Palliative care and Parkinson's disease: Meeting summary and recommendations for clinical research.
Identifieur interne : 000029 ( PubMed/Corpus ); précédent : 000028; suivant : 000030Palliative care and Parkinson's disease: Meeting summary and recommendations for clinical research.
Auteurs : Benzi M. Kluger ; Siobhán Fox ; Suzanne Timmons ; Maya Katz ; Nicholas B. Galifianakis ; Indu Subramanian ; Julie H. Carter ; Miriam J. Johnson ; Edward W. Richfield ; David Bekelman ; Jean S. Kutner ; Janis MiyasakiSource :
- Parkinsonism & related disorders [ 1873-5126 ] ; 2017.
Abstract
Palliative care is an approach to caring for patients and families affected by serious illnesses that focuses on the relief of suffering through the management of medical symptoms, psychosocial issues, advance care planning and spiritual wellbeing. Over the past decade there has been an emerging clinical and research interest in the application of palliative care approaches to Parkinson's disease (PD) and outpatient palliative care services are now offered by several movement disorders centers.
DOI: 10.1016/j.parkreldis.2017.01.008
PubMed: 28108265
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Electronic address: benzi.kluger@ucdenver.edu.</nlm:affiliation></affiliation></author><author><name sortKey="Fox, Siobhan" sort="Fox, Siobhan" uniqKey="Fox S" first="Siobhán" last="Fox">Siobhán Fox</name><affiliation><nlm:affiliation>Centre for Gerontology and Rehabilitation, School of Medicine, University College Cork, The Bungalow, Block 13, St. Finbarr's Hospital, Douglas Road, Cork, Republic of Ireland.</nlm:affiliation></affiliation></author><author><name sortKey="Timmons, Suzanne" sort="Timmons, Suzanne" uniqKey="Timmons S" first="Suzanne" last="Timmons">Suzanne Timmons</name><affiliation><nlm:affiliation>Centre for Gerontology and Rehabilitation, School of Medicine, University College Cork, The Bungalow, Block 13, St. Finbarr's Hospital, Douglas Road, Cork, Republic of Ireland.</nlm:affiliation></affiliation></author><author><name sortKey="Katz, Maya" sort="Katz, Maya" uniqKey="Katz M" first="Maya" last="Katz">Maya Katz</name><affiliation><nlm:affiliation>Department of Neurology, University of California San Francisco, 4150 Clement St. #219G, San Francisco, CA 94143, USA.</nlm:affiliation></affiliation></author><author><name sortKey="Galifianakis, Nicholas B" sort="Galifianakis, Nicholas B" uniqKey="Galifianakis N" first="Nicholas B" last="Galifianakis">Nicholas B. Galifianakis</name><affiliation><nlm:affiliation>Department of Neurology, University of California San Francisco, 4150 Clement St. #219G, San Francisco, CA 94143, USA.</nlm:affiliation></affiliation></author><author><name sortKey="Subramanian, Indu" sort="Subramanian, Indu" uniqKey="Subramanian I" first="Indu" last="Subramanian">Indu Subramanian</name><affiliation><nlm:affiliation>Department of Neurology, University of California Los Angeles, 300 UCLA Medical Plaza, Suite B200, Los Angeles, CA 90095, USA.</nlm:affiliation></affiliation></author><author><name sortKey="Carter, Julie H" sort="Carter, Julie H" uniqKey="Carter J" first="Julie H" last="Carter">Julie H. Carter</name><affiliation><nlm:affiliation>Department of Neurology, Oregon Health and Science University, 3181 SW Sam Jackson Park Road, L226, Portland, OR 97239, USA.</nlm:affiliation></affiliation></author><author><name sortKey="Johnson, Miriam J" sort="Johnson, Miriam J" uniqKey="Johnson M" first="Miriam J" last="Johnson">Miriam J. Johnson</name><affiliation><nlm:affiliation>Hull York Medical School, University of Hull, Hertford Building, Hull HU6 7RX, UK.</nlm:affiliation></affiliation></author><author><name sortKey="Richfield, Edward W" sort="Richfield, Edward W" uniqKey="Richfield E" first="Edward W" last="Richfield">Edward W. Richfield</name><affiliation><nlm:affiliation>Department of Elderly Medicine, Leeds Teaching Hospitals Trust, UK.</nlm:affiliation></affiliation></author><author><name sortKey="Bekelman, David" sort="Bekelman, David" uniqKey="Bekelman D" first="David" last="Bekelman">David Bekelman</name><affiliation><nlm:affiliation>Department of Internal Medicine, University of Colorado School of Medicine, Anschutz Medical Campus, 12401 East 17th Avenue, Mail Stop B180, Aurora, CO 80045, USA; Department of Medicine, VA Eastern Colorado Health Care System, 1055 Clermont Street, Denver, CO 80220, USA.</nlm:affiliation></affiliation></author><author><name sortKey="Kutner, Jean S" sort="Kutner, Jean S" uniqKey="Kutner J" first="Jean S" last="Kutner">Jean S. Kutner</name><affiliation><nlm:affiliation>Department of Internal Medicine, University of Colorado School of Medicine, Anschutz Medical Campus, 12401 East 17th Avenue, Mail Stop B180, Aurora, CO 80045, USA.</nlm:affiliation></affiliation></author><author><name sortKey="Miyasaki, Janis" sort="Miyasaki, Janis" uniqKey="Miyasaki J" first="Janis" last="Miyasaki">Janis Miyasaki</name><affiliation><nlm:affiliation>Division of Neurology, University of Alberta, 13-103 Clinical Sciences Building, 11350-83 Avenue, Edmonton, Alberta T6G 2R3, Canada.</nlm:affiliation></affiliation></author></titleStmt><publicationStmt><idno type="wicri:source">PubMed</idno><date when="2017">2017</date><idno type="RBID">pubmed:28108265</idno><idno type="pmid">28108265</idno><idno type="doi">10.1016/j.parkreldis.2017.01.008</idno><idno type="wicri:Area/PubMed/Corpus">000029</idno><idno type="wicri:explorRef" wicri:stream="PubMed" wicri:step="Corpus" wicri:corpus="PubMed">000029</idno></publicationStmt><sourceDesc><biblStruct><analytic><title xml:lang="en">Palliative care and Parkinson's disease: Meeting summary and recommendations for clinical research.</title><author><name sortKey="Kluger, Benzi M" sort="Kluger, Benzi M" uniqKey="Kluger B" first="Benzi M" last="Kluger">Benzi M. Kluger</name><affiliation><nlm:affiliation>Department of Neurology, University of Colorado School of Medicine, Anschutz Medical Campus, 12631 E 17th Ave, Mail Stop B185, Aurora, CO 80045, USA. Electronic address: benzi.kluger@ucdenver.edu.</nlm:affiliation></affiliation></author><author><name sortKey="Fox, Siobhan" sort="Fox, Siobhan" uniqKey="Fox S" first="Siobhán" last="Fox">Siobhán Fox</name><affiliation><nlm:affiliation>Centre for Gerontology and Rehabilitation, School of Medicine, University College Cork, The Bungalow, Block 13, St. Finbarr's Hospital, Douglas Road, Cork, Republic of Ireland.</nlm:affiliation></affiliation></author><author><name sortKey="Timmons, Suzanne" sort="Timmons, Suzanne" uniqKey="Timmons S" first="Suzanne" last="Timmons">Suzanne Timmons</name><affiliation><nlm:affiliation>Centre for Gerontology and Rehabilitation, School of Medicine, University College Cork, The Bungalow, Block 13, St. Finbarr's Hospital, Douglas Road, Cork, Republic of Ireland.</nlm:affiliation></affiliation></author><author><name sortKey="Katz, Maya" sort="Katz, Maya" uniqKey="Katz M" first="Maya" last="Katz">Maya Katz</name><affiliation><nlm:affiliation>Department of Neurology, University of California San Francisco, 4150 Clement St. #219G, San Francisco, CA 94143, USA.</nlm:affiliation></affiliation></author><author><name sortKey="Galifianakis, Nicholas B" sort="Galifianakis, Nicholas B" uniqKey="Galifianakis N" first="Nicholas B" last="Galifianakis">Nicholas B. Galifianakis</name><affiliation><nlm:affiliation>Department of Neurology, University of California San Francisco, 4150 Clement St. #219G, San Francisco, CA 94143, USA.</nlm:affiliation></affiliation></author><author><name sortKey="Subramanian, Indu" sort="Subramanian, Indu" uniqKey="Subramanian I" first="Indu" last="Subramanian">Indu Subramanian</name><affiliation><nlm:affiliation>Department of Neurology, University of California Los Angeles, 300 UCLA Medical Plaza, Suite B200, Los Angeles, CA 90095, USA.</nlm:affiliation></affiliation></author><author><name sortKey="Carter, Julie H" sort="Carter, Julie H" uniqKey="Carter J" first="Julie H" last="Carter">Julie H. Carter</name><affiliation><nlm:affiliation>Department of Neurology, Oregon Health and Science University, 3181 SW Sam Jackson Park Road, L226, Portland, OR 97239, USA.</nlm:affiliation></affiliation></author><author><name sortKey="Johnson, Miriam J" sort="Johnson, Miriam J" uniqKey="Johnson M" first="Miriam J" last="Johnson">Miriam J. Johnson</name><affiliation><nlm:affiliation>Hull York Medical School, University of Hull, Hertford Building, Hull HU6 7RX, UK.</nlm:affiliation></affiliation></author><author><name sortKey="Richfield, Edward W" sort="Richfield, Edward W" uniqKey="Richfield E" first="Edward W" last="Richfield">Edward W. Richfield</name><affiliation><nlm:affiliation>Department of Elderly Medicine, Leeds Teaching Hospitals Trust, UK.</nlm:affiliation></affiliation></author><author><name sortKey="Bekelman, David" sort="Bekelman, David" uniqKey="Bekelman D" first="David" last="Bekelman">David Bekelman</name><affiliation><nlm:affiliation>Department of Internal Medicine, University of Colorado School of Medicine, Anschutz Medical Campus, 12401 East 17th Avenue, Mail Stop B180, Aurora, CO 80045, USA; Department of Medicine, VA Eastern Colorado Health Care System, 1055 Clermont Street, Denver, CO 80220, USA.</nlm:affiliation></affiliation></author><author><name sortKey="Kutner, Jean S" sort="Kutner, Jean S" uniqKey="Kutner J" first="Jean S" last="Kutner">Jean S. Kutner</name><affiliation><nlm:affiliation>Department of Internal Medicine, University of Colorado School of Medicine, Anschutz Medical Campus, 12401 East 17th Avenue, Mail Stop B180, Aurora, CO 80045, USA.</nlm:affiliation></affiliation></author><author><name sortKey="Miyasaki, Janis" sort="Miyasaki, Janis" uniqKey="Miyasaki J" first="Janis" last="Miyasaki">Janis Miyasaki</name><affiliation><nlm:affiliation>Division of Neurology, University of Alberta, 13-103 Clinical Sciences Building, 11350-83 Avenue, Edmonton, Alberta T6G 2R3, Canada.</nlm:affiliation></affiliation></author></analytic><series><title level="j">Parkinsonism & related disorders</title><idno type="eISSN">1873-5126</idno><imprint><date when="2017" type="published">2017</date></imprint></series></biblStruct></sourceDesc></fileDesc><profileDesc><textClass></textClass></profileDesc></teiHeader><front><div type="abstract" xml:lang="en">Palliative care is an approach to caring for patients and families affected by serious illnesses that focuses on the relief of suffering through the management of medical symptoms, psychosocial issues, advance care planning and spiritual wellbeing. Over the past decade there has been an emerging clinical and research interest in the application of palliative care approaches to Parkinson's disease (PD) and outpatient palliative care services are now offered by several movement disorders centers.</div></front></TEI><pubmed><MedlineCitation Status="In-Process" Owner="NLM"><PMID Version="1">28108265</PMID><DateCreated><Year>2017</Year><Month>01</Month><Day>21</Day></DateCreated><DateRevised><Year>2017</Year><Month>03</Month><Day>25</Day></DateRevised><Article PubModel="Print-Electronic"><Journal><ISSN IssnType="Electronic">1873-5126</ISSN><JournalIssue CitedMedium="Internet"><Volume>37</Volume><PubDate><Year>2017</Year><Month>Apr</Month></PubDate></JournalIssue><Title>Parkinsonism & related disorders</Title><ISOAbbreviation>Parkinsonism Relat. Disord.</ISOAbbreviation></Journal><ArticleTitle>Palliative care and Parkinson's disease: Meeting summary and recommendations for clinical research.</ArticleTitle><Pagination><MedlinePgn>19-26</MedlinePgn></Pagination><ELocationID EIdType="pii" ValidYN="Y">S1353-8020(17)30008-1</ELocationID><ELocationID EIdType="doi" ValidYN="Y">10.1016/j.parkreldis.2017.01.008</ELocationID><Abstract><AbstractText Label="INTRODUCTION" NlmCategory="BACKGROUND">Palliative care is an approach to caring for patients and families affected by serious illnesses that focuses on the relief of suffering through the management of medical symptoms, psychosocial issues, advance care planning and spiritual wellbeing. Over the past decade there has been an emerging clinical and research interest in the application of palliative care approaches to Parkinson's disease (PD) and outpatient palliative care services are now offered by several movement disorders centers.</AbstractText><AbstractText Label="METHODS" NlmCategory="METHODS">An International Working Group Meeting on PD and Palliative Care supported by the Parkinson's Disease Foundation was held in October 2015 to review the current state of the evidence and to make recommendations for clinical research and practice.</AbstractText><AbstractText Label="RESULTS" NlmCategory="RESULTS">Topics included: 1) Defining palliative care for PD; 2) Lessons from palliative care for heart failure and other chronic illnesses; 3) Patient and caregiver Needs; 4) Needs assessment tools; 5) Intervention strategies; 6) Predicting prognosis and hospice referrals; 7) Choice of appropriate outcome measures; 8) Implementation, dissemination and education research; and 9) Need for research collaborations. We provide an overview of these discussions, summarize current evidence and practices, highlight gaps in our knowledge and make recommendations for future research.</AbstractText><AbstractText Label="CONCLUSIONS" NlmCategory="CONCLUSIONS">Palliative Care for PD is a rapidly growing area which holds great promise for improving outcomes for PD patients and their caregivers. While clinical research in this area can build from lessons learned in other diseases, there is a need for observational, methodological and interventional research to address the unique needs of PD patients and caregivers.</AbstractText><CopyrightInformation>Copyright © 2017 Elsevier Ltd. All rights reserved.</CopyrightInformation></Abstract><AuthorList CompleteYN="Y"><Author ValidYN="Y"><LastName>Kluger</LastName><ForeName>Benzi M</ForeName><Initials>BM</Initials><AffiliationInfo><Affiliation>Department of Neurology, University of Colorado School of Medicine, Anschutz Medical Campus, 12631 E 17th Ave, Mail Stop B185, Aurora, CO 80045, USA. Electronic address: benzi.kluger@ucdenver.edu.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Fox</LastName><ForeName>Siobhán</ForeName><Initials>S</Initials><AffiliationInfo><Affiliation>Centre for Gerontology and Rehabilitation, School of Medicine, University College Cork, The Bungalow, Block 13, St. Finbarr's Hospital, Douglas Road, Cork, Republic of Ireland.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Timmons</LastName><ForeName>Suzanne</ForeName><Initials>S</Initials><AffiliationInfo><Affiliation>Centre for Gerontology and Rehabilitation, School of Medicine, University College Cork, The Bungalow, Block 13, St. Finbarr's Hospital, Douglas Road, Cork, Republic of Ireland.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Katz</LastName><ForeName>Maya</ForeName><Initials>M</Initials><AffiliationInfo><Affiliation>Department of Neurology, University of California San Francisco, 4150 Clement St. #219G, San Francisco, CA 94143, USA.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Galifianakis</LastName><ForeName>Nicholas B</ForeName><Initials>NB</Initials><AffiliationInfo><Affiliation>Department of Neurology, University of California San Francisco, 4150 Clement St. #219G, San Francisco, CA 94143, USA.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Subramanian</LastName><ForeName>Indu</ForeName><Initials>I</Initials><AffiliationInfo><Affiliation>Department of Neurology, University of California Los Angeles, 300 UCLA Medical Plaza, Suite B200, Los Angeles, CA 90095, USA.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Carter</LastName><ForeName>Julie H</ForeName><Initials>JH</Initials><AffiliationInfo><Affiliation>Department of Neurology, Oregon Health and Science University, 3181 SW Sam Jackson Park Road, L226, Portland, OR 97239, USA.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Johnson</LastName><ForeName>Miriam J</ForeName><Initials>MJ</Initials><AffiliationInfo><Affiliation>Hull York Medical School, University of Hull, Hertford Building, Hull HU6 7RX, UK.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Richfield</LastName><ForeName>Edward W</ForeName><Initials>EW</Initials><AffiliationInfo><Affiliation>Department of Elderly Medicine, Leeds Teaching Hospitals Trust, UK.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Bekelman</LastName><ForeName>David</ForeName><Initials>D</Initials><AffiliationInfo><Affiliation>Department of Internal Medicine, University of Colorado School of Medicine, Anschutz Medical Campus, 12401 East 17th Avenue, Mail Stop B180, Aurora, CO 80045, USA; Department of Medicine, VA Eastern Colorado Health Care System, 1055 Clermont Street, Denver, CO 80220, USA.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Kutner</LastName><ForeName>Jean S</ForeName><Initials>JS</Initials><AffiliationInfo><Affiliation>Department of Internal Medicine, University of Colorado School of Medicine, Anschutz Medical Campus, 12401 East 17th Avenue, Mail Stop B180, Aurora, CO 80045, USA.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Miyasaki</LastName><ForeName>Janis</ForeName><Initials>J</Initials><AffiliationInfo><Affiliation>Division of Neurology, University of Alberta, 13-103 Clinical Sciences Building, 11350-83 Avenue, Edmonton, Alberta T6G 2R3, Canada.</Affiliation></AffiliationInfo></Author></AuthorList><Language>eng</Language><PublicationTypeList><PublicationType UI="D016428">Journal Article</PublicationType><PublicationType UI="D016454">Review</PublicationType></PublicationTypeList><ArticleDate DateType="Electronic"><Year>2017</Year><Month>01</Month><Day>11</Day></ArticleDate></Article><MedlineJournalInfo><Country>England</Country><MedlineTA>Parkinsonism Relat Disord</MedlineTA><NlmUniqueID>9513583</NlmUniqueID><ISSNLinking>1353-8020</ISSNLinking></MedlineJournalInfo><KeywordList Owner="NOTNLM"><Keyword MajorTopicYN="N">Clinical research</Keyword><Keyword MajorTopicYN="N">Palliative care</Keyword><Keyword MajorTopicYN="N">Parkinson's disease</Keyword></KeywordList></MedlineCitation><PubmedData><History><PubMedPubDate PubStatus="received"><Year>2016</Year><Month>04</Month><Day>21</Day></PubMedPubDate><PubMedPubDate PubStatus="revised"><Year>2016</Year><Month>12</Month><Day>01</Day></PubMedPubDate><PubMedPubDate PubStatus="accepted"><Year>2017</Year><Month>01</Month><Day>10</Day></PubMedPubDate><PubMedPubDate PubStatus="pubmed"><Year>2017</Year><Month>1</Month><Day>22</Day><Hour>6</Hour><Minute>0</Minute></PubMedPubDate><PubMedPubDate PubStatus="medline"><Year>2017</Year><Month>1</Month><Day>22</Day><Hour>6</Hour><Minute>0</Minute></PubMedPubDate><PubMedPubDate PubStatus="entrez"><Year>2017</Year><Month>1</Month><Day>22</Day><Hour>6</Hour><Minute>0</Minute></PubMedPubDate></History><PublicationStatus>ppublish</PublicationStatus><ArticleIdList><ArticleId IdType="pubmed">28108265</ArticleId><ArticleId IdType="pii">S1353-8020(17)30008-1</ArticleId><ArticleId IdType="doi">10.1016/j.parkreldis.2017.01.008</ArticleId></ArticleIdList></PubmedData></pubmed></record>Pour manipuler ce document sous Unix (Dilib)
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