Reasons of informal caregivers for institutionalising dementia patients previously living at home: the Pixel study
Identifieur interne : 000430 ( Istex/Corpus ); précédent : 000429; suivant : 000431Reasons of informal caregivers for institutionalising dementia patients previously living at home: the Pixel study
Auteurs : Philippe Thomas ; Pierre Ingrand ; Fabrice Lalloue ; Cyril Hazif-Thomas ; Rémy Billon ; François Viéban ; Jean-Pierre ClémentSource :
- International Journal of Geriatric Psychiatry [ 0885-6230 ] ; 2004-02.
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Abstract
Study of the problems and requirements of the main caregiver providing home care for dementia patients that have resulted in the patient being institutionalised.
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DOI: 10.1002/gps.1039
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ISTEX:C30B9CB0494E1C5C5C87FFCD312C747A2DFE9DC8Le document en format XML
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Psychiatry</title><idno type="pISSN">0885-6230</idno><idno type="eISSN">1099-1166</idno><idno type="DOI">10.1002/(ISSN)1099-1166</idno><imprint><publisher>John Wiley & Sons, Ltd.</publisher><pubPlace>Chichester, UK</pubPlace><date type="published" when="2004-02"></date><biblScope unit="volume">19</biblScope><biblScope unit="issue">2</biblScope><biblScope unit="page" from="127">127</biblScope><biblScope unit="page" to="135">135</biblScope></imprint></monogr><idno type="istex">C30B9CB0494E1C5C5C87FFCD312C747A2DFE9DC8</idno><idno type="DOI">10.1002/gps.1039</idno><idno type="ArticleID">GPS1039</idno></biblStruct></sourceDesc></fileDesc><profileDesc><creation><date>2004</date></creation><langUsage><language ident="en">en</language></langUsage><abstract><p>Study of the problems and requirements of the main caregiver providing home care for dementia patients that have resulted in the patient being institutionalised.</p></abstract><abstract><p>To determine the reasons for placing the dementia patient in an institution.</p></abstract><abstract><p>Self‐administered questionnaire of 48 questions on the patient and caregiver, including a list of complaints, given to the main caregiver. Medical questionnaire on the patient filled in by the geriatrician.</p></abstract><abstract><p>Data were collected from 109 questionnaires concerning 75 females with dementia (84.7 ± 6.7 years) and 34 demented males (80.8 ± 7.4 years). In two‐thirds of cases the main caregiver was a female, aged 61.1 ± 12.1 years. Cognitive disorders were not the main reasons for institutionalising patients. The most frequent caregiver complaint at the time of institutionalisation was incontinence, followed by withdrawal. The caregiver's main problem resulting in institutionalisation was dependence, with behavioural disorders in second place. A treatment with anticholinesterase for dementia was associated with a live‐in carer being provided for 20 months longer than in the case of patients not receiving this treatment. Statistical analysis revealed 6 groups of separate caregiver‐patient situations. On the one hand there were those patients who appeared to be easy for the caregiver to cope with: those with no problems, docile patients and passive patients not opposing care. In these cases the caregiver was most often young and male, or not directly related to the patient. On the other hand there were 3 other groups: patients with inappropriate motor behaviours, violent/agitated patients and unmotivated patients who opposed care. These patients lived with an elderly caregiver who had been looking after the patient for several years.</p></abstract><abstract><p>Caregivers' requirements are for help with coping with and preventing dependence. The caregiver suffers terribly from a lack of relief, particularly when young.</p></abstract><abstract><p>It is necessary to change the focus of home care for dementia patients towards preventing loss of autonomy and its consequences and to allow for periods of relief for home caregivers. Copyright © 2004 John Wiley & Sons, Ltd.</p></abstract><textClass xml:lang="en"><keywords scheme="keyword"><list><head>keywords</head><item><term>family</term></item><item><term>help for caregivers</term></item><item><term>Alzheimer</term></item><item><term>dementia</term></item><item><term>dependence</term></item><item><term>treatment</term></item><item><term>behavioural disorders</term></item><item><term>complaints</term></item></list></keywords></textClass><textClass><keywords scheme="Journal Subject"><list><head>article-category</head><item><term>Research Article</term></item></list></keywords></textClass></profileDesc><revisionDesc><change when="2003-03-31">Received</change><change when="2003-10-20">Registration</change><change when="2004-02">Published</change></revisionDesc></teiHeader></istex:fulltextTEI><json:item><extension>txt</extension><original>false</original><mimetype>text/plain</mimetype><uri>https://api.istex.fr/document/C30B9CB0494E1C5C5C87FFCD312C747A2DFE9DC8/fulltext/txt</uri></json:item></fulltext><metadata><istex:metadataXml wicri:clean="Wiley, elements deleted: body"><istex:xmlDeclaration>version="1.0" encoding="UTF-8" standalone="yes"</istex:xmlDeclaration><istex:document><component version="2.0" type="serialArticle" xml:lang="en"><header><publicationMeta level="product"><publisherInfo><publisherName>John Wiley & Sons, Ltd.</publisherName><publisherLoc>Chichester, UK</publisherLoc></publisherInfo><doi registered="yes">10.1002/(ISSN)1099-1166</doi><issn type="print">0885-6230</issn><issn type="electronic">1099-1166</issn><idGroup><id type="product" value="GPS"></id></idGroup><titleGroup><title type="main" xml:lang="en" sort="INTERNATIONAL JOURNAL OF GERIATRIC PSYCHIATRY">International Journal of Geriatric Psychiatry</title><title type="short">Int. 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number="42"></count></countGroup><titleGroup><title type="main" xml:lang="en">Reasons of informal caregivers for institutionalising dementia patients previously living at home: the Pixel study</title><title type="short" xml:lang="en">THE PIXEL STUDY</title></titleGroup><creators><creator xml:id="au1" creatorRole="author" affiliationRef="#af1" corresponding="yes"><personName><givenNames>Philippe</givenNames><familyName>Thomas</familyName></personName><contactDetails><email>thomasphil@interpc.fr</email></contactDetails></creator><creator xml:id="au2" creatorRole="author" affiliationRef="#af1"><personName><givenNames>Pierre</givenNames><familyName>Ingrand</familyName></personName></creator><creator xml:id="au3" creatorRole="author" affiliationRef="#af2"><personName><givenNames>Fabrice</givenNames><familyName>Lalloue</familyName></personName></creator><creator xml:id="au4" creatorRole="author" affiliationRef="#af2"><personName><givenNames>Cyril</givenNames><familyName>Hazif‐Thomas</familyName></personName></creator><creator xml:id="au5" creatorRole="author" affiliationRef="#af3"><personName><givenNames>Rémy</givenNames><familyName>Billon</familyName></personName></creator><creator xml:id="au6" creatorRole="author" affiliationRef="#af2"><personName><givenNames>François</givenNames><familyName>Viéban</familyName></personName></creator><creator xml:id="au7" creatorRole="author" affiliationRef="#af2"><personName><givenNames>Jean‐Pierre</givenNames><familyName>Clément</familyName></personName></creator></creators><affiliationGroup><affiliation xml:id="af1" countryCode="FR" type="organization"><unparsedAffiliation>Poitiers University Hospital, Poitiers, France</unparsedAffiliation></affiliation><affiliation xml:id="af2" countryCode="FR" type="organization"><unparsedAffiliation>Esquirol General Hospital, Limoges, France</unparsedAffiliation></affiliation><affiliation xml:id="af3" countryCode="FR" type="organization"><unparsedAffiliation>Saint Louis General Hospital, La Rochelle, France</unparsedAffiliation></affiliation></affiliationGroup><keywordGroup xml:lang="en" type="author"><keyword xml:id="kwd1">family</keyword><keyword xml:id="kwd2">help for caregivers</keyword><keyword xml:id="kwd3">Alzheimer</keyword><keyword xml:id="kwd4">dementia</keyword><keyword xml:id="kwd5">dependence</keyword><keyword xml:id="kwd6">treatment</keyword><keyword xml:id="kwd7">behavioural disorders</keyword><keyword xml:id="kwd8">complaints</keyword></keywordGroup><fundingInfo><fundingAgency>France Alzheimer Association</fundingAgency></fundingInfo><fundingInfo><fundingAgency>The French Language Society for Psychogeriatrics (SPLF)</fundingAgency></fundingInfo><fundingInfo><fundingAgency>Novartis Pharma laboratory</fundingAgency></fundingInfo><fundingInfo><fundingAgency>French State Health Insurance Organisation</fundingAgency></fundingInfo><fundingInfo><fundingAgency>The Caisse Nationale d'Assurances Maladie</fundingAgency></fundingInfo><abstractGroup><abstract type="main" xml:lang="en"><title type="main">Abstract</title><section xml:id="abs1-1"><title type="main">Context</title><p>Study of the problems and requirements of the main caregiver providing home care for dementia patients that have resulted in the patient being institutionalised.</p></section><section xml:id="abs1-2"><title type="main">Objectives</title><p>To determine the reasons for placing the dementia patient in an institution.</p></section><section xml:id="abs1-3"><title type="main">Resources</title><p>Self‐administered questionnaire of 48 questions on the patient and caregiver, including a list of complaints, given to the main caregiver. Medical questionnaire on the patient filled in by the geriatrician.</p></section><section xml:id="abs1-4"><title type="main">Results</title><p>Data were collected from 109 questionnaires concerning 75 females with dementia (84.7 ± 6.7 years) and 34 demented males (80.8 ± 7.4 years). In two‐thirds of cases the main caregiver was a female, aged 61.1 ± 12.1 years. Cognitive disorders were not the main reasons for institutionalising patients. The most frequent caregiver complaint at the time of institutionalisation was incontinence, followed by withdrawal. The caregiver's main problem resulting in institutionalisation was dependence, with behavioural disorders in second place. A treatment with anticholinesterase for dementia was associated with a live‐in carer being provided for 20 months longer than in the case of patients not receiving this treatment. Statistical analysis revealed 6 groups of separate caregiver‐patient situations. On the one hand there were those patients who appeared to be easy for the caregiver to cope with: those with no problems, docile patients and passive patients not opposing care. In these cases the caregiver was most often young and male, or not directly related to the patient. On the other hand there were 3 other groups: patients with inappropriate motor behaviours, violent/agitated patients and unmotivated patients who opposed care. These patients lived with an elderly caregiver who had been looking after the patient for several years.</p></section><section xml:id="abs1-5"><title type="main">Discussion</title><p>Caregivers' requirements are for help with coping with and preventing dependence. The caregiver suffers terribly from a lack of relief, particularly when young.</p></section><section xml:id="abs1-6"><title type="main">Conclusion</title><p>It is necessary to change the focus of home care for dementia patients towards preventing loss of autonomy and its consequences and to allow for periods of relief for home caregivers. Copyright © 2004 John Wiley & Sons, Ltd.</p></section></abstract></abstractGroup></contentMeta></header></component></istex:document></istex:metadataXml><mods version="3.6"><titleInfo lang="en"><title>Reasons of informal caregivers for institutionalising dementia patients previously living at home: the Pixel study</title></titleInfo><titleInfo type="abbreviated" lang="en"><title>THE PIXEL STUDY</title></titleInfo><titleInfo type="alternative" contentType="CDATA" lang="en"><title>Reasons of informal caregivers for institutionalising dementia patients previously living at home: the Pixel study</title></titleInfo><name type="personal"><namePart type="given">Philippe</namePart><namePart type="family">Thomas</namePart><affiliation>Poitiers University Hospital, Poitiers, France</affiliation><affiliation>University Department of Psychogeriatrics, Esquirol Psychiatric Hospital, 87025 Limoges, France.</affiliation><role><roleTerm type="text">author</roleTerm></role></name><name type="personal"><namePart type="given">Pierre</namePart><namePart type="family">Ingrand</namePart><affiliation>Poitiers University Hospital, Poitiers, France</affiliation><role><roleTerm type="text">author</roleTerm></role></name><name type="personal"><namePart type="given">Fabrice</namePart><namePart type="family">Lalloue</namePart><affiliation>Esquirol General Hospital, Limoges, France</affiliation><role><roleTerm type="text">author</roleTerm></role></name><name type="personal"><namePart type="given">Cyril</namePart><namePart type="family">Hazif‐Thomas</namePart><affiliation>Esquirol General Hospital, Limoges, France</affiliation><role><roleTerm type="text">author</roleTerm></role></name><name type="personal"><namePart type="given">Rémy</namePart><namePart type="family">Billon</namePart><affiliation>Saint Louis General Hospital, La Rochelle, France</affiliation><role><roleTerm type="text">author</roleTerm></role></name><name type="personal"><namePart type="given">François</namePart><namePart type="family">Viéban</namePart><affiliation>Esquirol General Hospital, Limoges, France</affiliation><role><roleTerm type="text">author</roleTerm></role></name><name type="personal"><namePart type="given">Jean‐Pierre</namePart><namePart type="family">Clément</namePart><affiliation>Esquirol General Hospital, Limoges, France</affiliation><role><roleTerm type="text">author</roleTerm></role></name><typeOfResource>text</typeOfResource><genre type="article" displayLabel="article"></genre><originInfo><publisher>John Wiley & Sons, Ltd.</publisher><place><placeTerm type="text">Chichester, UK</placeTerm></place><dateIssued encoding="w3cdtf">2004-02</dateIssued><dateCaptured encoding="w3cdtf">2003-03-31</dateCaptured><dateValid encoding="w3cdtf">2003-10-20</dateValid><copyrightDate encoding="w3cdtf">2004</copyrightDate></originInfo><language><languageTerm type="code" authority="rfc3066">en</languageTerm><languageTerm type="code" authority="iso639-2b">eng</languageTerm></language><physicalDescription><internetMediaType>text/html</internetMediaType><extent unit="figures">1</extent><extent unit="tables">3</extent><extent unit="references">42</extent></physicalDescription><abstract>Study of the problems and requirements of the main caregiver providing home care for dementia patients that have resulted in the patient being institutionalised.</abstract><abstract>To determine the reasons for placing the dementia patient in an institution.</abstract><abstract>Self‐administered questionnaire of 48 questions on the patient and caregiver, including a list of complaints, given to the main caregiver. Medical questionnaire on the patient filled in by the geriatrician.</abstract><abstract>Data were collected from 109 questionnaires concerning 75 females with dementia (84.7 ± 6.7 years) and 34 demented males (80.8 ± 7.4 years). In two‐thirds of cases the main caregiver was a female, aged 61.1 ± 12.1 years. Cognitive disorders were not the main reasons for institutionalising patients. The most frequent caregiver complaint at the time of institutionalisation was incontinence, followed by withdrawal. The caregiver's main problem resulting in institutionalisation was dependence, with behavioural disorders in second place. A treatment with anticholinesterase for dementia was associated with a live‐in carer being provided for 20 months longer than in the case of patients not receiving this treatment. Statistical analysis revealed 6 groups of separate caregiver‐patient situations. On the one hand there were those patients who appeared to be easy for the caregiver to cope with: those with no problems, docile patients and passive patients not opposing care. In these cases the caregiver was most often young and male, or not directly related to the patient. On the other hand there were 3 other groups: patients with inappropriate motor behaviours, violent/agitated patients and unmotivated patients who opposed care. These patients lived with an elderly caregiver who had been looking after the patient for several years.</abstract><abstract>Caregivers' requirements are for help with coping with and preventing dependence. The caregiver suffers terribly from a lack of relief, particularly when young.</abstract><abstract>It is necessary to change the focus of home care for dementia patients towards preventing loss of autonomy and its consequences and to allow for periods of relief for home caregivers. Copyright © 2004 John Wiley & Sons, Ltd.</abstract><note type="funding">France Alzheimer Association</note><note type="funding">The French Language Society for Psychogeriatrics (SPLF)</note><note type="funding">Novartis Pharma laboratory</note><note type="funding">French State Health Insurance Organisation</note><note type="funding">The Caisse Nationale d'Assurances Maladie</note><subject lang="en"><genre>keywords</genre><topic>family</topic><topic>help for caregivers</topic><topic>Alzheimer</topic><topic>dementia</topic><topic>dependence</topic><topic>treatment</topic><topic>behavioural disorders</topic><topic>complaints</topic></subject><relatedItem type="host"><titleInfo><title>International Journal of Geriatric Psychiatry</title></titleInfo><titleInfo type="abbreviated"><title>Int. J. Geriat. Psychiatry</title></titleInfo><genre type="journal">journal</genre><subject><genre>article-category</genre><topic>Research Article</topic></subject><identifier type="ISSN">0885-6230</identifier><identifier type="eISSN">1099-1166</identifier><identifier type="DOI">10.1002/(ISSN)1099-1166</identifier><identifier type="PublisherID">GPS</identifier><part><date>2004</date><detail type="volume"><caption>vol.</caption><number>19</number></detail><detail type="issue"><caption>no.</caption><number>2</number></detail><extent unit="pages"><start>127</start><end>135</end><total>9</total></extent></part></relatedItem><identifier type="istex">C30B9CB0494E1C5C5C87FFCD312C747A2DFE9DC8</identifier><identifier type="DOI">10.1002/gps.1039</identifier><identifier type="ArticleID">GPS1039</identifier><accessCondition type="use and reproduction" contentType="copyright">Copyright © 2004 John Wiley & Sons, Ltd.</accessCondition><recordInfo><recordContentSource>WILEY</recordContentSource><recordOrigin>John Wiley & Sons, Ltd.</recordOrigin></recordInfo></mods></metadata><serie></serie></istex></record>Pour manipuler ce document sous Unix (Dilib)
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