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Consensus Statement on Standard of Care for Congenital Myopathies

Identifieur interne : 005423 ( Main/Exploration ); précédent : 005422; suivant : 005424

Consensus Statement on Standard of Care for Congenital Myopathies

Auteurs : Ching H. Wang [États-Unis] ; James J. Dowling [États-Unis] ; Kathryn North [Australie] ; Mary K. Schroth [États-Unis] ; Thomas Sejersen [Suède] ; Frederic Shapiro [États-Unis] ; Jonathan Bellini [États-Unis] ; Hali Weiss [États-Unis] ; Marc Guillet [États-Unis] ; Kimberly Amburgey [États-Unis] ; Susan Apkon [États-Unis] ; Enrico Bertini [Italie] ; Carsten Bonnemann [États-Unis] ; Nigel Clarke [Australie] ; Anne M. Connolly [États-Unis] ; Brigitte Estournet-Mathiaud [France] ; Dominic Fitzgerald [Australie] ; Julaine M. Florence [États-Unis] ; Richard Gee [États-Unis] ; Juliana Gurgel-Giannetti [Brésil] ; Allan M. Glanzman [États-Unis] ; Brittany Hofmeister [États-Unis] ; Heinz Jungbluth [Royaume-Uni] ; Anastassios C. Koumbourlis [États-Unis] ; Nigel G. Laing [Australie] ; Marion Main [Royaume-Uni] ; Leslie A. Morrison [États-Unis] ; Craig Munns [Australie] ; Kristy Rose [Australie] ; Pamela M. Schuler [États-Unis] ; Caroline Sewry [Royaume-Uni] ; Kari Storhaug ; Mariz Vainzof [Brésil] ; Nanci Yuan [États-Unis]

Source :

RBID : PMC:5234865

Abstract

Recent progress in scientific research has facilitated accurate genetic and neuropathological diagnosis of congenital myopathies. However, given their relatively low incidence, congenital myopathies remain unfamiliar to the majority of care providers, and the levels of patient care are extremely variable. This consensus statement aims to provide care guidelines for congenital myopathies. The International Standard of Care Committee for Congenital Myopathies worked through frequent e-mail correspondences, periodic conference calls, 2 rounds of online surveys, and a 3-day workshop to achieve a consensus for diagnostic and clinical care recommendations. The committee includes 59 members from 10 medical disciplines. They are organized into 5 working groups: genetics/diagnosis, neurology, pulmonology, gastroenterology/nutrition/speech/oral care, and orthopedics/rehabilitation. In each care area the authors summarize the committee’s recommendations for symptom assessments and therapeutic interventions. It is the committee’s goal that through these recommendations, patients with congenital myopathies will receive optimal care and improve their disease outcome.


Url:
DOI: 10.1177/0883073812436605
PubMed: 22431881
PubMed Central: 5234865


Affiliations:


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Le document en format XML

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<name sortKey="Dowling, James J" sort="Dowling, James J" uniqKey="Dowling J" first="James J." last="Dowling">James J. Dowling</name>
<affiliation wicri:level="2">
<nlm:aff id="A2">University of Michigan, Ann Arbor, MI, USA</nlm:aff>
<country xml:lang="fr">États-Unis</country>
<wicri:regionArea>University of Michigan, Ann Arbor, MI</wicri:regionArea>
<placeName>
<region type="state">Michigan</region>
</placeName>
</affiliation>
</author>
<author>
<name sortKey="North, Kathryn" sort="North, Kathryn" uniqKey="North K" first="Kathryn" last="North">Kathryn North</name>
<affiliation wicri:level="4">
<nlm:aff id="A3">University of Sydney, Westmead, Australia</nlm:aff>
<country xml:lang="fr">Australie</country>
<wicri:regionArea>University of Sydney, Westmead</wicri:regionArea>
<orgName type="university">Université de Sydney</orgName>
<placeName>
<settlement type="city">Sydney</settlement>
<region type="état">Nouvelle-Galles du Sud</region>
</placeName>
</affiliation>
</author>
<author>
<name sortKey="Schroth, Mary K" sort="Schroth, Mary K" uniqKey="Schroth M" first="Mary K." last="Schroth">Mary K. Schroth</name>
<affiliation wicri:level="2">
<nlm:aff id="A4">University of Wisconsin School of Medicine and Public Health, Madison, WI, USA</nlm:aff>
<country xml:lang="fr">États-Unis</country>
<wicri:regionArea>University of Wisconsin School of Medicine and Public Health, Madison, WI</wicri:regionArea>
<placeName>
<region type="state">Wisconsin</region>
</placeName>
</affiliation>
</author>
<author>
<name sortKey="Sejersen, Thomas" sort="Sejersen, Thomas" uniqKey="Sejersen T" first="Thomas" last="Sejersen">Thomas Sejersen</name>
<affiliation wicri:level="3">
<nlm:aff id="A5">Karolinska Institute, Stockholm, Sweden</nlm:aff>
<country xml:lang="fr">Suède</country>
<wicri:regionArea>Karolinska Institute, Stockholm</wicri:regionArea>
<placeName>
<settlement type="city">Stockholm</settlement>
<region nuts="2">Svealand</region>
</placeName>
</affiliation>
</author>
<author>
<name sortKey="Shapiro, Frederic" sort="Shapiro, Frederic" uniqKey="Shapiro F" first="Frederic" last="Shapiro">Frederic Shapiro</name>
<affiliation wicri:level="2">
<nlm:aff id="A6">Harvard School of Medicine, Boston, MA, USA</nlm:aff>
<country xml:lang="fr">États-Unis</country>
<wicri:regionArea>Harvard School of Medicine, Boston, MA</wicri:regionArea>
<placeName>
<region type="state">Massachusetts</region>
</placeName>
</affiliation>
</author>
<author>
<name sortKey="Bellini, Jonathan" sort="Bellini, Jonathan" uniqKey="Bellini J" first="Jonathan" last="Bellini">Jonathan Bellini</name>
<affiliation wicri:level="2">
<nlm:aff id="A1">Stanford University School of Medicine, Stanford, CA, USA</nlm:aff>
<country xml:lang="fr">États-Unis</country>
<wicri:regionArea>Stanford University School of Medicine, Stanford, CA</wicri:regionArea>
<placeName>
<region type="state">Californie</region>
</placeName>
</affiliation>
</author>
<author>
<name sortKey="Weiss, Hali" sort="Weiss, Hali" uniqKey="Weiss H" first="Hali" last="Weiss">Hali Weiss</name>
<affiliation wicri:level="2">
<nlm:aff id="A1">Stanford University School of Medicine, Stanford, CA, USA</nlm:aff>
<country xml:lang="fr">États-Unis</country>
<wicri:regionArea>Stanford University School of Medicine, Stanford, CA</wicri:regionArea>
<placeName>
<region type="state">Californie</region>
</placeName>
</affiliation>
</author>
<author>
<name sortKey="Guillet, Marc" sort="Guillet, Marc" uniqKey="Guillet M" first="Marc" last="Guillet">Marc Guillet</name>
<affiliation wicri:level="2">
<nlm:aff id="A7">A Foundation Building Strength, Palo Alto, CA, USA</nlm:aff>
<country xml:lang="fr">États-Unis</country>
<wicri:regionArea>A Foundation Building Strength, Palo Alto, CA</wicri:regionArea>
<placeName>
<region type="state">Californie</region>
</placeName>
</affiliation>
</author>
<author>
<name sortKey="Amburgey, Kimberly" sort="Amburgey, Kimberly" uniqKey="Amburgey K" first="Kimberly" last="Amburgey">Kimberly Amburgey</name>
<affiliation wicri:level="2">
<nlm:aff id="A2">University of Michigan, Ann Arbor, MI, USA</nlm:aff>
<country xml:lang="fr">États-Unis</country>
<wicri:regionArea>University of Michigan, Ann Arbor, MI</wicri:regionArea>
<placeName>
<region type="state">Michigan</region>
</placeName>
</affiliation>
</author>
<author>
<name sortKey="Apkon, Susan" sort="Apkon, Susan" uniqKey="Apkon S" first="Susan" last="Apkon">Susan Apkon</name>
<affiliation wicri:level="2">
<nlm:aff id="A8">Seattle Children’s Hospital, Seattle, WA, USA</nlm:aff>
<country xml:lang="fr">États-Unis</country>
<wicri:regionArea>Seattle Children’s Hospital, Seattle, WA</wicri:regionArea>
<placeName>
<region type="state">Washington (État)</region>
</placeName>
</affiliation>
</author>
<author>
<name sortKey="Bertini, Enrico" sort="Bertini, Enrico" uniqKey="Bertini E" first="Enrico" last="Bertini">Enrico Bertini</name>
<affiliation wicri:level="3">
<nlm:aff id="A9">Bambino Gesu’ Children’s Research Hospital, Rome, Italy</nlm:aff>
<country xml:lang="fr">Italie</country>
<wicri:regionArea>Bambino Gesu’ Children’s Research Hospital, Rome</wicri:regionArea>
<placeName>
<settlement type="city">Rome</settlement>
<region nuts="2">Latium</region>
</placeName>
</affiliation>
</author>
<author>
<name sortKey="Bonnemann, Carsten" sort="Bonnemann, Carsten" uniqKey="Bonnemann C" first="Carsten" last="Bonnemann">Carsten Bonnemann</name>
<affiliation wicri:level="2">
<nlm:aff id="A10">National Institutes of Health, Bethesda, MD, USA</nlm:aff>
<country xml:lang="fr">États-Unis</country>
<wicri:regionArea>National Institutes of Health, Bethesda, MD</wicri:regionArea>
<placeName>
<region type="state">Maryland</region>
</placeName>
</affiliation>
</author>
<author>
<name sortKey="Clarke, Nigel" sort="Clarke, Nigel" uniqKey="Clarke N" first="Nigel" last="Clarke">Nigel Clarke</name>
<affiliation wicri:level="4">
<nlm:aff id="A3">University of Sydney, Westmead, Australia</nlm:aff>
<country xml:lang="fr">Australie</country>
<wicri:regionArea>University of Sydney, Westmead</wicri:regionArea>
<orgName type="university">Université de Sydney</orgName>
<placeName>
<settlement type="city">Sydney</settlement>
<region type="état">Nouvelle-Galles du Sud</region>
</placeName>
</affiliation>
</author>
<author>
<name sortKey="Connolly, Anne M" sort="Connolly, Anne M" uniqKey="Connolly A" first="Anne M." last="Connolly">Anne M. Connolly</name>
<affiliation wicri:level="4">
<nlm:aff id="A11">Washington University School of Medicine, St Louis, MO, USA</nlm:aff>
<country xml:lang="fr">États-Unis</country>
<wicri:regionArea>Washington University School of Medicine, St Louis, MO</wicri:regionArea>
<placeName>
<region type="state">Missouri (État)</region>
<settlement type="city">Saint-Louis (Missouri)</settlement>
</placeName>
<orgName type="university">École de médecine (Université Washington de Saint-Louis)</orgName>
</affiliation>
</author>
<author>
<name sortKey="Estournet Mathiaud, Brigitte" sort="Estournet Mathiaud, Brigitte" uniqKey="Estournet Mathiaud B" first="Brigitte" last="Estournet-Mathiaud">Brigitte Estournet-Mathiaud</name>
<affiliation wicri:level="1">
<nlm:aff id="A12">Hôpital Raymond Poincaré, Garches, France</nlm:aff>
<country xml:lang="fr">France</country>
<wicri:regionArea>Hôpital Raymond Poincaré, Garches</wicri:regionArea>
<wicri:noRegion>Garches</wicri:noRegion>
<wicri:noRegion>Garches</wicri:noRegion>
</affiliation>
</author>
<author>
<name sortKey="Fitzgerald, Dominic" sort="Fitzgerald, Dominic" uniqKey="Fitzgerald D" first="Dominic" last="Fitzgerald">Dominic Fitzgerald</name>
<affiliation wicri:level="4">
<nlm:aff id="A3">University of Sydney, Westmead, Australia</nlm:aff>
<country xml:lang="fr">Australie</country>
<wicri:regionArea>University of Sydney, Westmead</wicri:regionArea>
<orgName type="university">Université de Sydney</orgName>
<placeName>
<settlement type="city">Sydney</settlement>
<region type="état">Nouvelle-Galles du Sud</region>
</placeName>
</affiliation>
</author>
<author>
<name sortKey="Florence, Julaine M" sort="Florence, Julaine M" uniqKey="Florence J" first="Julaine M." last="Florence">Julaine M. Florence</name>
<affiliation wicri:level="4">
<nlm:aff id="A11">Washington University School of Medicine, St Louis, MO, USA</nlm:aff>
<country xml:lang="fr">États-Unis</country>
<wicri:regionArea>Washington University School of Medicine, St Louis, MO</wicri:regionArea>
<placeName>
<region type="state">Missouri (État)</region>
<settlement type="city">Saint-Louis (Missouri)</settlement>
</placeName>
<orgName type="university">École de médecine (Université Washington de Saint-Louis)</orgName>
</affiliation>
</author>
<author>
<name sortKey="Gee, Richard" sort="Gee, Richard" uniqKey="Gee R" first="Richard" last="Gee">Richard Gee</name>
<affiliation wicri:level="2">
<nlm:aff id="A1">Stanford University School of Medicine, Stanford, CA, USA</nlm:aff>
<country xml:lang="fr">États-Unis</country>
<wicri:regionArea>Stanford University School of Medicine, Stanford, CA</wicri:regionArea>
<placeName>
<region type="state">Californie</region>
</placeName>
</affiliation>
</author>
<author>
<name sortKey="Gurgel Giannetti, Juliana" sort="Gurgel Giannetti, Juliana" uniqKey="Gurgel Giannetti J" first="Juliana" last="Gurgel-Giannetti">Juliana Gurgel-Giannetti</name>
<affiliation wicri:level="3">
<nlm:aff id="A13">Federal University of Minas Gerais, Belo Horizonte, Brazil</nlm:aff>
<country xml:lang="fr">Brésil</country>
<wicri:regionArea>Federal University of Minas Gerais, Belo Horizonte</wicri:regionArea>
<placeName>
<settlement type="city">Belo Horizonte</settlement>
<region type="state">Minas Gerais</region>
</placeName>
</affiliation>
</author>
<author>
<name sortKey="Glanzman, Allan M" sort="Glanzman, Allan M" uniqKey="Glanzman A" first="Allan M." last="Glanzman">Allan M. Glanzman</name>
<affiliation wicri:level="2">
<nlm:aff id="A14">The Children’s Hospital of Philadelphia, Philadelphia, PA, USA</nlm:aff>
<country xml:lang="fr">États-Unis</country>
<wicri:regionArea>The Children’s Hospital of Philadelphia, Philadelphia, PA</wicri:regionArea>
<placeName>
<region type="state">Pennsylvanie</region>
</placeName>
</affiliation>
</author>
<author>
<name sortKey="Hofmeister, Brittany" sort="Hofmeister, Brittany" uniqKey="Hofmeister B" first="Brittany" last="Hofmeister">Brittany Hofmeister</name>
<affiliation wicri:level="2">
<nlm:aff id="A1">Stanford University School of Medicine, Stanford, CA, USA</nlm:aff>
<country xml:lang="fr">États-Unis</country>
<wicri:regionArea>Stanford University School of Medicine, Stanford, CA</wicri:regionArea>
<placeName>
<region type="state">Californie</region>
</placeName>
</affiliation>
</author>
<author>
<name sortKey="Jungbluth, Heinz" sort="Jungbluth, Heinz" uniqKey="Jungbluth H" first="Heinz" last="Jungbluth">Heinz Jungbluth</name>
<affiliation wicri:level="3">
<nlm:aff id="A15">Evelina Children’s Hospital, London, UK</nlm:aff>
<country xml:lang="fr">Royaume-Uni</country>
<wicri:regionArea>Evelina Children’s Hospital, London</wicri:regionArea>
<placeName>
<settlement type="city">Londres</settlement>
<region type="country">Angleterre</region>
<region type="région" nuts="1">Grand Londres</region>
</placeName>
</affiliation>
</author>
<author>
<name sortKey="Koumbourlis, Anastassios C" sort="Koumbourlis, Anastassios C" uniqKey="Koumbourlis A" first="Anastassios C." last="Koumbourlis">Anastassios C. Koumbourlis</name>
<affiliation wicri:level="2">
<nlm:aff id="A16">Children’s National Medical Center, Washington, DC, USA</nlm:aff>
<country xml:lang="fr">États-Unis</country>
<wicri:regionArea>Children’s National Medical Center, Washington, DC</wicri:regionArea>
<placeName>
<region type="state">District de Columbia</region>
</placeName>
</affiliation>
</author>
<author>
<name sortKey="Laing, Nigel G" sort="Laing, Nigel G" uniqKey="Laing N" first="Nigel G." last="Laing">Nigel G. Laing</name>
<affiliation wicri:level="1">
<nlm:aff id="A17">University of Western Australia, Nedlands, Australia</nlm:aff>
<country xml:lang="fr">Australie</country>
<wicri:regionArea>University of Western Australia, Nedlands</wicri:regionArea>
<wicri:noRegion>Nedlands</wicri:noRegion>
</affiliation>
</author>
<author>
<name sortKey="Main, Marion" sort="Main, Marion" uniqKey="Main M" first="Marion" last="Main">Marion Main</name>
<affiliation wicri:level="3">
<nlm:aff id="A18">Dubowitz Neuromuscular Centre, London, UK</nlm:aff>
<country xml:lang="fr">Royaume-Uni</country>
<wicri:regionArea>Dubowitz Neuromuscular Centre, London</wicri:regionArea>
<placeName>
<settlement type="city">Londres</settlement>
<region type="country">Angleterre</region>
<region type="région" nuts="1">Grand Londres</region>
</placeName>
</affiliation>
</author>
<author>
<name sortKey="Morrison, Leslie A" sort="Morrison, Leslie A" uniqKey="Morrison L" first="Leslie A." last="Morrison">Leslie A. Morrison</name>
<affiliation wicri:level="2">
<nlm:aff id="A19">University of New Mexico School of Medicine, Albuquerque, New Mexico</nlm:aff>
<country xml:lang="fr">États-Unis</country>
<placeName>
<region type="state">Nouveau-Mexique</region>
</placeName>
<wicri:cityArea>University of New Mexico School of Medicine, Albuquerque</wicri:cityArea>
</affiliation>
</author>
<author>
<name sortKey="Munns, Craig" sort="Munns, Craig" uniqKey="Munns C" first="Craig" last="Munns">Craig Munns</name>
<affiliation wicri:level="4">
<nlm:aff id="A3">University of Sydney, Westmead, Australia</nlm:aff>
<country xml:lang="fr">Australie</country>
<wicri:regionArea>University of Sydney, Westmead</wicri:regionArea>
<orgName type="university">Université de Sydney</orgName>
<placeName>
<settlement type="city">Sydney</settlement>
<region type="état">Nouvelle-Galles du Sud</region>
</placeName>
</affiliation>
</author>
<author>
<name sortKey="Rose, Kristy" sort="Rose, Kristy" uniqKey="Rose K" first="Kristy" last="Rose">Kristy Rose</name>
<affiliation wicri:level="4">
<nlm:aff id="A3">University of Sydney, Westmead, Australia</nlm:aff>
<country xml:lang="fr">Australie</country>
<wicri:regionArea>University of Sydney, Westmead</wicri:regionArea>
<orgName type="university">Université de Sydney</orgName>
<placeName>
<settlement type="city">Sydney</settlement>
<region type="état">Nouvelle-Galles du Sud</region>
</placeName>
</affiliation>
</author>
<author>
<name sortKey="Schuler, Pamela M" sort="Schuler, Pamela M" uniqKey="Schuler P" first="Pamela M." last="Schuler">Pamela M. Schuler</name>
<affiliation wicri:level="2">
<nlm:aff id="A20">University of Florida, Gainesville, FL, USA</nlm:aff>
<country xml:lang="fr">États-Unis</country>
<wicri:regionArea>University of Florida, Gainesville, FL</wicri:regionArea>
<placeName>
<region type="state">Floride</region>
</placeName>
</affiliation>
</author>
<author>
<name sortKey="Sewry, Caroline" sort="Sewry, Caroline" uniqKey="Sewry C" first="Caroline" last="Sewry">Caroline Sewry</name>
<affiliation wicri:level="3">
<nlm:aff id="A18">Dubowitz Neuromuscular Centre, London, UK</nlm:aff>
<country xml:lang="fr">Royaume-Uni</country>
<wicri:regionArea>Dubowitz Neuromuscular Centre, London</wicri:regionArea>
<placeName>
<settlement type="city">Londres</settlement>
<region type="country">Angleterre</region>
<region type="région" nuts="1">Grand Londres</region>
</placeName>
</affiliation>
</author>
<author>
<name sortKey="Storhaug, Kari" sort="Storhaug, Kari" uniqKey="Storhaug K" first="Kari" last="Storhaug">Kari Storhaug</name>
<affiliation>
<nlm:aff id="A21">National Resource Centre for Oral Health in Rare Medical Conditions, Oslo Norway</nlm:aff>
<wicri:noCountry code="subfield">Oslo Norway</wicri:noCountry>
</affiliation>
</author>
<author>
<name sortKey="Vainzof, Mariz" sort="Vainzof, Mariz" uniqKey="Vainzof M" first="Mariz" last="Vainzof">Mariz Vainzof</name>
<affiliation wicri:level="4">
<nlm:aff id="A22">University of Sao Paulo, Sao Paulo, Brazil</nlm:aff>
<country xml:lang="fr">Brésil</country>
<wicri:regionArea>University of Sao Paulo, Sao Paulo</wicri:regionArea>
<placeName>
<settlement type="city">São Paulo</settlement>
<region type="state">État de São Paulo</region>
<settlement type="city">São Paulo</settlement>
</placeName>
<orgName type="university">Université de São Paulo</orgName>
</affiliation>
</author>
<author>
<name sortKey="Yuan, Nanci" sort="Yuan, Nanci" uniqKey="Yuan N" first="Nanci" last="Yuan">Nanci Yuan</name>
<affiliation wicri:level="2">
<nlm:aff id="A1">Stanford University School of Medicine, Stanford, CA, USA</nlm:aff>
<country xml:lang="fr">États-Unis</country>
<wicri:regionArea>Stanford University School of Medicine, Stanford, CA</wicri:regionArea>
<placeName>
<region type="state">Californie</region>
</placeName>
</affiliation>
</author>
</analytic>
<series>
<title level="j">Journal of child neurology</title>
<idno type="ISSN">0883-0738</idno>
<idno type="eISSN">1708-8283</idno>
<imprint>
<date when="2012">2012</date>
</imprint>
</series>
</biblStruct>
</sourceDesc>
</fileDesc>
<profileDesc>
<textClass></textClass>
</profileDesc>
</teiHeader>
<front>
<div type="abstract" xml:lang="en">
<p id="P1">Recent progress in scientific research has facilitated accurate genetic and neuropathological diagnosis of congenital myopathies. However, given their relatively low incidence, congenital myopathies remain unfamiliar to the majority of care providers, and the levels of patient care are extremely variable. This consensus statement aims to provide care guidelines for congenital myopathies. The International Standard of Care Committee for Congenital Myopathies worked through frequent e-mail correspondences, periodic conference calls, 2 rounds of online surveys, and a 3-day workshop to achieve a consensus for diagnostic and clinical care recommendations. The committee includes 59 members from 10 medical disciplines. They are organized into 5 working groups: genetics/diagnosis, neurology, pulmonology, gastroenterology/nutrition/speech/oral care, and orthopedics/rehabilitation. In each care area the authors summarize the committee’s recommendations for symptom assessments and therapeutic interventions. It is the committee’s goal that through these recommendations, patients with congenital myopathies will receive optimal care and improve their disease outcome.</p>
</div>
</front>
</TEI>
<affiliations>
<list>
<country>
<li>Australie</li>
<li>Brésil</li>
<li>France</li>
<li>Italie</li>
<li>Royaume-Uni</li>
<li>Suède</li>
<li>États-Unis</li>
</country>
<region>
<li>Angleterre</li>
<li>Californie</li>
<li>District de Columbia</li>
<li>Floride</li>
<li>Grand Londres</li>
<li>Latium</li>
<li>Maryland</li>
<li>Massachusetts</li>
<li>Michigan</li>
<li>Minas Gerais</li>
<li>Missouri (État)</li>
<li>Nouveau-Mexique</li>
<li>Nouvelle-Galles du Sud</li>
<li>Pennsylvanie</li>
<li>Svealand</li>
<li>Washington (État)</li>
<li>Wisconsin</li>
<li>État de São Paulo</li>
</region>
<settlement>
<li>Belo Horizonte</li>
<li>Londres</li>
<li>Rome</li>
<li>Saint-Louis (Missouri)</li>
<li>Stockholm</li>
<li>Sydney</li>
<li>São Paulo</li>
</settlement>
<orgName>
<li>Université de Sydney</li>
<li>Université de São Paulo</li>
<li>École de médecine (Université Washington de Saint-Louis)</li>
</orgName>
</list>
<tree>
<noCountry>
<name sortKey="Storhaug, Kari" sort="Storhaug, Kari" uniqKey="Storhaug K" first="Kari" last="Storhaug">Kari Storhaug</name>
</noCountry>
<country name="États-Unis">
<region name="Californie">
<name sortKey="Wang, Ching H" sort="Wang, Ching H" uniqKey="Wang C" first="Ching H." last="Wang">Ching H. Wang</name>
</region>
<name sortKey="Amburgey, Kimberly" sort="Amburgey, Kimberly" uniqKey="Amburgey K" first="Kimberly" last="Amburgey">Kimberly Amburgey</name>
<name sortKey="Apkon, Susan" sort="Apkon, Susan" uniqKey="Apkon S" first="Susan" last="Apkon">Susan Apkon</name>
<name sortKey="Bellini, Jonathan" sort="Bellini, Jonathan" uniqKey="Bellini J" first="Jonathan" last="Bellini">Jonathan Bellini</name>
<name sortKey="Bonnemann, Carsten" sort="Bonnemann, Carsten" uniqKey="Bonnemann C" first="Carsten" last="Bonnemann">Carsten Bonnemann</name>
<name sortKey="Connolly, Anne M" sort="Connolly, Anne M" uniqKey="Connolly A" first="Anne M." last="Connolly">Anne M. Connolly</name>
<name sortKey="Dowling, James J" sort="Dowling, James J" uniqKey="Dowling J" first="James J." last="Dowling">James J. Dowling</name>
<name sortKey="Florence, Julaine M" sort="Florence, Julaine M" uniqKey="Florence J" first="Julaine M." last="Florence">Julaine M. Florence</name>
<name sortKey="Gee, Richard" sort="Gee, Richard" uniqKey="Gee R" first="Richard" last="Gee">Richard Gee</name>
<name sortKey="Glanzman, Allan M" sort="Glanzman, Allan M" uniqKey="Glanzman A" first="Allan M." last="Glanzman">Allan M. Glanzman</name>
<name sortKey="Guillet, Marc" sort="Guillet, Marc" uniqKey="Guillet M" first="Marc" last="Guillet">Marc Guillet</name>
<name sortKey="Hofmeister, Brittany" sort="Hofmeister, Brittany" uniqKey="Hofmeister B" first="Brittany" last="Hofmeister">Brittany Hofmeister</name>
<name sortKey="Koumbourlis, Anastassios C" sort="Koumbourlis, Anastassios C" uniqKey="Koumbourlis A" first="Anastassios C." last="Koumbourlis">Anastassios C. Koumbourlis</name>
<name sortKey="Morrison, Leslie A" sort="Morrison, Leslie A" uniqKey="Morrison L" first="Leslie A." last="Morrison">Leslie A. Morrison</name>
<name sortKey="Schroth, Mary K" sort="Schroth, Mary K" uniqKey="Schroth M" first="Mary K." last="Schroth">Mary K. Schroth</name>
<name sortKey="Schuler, Pamela M" sort="Schuler, Pamela M" uniqKey="Schuler P" first="Pamela M." last="Schuler">Pamela M. Schuler</name>
<name sortKey="Shapiro, Frederic" sort="Shapiro, Frederic" uniqKey="Shapiro F" first="Frederic" last="Shapiro">Frederic Shapiro</name>
<name sortKey="Weiss, Hali" sort="Weiss, Hali" uniqKey="Weiss H" first="Hali" last="Weiss">Hali Weiss</name>
<name sortKey="Yuan, Nanci" sort="Yuan, Nanci" uniqKey="Yuan N" first="Nanci" last="Yuan">Nanci Yuan</name>
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<country name="Australie">
<region name="Nouvelle-Galles du Sud">
<name sortKey="North, Kathryn" sort="North, Kathryn" uniqKey="North K" first="Kathryn" last="North">Kathryn North</name>
</region>
<name sortKey="Clarke, Nigel" sort="Clarke, Nigel" uniqKey="Clarke N" first="Nigel" last="Clarke">Nigel Clarke</name>
<name sortKey="Fitzgerald, Dominic" sort="Fitzgerald, Dominic" uniqKey="Fitzgerald D" first="Dominic" last="Fitzgerald">Dominic Fitzgerald</name>
<name sortKey="Laing, Nigel G" sort="Laing, Nigel G" uniqKey="Laing N" first="Nigel G." last="Laing">Nigel G. Laing</name>
<name sortKey="Munns, Craig" sort="Munns, Craig" uniqKey="Munns C" first="Craig" last="Munns">Craig Munns</name>
<name sortKey="Rose, Kristy" sort="Rose, Kristy" uniqKey="Rose K" first="Kristy" last="Rose">Kristy Rose</name>
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<country name="Suède">
<region name="Svealand">
<name sortKey="Sejersen, Thomas" sort="Sejersen, Thomas" uniqKey="Sejersen T" first="Thomas" last="Sejersen">Thomas Sejersen</name>
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<country name="Italie">
<region name="Latium">
<name sortKey="Bertini, Enrico" sort="Bertini, Enrico" uniqKey="Bertini E" first="Enrico" last="Bertini">Enrico Bertini</name>
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<name sortKey="Estournet Mathiaud, Brigitte" sort="Estournet Mathiaud, Brigitte" uniqKey="Estournet Mathiaud B" first="Brigitte" last="Estournet-Mathiaud">Brigitte Estournet-Mathiaud</name>
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<country name="Brésil">
<region name="Minas Gerais">
<name sortKey="Gurgel Giannetti, Juliana" sort="Gurgel Giannetti, Juliana" uniqKey="Gurgel Giannetti J" first="Juliana" last="Gurgel-Giannetti">Juliana Gurgel-Giannetti</name>
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<name sortKey="Vainzof, Mariz" sort="Vainzof, Mariz" uniqKey="Vainzof M" first="Mariz" last="Vainzof">Mariz Vainzof</name>
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<country name="Royaume-Uni">
<region name="Angleterre">
<name sortKey="Jungbluth, Heinz" sort="Jungbluth, Heinz" uniqKey="Jungbluth H" first="Heinz" last="Jungbluth">Heinz Jungbluth</name>
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<name sortKey="Main, Marion" sort="Main, Marion" uniqKey="Main M" first="Marion" last="Main">Marion Main</name>
<name sortKey="Sewry, Caroline" sort="Sewry, Caroline" uniqKey="Sewry C" first="Caroline" last="Sewry">Caroline Sewry</name>
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</tree>
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</record>

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