Checkpoint ); précédent : 002A26; suivant : 002A28Consensus statement on definitions of disease, end points, and therapeutic response for pemphigus
Auteurs : Dedee F. Murrell ; Sarah Dick ; A. R. Ahmed ; Masayuki Amagia ; Maria A. Barnadas ; Luca Borradori ; Jean-Claude Bystryn ; Giuseppe Cianchini ; Luis Diaz ; David Fivenson ; Russell Hall ; Karen E. Harman ; Takashi Hashimoto ; Michael Hertl ; Nico Hunzelmann ; Pilar Iranzo ; Pascal Joly ; Marcel F. Jonkman ; Yasuo Kitajima ; Neil J. Korman ; Linda K. Martin ; Daniel Mimouni ; Animesh A. Sinha ; David Sirois ; Detlef Zillikens ; Victoria P. WerthSource :
- Journal of the American Academy of Dermatology [ 0190-9622 ] ; 2008.
Abstract
Our scientific knowledge of pemphigus has dramatically progressed in recent years. However, despite the availability of various therapeutic options for the treatment of inflammatory diseases, only a few multicenter controlled trials have helped to define effective therapies in pemphigus. A major obstacle in comparing therapeutic outcomes between centers is the lack of generally accepted definitions and measurements for the clinical evaluation of pemphigus patients. Common terms and endpoints of pemphigus are needed so that experts in the field can accurately measure and assess disease extent, activity, severity, and therapeutic response, and thus facilitate and advance clinical trials This consensus statement from the International Pemphigus Committee represents two years of collaborative efforts to attain mutually acceptable common definitions for pemphigus. These should assist in development of consistent reporting of outcomes in future studies.
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DOI: 10.1016/j.jaad.2008.01.012
PubMed: 18339444
PubMed Central: 2829665
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Murrell</name></author><author><name sortKey="Dick, Sarah" sort="Dick, Sarah" uniqKey="Dick S" first="Sarah" last="Dick">Sarah Dick</name></author><author><name sortKey="Ahmed, A R" sort="Ahmed, A R" uniqKey="Ahmed A" first="A. R." last="Ahmed">A. R. Ahmed</name></author><author><name sortKey="Amagia, Masayuki" sort="Amagia, Masayuki" uniqKey="Amagia M" first="Masayuki" last="Amagia">Masayuki Amagia</name></author><author><name sortKey="Barnadas, Maria A" sort="Barnadas, Maria A" uniqKey="Barnadas M" first="Maria A." last="Barnadas">Maria A. Barnadas</name></author><author><name sortKey="Borradori, Luca" sort="Borradori, Luca" uniqKey="Borradori L" first="Luca" last="Borradori">Luca Borradori</name></author><author><name sortKey="Bystryn, Jean Claude" sort="Bystryn, Jean Claude" uniqKey="Bystryn J" first="Jean-Claude" last="Bystryn">Jean-Claude Bystryn</name></author><author><name sortKey="Cianchini, Giuseppe" sort="Cianchini, Giuseppe" uniqKey="Cianchini G" first="Giuseppe" last="Cianchini">Giuseppe Cianchini</name></author><author><name sortKey="Diaz, Luis" sort="Diaz, Luis" uniqKey="Diaz L" first="Luis" last="Diaz">Luis Diaz</name></author><author><name sortKey="Fivenson, David" sort="Fivenson, David" uniqKey="Fivenson D" first="David" last="Fivenson">David Fivenson</name></author><author><name sortKey="Hall, Russell" sort="Hall, Russell" uniqKey="Hall R" first="Russell" last="Hall">Russell Hall</name></author><author><name sortKey="Harman, Karen E" sort="Harman, Karen E" uniqKey="Harman K" first="Karen E." last="Harman">Karen E. Harman</name></author><author><name sortKey="Hashimoto, Takashi" sort="Hashimoto, Takashi" uniqKey="Hashimoto T" first="Takashi" last="Hashimoto">Takashi Hashimoto</name></author><author><name sortKey="Hertl, Michael" sort="Hertl, Michael" uniqKey="Hertl M" first="Michael" last="Hertl">Michael Hertl</name></author><author><name sortKey="Hunzelmann, Nico" sort="Hunzelmann, Nico" uniqKey="Hunzelmann N" first="Nico" last="Hunzelmann">Nico Hunzelmann</name></author><author><name sortKey="Iranzo, Pilar" sort="Iranzo, Pilar" uniqKey="Iranzo P" first="Pilar" last="Iranzo">Pilar Iranzo</name></author><author><name sortKey="Joly, Pascal" sort="Joly, Pascal" uniqKey="Joly P" first="Pascal" last="Joly">Pascal Joly</name></author><author><name sortKey="Jonkman, Marcel F" sort="Jonkman, Marcel F" uniqKey="Jonkman M" first="Marcel F." last="Jonkman">Marcel F. Jonkman</name></author><author><name sortKey="Kitajima, Yasuo" sort="Kitajima, Yasuo" uniqKey="Kitajima Y" first="Yasuo" last="Kitajima">Yasuo Kitajima</name></author><author><name sortKey="Korman, Neil J" sort="Korman, Neil J" uniqKey="Korman N" first="Neil J." last="Korman">Neil J. Korman</name></author><author><name sortKey="Martin, Linda K" sort="Martin, Linda K" uniqKey="Martin L" first="Linda K." last="Martin">Linda K. Martin</name></author><author><name sortKey="Mimouni, Daniel" sort="Mimouni, Daniel" uniqKey="Mimouni D" first="Daniel" last="Mimouni">Daniel Mimouni</name></author><author><name sortKey="Sinha, Animesh A" sort="Sinha, Animesh A" uniqKey="Sinha A" first="Animesh A." last="Sinha">Animesh A. Sinha</name></author><author><name sortKey="Sirois, David" sort="Sirois, David" uniqKey="Sirois D" first="David" last="Sirois">David Sirois</name></author><author><name sortKey="Zillikens, Detlef" sort="Zillikens, Detlef" uniqKey="Zillikens D" first="Detlef" last="Zillikens">Detlef Zillikens</name></author><author><name sortKey="Werth, Victoria P" sort="Werth, Victoria P" uniqKey="Werth V" first="Victoria P." last="Werth">Victoria P. Werth</name></author></analytic><series><title level="j">Journal of the American Academy of Dermatology</title><idno type="ISSN">0190-9622</idno><idno type="eISSN">1097-6787</idno><imprint><date when="2008">2008</date></imprint></series></biblStruct></sourceDesc></fileDesc><profileDesc><textClass></textClass></profileDesc></teiHeader><front><div type="abstract" xml:lang="en"><p id="P1">Our scientific knowledge of pemphigus has dramatically progressed in recent years. However, despite the availability of various therapeutic options for the treatment of inflammatory diseases, only a few multicenter controlled trials have helped to define effective therapies in pemphigus. A major obstacle in comparing therapeutic outcomes between centers is the lack of generally accepted definitions and measurements for the clinical evaluation of pemphigus patients. Common terms and endpoints of pemphigus are needed so that experts in the field can accurately measure and assess disease extent, activity, severity, and therapeutic response, and thus facilitate and advance clinical trials This consensus statement from the International Pemphigus Committee represents two years of collaborative efforts to attain mutually acceptable common definitions for pemphigus. These should assist in development of consistent reporting of outcomes in future studies.</p></div></front></TEI><pmc article-type="research-article" xml:lang="EN"><pmc-comment>The publisher of this article does not allow downloading of the full text in XML form.</pmc-comment>
<pmc-dir>properties manuscript</pmc-dir>
<front><journal-meta><journal-id journal-id-type="nlm-journal-id">7907132</journal-id><journal-id journal-id-type="pubmed-jr-id">4671</journal-id><journal-id journal-id-type="nlm-ta">J Am Acad Dermatol</journal-id><journal-title>Journal of the American Academy of Dermatology</journal-title><issn pub-type="ppub">0190-9622</issn><issn pub-type="epub">1097-6787</issn></journal-meta><article-meta><article-id pub-id-type="pmid">18339444</article-id><article-id pub-id-type="pmc">2829665</article-id><article-id pub-id-type="doi">10.1016/j.jaad.2008.01.012</article-id><article-id pub-id-type="manuscript">NIHMS82304</article-id><article-categories><subj-group subj-group-type="heading"><subject>Article</subject></subj-group></article-categories><title-group><article-title>Consensus statement on definitions of disease, end points, and therapeutic response for pemphigus</article-title></title-group><contrib-group><contrib contrib-type="author"><name><surname>Murrell</surname><given-names>Dedee F.</given-names></name><degrees>MD</degrees></contrib><contrib contrib-type="author"><name><surname>Dick</surname><given-names>Sarah</given-names></name><degrees>MD</degrees></contrib><contrib contrib-type="author"><name><surname>Ahmed</surname><given-names>A.R.</given-names></name><degrees>JD</degrees></contrib><contrib contrib-type="author"><name><surname>Amagia</surname><given-names>Masayuki</given-names></name><degrees>MD</degrees></contrib><contrib contrib-type="author"><name><surname>Barnadas</surname><given-names>Maria A.</given-names></name><degrees>MD</degrees></contrib><contrib contrib-type="author"><name><surname>Borradori</surname><given-names>Luca</given-names></name><degrees>MD</degrees></contrib><contrib contrib-type="author"><name><surname>Bystryn</surname><given-names>Jean-Claude</given-names></name><degrees>MD</degrees></contrib><contrib contrib-type="author"><name><surname>Cianchini</surname><given-names>Giuseppe</given-names></name><degrees>MD</degrees></contrib><contrib contrib-type="author"><name><surname>Diaz</surname><given-names>Luis</given-names></name><degrees>MD</degrees></contrib><contrib contrib-type="author"><name><surname>Fivenson</surname><given-names>David</given-names></name><degrees>MD</degrees></contrib><contrib contrib-type="author"><name><surname>Hall</surname><given-names>Russell</given-names></name><degrees>MD</degrees></contrib><contrib contrib-type="author"><name><surname>Harman</surname><given-names>Karen E.</given-names></name><degrees>MD</degrees></contrib><contrib contrib-type="author"><name><surname>Hashimoto</surname><given-names>Takashi</given-names></name><degrees>MD</degrees></contrib><contrib contrib-type="author"><name><surname>Hertl</surname><given-names>Michael</given-names></name><degrees>MD</degrees></contrib><contrib contrib-type="author"><name><surname>Hunzelmann</surname><given-names>Nico</given-names></name><degrees>MD</degrees></contrib><contrib contrib-type="author"><name><surname>Iranzo</surname><given-names>Pilar</given-names></name><degrees>MD</degrees></contrib><contrib contrib-type="author"><name><surname>Joly</surname><given-names>Pascal</given-names></name><degrees>MD</degrees></contrib><contrib contrib-type="author"><name><surname>Jonkman</surname><given-names>Marcel F.</given-names></name><degrees>MD</degrees></contrib><contrib contrib-type="author"><name><surname>Kitajima</surname><given-names>Yasuo</given-names></name><degrees>MD, PhD</degrees></contrib><contrib contrib-type="author"><name><surname>Korman</surname><given-names>Neil J.</given-names></name><degrees>MD, PhD</degrees></contrib><contrib contrib-type="author"><name><surname>Martin</surname><given-names>Linda K.</given-names></name><degrees>MD</degrees></contrib><contrib contrib-type="author"><name><surname>Mimouni</surname><given-names>Daniel</given-names></name><degrees>MD</degrees></contrib><contrib contrib-type="author"><name><surname>Sinha</surname><given-names>Animesh A.</given-names></name><degrees>MD, PhD</degrees></contrib><contrib contrib-type="author"><name><surname>Sirois</surname><given-names>David</given-names></name><degrees>MD</degrees></contrib><contrib contrib-type="author"><name><surname>Zillikens</surname><given-names>Detlef</given-names></name><degrees>MD</degrees></contrib><contrib contrib-type="author"><name><surname>Werth</surname><given-names>Victoria P.</given-names></name><degrees>MD</degrees></contrib><aff id="A1">Sydney, Australia; Philadelphia, Pennsylvania; Boston, Massachusetts; Tokyo, Kurume, Gifu, and Sapporo, Japan; Barcelona, Spain; Geneva, Switzerland; New York, New York; Rome, Italy; Chapel Hill and Durham, North Carolina; Ann Arbor and East Lansing, Michigan;‘ Leicester, United Kingdom; Standort Marburg, Koln, and Luebeck, Germany; Rouen, France; Groningen, the Netherlands; Cleveland, Ohio; Petah-Tikva, Israel; and Dallas, Texas</aff></contrib-group><author-notes><corresp id="FN1">Reprint requests: Victoria P. Werth, Department of Dermatology, University of Pennsylvania, 2 Maloney Building, 36<sup>th</sup> and Spruce St., Philadelphia, PA 19104</corresp></author-notes><pub-date pub-type="nihms-submitted"><day>10</day><month>12</month><year>2008</year></pub-date><pub-date pub-type="epub"><day>14</day><month>3</month><year>2008</year></pub-date><pub-date pub-type="ppub"><month>6</month><year>2008</year></pub-date><pub-date pub-type="pmc-release"><day>1</day><month>3</month><year>2010</year></pub-date><volume>58</volume><issue>6</issue><fpage>1043</fpage><lpage>1046</lpage><abstract><p id="P1">Our scientific knowledge of pemphigus has dramatically progressed in recent years. However, despite the availability of various therapeutic options for the treatment of inflammatory diseases, only a few multicenter controlled trials have helped to define effective therapies in pemphigus. A major obstacle in comparing therapeutic outcomes between centers is the lack of generally accepted definitions and measurements for the clinical evaluation of pemphigus patients. Common terms and endpoints of pemphigus are needed so that experts in the field can accurately measure and assess disease extent, activity, severity, and therapeutic response, and thus facilitate and advance clinical trials This consensus statement from the International Pemphigus Committee represents two years of collaborative efforts to attain mutually acceptable common definitions for pemphigus. These should assist in development of consistent reporting of outcomes in future studies.</p></abstract><contract-num rid="AR1">K24 AR002207-06A2
||AR</contract-num><contract-sponsor id="AR1">National Institute of Arthritis and Musculoskeletal and Skin Diseases : NIAMS</contract-sponsor></article-meta></front></pmc><affiliations><list></list><tree><noCountry><name sortKey="Ahmed, A R" sort="Ahmed, A R" uniqKey="Ahmed A" first="A. R." last="Ahmed">A. R. Ahmed</name><name sortKey="Amagia, Masayuki" sort="Amagia, Masayuki" uniqKey="Amagia M" first="Masayuki" last="Amagia">Masayuki Amagia</name><name sortKey="Barnadas, Maria A" sort="Barnadas, Maria A" uniqKey="Barnadas M" first="Maria A." last="Barnadas">Maria A. Barnadas</name><name sortKey="Borradori, Luca" sort="Borradori, Luca" uniqKey="Borradori L" first="Luca" last="Borradori">Luca Borradori</name><name sortKey="Bystryn, Jean Claude" sort="Bystryn, Jean Claude" uniqKey="Bystryn J" first="Jean-Claude" last="Bystryn">Jean-Claude Bystryn</name><name sortKey="Cianchini, Giuseppe" sort="Cianchini, Giuseppe" uniqKey="Cianchini G" first="Giuseppe" last="Cianchini">Giuseppe Cianchini</name><name sortKey="Diaz, Luis" sort="Diaz, Luis" uniqKey="Diaz L" first="Luis" last="Diaz">Luis Diaz</name><name sortKey="Dick, Sarah" sort="Dick, Sarah" uniqKey="Dick S" first="Sarah" last="Dick">Sarah Dick</name><name sortKey="Fivenson, David" sort="Fivenson, David" uniqKey="Fivenson D" first="David" last="Fivenson">David Fivenson</name><name sortKey="Hall, Russell" sort="Hall, Russell" uniqKey="Hall R" first="Russell" last="Hall">Russell Hall</name><name sortKey="Harman, Karen E" sort="Harman, Karen E" uniqKey="Harman K" first="Karen E." last="Harman">Karen E. Harman</name><name sortKey="Hashimoto, Takashi" sort="Hashimoto, Takashi" uniqKey="Hashimoto T" first="Takashi" last="Hashimoto">Takashi Hashimoto</name><name sortKey="Hertl, Michael" sort="Hertl, Michael" uniqKey="Hertl M" first="Michael" last="Hertl">Michael Hertl</name><name sortKey="Hunzelmann, Nico" sort="Hunzelmann, Nico" uniqKey="Hunzelmann N" first="Nico" last="Hunzelmann">Nico Hunzelmann</name><name sortKey="Iranzo, Pilar" sort="Iranzo, Pilar" uniqKey="Iranzo P" first="Pilar" last="Iranzo">Pilar Iranzo</name><name sortKey="Joly, Pascal" sort="Joly, Pascal" uniqKey="Joly P" first="Pascal" last="Joly">Pascal Joly</name><name sortKey="Jonkman, Marcel F" sort="Jonkman, Marcel F" uniqKey="Jonkman M" first="Marcel F." last="Jonkman">Marcel F. Jonkman</name><name sortKey="Kitajima, Yasuo" sort="Kitajima, Yasuo" uniqKey="Kitajima Y" first="Yasuo" last="Kitajima">Yasuo Kitajima</name><name sortKey="Korman, Neil J" sort="Korman, Neil J" uniqKey="Korman N" first="Neil J." last="Korman">Neil J. Korman</name><name sortKey="Martin, Linda K" sort="Martin, Linda K" uniqKey="Martin L" first="Linda K." last="Martin">Linda K. Martin</name><name sortKey="Mimouni, Daniel" sort="Mimouni, Daniel" uniqKey="Mimouni D" first="Daniel" last="Mimouni">Daniel Mimouni</name><name sortKey="Murrell, Dedee F" sort="Murrell, Dedee F" uniqKey="Murrell D" first="Dedee F." last="Murrell">Dedee F. Murrell</name><name sortKey="Sinha, Animesh A" sort="Sinha, Animesh A" uniqKey="Sinha A" first="Animesh A." last="Sinha">Animesh A. Sinha</name><name sortKey="Sirois, David" sort="Sirois, David" uniqKey="Sirois D" first="David" last="Sirois">David Sirois</name><name sortKey="Werth, Victoria P" sort="Werth, Victoria P" uniqKey="Werth V" first="Victoria P." last="Werth">Victoria P. Werth</name><name sortKey="Zillikens, Detlef" sort="Zillikens, Detlef" uniqKey="Zillikens D" first="Detlef" last="Zillikens">Detlef Zillikens</name></noCountry></tree></affiliations></record>Pour manipuler ce document sous Unix (Dilib)
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