A Patient-Based Needs Assessment for Living Well with Parkinson Disease: Implementation via Nominal Group Technique
Identifieur interne : 000E71 ( Main/Exploration ); précédent : 000E70; suivant : 000E72A Patient-Based Needs Assessment for Living Well with Parkinson Disease: Implementation via Nominal Group Technique
Auteurs : Galit Kleiner-Fisman [Canada] ; Pearl Gryfe [Canada] ; Gary Naglie [Canada]Source :
- Parkinson's Disease [ 2090-8083 ] ; 2013.
Abstract
Url:
DOI: 10.1155/2013/974964
PubMed: 23476891
PubMed Central: 3588173
Affiliations:
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Well with Parkinson Disease: Implementation via Nominal Group Technique</title><author><name sortKey="Kleiner Fisman, Galit" sort="Kleiner Fisman, Galit" uniqKey="Kleiner Fisman G" first="Galit" last="Kleiner-Fisman">Galit Kleiner-Fisman</name><affiliation wicri:level="4"><nlm:aff id="I1">ATC and Jeff and Diane Ross Movement Disorders Clinic, Baycrest Hospital, University of Toronto, 3560 Bathurst Street, Toronto, ON, Canada M6A 2E1</nlm:aff><country>Canada</country><wicri:regionArea>ATC and Jeff and Diane Ross Movement Disorders Clinic, Baycrest Hospital, University of Toronto, 3560 Bathurst Street, Toronto, ON</wicri:regionArea><orgName type="university">Université de Toronto</orgName><placeName><settlement type="city">Toronto</settlement><region type="state">Ontario</region></placeName></affiliation></author><author><name sortKey="Gryfe, Pearl" sort="Gryfe, Pearl" uniqKey="Gryfe P" first="Pearl" last="Gryfe">Pearl Gryfe</name><affiliation wicri:level="4"><nlm:aff id="I1">ATC and Jeff and Diane Ross Movement Disorders Clinic, Baycrest Hospital, University of Toronto, 3560 Bathurst Street, Toronto, ON, Canada M6A 2E1</nlm:aff><country>Canada</country><wicri:regionArea>ATC and Jeff and Diane Ross Movement Disorders Clinic, Baycrest Hospital, University of Toronto, 3560 Bathurst Street, Toronto, ON</wicri:regionArea><orgName type="university">Université de Toronto</orgName><placeName><settlement type="city">Toronto</settlement><region type="state">Ontario</region></placeName></affiliation></author><author><name sortKey="Naglie, Gary" sort="Naglie, Gary" uniqKey="Naglie G" first="Gary" last="Naglie">Gary Naglie</name><affiliation wicri:level="4"><nlm:aff id="I2">Baycrest Hospital, University of Toronto, 3560 Bathurst Street, Toronto, ON, Canada M6A 2E1</nlm:aff><country>Canada</country><wicri:regionArea>Baycrest Hospital, University of Toronto, 3560 Bathurst Street, Toronto, ON</wicri:regionArea><orgName type="university">Université de Toronto</orgName><placeName><settlement type="city">Toronto</settlement><region type="state">Ontario</region></placeName></affiliation></author></analytic><series><title level="j">Parkinson's Disease</title><idno type="ISSN">2090-8083</idno><idno type="eISSN">2042-0080</idno><imprint><date when="2013">2013</date></imprint></series></biblStruct></sourceDesc></fileDesc><profileDesc><textClass></textClass></profileDesc></teiHeader><front><div type="abstract" xml:lang="en"><p><italic>Background</italic>. Parkinson's disease (PD) is a neurodegenerative condition with complex subtleties, making it challenging for physicians to fully inform their patients. Given that approximately 50% of Americans access the Internet for health information, the development of a multimedia, web-based application emphasizing targeted needs of people with Parkinson's disease (PwP) has the potential to change patient's lives.
<italic>Objectives</italic>. To determine what information PwP perceive could enhance their quality of life. <italic>Methods</italic>. Group sessions utilizing nominal group technique (NGT) were conducted. Participants were asked “what information do you want to know about that would help you live well with PD?” Silent generation of ideas preceded discussion followed by anonymous ranking of items. A “summary score” (sum of rank × frequency) was calculated. <italic>Results</italic>. 36 individual items were collapsed into 9 categories. Coping with emotions, changing relationships, and social implications of PD were ranked as most important. Financial supports and skills for self-advocacy were also highly ranked. <italic>Conclusions</italic>. Qualitative research methodology was utilized to determine the unmet needs of PwP. Results of this survey will inform the development of a patient-oriented, online resource, the goal will be to provide information and strategies to improve symptom management, reduce disability and address all relevant concerns important to those affected by PD.</p></div></front><back><div1 type="bibliography"><listBibl><biblStruct><analytic><author><name sortKey="Hirtz, D" uniqKey="Hirtz D">D Hirtz</name></author><author><name sortKey="Thurman, Dj" uniqKey="Thurman D">DJ Thurman</name></author><author><name sortKey="Gwinn Hardy, K" uniqKey="Gwinn Hardy K">K Gwinn-Hardy</name></author><author><name sortKey="Mohamed, M" uniqKey="Mohamed M">M Mohamed</name></author><author><name sortKey="Chaudhuri, Ar" uniqKey="Chaudhuri A">AR Chaudhuri</name></author><author><name sortKey="Zalutsky, R" uniqKey="Zalutsky R">R Zalutsky</name></author></analytic></biblStruct><biblStruct></biblStruct><biblStruct><analytic><author><name sortKey="Chen, Jj" uniqKey="Chen J">JJ 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