AB0840 Scleroderma classification criteria: Disease-specific methods for valid case comparisons
Identifieur interne : 002303 ( Istex/Curation ); précédent : 002302; suivant : 002304AB0840 Scleroderma classification criteria: Disease-specific methods for valid case comparisons
Auteurs : S. R. Johnson [Canada] ; R. L. Naden [Nouvelle-Zélande] ; J. Fransen ; F. Van Den Hoogen [Pays-Bas] ; J. E. Pope [Royaume-Uni] ; M. Baron [Canada] ; M. Matucci-Cerinic [Italie] ; A. Tyndall ; O. Distler [Suisse] ; C. Denton [Royaume-Uni] ; A. Gabrielli [Italie] ; J. Van Laar [Royaume-Uni] ; M. Mayes [États-Unis] ; V. Steen ; J. Seibold ; P. Clements [États-Unis] ; T. Medsger [États-Unis] ; P. Carreira [Espagne] ; G. Riemekasten [Allemagne] ; D. Khanna [États-Unis]Source :
- Annals of the Rheumatic Diseases [ 0003-4967 ] ; 2013-06.
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Abstract
Background Classification criteria for systemic sclerosis (SSc) are being developed. Twenty-three candidate criteria have been identified and validated. Standardized cases need to be developed for criteria reduction and possible weighting. Objectives To develop and test SSc-specific case forms for clarity and feasibility. We secondarily explored the agreement between SSc experts on the probability that cases were classified as SSc. Methods Standardized forms were developed using: skin thickening; nailfold capillary pattern; finger tip ulcers/pitting scars; Raynaud’s phenomenon; interstitial lung disease; renal crisis; reduced DLCO; reduced FVC; dysphagia, esophageal dilation; telangiectasia; flexion contractures; pulmonary hypertension; puffy fingers; pulp loss/acro-osteolysis; gastroesophageal reflux; calcinosis; tendon/bursal friction rubs; topoisomerase-I, centromere, RNA polymerase III, antinuclear or PM-ScL antibodies. Six experts tested 6 cases and the ranking procedure for clarity of the instructions, response option and time-to-completion. The forms were applied to purposively sampled SSc cases from international cohorts covering a wide range of probabilities that each case had SSc. Eight experts rank-ordered 20 cases from 1 (highest) to 20 (lowest). The consistency in rankings was evaluated using an intraclass correlation coefficient (ICC). Results 83% (5/6) endorsed clarity of the form, 100% (6/6) clarity of the instructions, and 100% (6/6) clarity of the response option. The median time-to-completion was 10 minutes (range 10–20). The ICC for agreement across experts was 0.73 (95% CI 0.58, 0.86). Conclusions Our SSc-specific forms have demonstrable clarity and feasibility. Using these cases, the expert panel had substantial agreement in rank order. Our methods reflect the rigors of modern psychometric science, and serves as a template for groups developing classification criteria. Disclosure of Interest None Declared
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DOI: 10.1136/annrheumdis-2012-eular.840
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J. Fransen<affiliation><mods:affiliation>Radboud University</mods:affiliation><wicri:noCountry code="no comma">Radboud University</wicri:noCountry></affiliation><affiliation><mods:affiliation>University of Basel, Basel</mods:affiliation><wicri:noCountry code="subField">Basel</wicri:noCountry></affiliation><affiliation><mods:affiliation>Georgetown University, Georgetown</mods:affiliation><wicri:noCountry code="subField">Georgetown</wicri:noCountry></affiliation><affiliation><mods:affiliation>Scleroderma Research Consultants, Avon</mods:affiliation><wicri:noCountry code="subField">Avon</wicri:noCountry></affiliation>Le document en format XML
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Pope</name><affiliation wicri:level="3"><mods:affiliation>University of Western Ontario, London</mods:affiliation><country>Royaume-Uni</country><placeName><settlement type="city">Londres</settlement><region type="country">Angleterre</region><region type="région" nuts="1">Grand Londres</region></placeName><wicri:orgArea>University of Western Ontario</wicri:orgArea></affiliation><affiliation wicri:level="3"><mods:affiliation>University of Western Ontario, London</mods:affiliation><country>Royaume-Uni</country><placeName><settlement type="city">Londres</settlement><region type="country">Angleterre</region><region type="région" nuts="1">Grand Londres</region></placeName><wicri:orgArea>University of Western Ontario</wicri:orgArea></affiliation></author><author><name sortKey="Baron, M" sort="Baron, M" uniqKey="Baron M" first="M." last="Baron">M. Baron</name><affiliation wicri:level="1"><mods:affiliation>McGill University, Montreal, Canada</mods:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>McGill University, Montreal</wicri:regionArea></affiliation><affiliation wicri:level="1"><mods:affiliation>McGill University, Montreal, Canada</mods:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>McGill University, Montreal</wicri:regionArea></affiliation></author><author><name sortKey="Matucci Cerinic, M" sort="Matucci Cerinic, M" uniqKey="Matucci Cerinic M" first="M." last="Matucci-Cerinic">M. Matucci-Cerinic</name><affiliation wicri:level="1"><mods:affiliation>University of Florence, Firenze, Italy</mods:affiliation><country xml:lang="fr">Italie</country><wicri:regionArea>University of Florence, Firenze</wicri:regionArea></affiliation><affiliation wicri:level="1"><mods:affiliation>University of Florence, Firenze, Italy</mods:affiliation><country xml:lang="fr">Italie</country><wicri:regionArea>University of Florence, Firenze</wicri:regionArea></affiliation></author><author><name sortKey="Tyndall, A" sort="Tyndall, A" uniqKey="Tyndall A" first="A." last="Tyndall">A. Tyndall</name><affiliation><mods:affiliation>University of Basel, Basel</mods:affiliation><wicri:noCountry code="subField">Basel</wicri:noCountry></affiliation><affiliation><mods:affiliation>University of Basel, Basel</mods:affiliation><wicri:noCountry code="subField">Basel</wicri:noCountry></affiliation></author><author><name sortKey="Distler, O" sort="Distler, O" uniqKey="Distler O" first="O." last="Distler">O. Distler</name><affiliation wicri:level="1"><mods:affiliation>University Hospital Zurich, Zurich, Switzerland</mods:affiliation><country xml:lang="fr">Suisse</country><wicri:regionArea>University Hospital Zurich, Zurich</wicri:regionArea></affiliation><affiliation wicri:level="1"><mods:affiliation>University Hospital Zurich, Zurich, Switzerland</mods:affiliation><country xml:lang="fr">Suisse</country><wicri:regionArea>University Hospital Zurich, Zurich</wicri:regionArea></affiliation></author><author><name sortKey="Denton, C" sort="Denton, C" uniqKey="Denton C" first="C." last="Denton">C. 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Van Laar</name><affiliation wicri:level="1"><mods:affiliation>University of Newcastle, Newcastle, United Kingdom</mods:affiliation><country xml:lang="fr">Royaume-Uni</country><wicri:regionArea>University of Newcastle, Newcastle</wicri:regionArea></affiliation><affiliation wicri:level="1"><mods:affiliation>University of Newcastle, Newcastle, United Kingdom</mods:affiliation><country xml:lang="fr">Royaume-Uni</country><wicri:regionArea>University of Newcastle, Newcastle</wicri:regionArea></affiliation></author><author><name sortKey="Mayes, M" sort="Mayes, M" uniqKey="Mayes M" first="M." last="Mayes">M. Mayes</name><affiliation wicri:level="3"><mods:affiliation>University of Texas, Houston</mods:affiliation><country>États-Unis</country><placeName><settlement type="city">Houston</settlement><region type="state">Texas</region></placeName><wicri:orgArea>University of Texas</wicri:orgArea></affiliation><affiliation wicri:level="3"><mods:affiliation>University of Texas, Houston</mods:affiliation><country>États-Unis</country><placeName><settlement type="city">Houston</settlement><region type="state">Texas</region></placeName><wicri:orgArea>University of Texas</wicri:orgArea></affiliation></author><author><name sortKey="Steen, V" sort="Steen, V" uniqKey="Steen V" first="V." last="Steen">V. Steen</name><affiliation><mods:affiliation>Georgetown University, Georgetown</mods:affiliation><wicri:noCountry code="subField">Georgetown</wicri:noCountry></affiliation><affiliation><mods:affiliation>Georgetown University, Georgetown</mods:affiliation><wicri:noCountry code="subField">Georgetown</wicri:noCountry></affiliation></author><author><name sortKey="Seibold, J" sort="Seibold, J" uniqKey="Seibold J" first="J." last="Seibold">J. Seibold</name><affiliation><mods:affiliation>Scleroderma Research Consultants, Avon</mods:affiliation><wicri:noCountry code="subField">Avon</wicri:noCountry></affiliation><affiliation><mods:affiliation>Scleroderma Research Consultants, Avon</mods:affiliation><wicri:noCountry code="subField">Avon</wicri:noCountry></affiliation></author><author><name sortKey="Clements, P" sort="Clements, P" uniqKey="Clements P" first="P." last="Clements">P. Clements</name><affiliation wicri:level="3"><mods:affiliation>UCLA, Los Angeles</mods:affiliation><country>États-Unis</country><placeName><settlement type="city">Los Angeles</settlement><region type="state">Californie</region></placeName><wicri:orgArea>UCLA</wicri:orgArea></affiliation><affiliation wicri:level="3"><mods:affiliation>UCLA, Los Angeles</mods:affiliation><country>États-Unis</country><placeName><settlement type="city">Los Angeles</settlement><region type="state">Californie</region></placeName><wicri:orgArea>UCLA</wicri:orgArea></affiliation></author><author><name sortKey="Medsger, T" sort="Medsger, T" uniqKey="Medsger T" first="T." last="Medsger">T. Medsger</name><affiliation wicri:level="1"><mods:affiliation>University of Pittsburgh, Pittsburgh, United States</mods:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>University of Pittsburgh, Pittsburgh</wicri:regionArea></affiliation><affiliation wicri:level="1"><mods:affiliation>University of Pittsburgh, Pittsburgh, United States</mods:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>University of Pittsburgh, Pittsburgh</wicri:regionArea></affiliation></author><author><name sortKey="Carreira, P" sort="Carreira, P" uniqKey="Carreira P" first="P." last="Carreira">P. Carreira</name><affiliation wicri:level="1"><mods:affiliation>Hospital Universitario, Madrid, Spain</mods:affiliation><country xml:lang="fr">Espagne</country><wicri:regionArea>Hospital Universitario, Madrid</wicri:regionArea></affiliation><affiliation wicri:level="1"><mods:affiliation>Hospital Universitario, Madrid, Spain</mods:affiliation><country xml:lang="fr">Espagne</country><wicri:regionArea>Hospital Universitario, Madrid</wicri:regionArea></affiliation></author><author><name sortKey="Riemekasten, G" sort="Riemekasten, G" uniqKey="Riemekasten G" first="G." last="Riemekasten">G. Riemekasten</name><affiliation wicri:level="1"><mods:affiliation>Leibniz Institute, Berlin, Germany</mods:affiliation><country xml:lang="fr">Allemagne</country><wicri:regionArea>Leibniz Institute, Berlin</wicri:regionArea></affiliation><affiliation wicri:level="1"><mods:affiliation>Leibniz Institute, Berlin, Germany</mods:affiliation><country xml:lang="fr">Allemagne</country><wicri:regionArea>Leibniz Institute, Berlin</wicri:regionArea></affiliation></author><author><name sortKey="Khanna, D" sort="Khanna, D" uniqKey="Khanna D" first="D." last="Khanna">D. Khanna</name><affiliation wicri:level="1"><mods:affiliation>University of Michigan, Ann Arbor, United States</mods:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>University of Michigan, Ann Arbor</wicri:regionArea></affiliation><affiliation wicri:level="1"><mods:affiliation>University of Michigan, Ann Arbor, United States</mods:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>University of Michigan, Ann Arbor</wicri:regionArea></affiliation></author></titleStmt><publicationStmt><idno type="wicri:source">ISTEX</idno><idno type="RBID">ISTEX:9535F5261FFA3C9D6C3677AB1620CFB1C0C07DED</idno><date when="2013" year="2013">2013</date><idno type="doi">10.1136/annrheumdis-2012-eular.840</idno><idno type="url">https://api.istex.fr/document/9535F5261FFA3C9D6C3677AB1620CFB1C0C07DED/fulltext/pdf</idno><idno type="wicri:Area/Istex/Corpus">002303</idno><idno type="wicri:explorRef" wicri:stream="Istex" wicri:step="Corpus" wicri:corpus="ISTEX">002303</idno><idno type="wicri:Area/Istex/Curation">002303</idno></publicationStmt><sourceDesc><biblStruct><analytic><title level="a" type="main" xml:lang="en">AB0840 Scleroderma classification criteria: Disease-specific methods for valid case comparisons</title><author><name sortKey="Johnson, S R" sort="Johnson, S R" uniqKey="Johnson S" first="S. R." last="Johnson">S. R. Johnson</name><affiliation wicri:level="1"><mods:affiliation>University of Toronto, Toronto, Canada</mods:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>University of Toronto, Toronto</wicri:regionArea></affiliation><affiliation wicri:level="1"><mods:affiliation>University of Toronto, Toronto, Canada</mods:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>University of Toronto, Toronto</wicri:regionArea></affiliation></author><author><name sortKey="Naden, R L" sort="Naden, R L" uniqKey="Naden R" first="R. L." last="Naden">R. L. Naden</name><affiliation wicri:level="1"><mods:affiliation>Ministry of Health, Auckland, New Zealand</mods:affiliation><country xml:lang="fr">Nouvelle-Zélande</country><wicri:regionArea>Ministry of Health, Auckland</wicri:regionArea></affiliation><affiliation wicri:level="1"><mods:affiliation>Ministry of Health, Auckland, New Zealand</mods:affiliation><country xml:lang="fr">Nouvelle-Zélande</country><wicri:regionArea>Ministry of Health, Auckland</wicri:regionArea></affiliation></author><author><name sortKey="Fransen, J" sort="Fransen, J" uniqKey="Fransen J" first="J." last="Fransen">J. Fransen</name><affiliation><mods:affiliation>Radboud University</mods:affiliation></affiliation><affiliation><mods:affiliation>Radboud University</mods:affiliation><wicri:noCountry code="no comma">Radboud University</wicri:noCountry></affiliation></author><author><name sortKey="Van Den Hoogen, F" sort="Van Den Hoogen, F" uniqKey="Van Den Hoogen F" first="F." last="Van Den Hoogen">F. Van Den Hoogen</name><affiliation wicri:level="1"><mods:affiliation>Sint Maartenskliniek, Nijmegen, Netherlands</mods:affiliation><country xml:lang="fr">Pays-Bas</country><wicri:regionArea>Sint Maartenskliniek, Nijmegen</wicri:regionArea></affiliation><affiliation wicri:level="1"><mods:affiliation>Sint Maartenskliniek, Nijmegen, Netherlands</mods:affiliation><country xml:lang="fr">Pays-Bas</country><wicri:regionArea>Sint Maartenskliniek, Nijmegen</wicri:regionArea></affiliation></author><author><name sortKey="Pope, J E" sort="Pope, J E" uniqKey="Pope J" first="J. E." last="Pope">J. E. Pope</name><affiliation wicri:level="3"><mods:affiliation>University of Western Ontario, London</mods:affiliation><country>Royaume-Uni</country><placeName><settlement type="city">Londres</settlement><region type="country">Angleterre</region><region type="région" nuts="1">Grand Londres</region></placeName><wicri:orgArea>University of Western Ontario</wicri:orgArea></affiliation><affiliation wicri:level="3"><mods:affiliation>University of Western Ontario, London</mods:affiliation><country>Royaume-Uni</country><placeName><settlement type="city">Londres</settlement><region type="country">Angleterre</region><region type="région" nuts="1">Grand Londres</region></placeName><wicri:orgArea>University of Western Ontario</wicri:orgArea></affiliation></author><author><name sortKey="Baron, M" sort="Baron, M" uniqKey="Baron M" first="M." last="Baron">M. Baron</name><affiliation wicri:level="1"><mods:affiliation>McGill University, Montreal, Canada</mods:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>McGill University, Montreal</wicri:regionArea></affiliation><affiliation wicri:level="1"><mods:affiliation>McGill University, Montreal, Canada</mods:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>McGill University, Montreal</wicri:regionArea></affiliation></author><author><name sortKey="Matucci Cerinic, M" sort="Matucci Cerinic, M" uniqKey="Matucci Cerinic M" first="M." last="Matucci-Cerinic">M. Matucci-Cerinic</name><affiliation wicri:level="1"><mods:affiliation>University of Florence, Firenze, Italy</mods:affiliation><country xml:lang="fr">Italie</country><wicri:regionArea>University of Florence, Firenze</wicri:regionArea></affiliation><affiliation wicri:level="1"><mods:affiliation>University of Florence, Firenze, Italy</mods:affiliation><country xml:lang="fr">Italie</country><wicri:regionArea>University of Florence, Firenze</wicri:regionArea></affiliation></author><author><name sortKey="Tyndall, A" sort="Tyndall, A" uniqKey="Tyndall A" first="A." last="Tyndall">A. Tyndall</name><affiliation><mods:affiliation>University of Basel, Basel</mods:affiliation></affiliation><affiliation><mods:affiliation>University of Basel, Basel</mods:affiliation><wicri:noCountry code="subField">Basel</wicri:noCountry></affiliation></author><author><name sortKey="Distler, O" sort="Distler, O" uniqKey="Distler O" first="O." last="Distler">O. Distler</name><affiliation wicri:level="1"><mods:affiliation>University Hospital Zurich, Zurich, Switzerland</mods:affiliation><country xml:lang="fr">Suisse</country><wicri:regionArea>University Hospital Zurich, Zurich</wicri:regionArea></affiliation><affiliation wicri:level="1"><mods:affiliation>University Hospital Zurich, Zurich, Switzerland</mods:affiliation><country xml:lang="fr">Suisse</country><wicri:regionArea>University Hospital Zurich, Zurich</wicri:regionArea></affiliation></author><author><name sortKey="Denton, C" sort="Denton, C" uniqKey="Denton C" first="C." last="Denton">C. Denton</name><affiliation wicri:level="1"><mods:affiliation>Royal Free Hospital, London, United Kingdom</mods:affiliation><country xml:lang="fr">Royaume-Uni</country><wicri:regionArea>Royal Free Hospital, London</wicri:regionArea></affiliation><affiliation wicri:level="1"><mods:affiliation>Royal Free Hospital, London, United Kingdom</mods:affiliation><country xml:lang="fr">Royaume-Uni</country><wicri:regionArea>Royal Free Hospital, London</wicri:regionArea></affiliation></author><author><name sortKey="Gabrielli, A" sort="Gabrielli, A" uniqKey="Gabrielli A" first="A." last="Gabrielli">A. Gabrielli</name><affiliation wicri:level="1"><mods:affiliation>Università Politecnica delle Marche, Ancona, Italy</mods:affiliation><country xml:lang="fr">Italie</country><wicri:regionArea>Università Politecnica delle Marche, Ancona</wicri:regionArea></affiliation><affiliation wicri:level="1"><mods:affiliation>Università Politecnica delle Marche, Ancona, Italy</mods:affiliation><country xml:lang="fr">Italie</country><wicri:regionArea>Università Politecnica delle Marche, Ancona</wicri:regionArea></affiliation></author><author><name sortKey="Van Laar, J" sort="Van Laar, J" uniqKey="Van Laar J" first="J." last="Van Laar">J. Van Laar</name><affiliation wicri:level="1"><mods:affiliation>University of Newcastle, Newcastle, United Kingdom</mods:affiliation><country xml:lang="fr">Royaume-Uni</country><wicri:regionArea>University of Newcastle, Newcastle</wicri:regionArea></affiliation><affiliation wicri:level="1"><mods:affiliation>University of Newcastle, Newcastle, United Kingdom</mods:affiliation><country xml:lang="fr">Royaume-Uni</country><wicri:regionArea>University of Newcastle, Newcastle</wicri:regionArea></affiliation></author><author><name sortKey="Mayes, M" sort="Mayes, M" uniqKey="Mayes M" first="M." last="Mayes">M. Mayes</name><affiliation wicri:level="3"><mods:affiliation>University of Texas, Houston</mods:affiliation><country>États-Unis</country><placeName><settlement type="city">Houston</settlement><region type="state">Texas</region></placeName><wicri:orgArea>University of Texas</wicri:orgArea></affiliation><affiliation wicri:level="3"><mods:affiliation>University of Texas, Houston</mods:affiliation><country>États-Unis</country><placeName><settlement type="city">Houston</settlement><region type="state">Texas</region></placeName><wicri:orgArea>University of Texas</wicri:orgArea></affiliation></author><author><name sortKey="Steen, V" sort="Steen, V" uniqKey="Steen V" first="V." last="Steen">V. Steen</name><affiliation><mods:affiliation>Georgetown University, Georgetown</mods:affiliation></affiliation><affiliation><mods:affiliation>Georgetown University, Georgetown</mods:affiliation><wicri:noCountry code="subField">Georgetown</wicri:noCountry></affiliation></author><author><name sortKey="Seibold, J" sort="Seibold, J" uniqKey="Seibold J" first="J." last="Seibold">J. Seibold</name><affiliation><mods:affiliation>Scleroderma Research Consultants, Avon</mods:affiliation></affiliation><affiliation><mods:affiliation>Scleroderma Research Consultants, Avon</mods:affiliation><wicri:noCountry code="subField">Avon</wicri:noCountry></affiliation></author><author><name sortKey="Clements, P" sort="Clements, P" uniqKey="Clements P" first="P." last="Clements">P. Clements</name><affiliation wicri:level="3"><mods:affiliation>UCLA, Los Angeles</mods:affiliation><country>États-Unis</country><placeName><settlement type="city">Los Angeles</settlement><region type="state">Californie</region></placeName><wicri:orgArea>UCLA</wicri:orgArea></affiliation><affiliation wicri:level="3"><mods:affiliation>UCLA, Los Angeles</mods:affiliation><country>États-Unis</country><placeName><settlement type="city">Los Angeles</settlement><region type="state">Californie</region></placeName><wicri:orgArea>UCLA</wicri:orgArea></affiliation></author><author><name sortKey="Medsger, T" sort="Medsger, T" uniqKey="Medsger T" first="T." last="Medsger">T. Medsger</name><affiliation wicri:level="1"><mods:affiliation>University of Pittsburgh, Pittsburgh, United States</mods:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>University of Pittsburgh, Pittsburgh</wicri:regionArea></affiliation><affiliation wicri:level="1"><mods:affiliation>University of Pittsburgh, Pittsburgh, United States</mods:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>University of Pittsburgh, Pittsburgh</wicri:regionArea></affiliation></author><author><name sortKey="Carreira, P" sort="Carreira, P" uniqKey="Carreira P" first="P." last="Carreira">P. Carreira</name><affiliation wicri:level="1"><mods:affiliation>Hospital Universitario, Madrid, Spain</mods:affiliation><country xml:lang="fr">Espagne</country><wicri:regionArea>Hospital Universitario, Madrid</wicri:regionArea></affiliation><affiliation wicri:level="1"><mods:affiliation>Hospital Universitario, Madrid, Spain</mods:affiliation><country xml:lang="fr">Espagne</country><wicri:regionArea>Hospital Universitario, Madrid</wicri:regionArea></affiliation></author><author><name sortKey="Riemekasten, G" sort="Riemekasten, G" uniqKey="Riemekasten G" first="G." last="Riemekasten">G. Riemekasten</name><affiliation wicri:level="1"><mods:affiliation>Leibniz Institute, Berlin, Germany</mods:affiliation><country xml:lang="fr">Allemagne</country><wicri:regionArea>Leibniz Institute, Berlin</wicri:regionArea></affiliation><affiliation wicri:level="1"><mods:affiliation>Leibniz Institute, Berlin, Germany</mods:affiliation><country xml:lang="fr">Allemagne</country><wicri:regionArea>Leibniz Institute, Berlin</wicri:regionArea></affiliation></author><author><name sortKey="Khanna, D" sort="Khanna, D" uniqKey="Khanna D" first="D." last="Khanna">D. Khanna</name><affiliation wicri:level="1"><mods:affiliation>University of Michigan, Ann Arbor, United States</mods:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>University of Michigan, Ann Arbor</wicri:regionArea></affiliation><affiliation wicri:level="1"><mods:affiliation>University of Michigan, Ann Arbor, United States</mods:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>University of Michigan, Ann Arbor</wicri:regionArea></affiliation></author></analytic><monogr></monogr><series><title level="j">Annals of the Rheumatic Diseases</title><title level="j" type="abbrev">Ann Rheum Dis</title><idno type="ISSN">0003-4967</idno><idno type="eISSN">1468-2060</idno><imprint><publisher>BMJ Publishing Group Ltd and European League Against Rheumatism</publisher><date type="published" when="2013-06">2013-06</date><biblScope unit="volume">71</biblScope><biblScope unit="issue">Suppl 3</biblScope><biblScope unit="page" from="686">686</biblScope></imprint><idno type="ISSN">0003-4967</idno></series></biblStruct></sourceDesc><seriesStmt><idno type="ISSN">0003-4967</idno></seriesStmt></fileDesc><profileDesc><textClass><keywords scheme="KwdEn" xml:lang="en"><term>Hospital universitario</term><term>Internal medicine</term><term>Rheumatology</term><term>Sclerosis</term><term>Systemic sclerosis</term><term>Tokai university school</term><term>Yokohama city university</term></keywords><keywords scheme="Teeft" xml:lang="en"><term>Hospital universitario</term><term>Internal medicine</term><term>Rheumatology</term><term>Sclerosis</term><term>Systemic sclerosis</term><term>Tokai university school</term><term>Yokohama city university</term></keywords></textClass><langUsage><language ident="en">en</language></langUsage></profileDesc></teiHeader><front><div type="abstract">Background Classification criteria for systemic sclerosis (SSc) are being developed. Twenty-three candidate criteria have been identified and validated. Standardized cases need to be developed for criteria reduction and possible weighting. Objectives To develop and test SSc-specific case forms for clarity and feasibility. We secondarily explored the agreement between SSc experts on the probability that cases were classified as SSc. Methods Standardized forms were developed using: skin thickening; nailfold capillary pattern; finger tip ulcers/pitting scars; Raynaud’s phenomenon; interstitial lung disease; renal crisis; reduced DLCO; reduced FVC; dysphagia, esophageal dilation; telangiectasia; flexion contractures; pulmonary hypertension; puffy fingers; pulp loss/acro-osteolysis; gastroesophageal reflux; calcinosis; tendon/bursal friction rubs; topoisomerase-I, centromere, RNA polymerase III, antinuclear or PM-ScL antibodies. Six experts tested 6 cases and the ranking procedure for clarity of the instructions, response option and time-to-completion. The forms were applied to purposively sampled SSc cases from international cohorts covering a wide range of probabilities that each case had SSc. Eight experts rank-ordered 20 cases from 1 (highest) to 20 (lowest). The consistency in rankings was evaluated using an intraclass correlation coefficient (ICC). Results 83% (5/6) endorsed clarity of the form, 100% (6/6) clarity of the instructions, and 100% (6/6) clarity of the response option. The median time-to-completion was 10 minutes (range 10–20). The ICC for agreement across experts was 0.73 (95% CI 0.58, 0.86). Conclusions Our SSc-specific forms have demonstrable clarity and feasibility. Using these cases, the expert panel had substantial agreement in rank order. Our methods reflect the rigors of modern psychometric science, and serves as a template for groups developing classification criteria. Disclosure of Interest None Declared</div></front></TEI></record>Pour manipuler ce document sous Unix (Dilib)
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