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Clinical research priorities in adult congenital heart disease.

Identifieur interne : 003B07 ( PubMed/Corpus ); précédent : 003B06; suivant : 003B08

Clinical research priorities in adult congenital heart disease.

Auteurs : Timothy Cotts ; Paul Khairy ; Alexander R. Opotowsky ; Anitha S. John ; Anne Marie Valente ; Ali N. Zaidi ; Stephen C. Cook ; Jamil Aboulhosn ; Jennifer Grando Ting ; Michelle Gurvitz ; Michael J. Landzberg ; Amy Verstappen ; Joseph Kay ; Michael Earing ; Wayne Franklin ; Brian Kogon ; Craig S. Broberg

Source :

International journal of cardiology [ 1874-1754 ] ; 2014.

RBID : pubmed:24411207

English descriptors

KwdEn :
- Adult, Biomedical Research (methods), Biomedical Research (trends), Congresses as Topic (trends), Data Collection (methods), Female, Heart Defects, Congenital (diagnosis), Heart Defects, Congenital (epidemiology), Heart Defects, Congenital (therapy), Humans, Male, Physicians (trends), Prospective Studies.
MESH :
- diagnosis : Heart Defects, Congenital.
- epidemiology : Heart Defects, Congenital.
- methods : Biomedical Research, Data Collection.
- therapy : Heart Defects, Congenital.
- trends : Biomedical Research, Congresses as Topic, Physicians.
- Adult, Female, Humans, Male, Prospective Studies.

Abstract

Adult congenital heart disease (ACHD) clinicians are hampered by the paucity of data to inform clinical decision-making. The objective of this study was to identify priorities for clinical research in ACHD.

DOI: 10.1016/j.ijcard.2013.12.034
PubMed: 24411207

Links to Exploration step

pubmed:24411207

Le document en format XML

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<author><name sortKey="Cotts, Timothy" sort="Cotts, Timothy" uniqKey="Cotts T" first="Timothy" last="Cotts">Timothy Cotts</name>
<affiliation><nlm:affiliation>Department of Internal Medicine, University of Michigan Medical School, Ann Arbor, MI, United States; Department of Pediatrics, University of Michigan Medical School, Ann Arbor, MI, United States. Electronic address: cottstim@umich.edu.</nlm:affiliation>
</affiliation>
</author>
<author><name sortKey="Khairy, Paul" sort="Khairy, Paul" uniqKey="Khairy P" first="Paul" last="Khairy">Paul Khairy</name>
<affiliation><nlm:affiliation>Montreal Heart Institute, Université de Montréal, Montreal, Canada.</nlm:affiliation>
</affiliation>
</author>
<author><name sortKey="Opotowsky, Alexander R" sort="Opotowsky, Alexander R" uniqKey="Opotowsky A" first="Alexander R" last="Opotowsky">Alexander R. Opotowsky</name>
<affiliation><nlm:affiliation>Boston Children's Hospital, Department of Cardiology, Brigham and Women's Hospital, Harvard Medical School, Boston, MA, United States; Department of Medicine, Brigham and Women's Hospital, Harvard Medical School, Boston, MA, United States.</nlm:affiliation>
</affiliation>
</author>
<author><name sortKey="John, Anitha S" sort="John, Anitha S" uniqKey="John A" first="Anitha S" last="John">Anitha S. John</name>
<affiliation><nlm:affiliation>Division of Cardiology, Children's National Medical Center, Washington, D.C., United States.</nlm:affiliation>
</affiliation>
</author>
<author><name sortKey="Valente, Anne Marie" sort="Valente, Anne Marie" uniqKey="Valente A" first="Anne Marie" last="Valente">Anne Marie Valente</name>
<affiliation><nlm:affiliation>Boston Children's Hospital, Department of Cardiology, Brigham and Women's Hospital, Harvard Medical School, Boston, MA, United States; Department of Medicine, Brigham and Women's Hospital, Harvard Medical School, Boston, MA, United States.</nlm:affiliation>
</affiliation>
</author>
<author><name sortKey="Zaidi, Ali N" sort="Zaidi, Ali N" uniqKey="Zaidi A" first="Ali N" last="Zaidi">Ali N. Zaidi</name>
<affiliation><nlm:affiliation>Columbus Ohio Adult Congenital Heart Disease Program, The Heart Center, Nationwide Children's Hospital, The Ohio State University, Columbus, OH, United States; Department of Pediatrics, The Ohio State University, Columbus, OH, United States; Department of Internal Medicine, The Ohio State University, Columbus, OH, United States.</nlm:affiliation>
</affiliation>
</author>
<author><name sortKey="Cook, Stephen C" sort="Cook, Stephen C" uniqKey="Cook S" first="Stephen C" last="Cook">Stephen C. Cook</name>
<affiliation><nlm:affiliation>Department of Pediatrics, Heart Institute, Children's Hospital of Pittsburgh of UPMC, Pittsburgh, PA, United States.</nlm:affiliation>
</affiliation>
</author>
<author><name sortKey="Aboulhosn, Jamil" sort="Aboulhosn, Jamil" uniqKey="Aboulhosn J" first="Jamil" last="Aboulhosn">Jamil Aboulhosn</name>
<affiliation><nlm:affiliation>Department of Internal Medicine, University of California, Los Angeles, CA, United States.</nlm:affiliation>
</affiliation>
</author>
<author><name sortKey="Ting, Jennifer Grando" sort="Ting, Jennifer Grando" uniqKey="Ting J" first="Jennifer Grando" last="Ting">Jennifer Grando Ting</name>
<affiliation><nlm:affiliation>Heart & Vascular Institute, Hershey Medical Center, Pennsylvania State University, Hershey, PA, United States.</nlm:affiliation>
</affiliation>
</author>
<author><name sortKey="Gurvitz, Michelle" sort="Gurvitz, Michelle" uniqKey="Gurvitz M" first="Michelle" last="Gurvitz">Michelle Gurvitz</name>
<affiliation><nlm:affiliation>Boston Children's Hospital, Department of Cardiology, Brigham and Women's Hospital, Harvard Medical School, Boston, MA, United States; Department of Medicine, Brigham and Women's Hospital, Harvard Medical School, Boston, MA, United States.</nlm:affiliation>
</affiliation>
</author>
<author><name sortKey="Landzberg, Michael J" sort="Landzberg, Michael J" uniqKey="Landzberg M" first="Michael J" last="Landzberg">Michael J. Landzberg</name>
<affiliation><nlm:affiliation>Boston Children's Hospital, Department of Cardiology, Brigham and Women's Hospital, Harvard Medical School, Boston, MA, United States; Department of Medicine, Brigham and Women's Hospital, Harvard Medical School, Boston, MA, United States.</nlm:affiliation>
</affiliation>
</author>
<author><name sortKey="Verstappen, Amy" sort="Verstappen, Amy" uniqKey="Verstappen A" first="Amy" last="Verstappen">Amy Verstappen</name>
<affiliation><nlm:affiliation>Adult Congenital Heart Association, Philadelphia, PA, United States.</nlm:affiliation>
</affiliation>
</author>
<author><name sortKey="Kay, Joseph" sort="Kay, Joseph" uniqKey="Kay J" first="Joseph" last="Kay">Joseph Kay</name>
<affiliation><nlm:affiliation>Department of Internal Medicine, University of Colorado, Denver, United States; Department of Pediatrics, University of Colorado, Denver, United States.</nlm:affiliation>
</affiliation>
</author>
<author><name sortKey="Earing, Michael" sort="Earing, Michael" uniqKey="Earing M" first="Michael" last="Earing">Michael Earing</name>
<affiliation><nlm:affiliation>Department of Internal Medicine, Medical College of Wisconsin, Milwaukee, WI, United States; Department of Pediatrics, Medical College of Wisconsin, Milwaukee, WI, United States.</nlm:affiliation>
</affiliation>
</author>
<author><name sortKey="Franklin, Wayne" sort="Franklin, Wayne" uniqKey="Franklin W" first="Wayne" last="Franklin">Wayne Franklin</name>
<affiliation><nlm:affiliation>Department of Medicine, Baylor College of Medicine, Texas Children's Hospital, Houston, TX, United States; Department of Pediatrics, Baylor College of Medicine, Texas Children's Hospital, Houston, TX, United States.</nlm:affiliation>
</affiliation>
</author>
<author><name sortKey="Kogon, Brian" sort="Kogon, Brian" uniqKey="Kogon B" first="Brian" last="Kogon">Brian Kogon</name>
<affiliation><nlm:affiliation>Division of Cardiothoracic Surgery, Emory University, Atlanta, GA, United States.</nlm:affiliation>
</affiliation>
</author>
<author><name sortKey="Broberg, Craig S" sort="Broberg, Craig S" uniqKey="Broberg C" first="Craig S" last="Broberg">Craig S. Broberg</name>
<affiliation><nlm:affiliation>Knight Cardiovascular Institute, Oregon Health & Science University, Portland, OR, United States.</nlm:affiliation>
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<sourceDesc><biblStruct><analytic><title xml:lang="en">Clinical research priorities in adult congenital heart disease.</title>
<author><name sortKey="Cotts, Timothy" sort="Cotts, Timothy" uniqKey="Cotts T" first="Timothy" last="Cotts">Timothy Cotts</name>
<affiliation><nlm:affiliation>Department of Internal Medicine, University of Michigan Medical School, Ann Arbor, MI, United States; Department of Pediatrics, University of Michigan Medical School, Ann Arbor, MI, United States. Electronic address: cottstim@umich.edu.</nlm:affiliation>
</affiliation>
</author>
<author><name sortKey="Khairy, Paul" sort="Khairy, Paul" uniqKey="Khairy P" first="Paul" last="Khairy">Paul Khairy</name>
<affiliation><nlm:affiliation>Montreal Heart Institute, Université de Montréal, Montreal, Canada.</nlm:affiliation>
</affiliation>
</author>
<author><name sortKey="Opotowsky, Alexander R" sort="Opotowsky, Alexander R" uniqKey="Opotowsky A" first="Alexander R" last="Opotowsky">Alexander R. Opotowsky</name>
<affiliation><nlm:affiliation>Boston Children's Hospital, Department of Cardiology, Brigham and Women's Hospital, Harvard Medical School, Boston, MA, United States; Department of Medicine, Brigham and Women's Hospital, Harvard Medical School, Boston, MA, United States.</nlm:affiliation>
</affiliation>
</author>
<author><name sortKey="John, Anitha S" sort="John, Anitha S" uniqKey="John A" first="Anitha S" last="John">Anitha S. John</name>
<affiliation><nlm:affiliation>Division of Cardiology, Children's National Medical Center, Washington, D.C., United States.</nlm:affiliation>
</affiliation>
</author>
<author><name sortKey="Valente, Anne Marie" sort="Valente, Anne Marie" uniqKey="Valente A" first="Anne Marie" last="Valente">Anne Marie Valente</name>
<affiliation><nlm:affiliation>Boston Children's Hospital, Department of Cardiology, Brigham and Women's Hospital, Harvard Medical School, Boston, MA, United States; Department of Medicine, Brigham and Women's Hospital, Harvard Medical School, Boston, MA, United States.</nlm:affiliation>
</affiliation>
</author>
<author><name sortKey="Zaidi, Ali N" sort="Zaidi, Ali N" uniqKey="Zaidi A" first="Ali N" last="Zaidi">Ali N. Zaidi</name>
<affiliation><nlm:affiliation>Columbus Ohio Adult Congenital Heart Disease Program, The Heart Center, Nationwide Children's Hospital, The Ohio State University, Columbus, OH, United States; Department of Pediatrics, The Ohio State University, Columbus, OH, United States; Department of Internal Medicine, The Ohio State University, Columbus, OH, United States.</nlm:affiliation>
</affiliation>
</author>
<author><name sortKey="Cook, Stephen C" sort="Cook, Stephen C" uniqKey="Cook S" first="Stephen C" last="Cook">Stephen C. Cook</name>
<affiliation><nlm:affiliation>Department of Pediatrics, Heart Institute, Children's Hospital of Pittsburgh of UPMC, Pittsburgh, PA, United States.</nlm:affiliation>
</affiliation>
</author>
<author><name sortKey="Aboulhosn, Jamil" sort="Aboulhosn, Jamil" uniqKey="Aboulhosn J" first="Jamil" last="Aboulhosn">Jamil Aboulhosn</name>
<affiliation><nlm:affiliation>Department of Internal Medicine, University of California, Los Angeles, CA, United States.</nlm:affiliation>
</affiliation>
</author>
<author><name sortKey="Ting, Jennifer Grando" sort="Ting, Jennifer Grando" uniqKey="Ting J" first="Jennifer Grando" last="Ting">Jennifer Grando Ting</name>
<affiliation><nlm:affiliation>Heart & Vascular Institute, Hershey Medical Center, Pennsylvania State University, Hershey, PA, United States.</nlm:affiliation>
</affiliation>
</author>
<author><name sortKey="Gurvitz, Michelle" sort="Gurvitz, Michelle" uniqKey="Gurvitz M" first="Michelle" last="Gurvitz">Michelle Gurvitz</name>
<affiliation><nlm:affiliation>Boston Children's Hospital, Department of Cardiology, Brigham and Women's Hospital, Harvard Medical School, Boston, MA, United States; Department of Medicine, Brigham and Women's Hospital, Harvard Medical School, Boston, MA, United States.</nlm:affiliation>
</affiliation>
</author>
<author><name sortKey="Landzberg, Michael J" sort="Landzberg, Michael J" uniqKey="Landzberg M" first="Michael J" last="Landzberg">Michael J. Landzberg</name>
<affiliation><nlm:affiliation>Boston Children's Hospital, Department of Cardiology, Brigham and Women's Hospital, Harvard Medical School, Boston, MA, United States; Department of Medicine, Brigham and Women's Hospital, Harvard Medical School, Boston, MA, United States.</nlm:affiliation>
</affiliation>
</author>
<author><name sortKey="Verstappen, Amy" sort="Verstappen, Amy" uniqKey="Verstappen A" first="Amy" last="Verstappen">Amy Verstappen</name>
<affiliation><nlm:affiliation>Adult Congenital Heart Association, Philadelphia, PA, United States.</nlm:affiliation>
</affiliation>
</author>
<author><name sortKey="Kay, Joseph" sort="Kay, Joseph" uniqKey="Kay J" first="Joseph" last="Kay">Joseph Kay</name>
<affiliation><nlm:affiliation>Department of Internal Medicine, University of Colorado, Denver, United States; Department of Pediatrics, University of Colorado, Denver, United States.</nlm:affiliation>
</affiliation>
</author>
<author><name sortKey="Earing, Michael" sort="Earing, Michael" uniqKey="Earing M" first="Michael" last="Earing">Michael Earing</name>
<affiliation><nlm:affiliation>Department of Internal Medicine, Medical College of Wisconsin, Milwaukee, WI, United States; Department of Pediatrics, Medical College of Wisconsin, Milwaukee, WI, United States.</nlm:affiliation>
</affiliation>
</author>
<author><name sortKey="Franklin, Wayne" sort="Franklin, Wayne" uniqKey="Franklin W" first="Wayne" last="Franklin">Wayne Franklin</name>
<affiliation><nlm:affiliation>Department of Medicine, Baylor College of Medicine, Texas Children's Hospital, Houston, TX, United States; Department of Pediatrics, Baylor College of Medicine, Texas Children's Hospital, Houston, TX, United States.</nlm:affiliation>
</affiliation>
</author>
<author><name sortKey="Kogon, Brian" sort="Kogon, Brian" uniqKey="Kogon B" first="Brian" last="Kogon">Brian Kogon</name>
<affiliation><nlm:affiliation>Division of Cardiothoracic Surgery, Emory University, Atlanta, GA, United States.</nlm:affiliation>
</affiliation>
</author>
<author><name sortKey="Broberg, Craig S" sort="Broberg, Craig S" uniqKey="Broberg C" first="Craig S" last="Broberg">Craig S. Broberg</name>
<affiliation><nlm:affiliation>Knight Cardiovascular Institute, Oregon Health & Science University, Portland, OR, United States.</nlm:affiliation>
</affiliation>
</author>
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<series><title level="j">International journal of cardiology</title>
<idno type="eISSN">1874-1754</idno>
<imprint><date when="2014" type="published">2014</date>
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<term>Biomedical Research (methods)</term>
<term>Biomedical Research (trends)</term>
<term>Congresses as Topic (trends)</term>
<term>Data Collection (methods)</term>
<term>Female</term>
<term>Heart Defects, Congenital (diagnosis)</term>
<term>Heart Defects, Congenital (epidemiology)</term>
<term>Heart Defects, Congenital (therapy)</term>
<term>Humans</term>
<term>Male</term>
<term>Physicians (trends)</term>
<term>Prospective Studies</term>
</keywords>
<keywords scheme="MESH" qualifier="diagnosis" xml:lang="en"><term>Heart Defects, Congenital</term>
</keywords>
<keywords scheme="MESH" qualifier="epidemiology" xml:lang="en"><term>Heart Defects, Congenital</term>
</keywords>
<keywords scheme="MESH" qualifier="methods" xml:lang="en"><term>Biomedical Research</term>
<term>Data Collection</term>
</keywords>
<keywords scheme="MESH" qualifier="therapy" xml:lang="en"><term>Heart Defects, Congenital</term>
</keywords>
<keywords scheme="MESH" qualifier="trends" xml:lang="en"><term>Biomedical Research</term>
<term>Congresses as Topic</term>
<term>Physicians</term>
</keywords>
<keywords scheme="MESH" xml:lang="en"><term>Adult</term>
<term>Female</term>
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<front><div type="abstract" xml:lang="en">Adult congenital heart disease (ACHD) clinicians are hampered by the paucity of data to inform clinical decision-making. The objective of this study was to identify priorities for clinical research in ACHD.</div>
</front>
</TEI>
<pubmed><MedlineCitation Status="MEDLINE" Owner="NLM"><PMID Version="1">24411207</PMID>
<DateCreated><Year>2014</Year>
<Month>01</Month>
<Day>27</Day>
</DateCreated>
<DateCompleted><Year>2014</Year>
<Month>10</Month>
<Day>20</Day>
</DateCompleted>
<DateRevised><Year>2017</Year>
<Month>02</Month>
<Day>20</Day>
</DateRevised>
<Article PubModel="Print-Electronic"><Journal><ISSN IssnType="Electronic">1874-1754</ISSN>
<JournalIssue CitedMedium="Internet"><Volume>171</Volume>
<Issue>3</Issue>
<PubDate><Year>2014</Year>
<Month>Feb</Month>
<Day>15</Day>
</PubDate>
</JournalIssue>
<Title>International journal of cardiology</Title>
<ISOAbbreviation>Int. J. Cardiol.</ISOAbbreviation>
</Journal>
<ArticleTitle>Clinical research priorities in adult congenital heart disease.</ArticleTitle>
<Pagination><MedlinePgn>351-60</MedlinePgn>
</Pagination>
<ELocationID EIdType="doi" ValidYN="Y">10.1016/j.ijcard.2013.12.034</ELocationID>
<ELocationID EIdType="pii" ValidYN="Y">S0167-5273(13)02244-4</ELocationID>
<Abstract><AbstractText Label="BACKGROUND" NlmCategory="BACKGROUND">Adult congenital heart disease (ACHD) clinicians are hampered by the paucity of data to inform clinical decision-making. The objective of this study was to identify priorities for clinical research in ACHD.</AbstractText>
<AbstractText Label="METHODS" NlmCategory="METHODS">A list of 45 research questions was developed by the Alliance for Adult Research in Congenital Cardiology (AARCC), compiled into a survey, and administered to ACHD providers. Patient input was sought via the Adult Congenital Heart Association at community meetings and online forums. The 25 top questions were sent to ACHD providers worldwide via an online survey. Each question was ranked based on perceived priority and weighted based on time spent in ACHD care. The top 10 topics identified are presented and discussed.</AbstractText>
<AbstractText Label="RESULTS" NlmCategory="RESULTS">The final online survey yielded 139 responses. Top priority questions related to tetralogy of Fallot (timing of pulmonary valve replacement and criteria for primary prevention ICDs), patients with systemic right ventricles (determining the optimal echocardiographic techniques for measuring right ventricular function, and indications for tricuspid valve replacement and primary prevention ICDs), and single ventricle/Fontan patients (role of pulmonary vasodilators, optimal anticoagulation, medical therapy for preservation of ventricular function, treatment for protein losing enteropathy). In addition, establishing criteria to refer ACHD patients for cardiac transplantation was deemed a priority.</AbstractText>
<AbstractText Label="CONCLUSIONS" NlmCategory="CONCLUSIONS">The ACHD field is in need of prospective research to address fundamental clinical questions. It is hoped that this methodical consultation process will inform researchers and funding organizations about clinical research topics deemed to be of high priority.</AbstractText>
<CopyrightInformation>Copyright © 2013 Elsevier Ireland Ltd. All rights reserved.</CopyrightInformation>
</Abstract>
<AuthorList CompleteYN="Y"><Author ValidYN="Y"><LastName>Cotts</LastName>
<ForeName>Timothy</ForeName>
<Initials>T</Initials>
<AffiliationInfo><Affiliation>Department of Internal Medicine, University of Michigan Medical School, Ann Arbor, MI, United States; Department of Pediatrics, University of Michigan Medical School, Ann Arbor, MI, United States. Electronic address: cottstim@umich.edu.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y"><LastName>Khairy</LastName>
<ForeName>Paul</ForeName>
<Initials>P</Initials>
<AffiliationInfo><Affiliation>Montreal Heart Institute, Université de Montréal, Montreal, Canada.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y"><LastName>Opotowsky</LastName>
<ForeName>Alexander R</ForeName>
<Initials>AR</Initials>
<AffiliationInfo><Affiliation>Boston Children's Hospital, Department of Cardiology, Brigham and Women's Hospital, Harvard Medical School, Boston, MA, United States; Department of Medicine, Brigham and Women's Hospital, Harvard Medical School, Boston, MA, United States.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y"><LastName>John</LastName>
<ForeName>Anitha S</ForeName>
<Initials>AS</Initials>
<AffiliationInfo><Affiliation>Division of Cardiology, Children's National Medical Center, Washington, D.C., United States.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y"><LastName>Valente</LastName>
<ForeName>Anne Marie</ForeName>
<Initials>AM</Initials>
<AffiliationInfo><Affiliation>Boston Children's Hospital, Department of Cardiology, Brigham and Women's Hospital, Harvard Medical School, Boston, MA, United States; Department of Medicine, Brigham and Women's Hospital, Harvard Medical School, Boston, MA, United States.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y"><LastName>Zaidi</LastName>
<ForeName>Ali N</ForeName>
<Initials>AN</Initials>
<AffiliationInfo><Affiliation>Columbus Ohio Adult Congenital Heart Disease Program, The Heart Center, Nationwide Children's Hospital, The Ohio State University, Columbus, OH, United States; Department of Pediatrics, The Ohio State University, Columbus, OH, United States; Department of Internal Medicine, The Ohio State University, Columbus, OH, United States.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y"><LastName>Cook</LastName>
<ForeName>Stephen C</ForeName>
<Initials>SC</Initials>
<AffiliationInfo><Affiliation>Department of Pediatrics, Heart Institute, Children's Hospital of Pittsburgh of UPMC, Pittsburgh, PA, United States.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y"><LastName>Aboulhosn</LastName>
<ForeName>Jamil</ForeName>
<Initials>J</Initials>
<AffiliationInfo><Affiliation>Department of Internal Medicine, University of California, Los Angeles, CA, United States.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y"><LastName>Ting</LastName>
<ForeName>Jennifer Grando</ForeName>
<Initials>JG</Initials>
<AffiliationInfo><Affiliation>Heart & Vascular Institute, Hershey Medical Center, Pennsylvania State University, Hershey, PA, United States.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y"><LastName>Gurvitz</LastName>
<ForeName>Michelle</ForeName>
<Initials>M</Initials>
<AffiliationInfo><Affiliation>Boston Children's Hospital, Department of Cardiology, Brigham and Women's Hospital, Harvard Medical School, Boston, MA, United States; Department of Medicine, Brigham and Women's Hospital, Harvard Medical School, Boston, MA, United States.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y"><LastName>Landzberg</LastName>
<ForeName>Michael J</ForeName>
<Initials>MJ</Initials>
<AffiliationInfo><Affiliation>Boston Children's Hospital, Department of Cardiology, Brigham and Women's Hospital, Harvard Medical School, Boston, MA, United States; Department of Medicine, Brigham and Women's Hospital, Harvard Medical School, Boston, MA, United States.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y"><LastName>Verstappen</LastName>
<ForeName>Amy</ForeName>
<Initials>A</Initials>
<AffiliationInfo><Affiliation>Adult Congenital Heart Association, Philadelphia, PA, United States.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y"><LastName>Kay</LastName>
<ForeName>Joseph</ForeName>
<Initials>J</Initials>
<AffiliationInfo><Affiliation>Department of Internal Medicine, University of Colorado, Denver, United States; Department of Pediatrics, University of Colorado, Denver, United States.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y"><LastName>Earing</LastName>
<ForeName>Michael</ForeName>
<Initials>M</Initials>
<AffiliationInfo><Affiliation>Department of Internal Medicine, Medical College of Wisconsin, Milwaukee, WI, United States; Department of Pediatrics, Medical College of Wisconsin, Milwaukee, WI, United States.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y"><LastName>Franklin</LastName>
<ForeName>Wayne</ForeName>
<Initials>W</Initials>
<AffiliationInfo><Affiliation>Department of Medicine, Baylor College of Medicine, Texas Children's Hospital, Houston, TX, United States; Department of Pediatrics, Baylor College of Medicine, Texas Children's Hospital, Houston, TX, United States.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y"><LastName>Kogon</LastName>
<ForeName>Brian</ForeName>
<Initials>B</Initials>
<AffiliationInfo><Affiliation>Division of Cardiothoracic Surgery, Emory University, Atlanta, GA, United States.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y"><LastName>Broberg</LastName>
<ForeName>Craig S</ForeName>
<Initials>CS</Initials>
<AffiliationInfo><Affiliation>Knight Cardiovascular Institute, Oregon Health & Science University, Portland, OR, United States.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y"><CollectiveName>Alliance for Adult Research in Congenital Cardiology (AARCC)</CollectiveName>
</Author>
</AuthorList>
<Language>eng</Language>
<GrantList CompleteYN="Y"><Grant><GrantID>RC4 HL104831</GrantID>
<Acronym>HL</Acronym>
<Agency>NHLBI NIH HHS</Agency>
<Country>United States</Country>
</Grant>
</GrantList>
<PublicationTypeList><PublicationType UI="D016428">Journal Article</PublicationType>
<PublicationType UI="D057666">Research Support, American Recovery and Reinvestment Act</PublicationType>
<PublicationType UI="D052061">Research Support, N.I.H., Extramural</PublicationType>
<PublicationType UI="D013485">Research Support, Non-U.S. Gov't</PublicationType>
</PublicationTypeList>
<ArticleDate DateType="Electronic"><Year>2013</Year>
<Month>12</Month>
<Day>24</Day>
</ArticleDate>
</Article>
<MedlineJournalInfo><Country>Netherlands</Country>
<MedlineTA>Int J Cardiol</MedlineTA>
<NlmUniqueID>8200291</NlmUniqueID>
<ISSNLinking>0167-5273</ISSNLinking>
</MedlineJournalInfo>
<CitationSubset>IM</CitationSubset>
<CommentsCorrectionsList><CommentsCorrections RefType="Cites"><RefSource>J Am Coll Cardiol. 2004 Mar 17;43(6):1068-74</RefSource>
<PMID Version="1">15028368</PMID>
</CommentsCorrections>
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Clinical research priorities in adult congenital heart disease.

Clinical research priorities in adult congenital heart disease.

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