Michael J. Fox Foundation Consortium: Geographical Differences in Returning Genetic Research Data to Study Participants
Identifieur interne : 000914 ( Pmc/Corpus ); précédent : 000913; suivant : 000915Michael J. Fox Foundation Consortium: Geographical Differences in Returning Genetic Research Data to Study Participants
Auteurs : Roy N. Alcalay ; Jan Aasly ; Daniela Berg ; Susan Bressman ; Alexis Brice ; Kathrin Brockmann ; Piu Chan ; Lorraine Clark ; Jean-Christophe Corvol ; Alexandra Durr ; Matthew Farrer ; Tatiana M. Foroud ; Thomas Gasser ; Nir Giladi ; Cheryl Halter ; Fayçal Hentati ; Anthony Lang ; J. William Langston ; Karen Marder ; Connie Marras ; Jose-Felix Marti-Masso ; Javier Ruiz Martinez ; Helen Mejia-Santana ; Anat Mirelman ; Claustre Pont ; Avi Orr-Urtreger ; Deborah Raymond ; Rachel Saunders-Pullman ; Birgitt Schüle ; Caroline Tanner ; Eduardo Tolosa ; Dolores Vilas ; Adina Wise ; Maurizio FacherisSource :
- Genetics in medicine : official journal of the American College of Medical Genetics [ 1098-3600 ] ; 2014.
Url:
DOI: 10.1038/gim.2014.55
PubMed: 25093570
PubMed Central: 4682659
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PMC:4682659Le document en format XML
<record><TEI><teiHeader><fileDesc><titleStmt><title xml:lang="en">Michael J. Fox Foundation Consortium: Geographical Differences in Returning Genetic Research Data to Study Participants</title><author><name sortKey="Alcalay, Roy N" sort="Alcalay, Roy N" uniqKey="Alcalay R" first="Roy N." last="Alcalay">Roy N. Alcalay</name><affiliation><nlm:aff id="A1">Department of Neurology, College of Physicians and Surgeons, Columbia University, New York, NY, USA</nlm:aff></affiliation></author><author><name sortKey="Aasly, Jan" sort="Aasly, Jan" uniqKey="Aasly J" first="Jan" last="Aasly">Jan Aasly</name><affiliation><nlm:aff id="A2">Department of Neurology, St Olavs University Hospital, Trondheim, Norway</nlm:aff></affiliation></author><author><name sortKey="Berg, Daniela" sort="Berg, Daniela" uniqKey="Berg D" first="Daniela" last="Berg">Daniela Berg</name><affiliation><nlm:aff id="A3">Department of Neurodegeneration, Hertie Institute for Clinical Brain Research, University of Tuebingen, Tuebingen, Germany</nlm:aff></affiliation></author><author><name sortKey="Bressman, Susan" sort="Bressman, Susan" uniqKey="Bressman S" first="Susan" last="Bressman">Susan Bressman</name><affiliation><nlm:aff id="A4">Department of Neurology, Albert Einstein College of Medicine, Bronx, New York, USA</nlm:aff></affiliation></author><author><name sortKey="Brice, Alexis" sort="Brice, Alexis" uniqKey="Brice A" first="Alexis" last="Brice">Alexis Brice</name><affiliation><nlm:aff id="A5">Centre de Recherche de l’Institut du Cerveau et de la Moelle épinière, INSERM U1127, CNRS UMR7225; UPMC Univ Paris VI UMR_S975, 75013 Paris, France</nlm:aff></affiliation></author><author><name sortKey="Brockmann, Kathrin" sort="Brockmann, Kathrin" uniqKey="Brockmann K" first="Kathrin" last="Brockmann">Kathrin Brockmann</name><affiliation><nlm:aff id="A4">Department of Neurology, Albert Einstein College of Medicine, Bronx, New York, USA</nlm:aff></affiliation></author><author><name sortKey="Chan, Piu" sort="Chan, Piu" uniqKey="Chan P" first="Piu" last="Chan">Piu Chan</name><affiliation><nlm:aff id="A6">Department of Neurology and Neurobiology Xuanwu Hospital Capital Medical University, Beijing, China</nlm:aff></affiliation></author><author><name sortKey="Clark, Lorraine" sort="Clark, Lorraine" uniqKey="Clark L" first="Lorraine" last="Clark">Lorraine Clark</name><affiliation><nlm:aff id="A1">Department of Neurology, College of Physicians and Surgeons, Columbia University, New York, NY, USA</nlm:aff></affiliation></author><author><name sortKey="Corvol, Jean Christophe" sort="Corvol, Jean Christophe" uniqKey="Corvol J" first="Jean-Christophe" last="Corvol">Jean-Christophe Corvol</name><affiliation><nlm:aff id="A5">Centre de Recherche de l’Institut du Cerveau et de la Moelle épinière, INSERM U1127, CNRS UMR7225; UPMC Univ Paris VI UMR_S975, 75013 Paris, France</nlm:aff></affiliation></author><author><name sortKey="Durr, Alexandra" sort="Durr, Alexandra" uniqKey="Durr A" first="Alexandra" last="Durr">Alexandra Durr</name><affiliation><nlm:aff id="A5">Centre de Recherche de l’Institut du Cerveau et de la Moelle épinière, INSERM U1127, CNRS UMR7225; UPMC Univ Paris VI UMR_S975, 75013 Paris, France</nlm:aff></affiliation></author><author><name sortKey="Farrer, Matthew" sort="Farrer, Matthew" uniqKey="Farrer M" first="Matthew" last="Farrer">Matthew Farrer</name><affiliation><nlm:aff id="A8">Department of Medical Genetics, University of British Columbia, Vancouver, BC, Canada</nlm:aff></affiliation></author><author><name sortKey="Foroud, Tatiana M" sort="Foroud, Tatiana M" uniqKey="Foroud T" first="Tatiana M." last="Foroud">Tatiana M. Foroud</name><affiliation><nlm:aff id="A9">Department of Medical and Molecular Genetics, Indiana University, Indianapolis, USA</nlm:aff></affiliation></author><author><name sortKey="Gasser, Thomas" sort="Gasser, Thomas" uniqKey="Gasser T" first="Thomas" last="Gasser">Thomas Gasser</name><affiliation><nlm:aff id="A3">Department of Neurodegeneration, Hertie Institute for Clinical Brain Research, University of Tuebingen, Tuebingen, Germany</nlm:aff></affiliation></author><author><name sortKey="Giladi, Nir" sort="Giladi, Nir" uniqKey="Giladi N" first="Nir" last="Giladi">Nir Giladi</name><affiliation><nlm:aff id="A10">Dept. of Neurology, Tel Aviv Medical Center, Israel</nlm:aff></affiliation></author><author><name sortKey="Halter, Cheryl" sort="Halter, Cheryl" uniqKey="Halter C" first="Cheryl" last="Halter">Cheryl Halter</name><affiliation><nlm:aff id="A9">Department of Medical and Molecular Genetics, Indiana University, Indianapolis, USA</nlm:aff></affiliation></author><author><name sortKey="Hentati, Faycal" sort="Hentati, Faycal" uniqKey="Hentati F" first="Fayçal" last="Hentati">Fayçal Hentati</name><affiliation><nlm:aff id="A11">Department of Neurology and Neurobiology Laboratory, National Institute of Neurology</nlm:aff></affiliation></author><author><name sortKey="Lang, Anthony" sort="Lang, Anthony" uniqKey="Lang A" first="Anthony" last="Lang">Anthony Lang</name><affiliation><nlm:aff id="A12">Morton and Gloria Shulman Movement Disorders Centre and the Edmund J. Safra Program in Parkinson’s Disease, Toronto Western Hospital, Toronto, Ontario, Canada</nlm:aff></affiliation></author><author><name sortKey="Langston, J William" sort="Langston, J William" uniqKey="Langston J" first="J. William" last="Langston">J. William Langston</name><affiliation><nlm:aff id="A17">The Parkinsons Institute and Clinical Center, SUNNYVALE, California, UNITED STATES</nlm:aff></affiliation></author><author><name sortKey="Marder, Karen" sort="Marder, Karen" uniqKey="Marder K" first="Karen" last="Marder">Karen Marder</name><affiliation><nlm:aff id="A1">Department of Neurology, College of Physicians and Surgeons, Columbia University, New York, NY, USA</nlm:aff></affiliation></author><author><name sortKey="Marras, Connie" sort="Marras, Connie" uniqKey="Marras C" first="Connie" last="Marras">Connie Marras</name><affiliation><nlm:aff id="A12">Morton and Gloria Shulman Movement Disorders Centre and the Edmund J. Safra Program in Parkinson’s Disease, Toronto Western Hospital, Toronto, Ontario, Canada</nlm:aff></affiliation></author><author><name sortKey="Marti Masso, Jose Felix" sort="Marti Masso, Jose Felix" uniqKey="Marti Masso J" first="Jose-Felix" last="Marti-Masso">Jose-Felix Marti-Masso</name><affiliation><nlm:aff id="A13">Hospital Donastia, San Sebastian, Spain</nlm:aff></affiliation></author><author><name sortKey="Martinez, Javier Ruiz" sort="Martinez, Javier Ruiz" uniqKey="Martinez J" first="Javier Ruiz" last="Martinez">Javier Ruiz Martinez</name><affiliation><nlm:aff id="A13">Hospital Donastia, San Sebastian, Spain</nlm:aff></affiliation></author><author><name sortKey="Mejia Santana, Helen" sort="Mejia Santana, Helen" uniqKey="Mejia Santana H" first="Helen" last="Mejia-Santana">Helen Mejia-Santana</name><affiliation><nlm:aff id="A1">Department of Neurology, College of Physicians and Surgeons, Columbia University, New York, NY, USA</nlm:aff></affiliation></author><author><name sortKey="Mirelman, Anat" sort="Mirelman, Anat" uniqKey="Mirelman A" first="Anat" last="Mirelman">Anat Mirelman</name><affiliation><nlm:aff id="A14">Department of Neurology, Tel Aviv Sourasky Medical Center, Israel</nlm:aff></affiliation></author><author><name sortKey="Pont, Claustre" sort="Pont, Claustre" uniqKey="Pont C" first="Claustre" last="Pont">Claustre Pont</name><affiliation><nlm:aff id="A5">Centre de Recherche de l’Institut du Cerveau et de la Moelle épinière, INSERM U1127, CNRS UMR7225; UPMC Univ Paris VI UMR_S975, 75013 Paris, France</nlm:aff></affiliation></author><author><name sortKey="Orr Urtreger, Avi" sort="Orr Urtreger, Avi" uniqKey="Orr Urtreger A" first="Avi" last="Orr-Urtreger">Avi Orr-Urtreger</name><affiliation><nlm:aff id="A15">Genetic Institute, Tel Aviv Sourasky Medical Center, Israel</nlm:aff></affiliation></author><author><name sortKey="Raymond, Deborah" sort="Raymond, Deborah" uniqKey="Raymond D" first="Deborah" last="Raymond">Deborah Raymond</name><affiliation><nlm:aff id="A16">The Beth Israel Medical Center Movement Disorders Group, New York, NY, USA</nlm:aff></affiliation></author><author><name sortKey="Saunders Pullman, Rachel" sort="Saunders Pullman, Rachel" uniqKey="Saunders Pullman R" first="Rachel" last="Saunders-Pullman">Rachel Saunders-Pullman</name><affiliation><nlm:aff id="A4">Department of Neurology, Albert Einstein College of Medicine, Bronx, New York, USA</nlm:aff></affiliation></author><author><name sortKey="Schule, Birgitt" sort="Schule, Birgitt" uniqKey="Schule B" first="Birgitt" last="Schüle">Birgitt Schüle</name><affiliation><nlm:aff id="A17">The Parkinsons Institute and Clinical Center, SUNNYVALE, California, UNITED STATES</nlm:aff></affiliation></author><author><name sortKey="Tanner, Caroline" sort="Tanner, Caroline" uniqKey="Tanner C" first="Caroline" last="Tanner">Caroline Tanner</name><affiliation><nlm:aff id="A17">The Parkinsons Institute and Clinical Center, SUNNYVALE, California, UNITED STATES</nlm:aff></affiliation></author><author><name sortKey="Tolosa, Eduardo" sort="Tolosa, Eduardo" uniqKey="Tolosa E" first="Eduardo" last="Tolosa">Eduardo Tolosa</name><affiliation><nlm:aff id="A18">Neurology Service, Hospital Clínic de Barcelona, Institut d’Investigacións Biomédiques August Pi I Sunyer (IDIBAPS), Barcelona, Spain</nlm:aff></affiliation></author><author><name sortKey="Vilas, Dolores" sort="Vilas, Dolores" uniqKey="Vilas D" first="Dolores" last="Vilas">Dolores Vilas</name><affiliation><nlm:aff id="A18">Neurology Service, Hospital Clínic de Barcelona, Institut d’Investigacións Biomédiques August Pi I Sunyer (IDIBAPS), Barcelona, Spain</nlm:aff></affiliation></author><author><name sortKey="Wise, Adina" sort="Wise, Adina" uniqKey="Wise A" first="Adina" last="Wise">Adina Wise</name><affiliation><nlm:aff id="A1">Department of Neurology, College of Physicians and Surgeons, Columbia University, New York, NY, USA</nlm:aff></affiliation></author><author><name sortKey="Facheris, Maurizio" sort="Facheris, Maurizio" uniqKey="Facheris M" first="Maurizio" last="Facheris">Maurizio Facheris</name><affiliation><nlm:aff id="A19">The Michael J Fox Foundation for Parkinson’s Research</nlm:aff></affiliation></author></titleStmt><publicationStmt><idno type="wicri:source">PMC</idno><idno type="pmid">25093570</idno><idno type="pmc">4682659</idno><idno type="url">http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4682659</idno><idno type="RBID">PMC:4682659</idno><idno type="doi">10.1038/gim.2014.55</idno><date when="2014">2014</date><idno type="wicri:Area/Pmc/Corpus">000914</idno><idno type="wicri:explorRef" wicri:stream="Pmc" wicri:step="Corpus" wicri:corpus="PMC">000914</idno></publicationStmt><sourceDesc><biblStruct><analytic><title xml:lang="en" level="a" type="main">Michael J. Fox Foundation Consortium: Geographical Differences in Returning Genetic Research Data to Study Participants</title><author><name sortKey="Alcalay, Roy N" sort="Alcalay, Roy N" uniqKey="Alcalay R" first="Roy N." last="Alcalay">Roy N. Alcalay</name><affiliation><nlm:aff id="A1">Department of Neurology, College of Physicians and Surgeons, Columbia University, New York, NY, USA</nlm:aff></affiliation></author><author><name sortKey="Aasly, Jan" sort="Aasly, Jan" uniqKey="Aasly J" first="Jan" last="Aasly">Jan Aasly</name><affiliation><nlm:aff id="A2">Department of Neurology, St Olavs University Hospital, Trondheim, Norway</nlm:aff></affiliation></author><author><name sortKey="Berg, Daniela" sort="Berg, Daniela" uniqKey="Berg D" first="Daniela" last="Berg">Daniela Berg</name><affiliation><nlm:aff id="A3">Department of Neurodegeneration, Hertie Institute for Clinical Brain Research, University of Tuebingen, Tuebingen, Germany</nlm:aff></affiliation></author><author><name sortKey="Bressman, Susan" sort="Bressman, Susan" uniqKey="Bressman S" first="Susan" last="Bressman">Susan Bressman</name><affiliation><nlm:aff id="A4">Department of Neurology, Albert Einstein College of Medicine, Bronx, New York, USA</nlm:aff></affiliation></author><author><name sortKey="Brice, Alexis" sort="Brice, Alexis" uniqKey="Brice A" first="Alexis" last="Brice">Alexis Brice</name><affiliation><nlm:aff id="A5">Centre de Recherche de l’Institut du Cerveau et de la Moelle épinière, INSERM U1127, CNRS UMR7225; UPMC Univ Paris VI UMR_S975, 75013 Paris, France</nlm:aff></affiliation></author><author><name sortKey="Brockmann, Kathrin" sort="Brockmann, Kathrin" uniqKey="Brockmann K" first="Kathrin" last="Brockmann">Kathrin Brockmann</name><affiliation><nlm:aff id="A4">Department of Neurology, Albert Einstein College of Medicine, Bronx, New York, USA</nlm:aff></affiliation></author><author><name sortKey="Chan, Piu" sort="Chan, Piu" uniqKey="Chan P" first="Piu" last="Chan">Piu Chan</name><affiliation><nlm:aff id="A6">Department of Neurology and Neurobiology Xuanwu Hospital Capital Medical University, Beijing, China</nlm:aff></affiliation></author><author><name sortKey="Clark, Lorraine" sort="Clark, Lorraine" uniqKey="Clark L" first="Lorraine" last="Clark">Lorraine Clark</name><affiliation><nlm:aff id="A1">Department of Neurology, College of Physicians and Surgeons, Columbia University, New York, NY, USA</nlm:aff></affiliation></author><author><name sortKey="Corvol, Jean Christophe" sort="Corvol, Jean Christophe" uniqKey="Corvol J" first="Jean-Christophe" last="Corvol">Jean-Christophe Corvol</name><affiliation><nlm:aff id="A5">Centre de Recherche de l’Institut du Cerveau et de la Moelle épinière, INSERM U1127, CNRS UMR7225; UPMC Univ Paris VI UMR_S975, 75013 Paris, France</nlm:aff></affiliation></author><author><name sortKey="Durr, Alexandra" sort="Durr, Alexandra" uniqKey="Durr A" first="Alexandra" last="Durr">Alexandra Durr</name><affiliation><nlm:aff id="A5">Centre de Recherche de l’Institut du Cerveau et de la Moelle épinière, INSERM U1127, CNRS UMR7225; UPMC Univ Paris VI UMR_S975, 75013 Paris, France</nlm:aff></affiliation></author><author><name sortKey="Farrer, Matthew" sort="Farrer, Matthew" uniqKey="Farrer M" first="Matthew" last="Farrer">Matthew Farrer</name><affiliation><nlm:aff id="A8">Department of Medical Genetics, University of British Columbia, Vancouver, BC, Canada</nlm:aff></affiliation></author><author><name sortKey="Foroud, Tatiana M" sort="Foroud, Tatiana M" uniqKey="Foroud T" first="Tatiana M." last="Foroud">Tatiana M. Foroud</name><affiliation><nlm:aff id="A9">Department of Medical and Molecular Genetics, Indiana University, Indianapolis, USA</nlm:aff></affiliation></author><author><name sortKey="Gasser, Thomas" sort="Gasser, Thomas" uniqKey="Gasser T" first="Thomas" last="Gasser">Thomas Gasser</name><affiliation><nlm:aff id="A3">Department of Neurodegeneration, Hertie Institute for Clinical Brain Research, University of Tuebingen, Tuebingen, Germany</nlm:aff></affiliation></author><author><name sortKey="Giladi, Nir" sort="Giladi, Nir" uniqKey="Giladi N" first="Nir" last="Giladi">Nir Giladi</name><affiliation><nlm:aff id="A10">Dept. of Neurology, Tel Aviv Medical Center, Israel</nlm:aff></affiliation></author><author><name sortKey="Halter, Cheryl" sort="Halter, Cheryl" uniqKey="Halter C" first="Cheryl" last="Halter">Cheryl Halter</name><affiliation><nlm:aff id="A9">Department of Medical and Molecular Genetics, Indiana University, Indianapolis, USA</nlm:aff></affiliation></author><author><name sortKey="Hentati, Faycal" sort="Hentati, Faycal" uniqKey="Hentati F" first="Fayçal" last="Hentati">Fayçal Hentati</name><affiliation><nlm:aff id="A11">Department of Neurology and Neurobiology Laboratory, National Institute of Neurology</nlm:aff></affiliation></author><author><name sortKey="Lang, Anthony" sort="Lang, Anthony" uniqKey="Lang A" first="Anthony" last="Lang">Anthony Lang</name><affiliation><nlm:aff id="A12">Morton and Gloria Shulman Movement Disorders Centre and the Edmund J. Safra Program in Parkinson’s Disease, Toronto Western Hospital, Toronto, Ontario, Canada</nlm:aff></affiliation></author><author><name sortKey="Langston, J William" sort="Langston, J William" uniqKey="Langston J" first="J. William" last="Langston">J. William Langston</name><affiliation><nlm:aff id="A17">The Parkinsons Institute and Clinical Center, SUNNYVALE, California, UNITED STATES</nlm:aff></affiliation></author><author><name sortKey="Marder, Karen" sort="Marder, Karen" uniqKey="Marder K" first="Karen" last="Marder">Karen Marder</name><affiliation><nlm:aff id="A1">Department of Neurology, College of Physicians and Surgeons, Columbia University, New York, NY, USA</nlm:aff></affiliation></author><author><name sortKey="Marras, Connie" sort="Marras, Connie" uniqKey="Marras C" first="Connie" last="Marras">Connie Marras</name><affiliation><nlm:aff id="A12">Morton and Gloria Shulman Movement Disorders Centre and the Edmund J. Safra Program in Parkinson’s Disease, Toronto Western Hospital, Toronto, Ontario, Canada</nlm:aff></affiliation></author><author><name sortKey="Marti Masso, Jose Felix" sort="Marti Masso, Jose Felix" uniqKey="Marti Masso J" first="Jose-Felix" last="Marti-Masso">Jose-Felix Marti-Masso</name><affiliation><nlm:aff id="A13">Hospital Donastia, San Sebastian, Spain</nlm:aff></affiliation></author><author><name sortKey="Martinez, Javier Ruiz" sort="Martinez, Javier Ruiz" uniqKey="Martinez J" first="Javier Ruiz" last="Martinez">Javier Ruiz Martinez</name><affiliation><nlm:aff id="A13">Hospital Donastia, San Sebastian, Spain</nlm:aff></affiliation></author><author><name sortKey="Mejia Santana, Helen" sort="Mejia Santana, Helen" uniqKey="Mejia Santana H" first="Helen" last="Mejia-Santana">Helen Mejia-Santana</name><affiliation><nlm:aff id="A1">Department of Neurology, College of Physicians and Surgeons, Columbia University, New York, NY, USA</nlm:aff></affiliation></author><author><name sortKey="Mirelman, Anat" sort="Mirelman, Anat" uniqKey="Mirelman A" first="Anat" last="Mirelman">Anat Mirelman</name><affiliation><nlm:aff id="A14">Department of Neurology, Tel Aviv Sourasky Medical Center, Israel</nlm:aff></affiliation></author><author><name sortKey="Pont, Claustre" sort="Pont, Claustre" uniqKey="Pont C" first="Claustre" last="Pont">Claustre Pont</name><affiliation><nlm:aff id="A5">Centre de Recherche de l’Institut du Cerveau et de la Moelle épinière, INSERM U1127, CNRS UMR7225; UPMC Univ Paris VI UMR_S975, 75013 Paris, France</nlm:aff></affiliation></author><author><name sortKey="Orr Urtreger, Avi" sort="Orr Urtreger, Avi" uniqKey="Orr Urtreger A" first="Avi" last="Orr-Urtreger">Avi Orr-Urtreger</name><affiliation><nlm:aff id="A15">Genetic Institute, Tel Aviv Sourasky Medical Center, Israel</nlm:aff></affiliation></author><author><name sortKey="Raymond, Deborah" sort="Raymond, Deborah" uniqKey="Raymond D" first="Deborah" last="Raymond">Deborah Raymond</name><affiliation><nlm:aff id="A16">The Beth Israel Medical Center Movement Disorders Group, New York, NY, USA</nlm:aff></affiliation></author><author><name sortKey="Saunders Pullman, Rachel" sort="Saunders Pullman, Rachel" uniqKey="Saunders Pullman R" first="Rachel" last="Saunders-Pullman">Rachel Saunders-Pullman</name><affiliation><nlm:aff id="A4">Department of Neurology, Albert Einstein College of Medicine, Bronx, New York, USA</nlm:aff></affiliation></author><author><name sortKey="Schule, Birgitt" sort="Schule, Birgitt" uniqKey="Schule B" first="Birgitt" last="Schüle">Birgitt Schüle</name><affiliation><nlm:aff id="A17">The Parkinsons Institute and Clinical Center, SUNNYVALE, California, UNITED STATES</nlm:aff></affiliation></author><author><name sortKey="Tanner, Caroline" sort="Tanner, Caroline" uniqKey="Tanner C" first="Caroline" last="Tanner">Caroline Tanner</name><affiliation><nlm:aff id="A17">The Parkinsons Institute and Clinical Center, SUNNYVALE, California, UNITED STATES</nlm:aff></affiliation></author><author><name sortKey="Tolosa, Eduardo" sort="Tolosa, Eduardo" uniqKey="Tolosa E" first="Eduardo" last="Tolosa">Eduardo Tolosa</name><affiliation><nlm:aff id="A18">Neurology Service, Hospital Clínic de Barcelona, Institut d’Investigacións Biomédiques August Pi I Sunyer (IDIBAPS), Barcelona, Spain</nlm:aff></affiliation></author><author><name sortKey="Vilas, Dolores" sort="Vilas, Dolores" uniqKey="Vilas D" first="Dolores" last="Vilas">Dolores Vilas</name><affiliation><nlm:aff id="A18">Neurology Service, Hospital Clínic de Barcelona, Institut d’Investigacións Biomédiques August Pi I Sunyer (IDIBAPS), Barcelona, Spain</nlm:aff></affiliation></author><author><name sortKey="Wise, Adina" sort="Wise, Adina" uniqKey="Wise A" first="Adina" last="Wise">Adina Wise</name><affiliation><nlm:aff id="A1">Department of Neurology, College of Physicians and Surgeons, Columbia University, New York, NY, USA</nlm:aff></affiliation></author><author><name sortKey="Facheris, Maurizio" sort="Facheris, Maurizio" uniqKey="Facheris M" first="Maurizio" last="Facheris">Maurizio Facheris</name><affiliation><nlm:aff id="A19">The Michael J Fox Foundation for Parkinson’s Research</nlm:aff></affiliation></author></analytic><series><title level="j">Genetics in medicine : official journal of the American College of Medical Genetics</title><idno type="ISSN">1098-3600</idno><idno type="eISSN">1530-0366</idno><imprint><date when="2014">2014</date></imprint></series></biblStruct></sourceDesc></fileDesc><profileDesc><textClass></textClass></profileDesc></teiHeader></TEI><pmc article-type="research-article"><pmc-comment>The publisher of this article does not allow downloading of the full text in XML form.</pmc-comment>
<pmc-dir>properties manuscript</pmc-dir>
<front><journal-meta><journal-id journal-id-type="nlm-journal-id">9815831</journal-id><journal-id journal-id-type="pubmed-jr-id">22061</journal-id><journal-id journal-id-type="nlm-ta">Genet Med</journal-id><journal-id journal-id-type="iso-abbrev">Genet. Med.</journal-id><journal-title-group><journal-title>Genetics in medicine : official journal of the American College of Medical Genetics</journal-title></journal-title-group><issn pub-type="ppub">1098-3600</issn><issn pub-type="epub">1530-0366</issn></journal-meta><article-meta><article-id pub-id-type="pmid">25093570</article-id><article-id pub-id-type="pmc">4682659</article-id><article-id pub-id-type="doi">10.1038/gim.2014.55</article-id><article-id pub-id-type="manuscript">NIHMS743533</article-id><article-categories><subj-group subj-group-type="heading"><subject>Article</subject></subj-group></article-categories><title-group><article-title>Michael J. Fox Foundation Consortium: Geographical Differences in Returning Genetic Research Data to Study Participants</article-title></title-group><contrib-group><contrib contrib-type="author"><name><surname>Alcalay</surname><given-names>Roy N.</given-names></name><degrees>MD, MS</degrees><xref ref-type="aff" rid="A1">1</xref></contrib><contrib contrib-type="author"><name><surname>Aasly</surname><given-names>Jan</given-names></name><degrees>MD</degrees><xref ref-type="aff" rid="A2">2</xref></contrib><contrib contrib-type="author"><name><surname>Berg</surname><given-names>Daniela</given-names></name><degrees>MD</degrees><xref ref-type="aff" rid="A3">3</xref></contrib><contrib contrib-type="author"><name><surname>Bressman</surname><given-names>Susan</given-names></name><degrees>MD</degrees><xref ref-type="aff" rid="A4">4</xref></contrib><contrib contrib-type="author"><name><surname>Brice</surname><given-names>Alexis</given-names></name><degrees>MD</degrees><xref ref-type="aff" rid="A5">5</xref></contrib><contrib contrib-type="author"><name><surname>Brockmann</surname><given-names>Kathrin</given-names></name><degrees>MD</degrees><xref ref-type="aff" rid="A4">4</xref></contrib><contrib contrib-type="author"><name><surname>Chan</surname><given-names>Piu</given-names></name><degrees>MD, PhD</degrees><xref ref-type="aff" rid="A6">6</xref></contrib><contrib contrib-type="author"><name><surname>Clark</surname><given-names>Lorraine</given-names></name><degrees>PhD</degrees><xref ref-type="aff" rid="A1">1</xref></contrib><contrib contrib-type="author"><name><surname>Corvol</surname><given-names>Jean-Christophe</given-names></name><degrees>MD, PhD</degrees><xref ref-type="aff" rid="A5">5</xref></contrib><contrib contrib-type="author"><name><surname>Durr</surname><given-names>Alexandra</given-names></name><degrees>MD, PhD</degrees><xref ref-type="aff" rid="A5">5</xref></contrib><contrib contrib-type="author"><name><surname>Farrer</surname><given-names>Matthew</given-names></name><degrees>PhD</degrees><xref ref-type="aff" rid="A8">8</xref></contrib><contrib contrib-type="author"><name><surname>Foroud</surname><given-names>Tatiana M.</given-names></name><degrees>PhD</degrees><xref ref-type="aff" rid="A9">9</xref></contrib><contrib contrib-type="author"><name><surname>Gasser</surname><given-names>Thomas</given-names></name><degrees>MD</degrees><xref ref-type="aff" rid="A3">3</xref></contrib><contrib contrib-type="author"><name><surname>Giladi</surname><given-names>Nir</given-names></name><degrees>MD</degrees><xref ref-type="aff" rid="A10">10</xref></contrib><contrib contrib-type="author"><name><surname>Halter</surname><given-names>Cheryl</given-names></name><degrees>MS</degrees><xref ref-type="aff" rid="A9">9</xref></contrib><contrib contrib-type="author"><name><surname>Hentati</surname><given-names>Fayçal</given-names></name><degrees>MD</degrees><xref ref-type="aff" rid="A11">11</xref></contrib><contrib contrib-type="author"><name><surname>Lang</surname><given-names>Anthony</given-names></name><degrees>MD, FRCPC</degrees><xref ref-type="aff" rid="A12">12</xref></contrib><contrib contrib-type="author"><name><surname>Langston</surname><given-names>J. William</given-names></name><degrees>MD</degrees><xref ref-type="aff" rid="A17">17</xref></contrib><contrib contrib-type="author"><name><surname>Marder</surname><given-names>Karen</given-names></name><degrees>MD, MPH</degrees><xref ref-type="aff" rid="A1">1</xref></contrib><contrib contrib-type="author"><name><surname>Marras</surname><given-names>Connie</given-names></name><degrees>MD</degrees><xref ref-type="aff" rid="A12">12</xref></contrib><contrib contrib-type="author"><name><surname>Marti-Masso</surname><given-names>Jose-Felix</given-names></name><degrees>MD, PhD</degrees><xref ref-type="aff" rid="A13">13</xref></contrib><contrib contrib-type="author"><name><surname>Martinez</surname><given-names>Javier Ruiz</given-names></name><degrees>PhD</degrees><xref ref-type="aff" rid="A13">13</xref></contrib><contrib contrib-type="author"><name><surname>Mejia-Santana</surname><given-names>Helen</given-names></name><degrees>MS</degrees><xref ref-type="aff" rid="A1">1</xref></contrib><contrib contrib-type="author"><name><surname>Mirelman</surname><given-names>Anat</given-names></name><degrees>PhD</degrees><xref ref-type="aff" rid="A14">14</xref></contrib><contrib contrib-type="author"><name><surname>Pont</surname><given-names>Claustre</given-names></name><degrees>MD</degrees><xref ref-type="aff" rid="A5">5</xref></contrib><contrib contrib-type="author"><name><surname>Orr-Urtreger</surname><given-names>Avi</given-names></name><degrees>MD, PhD</degrees><xref ref-type="aff" rid="A15">15</xref></contrib><contrib contrib-type="author"><name><surname>Raymond</surname><given-names>Deborah</given-names></name><degrees>CGC</degrees><xref ref-type="aff" rid="A16">16</xref></contrib><contrib contrib-type="author"><name><surname>Saunders-Pullman</surname><given-names>Rachel</given-names></name><degrees>MD, MPH</degrees><xref ref-type="aff" rid="A4">4</xref></contrib><contrib contrib-type="author"><name><surname>Schüle</surname><given-names>Birgitt</given-names></name><degrees>MD</degrees><xref ref-type="aff" rid="A17">17</xref></contrib><contrib contrib-type="author"><name><surname>Tanner</surname><given-names>Caroline</given-names></name><degrees>MD, PhD</degrees><xref ref-type="aff" rid="A17">17</xref></contrib><contrib contrib-type="author"><name><surname>Tolosa</surname><given-names>Eduardo</given-names></name><degrees>MD</degrees><xref ref-type="aff" rid="A18">18</xref></contrib><contrib contrib-type="author"><name><surname>Vilas</surname><given-names>Dolores</given-names></name><degrees>MD</degrees><xref ref-type="aff" rid="A18">18</xref></contrib><contrib contrib-type="author"><name><surname>Wise</surname><given-names>Adina</given-names></name><degrees>MA</degrees><xref ref-type="aff" rid="A1">1</xref></contrib><contrib contrib-type="author"><name><surname>Facheris</surname><given-names>Maurizio</given-names></name><degrees>MD, MSc</degrees><xref ref-type="aff" rid="A19">19</xref></contrib></contrib-group><aff id="A1"><label>1</label>Department of Neurology, College of Physicians and Surgeons, Columbia University, New York, NY, USA</aff><aff id="A2"><label>2</label>Department of Neurology, St Olavs University Hospital, Trondheim, Norway</aff><aff id="A3"><label>3</label>Department of Neurodegeneration, Hertie Institute for Clinical Brain Research, University of Tuebingen, Tuebingen, Germany</aff><aff id="A4"><label>4</label>Department of Neurology, Albert Einstein College of Medicine, Bronx, New York, USA</aff><aff id="A5"><label>5</label>Centre de Recherche de l’Institut du Cerveau et de la Moelle épinière, INSERM U1127, CNRS UMR7225; UPMC Univ Paris VI UMR_S975, 75013 Paris, France</aff><aff id="A6"><label>6</label>Department of Neurology and Neurobiology Xuanwu Hospital Capital Medical University, Beijing, China</aff><aff id="A7"><label>7</label>INSERM, Centre d’Investigation Clinique, CIC-9503, Groupe Hospitalier Pitié-Salpêtrière, Paris, France</aff><aff id="A8"><label>8</label>Department of Medical Genetics, University of British Columbia, Vancouver, BC, Canada</aff><aff id="A9"><label>9</label>Department of Medical and Molecular Genetics, Indiana University, Indianapolis, USA</aff><aff id="A10"><label>10</label>Dept. of Neurology, Tel Aviv Medical Center, Israel</aff><aff id="A11"><label>11</label>Department of Neurology and Neurobiology Laboratory, National Institute of Neurology</aff><aff id="A12"><label>12</label>Morton and Gloria Shulman Movement Disorders Centre and the Edmund J. Safra Program in Parkinson’s Disease, Toronto Western Hospital, Toronto, Ontario, Canada</aff><aff id="A13"><label>13</label>Hospital Donastia, San Sebastian, Spain</aff><aff id="A14"><label>14</label>Department of Neurology, Tel Aviv Sourasky Medical Center, Israel</aff><aff id="A15"><label>15</label>Genetic Institute, Tel Aviv Sourasky Medical Center, Israel</aff><aff id="A16"><label>16</label>The Beth Israel Medical Center Movement Disorders Group, New York, NY, USA</aff><aff id="A17"><label>17</label>The Parkinsons Institute and Clinical Center, SUNNYVALE, California, UNITED STATES</aff><aff id="A18"><label>18</label>Neurology Service, Hospital Clínic de Barcelona, Institut d’Investigacións Biomédiques August Pi I Sunyer (IDIBAPS), Barcelona, Spain</aff><aff id="A19"><label>19</label>The Michael J Fox Foundation for Parkinson’s Research</aff><author-notes><corresp id="FN1"><bold>Corresponding author:</bold> Roy N. Alcalay, 710 West 168<sup>th</sup> Street, New York City, New York 10032, Phone: 212-305-5554. <email>rna2104@columbia.edu</email></corresp></author-notes><pub-date pub-type="nihms-submitted"><day>11</day><month>12</month><year>2015</year></pub-date><pub-date pub-type="ppub"><month>8</month><year>2014</year></pub-date><pub-date pub-type="pmc-release"><day>17</day><month>12</month><year>2015</year></pub-date><volume>16</volume><issue>8</issue><fpage>644</fpage><lpage>645</lpage><pmc-comment>elocation-id from pubmed: 10.1038/gim.2014.55</pmc-comment>
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