AustralieFrV1, Main, Exploration, bibRecordById, pubmed:28546269

Towards an expert consensus to delineate a clinical syndrome of chronic breathlessness.

Identifieur interne : 000147 ( Main/Exploration ); précédent : 000146; suivant : 000148

Towards an expert consensus to delineate a clinical syndrome of chronic breathlessness.

Auteurs : Miriam J. Johnson [Royaume-Uni] ; Janelle Yorke [Royaume-Uni] ; John Hansen-Flaschen [États-Unis] ; Robert Lansing [États-Unis] ; Magnus Ekström [Suède] ; Thomas Similowski [France] ; David C. Currow [Royaume-Uni]

Source :

The European respiratory journal [ 1399-3003 ] ; 2017.

RBID : pubmed:28546269

Abstract

Breathlessness that persists despite treatment for the underlying conditions is debilitating. Identifying this discrete entity as a clinical syndrome should raise awareness amongst patients, clinicians, service providers, researchers and research funders.Using the Delphi method, questions and statements were generated via expert group consultations and one-to-one interviews (n=17). These were subsequently circulated in three survey rounds (n=34, n=25, n=31) to an extended international group from various settings (clinical and laboratory; hospital, hospice and community) and working within the basic sciences and clinical specialties. The a priori target agreement for each question was 70%. Findings were discussed at a multinational workshop.The agreed term, chronic breathlessness syndrome, was defined as breathlessness that persists despite optimal treatment of the underlying pathophysiology and that results in disability. A stated duration was not needed for "chronic". Key terms for French and German translation were also discussed and the need for further consensus recognised, especially with regard to cultural and linguistic interpretation.We propose criteria for chronic breathlessness syndrome. Recognition is an important first step to address the therapeutic nihilism that has pervaded this neglected symptom and could empower patients and caregivers, improve clinical care, focus research, and encourage wider uptake of available and emerging evidence-based interventions.

DOI: 10.1183/13993003.02277-2016
PubMed: 28546269

Affiliations:

Le document en format XML

<record><TEI><teiHeader><fileDesc><titleStmt><title xml:lang="en">Towards an expert consensus to delineate a clinical syndrome of chronic breathlessness.</title>
<author><name sortKey="Johnson, Miriam J" sort="Johnson, Miriam J" uniqKey="Johnson M" first="Miriam J" last="Johnson">Miriam J. Johnson</name>
<affiliation wicri:level="1"><nlm:affiliation>Hull York Medical School, University of Hull, Hull, UK miriam.johnson@hyms.ac.uk.</nlm:affiliation>
<country wicri:rule="url">Royaume-Uni</country>
<wicri:regionArea>Hull York Medical School, University of Hull, Hull</wicri:regionArea>
<wicri:noRegion>Hull</wicri:noRegion>
</affiliation>
</author>
<author><name sortKey="Yorke, Janelle" sort="Yorke, Janelle" uniqKey="Yorke J" first="Janelle" last="Yorke">Janelle Yorke</name>
<affiliation wicri:level="4"><nlm:affiliation>School of Nursing, Midwifery and Social Work, University of Manchester, Manchester, UK.</nlm:affiliation>
<country xml:lang="fr">Royaume-Uni</country>
<wicri:regionArea>School of Nursing, Midwifery and Social Work, University of Manchester, Manchester</wicri:regionArea>
<placeName><settlement type="city">Manchester</settlement>
<region type="country">Angleterre</region>
<region type="région" nuts="1">Grand Manchester</region>
<settlement type="city">Manchester</settlement>
</placeName>
<orgName type="university">Université de Manchester</orgName>
</affiliation>
</author>
<author><name sortKey="Hansen Flaschen, John" sort="Hansen Flaschen, John" uniqKey="Hansen Flaschen J" first="John" last="Hansen-Flaschen">John Hansen-Flaschen</name>
<affiliation wicri:level="2"><nlm:affiliation>Perelman School of Medicine, Hospital of the University of Pennsylvania, Philadelphia, PA, USA.</nlm:affiliation>
<country xml:lang="fr">États-Unis</country>
<wicri:regionArea>Perelman School of Medicine, Hospital of the University of Pennsylvania, Philadelphia, PA</wicri:regionArea>
<placeName><region type="state">Pennsylvanie</region>
</placeName>
</affiliation>
</author>
<author><name sortKey="Lansing, Robert" sort="Lansing, Robert" uniqKey="Lansing R" first="Robert" last="Lansing">Robert Lansing</name>
<affiliation wicri:level="2"><nlm:affiliation>Harvard Medical School, Beth Israel Hospital, Boston, MA, USA.</nlm:affiliation>
<country xml:lang="fr">États-Unis</country>
<wicri:regionArea>Harvard Medical School, Beth Israel Hospital, Boston, MA</wicri:regionArea>
<placeName><region type="state">Massachusetts</region>
</placeName>
</affiliation>
</author>
<author><name sortKey="Ekstrom, Magnus" sort="Ekstrom, Magnus" uniqKey="Ekstrom M" first="Magnus" last="Ekström">Magnus Ekström</name>
<affiliation wicri:level="1"><nlm:affiliation>Dept of Clinical Sciences, Division of Respiratory Medicine & Allergology, Lund University, Lund, Sweden.</nlm:affiliation>
<country xml:lang="fr">Suède</country>
<wicri:regionArea>Dept of Clinical Sciences, Division of Respiratory Medicine & Allergology, Lund University, Lund</wicri:regionArea>
<wicri:noRegion>Lund</wicri:noRegion>
</affiliation>
</author>
<author><name sortKey="Similowski, Thomas" sort="Similowski, Thomas" uniqKey="Similowski T" first="Thomas" last="Similowski">Thomas Similowski</name>
<affiliation wicri:level="3"><nlm:affiliation>Service de Pneumologie et Reanimation Medicale, Groupe Hospitalier Pitie-Salpetriere Charles Foix, Paris, France.</nlm:affiliation>
<country xml:lang="fr">France</country>
<wicri:regionArea>Service de Pneumologie et Reanimation Medicale, Groupe Hospitalier Pitie-Salpetriere Charles Foix, Paris</wicri:regionArea>
<placeName><region type="region">Île-de-France</region>
<region type="old region">Île-de-France</region>
<settlement type="city">Paris</settlement>
</placeName>
</affiliation>
</author>
<author><name sortKey="Currow, David C" sort="Currow, David C" uniqKey="Currow D" first="David C" last="Currow">David C. Currow</name>
<affiliation wicri:level="1"><nlm:affiliation>Hull York Medical School, University of Hull, Hull, UK.</nlm:affiliation>
<country xml:lang="fr">Royaume-Uni</country>
<wicri:regionArea>Hull York Medical School, University of Hull, Hull</wicri:regionArea>
<wicri:noRegion>Hull</wicri:noRegion>
</affiliation>
</author>
</titleStmt>
<publicationStmt><idno type="wicri:source">PubMed</idno>
<date when="2017">2017</date>
<idno type="RBID">pubmed:28546269</idno>
<idno type="pmid">28546269</idno>
<idno type="doi">10.1183/13993003.02277-2016</idno>
<idno type="wicri:Area/PubMed/Corpus">000B83</idno>
<idno type="wicri:explorRef" wicri:stream="PubMed" wicri:step="Corpus" wicri:corpus="PubMed">000B83</idno>
<idno type="wicri:Area/PubMed/Curation">000B80</idno>
<idno type="wicri:explorRef" wicri:stream="PubMed" wicri:step="Curation">000B80</idno>
<idno type="wicri:Area/PubMed/Checkpoint">000B80</idno>
<idno type="wicri:explorRef" wicri:stream="Checkpoint" wicri:step="PubMed">000B80</idno>
<idno type="wicri:Area/Ncbi/Merge">004871</idno>
<idno type="wicri:Area/Ncbi/Curation">004871</idno>
<idno type="wicri:Area/Ncbi/Checkpoint">004871</idno>
<idno type="wicri:Area/Main/Merge">000142</idno>
<idno type="wicri:Area/Main/Curation">000147</idno>
<idno type="wicri:Area/Main/Exploration">000147</idno>
</publicationStmt>
<sourceDesc><biblStruct><analytic><title xml:lang="en">Towards an expert consensus to delineate a clinical syndrome of chronic breathlessness.</title>
<author><name sortKey="Johnson, Miriam J" sort="Johnson, Miriam J" uniqKey="Johnson M" first="Miriam J" last="Johnson">Miriam J. Johnson</name>
<affiliation wicri:level="1"><nlm:affiliation>Hull York Medical School, University of Hull, Hull, UK miriam.johnson@hyms.ac.uk.</nlm:affiliation>
<country wicri:rule="url">Royaume-Uni</country>
<wicri:regionArea>Hull York Medical School, University of Hull, Hull</wicri:regionArea>
<wicri:noRegion>Hull</wicri:noRegion>
</affiliation>
</author>
<author><name sortKey="Yorke, Janelle" sort="Yorke, Janelle" uniqKey="Yorke J" first="Janelle" last="Yorke">Janelle Yorke</name>
<affiliation wicri:level="4"><nlm:affiliation>School of Nursing, Midwifery and Social Work, University of Manchester, Manchester, UK.</nlm:affiliation>
<country xml:lang="fr">Royaume-Uni</country>
<wicri:regionArea>School of Nursing, Midwifery and Social Work, University of Manchester, Manchester</wicri:regionArea>
<placeName><settlement type="city">Manchester</settlement>
<region type="country">Angleterre</region>
<region type="région" nuts="1">Grand Manchester</region>
<settlement type="city">Manchester</settlement>
</placeName>
<orgName type="university">Université de Manchester</orgName>
</affiliation>
</author>
<author><name sortKey="Hansen Flaschen, John" sort="Hansen Flaschen, John" uniqKey="Hansen Flaschen J" first="John" last="Hansen-Flaschen">John Hansen-Flaschen</name>
<affiliation wicri:level="2"><nlm:affiliation>Perelman School of Medicine, Hospital of the University of Pennsylvania, Philadelphia, PA, USA.</nlm:affiliation>
<country xml:lang="fr">États-Unis</country>
<wicri:regionArea>Perelman School of Medicine, Hospital of the University of Pennsylvania, Philadelphia, PA</wicri:regionArea>
<placeName><region type="state">Pennsylvanie</region>
</placeName>
</affiliation>
</author>
<author><name sortKey="Lansing, Robert" sort="Lansing, Robert" uniqKey="Lansing R" first="Robert" last="Lansing">Robert Lansing</name>
<affiliation wicri:level="2"><nlm:affiliation>Harvard Medical School, Beth Israel Hospital, Boston, MA, USA.</nlm:affiliation>
<country xml:lang="fr">États-Unis</country>
<wicri:regionArea>Harvard Medical School, Beth Israel Hospital, Boston, MA</wicri:regionArea>
<placeName><region type="state">Massachusetts</region>
</placeName>
</affiliation>
</author>
<author><name sortKey="Ekstrom, Magnus" sort="Ekstrom, Magnus" uniqKey="Ekstrom M" first="Magnus" last="Ekström">Magnus Ekström</name>
<affiliation wicri:level="1"><nlm:affiliation>Dept of Clinical Sciences, Division of Respiratory Medicine & Allergology, Lund University, Lund, Sweden.</nlm:affiliation>
<country xml:lang="fr">Suède</country>
<wicri:regionArea>Dept of Clinical Sciences, Division of Respiratory Medicine & Allergology, Lund University, Lund</wicri:regionArea>
<wicri:noRegion>Lund</wicri:noRegion>
</affiliation>
</author>
<author><name sortKey="Similowski, Thomas" sort="Similowski, Thomas" uniqKey="Similowski T" first="Thomas" last="Similowski">Thomas Similowski</name>
<affiliation wicri:level="3"><nlm:affiliation>Service de Pneumologie et Reanimation Medicale, Groupe Hospitalier Pitie-Salpetriere Charles Foix, Paris, France.</nlm:affiliation>
<country xml:lang="fr">France</country>
<wicri:regionArea>Service de Pneumologie et Reanimation Medicale, Groupe Hospitalier Pitie-Salpetriere Charles Foix, Paris</wicri:regionArea>
<placeName><region type="region">Île-de-France</region>
<region type="old region">Île-de-France</region>
<settlement type="city">Paris</settlement>
</placeName>
</affiliation>
</author>
<author><name sortKey="Currow, David C" sort="Currow, David C" uniqKey="Currow D" first="David C" last="Currow">David C. Currow</name>
<affiliation wicri:level="1"><nlm:affiliation>Hull York Medical School, University of Hull, Hull, UK.</nlm:affiliation>
<country xml:lang="fr">Royaume-Uni</country>
<wicri:regionArea>Hull York Medical School, University of Hull, Hull</wicri:regionArea>
<wicri:noRegion>Hull</wicri:noRegion>
</affiliation>
</author>
</analytic>
<series><title level="j">The European respiratory journal</title>
<idno type="eISSN">1399-3003</idno>
<imprint><date when="2017" type="published">2017</date>
</imprint>
</series>
</biblStruct>
</sourceDesc>
</fileDesc>
<profileDesc><textClass></textClass>
</profileDesc>
</teiHeader>
<front><div type="abstract" xml:lang="en">Breathlessness that persists despite treatment for the underlying conditions is debilitating. Identifying this discrete entity as a clinical syndrome should raise awareness amongst patients, clinicians, service providers, researchers and research funders.Using the Delphi method, questions and statements were generated via expert group consultations and one-to-one interviews (n=17). These were subsequently circulated in three survey rounds (n=34, n=25, n=31) to an extended international group from various settings (clinical and laboratory; hospital, hospice and community) and working within the basic sciences and clinical specialties. The a priori target agreement for each question was 70%. Findings were discussed at a multinational workshop.The agreed term, chronic breathlessness syndrome, was defined as breathlessness that persists despite optimal treatment of the underlying pathophysiology and that results in disability. A stated duration was not needed for "chronic". Key terms for French and German translation were also discussed and the need for further consensus recognised, especially with regard to cultural and linguistic interpretation.We propose criteria for chronic breathlessness syndrome. Recognition is an important first step to address the therapeutic nihilism that has pervaded this neglected symptom and could empower patients and caregivers, improve clinical care, focus research, and encourage wider uptake of available and emerging evidence-based interventions.</div>
</front>
</TEI>
<affiliations><list><country><li>France</li>
<li>Royaume-Uni</li>
<li>Suède</li>
<li>États-Unis</li>
</country>
<region><li>Angleterre</li>
<li>Grand Manchester</li>
<li>Massachusetts</li>
<li>Pennsylvanie</li>
<li>Île-de-France</li>
</region>
<settlement><li>Manchester</li>
<li>Paris</li>
</settlement>
<orgName><li>Université de Manchester</li>
</orgName>
</list>
<tree><country name="Royaume-Uni"><noRegion><name sortKey="Johnson, Miriam J" sort="Johnson, Miriam J" uniqKey="Johnson M" first="Miriam J" last="Johnson">Miriam J. Johnson</name>
</noRegion>
<name sortKey="Currow, David C" sort="Currow, David C" uniqKey="Currow D" first="David C" last="Currow">David C. Currow</name>
<name sortKey="Yorke, Janelle" sort="Yorke, Janelle" uniqKey="Yorke J" first="Janelle" last="Yorke">Janelle Yorke</name>
</country>
<country name="États-Unis"><region name="Pennsylvanie"><name sortKey="Hansen Flaschen, John" sort="Hansen Flaschen, John" uniqKey="Hansen Flaschen J" first="John" last="Hansen-Flaschen">John Hansen-Flaschen</name>
</region>
<name sortKey="Lansing, Robert" sort="Lansing, Robert" uniqKey="Lansing R" first="Robert" last="Lansing">Robert Lansing</name>
</country>
<country name="Suède"><noRegion><name sortKey="Ekstrom, Magnus" sort="Ekstrom, Magnus" uniqKey="Ekstrom M" first="Magnus" last="Ekström">Magnus Ekström</name>
</noRegion>
</country>
<country name="France"><region name="Île-de-France"><name sortKey="Similowski, Thomas" sort="Similowski, Thomas" uniqKey="Similowski T" first="Thomas" last="Similowski">Thomas Similowski</name>
</region>
</country>
</tree>
</affiliations>
</record>

Pour manipuler ce document sous Unix (Dilib)

EXPLOR_STEP=$WICRI_ROOT/Wicri/Asie/explor/AustralieFrV1/Data/Main/Exploration

HfdSelect -h $EXPLOR_STEP/biblio.hfd -nk 000147 | SxmlIndent | more

HfdSelect -h $EXPLOR_AREA/Data/Main/Exploration/biblio.hfd -nk 000147 | SxmlIndent | more

Pour mettre un lien sur cette page dans le réseau Wicri

{{Explor lien
   |wiki=    Wicri/Asie
   |area=    AustralieFrV1
   |flux=    Main
   |étape=   Exploration
   |type=    RBID
   |clé=     pubmed:28546269
   |texte=   Towards an expert consensus to delineate a clinical syndrome of chronic breathlessness.
}}

Pour générer des pages wiki

HfdIndexSelect -h $EXPLOR_AREA/Data/Main/Exploration/RBID.i   -Sk "pubmed:28546269" \
       | HfdSelect -Kh $EXPLOR_AREA/Data/Main/Exploration/biblio.hfd   \
       | NlmPubMed2Wicri -a AustralieFrV1

This area was generated with Dilib version V0.6.33.
Data generation: Tue Dec 5 10:43:12 2017. Site generation: Tue Mar 5 14:07:20 2024

Serveur d'exploration sur les relations entre la France et l'Australie

Towards an expert consensus to delineate a clinical syndrome of chronic breathlessness.

Towards an expert consensus to delineate a clinical syndrome of chronic breathlessness.

Source :

Abstract

Links toward previous steps (curation, corpus...)

Le document en format XML

Pour manipuler ce document sous Unix (Dilib)

Pour mettre un lien sur cette page dans le réseau Wicri

Pour générer des pages wiki

	Serveur d'exploration sur les relations entre la France et l'Australie
	Attention, ce site est en cours de développement ! Attention, site généré par des moyens informatiques à partir de corpus bruts. Les informations ne sont donc pas validées.